Re: difficulties

[Guest guest]

If we couldn't cope with some sense of humor, we would go crazy for sure! It does take a while to get to this point! Some times I have to laugh to keep from crying! Don't get me wrong...There are plenty of tears. I just don't want pity!

Marcie

In a message dated 11/18/2004 5:19:03 PM Central Standard Time, manchester_terrier@... writes:

MS - the disease- is not funny, but coping with it is.

VCL

[Guest guest]

,

Don't you think this happens because they don't know how to deal with some of what we go through? (Not always, but sometimes) It can go from one extreme to the other...my own mother didn't like the way that I handled myself. She liked the hugs and tears that she would get when asked how I was doing, and she told them something that must have been horrible! I asked her to tell people, when they asked about me, that I was doing fine. She informed me that that would be lying! I told her to lie then because I was sick of leaving a public place in tears when the same people would see me and tell me that they had talked to her!!! My mother loves the drama. I don't. I strive to not show the pain that I live with since there isn't anything that can be done.

I know the loss of friends too. It hurts. This board and my dog helps. I have a true friend with two young daughters. I pick them up from school when she needs me to. They love to go shopping with me! They carry the bags and push the basket! We are BIG Dollar Store shoppers!! We can load up a cart! Dogs and kids don't seem to notice the wheelchair! My van is modified so that I manage!

Marcie

In a message dated 11/18/2004 5:54:30 PM Central Standard Time, stevancremeans@... writes:

I love the idea. I try to stay as upbeat as possible but I also lost all of my friends.

[Guest guest]

--- In low dose naltrexone , " Bayuk " <tbayuk@c...>

wrote:

> Hi Folks,

> I have been asked to write a book for friends, families and

caregiver's of ms'er's.

>

>

Tom- I just started " Waist High in the World " by Mairs. It is

an example of telling her story w/ MS with humor. I am enjoying her

writing style.

Gail

[Guest guest]

Steve,

You've done that too??!! I was in my wheelchair though, we both went over the edge! My son, who I thought had a hold of me, was on the ground laughing! Of course, after he knew I was OK!! Moral...lock the brakes!!!

Marcie

In a message dated 11/18/2004 7:35:21 PM Central Standard Time,

tazzertazzer2003@... writes:

Tom I've got one about falling off the porch! Ouch!

Steve

[Guest guest]

I agree with you wholeheartedly, Tom, and I wish you luck. When my

16 year old son used to get that " drunken " walk, if we could not

have laughed at his antics, I don't know what we would have done. I

think I would have lost my mind. That hasn't happened since LDN,

but I believe humor is important to any situation that life throws

our way, good or bad, and I'd love to get my hands on your book when

you're finished! Good luck!

Kim

> Hi Folks,

> I have been asked to write a book for friends, families and

caregiver's of ms'er's.

>

[Guest guest]

Tom, I think it is a great idea. I have made fun of myself for the sake of my children. Just the other day my 15 yr. old admitted that he was embarrased when I needed to use a cane.( He was 13 at the time) He then said that after a few days he was OK with it because I was so funny. (I probably went after him with it) When my scooter was delivered , my kids set it up,got me a helmet and put cones in the driveway.

Laughter is a wonderful thing and if we can't make fun of ourselves, then how can we expect to put others at ease and be surrounded with friends. My vote is to GO For It!! Kiki

[Guest guest]

Go for it Tom. It's a great idea. I think if I or my daughter

couldn't laugh over some of the situations I find myself in, we

would not have the force to handle the next hurdle. Laughter is the

best medecine. I'm looking foward to reading it when it's published.

Regards

Joanne

> Hi Folks,

> I have been asked to write a book for friends, families and

caregiver's of ms'er's.

>

[Guest guest]

Tom;

Humor: Excellent way to convey the message about MS. Most people

will be able to "read between the lines" and get a 'feeling' of it.

