Re: DAN Doctors

[Guest guest]

Could someone tell me where I could get a hold of a list of DAN doc. I live

in MA. and I am very interested in finding one. Thanks,

[Guest guest]

We live in MA and here is our perspective. We have visited many many doctors

in the last year in MA.

Just a word of caution that just because a doctor is on the DAN list doesn't

mean that they are knowledgeable. It simply means that they have exhibited

an interest in trying various treatments for autistic kids. The number of

physicians who are knowledgeble and are on the DAN list is very few in the

country. To the best of my knowledge there is only Dr. Sidney Baker(CT) in

New England.

Having said that I would suggest someone with knowledge in bio-chemical

treatments, immunology etc. and cajole them in becoming DAN doctors than

going to someone just because they happen to be on the DAN list.

In MA we go to Dr. Carol Englender in Newton for our son. She is very

knowledgeable and has been quite supportive of various treatments for our

son. I would recommend her highly and she is the only one we go to on a

regular basis.

regards

sanjay

stikku@...

> Re: DAN doctors

>

>

> From: Sczms@...

>

> Could someone tell me where I could get a hold of a list of

> DAN doc. I live

> in MA. and I am very interested in finding one. Thanks,

>

> ---------------------------

[Guest guest]

I respectfully express the following very personal opinion re. the choice of a

doctor to the address problems of a child on the autism spectrum:

Location of the doctor's office is not the most important factor. I even think

it is irrevelant. Others may of course disagree. We live in land and our

doctor is in LA. Phone, fax, email and trips solve the problem.

The key is the understanding by the doctor of the root causes of the illness.

Unlike other conditions whose causes are well known, " autism " is still a mystery

to many doctors. If you find that your child is probably victim of the (we

are here on the list), I suggest you pick a doctor who understand what

is. If this doctor is not conveniently located, you will certainly work around

that.

You are better off dealing with the right doctor far away, than a so-so doctor

one close to home.

Please understand that this comment is not meant to critisize anyone or anybody.

Good Luck to you and your family Sanjay Tikku !

Sanjay Tikku wrote:

> From: " Sanjay Tikku " <stikku@...>

>

> We live in MA and here is our perspective. We have visited many many doctors

> in the last year in MA.

>

> Just a word of caution that just because a doctor is on the DAN list doesn't

> mean that they are knowledgeable. It simply means that they have exhibited

> an interest in trying various treatments for autistic kids. The number of

> physicians who are knowledgeble and are on the DAN list is very few in the

> country. To the best of my knowledge there is only Dr. Sidney Baker(CT) in

> New England.

>

> Having said that I would suggest someone with knowledge in bio-chemical

> treatments, immunology etc. and cajole them in becoming DAN doctors than

> going to someone just because they happen to be on the DAN list.

>

> In MA we go to Dr. Carol Englender in Newton for our son. She is very

> knowledgeable and has been quite supportive of various treatments for our

> son. I would recommend her highly and she is the only one we go to on a

> regular basis.

>

> regards

>

> sanjay

> stikku@...

>

> > Re: DAN doctors

> >

> >

> > From: Sczms@...

> >

> > Could someone tell me where I could get a hold of a list of

> > DAN doc. I live

> > in MA. and I am very interested in finding one. Thanks,

> >

> > ---------------------------

[Guest guest]

Go to www.autism.com/ari and on the menu you can access the whole list.

MB

Re: DAN doctors

>From: Sczms@...

>

>Could someone tell me where I could get a hold of a list of DAN doc. I

live

>in MA. and I am very interested in finding one. Thanks,

>

>---------------------------

[Guest guest]

Dear Sanjay,

I know it was a while ago that I wrote about finding a DAN doctor. I was

curoius as to the type of doctor you see in Newton. I am still looking for

one and Newton wouldn't be too far for consultation. My neuro. is Dr.

Bauman, you may know her, but she sin't into anything alternative for autism.

Thanks

[Guest guest]

Hi,

I am also looking for a good DAN! Doctor in Philadelphia or town area.

mary

[Guest guest]

> hi

> Have any one of you taken your kids to either Traver, M.D.

> or Lynne Mielke, M.D. here in pleasonton southern CA

I'm sorry to tell you this, but Pleasanton is in Northern CA--

it is in the Bay Area. I have heard people talking about Dr.

Mielke opening her office -- I think this was pretty recent.

