Autoimmune disorders

[Guest guest]

Dear Friends,

I have recently read a lot about PANDA and other autoimmune disorders.

Disorders of the immune systems can definitely make children irritable, so

can undiagnosed allergies. One laboratory test which I love is the simple

white blood cell count (WBC) and a simple differential to separate the

different types of WBCs

(white blood cells).

Children with a greater proportion of Eosinophils (WBCs

that pick up the stain eosin) may have allergies-something they are eating or

something in the environment.

Children who have a greater than normal amount of neutrophils may be fighting

a bacterial infection and kids with too many lymphocytes may be in the mist

of a battle with a virus.

When I was a kid, I suffered from a severe immune system disorder and I was

horrible - a total tyrant. My mother had a nurse give me a shot of

gammaglobulin each day until my immune system began to function normally.

If your child may be at risk for PANDA or any other immune system disorder,

see a pediatrician.

Low doses of environmental radiation, certain medications, chemical

pollutants, bacteria, viruses and genetic factors can all be factors in

immune system disorders.

I am a Medical Laboratory Technician and I used to perform WBC counts with

complete differentials on every blood sample. Nowadays we just run through

tubes of blood in a machine that performs the counts and a technologist

seldom does a manual differential to see if the WBC are healthy and normal.

I hope that each child has the procedure performed at least once at the

beginning of the diagnostic tests.

Good luck

Melinda

[Guest guest]

In a message dated 6/6/2003 1:41:09 PM Eastern Standard Time,

p_houser37@... writes:

> I wonder how many people in this group has a thyroid condition or other

> disorder? Or has one and is not aware of it?? This would be a great poll to

take

> I think.

>

No disorder here. But three of Duff's siblings have hypothyroidism (so does

Maddie BTW), one has MS, diabetes runs rampant in his mom's family, and his

oldest sister had rheumatic fever as a child (and now is left with some heart

issues). Hmmmmmmm.....

Donna

[Guest guest]

For what it's worth - my thryoid is fine but my mom has been on thyroid

medicine since she was in her 20's.

In my husband's family each of his brothers has a kid with some sort of

syndrome. His oldest brother has a kid with Tourette's and ADD, his middle

brother

has a kid that was born with cleft lip and palate plus something like

Freidrich's syndrome? (something like the uterus didn't expand to allow baby to

develop quite right) and then there's us with Hannah with DS/Aut and a son with

Tourette's and OCD.

a

[Guest guest]

My mother had lupus which is a autoimmune disorder. I had aout a 90%

loss of hearing in both ears about 9 years ago (while most of my hearing

has returned, I cannot hear certain pitches, and I hear crickets

constantly). The doctors did not know why a person at my age would have

lost hearing in both ears at the same time - attributted the hearing loss

to autoimmune disorder.

debby

_____________________________________

On Fri, 6 Jun 2003 14:01:07 EDT Duffey48@... writes:

> In a message dated 6/6/2003 1:41:09 PM Eastern Standard Time,

> p_houser37@... writes:

>

> > I wonder how many people in this group has a thyroid condition or

> other

> > disorder? Or has one and is not aware of it?? This would be a

> great poll to take

> > I think.

> >

>

> No disorder here. But three of Duff's siblings have hypothyroidism

> (so does

> Maddie BTW), one has MS, diabetes runs rampant in his mom's family,

> and his

> oldest sister had rheumatic fever as a child (and now is left with

> some heart

> issues). Hmmmmmmm.....

> Donna

>

>

>

[Guest guest]

Who was it that was asking if psoriasis (sp?) is an autoimmune disorder?

In answer, yes it is on the list.

donna

[Guest guest]

In a message dated 6/9/03 7:54:12 AM Central Daylight Time,

writes:

> Seems to be something to the Doc's theory. I have asked other mothers with

> kids with DS if they have a thyroid problem and the results are about the

> same. It would be worth investigating and every woman who planning a fmaily

> should have a thyroid panel done.

>

> I am also on a low dose of synthroid and I aslo take Armour thyroid for the

> T3 hormone. I also have rheumotoid arthritis and osteoarthritis.

>

> Pam mom to identical twins Hannah )DS) and (DS-ASD) age 8

>

>

I just need to put in my two cents. To make this a true reflection of the

impact of thyroid on the incidence of ds you would have to compare the rate of

mothers with a thyroid disorder who have children with ds to those with thyroid

disorder and have non-disabled children.

