Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Always reading ingredients and figuring what we can use marguerite. You'll like that fresh earthy smell the ESP brings. It has a refreshing hydrated and smooth fill on the skin. Man I sound like a woman talking about how good it smells and feels. Hahaha if only you people knew the life I lead as a motorhead knuckle dragger, building old hot rods! Haha and now im a skin product contesoure On Thu, 25 Sep 2008 8:23 pm, Marguerite wrote: > I like that a lot, Adam, thanks so much, always on the search, huh? > Great web scouting. > > so, now got the ESP on my shopping list as well and try to use up all > the g'zillion and very costly bottles and jars already accumulated , I > might just toss a few things, want to travel lightly and stay clutter > free. > > Dehumidifier full blast 24/7, not doing well with the epsom/clorox > spray, it reeks up the hallway (neighbors way too close for comfort in > this high rise ) and the stuff makes me sick. > > Now, been debating to share this with all, but yesterday I got the > ultimate humbling instance, this cool dude rode up with me in the > elevator and mumbled more to himself " smells like a toilet in > here'....he was not refering to certain toilet smells per se, but to > the heavily sprayed tote with clorox, previously laced with mothballs, > tto etc... > > That did it for me, this woman used to go to high end hair salons, > etc....always smelling good in the past , dressing nicely, now > this.....no more leper /pauper existence for me, as soon as I move > again this weekend, going more minimalist each time, I WILL GO ALL > NATURAL in my combat mode, it will be a gentler war this time, I > believe it works, already tested it, can hardly wait for my New Hope > kit to arrive to smell good and have stuff oozing out of me. I also > take my claritin again, after re-reading the report about the 18/20 > collembola victims in the study in Oklahoma. Along with my MSM caps. > > BTW. when you guys describe your 'exiting of those things'. which makes > me wanna barf sometimes just reading it and wondering if I will > experience the same fate, though ultra ready for whatever as long it is > OUT OF ME> > > Thanks so much to all.... > > That Trisha is allright, studied her whole website.. > > M > > >>> Hmm. sounds much much better. >>> I found several candidates, which do you use? >>> http://www.google. com/search? q=tea+tree+ toothpaste >>> thx so much, >>> katiejill >>> >>> >>>> >> > > > >>>> >> > > > Holly, there are a lot of people finding success with the >>>> >> > > dehumidifiers. It might be something to look into. Also you >>> ask >>>> >> > about >>>> >> > > the dawn dish soap. We used the dawn to wash our bodies with >>>> >> > because >>>> >> > > it removes all the oil from the skin so that the salt or >>> Clorox >>>> >> or >>>> >> > > olive oil can get right on the darn bugs, sores, etc. It >>> would >>>> >> get >>>> >> > > our skin very clean and ready to put the healing solutions >>> on. >>>> >> > How's >>>> >> > > that baby doing? Rita >>>> >> > > > >>>> >> > > > >>>> >> > > > So confused >>>> >> > > > >>>> >> > > > >>>> >> > > > My dad sent me $500 last week to buy supplies to fight >>>> > this. >>>> >> I >>>> >> > > spent >>>> >> > > > $160 on ivermectin and permetherin. I spent the rest on >>>> >> things >>>> >> > > like >>>> >> > > > mattress covers, pillow covers, bleach, ammonia, >>> listerine, >>>> >> > > windex, >>>> >> > > > borax, trash bags, shampoos...it all adds up so fast. Now >>> i >>>> >> am >>>> >> > > reading >>>> >> > > > about dehumidifiers, and am wondering if i should have >>>> >> invested >>>> >> > > in one >>>> >> > > > of those instead. I have a newborn, and would rather not >>> be >>>> >> > > spraying >>>> >> > > > chemicals. Are dehumidifiers really working? Along with >>>> > what >>>> >> > else? >>>> >> > > > >>>> >> > > >>>> >> > >>>> >> >>>> > >>>> > >>>> Adam >>>> Rumblers C.C. >>>> www.myspace. com/irishbandido >>>> >>> >>> >> Adam >> Rumblers C.C. >> www.myspace. com/irishbandido > > Adam Rumblers C.C. www.myspace.com/irishbandido Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 omg bless your heart!!! that beats my worst day. > >> >> >> > > > > >> >> >> > > > Holly, there are a lot of people finding success with > > the > >> >> >> > > dehumidifiers. It might be something to look into. Also > > you > >> > ask > >> >> >> > about > >> >> >> > > the dawn dish soap. We used the dawn to wash our bodies > > with > >> >> >> > because > >> >> >> > > it removes all the oil from the skin so that the salt or > >> > Clorox > >> >> >> or > >> >> >> > > olive oil can get right on the darn bugs, sores, etc. It > >> > would > >> >> >> get > >> >> >> > > our skin very clean and ready to put the healing > > solutions > >> > on. > >> >> >> > How's > >> >> >> > > that baby doing? Rita > >> >> >> > > > > >> >> >> > > > > >> >> >> > > > So confused > >> >> >> > > > > >> >> >> > > > > >> >> >> > > > My dad sent me $500 last week to buy supplies to fight > >> >> > this. > >> >> >> I > >> >> >> > > spent > >> >> >> > > > $160 on ivermectin and permetherin. I spent the rest on > >> >> >> things > >> >> >> > > like > >> >> >> > > > mattress covers, pillow covers, bleach, ammonia, > >> > listerine, > >> >> >> > > windex, > >> >> >> > > > borax, trash bags, shampoos...it all adds up so fast. > > Now > >> > i > >> >> >> am > >> >> >> > > reading > >> >> >> > > > about dehumidifiers, and am wondering if i should have > >> >> >> invested > >> >> >> > > in one > >> >> >> > > > of those instead. I have a newborn, and would rather > > not > >> > be > >> >> >> > > spraying > >> >> >> > > > chemicals. Are dehumidifiers really working? Along with > >> >> > what > >> >> >> > else? > >> >> >> > > > > >> >> >> > > > >> >> >> > > >> >> >> > >> >> > > >> >> > > >> >> Adam > >> >> Rumblers C.C. > >> >> www.myspace.com/irishbandido > >> >> > >> > > >> > > >> Adam > >> Rumblers C.C. > >> www.myspace.com/irishbandido > >> > > > > > Adam > Rumblers C.C. > www.myspace.com/irishbandido > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Adam, what all have you tried to get them out of your resp system that hasn't worked? Can you remember? If you are like me, there is such a long list that after