> if so can u pls

> share with me your experience like how long you are seeing the doctor

> and are you happy with him and how much he has helped your child.Any

> input will be appreciated. if none of you have used\these doctors can

> any atleast share with me your experince with your particular DAN

> doctor prefrebly in southern CA

Yes, hopefully some S. CA people will help you out with this.

Dana has this page with S. CA resources:

http://www.danasview.net/socal.htm

Be sure to note the support groups -- these may help you get more

info also from people who have used various doctors, if any are

groups you can get to.

[Dana, I tried to use the link to your local support group

leader's page, and the link did not work for me.]

good wishes,

Moria

[Guest guest]

> any atleast share with me your experince with your particular DAN

> doctor prefrebly in southern CA

My page as previously posted by Moria

http://www.danasview.net/socal.htm

My local support group leader's site is very good [and it works for

me, not sure why it did not work for Moria]

http://www.tacanow.com

You can also post your question on the local message board

autisminterventionsocal/

Dana

[Guest guest]

OOPS sorry. you are right plesenton is in Northern CA .It is located

on Eastern part[ALEMEDA COUNTY] of SFO So that means my question

should be like this .Can anybody share their openeion about the DAN

doctors you have taken your kids to here in NORTHERN CALIFORNIA with

preference to Trav er, M.D.

> > or Lynne Mielke, M.D. here in pleasonton

>

Thanks,SS

> > hi

> > Have any one of you taken your kids to either Trav er, M.D.

> > or Lynne Mielke, M.D. here in pleasonton southern CA

>

> I'm sorry to tell you this, but Pleasanton is in Northern CA--

> it is in the Bay Area. I have heard people talking about Dr.

> Mielke opening her office -- I think this was pretty recent.

>

> > if so can u pls

> > share with me your experience like how long you are seeing the doctor

> > and are you happy with him and how much he has helped your child.Any

> > input will be appreciated. if none of you have used\these doctors can

> > any atleast share with me your experince with your particular DAN

> > doctor prefrebly in southern CA

>

> Yes, hopefully some S. CA people will help you out with this.

> Dana has this page with S. CA resources:

> http://www.danasview.net/socal.htm

> Be sure to note the support groups -- these may help you get more

> info also from people who have used various doctors, if any are

> groups you can get to.

> [Dana, I tried to use the link to your local support group

> leader's page, and the link did not work for me.]

>

>

> good wishes,

> Moria

[Guest guest]

> OOPS sorry. you are right plesenton is in Northern CA .It is located

> on Eastern part[ALEMEDA COUNTY] of SFO So that means my question

> should be like this .Can anybody share their openeion about the DAN

> doctors you have taken your kids to here in NORTHERN CALIFORNIA with

> preference to Trav er, M.D.

> > > or Lynne Mielke, M.D. here in pleasonton

> >

> Thanks,SS

ha ha ha--- very funny --- me and Dana both responded about

southern CA, and now it is northern CA! LOL! Okay.

I still don't know anything about these 2 doctors from

experience. Actually I haven't been to any of the DAN

doctors (and I don't have kids, so for sure don't qualify

for that part). I hope you get lots of responses.

I can say that there is NO doctor whom I recommend for

chelation in the SF Bay area. This pretty much means

there is no chelation doctor in the Bay Area that I know

of that RECOMMENDS using small-dose+frequent-timing,

Andy's protocol. (There are a couple of S Bay and

Peninsula doctors who I think are probably pretty

okay for being supportive and ordering tests and letting

you do what you want. I'm not positive about this,

it is based on 2nd hand info.) Write me privately if

you want to discuss this.

Also, if you find there a doctor that does RECOMMEND

use of Andy's timing and dosage, please tell me.

If you don't already know, there is a parents ASD

biomedical meeting once a month in Santa Clara.

There is also a very very small low volume list here:

bayareaprekasd/

good wishes,

Moria

[Guest guest]

I just got back from Dr. Green's office (I'm also a northern Californian) -

and he's great. He's the only doctor I've seen to date who doesn't have a

pre-determined opinion about what the best treatment for autism is, so he

doesn't

try to fit your child into a pre-determined niche, but rather bases his

decision on your child's individual problems. He treats over 600 autistic

children;

most from out-of-state.