Example, My sister has hypothyroid and was diagnosed when pregnant with my

nephew. He does not have ds. My older sister has chronic fatigue syndrome and

arthritis. My niece doesn't have ds. Just so I don't confuse everyone- My son

who has ds doesn't count because he is adopted.

Karyn

[Guest guest]

I'd be interested if any studies have been done on this. My thyroid

is ok (so is my sons), but I do have lupus.

[Guest guest]

I am currently reading " What your doctor may not tell you about breast

cancer " by R Lee. It's mainly about oestrogen dominance and

progesterone deficiency, but on page 187 there's a bit about

autoimmune disorders which may be of interest to some. Any comments

would be appreciated.

" The immune system is also affected by hormone status. Autoimmune

disorders are much more prevalent in women than in men, and more

prevalent in women during the time of life when they are estrogen

dominant than in women at other ages of life. Such disorders include

rheumatoid arthritis, Sjogren's syndrome (dry eyes and dry mouth),

Hashimoto's thyroiditis, Graves' disease, lupus erythematosus, and

rosacea. It's not uncommon for women with these disorders to find

that their symptoms gradually resolve when they balance their hormones

with progesterone. Such cases strongly suggest that progesterone

protects against autimmune disorders caused by excessive estrogens. "

Please note that he is talking about natural progesterone, not

synthetic progestins. They are not at all the same thing, despite

doctors habitually referring to synthetic progestins as progesterone

(very confusing!).

Miriam

[Guest guest]

Hi Mirian - this is absolutely true, and why we keep telling our members (when we remember) to get their oestrogen levels checked (beside their other sex hormones) because oestrogen dominance is a serious problem and easily remedied by the use of natural progesterone cream.

Thanks for bringing this up.

Luv - Sheila

I am currently reading "What your doctor may not tell you about breastcancer" by R Lee. It's mainly about oestrogen dominance andprogesterone deficiency, but on page 187 there's a bit aboutautoimmune disorders which may be of interest to some. Any commentswould be appreciated. "The immune system is also affected by hormone status. Autoimmunedisorders are much more prevalent in women than in men, and moreprevalent in women during the time of life when they are estrogendominant than in women at other ages of life. Such disorders includerheumatoid arthritis, Sjogren's syndrome (dry eyes and dry mouth),Hashimoto's thyroiditis, Graves' disease, lupus erythematosus, androsacea. It's not uncommon for women with these disorders to findthat their symptoms gradually resolve when they balance their hormoneswith progesterone. Such cases strongly suggest that progesteroneprotects against autimmune disorders caused by excessive estrogens."Please note that he is talking about natural progesterone, notsynthetic progestins. They are not at all the same thing, despitedoctors habitually referring to synthetic progestins as progesterone(very confusing!).Miriam

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[Guest guest]

I had my sex hormones tested (and I am post-meno) and I had high

progesterone relative to my oestrogen.

Anyone ever heard of that?

I am thinking of asking the GP for estriol as I believe this is safer

oestrogen to use in cream form.

Anyone using it?

Thanks.

Mo

>

> Hi Mirian - this is absolutely true, and why we keep telling our

members (when we remember) to get their oestrogen levels checked

(beside their other sex hormones) because oestrogen dominance is a

serious problem and easily remedied by the use of natural

progesterone cream.

>

> Thanks for bringing this up.

>

> Luv - Sheila

>

>

> I am currently reading " What your doctor may not tell you about

breast

> cancer " by R Lee. It's mainly about oestrogen dominance and

> progesterone deficiency, but on page 187 there's a bit about

> autoimmune disorders which may be of interest to some. Any

comments

> would be appreciated.

>

> " The immune system is also affected by hormone status. Autoimmune

> disorders are much more prevalent in women than in men, and more

> prevalent in women during the time of life when they are estrogen

> dominant than in women at other ages of life. Such disorders

include

> rheumatoid arthritis, Sjogren's syndrome (dry eyes and dry mouth),

> Hashimoto's thyroiditis, Graves' disease, lupus erythematosus, and

> rosacea. It's not uncommon for women with these disorders to find

> that their symptoms gradually resolve when they balance their

hormones

> with progesterone. Such cases strongly suggest that progesterone

> protects against autimmune disorders caused by excessive

estrogens. "

>

> Please note that he is talking about natural progesterone, not

> synthetic progestins. They are not at all the same thing, despite

> doctors habitually referring to synthetic progestins as

progesterone

> (very confusing!).

