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bUNNY,

HERE IN THE us YOU HAVE the right to appeal within 30 days, Bring your

doctors records with you too and an atty. if possible who is trained in

disability law, Hope it works out.

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  • 3 years later...

Dear Judy,

I wish to thank you so much for the expressed appreciation of this

site and compliment that we can get information to you if you do not

know something or are trying to learn something.

The communication on this site is extremely fast.

Take care and keep those legal beagle questions comming. Please see

my comments on post entitled " Counseling " .

Respectfully,

Jeanetta Mastron CPhT BS Chemistry

Pharmacy Technician Educator

ounder/Owner

--- In @y..., " Judi Winters " <really .

Message trunkated by Jeanetta

> Thanks again for this wonderful site, if we don't know it we can

>sure find out from someone

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  • 3 months later...
Guest guest

Hi Everyone,

Sorry that i don't post much, i do read everyones posts

though. I am going thru alot of problems with my daughters school. She is

apraxia and they won't give her individual speech. ( we are getting a

lawyer). I live in NY state, does anyone know the following:

1) they have her in group now ( her and another child) who

doesn't have apraxia is that legal?

2) she has missed alot of sessions ( teachers fault) do they have

to make those sessions up?

thanks in advance for anyones advice or/help

christine

mom to Mackenzee 5 1/2, 2 months early,speech delayed, newly dx. with apraxia

2/04, enlarged kidney, bladder problems, obsessive with being first, and

possible dyslexia, heart murmur, apenea (resolved), severe reflux (

resolved), possible anixety disorder, muffled speech, possible auto

processing problem, but a beautiful and very smart little girl. Jack3 1/2,

5 1/2 weeks early, left eye turns in, delayed in all areas due to loosing

hearing due to chronic ear infections tubes put in 12/01, hypotonia,severely

flat footed, but functioning at 21-24 months, SID( Hypersensitive to almost

everything.) Zackary 2 1/2, 6 1/2 weeks early,has slowing of the left

temporal lobe, rythmatic disorder, SEVERE head banger, self injuring

behavior, wears leg braces for severe hypotonia, and VERY SEVERE curling of

the toes, poor eye sight 20/450,HF Autistic with VERY SEVERE Autistic

Behaviors, SID( hyposensitive), starring spells, seizures????, very smart,

verbal but not until he was put on risperdal, but doesn't use it

correctly,pyloric stenois at 5 1/2 weeks old ( resolved)

BUT THEY ARE MY THREE PRECIOUS ANGELS

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Yes they do have to make it up and 2 I don't know how you would

approve that the match doesn't work. What is the focus of the

therapies? Is it language and pragmatics based? grammar, pronouns

etc...

Has she met her goals? Have you seen any progress? You should find an

SLP who is familiar with apraxia to evaluate and test her.

denise

> Hi Everyone,

> Sorry that i don't post much, i do read everyones posts

> though. I am going thru alot of problems with my daughters school.

She is apraxia and they won't give her individual speech. ( we are

getting a lawyer). I live in NY state, does anyone know the following:

>1) they have her in group now ( her and another child) who

> doesn't have apraxia is that legal?

>2) she has missed alot of sessions ( teachers fault) do they have

>to make those sessions up?

> thanks in advance for anyones advice or/help

>

> christine

>

>

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Guest guest

Hi, . My understanding of the professional literature is that

apraxic kids (at least severely apraxic and/or younger kids) need 1:1 as

opposed to group therapy (or at least along with group therapy). But rather

than saying the group is per se inappropriate (which might be hard to prove),

you should instead look at her progress. I.e., is she meeting her IEP goals?

If she is progressing as expected (figuring this out isn't easy - ask the

school therapist for DATA that demonstrates progress rather than just a bare

statement that she's making progress), then the school can argue that ipso

facto the group setting is appropriate for her. (Of course, be sure the IEP

goals are set high enough that she's progressing as much as she should be

able to.)

As for missing sessions, the school technically does have to make those up.

Realistically, I'd say it depends on whether the amount missed is

substantial. If yes, then you can argue her IEP isn't being implemented as

written, which is an easy procedural violation to prove and you can threaten

a state complaint and/or due process. If the school doesn't have the staff

to make up the missed dates, then they can offer " compensatory education " in

other ways - e.g., contract out, hire a sub, reimburse you for private

therapy, etc. On the other hand, if the missed dates are sporadic and you

don't think they affect progress, you may not want to rock the boat - i.e.,

choose your battles wisely.

Hope this helps.

Sandy, Illinois

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  • 11 months later...

That's an excellent question.

I am a full blown type 2 diabetic who takes pills to control my

sugar and I had no problem having the implant over 2 years ago.

You will have a physical prior to being implanted and they will

check your sugar at the time of surgery. I believe they even gave me

a small dose of insulin prior to or right after I had surgery.

As long as you have medical clearance should be no problem.

Hope this helps.

Hugs,

Silly- MI

In , tadxl@y... wrote:

> If you are a borderline diabetic will that disqualify you to be an

> implant canidate?