> Hello. I grew up in Pleasanton. My friend goes to Dr. Mielke. I do

> believe that my friend is leaving her and going to Dr. Green's

> office in Oregon so I guess I can not reccomend Mielke. I personally

> know nothing about her. Sorry,

>

>

>

[Guest guest]

Hello. I grew up in Pleasanton. My friend goes to Dr. Mielke. I do

believe that my friend is leaving her and going to Dr. Green's

office in Oregon so I guess I can not reccomend Mielke. I personally

know nothing about her. Sorry,

> hi

> Have any one of you taken your kids to either Traver, M.D.

> or Lynne Mielke, M.D. here in pleasonton southern CA if so can u

pls

> share with me your experience like how long you are seeing the

doctor

> and are you happy with him and how much he has helped your

child.Any

> input will be appreciated. if none of you have used\these doctors

can

> any atleast share with me your experince with your particular DAN

> doctor prefrebly in southern CA

> Thanks,SS

[Guest guest]

I am curious what treatment he prescribed for your kid since the

treatments I have otherwise heard him Rx have been quite similar.

Perhaps I haven't talked to the right people.

Andy . . . . .. . . . . . . . .

> I just got back from Dr. Green's office (I'm also a northern

Californian) -

> and he's great. He's the only doctor I've seen to date who doesn't

have a

> pre-determined opinion about what the best treatment for autism is,

so he doesn't

> try to fit your child into a pre-determined niche, but rather bases

his

> decision on your child's individual problems. He treats over 600

autistic children;

> most from out-of-state.

>

>

>

> > Hello. I grew up in Pleasanton. My friend goes to Dr. Mielke. I do

> > believe that my friend is leaving her and going to Dr. Green's

> > office in Oregon so I guess I can not reccomend Mielke. I

personally

> > know nothing about her. Sorry,

> >

> >

> >

>

>

> [Non-text portions of this message have been

[Guest guest]

He hasn't yet given me any new treatments for her but is having me run a number

of tests (amino acids, polypeptides, etc.) and (cover your ears Andy) performed

a DMPS challenge to determine once and for all if there is mercury present or

not. He also did a secretin infusion and took blood and urine for additional lab

work. He did note the very low glutathione and antioxidant levels in previous

results and will begin treatment as soon as he has a better idea of what we're

dealing with. He also noted severe disbiosis (sp?). He'll tackle treatments as

soon as he decides what'll be most helpful. He impressed me with his lack or

pretention and arrogance, which is refreshing! It's not that his tretments are

radically different from other DAN guys but rather that he doesn't do the cookie

cutter treatment protocol that the rest seem to favor. (First we'll do A, then

B, then C) I'll keep y'all posted

>I am curious what treatment he prescribed for your kid since the

>treatments I have otherwise heard him Rx have been quite similar.  

>Perhaps I haven't talked to the right people.

>

>Andy . . . . .. . . . . . . . .

>

>> I just got back from Dr. Green's office (I'm also a northern

>Californian) -

>> and he's great. He's the only doctor I've seen to date who doesn't

>have a

>> pre-determined opinion about what the best treatment for autism is,

>so he doesn't

>> try to fit your child into a pre-determined niche, but rather bases

>his

>> decision on your child's individual problems. He treats over 600

>autistic children;

>> most from out-of-state.

>>

>>

>>

>> > Hello. I grew up in Pleasanton. My friend goes to Dr. Mielke. I do

>> > believe that my friend is leaving her and going to Dr. Green's

>> > office in Oregon so I guess I can not reccomend Mielke. I

>personally

>> > know nothing about her. Sorry,

>> >    

>> >

>> >

>>

>>

>> [Non-text portions of this message have been

>

>

>

>=======================================================

>

[Guest guest]

--- In , " moriamerri " <moriam@e...>

wrote:

>

> ha ha ha--- very funny --- me and Dana both responded about

> southern CA, and now it is northern CA! LOL! Okay.

She asked for So Cal, so I gave her So Cal. Some people would rather

see a doctor in So Cal rather than No Cal. Most of the time I don't

ask questions unless I need more information to answer the question, I

just give the info LOL

Dana

[Guest guest]

> >

> > ha ha ha--- very funny --- me and Dana both responded about

> > southern CA, and now it is northern CA! LOL! Okay.

>

>

> She asked for So Cal, so I gave her So Cal.

Same here, Dana. She asked for So Cal, so I gave her So Cal.

Moria

[Guest guest]

This is exactly what he does with everybody else.

Andy . . . .. . . . . . . . . . . . .

