Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Keep in mind, Solumedrol is one of the strongest steroids available. It should give you some instant relief from any inflammatory condition. It helped restore my vision almost instantly, but it only lasted for one year. Then I lost the vision again. Avonex did NOTHING to slow/stop progression in me. After two years of injections, I ended up in this wheelchair anyway. Maybe they will do more for you. You can hope! Marcie In a message dated 11/16/2004 12:07:55 PM Central Standard Time, marblejar5@... writes: Thanks for sharing this. It is giving me more hope. I have been taking Avonex since the end of June (when I 'came down' with this). And I am now getting monthly Solumedrol IV at home. I'm going to continue this tx for another month. I'm leary of stopping as I am much better than I was. (I have to keep reminding myself of that) Good luck to you, MsP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Joanne, Good for you! It is so good to hear success stories like yours. If you can help even just one person!! Marcie In a message dated 11/16/2004 4:12:16 PM Central Standard Time, painter907@... writes: Hi my name is Joanne I was diagnosed with MS at the lahey Clinic Last March 2004. ( although when thinking Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 I WANTED TO REPORT THAT AFTER ONLY 2 WEEKS ON LDN I DROVE 50 MILES (AND BACK) TO ACUPUNCTURE TODAY THEN OUT TO EAT AND A LITTLE SHOPPING...ALTHOUGH SHOPPING WITH THE SCOOTER........ I HAVE FELT GOOD AND AM NOT EXHAUSTED AS BEFORE.....I AM THRILLED DeLores decrosby@... -----Original Message-----From: marciemjm@... [mailto:marciemjm@...] Sent: Tuesday, November 16, 2004 5:16 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: I already have leg and trunk muscle stiffness and...Joanne, Good for you! It is so good to hear success stories like yours. If you can help even just one person!! Marcie In a message dated 11/16/2004 4:12:16 PM Central Standard Time, painter907@... writes: Hi my name is Joanne I was diagnosed with MS at the lahey Clinic Last March 2004. ( although when thinking Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Delores, GOOD FOR YOU! EVEN A LITTLE BIT OF ACTIVITY HELPS! vcl I WANTED TO REPORT THAT AFTER ONLY 2 WEEKS ON LDN I DROVE 50 MILES (AND BACK) TO ACUPUNCTURE TODAY THEN OUT TO EAT AND A LITTLE SHOPPING...ALTHOUGH SHOPPING WITH THE SCOOTER........ I HAVE FELT GOOD AND AM NOT EXHAUSTED AS BEFORE.....I AM THRILLED DeLores decrosby@... -----Original Message-----From: marciemjm@... [mailto:marciemjm@...] Sent: Tuesday, November 16, 2004 5:16 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: I already have leg and trunk muscle stiffness and...Joanne, Good for you! It is so good to hear success stories like yours. If you can help even just one person!! Marcie In a message dated 11/16/2004 4:12:16 PM Central Standard Time, painter907@... writes: Hi my name is Joanne I was diagnosed with MS at the lahey Clinic Last March 2004. ( although when thinking Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 Thanks Marcie, I am hoping LDN can help a lot of people. I hope we can get Doctors to proscribe it as an MS drug. I am hoping for federal approval. I had the stiffness at the start and I have very vivid dreams but it is worth that to feel relief. I am thankful for each day. Not that I wasn't thankful but I took walking for granted. I really did not understand the possibility of not being able to walk. You don't know what you've got til its gone. Peace and joy Joanne -----Original Message-----From: marciemjm@... [mailto:marciemjm@...]Sent: Tuesday, November 16, 2004 5:16 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: I already have leg and trunk muscle stiffness and...Joanne, Good for you! It is so good to hear success stories like yours. If you can help even just one person!! Marcie In a message dated 11/16/2004 4:12:16 PM Central Standard Time, painter907@... writes: Hi my name is Joanne I was diagnosed with MS at the lahey Clinic Last March 2004. ( although when thinking Quote Link to comment Share on other sites More sharing options...
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