>

> Miriam

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.173 / Virus Database: 270.7.5/1708 - Release Date:

04/10/2008 11:35

>

[Guest guest]

Oh hi Val, you're back!

I would have asked you first but I did not know when you returned

exactly.

Can I get this from the GP on prescription do you know.

And do I need to use progesterone cream with it?

Ta.

Mo

>

> I use ortho gynest cream which is estriol.

>

> Val

> I am thinking of asking the GP for estriol as I believe this is safer

> oestrogen to use in cream form.

> Anyone using it?

> Thanks.

>

> Mo

>

[Guest guest]

Also I read that oestrogen cream was good for urinary incontinence

which I have been putting up with for the last few years.

Anyone got a solution for this?

Mo

>

> I use ortho gynest cream which is estriol.

>

> Val

> I am thinking of asking the GP for estriol as I believe this is safer

> oestrogen to use in cream form.

> Anyone using it?

> Thanks.

>

> Mo

>

[Guest guest]

Hi Jane - can you post your full ASI test results with the reference ranges. If you have already done this, my apologies, but I would like there are so many results I cannot always remember.

Luv - Sheila

i did feel quite jittery taking the nae first thing in the morning. silly me, as it was the one time of day i didn't need it. so far taking it later in the day hasn't kept me awake. i am also off armour for a week whilst building the nae doses. i was nervous about coming off but it really hasn't been too bad. kind regards jane

..

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[Guest guest]

Oooooooooooooh, I don't think I fancy that Val! Yikes.

I suppose I was hoping the oestrogen cream would do the business.

Not likely?

Mo

> http://www.stressnomore.co.uk/acatalog/Kegel8Plus.html?

osadcampaign=006 & gclid=CLnix5bBkJYCFQsZQgoddwTmEA

>

> Hope this helps.

> Val

>

> Also I read that oestrogen cream was good for urinary incontinence

> which I have been putting up with for the last few years.

> Anyone got a solution for this?

>

> Mo

>

[Guest guest]

Mo:

I find doing Pilates a great help with muscle tone including pelvic

floor. It is not aerobic, and my instructor lets me stop when I've done

enough reps. I found it starts off very gently, and gradually increases

in intensity. I've been going for 3 years now. I started it because I

read that, because each exercise you do, you try to do correctly, and

because each time, you try to do better, you use your mind so stay

involved with it.

Certainly I found that as my health has improved, so my muscles have

been ready to take on the extra exercise I now have stamina for.

I hope this makes sense, and hope you can find a way to solve your

problem that you find acceptable!

Best wishes

Kat

>

> Oooooooooooooh, I don't think I fancy that Val! Yikes.

> I suppose I was hoping the oestrogen cream would do the business.

> Not likely?

>

[Guest guest]

Is that stress incontinence (eg problems when sneezing), or irritation

and having to go frequently? The stress incontinence might be helped

by strengthening the pelvic floor, if you are in a good enough state

to benefit from exercise, but there seem to be many reasons for other

forms of incontinence.

I find many things cause irritation so that I have to go to the loo

every hour (or more!), particularly supplements containing lots of B

vitamins. Conversely, if I only drink water all day and don't eat

anything then I don't have any bladder problems (an unsustainable

solution, sadly). My doctor said there was a connection between

irritable bowel and irritable bladder (the same bad bugs being

involved), so maybe when I solve the first the second will resolve itself.

Certain hormones control fluid balance and have an effect on bladder

problems. Sorry I can't remember all the details. Aldosterone, an

adrenal hormone, is one. Estriol and progesterone can have a

beneficial effect. In " What your doctor may not tell you about

menopause " by Dr Lee, there is a section on pages 284-288 about

urinary tract problems. Also various drugs can cause urinary problems

so check what you are taking.

If you think the problem is cystitis then I would recommend " You don't

have to live with cystitis " by Dr Larrian Gillespie.

Miriam

> Also I read that oestrogen cream was good for urinary incontinence

> which I have been putting up with for the last few years.

> Anyone got a solution for this?

> Mo

[Guest guest]

Thanks Kat for this information. It is looking like there is more

involved in sorting this out than just using oestrogen cream which is

what I thought.

So there is the weakened neck of the bladder from low oestrogen AND

weaked pelvic floor from childbirth.

The joys of womanhood eh?

