Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 Hi Maureen, Thank you. Regards, Tom ----- Original Message ----- From: " bentleyfam26 " <mclarke@...> <low dose naltrexone > Sent: Thursday, November 18, 2004 4:20 PM Subject: [low dose naltrexone] Making ms funny... > > > Tom asked: > > " I have been asked to write a book for friends, families and > caregiver's of ms'er's.... I think the point can be made in a > comical and positive way. " > > Hi Tom. Well, certainly comical. The postive part, you'll have to > work harder at that. For a witty (and caustic) view of MS, look > here: > > http://www.multiplesclerosissucks.com/ > > You might also check out Lander's book, " Fall Down, Laughing: > How Squiggy Caught Multiple Sclerosis and Didn't Tell Nobody. " > Here is the Amazon listing: > > http://www.amazon.com/exec/obidos/ASIN/1585420522/qid=1100812626/sr=2 > -1/ref=pd_ka_b_2_1/103-1255277-0622250 > > Good luck to you and thank you for trying to help your friend. He > sounds very special. > > -- Maureen > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 When my son went his first round with MS, we had been in the hospital at Vanderbilt for days. We had been through a misdiagnosis of " multiple inoperable brain tumors " and so many tests that we couldn't remember the names of half of them. We'd slept on cots and chairs and anywhere we could find to lay down (what little we had slept) and we had gone from total paralysis in one side to some movement, but he was far from back to 100%. It was a beautiful sunny day and we were all feeling a little bit giddy to have found that a 13 year old child did NOT have multiple inoperable brain tumors, so we took him outside in his wheelchair for a stroll through the gorgeous brick paved courtyard. I was pushing him in his chair, so tired, that maybe I should have been in it with him, and we were going down an incline. My ex was on one side of me and his sister was on the other, and all of a sudden the chair wheel caught in an unlevel brick. We dumped Colby out of the chair and all 3 of us wound up on top of him. All we could do was lay there in the sunshine and laugh. A few months later, his balance still not what it should be, we were at Niagara Falls, walking through the paths across from the falls. Colby lost his footing and fell on the grass and rolled for quite a bit. His sister, stepfather and I calmly walked to where he landed, sat down in a circle around him as soon as we saw that he was okay, and carried on the conversation we were having before it happened, just like it was totally normal. And it was totally normal for us. You should have seen the looks we got, and you should have seen how hard we laughed when we realized how it must have looked to others! Sometimes, I think that we don't always laugh at appropriate times, but I also think that when you have so much stress in your lives that you feel you can't go any further, a good old belly laugh can turn it all around. Granted, we might seem a bit twisted and disturbed to outsiders who don't know where we've been or where we are going, but it doesn't matter one bit! Take care! Kim Quote Link to comment Share on other sites More sharing options...
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