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I don't think so as I am a borderline diabetic also and was given a CI. I

take glipizide (glucontrol) and it keeps it under control.

Does anyone know

> If you are a borderline diabetic will that disqualify you to be an

> implant canidate?

>

>

>

>

>

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If you are a borderline diabetic will that disqualify you to be an

implant canidate?

I have a friend with diabetes who has a CI and was not disqualified. She

takes oral medication and has not had a problem. I do not see why that would

matter...many people with health problems other than their hearing loss qualify

for a CI.

Deb H

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  • 5 months later...

Does anyone know:

My father in law is having surgery this month he is concerned how long will

it take for him to be able to get around and most importantly EAT NORMAL!!

he is 75 years old and never had surgery or been in the hospital in his

life and he is starting to get nervous.

Thank you

Re: A little panicked...

>

> Thanks Jenifer for responding. Yes, I did have a partial wrap. I

> think it could have tasted like stomach acid, kinda burned the back

> of my throat. I spoke to my GI and he's prescribing an acid

> inhibitor for me. I am also going to get a new barium swallow done

> to make sure. He seems to think it's nothing to be concerned about,

> but wants the barium done to make sure everything is okay. I felt a

> little better after talking to him. It sure helps to hear that you

> had a few choking episodes after the surgery. It came unexpected so

> I got very worried. I did have a big eating weekend and this could

> be my body's way of reminding me that I can't eat like " normal "

> people. I have to slow down, chew and take smaller bites.

>

> Thanks again.

>

>

> PS: Wow, 7 months already?!! Almost time...getting

> excited/anxious?? Do you know if its a boy or girl? Any names

> picked out?

>

>

> > > Hi all. I'm a little nervous (okay, I'm kinda freaked) right now

> > > because I just woke up choking and I'm not sure what to think.

> It's

> > > been almost 6 months since my surgery and this is my first bout

> of

> > > choking. Should I be overly concerned? I'm not going to fool

> > > around with this so I'm going to schedule a barium to make sure

> > > everything is okay. I did have a big eating weekend, so I'm

> hoping

> > > that it's just I ate too much or maybe didn't chew well enough.

> I'm

> > > also wondering if it could be a little acid reflux (but I don't

> know

> > > how that feels). It always feels like the food goes down, but

> I'm

> > > nervous that some didn't for whatever reason. Any advice will be

> > > much appreciated....

> > >

> > > in NYC

> >

> >

> > ,

> >

> > I forget did you have a partial wrap or not? If it tastes

> > like stomache acid it could be a little reflux. If it tastes

> > like undigested food it could not be going down.

> >

> > I had a partial wrap. Recently a couple of weeks ago I woke

> > up choking. It was definately acid and came from my stomache.

> > Since I'm 7 months pregnant I assumed it was the pressure from

> > the baby.

> >

> > Before my surgery I woke up choking twice. It was different

> > though. I think it was saliva that was not going down. I

> > understand how scary it is.

> >

> > Jenifer

>

>

>

>

>

>

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Hi Kirsten,

Your father will probably need to expect that it will take him a few weeks (4 or 5 )to get fit again and strong. It will also depend on what type of surgery they do.

If they do open surgery - cut into the stomach wall - he will be needing a bit longer to recover, but if they do laparoscopic surgery where they use a special instrument and go in to the place where surgery is required there will only be 5 small cuts - he will be up and about sooner.

A lot will also depend on how fit and well he is now.

As for eating - he will probably be told to eat soft food for a week or more and then slowly introduce solid stuff - a lot will depend on how he feels as well. It is best to take it slowly. Smaller meals more often usually works well.

I was 65 when I had my open surgery. It took me a good 4 weeks to get strong and feel well enough to go out and drive my car. Mine was not just a straightforward Heller's myotomy, but a huge hernia repair as well. Eating came slowly - I felt full after only a little food.

Some people are lucky and eat "normally" again soon, but this condition is not cured by surgery - it only relieves a problem and he may have to go carefully about eating for the rest of his life.

Please give him our best regards and wish him well from another senior citizen! Let us know how he does and tell him we will be thinking of him.