Mo

>

> I find doing Pilates a great help with muscle tone including pelvic

> floor. It is not aerobic, and my instructor lets me stop when I've

done

> enough reps. I found it starts off very gently, and gradually

increases

> in intensity. I've been going for 3 years now. I started it because

I

> read that, because each exercise you do, you try to do correctly,

and

> because each time, you try to do better, you use your mind so stay

> involved with it.

>

> Certainly I found that as my health has improved, so my muscles

have

> been ready to take on the extra exercise I now have stamina for.

>

> I hope this makes sense, and hope you can find a way to solve your

> problem that you find acceptable!

>

> Best wishes

> Kat

>

> >

> > Oooooooooooooh, I don't think I fancy that Val! Yikes.

> > I suppose I was hoping the oestrogen cream would do the business.

> > Not likely?

> >

>

[Guest guest]

I suppose it is stress incontinence Miriam. Energy is still a major

problem for me and memory too so I think I will first try the

oestrogen/progesterone route if I can persuade my GP to prescribe.

I am on betablockers for blood pressure and I believe high blood

pressure is a contraindication for using oestrogen.

Thanks Miriam.

Mo

ps Dr Lee talks a lot about high oestrogen, low progesterone but I

have the opposite going on and it seems to be unusual though I cannot

find a reason for it to be this way.

>

> Is that stress incontinence (eg problems when sneezing), or

irritation

> and having to go frequently? The stress incontinence might be

helped

> by strengthening the pelvic floor, if you are in a good enough state

> to benefit from exercise, but there seem to be many reasons for

other

> forms of incontinence.

>

> I find many things cause irritation so that I have to go to the loo

> every hour (or more!), particularly supplements containing lots of B

> vitamins. Conversely, if I only drink water all day and don't eat

> anything then I don't have any bladder problems (an unsustainable

> solution, sadly). My doctor said there was a connection between

> irritable bowel and irritable bladder (the same bad bugs being

> involved), so maybe when I solve the first the second will resolve

itself.

>

> Certain hormones control fluid balance and have an effect on bladder

> problems. Sorry I can't remember all the details. Aldosterone, an

> adrenal hormone, is one. Estriol and progesterone can have a

> beneficial effect. In " What your doctor may not tell you about

> menopause " by Dr Lee, there is a section on pages 284-288 about

> urinary tract problems. Also various drugs can cause urinary

problems

> so check what you are taking.

>

> If you think the problem is cystitis then I would recommend " You

don't

> have to live with cystitis " by Dr Larrian Gillespie.

>

> Miriam

>

>

> > Also I read that oestrogen cream was good for urinary

incontinence

> > which I have been putting up with for the last few years.

> > Anyone got a solution for this?

> > Mo

>

[Guest guest]

Hi Mo, angel,

ben's cream is cheap, but I found it was far less effective than Serenity- I had to use so much to get any effect that it did not work out any cheaper. http://www.progersterone.co.uk

thyroid treatment From: angel47572000@...Date: Mon, 6 Oct 2008 11:14:16 +0000Subject: Re: Autoimmune disorders

Hi Mo, jenny Ben has some cream which is progesterone and oestrogen called something or other.can`t think at the moment, but contact details are in the files,. this is where i get my prog cream from, also I have try-ed the two hormones together, and it works quite well.so worth a try I think. it has black cohorsh in it as well as some other things so it is good for post menopause. angel. Get Hotmail on your mobile from Vodafone Try it Now

[Guest guest]

Hi Jane

Do you feel it has

made a difference to take your NAE at a later time in the morning and

afternoon. How do you feel now you have started back on Armour (assuming that

you have) and also, have you considered taking your Armour at night?

Luv - Sheila

>

> hi shiela; of course i will post the asi results again, if only i

> could take the cortisole that i have at 8 am and spread it through

> the day!

> 8 am 50.6 (12.-33)

> 12 noon 9.4 (10.-28)

> 4 pm 5.3 (6.-11.8)

> midnight 2.7 (1.-5)

>

> DHEA

> 8am 5.7 (7.-18.3)

> 12 noon 4.2 (4.8-8.2)

> 4 pm 4.3 (3.5-6.0)

> midnight 4.4 (2.0-4.0)

> Comments: salivary cortisol profile: 8 am value significantly

> above reference range; other results are either borderlline or

below

> reference range. overall indicates an erratic hormone output

> salivary DHEA profile: 8am and noon values below reference range;

> erratic hormone output.

>