Re: FDA approves Antegren under a new name

[Guest guest]

Hmmm...this does not sound as if it would work with LDN, where the premise is that ENHANCING or TUNING UP our autoimmune response is what is helpful; LDN results seem to me to be the opposite of the theory that an overactive immune system is causing our disease. (at least for some of us)

Daphne

In a message dated 11/23/2004 7:38:11 PM Central Standard Time, adj022762@... writes:

Tysabri appears to work by binding to these immune system cells, thus preventing them from traveling to the brain where they can cause damage.

[Guest guest]

I saw on another site I check on. Is that this drug is going to cost

$2500 a month. Now I have not found anything to confirm this. This

info was posted by someone in one of the trials.

So please don't quote me.

[Guest guest]

"The most frequently reported serious adverse reactions were infections, including pneumonia, temporary hypersensitivity reactions (such as rash, fever, low blood pressure, and chest pain), depression, and gallstones. These serious adverse reactions were uncommon. Common adverse reactions were generally mild and included non-serious infections (such as urinary tract, lower respiratory tract, GI system, and vaginal infections), headache, depression, joint pains, and menstrual disorders."

I don't consider urinary tract infections non-serious. They can lead to kidney infections and are one of the causes of MS related deaths. Depression? serious as can be, especially if it leads to suicide or at the very least a poor quality of life. Joint pains are part of my version of MS, I can't see taking a drug that makes them worse. How many people in the trials experienced this list of reactions? What will their bodies be doing in a few years? This med has not been studied for long enough to make me feel warm and fuzzy about it...

[Guest guest]

Wouldn't surprise me as I was told by the manufacturer almost a year ago that Copaxone was going up to $2,000 per month. I never paid that much because my insurance company got it reduced, but I do think between the two of us we paid $1300 a month!

Daphne

In a message dated 11/23/2004 8:03:12 PM Central Standard Time, adj022762@... writes:

I saw on another site I check on. Is that this drug is going to cost $2500 a month

[Guest guest]

Totally agree, .

I think that they have to be in a hurry

because Aimspro will be coming real soon on the market.

The research of Antegren must be very expensive,

so they try to get some money back.

Normally they say: " it looks very promising but

more research has te be done, with larger groups, etc " .

They never are in a hurry. Why this time ?

Greetings, Simon

>From: " " <jatrac1@...>

>Reply-low dose naltrexone

><low dose naltrexone >

>Subject: Re: [low dose naltrexone] FDA approves Antegren under a new name

>Date: Tue, 23 Nov 2004 20:35:15 -0800

>

> " The most frequently reported serious adverse reactions were

>infections, including pneumonia, temporary hypersensitivity reactions

>(such as rash, fever, low blood pressure, and chest pain),

>depression, and gallstones. These serious adverse reactions were

>uncommon. Common adverse reactions were generally mild and included

>non-serious infections (such as urinary tract,

>lower respiratory tract, GI system, and vaginal infections),

>headache, depression, joint pains, and menstrual disorders. "

>

>I don't consider urinary tract infections non-serious. They can lead to

>kidney infections and are one of the causes of MS related deaths.

>Depression? serious as can be, especially if it leads to suicide or at the

>very least a poor quality of life. Joint pains are part of my version of

>MS, I can't see taking a drug that makes them worse. How many people in

>the trials experienced this list of reactions? What will their bodies be

>doing in a few years? This med has not been studied for long enough to

>make me feel warm and fuzzy about it...

>

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[Guest guest]

I agree totally, . The side effects sound very familiar, much

like the ones my son experienced that caused him to have to stop the

CRAB drugs altogether. We were told by countless neuros that his

deep depression was stemming from the MS itself. Ironic that it

resolved as soon as he discontinued the interferons. The depression

was the thing that scared us most with a 16 year old. Life is tough

enough at that age, I believe.

What makes me crazy about this early release report is how they

constantly say it " appears " to work by........Wouldn't it be more

honest to say " We have no idea how it works or if it works, but,

here, give us money and you can try it and hope for the best " ??? I

truly think that is where they are right now by pushing such an

early release. No warm and fuzzies here, either, !

Kim

> This med has not been studied for long enough to make me feel warm

and fuzzy about it...

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[Guest guest]

To me the depression is the most scary thing to appear so far with this med... the unknowns are vaguely frightening, but depression is truly deadly and will result in prescriptions for additional meds to combat it, further confusing the situation. How will anyone know how they are doing? Knowing we have LDN, a safe alternative with truly mild side effects, makes this all the more frustrating.

----- Original Message -----

From: petessweetheart

low dose naltrexone

Sent: Wednesday, November 24, 2004 7:27 AM

Subject: [low dose naltrexone] Re: FDA approves Antegren under a new name

I agree totally, . The side effects sound very familiar, much like the ones my son experienced that caused him to have to stop the CRAB drugs altogether. We were told by countless neuros that his deep depression was stemming from the MS itself. Ironic that it resolved as soon as he discontinued the interferons. The depression was the thing that scared us most with a 16 year old. Life is tough enough at that age, I believe.> > > > > > > >

[Guest guest]

Give a drug a new name get it rushed thru the testing procedure just so that market share increases, Sounds kinda like "Viox"

Also how in he#* can any drug be worth over twenty thou a year?

