Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 > Hello everyone > > We are new to the group. We have a 3 year old son who has been diagnosed ASD 5 months ago. We have immigrated to the UK fm South Africa where he has been on an ABA programme for 2 months with very positive results. He has had one month of ABA in the UK and new words are used everyday. > > We would like to weigh up the options of chelation and would like to get intouch with a DAN Doctor in our area to get us started. We are in South Gloucestershire (BS35) and would like to hear from families perhaps in this area or otherwise. I'm behind in reading, so I don't know if Mandi has already commented that you could also look here for UK folks: TreatingAutism-Biomedical I hear this list is largely UK parents. good wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 sorry, I don't know her, but if anyone knows of a good dan doctor in NJ, especially in morris county area, please let me know. thanks, carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Ana, could you email me about dr. King? aigjr@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Hi, I am in county and I have a DAN dr that I like very much. She is a nutritionist not an MD but knows more that the MD we used to see. She is in Bergen county, Englewood NJ Peta Cohen MS RD Total Life Center 11 North Dean St Englewood NJ 07631 201-541-7601 We have been going since March and she has helped my son (now 4) with many things. Best wishes Message: 24 Date: Thu, 22 Sep 2005 13:55:43 EDT From: aigjr@... Subject: Re: DAN doctors sorry, I don't know her, but if anyone knows of a good dan doctor in NJ, especially in morris county area, please let me know. thanks, carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Does anyone know if a good DAN Doctor in the Louisville Ky area? Amy gpintar@... wrote: Hi, I am in county and I have a DAN dr that I like very much. She is a nutritionist not an MD but knows more that the MD we used to see. She is in Bergen county, Englewood NJ Peta Cohen MS RD Total Life Center 11 North Dean St Englewood NJ 07631 201-541-7601 We have been going since March and she has helped my son (now 4) with many things. Best wishes Message: 24 Date: Thu, 22 Sep 2005 13:55:43 EDT From: aigjr@... Subject: Re: DAN doctors sorry, I don't know her, but if anyone knows of a good dan doctor in NJ, especially in morris county area, please let me know. thanks, carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Just curious as to the dan dr md you use to see. We see Dr. King in Springfield. Dr. Neubrander in Edison is suppose to be really good but there is a waiting list to see him. Ana .. > Hi, I am in county and I have a DAN dr that I like very much. She is a nutritionist not an MD but knows more that the MD we used to see. > She is in Bergen county, Englewood NJ > > Peta Cohen MS RD > Total Life Center > 11 North Dean St > Englewood NJ 07631 > > 201-541-7601 > > We have been going since March and she has helped my son (now 4) with many things. > > Best wishes > > > Message: 24 > Date: Thu, 22 Sep 2005 13:55:43 EDT > From: aigjr@a... > Subject: Re: DAN doctors > > sorry, I don't know her, but if anyone knows of a good dan doctor in NJ, > especially in morris county area, please let me know. thanks, carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 --- We see dr. Neubrander in Edison, NJ. He is very good. his website is WWW.drneubrander.com Manju In , aigjr@a... wrote: > sorry, I don't know her, but if anyone knows of a good dan doctor in NJ, > especially in morris county area, please let me know. thanks, carolyn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hi -- This is my first post here. In fact, while I have been lurking for a month while we've been trying to get a diagnosis for my 33 month old mostly nonverbal son, we didn't get a firm diagnosis of apraxia until today. Needless to say, I'm still grappling with acceptance, sadness, and perspective. This board has already been hugely helpful, and will almost certainly by a lifeline. I queried the listserv today (before reading the posts) to see if any one is using methyl B-12 treatments....and lo and behold, you actually posted TODAY. I imagine you have seen the info on Methyl B-12 at the www.drneurbander.com website. I called their office about 3 weeks ago to find out what kind of success they have had with apraxia, since they mostly treat autistic kids. I was kind of in shock when the staff member said " well, sure we treat apraxia -- after all, it's in the autism spectrum. " Hmmm. Anyway, I will be calling them back up and/or calling the one local doctor who is a member of DAN network and will likely be willing to try the protocol. I figure there's not much to lose. BTW, I