LDN & Primary Progressive MS

November 10, 2004

Hi,

I went to see my husband's neurologist today and she told me that we

don't have Naltrexone here in Thailand. She said it's up to us if my

husband wants to try it but she wouldn't recommend to take it due to

the lack of clinical trials. I discussed with my husband and he agrees to

try it. So I will order from the website CJ has kindly suggested,

The doctor dx my husband with PPMS with Disability Status Scale of 2.5.

She said it would take some more time to really conclude if it is PPMS or

PRMS. I do not really know if PPMS is the most severe of the 4 types.

Just know that most drugs are for RRMS. Although, the progression has

been slow, my husband hasn't had any good days for nearly 3 years. He

still go to work everyday though.

Has anyone with PPMS or PRMS on LDN? Did LDN help stopping the

progression? From the reading, it was suggested to try 6-9 months

before giving up. For how long did you have to pass thru any side effect

(if any) to get good results? I would like to have the info so that my

husband doesn't stop it too soon.

I feel really blessed to be a part of this group. I hope you all are having

a great day!

Chi

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