Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Chi, LDN hasn't changed the stiffness in my legs. I'm primary progressive MS also. Haven't walked in 5 years. Bladder control and sleep is much better on LDN. Stomach bloating? sounds like your husband needs acidophilous and enzymes. But he probably needs to work on repairing damage to the stomach's lining first. I wish you well! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 [sorry if you get this message twice. I resend it as I don't see the mesage after posting.] Hi VCL and all, My name is Chi. I am from Bangkok, Thailand. My husband, Ton, has had primary progressive MS since 2001. We have just got married for 4 months. I do not know neither anyone in Thailand taking LDN nor any Dr. prescribing LDN. My husband's neurologist told us during the previous visit that Naltrexone is not a typical drug being used here. I decided to join the group anyway thinking it would not hurt to learn what others are coping with it. I have been reading the responses to this topic and was wondering what LDN would do for the leg's stiffness that's already there and if it would help with the bloating in the stomach. I plan to go see my husband's neurologist myself this wednesday as he asked for not seeing any doctors for a while. So maybe I can discuss about LDN with her. I'm surprised to know that VCL, you swim 3-4 times a week. I used to want my husband to exercise in the water but he had muscle cram and I was afraid if something happens I couldn't help him. He's having a hard time with bloating and the burning sensation in the stomach all the time, which causes back pain & gait walking. I am having a hard time seeing him not being ready to exercise due to the above and started to worry about his weight. His neurologist prescribes Baclofen and Tegretol but he doesn't want to be on them due to the drowziness side effect and loosing legs' muscle strength. He chooses to have stiffness rather than not being able to walk. So he's now not on any drugs beside Lipitor (help reducing choresteral.) I hope all of you don't mind me telling my husband's problems and I would so much appreciate it if any of you have any suggestion. You all have been very kind to the group member. Thank you very much. Chi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 WELCOME.......I HAVE BEEN ON A SHORT TIME AS WELL AND THIS GROUP IS VERY VERY HELPFUL DeLores decrosby@... -----Original Message-----From: Chi [mailto:dymilo@...] Sent: Monday, November 08, 2004 12:22 PMlow dose naltrexone Subject: [low dose naltrexone] Introducing myself[sorry if you get this message twice. I resend it as I don't see the mesage after posting.]Hi VCL and all,My name is Chi. I am from Bangkok, Thailand. My husband, Ton, has had primary progressive MS since 2001. We have just got married for 4 months. I do not know neither anyone in Thailand taking LDN nor any Dr. prescribing LDN. My husband's neurologist told us during the previous visit that Naltrexone is not a typical drug being used here. I decided to join the group anyway thinking it would not hurt to learn what others are coping with it.I have been reading the responses to this topic and was wondering what LDN would do for the leg's stiffness that's already there and if it would help with the bloating in the stomach. I plan to go see my husband's neurologist myself this wednesday as he asked for not seeing any doctors for a while. So maybe I can discuss about LDN with her.I'm surprised to know that VCL, you swim 3-4 times a week. I used to want my husband to exercise in the water but he had muscle cram and I was afraid if something happens I couldn't help him. He's having a hard time with bloating and the burning sensation in the stomach all the time, which causes back pain & gait walking. I am having a hard time seeing him not being ready to exercise due to the above and started to worry about his weight. His neurologist prescribes Baclofen and Tegretol but he doesn't want to be on them due to the drowziness side effect and loosing legs' muscle strength. He chooses to have stiffness rather than not being able to walk. So he's now not on any drugs beside Lipitor (help reducing choresteral.) I hope all of you don't mind me telling my husband's problems and I would so much appreciate it if any of you have any suggestion. You all have been very kind to the group member. Thank you very much.Chi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Chi, I agree with Marcie; most of us with MS have digestive problems and along with the acidophilous & enzymes you need good fiber like ground flax. Also agree that you need to do the research on repairing the stomach's lining...that is very key in helping any illness. Will pray for you both, Kathy On 8-Nov-04, at 10:50 AM, marciemjm@... wrote: > Chi, > > LDN hasn't changed the stiffness in my legs. I'm primary progressive > MS also. Haven't walked in 5 years. > > Bladder control and sleep is much better on LDN. > > Stomach bloating? sounds like your husband needs acidophilous and > enzymes. But he probably needs to work on repairing damage to the > stomach's lining first. > > I wish you well! > > Marcie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Hi Chi A medical doctor may not know too much about supplements, which is what enzymes are. My nutritionalist/natureopathic doctor encouraged me to get on enzymes. What was very helpful to me was when I went to my nutrionalist/natureopathic doctor and he found out that I had food allergies. I eliminated these foods from my diet and it was very helpful. By putting foods into your system that you either are allergic or have food hypersensitivities to you are stressing out your body. Maybe your husband needs to visit a nutrionalist or natureopathic doctor. Good Luck Marie ----- Original Message ----- From: Chi low dose naltrexone Sent: Tuesday, November 09, 2004 1:17 PM Subject: [low dose naltrexone] Re: Introducing myself Hi Marie,Thank you for your suggestion. My husband has not tried taking Tegretol without Baclofen. He stopped both about 1.5 months ago. I will discuss about that and also discuss about the enzyme with the doctor tomorrow. Thanks a lot. Chi> Hi Chi,> I have been on tegretol for muscle spasms since 1987 with no problems. I did have problems with bacoflen. That made me fatigued all the time.> Maybe your husband needs to try digestive enzymes for his stomach problems. I also had bloating all the time. I get my enzymes from www.thehealthnuts.net> I get ULTIMATE ENZYMES--I get a bottle of 270 capsules. I take two capsules three times per day with my meals. It really does help. I notice a difference when I forget to take them. I don't remember how much it cost. Sometimes people with MS have problems digesting their food properly and enzymes will help. You can read about it on that web site. Good Luck > Marie> ----- Original Message ----- > From: Chi > low dose naltrexone > Sent: Monday, November 08, 2004 12:21 PM> Subject: [low dose naltrexone] Introducing myself> > > > [sorry if you get this message twice. I resend it as I don't see the > mesage after posting.]> > Hi VCL and all,> > My name is Chi. I am from Bangkok, Thailand. My husband, Ton, has > had primary progressive MS since 2001. We have just got married for 4 > months. I do not know neither anyone in Thailand taking LDN nor any Dr. > prescribing LDN. My husband's neurologist told us during the previous > visit that Naltrexone is not a typical drug being used here. I decided to > join the group anyway thinking it would not hurt to learn what others are > coping with it.> > I have been reading the responses to this topic and was wondering what > LDN would do for the leg's stiffness that's already there and if it would > help with the bloating in the stomach. I plan to go see my husband's > neurologist myself this wednesday as he asked for not seeing any > doctors for a while. So maybe I can discuss about LDN with her.> > I'm surprised to know that VCL, you swim 3-4 times a week. I used to > want my husband to exercise in the water but he had muscle cram and I > was afraid if something happens I couldn't help him. He's having a hard > time with bloating and the burning sensation in the stomach all the time, > which causes back pain & gait walking. I am having a hard time seeing > him not being ready to exercise due to the above and started to worry > about his weight. > > His neurologist prescribes Baclofen and Tegretol but he doesn't want to > be on them due to the drowziness side effect and loosing legs' muscle > strength. He chooses to have stiffness rather than not being able to > walk. So he's now not on any drugs beside Lipitor (help reducing > choresteral.) > > I hope all of you don't mind me telling my husband's problems and I > would so much appreciate it if any of you have any suggestion. You all > have been very kind to the group member. Thank you very much.> > > Chi> > > > > > > > Quote Link to comment Share on other sites More sharing options...
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