a while I can't remember what I did when... The reason I am asking is that I remember some folks sharing about getting them out of sinuses with decongestants (which shrinks blood vessels so isn't good for high blood pressure, but that dries the sinuses), but no one ever mentioned how to get them out of the lungs. Here's the bulletin board. I think it is still searchable. http://web.archive.org/web/20050216085933/www.safe2use.com/scabiesboar d/wwwboard.html katiejill > >> >> >> > > > > >> >> >> > > > Holly, there are a lot of people finding success with > > the > >> >> >> > > dehumidifiers. It might be something to look into. Also > > you > >> > ask > >> >> >> > about > >> >> >> > > the dawn dish soap. We used the dawn to wash our bodies > > with > >> >> >> > because > >> >> >> > > it removes all the oil from the skin so that the salt or > >> > Clorox > >> >> >> or > >> >> >> > > olive oil can get right on the darn bugs, sores, etc. It > >> > would > >> >> >> get > >> >> >> > > our skin very clean and ready to put the healing > > solutions > >> > on. > >> >> >> > How's > >> >> >> > > that baby doing? Rita > >> >> >> > > > > >> >> >> > > > > >> >> >> > > > So confused > >> >> >> > > > > >> >> >> > > > > >> >> >> > > > My dad sent me $500 last week to buy supplies to fight > >> >> > this. > >> >> >> I > >> >> >> > > spent > >> >> >> > > > $160 on ivermectin and permetherin. I spent the rest on > >> >> >> things > >> >> >> > > like > >> >> >> > > > mattress covers, pillow covers, bleach, ammonia, > >> > listerine, > >> >> >> > > windex, > >> >> >> > > > borax, trash bags, shampoos...it all adds up so fast. > > Now > >> > i > >> >> >> am > >> >> >> > > reading > >> >> >> > > > about dehumidifiers, and am wondering if i should have > >> >> >> invested > >> >> >> > > in one > >> >> >> > > > of those instead. I have a newborn, and would rather > > not > >> > be > >> >> >> > > spraying > >> >> >> > > > chemicals. Are dehumidifiers really working? Along with > >> >> > what > >> >> >> > else? > >> >> >> > > > > >> >> >> > > > >> >> >> > > >> >> >> > >> >> > > >> >> > > >> >> Adam > >> >> Rumblers C.C. > >> >> www.myspace.com/irishbandido > >> >> > >> > > >> > > >> Adam > >> Rumblers C.C. > >> www.myspace.com/irishbandido > >> > > > > > Adam > Rumblers C.C. > www.myspace.com/irishbandido > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 As a side note, whenever I try the corox/salt routine of getting my environment under control, I get mighty sick at first, then notice lots of coughing and gagging and then a few days later I get stuff coming from lungs that is 'not of this earth' LOL.....but I feel better and I noticed the things back off me. So, toxic bleach bad in the long run, however, the inhaling part must do something to clear 'them out'......Plus, I started to taking my Claritin D again, so much better now, stuff just comes out of my lungs, sinuses... Besides, Adam, you are all into the mentol diffuser, that ought to help, no?...you may have to concentrate the effort into more localized treatment, such as covering your head with a towel and inhaling deeply into a menthol pot of sorts,,,,,,,(my grandmother's recipe way pre mite days..)...exercising, running helps to bring up stuff from the lungs, spit it out all the time, do not swallow...... If you do not care for my advise, I will, as I miss my running days dearly....always cleared any lung/sinus problems....or others, cleared my head, ...miss those endonorphines..... M From: livingwithcritters <livingwithcritters@...>Subject: Re: So confusedbird mites Date: Thursday, September 25, 2008, 9:08 PM Adam, what all have you tried to get them out of your resp system that hasn't worked? Can you remember? If you are like me, there is such a long list that after a while I can't remember what I did when...The reason I am asking is that I remember some folks sharing about getting them out of sinuses with decongestants (which shrinks blood vessels so isn't good for high blood pressure, but that dries the sinuses), but no one ever mentioned how to get them out of the lungs. Here's the bulletin board. I think it is still searchable.http://web.archive. org/web/20050216 085933/www. safe2use. com/scabiesboard/wwwboard.htmlkatiejill> >> >> >> > > >> >> >> >> > > > Holly, there are a lot of people finding success with> > the> >> >> >> > > dehumidifiers. It might be something to look into. Also> > you> >> > ask> >> >> >> > about> >> >> >> > > the dawn dish soap. We used the dawn to wash our bodies> > with> >> >> >> > because> >> >> >> > > it removes all the oil from the skin so that the salt or> >> > Clorox> >> >> >> or> >> >> >> > > olive oil can get right on the darn bugs, sores, etc. It> >> > would> >> >> >> get> >> >> >> > > our skin very clean and ready to put the healing> > solutions> >> > on.> >> >> >> > How's> >> >> >> > > that baby doing? Rita> >> >> >> > > >> >> >> >> > > >> >> >> >> > > > So confused> >> >> >> > > >> >> >> >> > > >> >> >> >> > > > My dad sent me $500 last week to buy supplies to fight> >> >> > this.> >> >> >> I> >> >> >> > > spent> >> >> >> > > > $160 on ivermectin and permetherin. I spent the rest on> >> >> >> things> >> >> >> > > like> >> >> >> > > > mattress covers, pillow covers, bleach, ammonia,> >> > listerine,> >> >> >> > > windex,> >> >> >> > > > borax, trash bags, shampoos...it all adds up so fast.> > Now> >> > i> >> >> >> am> >> >> >> > > reading> >> >> >> > > > about dehumidifiers, and am wondering if i should have> >> >> >> invested> >> >> >> > > in one> >> >> >> > > > of those instead. I have a newborn, and would rather> > not> >> > be> >> >> >> > > spraying> >> >> >> > > > chemicals. Are dehumidifiers really working? Along with> >> >> > what> >> >> >> > else?> >> >> >> > > >> >> >> >> > >> >> >> >> >> >> >> >>> >> >> >> >> >> >> >> >> Adam > >> >> Rumblers C.C.> >> >> www.myspace. com/irishbandido> >> >>> >> >> >> >> >> Adam > >> Rumblers C.C.> >> www.myspace. com/irishbandido> >>> >> > > Adam > Rumblers C.C.