Guest guest Posted August 19, 2000 Report Share Posted August 19, 2000 Hi Noelle, I think there are some who have found it necessary to go GF/CF, but I think most of us on the protocol have found that we only have to avoid Milk and dairy, and whole wheat. The diet alone would not be enough for my son. He also has these asymptomatic low level infections. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2000 Report Share Posted August 19, 2000 , It can be hard to figure out what is what. I honestly thought that dairy was not a problem because I didn't see any obvious reaction. It was only after I had my son on the full protocol, that the problem became obvious. When he cheated by eating cheese doritos, it was the next day when the deterioration began. It took about a week before he was close to where he had been prior to the cheat. In our case, just one exposure per week would have been enough to keep him dysfunctional. Cheryl > Noelle - we were on the diet for 5 months and also didn't see any > improvement, so we switched to Dr Goldberg's diet. My personal opinion is > that the diet is successful for kids who have Celiac disease or dairy > allergies. We're still not giving dairy products, although I suspect my > daughter's problems are not diet relaed at all. I'm glad I tried the diet, > because I would always be wondering if I had missed out for something, but > it's definately not for everyone. Give it a while longer, then you need to > try other things. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2000 Report Share Posted August 19, 2000 There were actually two instances last summer. He was relatively stable at that time and on summer vacation. The first time was by accident, he relied on his friends mom that a food was o.k. (he now knows that if the product is something he hasn't seen me buy, he calls, reads the ingredients himself, or doesn't eat it) The second time he ate cheese doritos, knowingly. He thought he could get away with a little defiance without me being the wiser.(wrong) In both cases there was an obvious difference. I could tell just by talking to him. It's hard to explain but it has to do with what he says and how he says it. Then you notice that he is not dealing with things as well, alot more mood swings, uncooperative, more whiney, etc. I don't know about %, I just don't feed him anything that has milk, cheese, or whey, listed as an ingredient. The other thing I noticed is that a dairy cheat lasts much longer than any other infraction. The only other thing that throws him off longer is infections. Before treating the infections he was reactive to all kinds of foods, chemicals. It was really hard to keep him stable when we tried diet alone. The slightest thing would throw him off. Cheryl ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Re: gfcf diet > Cheryl - What kind of deterioration did you see when dairy products were > eaten, when compared with when he was " clean " ? Did you find that trace > amounts (less than 2% of a serving) made an impact? Also, I'm wondering how > you could tell that behavior differences were caused by diet infractions, as > opposed to all of the other variables that take place every day. I always > find myself wondering, is her behavior caused by food coloring she might have > eaten, excitement at school, lack of sleep, nitrates in the hot dogs, full > moon, etc., etc. I had a hard time sorting through everything. Thanks for > your note! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2000 Report Share Posted August 23, 2000 Noelle - we were on the diet for 5 months and also didn't see any improvement, so we switched to Dr Goldberg's diet. My personal opinion is that the diet is successful for kids who have Celiac disease or dairy allergies. We're still not giving dairy products, although I suspect my daughter's problems are not diet relaed at all. I'm glad I tried the diet, because I would always be wondering if I had missed out for something, but it's definately not for everyone. Give it a while longer, then you need to try other things. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2000 Report Share Posted August 23, 2000 Dear Noelle There is an excellent book called " Unraveling the mystery of Autism " by Seroussi (Serroussi?). Did you know that it takes the body 9 months to get red of gluten? Some children takes them a year to get rid of milk from their system. One way to find out if it is working is by introducing the no no food one at a time at a four day interval. (milk takes 10 day to be out of the system). Another good book to read " Is this my child " by Dorris Rapp. Good luck mercy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2000 Report Share Posted August 23, 2000 Cheryl - What kind of deterioration did you see when dairy products were eaten, when compared with when he was " clean " ? Did you find that trace amounts (less than 2% of a serving) made an impact? Also, I'm wondering how you could tell that behavior differences were caused by diet infractions, as opposed to all of the other variables that take place every day. I always find myself wondering, is her behavior caused by food coloring she might have eaten, excitement at school, lack of sleep, nitrates in the hot dogs, full moon, etc., etc. I had a hard time sorting through everything. Thanks for your note! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2000 Report Share Posted August 23, 2000 Noelle, I have heard Karyn Seroussi, who formed the group ANDI(Autism Network Dietary Intervention) with , say " Many times she will talk to parents that say the diet isn't working. " She will ask them to tell her everything they are feeding their child, and most of the time there is some hidden ingredient that is prohibiting their child from improving on the diet. I have emailed Karyn and ; and they have always answered my emails. Their email is AutismNDI@.... But before asking them lots of questions I would read Seroussi's new book; and 's book on tips for cooking GFCF. I understand that is could take 6 months to 1 year for your child to rid the proteins from gluten and casein. And that's with no cheating. If you have any more questions, please let me know. Vicki Carney faijcb@... wrote: > > We have been on the diet for about 3 months and can't see that it is > doing anything. Have any of you tried the diet? How long do you > need to do it? How do you measure the results? Thanks, Noelle > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2000 Report Share Posted August 23, 2000 , Cheryl is correct. Diet by itself is not enough but it is one more way of reducing triggers on the immune system. It has to be a combined effort! Kathy r Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 In a message dated 3/4/01 8:33:39 AM, writes: << I think you could be right it could be the magic bullet, I probably need to bite the bullet and just get started on this diet. I just don't even know where to start did you empty out your cabinets and refrigerator and go cold turkey GF/CF or did you do it gradually I've heard even traces of the wrong food could destroy the whole diet is this true or false. Please give me any info. I've heard of this diet forever, but its only now that I'm thinking it will help my son. thanks >> , I put off the diet for a long time with many excuses- too much work, too expensive, too hard on the family, etc. Sometimes you just have to bite the bullet and do it. (But I don't believe in magic bullets anymore either. Some kids do well on certain things, others on different things. There is no " one size fits all " in this disorder.) cannot tolerate any gluten (we discovered it causes him to seize about 48-72 hours after ingestion, as well as a whole host of other problems). He is much more stable on the GFCF diet, better behavior, etc. Most parents have found that eliminating slowly works best, i.e., no milk, cheese, ice cream, then eliminate the flours, then tidy up on the added ingredients in things. Give it at least 6 months before you bag it, because it takes this long to get the gluten peptides out of the system, so you may not see improvement before then. More information at www.gfcfdiet.com, also gfcfkids and gfcfrecipes on groups are discussion groups for this diet. Ruth, 's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 I think the reason I have procrastinated is because I knew some parents who have done the diet and didn't see that great of improvements. I've always had the additude if it wouldn't recover him, it wouldn't be worth it. Now that his behaviors are still a problem at his age its time to take the drastic step. Hope I will not give up. I;m the type if I don't see improvements in a couple of week I want to quit. I am getting much better in this area considering I've been chelating my son now for about 3 months and his behaviors have worsened and I haven't given up and quiet. I'm proud of myself for that. Thanks for listening Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Hello everyone! I'm new to the group and am looking for some info on getting started on the gfcf diet. My son is already 7, so he didn't accept the bread and bagels we tried. Is there tasty alternatives out there? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2008 Report Share Posted May 8, 2008 Hi. We have a son on a GFCF diet. We've found digestive enzymes help a lot with facilitating with digesting some of the contraindicatged foods, for the transition phase you may have to embark upon, thereof? .. . and for special treats Best wishes, thereof Mike, I ABA ABA for Understanding More The enzymes are best consumed prior to eating the contraindicated foods, but they work quite well after the fact as well. These enzymes can be found just about everywhere they sell vitamins. We, of our son, have no favourite(s), that doesn't usually cost a lot more? Hang in there with whatever you try, that should help lead you to wherever you go? of how it makes you " Feel " .. . On Life? .. . On Life, support ( > > Has anyone worked with a child on the GFCF diet? I currently work > with someone who is on the diet. I am teaching her manding but it is > proving a little difficult because she doesn't like a lot of the food > on the diet (she was on regular diet before, and she ate fine, but now > this is a problem). Any suggestions? > Quote Link to comment Share on other sites More sharing options...
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