Re: How do you feel about this?

June 2, 2007

Another toxic side-effect of Autism. Family tension and struggling

with their own grief. It is sad, but not surprising.

I cannot imagine how my family would deal with such a devastating

issue in the public eye.

Pam

>

> Just curious how everyone feels about this:

>

> , daughter of Bob & Suzanne ,

> recently appeared with Kirby, author of Evidence of Harm, to

> discuss biomedical interventions, mercury toxicity and the like.

> (http://www.autismmedia.org/media15.html) Whether or not you embrace

> biomedical interventions is moot, this statement from Autism Speaks

> left us flabbergasted. Apparently their own daughter isn't permitted

> to speak on behalf of Autism Speaks. We are very interested in how

> you feel about this -- let us know how you feel at

> info@...!

>

> Statement from Bob and Suzanne , Co-founders of Autism Speaks

>

> http://www.autismspeaks.org/wrights_statement.php

>

> is not a spokesperson for Autism Speaks. Our daughter's

> personal views differ from ours and do not represent or reflect the

> ongoing mission of Autism Speaks. Her appearance with Kirby

was

> done without the knowledge or consent of Autism Speaks.

>

> Autism Speaks is committed to finding the causes of and a cure for

> autism. We are proud of our scientifically based research programs,

> including those established by NAAR and CAN, and will continue to

> pursue them. The members of our scientific advisory teams have

> impeccable credentials and we fully support them. There is no

> question that genetics plays the leading role in autism and that

> environmental triggers are key issues for many children. These

areas,

> as well as biomedical treatments, need huge research support.

>

> Autism Speaks merged with NAAR because it believes in and supports

> its scientific mission, methods, and advisory board. We are proud of

> the accomplishments of NAAR and grateful to the families and

> volunteers who created it. They are a tremendously valued part of

> Autism Speaks. We welcome input from volunteers and

parents/guardians

> of children with autism of all ages, including adults with autism.

We

> apologize to our valued volunteers who were led to believe otherwise

> by our daughter's statement.

>

> --

> --------------------------------------------------------------------

--------

> AutismLink -- Information and Support for Autism Spectrum Disorder

> Contribute to AutismLink the United Way -- #1382643

>

> Our new facility, the Autism Center of Pittsburgh, offers

evaluations,

> occupational therapy, speech therapy, support and more! Call us at

> (412) 364-1886 or 1-866-PUZZLE-2

> --------------------------------------------------------------------

-------

> Visit our website at www.autismlink.com for information, help and

support

> 24/7.

>

June 2, 2007

Personally, I feel sorry for the family. They have a

very tough balancing act. The s cannot take

their personal views and ride with them. They have

many to answer to, especially big $ sponsors and board

of directors.

On the other hand, can say whatever she wants.

She is her own individual. She stated in her

interview that she was speaking on her own behalf and

NOT for Autism Speaks. She is a mother expressing her

own views and personal experiences with her child.

is trying ot help and is going out on a limb on

all of our behalfs.

Those who were supposedly offended (referred to in the

s letter) need to understand that all views need

to be heard, not just their own. Bravo !

--- noaholiviaian <phaselow@...> wrote:

> Another toxic side-effect of Autism. Family tension

> and struggling

> with their own grief. It is sad, but not

> surprising.

>

> I cannot imagine how my family would deal with such

> a devastating

> issue in the public eye.

>

> Pam

>

> >

> > Just curious how everyone feels about this:

> >

> > , daughter of Bob & Suzanne ,

> > recently appeared with Kirby, author of

> Evidence of Harm, to

> > discuss biomedical interventions, mercury toxicity

> and the like.

> > (http://www.autismmedia.org/media15.html) Whether

> or not you embrace

> > biomedical interventions is moot, this statement

> from Autism Speaks

> > left us flabbergasted. Apparently their own

> daughter isn't permitted

> > to speak on behalf of Autism Speaks. We are very

> interested in how

> > you feel about this -- let us know how you feel at

> > info@...!

> >

> > Statement from Bob and Suzanne , Co-founders

> of Autism Speaks

> >

> > http://www.autismspeaks.org/wrights_statement.php

> >

> > is not a spokesperson for Autism

> Speaks. Our daughter's

> > personal views differ from ours and do not

> represent or reflect the

> > ongoing mission of Autism Speaks. Her appearance

> with Kirby

> was

> > done without the knowledge or consent of Autism

> Speaks.

