Re: Fwd: FW: AMEX Members Project -- vote now!

[Guest guest]

I have to say, I'm w/ you on not voting for Autism Speaks, however my reasons are not the same. We do not do biomedical, we do not take issue w/ those who do.

Autism Speaks has absolutely no interest in treating Autism. They claim they are all about research, however they are unwilling to do any treatment based research. Treatment based research would have to prove some type of effectiveness. At this point Autism Speaks does not have to prove effectiveness in order to receive more monies. I have yet to see Autism Speaks prove effectiveness in their research. To those who write and receive grants, this is called a money pit.

Autism Speaks has a great PR ... which makes perfect sense considering the family that started Autism Speaks is heavily involved in the entertainment business. They use movie stars, TV personalities, and a host of other entertainment personalities to raise money for an organization that has never proven one thing about Autism considering the billions of dollars that they have received this is down right pathetic.

The worst thing is, Autism Speaks sucks monies away from those who are interested in TREATMENT and treatment based research.

In a message dated 7/18/2007 12:48:01 P.M. Eastern Daylight Time, Ladyshrink111@... writes:

No offense meant, but no thank you, I cannot vote for Autism Speaks. On their website under treatments for Autism the only biomedical option given is the gf/cf diet! In addition it was my understanding that a large portion of the monies already donated were either misappropriated or given to people like Gordon, MD who continue to advocate that autistic children receive vaccinations and use large amounts of psychotropic drugs despite their new black box warnings for children.

Despite 's courageous and admanant belief that vaccinations were the impetus for her son's spiral into autism, her parents, the original founders of Autism Speaks do not want to rock the boat of Big Pharma by telling the truth about the connection between vaccinations and Autism.

My dgd who was pulled from the despair of Autism is now in a regular kindergarten class with no aide and did exceptionally well this year. What is remarkable about her classmates are that they composed of both Amish (who do not vaccinate) and the rest who do. I could not find one child who was not Amish who was not stricken with some form of mercury/metal/vaccine damage in the form of; learning disabilities, ADHD, attention or fine or gross motor control problems.

Conversely I could not help but notice that every single one of the Amish children had NO such disability. This occurrence did not escape the observation of their teacher.

No, until Autism Speaks is willing to speak the truth....I can't vote for them to receive more monies to be wasted trying to find a genetic causation for Autism. There is no such thing as a genetic epidemic as in the order of what we see today.

Get a sneak peek of the all-new AOL.com.

[Guest guest]

No offense meant, but no thank you, I cannot vote for Autism Speaks. On their website under treatments for Autism the only biomedical option given is the gf/cf diet! In addition it was my understanding that a large portion of the monies already donated were either misappropriated or given to people like Gordon, MD who continue to advocate that autistic children receive vaccinations and use large amounts of psychotropic drugs despite their new black box warnings for children.

Despite 's courageous and admanant belief that vaccinations were the impetus for her son's spiral into autism, her parents, the original founders of Autism Speaks do not want to rock the boat of Big Pharma by telling the truth about the connection between vaccinations and Autism.

My dgd who was pulled from the despair of Autism is now in a regular kindergarten class with no aide and did exceptionally well this year. What is remarkable about her classmates are that they composed of both Amish (who do not vaccinate) and the rest who do. I could not find one child who was not Amish who was not stricken with some form of mercury/metal/vaccine damage in the form of; learning disabilities, ADHD, attention or fine or gross motor control problems.

Conversely I could not help but notice that every single one of the Amish children had NO such disability. This occurrence did not escape the observation of their teacher.

No, until Autism Speaks is willing to speak the truth....I can't vote for them to receive more monies to be wasted trying to find a genetic causation for Autism. There is no such thing as a genetic epidemic as in the order of what we see today.

----- Original Message -----

From: sharigoldberg22@...

