Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 Tangerine, i just bought a device recently called pyro-energen and it works perfectly. There's also a device called colloidal silver but stopped using it because of it's side effect. Killua > Hi. > Anyone out there who has started meds and then stopped them? I would love > to know your experience, why you started, why you stopped, how you are now > etc. My experience briefly is that I refused meds for about 8 years then became > unwell, several chest infections and then pneumonia ( not PCP ) resulting in > an 8 day hospital stay. In retrospect I can see why I was unwell, I spent a few > years very depressed and stopped looking after my health, drinking, anorexic, > smoking, very stressful relationships, as well as refusing to see doctors at > all and leaving the chest infections untreated. I was scared and started the > meds, one year on had side effects, changed meds, another year more side > effects, changed meds and more side effects and finally said NO!! That was about 4 > months ago and have been doing great apart from when my doctor convinced me to > take nebulised pentamidine and other antibiotics ( I had no sign of any > infection). Not numerically great, but I feel better than in years! I would love to > hear your experiences. > I look forward to hearing from you, > Tangerine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Hi , I really hope you get better soon. I'm newly diagnosed and I'm very confused with so many different opinions. I really don't know what i should do (to start meds or not) I''m a mother of 2 and contracted HIV when I had blood transfusions back in the late 80's. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Hi Tangerine, I only went on a couple med sprees - about 2 week spans.....and then one time I thought to start the second regimen again and it lasted only 3 days. I got tired and quit them altogether because of the already current strain of chemotherapy for the lymphoma. My first 10 day med spree was a nightmare - allergic reactions from the Sustiva/Bactrim. Then my second try/regimen was a PI, Reyataz and Norvir.....it was milder and I only quit because the nausea, general ill feeling...but these may have also been compounded from the chemo sessions....so I was under a double burden. Dissing the meds once and for all now give me more leverage and control over my health.....especially while going thru chemo. I am looking into see if my health ins. covers naturopathic care.....and will be trying that route soon. I am taking ALA(alpha lipoic acid) and NAC(N-Acetyl Cysteine) now for immune enhancement. MGN-3 looks promising....but very expensive. Working to get the immune system strong and potent. Its a work in progress. paul On Mon, 21 Jun 2004 04:57:37 EDT Tangerineburton@... writes: > Hi. > Anyone out there who has started meds and then stopped them? I > would love > to know your experience, why you started, why you stopped, how you > are now > etc. My experience briefly is that I refused meds for about 8 years > then became > unwell, several chest infections and then pneumonia ( not PCP ) > resulting in > an 8 day hospital stay. In retrospect I can see why I was unwell, I > spent a few > years very depressed and stopped looking after my health, drinking, > anorexic, > smoking, very stressful relationships, as well as refusing to see > doctors at > all and leaving the chest infections untreated. I was scared and > started the > meds, one year on had side effects, changed meds, another year more > side > effects, changed meds and more side effects and finally said NO!! > That was about 4 > months ago and have been doing great apart from when my doctor > convinced me to > take nebulised pentamidine and other antibiotics ( I had no sign of > any > infection). Not numerically great, but I feel better than in years! > I would love to > hear your experiences. > I look forward to hearing from you, > Tangerine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Give yourself some time before you make any decision, (like a year!) Run lots of tests, look for trends. Research the drugs before you ingest them, make sure you believe they will really help you. Meanwhile, eat right, sleep, bolster your immune system with the help of an integrative doctor. Keep an open mind, and learn, Learn LEARN. Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 On Sun, 27 Jun 2004 22:45:18 EDT gvs311@... writes: > Hi , I really hope you get better soon. I'm newly diagnosed and > I'm very > confused with so many different opinions. I really don't know what > i should > do (to start meds or not) > I''m a mother of 2 and contracted HIV when I had blood transfusions > back in > the late 80's. > Regards, )====== Hi gvs311, thanks...............I would just stick with improving diet, making sure getting proper rest, nutrition and keeping up on enhancing the immune system. I dont know all your medical stats or if you have gotten t-cell/viral load counts, etc....but if you have...you may know the standard protocol. If youre feeling well and your inner sense is good about your health........you can research your own path to wellness and sustain it. paul Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 In response to recently