Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Nick I had been on 3 grains of Erfa for 5 weeks with those results. They were taken 24 hours after last dose. >Tsh 0.02 T4 12.2 T3 6.9 > > What were you on at the time and how did you feel on it? I wasn't monitoring my pulse but believe it to be in the 70-80's, I did get some missed heartbeats. I hadn't been monitoring temps as I was feeling better, but days after checked them and they were low around 36.6. > What were temperature and pulse like? Love Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Anita - go to our FILES section accessible from the Home Page of this forum web site. Scroll down to the Folder entitled 'Internet Pharmacies' and check the one's there, where you can buy synthetic T3, or natural thyroid extract. Most definitely, you need T3 with such a low reading. It is T3 our body needs and not T4, which is a mainly inactive thyroid hormone. Have you asked your GP to give you a trial using T3, and if he said no, then have you asked him to refer you to an endocrinologist who does prescribe T3? Luv - Sheila Where did you order the T3 from? I might need some as my Levo was increased to 100mg but my FT3 remained the same low 3.8 (ref. range starts at 3.9). Feel rubbish and due to see Dr P on Thu, just thought I'll ask where you get the T3 from, in case he tells me to take some. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 On Tue, 26 Oct 2010 13:04:29 -0000, you wrote: > > >I had been on 3 grains of Erfa for 5 weeks with those results. Will have stabilised roughly then > >They were taken 24 hours after last dose. > Good > > >Tsh 0.02 T4 12.2 T3 6.9 >> What were you on at the time and how did you feel on it? > >I wasn't monitoring my pulse but believe it to be in the 70-80's, I did get some missed heartbeats. >I hadn't been monitoring temps as I was feeling better, but days after checked them and they were low around 36.6. Sounds like you are suffering some resistance then, that level of T3 should get through to the cells. The common causes are iron or cortisol but deep rooted resistance from RT3 is also possible. How long have you been on thyroid meds altogether and what sort of doses of what have you been on? Trying to put together a history of what treatment you've been on to put a picture together Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 hi Nick I was diagnosed in 2006 and built up to a dose of 100mcg levothyroxine, which was quickly reduced down to 75 mcg by my Gp. I then managed to get an increase to 87.5. I had been on that dose for about 6 months when I started getting these funny aches in my thighs this was August 2007. Eventually got a referral to an endo who added in T3 so was taking 75 t4 and 10 t3 this was gradually increased to T4 150 and T3 30 before I managed to get Armour. Things improved slightly then Armour was reformulated and started to go downhill. Eventually got Erfa and have gradually increased since Jan of this year to 3 grains. I have had episodes where I feel pretty ok, but have always had knee joint pains and the on and off leg pains. So could never say I was completely cured. Lizzie > Trying to put together a history of what treatment you've been on to > put a picture together > > Nick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Lizzie, Sooory you've run into trouble, I can understand your concern as you've been doing really well and too start building your own business is a great achievement. So obviously, I can understand your worry as you don't want to jeopardise your recovery or your business. I was just thinking about your prescription dilemma and how do you feel about just ticking the box for the T3 as you could 'play blonde' (if you are blonde that is!!) and say you ticked it by mistake. There is a chance that the doctor signing it off might not even notice and worse case scenario that they do - you don't have to go in for a review, or do the play daft option. It might be worth a try - save you forking out unnecessarily. Lv > > Hi Everyone, > > I am so confused and am finding it very hard to make a decision here. > > I think that the problem is that I have gradually built up my Erfa to 3 grains. Yes, I have felt better, it has given me the confidence to start building my own business, something I just couldn't have contemplated perhaps 12 months ago. I know that I have improved. .. I have only 50 20mcg T3 tabs at home from previous T3/T4 combination therapy. Another problem...how will I get hold of any more?, I have a repeat prescription for T3 but it was last issued in Dec 2008 and am thinking of sending it in to the GP's but am frightened they will realise I haven't requested any for so long and call me in. How expensive is Liothyronine to buy and how long would it take for delivery? (this is really something I did not want to have to do since I have had the Erfa on prescription and with a family of three children the money just isn't there to buy meds). > Love Lizzie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 On Tue, 26 Oct 2010 14:35:59 -0000, you wrote: > > >Eventually got a referral to an endo who added in T3 so was taking 75 t4 and 10 t3 this was gradually increased to T4 150 and T3 30 before I managed to get Armour. Things improved slightly then Armour was reformulated and started to go downhill. That's what brought me back to the web after 10 years nearly of feeling well enough to get by. >Eventually got Erfa and have gradually increased since Jan of this year to 3 grains. OK, the bottom end of the normal range, were you spreading those through the day, sorry if you have answered before, I am on a computer at work and the thread is on the one at home > >I have had episodes where I feel pretty ok, but have always had knee joint pains and the on and off leg pains. So could never say I was completely cured. Have you ever done an adrenal saliva test? Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Nick Yes I was splitting the Erfa 1 grain am, 1/2 grain pm 11/2 at bedtime. then on Sheila's advice but only last Friday tried 11/2 am and 11/2 pm but didn't notice any difference. Yes I did have the adrenal profile and it was all normal apart form too high first thing, discussed with Dr P who said I didn't have an adrenal problem. --> > >I have had episodes where I feel pretty ok, but have always had knee joint pains and the on and off leg pains. So could never say I was completely cured. > > Have you ever done an adrenal saliva test? > > Nick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi , I am very tempted to try this and see what happens. Won't be able to play the blonde thing though lol am most definitely brunette. Love Lizzie > I was just thinking about your prescription dilemma and how do you feel about just ticking the box for the T3 as you could 'play > blonde' (if you are blonde that is!!) and say you ticked it by mistake. > > There is a chance that the doctor signing it off might not even notice and worse case scenario that they do - you don't have to go in for a review, or do the play daft option. > > It might be worth a try - save you forking out unnecessarily. > > Lv > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 Hi Lizzie, I did warn you it would not be an instant fix! 30mcg T3 is about half of a maintentance dose- so you are bound not to feel that great at this point. The main reason for not increasing too fast is the risk that you body may not be able to deal with it and send you hyper- so you would then have to stop the T3 and then start increasing all over again! I had all sorts of odd feelings as the T4 left my body, but don't get too sensitive about it- it will pass as your body gets used to the T3 which it has been starved of for so long. you can miss the t4 because it is not fully replaced yet- but you are losing the bad side as well as the good at the moment- this will take about 6 weeks before you are fully stabilised- be patient and don't try to do more than you have to. > thyroid treatment > From: lassey@...> Date: Wed, 27 Oct 2010 13:15:25 +0000> Subject: So Confused> > Hi Everyone> > Me again, I don't feel myself at all today. I now realise how much the Erfa was doing for me and I am very tempted to go back on it.> > I feel really weird today,difficulty focusing as in it's hard and easier not to, sleepy, depressed, confused, aching but not the leg cramps a general aching all over.> > I decided to increase the T3 today to 30mcg split into 6 small doses and have had 3 so far but feeling strange when I had only taken one.> > temps today so far, basal 97.3, 11 am 97.8 and 2pm 98.0> > Don't know why I feel so bad today, didn't feel too good yesterday but worse today. I know that I will be missing the T4 now but if I wasn't properly utilising it I wouldn't have expected to miss it, hope this makes sense. > > Any advice from anyone welcome.> > Love Lizzie> > Love > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 Hi Lizzie, As yet you are not on sufficient T3 to feel well- you'll eventually need at least 60mcg, doing an increase because you feel so hypo is right, but don't be tempted to increase too fast or you may send yourself hyper and have to start over again. There are no quick fixes- it will take about 6 weeks until all the T4 goes, and even longer if there is also a RT3 problem. Be patient- you will start to feel better once the dose gets high enough, and in the mean time try to be kind to yourself and not do more than you have to. Keeping chopping and changing won't get you anywhere except confused- so now you have decided on the route see it through. The reduction in the leg pains is a good sign that you are doing the right thing. > thyroid treatment > From: lassey@...> Date: Wed, 27 Oct 2010 13:15:25 +0000> Subject: So Confused> > Hi Everyone> > Me again, I don't feel myself at all today. I now realise how much the Erfa was doing for me and I am very tempted to go back on it.> > I feel really weird today,difficulty focusing as in it's hard and easier not to, sleepy, depressed, confused, aching but not the leg cramps a general aching all over.> > I decided to increase the T3 today to 30mcg split into 6 small doses and have had 3 so far but feeling strange when I had only taken one.> > temps today so far, basal 97.3, 11 am 97.8 and 2pm 98.0> > Don't know why I feel so bad today, didn't feel too good yesterday but worse today. I know that I will be missing the T4 now but if I wasn't properly utilising it I wouldn't have expected to miss it, hope this makes sense. > > I am wondering if I should have stayed on the Erfa and just increased it by half a grain to see if things improved. > > I had forgotten how horrible I used to feel.> > Any advice from anyone welcome.> > Love Lizzie> > Love > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 why is is it that when i take iodine, my hypo symptoms worsen? i am only taking 1/2 tablet of iodoral and my feet get cold, my mood is depressed, my basal temp goes down from 97.4 to 97.0, and i start to get a worsening of my sinus condition. i just don't get it. when i am off of the iodine these symptoms start to abate. i am chronically ill and want to get better. i believe in taking iodine, but it seems i am going in the wrong direction and cannot figure it out. barry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Fairly new at this but it sounds like detox.....can u start at a lower dosage and work up more slowly? I am sure that more experienced people on here will be able to give more advice... -- Kasey Dettinger ---- viajero8 <viajero8@...