If my wife and I hadn't been able to laugh at some of the stuff I've done,

(we had our share of tears as well) I think I would have gone off the deep

end a long time ago....maybe I've already gone and just don't know it.:-)

Good luck,

Jim

[Guest guest]

,

Write such a book and then send it to me. It will keep me in stitches. I have

had MS for 27 years and I could tell you stories that will keep you laughting

for weeks. My husband and I bring up those days and break up laughting until

we are in tears. MS - the disease- is not funny, but coping with it is.

VCL

Hi Folks,

I have been asked to write a book for friends, families and caregiver's of ms'er's.

The person that asked has ms and has really lost most of his former life. It is really quite incredible, this is a very positive upbeat guy. However, he has lost his job, his wife, and he thinks....very often his dignity. I actually take issue with him regarding the dignity. If anything not only has his dignity remained intact but it has been refined and tuned to have insights that are surely to be admired.

In spite of this man's losses....he remains optimistic, hopeful and extremely active helping other ms'er's. He wants the world to know what some of us go through with ms.

I was thinking of taking this very serious and real subject and making it somewhat comical in order to illustrate some of our difficulties. I would not want this to be a depressing downbeat book. Most folks are oblivious to the many difficulties that we sometimes face and I think the point can be made in a comical and positive way.

Your thoughts??

Regards,

Tom

[Guest guest]

It is great idea Tom, I am sure you will get from almost everybody a

story but I am not sure if I can really write it funny. That will

take some doing.

Zora

Trinidad

WI

[Guest guest]

Hi Tom,

I understand exactly what you are trying to convey. I believe humor has great healing properties. Once you can laugh at yourself, you'll be so much more able to move ahead with your disease. That's certainly not saying that you feel this or any one of the incurable diseases are funny or something to take lightly. Good luck with this project, you've got my support!

From: Bayuk [mailto:tbayuk@...] Sent: Thursday, November 18, 2004 2:45 PMMS-Christians ; MS_Community ; A Home away from Home a MS Support Board; mscured ; MSfriends ; MSViews_Multiple_Sclerosis ; low dose naltrexone ; jjworld ; MSersLife Subject: [low dose naltrexone] difficulties

Hi Folks,

I have been asked to write a book for friends, families and caregiver's of ms'er's.

The person that asked has ms and has really lost most of his former life. It is really quite incredible, this is a very positive upbeat guy. However, he has lost his job, his wife, and he thinks....very often his dignity. I actually take issue with him regarding the dignity. If anything not only has his dignity remained intact but it has been refined and tuned to have insights that are surely to be admired.

In spite of this man's losses....he remains optimistic, hopeful and extremely active helping other ms'er's. He wants the world to know what some of us go through with ms.

I was thinking of taking this very serious and real subject and making it somewhat comical in order to illustrate some of our difficulties. I would not want this to be a depressing downbeat book. Most folks are oblivious to the many difficulties that we sometimes face and I think the point can be made in a comical and positive way.

Your thoughts??

Regards,

Tom

[Guest guest]

Tom, I survive the effects of MS, which for me are relatively mild compared to others, by finding ways to laugh at them. My coworkers help me with this without ever making me feel like the butt of a joke. We simply manage to find the funny side of things. Finding humor in our challenges decreases their negative impact and goes a long way toward helping us to enjoy instead of just endure. I don't know how someone with more severe impairment feels, but I say go for it and find ways to make people understand with laughter instead of allowing the darker side of our situation to drive them away without ever gaining understanding...

JT

----- Original Message -----

From: Bayuk

MS-Christians ; MS_Community ; A Home away from Home a MS Support Board ; mscured ; MSfriends ; MSViews_Multiple_Sclerosis ; low dose naltrexone ; jjworld ; MSersLife

Sent: Thursday, November 18, 2004 11:44 AM

Subject: [low dose naltrexone] difficulties

Hi Folks,

I have been asked to write a book for friends, families and caregiver's of ms'er's.

The person that asked has ms and has really lost most of his former life. It is really quite incredible, this is a very positive upbeat guy. However, he has lost his job, his wife, and he thinks....very often his dignity. I actually take issue with him regarding the dignity. If anything not only has his dignity remained intact but it has been refined and tuned to have insights that are surely to be admired.