am particularly interested since I have been doing home methyl B-12 injections for anemia and chronic fatigue-like problems. So far, I feel loads better -- and I can vouch that the shots are not painful at all. Have you read other info about B-12 and apraxia? in Santa Fe > > Hi all, > > My daughter, , has verbal apraxia, mild hypotonia, and some > sensory integration symptoms. Would taking her to a DAN doctor help? Do > people give their children methyl B12 injections for apraxia, when > there's no autism? > > She gets speech through an Early Childhood program and then we go one > day a week to a private speech therapist. I give her ProEfa daily and > this has made a big difference. Lately, her speech has gotten TONS > better, but we have noticed that behavioral issues and possible, SI > related stuff has gotten worse. I'm wondering if any of the DAN methods > might work for us. > > Thanks, > Becky > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 DAN doctor may help the internal imbalances in your child's system, but you may want to investigate in an OT who has SIPT training. Jane Ayres Trust endorsed, USC/WPS is the source for finding SI certified therapists! Read article link and see therapist locator link below: Article: Ayres Trust Endorses USC/WPS Sensory Integration Praxis Test Certification http://www.emediawire.com/releases/2004/6/prweb131367.htm My son worked with an OT for an hour a week from 3.5 years old through 8.5 years old. During the school year it was school related activities and summer months were medically related. He had other issues (safety awareness) vestibular and procioceptive were his main areas of weakness. You should see some progress by three months. I used an OT who was SIPT certified and had a sensory gym in their private practice. websites are numerous. here are some you can try: www.sinetwork.com www.sensorylearning.com. Here is another link that explains the theory behind sensory learning: http://www.positivehealth.com/permit/Articles sensory support groups might be helpful: http://spdnetwork.org/parentconnection/us.html <http://spdnetwork.org/parentconnection/us.html> Books:RAISING A SENSORY SMART CHILD The Definitive Handbook for Helping Your Child with Sensory Integration Issues by Lindsey Biel, M.A., OTR/L and Peske, Foreword by Temple Grandin Do you have a Little Gym near you. www.thelittlegym.com or even a gymnastics school that works with preschool disabled. Check your local area .. . . ask the OT or special ed teacher if she knows of any gymboree type places. Also I found swimming, jumping on a trampoline, scooters, wheel barrow races, leap frog, and jump rope all increased my son's weak muscles. He also enjoyed the bigem balls when he rolled on top his hands would have to stop him from falling. Little did he know he was working on his arm muscles. Clothespins and playdoh all worked his finger muscles. The interactive metronome has helped many global apraxic/dyspraxic children. www.interactivemetronome.com (must be at least 7) I believe most OTs who are certified will give an evaluation to see if your child is a good candidate. Some sessions can be up to an hour long for 20 visits. There are also home programs which may decrease the cost. That's all for now. Good luck! Joanne Mulholland [ ] DAN doctors Hi all, My daughter, , has verbal apraxia, mild hypotonia, and some sensory integration symptoms. Would taking her to a DAN doctor help? Do people give their children methyl B12 injections for apraxia, when there's no autism? She gets speech through an Early Childhood program and then we go one day a week to a private speech therapist. I give her ProEfa daily and this has made a big difference. Lately, her speech has gotten TONS better, but we have noticed that behavioral issues and possible, SI related stuff has gotten worse. I'm wondering if any of the DAN methods might work for us. Thanks, Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Yes, I think it could help significantly. My daughter's SI symptoms went away quickly once we started a gluten and casein free diet with her. Her apraxia was helped greatly by MB12 injections, liposomal glutathione (available from wellnesshealth.com, work up to 1/2 tsp 2x/day), and low-dose naltrexone (this is also available through a Dan doctor). We also use the Brainchild Nutritionals liquid vitamin and mineral supplements. We also gave her l-carnosine (carnaware.com) for 9 months, and saw great gains wrt apraxia during that time. I have used creatine to successfully address low tone in my son. Therapy is important, but biomed treatment can sometimes address the root causes of the problems and help your child progress much more quickly and with less frustration. good luck > > Hi all, > > My