05eddy@... ; a.heap@... ; access2teach@... ; adburg@... ; advblavin@... ; Akcuddy132@... ; alanalford@... ; Aet@... ; EAnde@... ; annafh@... ; annaj_kim@... ; ; maugier@... ; afaugust@... ; Bakelady@... ; barriegot@... ; DRBARRYERNST@... ; BBroad@... ; beaniemom32@... ; Berger@... ; SBidd@... ; Bogomon@... ; bootsystills@... ; leeseb@... ; ebrown@... ; Cadetmom52@... ; christinacaesar007@... ; CahenA@... ; RCAHEN@... ; HAUER3@... ; s.charnas@... ; cmayer@... ; CoachE813@... ; CowanD@... ; ctlindberg@... ; david@... ; dean_klein@... ; tanoroadgang@... ; MarkPDickinson@... ; tracydickinson@... ; Kdolan@... ; donnieapattison@... ; drdglick@... ; drosenthal@... ; dshaw@... ; esearby@... ; farkorner@... ; Pamplmuse@... ; JackieOFisher@... ; FourMyElmo@... ; FrancoiseAdan@... ; PFMF@... ; joycegary17@... ; FurthJ@... ; gabosborne@... ; gbs1010@... ; nicolegerami@... ; bgb501@... ; lev.gonick@... ; shosh57@... ; goodmanrb@... ; mspdt@... ; GregAbrams@... ; HallieAbrams@... ; StarrlovesOpus1@... ; mat_herman@... ; joannhirsh@... ; Honey@... ; mhughes@... ; Bowlies613@... ; portia@... ; pjaffe@... ; ggjarrett@... ; jason@... ; jim@... ; jisaak-shapiro@... ; jmawaka@... ; Jmros@... ; joyserednesky@... ; JSANDMAN@... ; jswinky@... ; rondee@... ; goff@... ; fluidyesses@... ; eklein1@... ; KovalM@... ; kovalhome@... ; kpahr@... ; PKRULAK@... ; bethkuhel@... ; laura_kuntz@... ; Crflader@... ; LBarano710@... ; Sgsl18@... ; adaml@... ; lindsay@... ; .Zimmerman@... ; LLEVENTHAL@... ; LMILLARD@... ; LMulholland@... ; Marc.Loveman@... ; ralph@... ; irwin19@... ; LYRICS52@... ; Mandelld@... ; JNMarcus@... ; mark.williams@... ; markwax@... ; MarniTask@... ; jsemarotta@... ; estie@... ; smarron@... ; mk_buff@... ; melaniewax@... ; mellen912@... ; meolivier@... ; LW@... ; Jonirick@... ; Millard8@... ; megxm@... ; judym@... ; mjy@... ; Ritartist@... ; Joanne@... ; T-Noland@... ; mowags@... ; t@... ; NAA-NEOhio ; merrisells@... ; cnewman@... ; knoble8@... ; NRUCCI@... ; percentherapies@... ; kim@... ; Debpetersmail@... ; epike@... ; Planetorganics@... ; ratner@... ; Notreagan@... ; SheApple@... ; rrichard@... ; STACERIP@... ; RJCNV@... ; AROSENTHALCSW@... ; laura@... ; rpeters142@... ; ruttenberge@... ; sherry@... ; scamiener@... ; gmsdesigns@... ; Deb749@... ; HSchoen856@... ; conniesearby@... ; seth.madorsky@... ; jaams@... ; zachlinda@... ; starr@... ; Rookie5500@... ; steve@... ; swieder@... ; SweetMargim@... ; Tarasu1@... ; tkwetherbee@... ; nhtwells@... ; lverespej@... ; awedren@... ; nwhitehead1214@... ; jwhitman@... ; BYavorcik@... ; FYelsky@... ; SYuhasz@... ; ZabkaJill@...

Cc: bwhitehouse@... ; mroithmayr@...

Sent: Wednesday, July 18, 2007 12:10 PM

Subject: [ ] Fwd: FW: AMEX Members Project -- vote now!

Hi!

I know everyone is so busy...

If you have a moment please vote for Autism Speaks.

Thanks so much for your support!

Take care,

Shari Goldberg

Cleveland Chapter President CAN/AS28449 North Woodland RoadPepper Pike, Ohio 44124440-449-9922

Get a sneak peek of the all-new AOL.com.

[Guest guest]

No offense taken. I would be happy to discuss with either of you some of the incorrect facts about Autism Speaks you have shared with our group. If you would like to do that off line or by phone please feel free to email me at sharigoldberg22@...

We are all working on one common goal which is to help our children. The Website below has a lot of great information. You can get the facts about Autism Speaks and the 40+ treatment grants that CAN/NAAR/AS have funded over the years right there. You can also learn about the three treatment-related programs designed to improve the quality of life our children lead: ATN, CTN and ITA. There's a whole page on the AS site devoted to treatment grants (http://www.autismspeaks.org/science/programs/treatment_grants.php).