In spite of this man's losses....he remains optimistic, hopeful and extremely active helping other ms'er's. He wants the world to know what some of us go through with ms.

I was thinking of taking this very serious and real subject and making it somewhat comical in order to illustrate some of our difficulties. I would not want this to be a depressing downbeat book. Most folks are oblivious to the many difficulties that we sometimes face and I think the point can be made in a comical and positive way.

Your thoughts??

Regards,

Tom

[Guest guest]

Tom, when you're ready to write I bet you can find a lot of stories here. I have one about a cracked toilet seat that I think is pretty good...

----- Original Message -----

From: Bayuk

MS-Christians ; MS_Community ; A Home away from Home a MS Support Board ; mscured ; MSfriends ; MSViews_Multiple_Sclerosis ; low dose naltrexone ; jjworld ; MSersLife

Sent: Thursday, November 18, 2004 11:44 AM

Subject: [low dose naltrexone] difficulties

Hi Folks,

I have been asked to write a book for friends, families and caregiver's of ms'er's.

[Guest guest]

---Tom

I've got one about falling off the porch! Ouch!

Steve

In low dose naltrexone , " " <jatrac1@p...>

wrote:

> Tom, when you're ready to write I bet you can find a lot of

stories here. I have one about a cracked toilet seat that I think

is pretty good...

> ----- Original Message -----

> From: Bayuk

> MS-Christians ;

MS_Community ; A Home away from Home a MS Support

Board ; mscured ; MSfriends ;

MSViews_Multiple_Sclerosis ;

low dose naltrexone ; jjworld ;

MSersLife

> Sent: Thursday, November 18, 2004 11:44 AM

> Subject: [low dose naltrexone] difficulties

>

>

> Hi Folks,

> I have been asked to write a book for friends, families and

caregiver's of ms'er's.

>

>

>

[Guest guest]

That sounds wonderful Tom. All the best to you and your friend!

Kathy

On 18-Nov-04, at 12:44 PM, Bayuk wrote:

> Hi Folks,

> I have been asked  to write a book for friends, families and

> caregiver's of ms'er's.

>  

> The person that asked has ms and has really lost most of his former

> life.   It is really quite incredible, this is a very positive upbeat

> guy.  However, he has lost his job, his wife, and he thinks....very

> often his dignity.  I actually take issue with him regarding the

> dignity.  If anything not only has his dignity remained intact but it

> has been refined and tuned to have insights that are surely to be

> admired.

>  

> In spite of this man's losses....he remains optimistic, hopeful and

> extremely active helping other ms'er's.   He wants the world to know

> what  some of us go through with ms.

>  

> I was thinking of taking this very serious and real subject and making

> it somewhat comical in order to illustrate some of our difficulties. 

> I would not want this to be a depressing  downbeat book.   Most folks

> are oblivious to the many difficulties that we sometimes face and I

> think the point can be made in a comical and positive way.

>  

> Your thoughts??

>  

> Regards,

> Tom

>

>

>

>

[Guest guest]

LOL

On 18-Nov-04, at 6:12 PM, wrote:

> Tom, when you're ready to write I bet you can find a lot of stories

> here.  I have one about a cracked toilet seat that I think is pretty

> good...

> ----- Original Message -----

> From: Bayuk

> MS-Christians ; MS_Community ; A

> Home away from Home a MS Support Board ; mscured ;

> MSfriends ; MSViews_Multiple_Sclerosis

> ; low dose naltrexone ; jjworld ;

> MSersLife

> Sent: Thursday, November 18, 2004 11:44 AM

> Subject: [low dose naltrexone] difficulties

>

> Hi Folks,

> I have been asked  to write a book for friends, families and

> caregiver's of ms'er's.

>  

>

>

>

>

>

[Guest guest]

LOL. I love the cones in the driveway...too funny!. You must have

great kids.