> >

> > Autism Speaks is committed to finding the causes

> of and a cure for

> > autism. We are proud of our scientifically based

> research programs,

> > including those established by NAAR and CAN, and

> will continue to

> > pursue them. The members of our scientific

> advisory teams have

> > impeccable credentials and we fully support them.

> There is no

> > question that genetics plays the leading role in

> autism and that

> > environmental triggers are key issues for many

> children. These

> areas,

> > as well as biomedical treatments, need huge

> research support.

> >

> > Autism Speaks merged with NAAR because it believes

> in and supports

> > its scientific mission, methods, and advisory

> board. We are proud of

> > the accomplishments of NAAR and grateful to the

> families and

> > volunteers who created it. They are a tremendously

> valued part of

> > Autism Speaks. We welcome input from volunteers

> and

> parents/guardians

> > of children with autism of all ages, including

> adults with autism.

> We

> > apologize to our valued volunteers who were led to

> believe otherwise

> > by our daughter's statement.

> >

> > --

> >

>

--------------------------------------------------------------------

> --------

> > AutismLink -- Information and Support for Autism

> Spectrum Disorder

> > Contribute to AutismLink the United Way --

> #1382643

> >

> > Our new facility, the Autism Center of Pittsburgh,

> offers

> evaluations,

> > occupational therapy, speech therapy, support and

> more! Call us at

> > (412) 364-1886 or 1-866-PUZZLE-2

> >

>

--------------------------------------------------------------------

> -------

> > Visit our website at www.autismlink.com for

> information, help and

> support

> > 24/7.

> >

> > [Non-text portions of this message have been

> removed]

> >

>

________________________________________________________________________________\

____

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for

today's economy) at Games.

http://get.games./proddesc?gamekey=monopolyherenow

June 2, 2007

I think 's parents, as well-meaning as they were

starting out, are in the cult of " elite consensus " as Naom Chompsky

puts it. Their grandson was their inspiration for getting involved

in this cause, yet they defy their grandson's mother's up-close and

personal experience with her own child.

I think she must be an extraordinarily brave and clear minded person

to stick to what she knows the way she does. Is there a gene for

that or can we buy some of it OTC?

> > >

> > > Just curious how everyone feels about this:

> > >

> > > , daughter of Bob & Suzanne ,

> > > recently appeared with Kirby, author of

> > Evidence of Harm, to

> > > discuss biomedical interventions, mercury toxicity

> > and the like.

> > > (http://www.autismmedia.org/media15.html) Whether

> > or not you embrace

> > > biomedical interventions is moot, this statement

> > from Autism Speaks

> > > left us flabbergasted. Apparently their own

> > daughter isn't permitted

> > > to speak on behalf of Autism Speaks. We are very

> > interested in how

> > > you feel about this -- let us know how you feel at

> > > info@!

> > >

> > > Statement from Bob and Suzanne , Co-founders

> > of Autism Speaks

> > >

> > > http://www.autismspeaks.org/wrights_statement.php

> > >

> > > is not a spokesperson for Autism

> > Speaks. Our daughter's

> > > personal views differ from ours and do not

> > represent or reflect the

> > > ongoing mission of Autism Speaks. Her appearance

> > with Kirby

> > was

> > > done without the knowledge or consent of Autism

> > Speaks.

> > >

> > > Autism Speaks is committed to finding the causes

> > of and a cure for

> > > autism. We are proud of our scientifically based

> > research programs,

> > > including those established by NAAR and CAN, and

> > will continue to

> > > pursue them. The members of our scientific

> > advisory teams have

> > > impeccable credentials and we fully support them.

> > There is no

> > > question that genetics plays the leading role in

> > autism and that

> > > environmental triggers are key issues for many

> > children. These

> > areas,

> > > as well as biomedical treatments, need huge

> > research support.