Sincerely, ShariGet a sneak peek of the all-new AOL.com.

[Guest guest]

With all due respect, I too, cannot vote for Autism Speaks.

" Autism Speaks " ...not for me or my grandson, who was damaged by

vaccines, and is recovering with the help of biomedical

interventions. Autism Speaks... on behalf of the Pharmaceutical

companies, simply by diverting attention away from the

autism/vaccine connection. They envision consolidating major autism

groups under one name...but THEY want to control where the money

raised for research goes, and we know that it isn't going where it

will ruffle the feathers of the Pharmaceutical companies.

My dh bought AS magnets for our and our dd's family cars. He thought

he was helping our grandson's cause, but after discussing my

feelings towards AS, we agreed to package them up and return them

directly to the s.

I will continue to monitor their website and PR releases. It is

urgent that they properly allocate solicited funds that will fairly

represent all possible causes of autism. This includes the

autism/vaccine connection. When this happens along with the rightful

acknowledgement of biomedical interventions, Autism Speaks

will have my support.

>

> No offense meant, but no thank you, I cannot vote for Autism

Speaks. On their website under treatments for Autism the only

biomedical option given is the gf/cf diet! In addition it was my

understanding that a large portion of the monies already donated

were either misappropriated or given to people like Gordon, MD

who continue to advocate that autistic children receive vaccinations

and use large amounts of psychotropic drugs despite their new black

box warnings for children.

>

> Despite 's courageous and admanant belief that

vaccinations were the impetus for her son's spiral into autism, her

parents, the original founders of Autism Speaks do not want to rock

the boat of Big Pharma by telling the truth about the connection

between vaccinations and Autism.

>

> My dgd who was pulled from the despair of Autism is now in a

regular kindergarten class with no aide and did exceptionally well

this year. What is remarkable about her classmates are that they

composed of both Amish (who do not vaccinate) and the rest who do. I

could not find one child who was not Amish who was not stricken with

some form of mercury/metal/vaccine damage in the form of; learning

disabilities, ADHD, attention or fine or gross motor control

problems.

>

> Conversely I could not help but notice that every single one of

the Amish children had NO such disability. This occurrence did not

escape the observation of their teacher.

>

> No, until Autism Speaks is willing to speak the truth....I can't

vote for them to receive more monies to be wasted trying to find a

genetic causation for Autism. There is no such thing as a genetic

epidemic as in the order of what we see today.

>

>

> ----- Original Message -----

> From: sharigoldberg22@...

> 05eddy@... ; a.heap@... ; access2teach@... ; adburg@... ;

advblavin@... ; Akcuddy132@... ; alanalford@... ; Aet@... ;

EAnde@... ; annafh@... ; annaj_kim@... ; ;

maugier@... ; afaugust@... ; Bakelady@... ; barriegot@... ;

DRBARRYERNST@... ; BBroad@... ; beaniemom32@... ; Berger@... ;

SBidd@... ; Bogomon@... ; bootsystills@... ; leeseb@... ;

ebrown@... ; Cadetmom52@... ; christinacaesar007@... ; CahenA@... ;

RCAHEN@... ; HAUER3@... ; s.charnas@... ; cmayer@... ;

CoachE813@... ; CowanD@... ; ctlindberg@... ; david@... ;

dean_klein@... ; tanoroadgang@... ; MarkPDickinson@... ;

tracydickinson@... ; Kdolan@... ; donnieapattison@... ;

drdglick@... ; drosenthal@... ; dshaw@... ; esearby@... ;

farkorner@... ; Pamplmuse@... ; JackieOFisher@... ; FourMyElmo@... ;

FrancoiseAdan@... ; PFMF@... ; joycegary17@... ; FurthJ@... ;

gabosborne@... ; gbs1010@... ; nicolegerami@... ; bgb501@... ;

lev.gonick@... ; shosh57@... ; goodmanrb@... ; mspdt@... ;

GregAbrams@... ; HallieAbrams@... ; StarrlovesOpus1@... ;

mat_herman@... ; joannhirsh@... ; Honey@... ; mhughes@... ;

