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Re: Lifespan

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There was an article in our newspaper today from the Associated Press.

It covers a bit more than the Reuters article and is in much better taste.

No suffering. They talk about people with Down Syndrome. does not

suffer with it either. We don't even think about it that much. Jessie

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Well, the article has been picked up by others than Reuters. It's clear

that Reuters needs some sensitivity training. In spite of it all, my

child (and probably yours) don't suffer .. they just have down syndrome.

As to the elevated risk of leukemia, that is a double edge sword. Our

kids/adults are more likely to have leukemia. The other edge is that

they more often end up in long term remission. Since the study focused

on 'death certificates', it isn't clear that it reflects the occurrance

of leukemia.

At the moment I'm far too close to look at probabilities. In my mind,

you've got leukemia or you haven't (yes there are some pre-leukemia

states that are better than real leukemia). Today we were in for a

platelette transfusion. It was supposed to take an hour, but it took

four.

Still, we are hoping that after a few more round of chemo, Jan will end

up in remission. Her statistics aren't as clear as those for a 3-6 year

old with AML (her disease) where the outlook is very positive.

And when she achieves remission, we haven't a clue what it means. Is it

3 months or 30 years? Still, there is the last ditch of bone marrow

transplant which is very risky and offers the possibility of a cure.

Rick ........... dad to Jan

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  • 5 years later...

Lifespan closed.

--- In , " starfish1995 " <starfish1995@...>

wrote:

>

> Is anyone on the list using Lifespan Learning Communities as their

> child's primary school under the asutim scholarship program?

>

> Thanks,

>

> Beth

>

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Where did you hear this? My son went to camp there over the summer

and we were hoping he could attend again this summer.

Thanks.

> >

> > Is anyone on the list using Lifespan Learning Communities as

their

> > child's primary school under the asutim scholarship program?

> >

> > Thanks,

> >

> > Beth

> >

>

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- My two little ones went to camp there this summer too - Ian and Yoli! Billie called me up and left a message. I've been meaning to call or email her... but I've been very busy lately! A bad excuse!! Chris

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