> > >

> > > Autism Speaks merged with NAAR because it believes

> > in and supports

> > > its scientific mission, methods, and advisory

> > board. We are proud of

> > > the accomplishments of NAAR and grateful to the

> > families and

> > > volunteers who created it. They are a tremendously

> > valued part of

> > > Autism Speaks. We welcome input from volunteers

> > and

> > parents/guardians

> > > of children with autism of all ages, including

> > adults with autism.

> > We

> > > apologize to our valued volunteers who were led to

> > believe otherwise

> > > by our daughter's statement.

> > >

> > > --

> > >

> >

> -------------------------------------------------------------------

-

> > --------

> > > AutismLink -- Information and Support for Autism

> > Spectrum Disorder

> > > Contribute to AutismLink the United Way --

> > #1382643

> > >

> > > Our new facility, the Autism Center of Pittsburgh,

> > offers

> > evaluations,

> > > occupational therapy, speech therapy, support and

> > more! Call us at

> > > (412) 364-1886 or 1-866-PUZZLE-2

> > >

> >

> -------------------------------------------------------------------

-

> > -------

> > > Visit our website at www.autismlink.com for

> > information, help and

> > support

> > > 24/7.

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

>

_____________________________________________________________________

_______________

> Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's

updated for today's economy) at Games.

> http://get.games./proddesc?gamekey=monopolyherenow

>

June 3, 2007

Did any one else respond to this and watch. I gave my comments. I'm not

sure where my thoughts are going to and why, but what the heck!

BTW. Story to share. My son with food allergies, we were going to look

into trying Zyrtec. I called Pfizer, waited a couple days, still no call

back to see if any of his allergens were in it. Called again. BTW, just

trying to find a number was like looking for a needle in the hay stack!

Anyway..they said they would have to call the plant where it was

manufactured to see what was in it and that could take up to two weeks.

Imagine and drug company not knowing and having the list of ingredients so

that parents like myself could call in to see if it contained milk, soy,

gluten, etc.. Isn't that amazing and shocking?

BTW, they never did call me back!!!!!!!!

There was always a debate on Tylenol, if is contained soy or not a few years

ago. Some said yes, some no. You call, I'm not sure what the answer ever

was, on the internet it seemed like parents were all being told something

different. For my guy with a severe peanut and soy allergy, we just don't

do Tylenol just because you can not get a straight answer. Maybe this has

changed but this was very controversial 3-4 years ago.

And we are to trust them with vaccines? Something BIG is going on. I wish

for an Brocovich (sp) to crack this case!!!!

Tammy

How do you feel about this?

Just curious how everyone feels about this:

, daughter of Bob & Suzanne ,

recently appeared with Kirby, author of Evidence of Harm, to

discuss biomedical interventions, mercury toxicity and the like.

(http://www.autismme <http://www.autismmedia.org/media15.html>

dia.org/media15.html) Whether or not you embrace

biomedical interventions is moot, this statement from Autism Speaks

left us flabbergasted. Apparently their own daughter isn't permitted

to speak on behalf of Autism Speaks. We are very interested in how

you feel about this -- let us know how you feel at

infoautismlink (DOT) <mailto:info%40autismlink.com> com!

Statement from Bob and Suzanne , Co-founders of Autism Speaks

http://www.autismsp <http://www.autismspeaks.org/wrights_statement.php>

eaks.org/wrights_statement.php

is not a spokesperson for Autism Speaks. Our daughter's

personal views differ from ours and do not represent or reflect the

ongoing mission of Autism Speaks. Her appearance with Kirby was

done without the knowledge or consent of Autism Speaks.

Autism Speaks is committed to finding the causes of and a cure for

autism. We are proud of our scientifically based research programs,

including those established by NAAR and CAN, and will continue to

pursue them. The members of our scientific advisory teams have

impeccable credentials and we fully support them. There is no

question that genetics plays the leading role in autism and that

environmental triggers are key issues for many children. These areas,

as well as biomedical treatments, need huge research support.

Autism Speaks merged with NAAR because it believes in and supports

its scientific mission, methods, and advisory board. We are proud of

the accomplishments of NAAR and grateful to the families and

volunteers who created it. They are a tremendously valued part of

Autism Speaks. We welcome input from volunteers and parents/guardians

of children with autism of all ages, including adults with autism. We

apologize to our valued volunteers who were led to believe otherwise

by our daughter's statement.