Bowlies613@... ; portia@... ; pjaffe@... ; ggjarrett@... ;

jason@... ; jim@... ; jisaak-shapiro@... ; jmawaka@... ; Jmros@... ;

joyserednesky@... ; JSANDMAN@... ; jswinky@... ; rondee@... ;

goff@... ; fluidyesses@... ; eklein1@... ; KovalM@... ;

kovalhome@... ; kpahr@... ; PKRULAK@... ; bethkuhel@... ;

laura_kuntz@... ; Crflader@... ; LBarano710@... ; Sgsl18@... ;

adaml@... ; lindsay@... ; .Zimmerman@... ; LLEVENTHAL@... ;

LMILLARD@... ; LMulholland@... ; Marc.Loveman@... ; ralph@... ;

irwin19@... ; LYRICS52@... ; Mandelld@... ; JNMarcus@... ;

mark.williams@... ; markwax@... ; MarniTask@... ; jsemarotta@... ;

estie@... ; smarron@... ; mk_buff@... ; melaniewax@... ;

mellen912@... ; meolivier@... ; LW@... ; Jonirick@... ;

Millard8@... ; megxm@... ; judym@... ; mjy@... ; Ritartist@... ;

Joanne@... ; T-Noland@... ; mowags@... ; t@... ; NAA-

NEOhio ; merrisells@... ; cnewman@... ;

knoble8@... ; NRUCCI@... ; percentherapies@... ; kim@... ;

Debpetersmail@... ; epike@... ; Planetorganics@... ; ratner@... ;

Notreagan@... ; SheApple@... ; rrichard@... ; STACERIP@... ;

RJCNV@... ; AROSENTHALCSW@... ; laura@... ; rpeters142@... ;

ruttenberge@... ; sherry@... ; scamiener@... ; gmsdesigns@... ;

Deb749@... ; HSchoen856@... ; conniesearby@... ; seth.madorsky@... ;

jaams@... ; zachlinda@... ; starr@... ; Rookie5500@... ; steve@... ;

swieder@... ; SweetMargim@... ; Tarasu1@... ; tkwetherbee@... ;

nhtwells@... ; lverespej@... ; awedren@... ; nwhitehead1214@... ;

jwhitman@... ; BYavorcik@... ; FYelsky@... ; SYuhasz@... ;

ZabkaJill@...

> Cc: bwhitehouse@... ; mroithmayr@...

> Sent: Wednesday, July 18, 2007 12:10 PM

> Subject: [ ] Fwd: FW: AMEX Members Project -- vote now!

>

>

>

> Hi!

>

> I know everyone is so busy...

> If you have a moment please vote for Autism Speaks.

> Thanks so much for your support!

> Take care,

> Shari Goldberg

>

> Cleveland Chapter President CAN/AS

> 28449 North Woodland Road

> Pepper Pike, Ohio 44124

> 440-449-9922

>

>

>

>

>

> -------------------------------------------------------------------

-----------

> Get a sneak peek of the all-new AOL.com.

>

[Guest guest]

Thank you for your support and understanding.

I truly appreciate your vote.

We are all in this together and need to help our children!

Take care,

ShariGet a sneak peek of the all-new AOL.com.

[Guest guest]

Thanks for being the voice of reason. Please vote if you can - right now 'we' meaning those who'd like to get these $'s to autsim are 8th. We need to be in the Top 5. sharigoldberg22@... wrote: No offense taken. I would be happy to discuss with either of you some of the incorrect facts about Autism Speaks you have shared with our group. If you would like to do that off line or by phone please

feel free to email me at sharigoldberg22aol We are all working on one common goal which is to help our children. The Website below has a lot of great information. You can get the facts about Autism Speaks and the 40+ treatment grants that CAN/NAAR/AS have funded over the years right there. You can also learn about the three treatment-related programs designed to improve the quality of life our children lead: ATN, CTN and ITA. There's a whole page on the AS site devoted to treatment grants (http://www.autismspeaks.org/science/programs/treatment_grants.php). Sincerely, Shari Get a sneak peek of the all-new AOL.com.

Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out.

[Guest guest]

Lmao. They tried to have me arrested at their Cleveland House of Blues

benefit concert a few months ago, because I was standing outside on

the sidewalk in an 'autism, it's no mystery it's mercury' tee-shirt,

calmly and politely handing out information about thimerosal in

vaccines. I was " spoiling their evening " , I was told.

Vote to give them money??? Ahahahahahahah.

