Re: RE: I have Ms symtoms and I am not happy!

[Guest guest]

I don't Think Tom meant that there was anything funny about MS. I think what he meant was that the issue should be approached with a sense of humor, otherwise, it could scare people off. Any literature out there by mainstream medical sources is so depressing that one is left with such desperation and hopelessness. Most of it doesn't really touch the bare bones of the disease. There has to be a way to get to the truth without scaring people.

I'm with you Tom. Have I got some stories to tell! I've told some of them here. E-mail me @ marciemjm@....

Marcie

In a message dated 11/18/2004 2:36:58 PM Central Standard Time, painter907@... writes:

Who are you Tom? There is nothing funny about MS symtoms. Lost is the key word here and "life" is another. But creativity is very key I am creating a new "person" if you will and I only hope my family will continue to accept the whole new "me". You managed to hit a nerve. JL ( I have a great deal more to say to you! )

[Guest guest]

I think humor is a great way to reach and educate people. People are fightened by our limitations and do not know what to say or do. A little humor opens the doors of communication and helps to make others more comfortable. I think it is a great idea...Hey, laughter is the best medicine!!

Lori

----- Original Message -----

From: Joanne Longley

low dose naltrexone

Sent: Thursday, November 18, 2004 2:17 PM

Subject: [low dose naltrexone] RE: I have Ms symtoms and I am not happy!

Who are you Tom? There is nothing funny about MS symtoms. Lost is the key word here and "life" is another. But creativity is very key I am creating a new "person" if you will and I only hope my family will continue to accept the whole new "me". You managed to hit a nerve. JL ( I have a great deal more to say to you! )

-----Original Message-----From: Bayuk [mailto:tbayuk@...]Sent: Thursday, November 18, 2004 2:45 PMMS-Christians ; MS_Community ; A Home away from Home a MS Support Board; mscured ; MSfriends ; MSViews_Multiple_Sclerosis ; low dose naltrexone ; jjworld ; MSersLife Subject: [low dose naltrexone] difficulties

Hi Folks,

I have been asked to write a book for friends, families and caregiver's of ms'er's.

The person that asked has ms and has really lost most of his former life. It is really quite incredible, this is a very positive upbeat guy. However, he has lost his job, his wife, and he thinks....very often his dignity. I actually take issue with him regarding the dignity. If anything not only has his dignity remained intact but it has been refined and tuned to have insights that are surely to be admired.

In spite of this man's losses....he remains optimistic, hopeful and extremely active helping other ms'er's. He wants the world to know what some of us go through with ms.

I was thinking of taking this very serious and real subject and making it somewhat comical in order to illustrate some of our difficulties. I would not want this to be a depressing downbeat book. Most folks are oblivious to the many difficulties that we sometimes face and I think the point can be made in a comical and positive way.

Your thoughts??

Regards,

Tom

[Guest guest]

Hi Joanne,

I think you misunderstood. I am quite familiar with the problems of ms, been living with them since being diagnosed in 1984.

I wrote www.copingandprevailing.com

My thoughts are to illustrate the obstacles that ms'er's live with in a way that will reach the most people without losing them.

Regards,

Tom

----- Original Message -----

From: Joanne Longley

low dose naltrexone

Sent: Thursday, November 18, 2004 3:17 PM

Subject: [low dose naltrexone] RE: I have Ms symtoms and I am not happy!

Who are you Tom? There is nothing funny about MS symtoms. Lost is the key word here and "life" is another. But creativity is very key I am creating a new "person" if you will and I only hope my family will continue to accept the whole new "me". You managed to hit a nerve. JL ( I have a great deal more to say to you! )

-----Original Message-----From: Bayuk [mailto:tbayuk@...]Sent: Thursday, November 18, 2004 2:45 PMMS-Christians ; MS_Community ; A Home away from Home a MS Support Board; mscured ; MSfriends ; MSViews_Multiple_Sclerosis ; low dose naltrexone ; jjworld ; MSersLife Subject: [low dose naltrexone] difficulties

Hi Folks,

I have been asked to write a book for friends, families and caregiver's of ms'er's.

The person that asked has ms and has really lost most of his former life. It is really quite incredible, this is a very positive upbeat guy. However, he has lost his job, his wife, and he thinks....very often his dignity. I actually take issue with him regarding the dignity. If anything not only has his dignity remained intact but it has been refined and tuned to have insights that are surely to be admired.

In spite of this man's losses....he remains optimistic, hopeful and extremely active helping other ms'er's. He wants the world to know what some of us go through with ms.

I was thinking of taking this very serious and real subject and making it somewhat comical in order to illustrate some of our difficulties. I would not want this to be a depressing downbeat book. Most folks are oblivious to the many difficulties that we sometimes face and I think the point can be made in a comical and positive way.

Your thoughts??

Regards,

Tom

[Guest guest]

Humor is definitely a healer and Im a great advocate of it. There are

to many serious things to deal with daily with this disease. When I can

laugh at something so hard that no sound comes out and it hurts....well

I feel like I've spent the day at a spa!

Kathy

On 18-Nov-04, at 1:48 PM, Lori wrote:

> I think humor is a great way to reach and educate people. People are

> fightened by our limitations and do not know what to say or do. A

> little humor opens the doors of communication and helps to make others

> more comfortable. I think it is a great idea...Hey, laughter is the

> best medicine!!

> Lori

> ----- Original Message -----

> From: Joanne Longley

> low dose naltrexone

> Sent: Thursday, November 18, 2004 2:17 PM

> Subject: [low dose naltrexone] RE: I have Ms symtoms and I am not happy!

>

> Who are you Tom? There is nothing funny about MS symtoms. Lost is the

> key word here and " life " is another. But creativity is very key I am

> creating a new " person " if you will and I only hope my family will

> continue to accept the whole new " me " . You managed to hit a nerve. JL

> ( I have a great deal more to say to you! )

> -----Original Message-----

> From: Bayuk [mailto:tbayuk@...]

> Sent: Thursday, November 18, 2004 2:45 PM

> MS-Christians ; MS_Community ; A

> Home away from Home a MS Support Board; mscured ;

> MSfriends ; MSViews_Multiple_Sclerosis ;

> low dose naltrexone ; jjworld ;

> MSersLife

> Subject: [low dose naltrexone] difficulties

>

> Hi Folks,

> I have been asked  to write a book for friends, families and

> caregiver's of ms'er's.

>  

> The person that asked has ms and has really lost most of his former

> life.   It is really quite incredible, this is a very positive upbeat

> guy.  However, he has lost his job, his wife, and he thinks....very

> often his dignity.  I actually take issue with him regarding the

> dignity.  If anything not only has his dignity remained intact but it

> has been refined and tuned to have insights that are surely to be

> admired.

>  

> In spite of this man's losses....he remains optimistic, hopeful and

> extremely active helping other ms'er's.   He wants the world to know

> what  some of us go through with ms.

>  

> I was thinking of taking this very serious and real subject and making

> it somewhat comical in order to illustrate some of our difficulties. 

> I would not want this to be a depressing  downbeat book.   Most folks

> are oblivious to the many difficulties that we sometimes face and I

> think the point can be made in a comical and positive way.

>  

> Your thoughts??

>  

> Regards,

> Tom

>

>

>

>

>

>