Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Hello. I'm new to the group. I don't have any children who've been diagnosed on the spectrum. However, you could say that I've had an interest in autism since I was eight years old, and knew that there was something different about me. While other children would have to be told not to talk to their classmates, in school, I never had to be told. When I was eleven or so, I first learned of autism, and suspected that I had something related. I believe I have Aspergers, although I've not been diagnosed. I did a bit of research when I was in college at Cleveland State University, and it was there that I first became aware of the research that Dr. Rimland did at ARI. But I never really got that involved with the issue until my oldest daughter was three, and there were concerns about her development. It was her GI specialist (she would go a week to ten days without having a bowel movement) who first suggested to us that she might be autistic. She was evaluated tho and never diagnosed with autism or aspergers or pdd-nos or anything. One psychologist called her `just kind of odd', so I guess that's her diagnoses. I told the psychologist that I could live with that. is doing well enough. She was mainstreamed in school and just graduated from highschool and will attend CSU this fall. She does struggle terribly though, socially. She is terrified she will get fired from her fast food job. She quit her last one rather than stay on because she felt sure that if she didn't quit she would eventually be fired. The few friends she has have the persistence of stalkers practically. She will never initiate a phone call or a get together. But all in all she's doing alright. About four years ago I became aware of the book Evidence of Harm, and I read it, and I am one of those crazy women who is quite certain that the government not only poisoned a generation of children, but that there were people who knew exactly what happened and choose to deal with it by desperately trying to cover up the fact, even if that meant that the damage would continue to be done to more and more children. It isn't just what I read, though, that has me convinced, it is things that have happened to me. When was three, one of the first things I did when it was suggested that she might be autistic was to contact ARI. I wanted to know about vitamin B6, as I'd heard it was helpful but had also heard that it could cause problems. When the receptionist there asked me if I would like to speak with Dr. Rimland about it, I said yes, sure I would. We had a brief conversation that I will never forget. I asked him why, if B6 was so promising, it wasn't being advocated by the mainstream doctors, and he told me that he didn't know, but that it almost seemed to him that they didn't want the cause to be found. When I asked him who `they' were, he said that there were a lot of researchers getting government funds, and it was these people he was referring to. He never said anything about vaccines, but it is clear to me now that he must have been aware, or at least very suspicious of the connection, at that time. I never really gave much thought to autism in the years between that conversation, and when I read Evidence of Harm. When my daughter was about fourteen or fifteen, another incident, however, occurred which leads me to believe that there is something to the claims of vaccine damage. She was assigned a science report on the disease Porphyria. While she was researching it, she came to me and she said " mom, I think I have lead poisoning " and when I told her I didn't think she did, she paused for a moment and then she said to me " well then, I think I have mercury poisoning. I have a lot of the symptoms. " This was before either she or I had heard about mercury in vaccines. I brushed off the comment at the time. But after I read Evidence of Harm, a year or so later, I could see that she was exactly right. All of the complaints that I ever took her to the doctor for over the years were right there in the list of symptoms of mercury poisoning. I took her to the pediatrician with this information, but he would not have her tested for mercury poisoning. He said that the American Academy of Pediatrics put to rest any concerns regarding this. I, however, remain unconvinced. I must say that so far I've met with some very unfriendly behavior when I speak about my beliefs on this issue. On the internet, I've been banned from political chatrooms whether they lean to the left or the right. I was not rude, I was not hysterical, I only presented information about Thimerosal, the vaccine preservative that is half mercury. When I showed up at a recent Autism Speaks benefit concert at the House of Blues downtown to hand out flyers about Thimerosal, I was told that I had to leave or I would be arrested. I told them that as far as I was aware, I was within my rights to be on the sidewalk, which is public property, distributing information, so long as I wasn't accosting or harassing anyone. The chief of police was summoned and he told me that I could stay. But it seems to me and to many others that the organization Autism Speaks is actively working against the scientists and doctors and parents who believe that vaccines have harmed their children and only want the truth to be told, and want this looked into. I recently contacted the NAA because I knew that was putting her support behind them, and that she has been the only person to publicly state her belief that vaccines damaged her child. I met n at a recent biomedical support group with Dr. Demio, a DAN doctor who practices biomedical and chelation treatment. I am curious to meet other parents in the area here. I feel it is very important to get the word out in any way possible, as we can't rely on the media. I myself