This just makes me mad again!

Reg

-------Original Message-------

From: low dose naltrexone

Date: 11/23/04 21:44:53

low dose naltrexone

Subject: Re: [low dose naltrexone] FDA approves Antegren under a new name

"The most frequently reported serious adverse reactions were infections, including pneumonia, temporary hypersensitivity reactions (such as rash, fever, low blood pressure, and chest pain), depression, and gallstones. These serious adverse reactions were uncommon. Common adverse reactions were generally mild and included non-serious infections (such as urinary tract, lower respiratory tract, GI system, and vaginal infections), headache, depression, joint pains, and menstrual disorders."

I don't consider urinary tract infections non-serious. They can lead to kidney infections and are one of the causes of MS related deaths. Depression? serious as can be, especially if it leads to suicide or at the very least a poor quality of life. Joint pains are part of my version of MS, I can't see taking a drug that makes them worse. How many people in the trials experienced this list of reactions? What will their bodies be doing in a few years? This med has not been studied for long enough to make me feel warm and fuzzy about it...

[Guest guest]

Couldn't agree more! I was on LDN for a short time and quit.... but

just got a new script today. What was the best compounding ingredient?

I heard acidophillous and calcium something??? Would really

appreciate any help from any of you. Im in Alberta Canada though so

not sure if things are different here than other places. Thank you all

so much for any help you can give.

I quit originally due to stiffness and was just entering a major

relapse so was too scared to continue. But listening to everyone in

this forum the last few months and the wonderful results you had has

given me the courage to try again!! Thanks again for your honesty and

openness to share your experiences

Kathy

On 24-Nov-04, at 10:08 AM, Reg Kreil wrote:

> Give a drug a new name get it rushed thru the testing procedure just

> so that market share increases, Sounds kinda like " Viox "

> Also how in he#* can any drug be worth over twenty thou a year?

> This just makes me mad again!

> Reg

>  

> -------Original Message-------

>  

> From: low dose naltrexone

> Date: 11/23/04 21:44:53

> low dose naltrexone

> Subject: Re: [low dose naltrexone] FDA approves Antegren under a new name

>  

> " The most frequently reported serious adverse reactions were

> infections, including pneumonia, temporary hypersensitivity reactions

> (such as rash, fever, low blood pressure, and chest pain),

> depression, and gallstones. These serious adverse reactions were

> uncommon. Common adverse reactions were generally mild and included

> non-serious infections (such as urinary tract,

> lower respiratory tract, GI system, and vaginal infections),

> headache, depression, joint pains, and menstrual disorders. "

>  

> I don't consider urinary tract infections non-serious.  They can lead

> to kidney infections and are one of the causes of MS related deaths. 

> Depression?  serious as can be, especially if it leads to suicide or

> at the very least a poor quality of life.  Joint pains are part of my

> version of MS, I can't see taking a drug that makes them worse.  How

> many people in the trials experienced this list of reactions?  What

> will their bodies be doing in a few years?  This med has not been

> studied for long enough to make me feel warm and fuzzy about it...

>  

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> <imstp_emo_en.gif>

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>

[Guest guest]

Hi Kathy,

I too live in Canada (Toronto) and I use LDN with Calcium as that

what was on Dr. Bari's website and the pharmacist that I use said

that it would be a good filler. I have not tried anything else but I

did make sure that it is not slow release as people here will warn

you about.

Jen

>

> > Give a drug a new name get it rushed thru the testing procedure

just

> > so that market share increases, Sounds kinda like " Viox "

> > Also how in he#* can any drug be worth over twenty thou a year?

> > This just makes me mad again!

> > Reg

> >  

> > -- Re: [low dose naltrexone] FDA approves Antegren under a

new name

> >  

> > " The most frequently reported serious adverse reactions were

> > infections, including pneumonia, temporary hypersensitivity

reactions

> > (such as rash, fever, low blood pressure, and chest pain),

> > depression, and gallstones. These serious adverse reactions were

> > uncommon. Common adverse reactions were generally mild and

included

> > non-serious infections (such as urinary tract,

> > lower respiratory tract, GI system, and vaginal infections),

> > headache, depression, joint pains, and menstrual disorders. "

> >  

> > I don't consider urinary tract infections non-serious.  They can

lead

> > to kidney infections and are one of the causes of MS related

deaths. 

> > Depression?  serious as can be, especially if it leads to suicide

or

> > at the very least a poor quality of life.  Joint pains are part

of my

> > version of MS, I can't see taking a drug that makes them worse. 

How

> > many people in the trials experienced this list of reactions? 

What

> > will their bodies be doing in a few years?  This med has not been

> > studied for long enough to make me feel warm and fuzzy about it...

> >  

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >  

> >

> > <imstp_emo_en.gif>

> >

> >

> >

[Guest guest]

Thanks Jen!

Kathy

On 25-Nov-04, at 9:20 AM, dimas_jen wrote:

>

> Hi Kathy,

> I too live in Canada (Toronto) and I use LDN with Calcium as that

> what was on Dr. Bari's website and the pharmacist that I use said

> that it would be a good filler. I have not tried anything else but I

> did make sure that it is not slow release as people here will warn

> you about.

> Jen

> •