[Guest guest]

I'm sorry, Shari...my reply sounds like an attack on you, which it

certainly is not. I know how hard you work with CAN. You are helping

to raise autism awareness as well as research dollars every day.

This, in addition to helping your own son to recover... I truly

respect that and I hope that you will accept my apology. We ARE on

the same side. I am also aware that CAN has given grant money to

fund studies that DO address mercury and other environmental links

to autism

http://www.cureautismnow.org/site/c.bhLOK2PILuF/b.2506569/k.C8B2/Gran

ts_Funded__2007.htm

My feelings towards Autism Speaks stems from their lack of support

to parents and organizations who truly believe that children have

been injured by their vaccines. Also, parents who believe in

biomedical intervention, need to feel included in the agenda.

Unfortunately, a schism has been created.... We need to bridge the

gap and work as one.

Admittedly, I was disappointed in the AS/CAN merge. However, it may

be this merge that will help to unite the autism community.

I DO believe in CAN and I hope that as an organization, this group

will continue to reach out to re-connect the autism community. There

is work to be done.

Again, my apologies for the way my post came across. I truly

appreciate your hard work as a parent and as a leader.

-Trish

> >

> > No offense meant, but no thank you, I cannot vote for Autism

> Speaks. On their website under treatments for Autism the only

> biomedical option given is the gf/cf diet! In addition it was my

> understanding that a large portion of the monies already donated

> were either misappropriated or given to people like Gordon,

MD

> who continue to advocate that autistic children receive

vaccinations

> and use large amounts of psychotropic drugs despite their new

black

> box warnings for children.

> >

> > Despite 's courageous and admanant belief that

> vaccinations were the impetus for her son's spiral into autism,

her

> parents, the original founders of Autism Speaks do not want to

rock

> the boat of Big Pharma by telling the truth about the connection

> between vaccinations and Autism.

> >

> > My dgd who was pulled from the despair of Autism is now in a

> regular kindergarten class with no aide and did exceptionally well

> this year. What is remarkable about her classmates are that they

> composed of both Amish (who do not vaccinate) and the rest who do.

I

> could not find one child who was not Amish who was not stricken

with

> some form of mercury/metal/vaccine damage in the form of; learning

> disabilities, ADHD, attention or fine or gross motor control

> problems.

> >

> > Conversely I could not help but notice that every single one of

> the Amish children had NO such disability. This occurrence did not

> escape the observation of their teacher.

> >

> > No, until Autism Speaks is willing to speak the truth....I can't

> vote for them to receive more monies to be wasted trying to find a

> genetic causation for Autism. There is no such thing as a genetic

> epidemic as in the order of what we see today.

> >

> >

> > ----- Original Message -----

> > From: sharigoldberg22@

> > 05eddy@ ; a.heap@ ; access2teach@ ; adburg@ ;

> advblavin@ ; Akcuddy132@ ; alanalford@ ; Aet@ ;

> EAnde@ ; annafh@ ; annaj_kim@ ; ;

> maugier@ ; afaugust@ ; Bakelady@ ; barriegot@ ;

> DRBARRYERNST@ ; BBroad@ ; beaniemom32@ ; Berger@ ;

> SBidd@ ; Bogomon@ ; bootsystills@ ; leeseb@ ;

> ebrown@ ; Cadetmom52@ ; christinacaesar007@ ; CahenA@ ;

> RCAHEN@ ; HAUER3@ ; s.charnas@ ; cmayer@ ;

> CoachE813@ ; CowanD@ ; ctlindberg@ ; david@ ;

> dean_klein@ ; tanoroadgang@ ; MarkPDickinson@ ;

> tracydickinson@ ; Kdolan@ ; donnieapattison@ ;

> drdglick@ ; drosenthal@ ; dshaw@ ; esearby@ ;

> farkorner@ ; Pamplmuse@ ; JackieOFisher@ ; FourMyElmo@ ;

> FrancoiseAdan@ ; PFMF@ ; joycegary17@ ; FurthJ@ ;

> gabosborne@ ; gbs1010@ ; nicolegerami@ ; bgb501@ ;

> lev.gonick@ ; shosh57@ ; goodmanrb@ ; mspdt@ ;

> GregAbrams@ ; HallieAbrams@ ; StarrlovesOpus1@ ;

> mat_herman@ ; joannhirsh@ ; Honey@ ; mhughes@ ;

> Bowlies613@ ; portia@ ; pjaffe@ ; ggjarrett@ ;