> www.myspace. com/irishbandido> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Internally im taking opaline, stromectal, pomegranate caps, fennel seed caps, grapefruit seed caps, herbal guard (parasite cleanse), acidophilus, mago7 (colon clense) and now acv caps and evco caps cause of fritossssss! On Thu, 25 Sep 2008 9:08 pm, livingwithcritters wrote: > Adam, what all have you tried to get them out of your resp system > that hasn't worked? Can you remember? If you are like me, there is > such a long list that after a while I can't remember what I did > when... > > The reason I am asking is that I remember some folks sharing about > getting them out of sinuses with decongestants (which shrinks blood > vessels so isn't good for high blood pressure, but that dries the > sinuses), but no one ever mentioned how to get them out of the lungs. > > Here's the bulletin board. I think it is still searchable. > > http://web.archive.org/web/20050216085933/www.safe2use.com/scabiesboar > d/wwwboard.html > > katiejill > > >> >> >> >> > > > >> >> >> >> > > > Holly, there are a lot of people finding success > with >> > the >> >> >> >> > > dehumidifiers. It might be something to look into. > Also >> > you >> >> > ask >> >> >> >> > about >> >> >> >> > > the dawn dish soap. We used the dawn to wash our > bodies >> > with >> >> >> >> > because >> >> >> >> > > it removes all the oil from the skin so that the salt > or >> >> > Clorox >> >> >> >> or >> >> >> >> > > olive oil can get right on the darn bugs, sores, etc. > It >> >> > would >> >> >> >> get >> >> >> >> > > our skin very clean and ready to put the healing >> > solutions >> >> > on. >> >> >> >> > How's >> >> >> >> > > that baby doing? Rita >> >> >> >> > > > >> >> >> >> > > > >> >> >> >> > > > So confused >> >> >> >> > > > >> >> >> >> > > > >> >> >> >> > > > My dad sent me $500 last week to buy supplies to > fight >> >> >> > this. >> >> >> >> I >> >> >> >> > > spent >> >> >> >> > > > $160 on ivermectin and permetherin. I spent the > rest on >> >> >> >> things >> >> >> >> > > like >> >> >> >> > > > mattress covers, pillow covers, bleach, ammonia, >> >> > listerine, >> >> >> >> > > windex, >> >> >> >> > > > borax, trash bags, shampoos...it all adds up so > fast. >> > Now >> >> > i >> >> >> >> am >> >> >> >> > > reading >> >> >> >> > > > about dehumidifiers, and am wondering if i should > have >> >> >> >> invested >> >> >> >> > > in one >> >> >> >> > > > of those instead. I have a newborn, and would rather >> > not >> >> > be >> >> >> >> > > spraying >> >> >> >> > > > chemicals. Are dehumidifiers really working? Along > with >> >> >> > what >> >> >> >> > else? >> >> >> >> > > > >> >> >> >> > > >> >> >> >> > >> >> >> >> >> >> >> > >> >> >> > >> >> >> Adam >> >> >> Rumblers C.C. >> >> >> www.myspace.com/irishbandido >> >> >> >> >> > >> >> > >> >> Adam >> >> Rumblers C.C. >> >> www.myspace.com/irishbandido >> >> >> > >> > >> Adam >> Rumblers C.C. >> www.myspace.com/irishbandido >> > > Adam Rumblers C.C. www.myspace.com/irishbandido Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Sorry to hear the story, Marguerite. If you have to throw out the Clorox, then you do. But the Epsom salt water is still pretty effective by itself -- you can still keep using that! No odor that I know of, and only a little white powder residue... > >> >> > > > > >> >> > > > Holly, there are a lot of people finding success with the > >> >> > > dehumidifiers. It might be something to look into. Also you > > ask > >> >> > about > >> >> > > the dawn dish soap. We used the dawn to wash our bodies with > >> >> > because > >> >> > > it removes all the oil from the skin so that the salt or > > Clorox > >> >> or > >> >> > > olive oil can get right on the darn bugs, sores, etc. It > > would > >> >> get > >> >> > > our skin very clean and ready to put the healing solutions > > on. > >> >> > How's > >> >> > > that baby doing? Rita > >> >> > > > > >> >> > > > > >> >> > > > So confused > >> >> > > > > >> >> > > > > >> >> > > > My dad sent me $500 last week to buy supplies to fight > >> > this. > >> >> I > >> >> > > spent > >> >> > > > $160 on ivermectin and permetherin. I spent the rest on > >> >> things > >> >> > > like > >> >> > > > mattress covers, pillow covers, bleach, ammonia, > > listerine, > >> >> > > windex, > >> >> > > > borax, trash bags, shampoos...it all adds up so fast. Now > > i > >> >> am > >> >> > > reading > >> >> > > > about dehumidifiers, and am wondering if i should have > >> >> invested > >> >> > > in one > >> >> > > > of those instead. I have a newborn, and would rather not > > be > >> >> > > spraying > >> >> > > > chemicals. Are dehumidifiers really working? Along with > >> > what > >> >> > else? > >> >> > > > > >> >> > > > >> >> > > >> >> > >> > > >> > > >> Adam > >> Rumblers C.C. > >> www.myspace. com/irishbandido > >> > > > > > Adam > Rumblers C.C. > www.myspace. com/irishbandido > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 .... Using your commonsense is the best thing to do. Eat only unprocessed foods which our distant ancestors ate and which our bodies are designed to deal with. Avoid all foods which have been altered and processed by man in any way. That is all you need to remember. So confused Hi everyone, I appreciate all of the help you are all giving. I'm getting so confused though. There are so many diets out there, I mean it feels like one contradicts another. Gluten free, dairy free, no carbs, no fruit, no sugar, no beans, no fats, no microwave?.... no everything. I am only 4'11 " and 84 lbs. Trying to gain weight. I'm afraid to eat, well, everything. Right now I am on a low sugar, vegetarian diet. The vegetarian thing is just a personal thing, the low sugar is due to the fact that I am sure my symptoms worsen with sugar, but I try not to cut it out 100%, more like 85%, as I don't know how good that is. I am trying to treat this as naturally as possible without having to take Paxil, or whatever my doctor wants to prescribe the next day. I ordered Deprex, natural pills, will try that. Maybe supplement with extra 5HTP which that has. Plan to try Yoga, a little walking, and swimming in a heated pool gradually. I have started to try the flaxseed oil for my dry eyes, and will go to a Urologist for my severe bladder issues. Will continue to stay on the low sugar diet. I do have the Xanax in case of fibro flare up anxiety attacks. Does anyone have any other natural suggestions or can clear up this whole diet thing? I am trying this all out first for a month or so, give it all I have, if I continue like this I will