Kathy

On 18-Nov-04, at 7:29 PM, noclue915@... wrote:

> Tom, I think it is a great idea. I have made fun of myself for the

> sake of my children. Just the other day my 15 yr. old admitted that he

> was embarrased when I needed to use a cane.( He was 13 at the time) 

> He then said that after a few days  he was OK with it because I was so

> funny. (I probably went after him with it)  When my scooter was

> delivered , my kids  set it up,got me a helmet and put cones in the

> driveway.

> Laughter is a wonderful thing and if we can't make fun of ourselves,

> then how can we expect to put others at ease and be surrounded with

> friends.   My vote is to GO For It!!          Kiki

>

>

>

>

[Guest guest]

and make sure, when you are wheeling down the street, spot a friend

across the road and wave to them, NEVER let go of your wheels because

you'll crash into a wall - ahahaaha, too funny.....

> Steve,

>

> You've done that too??!! I was in my wheelchair though, we both

went over

> the edge! My son, who I thought had a hold of me, was on the

ground laughing!

> Of course, after he knew I was OK!! Moral...lock the brakes!!!

[Guest guest]

In a message dated 11/18/2004 2:58:51 PM Eastern Standard Time, tbayuk@... writes:

I was thinking of taking this very serious and real subject and making it somewhat comical in order to illustrate some of our difficulties. I would not want this to be a depressing downbeat book. Most folks are oblivious to the many difficulties that we sometimes face and I think the point can be made in a comical and positive way.

Your thoughts??

Regards,

Tom

Tom

I think if you can make people laugh and at the same time educate them it would be beneficial.

Arlene

[Guest guest]

Hi Jim,

My wife and I are doing the same. Humor helps us get through those "Tears & Fears"

Regards,

Tom

----- Original Message -----

From: jsgarvin

low dose naltrexone

Sent: Thursday, November 18, 2004 5:46 PM

Subject: Re: [low dose naltrexone] difficulties

Tom;

Humor: Excellent way to convey the message about MS. Most people

will be able to "read between the lines" and get a 'feeling' of it.

If my wife and I hadn't been able to laugh at some of the stuff I've done,

(we had our share of tears as well) I think I would have gone off the deep

end a long time ago....maybe I've already gone and just don't know it.:-)

Good luck,

Jim

[Guest guest]

Hi VCL,

Will do...we can swap " War Stories " , LOL.

Regards,

Tom

----- Original Message -----

From: <manchester_terrier@...>

<low dose naltrexone >

Sent: Thursday, November 18, 2004 6:08 PM

Subject: Re: [low dose naltrexone] difficulties

> ,

>

> Write such a book and then send it to me. It will keep me in stitches. I

> have

> had MS for 27 years and I could tell you stories that will keep you

> laughting

> for weeks. My husband and I bring up those days and break up laughting

> until

> we are in tears. MS - the disease- is not funny, but coping with it is.

>

> VCL

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Marcie,

No doubt our tears are oftentimes a mixture of emotions. That is one of the reasons that this must be told.

Regards,

Tom

----- Original Message -----

From: marciemjm@...

low dose naltrexone

Sent: Thursday, November 18, 2004 6:31 PM

Subject: Re: [low dose naltrexone] difficulties

If we couldn't cope with some sense of humor, we would go crazy for sure! It does take a while to get to this point! Some times I have to laugh to keep from crying! Don't get me wrong...There are plenty of tears. I just don't want pity! Marcie In a message dated 11/18/2004 5:19:03 PM Central Standard Time, manchester_terrier@... writes:

MS - the disease- is not funny, but coping with it is. VCL

[Guest guest]

Hi ,

Thank you, I keep you posted.

Regards,

Tom

----- Original Message -----

From: Baden

low dose naltrexone

Sent: Thursday, November 18, 2004 7:24 PM

Subject: RE: [low dose naltrexone] difficulties

Hi Tom,

I understand exactly what you are trying to convey. I believe humor has great healing properties. Once you can laugh at yourself, you'll be so much more able to move ahead with your disease. That's certainly not saying that you feel this or any one of the incurable diseases are funny or something to take lightly. Good luck with this project, you've got my support!