> jason@ ; jim@ ; jisaak-shapiro@ ; jmawaka@ ; Jmros@ ;

> joyserednesky@ ; JSANDMAN@ ; jswinky@ ; rondee@ ;

> goff@ ; fluidyesses@ ; eklein1@ ; KovalM@ ;

> kovalhome@ ; kpahr@ ; PKRULAK@ ; bethkuhel@ ;

> laura_kuntz@ ; Crflader@ ; LBarano710@ ; Sgsl18@ ;

> adaml@ ; lindsay@ ; .Zimmerman@ ; LLEVENTHAL@ ;

> LMILLARD@ ; LMulholland@ ; Marc.Loveman@ ; ralph@ ;

> irwin19@ ; LYRICS52@ ; Mandelld@ ; JNMarcus@ ;

> mark.williams@ ; markwax@ ; MarniTask@ ; jsemarotta@ ;

> estie@ ; smarron@ ; mk_buff@ ; melaniewax@ ;

> mellen912@ ; meolivier@ ; LW@ ; Jonirick@ ;

> Millard8@ ; megxm@ ; judym@ ; mjy@ ; Ritartist@ ;

> Joanne@ ; T-Noland@ ; mowags@ ; t@ ; NAA-

> NEOhio ; merrisells@ ; cnewman@ ;

> knoble8@ ; NRUCCI@ ; percentherapies@ ; kim@ ;

> Debpetersmail@ ; epike@ ; Planetorganics@ ; ratner@ ;

> Notreagan@ ; SheApple@ ; rrichard@ ; STACERIP@ ;

> RJCNV@ ; AROSENTHALCSW@ ; laura@ ; rpeters142@ ;

> ruttenberge@ ; sherry@ ; scamiener@ ; gmsdesigns@ ;

> Deb749@ ; HSchoen856@ ; conniesearby@ ; seth.madorsky@ ;

> jaams@ ; zachlinda@ ; starr@ ; Rookie5500@ ; steve@ ;

> swieder@ ; SweetMargim@ ; Tarasu1@ ; tkwetherbee@ ;

> nhtwells@ ; lverespej@ ; awedren@ ; nwhitehead1214@ ;

> jwhitman@ ; BYavorcik@ ; FYelsky@ ; SYuhasz@ ;

> ZabkaJill@

> > Cc: bwhitehouse@ ; mroithmayr@

> > Sent: Wednesday, July 18, 2007 12:10 PM

> > Subject: [ ] Fwd: FW: AMEX Members Project -- vote now!

> >

> >

> >

> > Hi!

> >

> > I know everyone is so busy...

> > If you have a moment please vote for Autism Speaks.

> > Thanks so much for your support!

> > Take care,

> > Shari Goldberg

> >

> > Cleveland Chapter President CAN/AS

> > 28449 North Woodland Road

> > Pepper Pike, Ohio 44124

> > 440-449-9922

> >

> >

> >

> >

> >

> > -----------------------------------------------------------------

--

> -----------

> > Get a sneak peek of the all-new AOL.com.

> >

>

[Guest guest]

Dear Sandee,

Thank you for sharing your thoughts, the link and your support of Autism Speaks.

Sincerely,

ShariGet a sneak peek of the all-new AOL.com.

[Guest guest]

In a message dated 7/21/2007 11:00:43 AM Eastern Daylight Time, jswinky@... writes:

Here is the link to the brief

http://www.autismspeaks.org/docs/d_200707_Brief_amicus_curiae_Autism_Speaks.pdf

Thanks for the link! I am one who had a negative opinion of AutismSpeaks esp as I currently am unable to find much needed funding to get my son into an appropriate educ. placement. We are in process of doing a golf outing to raise funds to send him to Dragonfly Academy in fall so after 6 years he can finally make consistent progress!

My question is, I only read the first couple pages after the index, and agree with what it's saying but want to ask, what does all this mean in the end for families who need funding and are tired of fighting the school? What is this brief actually asking or trying to get a ruling on??