try to the prescription meds. My physical pain is terrible, but the anxiety, agitation and a little depression is even more terrible. I know it's not me. I can feel something taking over my body kind of... it's scary. Doctors just think your nuts and your causing your symptoms. When I am 100% positive that my illness is causing my anxiety and slight depression, which makes the illness worse, a vicious cycle I feel trapped in. Maybe I need to eat meat again. I don't know. I'm also confused with the heck the difference is between this and candida. I swear this is all from my mercury fillings I've had plenty of since a young age. No doctor would want to hear that though. Well thank you all for letting me vent. lol. I am 20 years old, work with senior citizens, and have been on many of the meds theyre on and am going to need to borrow their walkers soon. If anyone has any suggestions I'd appreciate it. Thanks guys! - **************Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 Dr. Myhill says that most of her patients have chronic hypoglycemia so she recommends the Paleo diet. It's just organic meats, veggies and fruits with a few exceptions like no processed meats, low or no root veggies like potatoes and limited fruit. No sugar, grains or beans ... Google it though, I could've forgotten something. ; ) This diet is also low fat which I don't agree with unless you're trying to lose weight. I use mostly healthy fats but eat some saturated in my meats. Oh and I'm fine with organic bacon but no other processed meats. I became a celiac in 2005 and was forced to go on the elimination diet. I made a great deal of progress on this but it took 6 months to a year to start seeing the big improvements. Gluten was my biggest syptom trigger responsible for ataxia, myoclonus, facial twitches, visual problems, IBS, etc ... But I have other food intolerances due to leaky gut. I'd recommend that you get tested. Although these tests aren't perfect, it will give you some of the basics. Between the tests and how foods make you feel (elimination diet) you'll have a better grip on what your body can or can't handle. I'm allergic to egg whites and had no idea except that the tests show antibodies. And, I'm not allergic to dairy, but I get dark circles around my eyes if I have too much. I'm currently on the Paleo/low carb/low oxalate since I'm still dealing with CFS/ME/FM, chronic hypoglycemia, kidney stones, vulvodynia, orthostatic intolerance and PEM (post exertional malaise). For the most part, I feel 100% healthy as long as I eat this way and lay down rest every few hours. Unless I'm down with PEM from overdoing it or I've eaten some gluten, then it's more like 60%. I'm still up from 0 - 15 % on my good days though ... I addressed this DD a symptom at a time so I'm looking at what to do next for the OI/PEM. But, if I'd known about Dr. Myhill sooner, I'd have gone on the Paleo diet immediately. I've been hypoglycemic for over 30 years ... HTH ... Marcia PS. If you decide to do this be careful not to eat too many foods that are high in oxalates. That's what I did that led to me getting my first kidney stone in 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 Hi It can be very confusing because every person requires a treatment that is specific to them. What works for one person may not work for someone else. Also, there are many views on the cause of the disease and what are effective symptomatic treatments. A TREATMENT PLAN DESIGNED SPECIFICALLY FOR YOU Go to the website: www.endfatigue.com . Select Treatment Options then Online Programs. Here you will find computer programs that will analyse your symptoms and design a treatment protocol specifically for you based on answers you have given to the program's questions. There are two programs. The short program is free. The full program is $99. You will find the output to be a very helpful document. USEFUL READING A book worth purchasing is: From Fatigued to Fantastic. The book has detailed information that I have found to be some of the best I have read. The doctor who wrote it has treated thousands of CFS/FM patients and has also conducted double blind studies. You can find the book at: https://secure.endfatigue.com/store/products/publications/ DIET As far as diet goes, generally a gluten-free, dairy-free, high protein diet seems to be the best. Being a vegetarian is not a problem. The easiest way to increase protein intake is through protein drinks which can be made from whey or soy based protein powders. These protein supplements are available at a health food shop. You can also make a protein drink from Torula Yeast which is high in protein and has many other ecellent nutrients, such as Vitamin B. If you exclude carbs, fruit and so on, well, as you say, there is almost nothing left to eat. NATURAL TREATMENTS Your disease can rarely be effectively treated by just natural treatments. Natural substances such as Valerian, used for insomnia, tax the liver just like a sleeping tablet does. So natural does not necessarily mean that a substance is kind to the body. ANTI-DEPRESSANT It sounds to me that you need to be on anti-depressants now. They take 2 to 3 weeks to kick in, so the sooner the better. MERCURY FILLINGS If you haven't done so already, have your mercury fillings removed by a dentist who understands how to do this procedure correctly. KEEPING TRACK OF IT ALL To find out what works and what doesn't, requires methodically trialling remedies. To complicate it further, if someone recommends a supplement, say Magnesium, you will need to find the brand that works for you, the dose that works for you and the time of day that it is best taken. Hence, to try to keep on top of it all, I recommend you keep a log/diary and daily record such information as: * What drugs/supplements you are taking. The dosage and the manufacturer. * How well these drugs/supplements are performing for you. * When you go to bed and when you get up. * What your general energy levels are. * What symptoms you are experiencing eg depression, physical pain * What you are eating THE DOCTOR What makes the process easier is to have a doctor who has had a lot of experience with CFS/FM and tends to know all the fine details. Finding that doctor is a very important part