Guest guest Posted August 2, 1999 Report Share Posted August 2, 1999 Could someone tell me where I could get a hold of a list of DAN doc. I live in MA. and I am very interested in finding one. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 1999 Report Share Posted August 2, 1999 We live in MA and here is our perspective. We have visited many many doctors in the last year in MA. Just a word of caution that just because a doctor is on the DAN list doesn't mean that they are knowledgeable. It simply means that they have exhibited an interest in trying various treatments for autistic kids. The number of physicians who are knowledgeble and are on the DAN list is very few in the country. To the best of my knowledge there is only Dr. Sidney Baker(CT) in New England. Having said that I would suggest someone with knowledge in bio-chemical treatments, immunology etc. and cajole them in becoming DAN doctors than going to someone just because they happen to be on the DAN list. In MA we go to Dr. Carol Englender in Newton for our son. She is very knowledgeable and has been quite supportive of various treatments for our son. I would recommend her highly and she is the only one we go to on a regular basis. regards sanjay stikku@... > Re: DAN doctors > > > From: Sczms@... > > Could someone tell me where I could get a hold of a list of > DAN doc. I live > in MA. and I am very interested in finding one. Thanks, > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 1999 Report Share Posted August 2, 1999 I respectfully express the following very personal opinion re. the choice of a doctor to the address problems of a child on the autism spectrum: Location of the doctor's office is not the most important factor. I even think it is irrevelant. Others may of course disagree. We live in land and our doctor is in LA. Phone, fax, email and trips solve the problem. The key is the understanding by the doctor of the root causes of the illness. Unlike other conditions whose causes are well known, " autism " is still a mystery to many doctors. If you find that your child is probably victim of the (we are here on the list), I suggest you pick a doctor who understand what is. If this doctor is not conveniently located, you will certainly work around that. You are better off dealing with the right doctor far away, than a so-so doctor one close to home. Please understand that this comment is not meant to critisize anyone or anybody. Good Luck to you and your family Sanjay Tikku ! Sanjay Tikku wrote: > From: " Sanjay Tikku " <stikku@...> > > We live in MA and here is our perspective. We have visited many many doctors > in the last year in MA. > > Just a word of caution that just because a doctor is on the DAN list doesn't > mean that they are knowledgeable. It simply means that they have exhibited > an interest in trying various treatments for autistic kids. The number of > physicians who are knowledgeble and are on the DAN list is very few in the > country. To the best of my knowledge there is only Dr. Sidney Baker(CT) in > New England. > > Having said that I would suggest someone with knowledge in bio-chemical > treatments, immunology etc. and cajole them in becoming DAN doctors than > going to someone just because they happen to be on the DAN list. > > In MA we go to Dr. Carol Englender in Newton for our son. She is very > knowledgeable and has been quite supportive of various treatments for our > son. I would recommend her highly and she is the only one we go to on a > regular basis. > > regards > > sanjay > stikku@... > > > Re: DAN doctors > > > > > > From: Sczms@... > > > > Could someone tell me where I could get a hold of a list of > > DAN doc. I live > > in MA. and I am very interested in finding one. Thanks, > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 1999 Report Share Posted August 3, 1999 Go to www.autism.com/ari and on the menu you can access the whole list. MB Re: DAN doctors >From: Sczms@... > >Could someone tell me where I could get a hold of a list of DAN doc. I live >in MA. and I am very interested in finding one. Thanks, > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 1999 Report Share Posted October 12, 1999 Dear Sanjay, I know it was a while ago that I wrote about finding a DAN doctor. I was curoius as to the type of doctor you see in Newton. I am still looking for one and Newton wouldn't be too far for consultation. My neuro. is Dr. Bauman, you may know her, but she sin't into anything alternative for autism. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 Hi, I am also looking for a good DAN! Doctor in Philadelphia or town area. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 > hi > Have any one of you taken your kids to either Traver, M.D. > or Lynne Mielke, M.D. here in pleasonton southern CA I'm sorry to tell you this, but Pleasanton is in Northern CA-- it is in the Bay Area. I have heard people talking about Dr. Mielke opening her office -- I think this was pretty recent. > if so can u pls > share with me your experience like how long you are seeing the doctor > and are you happy with him and how much he has helped your child.Any > input will be appreciated. if none of you have used\these doctors can > any atleast share with me your experince with your particular DAN > doctor prefrebly in southern CA Yes, hopefully some S. CA people will help you out with this. Dana has this page with S. CA resources: http://www.danasview.net/socal.htm Be sure to note the support groups -- these may help you get more info also from people who have used various doctors, if any are groups you can get to. [Dana, I tried to use the link to your local support group leader's page, and the link did not work for me.] good wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2003 Report Share Posted October 15, 2003 > any atleast share with me your experince with your particular DAN > doctor prefrebly in southern CA My page as previously posted by Moria http://www.danasview.net/socal.htm My local support group leader's site is very good [and it works for me, not sure why it did not work for Moria] http://www.tacanow.com You can also post your question on the local message board autisminterventionsocal/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2003 Report Share Posted October 15, 2003 OOPS sorry. you are right plesenton is in Northern CA .It is located on Eastern part[ALEMEDA COUNTY] of SFO So that means my question should be like this .Can anybody share their openeion about the DAN doctors you have taken your kids to here in NORTHERN CALIFORNIA with preference to Trav er, M.D. > > or Lynne Mielke, M.D. here in pleasonton > Thanks,SS > > hi > > Have any one of you taken your kids to either Trav er, M.D. > > or Lynne Mielke, M.D. here in pleasonton southern CA > > I'm sorry to tell you this, but Pleasanton is in Northern CA-- > it is in the Bay Area. I have heard people talking about Dr. > Mielke opening her office -- I think this was pretty recent. > > > if so can u pls > > share with me your experience like how long you are seeing the doctor > > and are you happy with him and how much he has helped your child.Any > > input will be appreciated. if none of you have used\these doctors can > > any atleast share with me your experince with your particular DAN > > doctor prefrebly in southern CA > > Yes, hopefully some S. CA people will help you out with this. > Dana has this page with S. CA resources: > http://www.danasview.net/socal.htm > Be sure to note the support groups -- these may help you get more > info also from people who have used various doctors, if any are > groups you can get to. > [Dana, I tried to use the link to your local support group > leader's page, and the link did not work for me.] > > > good wishes, > Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2003 Report Share Posted October 15, 2003 > OOPS sorry. you are right plesenton is in Northern CA .It is located > on Eastern part[ALEMEDA COUNTY] of SFO So that means my question > should be like this .Can anybody share their openeion about the DAN > doctors you have taken your kids to here in NORTHERN CALIFORNIA with > preference to Trav er, M.D. > > > or Lynne Mielke, M.D. here in pleasonton > > > Thanks,SS ha ha ha--- very funny --- me and Dana both responded about southern CA, and now it is northern CA! LOL! Okay. I still don't know anything about these 2 doctors from experience. Actually I haven't been to any of the DAN doctors (and I don't have kids, so for sure don't qualify for that part). I hope you get lots of responses. I can say that there is NO doctor whom I recommend for chelation in the SF Bay area. This pretty much means there is no chelation doctor in the Bay Area that I know of that RECOMMENDS using small-dose+frequent-timing, Andy's protocol. (There are a couple of S Bay and Peninsula doctors who I think are probably pretty okay for being supportive and ordering tests and letting you do what you want. I'm not positive about this, it is based on 2nd hand info.) Write me privately if you want to discuss this. Also, if you find there a doctor that does RECOMMEND use of Andy's timing and dosage, please tell me. If you don't already know, there is a parents ASD biomedical meeting once a month in Santa Clara. There is also a very very small low volume list here: bayareaprekasd/ good wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2003 Report Share Posted October 15, 2003 I just got back from Dr. Green's office (I'm also a northern Californian) - and he's great. He's the only doctor I've seen to date who doesn't have a pre-determined opinion about what the best treatment for autism is, so he doesn't try to fit your child into a pre-determined niche, but rather bases his decision on your child's individual problems. He treats over 