am taking supplements (B6, DMSA, NAC, caprylic acid for yeast) and I am curious to find out the experiences of others with supplements and diets. I put together this flyer some years ago and I've been distributing it whenever and wherever I can where I think parents of young children might be. http://www.wideopenwest.com/~r_nemeth/vaccine_flyer.htm I am hoping to be at one of the meetings that take place the first Tuesday of each month, soon, so that I can meet people, although I won't be able to make the July meeting. Perhaps I will be at the zoo on Monday. Wearing my `autism—it's no mystery, it's mercury' tee, and handing out my flyers. Robin Nemeth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 Hi Robin, Were you at the meeting at Barrie Galvin's? I was there, so if I am able to make it to the zoo, tomorrow, I'm sure I will recognize you. I remember reading about your experience at the AS benefit on another group (don't remember which), as I am on several. It is so good to talk to people who know what it is like to experience autism in whatever form. I hope to God that every one of our children will one day be able to explain " their world " to us. In so many ways, I see tremendous growth, knowledge and emotion in individuals who live their lives on the spectrum. But because of the differences in levels of communication, we are not always privey to how our children perceive us, their friends and the world in general. We know that they are very much a part of our lives. But as parents, grandparents, teachers, friends and neighbors, we want...no, we NEED to know more. You and can teach us so much. I realize that not everybody believes in the vaccine/autism connection. Obviously, I do. I also believe there are other factors involved in our environment that are both triggering and adding to the autism epidemic. I saw a regression in my grandson following a flu shot. My dd said that he had reacted to previous vaccines, but that the reactions were both brushed off by her Ped, and seemingly temporary. Looking back, I think because he cannot excrete toxins naturally, that every shot he received from day one, was setting him up... The flu shot was his toxic tipping point. Biomedical intervention has been a long, hard and expensive road. Noah has gone through a slew of changes with each and every supplement or intervention we have introduced. But these changes have led us to see remarkable progress in his physical healing as well as his ability to learn and to recover. He is 6 years old and although he is not " there " yet, he continues to move to the left of the spectrum. His conversational skills are his biggest deficit, but as long as we see progress, and as long as we see toxins moving out of his body, we will continue on this path. I want to hear him say to me one day... " I hated those supplements...those creams...those pills...that diet...those blood tests! " I also want to hear him tell me in his own words, as you and have, what it was like to be in his body when he was unable to communicate his feelings, or how bad his tummy hurt, or how loud noises affected him, etc. I want to know how it felt to be different...if he was happy or not. There are so many beautiful things that our children see and feel too, that we are unable to relate to. I want to know about those things. If I am unable to make it tomorrow, I would still like to talk to you...both on this list, so that we can share...we are all interested, otherwise we wouldn't be here, or you can a-mail me offlist. Either way, welcome to the group. I hope to see you and everybody else who will be at the zoo, tomorrow. I mentioned in a post last night, that I have to talk to my dd. I know that the kids start swimming lessons tomorrow, which might interfere. I'll post later. Take Care, -Trish ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 It makes my day to see someone take charge of their health. You might make sure that you are getting enough iodine. The quality of cancer prevention information on this list is quite high. As to cancer treatment I think it is a bit opinionated. So I guess I am opinionated against the opinionated, but then exposure to contrary opinions can't be a bad thing. Welcome to the list. _____ From: [mailto: ] On Behalf Of alternative157 Sent: Friday, March 11, 2011 7:30 AM Subject: [ ] Hello from a new member. Hello everybody, Three months ago my sonogram showed four tumors in my left breast which the radiologist called " probably benign " in his report. Two of my doctors (husband and wife) who sent me to this test think differently about it: one says it is to early to be worried and the other says to look for a surgeon. Two years ago my mother died of brain tumor. I still did not recover from the horror of 6 weeks in hospital with her dying and a couple of awful months of fights with doctors and the system. It was my most severe depression during that time; I smoked a lot, drunk a glass or two of wine every evening and did not watch my diet. Refused to take antidepressants, but did take fioriset for headaches often. When I buried her I immediately started on supplements (vitamins and herbs), yoga and running. I traveled a lot to avoid anger and hopelessness. But I still smoked about three cigarettes a day and drunk a glass of wine almost every day. The chest pain I have is not new. It did not appear recently. I had it for about 4 or five years already. Went to see cardiologists two years in a row, because I had symptoms of a heart attack. Those doctors just laughed at me. Later I realized that the pain was probably neurological due to stress and did not complain to doctors anymore. Last summer during gyno check up my doctor found several lumps... I stopped eating meat and fish almost two months ago. Stopped eating animal products three weeks ago. I am on 's parasite cleaning program. Do not use creams and lotions (make my own), packed my perfumes (which I loved); wash my hair with soap I made. I have no idea if I have cancer or not, if I am about to have it or I will successfully survive... My environment including people is not very supportive. I work in an office without windows, I have a cat, there is not fresh air around where I work or where I live (New York city) and the building I live in is very old (everything is toxic in it). I am interested in heavy metal cleansing. And also I want to find out why my platelet count is high (420). Happy to be a member of this group! Thank you for sharing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 , how much is enough iodine? Thanks. ________________________________ From: Gammill <vgammill@...