of the solution. When you have a doctor's appointment, make sure you give them a written, detailed account of how you have been traveling, the effect of drugs/supplements and what areas you want him/her to specifically look at. Also, note what script renewals you need. Do not rely on your memory. Lester > > Hi everyone, > > I appreciate all of the help you are all giving. I'm getting so confused > though. There are so many diets out there, I mean it feels like one contradicts > another. Gluten free, dairy free, no carbs, no fruit, no sugar, no beans, no > fats, no microwave?.... no everything. I am only 4'11 " and 84 lbs. Trying to > gain weight. I'm afraid to eat, well, everything. Right now I am on a low > sugar, vegetarian diet. The vegetarian thing is just a personal thing, the low > sugar is due to the fact that I am sure my symptoms worsen with sugar, but I > try not to cut it out 100%, more like 85%, as I don't know how good that is. > > I am trying to treat this as naturally as possible without having to take > Paxil, or whatever my doctor wants to prescribe the next day. I ordered Deprex, > natural pills, will try that. Maybe supplement with extra 5HTP which that > has. Plan to try Yoga, a little walking, and swimming in a heated pool > gradually. I have started to try the flaxseed oil for my dry eyes, and will go to a > Urologist for my severe bladder issues. Will continue to stay on the low sugar > diet. I do have the Xanax in case of fibro flare up anxiety attacks. > > Does anyone have any other natural suggestions or can clear up this whole > diet thing? I am trying this all out first for a month or so, give it all I > have, if I continue like this I will try to the prescription meds. My physical > pain is terrible, but the anxiety, agitation and a little depression is even > more terrible. I know it's not me. I can feel something taking over my body > kind of... it's scary. Doctors just think your nuts and your causing your > symptoms. When I am 100% positive that my illness is causing my anxiety and slight > depression, which makes the illness worse, a vicious cycle I feel trapped in. > > Maybe I need to eat meat again. I don't know. I'm also confused with the > heck the difference is between this and candida. I swear this is all from my > mercury fillings I've had plenty of since a young age. No doctor would want to > hear that though. > > Well thank you all for letting me vent. lol. I am 20 years old, work with > senior citizens, and have been on many of the meds theyre on and am going to > need to borrow their walkers soon. If anyone has any suggestions I'd appreciate > it. Thanks guys! > > - > **************Worried about job security? Check out the 5 safest jobs in a > recession. > (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare000\ 00002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 Hey . I know how confusing the diet stuff is! I've had CFS for 8 years (this is the 9th) and i still haven't got a perfect diet worked out! As we go through ups & downs with it, and so much info comes our way, it is hard to know what to do sometimes. With diet it's very individual most find. Yes many say low carb is the only way, even no carb. That works very well to eliminate bugs in the gut, but for some of us, like me (and you!) we're too underweight and cutting carbs makes us feel worse. Ive tried very low carb a few times and i was VERY weak and shaky on it. I need at least some sweet potato with my meat and veg etc. Something that most people should try is an elimination diet - it gets rid of most foods that cause intolerance/allergy symptoms, meaning its very very low reactive. Salycilates, amines and glutamates are a common source for problems in people with CFS who also have alot of allergy/intolerance problems as I do. I've currently been cutting down these foods and will be on the lowest level of this diet in the next week. Will stay there for at least 2 weeks and possibly longer if i see improvement. Failsafe diet is about the same as elimination. Some people doing 'failsafe' when they get bad enough with symptoms go right as basic as plain fish and rice for a week or 10 days! Apparently makes them feel alot better, then they start reintroducing other low reactive foods again. I havent tried straight fish & rice but may do so if not enough results with other. As for 'no beans, no carbs, this that & the other' - as I said and many discover, one diet doesn't fit all. I actually feel better on a diet of brown rice, beans and plain veg than i do on say low carb. Perhaps try elimination as its easy to follow, and see if it helps, then reintroduce things back in. > > Hi everyone, > > I appreciate all of the help you are all giving. I'm getting so confused > though. There are so many diets out there, I mean it feels like one contradicts > another. Gluten free, dairy free, no carbs, no fruit, no sugar, no beans, no > fats, no microwave?.... no everything. I am only 4'11 " and 84 lbs. Trying to > gain weight. I'm afraid to eat, well, everything. Right now I am on a low > sugar, vegetarian diet. The vegetarian thing is just a personal thing, the low > sugar is due to the fact that I am sure my symptoms worsen with sugar, but I > try not to cut it out 100%, more like 85%, as I don't know how good that is. > > I am trying to treat this as naturally as possible without having to take > Paxil, or whatever my doctor wants to prescribe the next day. I ordered Deprex, > natural pills, will try that. Maybe supplement with extra 5HTP which that > has. Plan to try Yoga, a little walking, and swimming in a heated pool > gradually. I have started to try the flaxseed oil for my dry eyes, and will go to a > Urologist for my severe bladder issues. Will continue to stay on the low sugar > diet. I do have the Xanax in case of fibro flare up anxiety attacks. > > Does anyone have any other natural suggestions or can clear up this whole > diet thing? I am trying this all out first for a month or so, give it all I > have, if I continue like this I will try to the prescription meds. My physical > pain is terrible, but the anxiety, agitation and a little depression is even > more terrible. I know it's not me. I can feel something taking over my body > kind of... it's