Joan

Johannesburg

South Africa

Re: A little panicked...>> Thanks Jenifer for responding. Yes, I did have a partial wrap. I> think it could have tasted like stomach acid, kinda burned the back> of my throat. I spoke to my GI and he's prescribing an acid> inhibitor for me. I am also going to get a new barium swallow done> to make sure. He seems to think it's nothing to be concerned about,> but wants the barium done to make sure everything is okay. I felt a> little better after talking to him. It sure helps to hear that you> had a few choking episodes after the surgery. It came unexpected so> I got very worried. I did have a big eating weekend and this could> be my body's way of reminding me that I can't eat like "normal"> people. I have to slow down, chew and take smaller bites.>> Thanks again.> >> PS: Wow, 7 months already?!! Almost time...getting> excited/anxious?? Do you know if its a boy or girl? Any names> picked out?>> > > > Hi all. I'm a little nervous (okay, I'm kinda freaked) right now> > > because I just woke up choking and I'm not sure what to think.> It's> > > been almost 6 months since my surgery and this is my first bout> of> > > choking. Should I be overly concerned? I'm not going to fool> > > around with this so I'm going to schedule a barium to make sure> > > everything is okay. I did have a big eating weekend, so I'm> hoping> > > that it's just I ate too much or maybe didn't chew well enough.> I'm> > > also wondering if it could be a little acid reflux (but I don't> know> > > how that feels). It always feels like the food goes down, but> I'm> > > nervous that some didn't for whatever reason. Any advice will be> > > much appreciated....> > >> > > in NYC> >> >> > ,> >> > I forget did you have a partial wrap or not? If it tastes> > like stomache acid it could be a little reflux. If it tastes> > like undigested food it could not be going down.> >> > I had a partial wrap. Recently a couple of weeks ago I woke> > up choking. It was definately acid and came from my stomache.> > Since I'm 7 months pregnant I assumed it was the pressure from> > the baby.> >> > Before my surgery I woke up choking twice. It was different> > though. I think it was saliva that was not going down. I> > understand how scary it is.> >> > Jenifer>>>>>>

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  • 4 months later...

I feel the same as several as you. By child, now 3 months was born

with facial assemtry and tort at 2 weeks. He also has plagio now

from the tort. He has head down in the same place in utero for a

LONG time, maybe months. I had contractions, about 5 min apart for

several weeks before he was born. I ask myself should the OB have

known something was not " right " ??

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Hi Jennfier,

I don't think this is anything an OB can prevent. My twins were

cramped eutro also and were head down from day one so Baby A's head

was down low for a long time. I also had early contractions which

put me on bedrest for the last three months. I continured to have

contractions and actually didn't even think how this could be

involved in the whole plagio thing. But in any case......the

important thing now is to do the repositioning as best you can and

monitor the progress. Take lots of pics each week.

Please don't blame yourself or your OB.....you can only blame

yourself later on if you do nothing now.

HUGS I know how you feel. Both my twins have head shape

problems. :o(

Dana

--- In Plagiocephaly , " joshuasmom3 " <more25@s...>

wrote:

>

> I feel the same as several as you. By child, now 3 months was born

> with facial assemtry and tort at 2 weeks. He also has plagio now

> from the tort. He has head down in the same place in utero for a

> LONG time, maybe months. I had contractions, about 5 min apart for

> several weeks before he was born. I ask myself should the OB have

> known something was not " right " ??

>

>

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,

I spoke to my OB about this at my yearly check-up. Basically she was not going to deliver me early because there was a possiblity my daughter might have plagio or tort. It's a risk/benefit thing. Now with this pregnancy she made me promise I wouldn't freak out if this baby dropped early like na. The best place for your baby (most of the time) is inutero until 38 weeks minimum. Tort and plagio are "easily" corrected outside the womb. It's more of a pediatrician issue than OB. Not all babies who drop early have tort and develop plagio. Yes, it's a risk. We also discussed forcep and vacuum delivery which can possibly caue some slight neck muscle damage (which might lead to tort which might lead to plagio). Again she went for risk/benefit. When a OB (at least my OB) uses forceps or vacuum then they are at a point when the baby needs to be delivered or there could be big consequences - loss of oxygen, brain

damage, or even death. After a certain point you can't turn back, the baby has to delivered vaginally. Ultrasounds and technology are great but they can't tell for certain yet, how big the baby is (I've heard they can be off +/- 1lb or more) or how big the head will be compared to the mom's pelvis.

I think the best thing to do is talk to your OB. Tell them what you know. Maybe then they can pass along some repo and preventative info to their patients that show certain symptoms or maybe just all patients.

The other issue is that vaginal births do lead to cone shaped heads. The skull plates are designed to shift during birth to allow the baby to pass through the pelvis. So, what looks normal to an OB may actually turn out to be plagio in 6 weeks when it hasn't "rounded out". Actually cone head is usually gone within 48 hours, maybe a little longer for forceps and vacuum births. My daughter literally had the same head shape at birth and 2 months. But at birth she looked like a lot of the discovery health "Birth Day" babies.

So basiclly don't beat up the OB - go after the ped

mom to na

DOC Grad 2/04

Tort Resolved

South Carolina

www.thefilyaws.com

joshuasmom3 <more25@...> wrote:

I feel the same as several as you. By child, now 3 months was born with facial assemtry and tort at 2 weeks. He also has plagio now from the tort. He has head down in the same place in utero for a LONG time, maybe months. I had contractions, about 5 min apart for several weeks before he was born. I ask myself should the OB have known something was not "right"?? For more plagio info

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  • 4 months later...
Guest guest

Diane,

To the best of my knowledge, has not posted publicly an update

since she was considering having Dr B. re-revise her. I was wondering

the same thing myself not long ago....Cam

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Guest guest

They are the wrong tests get your E2 Estradiol checked.

Phil

Greg Kevorkian <grekkevork@...> wrote:

When they tested my E they did several test

E free

E % free

E

Does anyone know what the difference of each is?

thanks

Greg

---------------------------------

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