Re: SCD PALS in OHIO - help

[Guest guest]

,

I feel your pain. I have had UC for the past 13

years. These past 7 years I have become steroid

dependent. 60 mgs. is a lot to be on. Steroids can

thin your bones, so make sure they have you on

something for that or you will also have osteoperosis

(like I do).

Over the past year, my colon started failing & I was

forced this past Jan. to have my entire large colin

and all be 1 " of my rectum removed. They created an

internal " J " pouch and I wore an illiostimy pouch for

three months. They reverse the pouch during the 2nd

surgery. I'm still having problems with my stools

being all water, but we're working on that.

All of the doctors I asked told me that since they

don't know what causes UC, they aren't able to cure

it. They also felt ( & after so many years of having

UC), that no particular foods helped or hurt UC.

Good luck to you.

Pam

--- Grammy Bauer <hebegb70@...> wrote:

> *SCD Pals click on 's addy below to help

> please.Those that have been on the diet for a year.

> If you do not want to help let me know.

> Loving Care, Grammy Gay hebegb70@... or

> grammy_bauer@...

> Support http://www.scdiet.net/ and

> pecanbread-subscribe

> Store: http://www.scdiet.com/

>

> julchl@... I have UC -

> Pancolitis. I live in Onsted, MI (between

> and Ann Arbor and kinda close to Toledo, OH). I

> have been on the SCD 100% for 3 weeks and something

> is working b/c I feel great. I found out that I

> have UC July 30, 2006 - blood started in July so had

> colonoscopy. I have 1-2 bm's now per day (use to be

> 4-5 and never more than 8-10 (max). Formed to semi

> and a couple of watery ones in-between is what I

> have had since being out of the hospital. Almost

> feel constipated. Very little bloating, no

> gas..........really symptom free. I have been

> unsuccessful in weening off predisone. Started on

> 60 in Aug -2006 and then every time I hit 10mg, I

> would flare. Got to 6mg but then had severe nausea

> and ended up in the hospital where they up'd me back

> to 60mg but now weened to 25mg. This is the most

> symptom free that I have been.........not sure if

> SCD diet, holisitic supplements...has to be one of

> them or maybe both????????

> Imuran I got sick off. I am allergic to

> penicillian so I seem to get hard-core antibotics

> when I have ended up in the hospital. I am scared

> to try 6mp and refuse to do Remicade. I hate

> medicine and my GI doctor thinks I need to have my

> colon removed (she is a doctor in training at U of

> M). So, this is what I think to be " my last shot "

> before considering surgery so I am prepared to give

> it ALL I have..........that is why the diet has been

> manageable for me, I think.

> I did raw veg's in blender (do not have a juicer

> yet) yesterday and all seemed okay. My bm today was

> semi-formed and more than normal and not bloated

> today so it seems like it did me good but I clearly

> do not want to aggravate my system and all I have

> right now is a blender. So, what do you think? I

> deprived myself of fruits and veg's for the 1st

> 6mths so I really am loving them all and like them

> better blender so I don't worry about them getting

> stuck.

> thanks for listening!!!!!!!!! I cannot tell you

> how much it helps!!!!!!

>

>

>

>

>

> Dearest ,

> *Click on the e-mail address. Put in subject:

> SCDiet help, please. Put their names on your

> contact list. ****These people are a blessing****

> Ask if they are still on the scdiet or not. If not,

> let me know, so I can take them off the list of SCD

> pals in your area.

> SCD Pals in OHIO OH will help

> Or look in the phone book

> **n Helmick P2ParentsChatPC@...

> Cuyahoga County

> 216-663-1453; Cell phone. 216-310-9692 Northeast

> Ohio area

> or write to: http://mail./config/login?/

>

> mailto: DMHelmick1@...

> Owner/Moderator for " Parent to

> Parent for Autism " :

> groups/ .

>

> Put in Subject: Support Meeting list

>

> -owner ,

> When: The first Wednesday of Every Month

> Location: St Bazil, parish center room 8,

> Brecksville, Ohio

> Website: http://www.asgc.org Email:

> support@...

>

> http://hometown.aol.com/parentschat/homepage.html

> Parent to Parent for Autism- ParentsChat

> groups/P2ParentsChat

> [Autism]

> Davey who has autism(PDD).