--

----------------------------------------------------------

AutismLink -- Information and Support for Autism Spectrum Disorder

Contribute to AutismLink the United Way -- #1382643

Our new facility, the Autism Center of Pittsburgh, offers evaluations,

occupational therapy, speech therapy, support and more! Call us at

(412) 364-1886 or 1-866-PUZZLE-2

----------------------------------------------------------

Visit our website at www.autismlink.com for information, help and support

24/7.

June 3, 2007

I feel bad for ....she seems to be caught in a terrible

middle...and risking so much..God Bless her!!

As to families and Autism....I don't think there is a family on here

whose family isn't suffering in so many ways. Our family suffers

from the stresses of what it takes...the changes...and the financial

risks we have to take to keep on this path...for me I hold a mirror

under my marriage every so often to see if it is still breathing and

go on...as a lot of us do....I honestly can say that autism hasn't

made my marriage into the mess it is....at least

directly...indirectly...definately...hubby is soooooo metal

toxic...and therefore....oh crap...you know the story...most of us

are living it.

Ronni

> Personally, I feel sorry for the family. They have a

> very tough balancing act. The s cannot take

> their personal views and ride with them. They have

> many to answer to, especially big $ sponsors and board

> of directors.

>

> On the other hand, can say whatever she wants.

> She is her own individual. She stated in her

> interview that she was speaking on her own behalf and

> NOT for Autism Speaks. She is a mother expressing her

> own views and personal experiences with her child.

> is trying ot help and is going out on a limb on

> all of our behalfs.

>

> Those who were supposedly offended (referred to in the

> s letter) need to understand that all views need

> to be heard, not just their own. Bravo !

>

> --- noaholiviaian <phaselow@...> wrote:

>

> > Another toxic side-effect of Autism. Family tension

> > and struggling

> > with their own grief. It is sad, but not

> > surprising.

> >

> > I cannot imagine how my family would deal with such

> > a devastating

> > issue in the public eye.

> >

> > Pam

> >

> > >

> > > Just curious how everyone feels about this:

> > >

> > > , daughter of Bob & Suzanne ,

> > > recently appeared with Kirby, author of

> > Evidence of Harm, to

> > > discuss biomedical interventions, mercury toxicity

> > and the like.

> > > (http://www.autismmedia.org/media15.html) Whether

> > or not you embrace

> > > biomedical interventions is moot, this statement

> > from Autism Speaks

> > > left us flabbergasted. Apparently their own

> > daughter isn't permitted

> > > to speak on behalf of Autism Speaks. We are very

> > interested in how

> > > you feel about this -- let us know how you feel at

> > > info@!

> > >

> > > Statement from Bob and Suzanne , Co-founders

> > of Autism Speaks

> > >

> > > http://www.autismspeaks.org/wrights_statement.php

> > >

> > > is not a spokesperson for Autism

> > Speaks. Our daughter's

> > > personal views differ from ours and do not

> > represent or reflect the

> > > ongoing mission of Autism Speaks. Her appearance

> > with Kirby

> > was

> > > done without the knowledge or consent of Autism

> > Speaks.

> > >

> > > Autism Speaks is committed to finding the causes

> > of and a cure for

> > > autism. We are proud of our scientifically based

> > research programs,

> > > including those established by NAAR and CAN, and

> > will continue to

> > > pursue them. The members of our scientific

> > advisory teams have

> > > impeccable credentials and we fully support them.

> > There is no

> > > question that genetics plays the leading role in

> > autism and that

> > > environmental triggers are key issues for many

> > children. These

> > areas,

> > > as well as biomedical treatments, need huge

> > research support.

> > >

> > > Autism Speaks merged with NAAR because it believes

> > in and supports

> > > its scientific mission, methods, and advisory

> > board. We are proud of

> > > the accomplishments of NAAR and grateful to the

> > families and

> > > volunteers who created it. They are a tremendously

> > valued part of

> > > Autism Speaks. We welcome input from volunteers

> > and

> > parents/guardians

> > > of children with autism of all ages, including

> > adults with autism.

> > We

> > > apologize to our valued volunteers who were led to

> > believe otherwise

> > > by our daughter's statement.