daughter, , has verbal apraxia, mild hypotonia, and some > sensory integration symptoms. Would taking her to a DAN doctor help? Do > people give their children methyl B12 injections for apraxia, when > there's no autism? > > She gets speech through an Early Childhood program and then we go one > day a week to a private speech therapist. I give her ProEfa daily and > this has made a big difference. Lately, her speech has gotten TONS > better, but we have noticed that behavioral issues and possible, SI > related stuff has gotten worse. I'm wondering if any of the DAN methods > might work for us. > > Thanks, > Becky > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 http://www.drneubrander.com/page1.html He is mentioned often in this group. I go in a couple of weeks if you have any questions. M. > > Any DAN doctors in NY area? > > --------------------------------- > It's here! Your new message! > Get new email alerts with the free Toolbar. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 What is a " Dan Doctor " ? I live in NYC so I may be able to help. [ ] DAN Doctors Any DAN doctors in NY area? --------------------------------- It's here! Your new message! Get new email alerts with the free Toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 Where in NY? My niece sees a wonderful DAN on LI -- Dr. Elice. He's in practice with Dr. Boris (sp?), who I think is quite well known. in NJ > > Any DAN doctors in NY area? > > --------------------------------- > It's here! Your new message! > Get new email alerts with the free Toolbar. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 It is in Orange County-Thanx. Or even in NYC. bigcheech91 <bigcheech91@...> wrote: Where in NY? My niece sees a wonderful DAN on LI -- Dr. Elice. He's in practice with Dr. Boris (sp?), who I think is quite well known. in NJ > > Any DAN doctors in NY area? > > --------------------------------- > It's here! Your new message! > Get new email alerts with the free Toolbar. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2007 Report Share Posted February 14, 2007 Does he take insurance? Have you seen good results with this Doctor? bigcheech91 <bigcheech91@...> wrote: Where in NY? My niece sees a wonderful DAN on LI -- Dr. Elice. He's in practice with Dr. Boris (sp?), who I think is quite well known. in NJ > > Any DAN doctors in NY area? > > --------------------------------- > It's here! Your new message! > Get new email alerts with the free Toolbar. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 My son doesn't go to Dr. Demio. We actually do lab work through someone else...Neuroscience, and the Dr. we use is Dr. Micheal Payne...very good with autism, especially from a biomedical standpoint. We're just starting out with his recommendations, but we are please so far. He is not in the state of Ohio, yet he does very well because he understands the underlying issues with autism. Did you have any bad experiences with Demio? I found that he was too expensive, so we haven't even tried him. Christie Funderburk LBarano710@... wrote: Hi there, Can anyone HIGHLY recommend a good DAN doctor (besides Dr. DeMio) in the Cleveland area? Thanks so much! ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Awww so glad you joined Christie, I can stop forwarding emails now lol -----Original Message----- From: [mailto: ] On Behalf Of Christie Funderburk Sent: Monday, June 11, 2007 3:19 PM Subject: Re: [ ] DAN Doctors My son doesn't go to Dr. Demio. We actually do lab work through someone else...Neuroscience, and the Dr. we use is Dr. Micheal Payne...very good with autism, especially from a biomedical standpoint. We're just starting out with his recommendations, but we are please so far. He is not in the state of Ohio, yet he does very well because he understands the underlying issues with autism. Did you have any bad experiences with Demio? I found that he was too expensive, so we haven't even tried him. Christie Funderburk LBarano710aol wrote: Hi there, Can anyone HIGHLY recommend a good DAN doctor (besides Dr. DeMio) in the Cleveland area? Thanks so much! ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 We went to Dr. Lonsdale as well. He has been working with children like ours for many, many years and is extremely knowledgeable. He wrote a book called " Why I left Orthodox Medicine" . You may want to check it out. I have a copy if anyone wants to borrow it. Good luck, Shari See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 A few days ago, we had our first appointment with Dr. Derrick Lonsdale in Westlake, OH. So far, I have not formed my final opinion on him. But he is definitely very knowledgeable and somewhat aggressive in his treatment approach. Karina (who also just joined ) > > Hi there, > Can anyone HIGHLY recommend a good DAN doctor (besides Dr. DeMio) in the > Cleveland area? > > Thanks so much! > > > > > ************************************** > See what's free at http://www.aol.com. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 Dr. Bock is in NY - He wrote the book The New Childhood Epidemics. You can learn more about DAN! on the autism research institute website From my experience - where the DAN is located is moot. Find one that is good - you are up against the clock. One that is dabbling or just learning, is just a step ahead of the mainstream cast of characters. After wasting time and money with maintream - then trying to find someone local (just guessing), and one who I just sensed was too conservative, I finally dug in and found a super star. Going this route may seem overkill to some but, why do so much guessing while your kids brain is growing. In the long run, that will mean a lot less of the " other stuff " like therapy which unless you are addressing the root, (my experience, again) waste of M O N E Y and time. > > I've been reading posts about DAN doctors, and I would like to hear a little more about them. > What do they do? And can an allergy really cause a child to have a speech delay? > > My son is almost 23 months, and he can say a few words but he understands everything. > When he was evaluated, they said he has apraxia, and he is recieving speech therapy 4 times > a week. When I read about allergies, I thought maybe there could be a connection, since my > son had blood in his diaper when he was a baby so we suspected an allergy. Since then, he > seems to be OK with all of the foods that I give him, but I wonder if he really had an allergy. If > so, how could that affect his speech. > > Also, if anyone knows of a good DAN doctor in New York, please let me know! > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 I've been posting a lot about this topic lately under gluten free/casein free subject lines so read those. Also I can tell you that the British Journal of medical neurology is encouraging neurologists to consider food intolerances --primarily gluten.casein peptides for all unexplained neurological conditions--meaning those that don't have an internal or external cause such as a stroke or a bullet through the head. There are other metabolic nutritional deficiencies that can cause neurological problems, but very often even in those cases gluten is in the mix as it causes malabsorption (leaky gut) and this leads to many other deficiencies such as fatty acids, CoQ10, B12, folate, iron and many others--all critical for neurological functioning. The gut/brain connection is HUGE! It's not something that new any more, there are a lot of books and articles in reputable journals written on it just go to Amazon and type in the gluten key words. The independent researchers and the university are leading the field, the autistic field is really the main consumer of this research now and more and more enlighten people with other neurological or immune system complaints that are disregarded by most doctors in clinical practice.Clinical practice is unfortunately led by Big Pharama so unless they come up with a drug they can sell to everyone and make billions, clinical practice will be very slow to catch on to this and will poo-poo it with all their might demanding " clinical research " which is slow to gather and may be decades away at the level that they consider it " proof " . After all it's just food and there's no one knocking on the door of doctors' offices offering free lunches for the whole year and gluten free food samples samples and trips to exotic get aways just to hear about how gluten impacts their patients. Yes, I'm being fastidious but that is the reality of how clinical practice works. The gluten peptides act as an opiate and it has been suggested that the brain cells shut down in certain areas where under attack by the gluten casein peptides. These can be speech areas, memory, peripheral nerve endings can be affected in the form of tingling and numbness of the fingers toes etc. Regular allergists are pretty clueless as to this, they still work with the old, flattened vili model that is strictly for Celiacs and manifests primarily with digestive and wasting away kind of issues. My daughter never had digestive issues in her life except one tummy flu at 8 m while still breast feeding and she just healed in 3 days. I never had digestive symptoms and my husband has them on and off and never knows what to blame them on but it's pretty clear as the people affected primarily neurologically will not exhibit digestive symptoms consistently at all and it may take many exposures over time to really feel the digestive problems caused by