> He hasn't yet given me any new treatments for her but is having me

run a number of tests (amino acids, polypeptides, etc.) and (cover

your ears Andy) performed a DMPS challenge to determine once and for

all if there is mercury present or not. He also did a secretin

infusion and took blood and urine for additional lab work. He did note

the very low glutathione and antioxidant levels in previous results

and will begin treatment as soon as he has a better idea of what we're

dealing with. He also noted severe disbiosis (sp?). He'll tackle

treatments as soon as he decides what'll be most helpful. He impressed

me with his lack or pretention and arrogance, which is refreshing!

Yes, he is a very nice and caring person.

>It's not that his tretments are radically different from other DAN

guys but rather that he doesn't do the cookie cutter treatment

protocol that the rest seem to favor.

Welll...... he doesn't present it that way. ,. . .. . . . . . .

>(First we'll do A, then B, then C) I'll keep y'all posted

>

> >I am curious what treatment he prescribed for your kid since the

> >treatments I have otherwise heard him Rx have been quite similar.  

> >Perhaps I haven't talked to the right people.

> >

> >Andy . . . . .. . . . . . . . .

> >

> >> I just got back from Dr. Green's office (I'm also a northern

> >Californian) -

> >> and he's great. He's the only doctor I've seen to date who

doesn't

> >have a

> >> pre-determined opinion about what the best treatment for autism

is,

> >so he doesn't

> >> try to fit your child into a pre-determined niche, but rather

bases

> >his

> >> decision on your child's individual problems. He treats over 600

> >autistic children;

> >> most from out-of-state.

> >>

> >>

> >>

> >> > Hello. I grew up in Pleasanton. My friend goes to Dr. Mielke. I

do

> >> > believe that my friend is leaving her and going to Dr. Green's

> >> > office in Oregon so I guess I can not reccomend Mielke. I

> >personally

> >> > know nothing about her. Sorry,

> >> >    

> >> >

> >> >

> >>

> >>

> >> [Non-text portions of this message have been

> >

> >

> >

> >=======================================================

> >

[Guest guest]

> Does anyone know how the ARI collects the information regarding the DAN drs

locator list?

The doctors fill out a cryptic form, ARI data enters what they think is

on it, it stays on the net forever and ever even if the doctor has

changed their practice a dozen times.

> There is one in Central PA that I was going to consult based on my mother's

research and he was listed as a DAN doctor from that list. I want to make sure

if I choose to use one that they aren't a rip off artist

No guaarantees of this.

All being on the DAN! list means is they went to a DAN! conference.

>and know what they are doing.

No guarantees here either, especially given the amount of dangerous and

harmful stuff presented as safe at DAN! meetings.

>Any thoughts or suggestion would be appreciated. We are in Central PA.... 1 hr

south of burg.

If Lansdale PA isn't too far for you (it is west of Philadelphia) then

see Dr. Larry , DO (215) 412-4910.

>

> Thanks!

>

> Jackie

> Lititz, PA

>

>

[Guest guest]

Andy,

Thank you for the referral. I am new to this listserve and wanting to learn

more to help my son even more than he has attained with therapy and

supplements. I will look into his practice.

If anyone has experience with Conrad G. Maulfair, Jr., D.O. Maulfair

Medical Center, Topton, PA 19562 I would appreciate you e-mailing me

privately! Thanks!

Jackie

jhines@...

> All being on the DAN! list means is they went to a DAN! conference.

>

>>and know what they are doing.

>

> No guarantees here either, especially given the amount of dangerous and

> harmful stuff presented as safe at DAN! meetings.

>

>>Any thoughts or suggestion would be appreciated. We are in Central PA....

>>1 hr south of burg.

>

> If Lansdale PA isn't too far for you (it is west of Philadelphia) then

> see Dr. Larry , DO (215) 412-4910.

[Guest guest]

> Does anyone know how the ARI collects the information regarding

the DAN drs locator list? There is one in Central PA that I was

going to consult based on my mother's research and he was listed as

a DAN doctor from that list. I want to make sure if I choose to use

one that they aren't a rip off artist and know what they are doing.

Any thoughts or suggestion would be appreciated. We are in Central

PA.... 1 hr south of burg.

>

> Thanks!

>

> Jackie

> Lititz, PA

Hello Jackie,

The following location has my comments on looking for a doctor.