diagnosed mother, I was wondering why you were tested for HIV, have you had any illnesses or are you feeling well? What do the doctors say and how do YOU feel? I would suggest reading the Alive and Well site ( www.aliveandwell.org ) , there is tons of information, quite a lot regarding blood transfusions I believe. I am also a mother and understand the added stress and concern that this causes when diagnosed. Maggiore, who is the founder of Alive and Well is also a ' positive ' mother and very inspirational! If you would like to contact me or hear my own experiences please feel free! You can write to me directly if you feel more comfortable, or post on this site if you don't mind sharing. Wishing you all the best, Tangerine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Sandi, What tests and trends do you refer to? And, what, pray tell, is an " integrative " doctor? I hope you're not referring to t-cell and viral load counts. From what I've seen, the common thread amongst the thousands of healthy so-called hiv-positive people is that they don't go near HIV doctors. The long term prognosis for those who continue to test -- even if they avoid the treatments -- is not good. I'm so glad I ignored the medical advice 16 years ago. If the meds hadn't killed me, I'd probably be in deep trouble today, for I would have surely gone back and shot the doctor through the head. Ed HIV-positive since before most of you were born. Healthy -- no thanks to modern medicine. Angry? You bet. In a message dated 6/28/2004 11:32:49 AM Pacific Daylight Time, lenfesteys@... writes: Give yourself some time before you make any decision, (like a year!) Run lots of tests, look for trends. Research the drugs before you ingest them, make sure you believe they will really help you. Meanwhile, eat right, sleep, bolster your immune system with the help of an integrative doctor. Keep an open mind, and learn, Learn LEARN. Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Ed, I like the new footer you made. You rock..baby!! aidsisover@... m cures for AIDS cc: 06/29/2004 12:53 Subject: Re: stopping meds PM Please respond to cures for AIDS Sandi, What tests and trends do you refer to? And, what, pray tell, is an " integrative " doctor? I hope you're not referring to t-cell and viral load counts. From what I've seen, the common thread amongst the thousands of healthy so-called hiv-positive people is that they don't go near HIV doctors. The long term prognosis for those who continue to test -- even if they avoid the treatments -- is not good. I'm so glad I ignored the medical advice 16 years ago. If the meds hadn't killed me, I'd probably be in deep trouble today, for I would have surely gone back and shot the doctor through the head. Ed HIV-positive since before most of you were born. Healthy -- no thanks to modern medicine. Angry? You bet. In a message dated 6/28/2004 11:32:49 AM Pacific Daylight Time, lenfesteys@... writes: Give yourself some time before you make any decision, (like a year!) Run lots of tests, look for trends. Research the drugs before you ingest them, make sure you believe they will really help you. Meanwhile, eat right, sleep, bolster your immune system with the help of an integrative doctor. Keep an open mind, and learn, Learn LEARN. Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Ed, The trends that made me watch, wait and wonder are AZT (the wonder drug, going to save us all....NOT), Hit hard, hit early...to now STI's....the philosophy changes faster than an inquiring mind can comprehend. This just exemplifies they do not know what they are doing, but just throwing drugs to see if anything helps, and roping people into studies. My theory, YOU have to live in your body...you are completely responsible for what goes into it, regardless of a doctor's opinion. It is your personal responsibility to validate or dispute their opinion and decide for yourself. And yes, I understand long term survivors have avoided the doctors, I know, I am one of them. However, a doctor with integrity can help a person fine tune their health, which is beneficial to anyone Ed, I am in complete agreement with you. However, there is a completely underrepresented group diagnosed with HIV that have no voice, no rights and no choices. The children are put on the drugs REGARDLESS of CD4 and viral load. I don't subscribe to those markers, have never once done them in 14 years. I stayed away from doctors too. And I am certainly not suggesting anyone go to a conventional HIV doctor. I think people should go to doctors who treat the whole person, per need, not based on HIV status. Actually, because of the children, we need doctors who are considered HIV Specialists (because they actually have patients), who do not subscribe to the hypothesis, who see the big picture, who question the dogma. I know they are out there. We need to support them, to support the scientists and researchers to help the newly " diagnosed " and to help the children who have no voice. Sorry to ramble...this is just really important to me right now. Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 In a message dated 6/29/2004 10:02:57 AM Pacific Daylight Time, monica.alexander@... writes: I like the new footer you made. You rock..baby!! , Thanks. Am even more angry now...now that I've seen " Fahrenheit 9/11. " Everyone should see this extraordinary documentary. Parents, bring your children. Make the censors' rating the movie " R " backfire on them. Speaking of free speech, other than , Stern is about the only person in the media who speaks the truth, and he's in real danger of going off the air. I think we should all write him and beg him to do what no otherwise-conscientious person in the media has been willing to do, to date -- expose the medical fraud called HIV/AIDS! Ed HIV-positive since before most of you were born. Healthy -- no thanks to modern medicine. Angry? You bet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 Sandi, I agree with you almost completely. If you listen closely to the HIV " experts " they'll invariably throw in a few " We don't really know, but... " s. Whereas, the dissidents have been saying " We do know. " Makes more sense to pay closer attention to those who claim they do know, especially since they haven't changed their tune in 20 years. But the problem goes way beyond AIDS. AIDS is just the tip of the medical iceberg. I've come to learn that orthodox medicine does a lot more harm overall, than good. And the bigger the industry and dependence upon medical doctors becomes, the worse it gets. Ed *:-.,_,.-:*'``'*:-.,_,.-:*'``'*:-.,_,.-:*'``'*:-.,_,.-:* " All truth passes through three stages. First, it is ridiculed. Second, it is violently opposed. Third, it is accepted as being self-evident. " -- Arthur Schopenhauer *:-.,_,.-:*'``'*:-.,_,.-:*'``'*:-.,_,.-:*'``'*:-.,_,.-:* In a message dated 6/29/2004 5:53:46 PM Pacific Daylight Time, lenfesteys@... writes: The trends that made me watch, wait and wonder are AZT (the wonder drug, going to save us all....NOT), Hit hard, hit early...to now STI's....the philosophy changes faster than an inquiring mind can comprehend. This just exemplifies they do not know what they are doing, but just throwing drugs to see if anything helps, and roping people into studies. My theory, YOU have to live in your body...you are completely responsible for what goes into it, regardless of a doctor's opinion. It is your personal responsibility to validate or dispute their opinion and decide for yourself. And yes, I understand long term survivors have avoided the doctors, I know, I am one of them. However, a doctor with integrity can help a person fine tune their health, which is beneficial to anyone Ed, I am in complete agreement with you. However, there is a completely underrepresented group diagnosed with HIV that have no voice, no rights and no choices. The children are put on the drugs REGARDLESS of CD4 and viral load. I don't subscribe to those markers, have never once done them in 14 years. I stayed away from doctors too. And I am certainly not suggesting anyone go to a conventional HIV doctor. I think people should go to doctors who treat the whole person, per need, not based on HIV status. Actually, because of the children, we need doctors who are considered HIV Specialists (because they actually have patients), who do not subscribe to the hypothesis, who see the big picture, who question the dogma. I know they are out there. We need to support them, to support the scientists and researchers to help the newly " diagnosed " and to help the children who have no voice. Sorry to ramble...this is just really important to me right now. Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 Stern??? He's the biggest asshole that I know. Now I know you know nothing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Fahrenheit 9/11 is just a remake of one of ' videos, though it is a lot more tame. 's suggestion that the United Nations is the solution just made me burn. You can download ' videos off all the filesharing networks. They are better than the direct plagarism of . Peace, Josh Gulick Contact information: Phone: 765-286-0671 Email: joshua.gulick@... Website: http://gulick.homeip.net (homemade rare earth supplement) Re: stopping meds In a message dated 6/29/2004 10:02:57 AM Pacific Daylight Time, monica.alexander@... writes: I like the new footer you made. You rock..baby!! , Thanks. Am even more angry now...now that I've seen " Fahrenheit 9/11. " Everyone should see this extraordinary documentary. Parents, bring your children. Make the censors' rating the movie " R " backfire on them. Speaking of free speech, other than , Stern is about the only person in the media who speaks the truth, and he's in real danger of going off the air. I think we should all write him and beg him to do what no otherwise-conscientious person in the media has been willing to do, to date -- expose the medical fraud called HIV/AIDS! Ed HIV-positive since before most of you were born. Healthy -- no thanks to modern medicine. Angry? You bet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 Sheila, You wrote: > > > At that time I was taking 2 grains Armour and 25mcgs L-thyroxine + 2 NAE. Then you must have had partial thyroid function, since this is less than the usual full replacement dose. When you stopped all meds, your well-rested gland was able to temporarily take up the slack. Chuck Quote Link to comment Share on other sites More sharing options...
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