> > >

> > > --

> > >

> >

> --------------------------------------------------------------------

> > --------

> > > AutismLink -- Information and Support for Autism

> > Spectrum Disorder

> > > Contribute to AutismLink the United Way --

> > #1382643

> > >

> > > Our new facility, the Autism Center of Pittsburgh,

> > offers

> > evaluations,

> > > occupational therapy, speech therapy, support and

> > more! Call us at

> > > (412) 364-1886 or 1-866-PUZZLE-2

> > >

> >

> --------------------------------------------------------------------

> > -------

> > > Visit our website at www.autismlink.com for

> > information, help and

> > support

> > > 24/7.

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

>

______________________________________________________________________

______________

> Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's

updated for today's economy) at Games.

> http://get.games./proddesc?gamekey=monopolyherenow

>

June 3, 2007

>

The new movie " Sicko " is supposed to be about the health

care industry and drug companies in particular. I hope he touches on

the vaccine thing, but who knows. Its really scary that they dont

know the major allergens in their product.

Elaine

> Did any one else respond to this and watch. I gave my comments.

I'm not

> sure where my thoughts are going to and why, but what the heck!

>

> BTW. Story to share. My son with food allergies, we were going to look

> into trying Zyrtec. I called Pfizer, waited a couple days, still no

call

> back to see if any of his allergens were in it. Called again. BTW,

just

> trying to find a number was like looking for a needle in the hay stack!

> Anyway..they said they would have to call the plant where it was

> manufactured to see what was in it and that could take up to two weeks.

> Imagine and drug company not knowing and having the list of

ingredients so

> that parents like myself could call in to see if it contained milk, soy,

> gluten, etc.. Isn't that amazing and shocking?

>

> BTW, they never did call me back!!!!!!!!

>

> There was always a debate on Tylenol, if is contained soy or not a

few years

> ago. Some said yes, some no. You call, I'm not sure what the

answer ever

> was, on the internet it seemed like parents were all being told

something

> different. For my guy with a severe peanut and soy allergy, we just

don't

> do Tylenol just because you can not get a straight answer. Maybe

this has

> changed but this was very controversial 3-4 years ago.

>

> And we are to trust them with vaccines? Something BIG is going on.

I wish

> for an Brocovich (sp) to crack this case!!!!

>

> Tammy

>

> How do you feel about this?

>

> Just curious how everyone feels about this:

>

> , daughter of Bob & Suzanne ,

> recently appeared with Kirby, author of Evidence of Harm, to

> discuss biomedical interventions, mercury toxicity and the like.

> (http://www.autismme <http://www.autismmedia.org/media15.html>

> dia.org/media15.html) Whether or not you embrace

> biomedical interventions is moot, this statement from Autism Speaks

> left us flabbergasted. Apparently their own daughter isn't permitted

> to speak on behalf of Autism Speaks. We are very interested in how

> you feel about this -- let us know how you feel at

> infoautismlink (DOT) <mailto:info%40autismlink.com> com!

>

> Statement from Bob and Suzanne , Co-founders of Autism Speaks

>

> http://www.autismsp <http://www.autismspeaks.org/wrights_statement.php>

> eaks.org/wrights_statement.php

>

> is not a spokesperson for Autism Speaks. Our daughter's

> personal views differ from ours and do not represent or reflect the

> ongoing mission of Autism Speaks. Her appearance with Kirby was

> done without the knowledge or consent of Autism Speaks.

>

> Autism Speaks is committed to finding the causes of and a cure for

> autism. We are proud of our scientifically based research programs,

> including those established by NAAR and CAN, and will continue to

> pursue them. The members of our scientific advisory teams have

> impeccable credentials and we fully support them. There is no

> question that genetics plays the leading role in autism and that

> environmental triggers are key issues for many children. These areas,

> as well as biomedical treatments, need huge research support.

>

> Autism Speaks merged with NAAR because it believes in and supports

> its scientific mission, methods, and advisory board. We are proud of

> the accomplishments of NAAR and grateful to the families and

> volunteers who created it. They are a tremendously valued part of

> Autism Speaks. We welcome input from volunteers and parents/guardians

> of children with autism of all ages, including adults with autism. We

> apologize to our valued volunteers who were led to believe otherwise

> by our daughter's statement.