scary. Doctors just think your nuts and your causing your > symptoms. When I am 100% positive that my illness is causing my anxiety and slight > depression, which makes the illness worse, a vicious cycle I feel trapped in. > > Maybe I need to eat meat again. I don't know. I'm also confused with the > heck the difference is between this and candida. I swear this is all from my > mercury fillings I've had plenty of since a young age. No doctor would want to > hear that though. > > Well thank you all for letting me vent. lol. I am 20 years old, work with > senior citizens, and have been on many of the meds theyre on and am going to > need to borrow their walkers soon. If anyone has any suggestions I'd appreciate > it. Thanks guys! > > - > **************Worried about job security? Check out the 5 safest jobs in a > recession. > (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 Hi , I know how hard it is to try so many things and hope something helps. As far as the diet I did several things but the only thing that made a HUGE difference was when my doctor put me on the " Specific Carbohydrate Diet " . I noticed a lot of difference within two weeks. It is not an easy diet but if you get the book Breaking The Vicious Cycle by Elaine Gottschall, it gives you what you need and how to prepare the food. With you being a vegetarian I am not sure you can pull it off. Almond flour and honey are your staples in cooking. I stayed true to this diet for a year and found out that sugar and gluten were my main enemies. I use Pamela's flour now without any issues, but at first only what was in the book. I know this is a hard diet to follow but after you get into cooking that way, it is easy for me now. Eating out is not easy and sugar in so many things, but I just stick to meat and veggies. I know it is your choice and it is very confusing, but you have to try because you are so young and you can overcome this to a great extent. Now that was just my diet, I did get ride of the amalgams properly, took DMSA and ALA together for a year, and do yoga and exercise in a heated pool. I can now do weights and started the cross trainer, so for me things are so much better and I am 64, so you can do it. I wish you the best , Judy _____ From: [mailto: ] On Behalf Of daisytiff228@... Sent: Thursday, March 12, 2009 8:09 PM Subject: So confused Hi everyone, I appreciate all of the help you are all giving. I'm getting so confused though. There are so many diets out there, I mean it feels like one contradicts another. Gluten free, dairy free, no carbs, no fruit, no sugar, no beans, no fats, no microwave?.... no everything. I am only 4'11 " and 84 lbs. Trying to gain weight. I'm afraid to eat, well, everything. Right now I am on a low sugar, vegetarian diet. The vegetarian thing is just a personal thing, the low sugar is due to the fact that I am sure my symptoms worsen with sugar, but I try not to cut it out 100%, more like 85%, as I don't know how good that is. I am trying to treat this as naturally as possible without having to take Paxil, or whatever my doctor wants to prescribe the next day. I ordered Deprex, natural pills, will try that. Maybe supplement with extra 5HTP which that has. Plan to try Yoga, a little walking, and swimming in a heated pool gradually. I have started to try the flaxseed oil for my dry eyes, and will go to a Urologist for my severe bladder issues. Will continue to stay on the low sugar diet. I do have the Xanax in case of fibro flare up anxiety attacks. Does anyone have any other natural suggestions or can clear up this whole diet thing? I am trying this all out first for a month or so, give it all I have, if I continue like this I will try to the prescription meds. My physical pain is terrible, but the anxiety, agitation and a little depression is even more terrible. I know it's not me. I can feel something taking over my body kind of... it's scary. Doctors just think your nuts and your causing your symptoms. When I am 100% positive that my illness is causing my anxiety and slight depression, which makes the illness worse, a vicious cycle I feel trapped in. Maybe I need to eat meat again. I don't know. I'm also confused with the heck the difference is between this and candida. I swear this is all from my mercury fillings I've had plenty of since a young age. No doctor would want to hear that though. Well thank you all for letting me vent. lol. I am 20 years old, work with senior citizens, and have been on many of the meds theyre on and am going to need to borrow their walkers soon. If anyone has any suggestions I'd appreciate it. Thanks guys! - **************Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs. <http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0000000 2> aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Lizzie - again, I think you are expecting T3 on its own to work overnight - it won't. However, I am a bit confused now. Are you adding the 25mcgs of T3 to the Erfa you have been taking, or just taking T3 all on its own. Yes, you could well feel the benefits on the same day of changing your medication, but that dose is not necessarily the dose of T3 your body and brain actually requires, and you have to build this up gradually. If everybody did well on the dose we recommend starting with, there would be no need to recommend increasing the dose as we do. As we have mentioned before, if you have had no adverse reaction with taking T3 on its own (or in addition to the Erfa) (i.e. symptoms of hyPERthyroidism), then add in another half tablet of 12.5mcgs T3, and after a few days, if still not 'there' add in yet another 12.5mcgs T3. This is how you keep increasing it until you find the dose your body is happiest with. However, if you have a reverse T3 problem, you really MUST stop the Erfa thyroid completely and use T3 only. You will need to purchase some more T3 as increasing the dose will soon deplete your supply and especially as your NHS prescription is over 2 years old now, and, as you say, your GP may call you in. Go to our Files section from the Home page of this forum web site and scroll down to Internet Pharmacies, and you can see where you can purchase T3 without prescription. You can also see the different prices there. If you do have to change