> Sent: Fri, March 11, 2011 Â It makes my day to see someone take charge of their health. You might make sure that you are getting enough iodine. The quality of cancer prevention information on this list is quite high. As to cancer treatment I think it is a bit opinionated. So I guess I am opinionated against the opinionated, but then exposure to contrary opinions can't be a bad thing. Welcome to the list. _____ From: alternative157 Sent: Friday, March 11, 2011 Hello everybody, Three months ago my sonogram showed four tumors in my left breast which the radiologist called " probably benign " in his report. Two of my doctors (husband and wife) who sent me to this test think differently about it: one says it is to early to be worried and the other says to look for a surgeon. Two years ago my mother died of brain tumor. I still did not recover from the horror of 6 weeks in hospital with her dying and a couple of awful months of fights with doctors and the system. It was my most severe depression during that time; I smoked a lot, drunk a glass or two of wine every evening and did not watch my diet. Refused to take antidepressants, but did take fioriset for headaches often. When I buried her I immediately started on supplements (vitamins and herbs), yoga and running. I traveled a lot to avoid anger and hopelessness. But I still smoked about three cigarettes a day and drunk a glass of wine almost every day. The chest pain I have is not new. It did not appear recently. I had it for about 4 or five years already. Went to see cardiologists two years in a row, because I had symptoms of a heart attack. Those doctors just laughed at me. Later I realized that the pain was probably neurological due to stress and did not complain to doctors anymore. Last summer during gyno check up my doctor found several lumps... I stopped eating meat and fish almost two months ago. Stopped eating animal products three weeks ago. I am on 's parasite cleaning program. Do not use creams and lotions (make my own), packed my perfumes (which I loved); wash my hair with soap I made. I have no idea if I have cancer or not, if I am about to have it or I will successfully survive... My environment including people is not very supportive. I work in an office without windows, I have a cat, there is not fresh air around where I work or where I live (New York city) and the building I live in is very old (everything is toxic in it). I am interested in heavy metal cleansing. And also I want to find out why my platelet count is high (420). Happy to be a member of this group! Thank you for sharing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Hi alternative 157, Welcome. May I also suggest getting a thermogram? Don't believe the hype about them, just use them as a tool. As said, check into iodine. Go to http://www.breastcancerchoices.org and read up on iodine. You can order an iodine loading test and see how you are doing. You can also have your estrogen levels checked to see if you are estrogen dominant. Also, get your vitamin D3 levels checked. Since you live up north, vitamin D3 could be a problem for you. The radiologist who said the lumps were probably benign, did he offer any suggestions as to what they are? Many doctors blow us off because we are " too young for cancer. " However, depending on your age, if it is breast cancer, the younger the person, the more aggressive the cancer can be. Breast cancer is either something called triple negative - which means it isn't hormone driven; or, it is hormone driven - estrogen or progesterone, or both. By doing more digging into your current hormone situation, you can find out more about what you can do to enhance breast health. ar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Hi Joy, Welcome to the group. I am interested in hearing 's response about the amount of iodine, too. Please go to http://www.breastcancerchoice.org and read up on iodine. It's my understanding that too much is not a good thing. It would be best to have your levels checked first before supplementing. ar > > , how much is enough iodine? > > Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Hard to say, but if a person is slow to sweat when it is hot and has a low Basal Body Temperature, it is a good bet that the body is low on iodine. _____ From: [mailto: ] On Behalf Of Joy Wharton Sent: Friday, March 11, 2011 9:46 AM Subject: Re: [ ] Hello from a new member. , how much is enough iodine? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Hi AR, I will look into iodine. Am taking a Vit D3 supplement, B12 supplement as I have been deficient in both. I had a biopsy and was estrogen negative. Also had some digestive issues and addressed those with aloe vera juice which was extremely effective; because that worked so well will kick it up a notch with Aloe Arborescens. Have just done some very serious cleansing, getting outside more (work in an office building), began an exercise routine that I should have done long ago. My husband and I had already made the switch to lots of raw fruits and veggies after reading The China Study, and I don't eat any animal protein presently, nor sugar of any kind, gluten, soy, dairy, processed foods. I will confess that I am looking forward to the day when I will eat a big, fat juicy hamburger, although that will only be occasionally! I established a baseline HCG number with the Navarro Clinic and will be sending in a second tomorrow. I will ask my MD to prescribe a thermogram. Thanks for the suggestion. I'm not terrified anymore, which is a really good feeling. Willing to hear suggestions to fill in the gaps. Joy ________________________________ From: arlynsg Sent: Fri, March 11, 2011  Hi alternative 157, Welcome. May I also suggest getting a thermogram? Don't believe the hype about them, just use them as a tool. As said, check into iodine. Go to http://www.breastcancerchoices.org and read up on iodine. You can order an iodine loading test and see how you are doing. You can also have your estrogen levels checked to see if you are estrogen dominant. Also, get your vitamin D3 levels checked. Since you live up north, vitamin D3 could be a problem for you. The radiologist who said the lumps were probably benign, did he offer any suggestions as to what they are? Many doctors blow us off because we are " too young for cancer. " However, depending on your age, if it is breast cancer, the younger the person, the more aggressive the cancer can be. Breast cancer is either something called triple negative - which means it isn't hormone driven; or, it is hormone driven - estrogen or progesterone, or both. By doing more digging into your current hormone situation, you can find out more about what you can do to enhance breast health. ar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 , I live in south central Texas, and there are times during the year when all one has to do to sweat is step outside the front door! That would be me. I really like reading your posts. You are a bottomless pit of information and wit. Got any good jokes? ________________________________ From: Gammill <vgammill@...> Sent: Fri, March 11, 2011 Â Hard to say, but if a person is slow to sweat when it is hot and has a low Basal Body Temperature, it is a good bet that the body is low on iodine. _____ From: Joy Wharton Sent: Friday, March 11, 2011 , how much is enough iodine? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Hi Joy, You are doing tons of GREAT stuff. Your doctor doesn't prescribe thermograms. You do it all on your own. Is a great way to help feel a bit more in control. Just find a thermography center near you. I would think there are tons where you live. They can be found in chiropractor offices, health food stores, etc. Do some googling and check it out. So, if you had a biopsy, what were you diagnosed with? ar > > Hi AR, > > I will look into iodine. Am taking a Vit D3 supplement, B12 supplement as I > have been deficient in both. I had a biopsy and was estrogen negative. Also > had some digestive issues and addressed those with aloe vera juice which was > extremely effective; because that worked so well will kick it up a notch > with Aloe Arborescens. Have just done some very serious cleansing, getting > outside more (work in an office building), began an exercise routine that I > should have done long ago. My husband and I had already made the switch to lots > of raw fruits and veggies after reading The China Study, and I don't eat any > animal protein presently, nor sugar of any kind, gluten, soy, dairy, processed > foods. I will confess that I am looking forward to the day when I will eat a > big, fat juicy hamburger, although that will only be occasionally! > > I established a baseline HCG number with the Navarro Clinic and will be sending > in a second tomorrow. I will ask my MD to prescribe a thermogram. Thanks for > the suggestion. > > I'm not terrified anymore, which is a really good feeling. > > Willing to hear suggestions to fill in the gaps. > > Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Hi AR, Invasive ductal carcinoma. Thanks for the thermography tip. So much to learn! Joy Sent via BlackBerry by AT & T [ ] Re: Hello from a new member. Hi Joy, You are doing tons of GREAT stuff. Your doctor doesn't prescribe thermograms. You do it all on your own. Is a great way to help feel a bit more in control. Just find a thermography center near you. I would think there are tons where you live. They can be found in chiropractor offices, health food stores, etc. Do some googling and check it out. So, if you had a biopsy, what were you diagnosed with? ar > > Hi AR, > > I will look into iodine. Am taking a Vit D3 supplement, B12 supplement as I > have been deficient in both. I had a biopsy and was estrogen negative. Also > had some digestive issues and addressed those with aloe vera juice which was > extremely effective; because that worked so well will kick it up a notch > with Aloe Arborescens. Have just done some very serious cleansing, getting > outside more (work in an office building), began an exercise routine that I > should have done long ago. My husband and I had already made the switch to lots > of raw fruits and veggies after reading The China Study, and I don't eat any > animal protein presently, nor sugar of any kind, gluten, soy, dairy, processed > foods. I will confess that I am looking forward to the day when I will eat a > big, fat juicy hamburger, although that will only be occasionally! > > I established a baseline HCG number with the Navarro Clinic and will be sending > in a second tomorrow. I will ask my MD to prescribe a thermogram. Thanks for > the suggestion. > > I'm not terrified anymore, which is a really good feeling. > > Willing to hear suggestions to fill in the gaps. > > Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Thank you, arlynsg! That is going