>

> --

> ----------------------------------------------------------

> AutismLink -- Information and Support for Autism Spectrum Disorder

> Contribute to AutismLink the United Way -- #1382643

>

> Our new facility, the Autism Center of Pittsburgh, offers evaluations,

> occupational therapy, speech therapy, support and more! Call us at

> (412) 364-1886 or 1-866-PUZZLE-2

> ----------------------------------------------------------

> Visit our website at www.autismlink.com for information, help and

support

> 24/7.

>

June 7, 2007

Personally I find Autism Speaks a frightening organization. They are not committed to treatment in any way. Research is where the profit making is, treatment isn't. While I don't believe all research is bad and I do believe that research is needed, I also know treating the kids that are diagnosised w/ Autism just as important. Autism Speaks doesn't agree.

----- Original Message -----

From: AutismLink

@... (E-mail)

Sent: Saturday, June 02, 2007 1:47 PM

Subject: [ ] How do you feel about this?

Just curious how everyone feels about this: , daughter of Bob & Suzanne ,recently appeared with Kirby, author of Evidence of Harm, todiscuss biomedical interventions, mercury toxicity and the like. (http://www.autismmedia.org/media15.html) Whether or not you embracebiomedical interventions is moot, this statement from Autism Speaks left us flabbergasted. Apparently their own daughter isn't permittedto speak on behalf of Autism Speaks. We are very interested in howyou feel about this -- let us know how you feel atinfoautismlink!Statement from Bob and Suzanne , Co-founders of Autism Speakshttp://www.autismspeaks.org/wrights_statement.php is not a spokesperson for Autism Speaks. Our daughter'spersonal views differ from ours and do not represent or reflect theongoing mission of Autism Speaks. Her appearance with Kirby was done without the knowledge or consent of Autism Speaks.Autism Speaks is committed to finding the causes of and a cure forautism. We are proud of our scientifically based research programs,including those established by NAAR and CAN, and will continue to pursue them. The members of our scientific advisory teams haveimpeccable credentials and we fully support them. There is noquestion that genetics plays the leading role in autism and thatenvironmental triggers are key issues for many children. These areas, as well as biomedical treatments, need huge research support.Autism Speaks merged with NAAR because it believes in and supportsits scientific mission, methods, and advisory board. We are proud ofthe accomplishments of NAAR and grateful to the families and volunteers who created it. They are a tremendously valued part ofAutism Speaks. We welcome input from volunteers and parents/guardiansof children with autism of all ages, including adults with autism. Weapologize to our valued volunteers who were led to believe otherwise by our daughter's statement.-- ----------------------------------------------------------------------------AutismLink -- Information and Support for Autism Spectrum DisorderContribute to AutismLink the United Way -- #1382643 Our new facility, the Autism Center of Pittsburgh, offers evaluations,occupational therapy, speech therapy, support and more! Call us at(412) 364-1886 or 1-866-PUZZLE-2--------------------------------------------------------------------------- Visit our website at www.autismlink.com for information, help and support 24/7.

June 7, 2007

It is hard to know what to say without seeingÂ the interview but off the cuff,Â I am not surprised.Â The foundation is no longer a small family foundation.Â It is aÂ large non profit corporation with a board of directors and very large donors that they need to answer to.

Is the interview anywhere online?Â The link below will not open for me.

Debbie May

Life Center for Autism Foundation

www.LifeCenterforAutism.org

-----Original Message-----

From: AutismLink

@... (E-mail)

Sent: Sat, 2 Jun 2007 1:47 pm

Subject: [ ] How do you feel about this?

Just curious how everyone feels about this:

, daughter of Bob Suzanne ,

recently appeared with Kirby, author of Evidence of Harm, to

discuss biomedical interventions, mercury toxicity and the like.

(http://www.autismmedia.org/media15.html) Whether or not you embrace

biomedical interventions is moot, this statement from Autism Speaks

left us flabbergasted. Apparently their own daughter isn't permitted

to speak on behalf of Autism Speaks. We are very interested in how

you feel about this -- let us know how you feel at

infoautismlink!

Statement from Bob and Suzanne , Co-founders of Autism Speaks

http://www.autismspeaks.org/wrights_statement.php