Thanks,

jackie

[Guest guest]

Shari and to all,I am sorry that my busy life did not allow for timely response. I have been so busy with my legal challenges. I want to share the recent Autism Speaks amicus brief that was filed at the US Supreme Court on behalf of a family. This brief may change a few perspectives of those who do not know how much Autism Speaks is committed to children and families with Autism. I want to share with you that I voted for AS!!!Here is the link to the briefhttp://www.autismspeaks.org/docs/d_200707_Brief_amicus_curiae_Autism_Speaks.pdf

I hope this brief can reassure those who have doubts and bring hope to all our families with knowing that there are organizations (Autism Speaks) out there fighting in the trenches for families--which I can tell you is not a nice place to be. This brief surely demonstrates the integrity of Autism Speaks.Enough from my soap box!!I hope everyone is enjoying their summer and their families. Remember we are all in this together to achieve the best outcomes for all.

In Solidarity,Sandee Winkelman

[Guest guest]

My understanding is--there is a case pending review of the Supreme Court where the question that is being asked is:Does the child have to attend the public school first--before a parent can ask for private tuition reimbursement through a court action?

It is split right now. Some courts say you must attend the public and fail first and some say that you can ask for tuition regardless if the child attended.There is some info on the case if you google the case name in.

Hope this helpsSandee

[Guest guest]

I can say regardless of how I feel about Autism speaks that their "1 in 166" commercials have done their job in drawing attention to the problem. For that, I'm grateful.

I also wanted to say that I appreciated n's comments concerning the need for financial support for families NOW in lieu of spending a slew of money for research that is vainly looking for genetic reasons for Autism. In my opinion, it's money wasted as many people's children's futures are being sacrificed in an attempt to prove vaccines don't cause Autism in order to protect the drug companies.

----- Original Message -----

From: sharigoldberg22@...

Sent: Saturday, July 21, 2007 11:04 AM

Subject: Re: [ ] Fwd: FW: AMEX Members Project -- vote now!

Dear Sandee,

Thank you for sharing your thoughts, the link and your support of Autism Speaks.

Sincerely,

Shari

Get a sneak peek of the all-new AOL.com.

[Guest guest]

>

> We did not try to have you arrested.

You've written me and said that nobody tried to have me arrested.

SOMEBODY tried to have me arrested. You've also said that you'd be

happy to discuss this with me offline. I would not be happy to discuss

this offline. You've said that there was no arrest attempt, publicly,

and I intend

to defend myself publicly.

Were you there? Were you the person who told me that my presence there

on the sidewalk handing out information about mercury in vaccines was

" spoiling your

evening " ? If you were there, then you know that I was told to leave

and that if I didn't I would be arrested. You know that there were

police cars, and that the management of the House of Blues asked me to

leave or else I would be arrested. The police officers also told me

that I would have to leave, or else face arrest. It was only when the

chief of police came that I was told that I could remain and continue

to hand out my information, since I was on public property, not

causing any disturbance, and within my legal rights.

> We asked that you come inside to our event and put your paperwork on

our

> Resource Table so people interested could then take the information

rather than

> it be handed to them as they got out of their cars.

I was asked to leave my fliers on the information table and I said

that I would prefer to hand them out to people directly. I was told by

Autism Speaks organizers that that was unacceptable. I then agreed to

stand away from the doors, beyond the House of Blues frontage, but

soon realized that all of the guests were being dropped off in front

of

the doors and their cars parked by valet, which meant that nobody saw

me there as they would have if they'd been parking their cars and

walking into the venue. (I quit approaching people as they were

leaving their cars to be picked up by the valet service when I was

asked to do so by the valet service attendants and the Autism Speaks

benefit organizers.) So I then went inside and explained that I had

changed my mind and would be outside near the doors after all, and was

told by someone that they would go and see if that was acceptable.

Although I didn't understand why I should need permission from either

the House of Blues management or the Autism Speaks benefit organizers

in order to stand outside on public property handing out information,

I agreed to wait. I waited about ten minutes and when no one showed up

to tell me if it was ok or not, I went back outside onto the sidewalk

to hand out fliers again.

> You were invited in and chose to do it your way instead, that is the

only

> reason we needed assistance from security. Don't forget we are all

on the same

> side...the side of our children.

You've told me that I chose to stand outside, be disruptive, and cause

a scene.

If you call calmly handing out information to people interested enough

to take my pieces of paper `causing a disturbance', then yes, I did do

that. I might suggest that police cars gathered around the doorways

and arrest threats could better be described as a `disturbance', but I

was not the one responsible for their presence there that evening.

You've also said that I could continue to laugh, but that Autism isn't

funny but rather is painful and stressful and difficult. You certainly

don't need to tell me that.