gluten or they may never show up and be a strictly neurological or immune system disorder that until more recently would have been undiagnosable. This research is coming out of universities and biomedical fields where they already know what to look for. it doesn't mean all speech delayed kids are gluten intolerant, but a good biomedically trained doctor knows to look for other signs (skin, digestion, gas, bloating, brain fog, lack of focus, SID etc) It's worth noting that tests are not always conclusive and that's why a good doctor needs to make sense of the whole picture not just one test. y daughter for example and myself and husband as well, tested within normal lower normal it's true, but still lower range for gluten. But we all have health issues related to it. My husband and I didn't have the speech, and it has taken longer for it to catch up with us, but we are affected nevertheless and that's how chronic degenerative illness starts, particularly immune system and neurological issues. So you don't want to just try a gluten free casein diet to see if it helps because it's not easy to keep, you pretty much have to cook everything from scratch and become very educated on the hidden glutens and casein --which is pretty much everything you eat out or even in other people's homes. So it's not easy but doable and well worth it if your child/family is affected. But it's very easy to go astray and not even know it and conclude it's not helping when it may in fact take 6m to a year of being gluten casein free for results to start showing though behaviorally and skin issues may show improvement sooner. Also you MUST treat any malabsorption or collateral intolerances developed as a result of the leaky gut which comes as part of the gluten intolerance package, A god probiotic, supplements etc are needed so you really want to do this under a doctor's supervision--a biomedically trained/inclined doctor that is. What you can try on your own until you get a dr's apt. is the fish oil vitamin E you read about on this list, but the warning is that if your child indeed needs the diet and probiotics etc, which many do, then s/he may not be absorbing that properly either, my daughter was very deficient in it until we implemented the diet and treated her leaky gut she was just not absorbing it in spite of having taken it since birth. Hope this gives you some idea and you'll get more responses form others. All the best, -Elena mom to Ziana age 3.10 severely apraxic but otherwise a happy healthy child and making great progress since appropriate speech therapy, diet/supplements have been implemented hsensitiveperson <hsensitiveperson@...> wrote: I've been reading posts about DAN doctors, and I would like to hear a little more about them. What do they do? And can an allergy really cause a child to have a speech delay? My son is almost 23 months, and he can say a few words but he understands everything. When he was evaluated, they said he has apraxia, and he is recieving speech therapy 4 times a week. When I read about allergies, I thought maybe there could be a connection, since my son had blood in his diaper when he was a baby so we suspected an allergy. Since then, he seems to be OK with all of the foods that I give him, but I wonder if he really had an allergy. If so, how could that affect his speech. Also, if anyone knows of a good DAN doctor in New York, please let me know! Thanks! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Elena, thanks so much for all of the useful information. I will try to find a biomedically trained doctor. In the meantime, my son has improved since he started taking fish oil. His skin is very clear, but we will check it out! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Do you know Dr. Bock's first name so that I can find his number? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Dr. Bock. Here is his website: http://www.rhinebeckhealth.com/rhc/ > > Do you know Dr. Bock's first name so that I can find his number? Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2008 Report Share Posted June 27, 2008 Has anyone in this group taken their child to Dr. Bock for treatment? I'm planning to call his office soon to schedule an appointment. Since he is several hours away from us, I wonder how this will work out in terms of followup visits, testing, etc. But I will do anything to try and help my son. I'll be happy to hear of your experiences. Thank you. [ ] Re: DAN doctors > Dr. Bock. Here is his website: > > http://www.rhinebeckhealth.com/rhc/ > > > > > > Do you know Dr. Bock's first name so that I can find his > number? > Thanks! > > > > > Quote Link to comment Share on other sites More sharing options...
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