> http://hometown.aol.com/GFCF4Davey/Davey.html

> Story of hope and success

>

http://www.sunnews.com/news/2004/part2/0805/SAUTISM.htm

>

> Residents. (for parents of children

> with autism)

> There is a local support group for parents with

> children who have autism. We

> have members in our group that are doing the SCD

> diet, (including my family).

> If you live in Northeast Ohio and would like to meet

> others in your Northeast

> area, We have local support information, a parent

> contact list and get

> togethers for our group. (This is a general group

> for parents of children with

> Autism and we discuss all matters regarding Autism,

> (PDD, Aspergers, etc.) join

> our local email list group at:

> http://mail./config/login?/

>

>

> subscribe-P2ParentsChat

> For the school records on

> immunizations:

> When choosing not to have your child immunized you

> can get adoctor's order stating that the child

> should not be vaccinated for medical reasons. The

> school will have to honor the order. You can get a

> doctors order from any that will listen to your

> concerns or a DAN doctor.

> Rory McLean Realtor 8049 Brecksville Rd Brecksville,

> Ohio 44141

> VM 216-524-4925 Office: 1440-526-1800 Fax:

> 1440-526-0946 email: rorymclean@...

> website: http://rorymclean.howardhanna.com

> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

> ~~~~~~ ~~~ ~~~ ~~~

> * See also our groups listings for schools

> and Resource list for Northeast Ohio. Mom's Night

> out once a month

> For Allergies and Autism: Copy and paste to your

> browser:

>

P2ParentsChat/files/Allergies%20and%20Autis\

m

> Our Son's Autism and Finding Hope for

> His Future "

> pg 170, Treating Autism " 31 parent stories of hope

> and success, " published by

> Autism Research Institute 2003, 2nd edition pending,

> April 2006.

> Featured article August 5, 2004 by Pat Salemi:

> http://mail./config/login?/

> For families seeking ABA staff:

> (http://www.abaconnections.com for more current

> listings.)

> ** a_gamad@... Kent ABA Tutor

> ** Castle <julesmar@... Norwalk

> Therapist.

>

============================================================

> **Monika " M Arora " <m_arora13@... Columbus

> [Autism]

> **Katholeenie Gill <katholeenie@... NW

> Toledo UC

> ** " Melinda Poist " <poistmin@... Dayton SON

> [Autism]

> ** DLayman <DLayman@... Uniontown SON

> [Austism] between Akron/Canton

> **Vicki <vblaesing@... Central Columbus

> [Autism]

> **Robin Nordmoe <robinnordmoe@...

> Central, UP

> **Carol M. <cm@...

> Cincinnati

> ** on <jwilli31@...

> Columbus

> **Carol M. <cm@... Senior

> Vice

> President, 221 E. Fourth Street, Cincinnati,OH

> 45202,

> (888) 345-2246, (513) 852-7647 Fax,(513) 520-4244

> Cellular

> **Yitzi and Dina Creeger <yitzidina@...

> Cincinnati

> ** " Earl Michels " <scdpearl@... Cincinnati

>

> Helen Jora <helen9jora@... Athens ?

>

> NEWBIES

> ** " Sahr " <michsahr@... Akron 7-07

> ** Tresch <tresch.1@... Columbus 9-07

> Jen " jenwinn123 " <jenwinn@... 1-08 ?

> <jmajbrooks@... Miamisburg 3-08

> ?

>

> These people have been on the pecanbread list serve

> from OH will help with Autism:

> OH Parma, Cleveland area

> Owen<jlo_gro0711@...

> OH Dublin Dana Fritts <englishturtle@...

>

> OH Columbus Vicki <vblaesing@...

>

> Silsby Compounding Pharmacy Cleveland, Ohio

> http://www.leesilsby.com/about.html

> Toll-Free Phone: 1-800-918-8831 Fax: 216-321-4303

> Local Phone: 216-321-4300

> E-mail: info@...

> Lee Silsby Compounding Pharmacy [Alan Israel] 3216

> Silsby Rd. Cleveland Heights, OH 44118 Pharmacist

> was a friend of Elaine's.

> Sent in by: Meleah " robin " <rmcorner@...>

>

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