to T3 only and find this is the medication you need, then speak to your endocrinologist and tell him that you changed your own treatment to try the experiment, and you can explain to him the reasons you felt the need to do this - the main one being, of course, that you have no appointment with him until April. He is quite likely to be happy to change your prescription to T3 only and there should not be a problem. Please remember, that all doctors have to work with their patient to find the medication that best suits them, so it works both ways - you do not just take as gospel what your endocrinologist recommends, he also needs your feedback, and even though you were fine when you saw him, tell him things started to go downhill again from that point. However, do let us know exactly what medication you are taking right now, is this T3 alone, or T3 plus Erfa? Luv - Sheila I am trying to do this experiment before my next endo appointment in April, so don't want to look like a fool messing with medication. I have only 50 20mcg T3 tabs at home from previous T3/T4 combination therapy. Another problem...how will I get hold of any more?, I have a repeat prescription for T3 but it was last issued in Dec 2008 and am thinking of sending it in to the GP's but am frightened they will realise I haven't requested any for so long and call me in. How expensive is Liothyronine to buy and how long would it take for delivery? (this is really something I did not want to have to do since I have had the Erfa on prescription and with a family of three children the money just isn't there to buy meds). Then I get back to thinking, so would it be better to just drop a grain of Erfa and add in T3? that way my T3 will last a lot longer, or have I got a reverse T3 problem and so will be wasting my time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 On Tue, 26 Oct 2010 08:28:35 -0000, you wrote: > >Yesterday, perhaps it was psychological, but I felt good, went to the coast for the day with the family and walked around 3 miles. It got to 8.30 pm sitting in the car and the thigh pains are back. My mood deteriorated and the confusion came back. Is it the right thing for me to drop the Erfa completely (when it has helped) in favour of T3 only. Maybe the effects of T3 had run down by 8.30 and my body was needing more. I checked my temperature as soon as I got home about 9.30 and it was 36.7, so not bad. Gut feeling is you were feeling better, overdid it, and your adrenals couldn't cope. A lot of us have been there and done that!! You may also be ready for an increase, the T3 from the T4 in your system will be decaying. the other half of the tablet can be added making it 4 quarter tablets through the day. > >I am trying to do this experiment before my next endo appointment in April, so don't want to look like a fool messing with medication. Patients know how it feels more than the Drs do, they are treating numbers, not people. >I have only 50 20mcg T3 tabs at home from previous T3/T4 combination therapy. Another problem...how will I get hold of any more?, I have a repeat prescription for T3 but it was last issued in Dec 2008 and am thinking of sending it in to the GP's but am frightened they will realise I haven't requested any for so long and call me in. How expensive is Liothyronine to buy and how long would it take for delivery? (this is really something I did not want to have to do since I have had the Erfa on prescription and with a family of three children the money just isn't there to buy meds). Cheap compared with most thyroid meds for self treating. http://www.mymexicandrugstore.mx/index.php?route=checkout/cart they take 2 to 4 weeks to arrive, if you order from there use a discount code of " newsite15 " and you get 15% off > >Then I get back to thinking, so would it be better to just drop a grain of Erfa and add in T3? that way my T3 will last a lot longer, or have I got a reverse T3 problem and so will be wasting my time. I can't say, have you got some labs you can remind me about?? How are your adrenals? How is your iron levels?? Gut feel says you will do at least as well on T3 only as you did on Erfa but it depends what you can get on prescription and what you have to pay for. Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Lizzie, ,that you already felt somewhat better on T3 alone, but it is VERY early days yet- you only stopped the Erfa and it's T4 content a couple of days ago- it takes 5-9 days for the T4 levels to halve- it took me 3 WEEKS to feel an improvement. You are expecting too much too soon- but it does look as if you are going in the right direction. Have a read of http://www.drlowe.com- you'll have to do a search for topics as it is a huge site. > thyroid treatment > From: lassey@...> Date: Tue, 26 Oct 2010 08:28:35 +0000> Subject: So Confused> > Hi Everyone,> > > So I stopped the Erfa on Sunday and for the last 2 days have take 25 mcg T3 in a split dose of 12.5 am and 12.5 early pm.> > Yesterday, perhaps it was psychological, but I felt good, went to the coast for the day with the family and walked around 3 miles. It got to 8.30 pm sitting in the car and the thigh pains are back. My mood deteriorated and the confusion came back. Is it the right thing for me to drop the Erfa completely (when it has helped) in favour of T3 only. Maybe the effects of T3 had run down by 8.30 and my body was needing more. I checked my temperature as soon as I got home about 9.30 and it was 36.7, so not bad..> > So sorry to bombard everyone with my worries but I really just don't know what to do for the best folks. It is so difficult being ill and trying to self medicate to improve things. Any suggestions from anyone may help clear the path for me.> > Love Lizzie> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Sheila, I am taking T3 only now since Sunday. Love Lizzie Are you adding the 25mcgs of > T3 to the Erfa you have been taking, or just taking T3 all on its own. > > However, do let us know exactly what medication you are taking right now, is > this T3 alone, or T3 plus Erfa? > > Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi LizzieI am on day 4 of T3 only and feel slightly better Good luckDee xFrom: lizzielassi <lassey@...