From: Bayuk [mailto:tbayuk@...] Sent: Thursday, November 18, 2004 2:45 PMMS-Christians ; MS_Community ; A Home away from Home a MS Support Board; mscured ; MSfriends ; MSViews_Multiple_Sclerosis ; low dose naltrexone ; jjworld ; MSersLife Subject: [low dose naltrexone] difficulties

Hi Folks,

I have been asked to write a book for friends, families and caregiver's of ms'er's.

The person that asked has ms and has really lost most of his former life. It is really quite incredible, this is a very positive upbeat guy. However, he has lost his job, his wife, and he thinks....very often his dignity. I actually take issue with him regarding the dignity. If anything not only has his dignity remained intact but it has been refined and tuned to have insights that are surely to be admired.

In spite of this man's losses....he remains optimistic, hopeful and extremely active helping other ms'er's. He wants the world to know what some of us go through with ms.

I was thinking of taking this very serious and real subject and making it somewhat comical in order to illustrate some of our difficulties. I would not want this to be a depressing downbeat book. Most folks are oblivious to the many difficulties that we sometimes face and I think the point can be made in a comical and positive way.

Your thoughts??

Regards,

Tom

[Guest guest]

JT,

That is precisely my intention.

Regards,

Tom

----- Original Message -----

From:

low dose naltrexone

Sent: Thursday, November 18, 2004 8:01 PM

Subject: Re: [low dose naltrexone] difficulties

Tom, I survive the effects of MS, which for me are relatively mild compared to others, by finding ways to laugh at them. My coworkers help me with this without ever making me feel like the butt of a joke. We simply manage to find the funny side of things. Finding humor in our challenges decreases their negative impact and goes a long way toward helping us to enjoy instead of just endure. I don't know how someone with more severe impairment feels, but I say go for it and find ways to make people understand with laughter instead of allowing the darker side of our situation to drive them away without ever gaining understanding...

JT

----- Original Message -----

From: Bayuk

MS-Christians ; MS_Community ; A Home away from Home a MS Support Board ; mscured ; MSfriends ; MSViews_Multiple_Sclerosis ; low dose naltrexone ; jjworld ; MSersLife

Sent: Thursday, November 18, 2004 11:44 AM

Subject: [low dose naltrexone] difficulties

Hi Folks,

I have been asked to write a book for friends, families and caregiver's of ms'er's.

The person that asked has ms and has really lost most of his former life. It is really quite incredible, this is a very positive upbeat guy. However, he has lost his job, his wife, and he thinks....very often his dignity. I actually take issue with him regarding the dignity. If anything not only has his dignity remained intact but it has been refined and tuned to have insights that are surely to be admired.

In spite of this man's losses....he remains optimistic, hopeful and extremely active helping other ms'er's. He wants the world to know what some of us go through with ms.

I was thinking of taking this very serious and real subject and making it somewhat comical in order to illustrate some of our difficulties. I would not want this to be a depressing downbeat book. Most folks are oblivious to the many difficulties that we sometimes face and I think the point can be made in a comical and positive way.

Your thoughts??

Regards,

Tom

[Guest guest]

Hi Kiki,

Will do, are you coming to Florida over the holidays?

Regards,

Tom

----- Original Message -----

From: noclue915@...

low dose naltrexone

Sent: Thursday, November 18, 2004 9:29 PM

Subject: Re: [low dose naltrexone] difficulties

Tom, I think it is a great idea. I have made fun of myself for the sake of my children. Just the other day my 15 yr. old admitted that he was embarrased when I needed to use a cane.( He was 13 at the time) He then said that after a few days he was OK with it because I was so funny. (I probably went after him with it) When my scooter was delivered , my kids set it up,got me a helmet and put cones in the driveway.

Laughter is a wonderful thing and if we can't make fun of ourselves, then how can we expect to put others at ease and be surrounded with friends. My vote is to GO For It!! Kiki