to be the plan for Monday doctor's appointment. I am 39. For several years of my problems ( and they may be related) nobody took me seriously. I look too young. Or the doctor's are just lazy... After I dealt with my mother cancer, I became very aggressive. And I just use them (doctors) as a tool to obtain test results. The rediologist suggested another sonogram in 6 months. I already have a pile of book to study and will continue digging:) Should I find an endocrinologist to look at my blood test? For some reason I always thought that my hormones are not " in order " . My mother had a problem with her thiroid. I have her medical record before she was admitted to the hospital for the last time. L > > Hi alternative 157, > > Welcome. > > May I also suggest getting a thermogram? Don't believe the hype about them, just use them as a tool. > > As said, check into iodine. Go to http://www.breastcancerchoices.org and read up on iodine. You can order an iodine loading test and see how you are doing. > > You can also have your estrogen levels checked to see if you are estrogen dominant. > > Also, get your vitamin D3 levels checked. Since you live up north, vitamin D3 could be a problem for you. > > The radiologist who said the lumps were probably benign, did he offer any suggestions as to what they are? Many doctors blow us off because we are " too young for cancer. " However, depending on your age, if it is breast cancer, the younger the person, the more aggressive the cancer can be. > > Breast cancer is either something called triple negative - which means it isn't hormone driven; or, it is hormone driven - estrogen or progesterone, or both. By doing more digging into your current hormone situation, you can find out more about what you can do to enhance breast health. > > ar > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Joy, If you are hormone negative, then diet really is a wonderful tool. Keeping your weight low and getting plenty of exercise is key for you. You may want to check into seeing an immunologist to make sure your immune system is functioning well. ar > > Hi AR, > > Invasive ductal carcinoma. > > Thanks for the thermography tip. So much to learn! > > Joy > Sent via BlackBerry by AT & T > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Alternative157, A wait-and-see approach is a good one for someone our age, I think. Meanwhile, keep looking at making those improvements. An endocrinologist will look at your thyroid hormones. I suggest looking for an osteopath instead, though. I have had a ton of trouble with endocrinologists. I did finally find an MD who prescribed natural thyroid hormone - Armour, which worked so much better than synthetics for me. A gynocologist will look at your estrogen levels. Though, some MDs, and perhaps an osteopath will too. I think you might be happier with an osteopath because they tend to look at the whole body instead of parts. ar > > Thank you, arlynsg! > That is going to be the plan for Monday doctor's appointment. I am 39. For several years of my problems ( and they may be related) nobody took me seriously. I look too young. Or the doctor's are just lazy... After I dealt with my mother cancer, I became very aggressive. And I just use them (doctors) as a tool to obtain test results. > The rediologist suggested another sonogram in 6 months. > I already have a pile of book to study and will continue digging:) > Should I find an endocrinologist to look at my blood test? For some reason I always thought that my hormones are not " in order " . My mother had a problem with her thiroid. I have her medical record before she was admitted to the hospital for the last time. > > L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Thank you, ! I will check my iodine, as you suggested. Actually, during one massage therapy years ago it was suggested that I take iodine supplements one a year, but no tests were done. I took it once, a year afterwards and stopped. Thanks again for your advise. I am openminded and willing to learn. L > > It makes my day to see someone take charge of their health. You might make > sure that you are getting enough iodine. > The quality of cancer prevention information on this list is quite high. As > to cancer treatment I think it is a bit opinionated. So I guess I am > opinionated against the opinionated, but then exposure to contrary opinions > can't be a bad thing. > > Welcome to the list. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Hi ar, Thanks so much for the encouragement. My weight is great and in fact is lower than it's been for 20 years. I'm 57. My husband is putting together an elliptical machine as we speak to increase the sweat factor :-).  I'm playing my guitar more and learning to say NO... Your advice is invaluable. It's nice to know others share the journey, Joy ________________________________ From: arlynsg <arlynsg@...> Sent: Fri, March 11, 2011 2:47:35 PM Subject: [ ] Re: Hello from a new member.  Joy, If you are hormone negative, then diet really is a wonderful tool. Keeping your weight low and getting plenty of exercise is key for you. You may want to check into seeing an immunologist to make sure your immune system is functioning well. ar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 You're welcome, Joy. Oh! Also, look into rebounding. It does a body good. ar > > Hi ar, > > Thanks so much for the encouragement. My weight is great and in fact is lower > than it's been for 20 years. I'm 57. My husband is putting together an > elliptical machine as we speak to increase the sweat factor :-).  I'm playing > my guitar more and learning to say NO... > > Your advice is invaluable. It's nice to know others share the journey, > > Joy Quote Link to comment Share on other sites More sharing options...
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