It also includes some info and links to ARI's criteria for

being included on the DAN list. (They basically say the criteria

along with the list -- I believe it is to attend a DAN

conference OR state agreement with a philosophy statement

(text on their website).

http://home.earthlink.net/~moriam/HOW_TO_find_doctor.html

good wishes,

Moria

[Guest guest]

Jackie,

Your e-mail address isn't showing up can you spell it out with

spaces? Or e-mail me diane.powell @ pcua.coop (without the

spaces -- all together)

I'm in central PA too -- burg

Diane

> Does anyone know how the ARI collects the information regarding

the DAN drs locator list? There is one in Central PA that I was

going to consult based on my mother's research and he was listed as

a DAN doctor from that list. I want to make sure if I choose to use

one that they aren't a rip off artist and know what they are doing.

Any thoughts or suggestion would be appreciated. We are in Central

PA.... 1 hr south of burg.

>

> Thanks!

>

> Jackie

> Lititz, PA

>

>

[Guest guest]

In many cases a DAN doctor will have been someone who once attended a

DAN conference. This is not adequate, in my opinion. I personally

have been through 2 DAN docs, and finally chose someone wonderful who

exclusively sees autistic patients. We saw someone previously who

prescribed the DAN- " kitchen-sink " therapy before any tests were in.

He got much sicker under this doctor's care. It is the knowledge

that comes with breadth of experience that is as important as

intelligence and commitment.

Karin

>

> > Does anyone know how the ARI collects the information regarding

> the DAN drs locator list? There is one in Central PA that I was

> going to consult based on my mother's research and he was listed as

> a DAN doctor from that list. I want to make sure if I choose to

use

> one that they aren't a rip off artist and know what they are

doing.

> Any thoughts or suggestion would be appreciated. We are in Central

> PA.... 1 hr south of burg.

> >

> > Thanks!

> >

> > Jackie

> > Lititz, PA

>

>

> Hello Jackie,

>

> The following location has my comments on looking for a doctor.

> It also includes some info and links to ARI's criteria for

> being included on the DAN list. (They basically say the criteria

> along with the list -- I believe it is to attend a DAN

> conference OR state agreement with a philosophy statement

> (text on their website).

>

> http://home.earthlink.net/~moriam/HOW_TO_find_doctor.html

>

> good wishes,

> Moria

[Guest guest]

DAN doctors are for the most part, as some are not MD's but

nutritionists, Phd's or RN's, but easy enough to get an MD in most

locations, many are pediatricians also, but the premise of their care

is born from the autism epidemic. They treat children for nutritional

deficiencies, which I learned at the recent DAN conference in Boston

that most children with atypical neuro symptoms, not explained by any

other reason will be deficient in nutrients. The brain is downstream

to deficiencies, where any disorder metabolically will manifest itself

neurologically. They do basline blood testing for vitamin levels, amino

acids, fatty acids, thyroid testing and they also will test for

polymorphisms that have been shown to be almost 90% in the children

they treat, one being MTHFR which is in 50% of the population, and what

it means is that if positve you have up to a 60% deficiency to detox

toxins such as in water food, thimerosal from vaccines. They treat all

kids, not just autistic children. In fact the non autistic kids make

gains way faster than the autistic kids. Sometimes in weeks, like my

son did.So after getting the neurologist/developmental ped to rule out

any serious maladies, then the next step in my opinion is a DAN doctor

to help make sense of this whole thing.

> >

> > can i ask.. what is a DAN?

> > tracy

[Guest guest]

Does any insurance pay for DAN docs?-

-- In , " deverelementary "

<kearneysix@a...> wrote:

>

>

> DAN doctors are for the most part, as some are not MD's but

> nutritionists, Phd's or RN's, but easy enough to get an MD in most

> locations, many are pediatricians also, but the premise of their

care

> is born from the autism epidemic.

[Guest guest]

Yes they do, you jsut have to call, the MD, pediatrician ones for the

most part do, mine does take mostly all insurance plans, however some

do not. But with that said, many will work with what you can afford,

do only the basic needed bloods, alot can be done thru participating

labs such as quest labs, Great Plains labs take Blue Cross I believe.

All of our blood testing was done at University Childrens hospital,

all was covered by insurance.

> >

> >

> > DAN doctors are for the most part, as some are not MD's but

> > nutritionists, Phd's or RN's, but easy enough to get an MD in

most

> > locations, many are pediatricians also, but the premise of their

> care

> > is born from the autism epidemic.