600 autistic children; most from out-of-state. > Hello. I grew up in Pleasanton. My friend goes to Dr. Mielke. I do > believe that my friend is leaving her and going to Dr. Green's > office in Oregon so I guess I can not reccomend Mielke. I personally > know nothing about her. Sorry, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2003 Report Share Posted October 15, 2003 Hello. I grew up in Pleasanton. My friend goes to Dr. Mielke. I do believe that my friend is leaving her and going to Dr. Green's office in Oregon so I guess I can not reccomend Mielke. I personally know nothing about her. Sorry, > hi > Have any one of you taken your kids to either Traver, M.D. > or Lynne Mielke, M.D. here in pleasonton southern CA if so can u pls > share with me your experience like how long you are seeing the doctor > and are you happy with him and how much he has helped your child.Any > input will be appreciated. if none of you have used\these doctors can > any atleast share with me your experince with your particular DAN > doctor prefrebly in southern CA > Thanks,SS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 I am curious what treatment he prescribed for your kid since the treatments I have otherwise heard him Rx have been quite similar. Perhaps I haven't talked to the right people. Andy . . . . .. . . . . . . . . > I just got back from Dr. Green's office (I'm also a northern Californian) - > and he's great. He's the only doctor I've seen to date who doesn't have a > pre-determined opinion about what the best treatment for autism is, so he doesn't > try to fit your child into a pre-determined niche, but rather bases his > decision on your child's individual problems. He treats over 600 autistic children; > most from out-of-state. > > > > > Hello. I grew up in Pleasanton. My friend goes to Dr. Mielke. I do > > believe that my friend is leaving her and going to Dr. Green's > > office in Oregon so I guess I can not reccomend Mielke. I personally > > know nothing about her. Sorry, > > > > > > > > > [Non-text portions of this message have been Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 He hasn't yet given me any new treatments for her but is having me run a number of tests (amino acids, polypeptides, etc.) and (cover your ears Andy) performed a DMPS challenge to determine once and for all if there is mercury present or not. He also did a secretin infusion and took blood and urine for additional lab work. He did note the very low glutathione and antioxidant levels in previous results and will begin treatment as soon as he has a better idea of what we're dealing with. He also noted severe disbiosis (sp?). He'll tackle treatments as soon as he decides what'll be most helpful. He impressed me with his lack or pretention and arrogance, which is refreshing! It's not that his tretments are radically different from other DAN guys but rather that he doesn't do the cookie cutter treatment protocol that the rest seem to favor. (First we'll do A, then B, then C) I'll keep y'all posted >I am curious what treatment he prescribed for your kid since the >treatments I have otherwise heard him Rx have been quite similar. Â >Perhaps I haven't talked to the right people. > >Andy . . . . .. . . . . . . . . > >> I just got back from Dr. Green's office (I'm also a northern >Californian) - >> and he's great. He's the only doctor I've seen to date who doesn't >have a >> pre-determined opinion about what the best treatment for autism is, >so he doesn't >> try to fit your child into a pre-determined niche, but rather bases >his >> decision on your child's individual problems. He treats over 600 >autistic children; >> most from out-of-state. >> >> >> >> > Hello. I grew up in Pleasanton. My friend goes to Dr. Mielke. I do >> > believe that my friend is leaving her and going to Dr. Green's >> > office in Oregon so I guess I can not reccomend Mielke. I >personally >> > know nothing about her. Sorry, >> > Â Â >> > >> > >> >> >> [Non-text portions of this message have been > > > >======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 --- In , " moriamerri " <moriam@e...> wrote: > > ha ha ha--- very funny --- me and Dana both responded about > southern CA, and now it is northern CA! LOL! Okay. She asked for So Cal, so I gave her So Cal. Some people would rather see a doctor in So Cal rather than No Cal. Most of the time I don't ask questions unless I need more information to answer the question, I just give the info LOL Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 > > > > ha ha ha--- very funny --- me and Dana both responded about > > southern CA, and now it is northern CA! LOL! Okay. > > > She asked for So Cal, so I gave her So Cal. Same here, Dana. She asked for So Cal, so I gave her So Cal. Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 This is exactly what he does with everybody else. Andy . . . .. . . . . . . . . . . . . > He hasn't yet given me any new treatments for her but is having me run a number of tests (amino acids, polypeptides, etc.) and (cover your ears Andy) performed a DMPS challenge to determine once and for all if there is mercury present or not. He also did a secretin infusion and took blood and urine for additional lab work. He did note the very low glutathione and antioxidant levels in previous results and will begin treatment as soon as he has a better idea of what we're dealing with. He also noted severe disbiosis (sp?). He'll tackle treatments as soon as he decides what'll be most helpful. He impressed me with his lack or pretention and arrogance, which is refreshing! Yes, he is a very nice and caring person. >It's not that his tretments are radically different from other DAN guys but rather that he doesn't do the cookie cutter treatment protocol that the rest seem to favor. Welll...... he doesn't present it that way. ,. . .. . . . . . . >(First we'll do A, then B, then C) I'll keep y'all posted > > >I am curious what treatment he prescribed for your kid since the > >treatments I have otherwise heard him Rx have been quite similar. Â > >Perhaps I haven't talked to the right people. > > > >Andy . . . . .. . . . . . . . . > > > >> I just got back from Dr. Green's office (I'm also a northern > >Californian) - > >> and he's great. He's the only doctor I've seen to date who doesn't > >have a > >> pre-determined opinion about what the best treatment for autism is, > >so he doesn't > >> try to fit your child into a pre-determined niche, but rather bases > >his > >> decision on your child's individual problems. He treats over 600 > >autistic children; > >> most from out-of-state. > >> > >> > >> > >> > Hello. I grew up in Pleasanton. My friend goes to Dr. Mielke. I do > >> > believe that my friend is leaving her and going to Dr. Green's > >> > office in Oregon so I guess I can not reccomend Mielke. I > >personally > >> > know nothing about her. Sorry, > >> > Â Â > >> > > >> > > >> > >> > >> [Non-text portions of this message have been > > > > > > > >======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 > Does anyone know how the ARI collects the information regarding the DAN drs locator list? The doctors fill out a cryptic form, ARI data enters what they think is on it, it stays on the net forever and ever even if the doctor has changed their practice a dozen times. > There is one in Central PA that I was going to consult based on my mother's research and he was listed as a DAN doctor from that list. I want to make sure if I choose to use one that they aren't a rip off artist No guaarantees of this. All being on the DAN! list means is they went to a DAN! conference. >and know what they are doing. No guarantees here either, especially given the amount of dangerous and harmful stuff presented as safe at DAN! meetings. >Any thoughts or suggestion would be appreciated. We are in Central PA.... 1 hr south of burg. If Lansdale PA isn't too far for you (it is west of Philadelphia) then see Dr. Larry , DO (215) 412-4910. > > Thanks! > > Jackie > Lititz, PA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Andy, Thank you for the referral. I am new to this listserve and wanting to learn more to help my son even more than he has attained with therapy and supplements. I will look into his practice. If anyone has experience with Conrad G. Maulfair, Jr., D.O. Maulfair Medical Center, Topton, PA 19562 I would appreciate you e-mailing me privately! Thanks! Jackie jhines@... > All being on the DAN! list means is they went to a DAN! conference. > >>and know what they are doing. > > No guarantees here either, especially given the amount of dangerous and > harmful stuff presented as safe at DAN! meetings. > >>Any thoughts or suggestion would be appreciated. We are in Central PA.... >>1 hr south of burg. > > If Lansdale PA isn't too far for you (it is west of Philadelphia) then > see Dr. Larry , DO (215) 412-4910. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 > Does anyone know how the ARI collects the information regarding the DAN drs locator list? There is one in Central PA that I was going to consult based on my mother's research and he was listed as a DAN doctor from that list. I want to make sure if I choose to use one that they aren't a rip off artist and know what they are doing. Any thoughts or suggestion would be appreciated. We are in Central PA.... 1 hr south of burg. > > Thanks! > > Jackie > Lititz, PA Hello Jackie, The following location has my comments on looking for a doctor. It also includes some info and links to ARI's criteria for being included on the DAN list. (They basically say the criteria along with the list -- I believe it is to attend a DAN conference OR state agreement with a philosophy statement (text on their website). http://home.earthlink.net/~moriam/HOW_TO_find_doctor.html good wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Jackie, Your e-mail address isn't showing up can you spell it out with spaces? Or e-mail me diane.powell @ pcua.coop (without the spaces -- all together) I'm in central PA too -- burg Diane > Does anyone know how the ARI collects the information regarding the DAN drs locator list? There is one in Central PA that I was going to consult based on my mother's research and he was listed as a DAN doctor from that list. I want to make sure if I choose to use one that they aren't a rip off artist and know what they are doing. Any thoughts or suggestion would be appreciated. We are in Central PA.... 1 hr south of burg. > > Thanks! > > Jackie > Lititz, PA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 In many cases a DAN doctor will have been someone who once attended a DAN conference. This is not adequate, in my opinion. I personally have been through 2 DAN docs, and finally chose someone wonderful who exclusively sees autistic patients. We saw someone previously who prescribed the DAN- " kitchen-sink " therapy before any tests were in. He got much sicker under this doctor's care. It is the knowledge that comes with breadth of experience that is as important as intelligence and commitment. Karin > > > Does anyone know how the ARI collects the information regarding > the DAN drs locator list? There is one in Central PA that I was > going to consult based on my mother's research and he was listed as > a DAN doctor from that list. I want to make sure if I choose to use > one that they aren't a rip off artist and know what they are doing. > Any thoughts or suggestion would be appreciated. We are in Central > PA.... 1 hr south of burg. > > > > Thanks! > > > > Jackie > > Lititz, PA > > > Hello Jackie, > > The following location has my comments on looking for a doctor. > It also includes some info and links to ARI's criteria for > being included on the DAN list. (They basically say the criteria > along with the list -- I believe it is to attend a DAN > conference OR state agreement with a philosophy statement > (text on their website). > > http://home.earthlink.net/~moriam/HOW_TO_find_doctor.html > > good wishes, > Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2005 Report Share Posted April 26, 2005 DAN doctors are for the most part, as some are not MD's but nutritionists, Phd's or RN's, but easy enough to get an MD in most locations, many are pediatricians also, but the premise of their care is born from the autism epidemic. They treat children for nutritional deficiencies, which I learned at the recent DAN conference in Boston that most children with atypical neuro symptoms, not explained by any other reason will be deficient in nutrients. The brain is downstream to deficiencies, where any disorder metabolically will manifest itself neurologically. They do basline blood testing for vitamin levels, amino acids, fatty acids, thyroid testing and they also will test for polymorphisms that have been shown to be almost 90% in the children they treat, one being MTHFR which is in 50% of the population, and what it means is that if positve you have up to a 60% deficiency to detox toxins such as in water food, thimerosal from vaccines. They treat all kids, not just autistic children. In fact the non autistic kids make gains way faster than the autistic kids. Sometimes in weeks, like my son did.So after getting the neurologist/developmental ped to rule out any serious maladies, then the next step in my opinion is a DAN doctor to help make sense of this whole thing. > > > > can i ask.. what is a DAN? > > tracy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2005 Report Share Posted April 26, 2005 Does any insurance pay for DAN docs?- -- In , " deverelementary " <kearneysix@a...> wrote: > > > DAN doctors are for the most part, as some are not MD's but > nutritionists, Phd's or RN's, but easy enough to get an MD in most > locations, many are pediatricians also, but the premise of their care > is born from the autism epidemic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 Yes they do, you jsut have to call, the MD, pediatrician ones for the most part do, mine does take mostly all insurance plans, however some do not. But with that said, many will work with what you can afford, do only the basic needed bloods, alot can be done thru participating labs such as quest labs, Great Plains labs take Blue Cross I believe. All of our blood testing was done at University Childrens hospital, all was covered by insurance. > > > > > > DAN doctors are for the most part, as some are not MD's but > > nutritionists, Phd's or RN's, but easy enough to get an MD in most > > locations, many are pediatricians also, but the premise of their > care > > is born from the autism epidemic. Quote Link to comment Share on other sites More sharing options...
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