>thyroid treatment Sent: Tue, 26 October, 2010 11:18:53Subject: Re: So Confused Hi Sheila, I am taking T3 only now since Sunday. Love Lizzie Are you adding the 25mcgs of > T3 to the Erfa you have been taking, or just taking T3 all on its own. > > However, do let us know exactly what medication you are taking right now, is > this T3 alone, or T3 plus Erfa? > > Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Nick Thanks for replying. Lol I do have a tendency to over do things and usually feel ok when walking. It is when I stop and relax that the cramps seem to come on. > Gut feeling is you were feeling better, overdid it, and your adrenals > couldn't cope. A lot of us have been there and done that!! > > You may also be ready for an increase, the T3 from the T4 in your > system will be decaying. the other half of the tablet can be added > making it 4 quarter tablets through the day. > they take 2 to 4 weeks to arrive, if you order from there use a > discount code of " newsite15 " and you get 15% off > Thanks for the web address, do you know if I am likely to get stung by customs or are you generally ok? > >Then I get back to thinking, so would it be better to just drop a grain of Erfa and add in T3? that way my T3 will last a lot longer, or have I got a reverse T3 problem and so will be wasting my time. > I can't say, have you got some labs you can remind me about?? I am at 74 Ferritin and supplement daily. I am in the process of monitoring my adrenals by temperature. Love Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Thank you. Lizzie - > Hi Lizzie, > ,that you already felt somewhat better on T3 alone, but it is VERY early days yet- you only stopped the Erfa and it's T4 content a couple of days ago- it takes 5-9 days for the T4 levels to halve- it took me 3 WEEKS to feel an improvement. You are expecting too much too soon- but it does look as if you are going in the right direction. Have a read of http://www.drlowe.com- you'll have to do a search for topics as it is a huge site. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Dee, Thank you for the words of encouragement. May I ask if you have purchased the T3 or did you get a prescription? Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi LizzieMy doc didnt want to know so i ordered myselfTrial and error i guess but after 7 years of thyroxine and feeling ill after the rai in may i needed to do something.The support on here is great and they helped me no endGood luck xFrom: lizzielassi <lassey@...>thyroid treatment Sent: Tue, 26 October, 2010 11:38:48Subject: Re: So Confused Hi Dee, Thank you for the words of encouragement. May I ask if you have purchased the T3 or did you get a prescription? Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Lizzie - send Nick your last thyroid function test results - he needs your free T4 and free T3. Luv - Sheila > I can't say, have you got some labs you can remind me about?? I am at 74 Ferritin and supplement daily. I am in the process of monitoring my adrenals by temperature. Love Lizzie No virus found in this message. Checked by AVG - www.avg.com Version: 10.0.1152 / Virus Database: 424/3219 - Release Date: 10/25/10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 On Tue, 26 Oct 2010 10:34:37 -0000, you wrote: > > >Lol I do have a tendency to over do things and usually feel ok when walking. It is when I stop and relax that the cramps seem to come on. > Yes, you are only on a miniscule dose of T3, the idea is to start at too low a dose for most people to notice so that if anyone is oversensitive to it they find out. >> >Thanks for the web address, do you know if I am likely to get stung by customs or are you generally ok? Ordered many times over the last 15 months and never been caught with taxes yet. > > >> >Then I get back to thinking, so would it be better to just drop a grain of Erfa and add in T3? that way my T3 will last a lot longer, or have I got a reverse T3 problem and so will be wasting my time. > >> I can't say, have you got some labs you can remind me about?? > >I am at 74 Ferritin and supplement daily. > Probably OK then >I am in the process of monitoring my adrenals by temperature. Good, it's worth taking it at any times you slump or ache as well. Cortisol requirements vary through the day and with activity much more than thyroid levels do. A large dose of T3 or natural in one go can " use up " more cortisol than the adrenal glands can produce so depressing temperature. Exercise intolerance is a common adrenal symptom for " not too bad " adrenals. Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Nick Sorry I didn't post thyroid results Tsh 0.02 T4 12.2 T3 6.9 Lizzie > >> >Then I get back to thinking, so would it be better to just drop a grain of Erfa and add in T3? that way my T3 will last a lot longer, or have I got a reverse T3 problem and so will be wasting my time. > > > >> I can't say, have you got some labs you can remind me about?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 On Tue, 26 Oct 2010 12:22:26 -0000, you wrote: > >Tsh 0.02 T4 12.2 T3 6.9 Assuming normal ranges they look reasonable. What were you on at the time and how did you feel on it? What were temperature and pulse like? how long had you been on that dose/med at the time of the blood draw and how long before the blood draw had you taken meds? Sorry, a lot of questions Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Dee, Where did you order the T3 from? I might need some as my Levo was increased to 100mg but my FT3 remained the same low 3.8 (ref. range starts at 3.9). Feel rubbish and due to see Dr P on Thu, just thought I'll ask where you get the T3 from, in case he tells me to take some. Thanks, Anita. > > Hi Lizzie > My doc didnt want to know so i ordered myself > Trial and error i guess but after 7 years of thyroxine and feeling ill after the > rai in may i needed to do something. > The support on here is great and they helped me no end > Good luck x > > > > > > ________________________________ > From: lizzielassi <lassey@...> > thyroid treatment > Sent: Tue, 26 October, 2010 11:38:48 > Subject: Re: So Confused > > > Hi Dee, > > Thank you for the words of encouragement. > > May I ask if you have purchased the T3 or did you get a prescription? > > Lizzie > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.