You said that there are no sides, just the side of our children, but

you are wrong. There ARE two sides. There is the side that is willing

to hear all viewpoints, and then there is the side that seems very

anxious that certain viewpoints are never aired publicly.

I am not doing this for your children. I am doing this for myself. I

am not doing this for my children, either. My children aren't

diagnosed with autism. In fact, it is quite possible that what I am

doing in trying to bring people's attention to the issue of mercury in

vaccines is more detrimental than helpful, as far as my own children

are concerned. But I do feel that it is certainly in their interests

that I speak out when I feel that someone is being deceitful.

You've said that you are here to help your child and as many children

as you can, not to argue with me. I don't want to argue, either. I

will

not discuss this or anything else with you until you admit that an

attempt was made to have me arrested, and apologize for claiming

otherwise.

Sincerely,

Robin Nemeth

[Guest guest]

I've been a member of this list for probably about 2 years.

Although there has been disagreement among members in the past, I

don't remember ever seeing such strong emails about a particular

topic. In any event, I really don't think it is my business;

however, given that I have received these emails, it has become my

business (and everyone else's business who subcribes to this

group).

I am not in a position to say who is right or wrong - everyone has

an opinion. I think it is, however, unfortunate that this

discussion has caused some hard feelings among members of this

group. This group was started for SUPPORT -- mostly for parents and

loved ones impacted by autism. It is a place where people can come

and discuss their pain, joys and successes. It is also a place

where we can bounce ideas off of each other. For me personally, it

does not matter what treatment methodology a person believes in

and/or is using for his/her child. All that matters is that their

child is improving and life within their family is improving. I

personally have used (and investigated) a number of treatments.

I've never been one to utilize one treatment to the exclusion over

the other (I'm sure I've been criticized by others for this). I'm a

big believer in behavior intervention along with dietary

intervention. I've tried other interventions with my children,

which did not work. Just because these interventions did not work

with my children doesn't mean they won't work for others. Each

parent has to make their own decisions on choice of therapy.

With respect to research, I don't think anyone in the group is

against research. However, I would bet the majority of this group

would not benefit from research on the causes of autism -- we do not

have a time machine and cannot go back and change the fact that our

children (or loved ones) have this condition. Research in this area

would, however, benefit our future generations. In my opinion (I

would like to emphasize that it is my opinion), this group's members

would benefit more from research in autism treatments.

Although it is not my place, I am sorry that certain members of this

group have been hurt (intentionally or not) by the discussions

and/or events that may have occurred recently. I want to also say

I'm sorry to Shari -- I don't think you thought your email would

spark such strong feelings.

In any event, please keep in mind that this group is meant for

support -- support for everyone impacted by autism.

Just my thoughts....(please don't beat me up too much)

Debbie Z.

>

> Hi Everyone,

>

> I haven't had time yet to really research the newness of Autism

Speaks. I

> know things can change and improve for any organization. I really

don't know

> much about the fundraising part or who the grants are provided

to. I'll have to

> dive in and find the facts.

>

> My opinion is that parents need money to provide therapies for

their children

> right now. It seems research takes so long, and there are many

researchers

> that could perhaps benefit by pulling together and sharing what

knowledge they

> already have. I think the ARI already has brought forth much

insight and they

> really should be included as far as research value goes. They

have many

> answers that has proven sucessful in my home. Without the therory

on leaky gut

> and food allergies, I would've never known my son's behaviors were

involved from

> his digestive and immune system disregulation. I am glad that

prior research

> has been helpful to my son's life and also my own health. I'm

sure there are

> other factors involved that contribute to autistic behaviors and

learning

> disabilities. There may be several conditions implicating

individual health.

>

> I hope all works out for everyone. The most important part of all

of this is

> caring for our children as Shari said.

>

> Yours, n

>

> In a message dated 7/19/07 12:10:15 PM Eastern Daylight Time,

> sharigoldberg22@... writes:

>

>

> > Dear Minnieme1,

> > Thank you for monitoring the Autism Speaks website. I think you

will be

> > pleased with the studies they have done, the grants they have

funded and the

> > effort they are making to help our children and grandchildren.

> > We are all in this fight together, not against each other...that

does not

> > help children and families with Autism.

> > Sincerely,

> > Shari

> >

> >

>

> </HTML>

>