> wrote: > why is is it that when i take iodine, my hypo symptoms worsen? i am only taking 1/2 tablet of iodoral and my feet get cold, my mood is depressed, my basal temp goes down from 97.4 to 97.0, and i start to get a worsening of my sinus condition. i just don't get it. when i am off of the iodine these symptoms start to abate. i am chronically ill and want to get better. i believe in taking iodine, but it seems i am going in the wrong direction and cannot figure it out. barry > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Are you taking the supporting nutrients? If you are very ill then you may be forcing toxins out which will stress the system. I went through a healing crisis on my journey where I felt worse for a while but I was happy knowing that I was pushing toxins out. Doing a 25 hour Iodine Loading test with bromide levels www.hakalalabs.com will help you to know what is going on. Many of us that are (or were) very ill have high bromide levels. so confused why is is it that when i take iodine, my hypo symptoms worsen? i am only taking 1/2 tablet of iodoral and my feet get cold, my mood is depressed, my basal temp goes down from 97.4 to 97.0, and i start to get a worsening of my sinus condition. i just don't get it. when i am off of the iodine these symptoms start to abate. i am chronically ill and want to get better. i believe in taking iodine, but it seems i am going in the wrong direction and cannot figure it out. barry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Barry, Not enough ifo. You say you are " chronically ill " . What chronic illness? Are you on any Rx. or OTC meds?What symptoms and for how long? What chronic symptoms are you having.In other words, whats your medical history.In another post, you sid you 'tried' Lugols, and had a bad reaction.How much, and what was the reaction. I would suggest you go on drrind.com.Click on " Instructions for Metabolic Temperature graph " .Save to desktop, or print so you can refer to.Print several copies of the Metabolic Temperature Graph.Order a B-D Basal Thermometer, ($9-11).Start charting your temps.Costs next to nothing, and will give you valuable info as a starting point.Jim > > why is is it that when i take iodine, my hypo symptoms worsen? i am only taking 1/2 tablet of iodoral and my feet get cold, my mood is depressed, my basal temp goes down from 97.4 to 97.0, and i start to get a worsening of my sinus condition. i just don't get it. when i am off of the iodine these symptoms start to abate. i am chronically ill and want to get better. i believe in taking iodine, but it seems i am going in the wrong direction and cannot figure it out. barry > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 When I have those symptoms I take another iodoral.If I still have those symptoms, I take another iodoral.Now after three years I know what it feels like. When I am warm, have little acne, PMS, feel stronger, I am taking the right dosage.When I begin to get symptoms again of Hypo. and coldness, it is time to up dosage another pill.I also only take iodoral five days a week because I know my body and when my leftankle swells up it means the liver is clogged.So you really have to pay attn. to your body.When I am itchy, it is right after I have upped my dose,and I know that is a detox symptom that will pass in four or five days.Also when I have upped iodoral a couple of times, in a month or two, and I still haveHypo. symptoms like eye pain/tighteness I know it is time to decrease my dessicated thyroid hormonebecause I need less now because the body is now producing more of its own hormones and is closerto a place of balance.I hope that helps.Best,AliOn Feb 14, 2011, at 8:33 AM, dutchdivco wrote:Barry, Not enough ifo. You say you are "chronically ill". What chronic illness? Are you on any Rx. or OTC meds?What symptoms and for how long?What chronic symptoms are you having.In other words, whats your medical history.In another post, you sid you 'tried' Lugols, and had a bad reaction.How much, and what was the reaction.I would suggest you go on drrind.com.Click on "Instructions for Metabolic Temperature graph".Save to desktop, or print so you can refer to.Print several copies of the Metabolic Temperature Graph.Order a B-D Basal Thermometer, ($9-11).Start charting your temps.Costs next to nothing, and will give you valuable info as a starting point.Jim>> why is is it that when i take iodine, my hypo symptoms worsen? i am only taking 1/2 tablet of iodoral and my feet get cold, my mood is depressed, my basal temp goes down from 97.4 to 97.0, and i start to get a worsening of my sinus condition. i just don't get it. when i am off of the iodine these symptoms start to abate. i am chronically ill and want to get better. i believe in taking iodine, but it seems i am going in the wrong direction and cannot figure it out. barry> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 if you are chronically ill you will need much more than 1/2 tab of Iodoral. most ppl take 50--100mg. have you considered taking a therapeutic dose? have you read the info on iodine? Gracia On 2/14/2011 8:35 AM, viajero8 wrote: why is is it that when i take iodine, my hypo symptoms worsen? i am only taking 1/2 tablet of iodoral and my feet get cold, my mood is depressed, my basal temp goes down from 97.4 to 97.0, and i start to get a worsening of my sinus condition. i just don't get it. when i am off of the iodine these symptoms start to abate. i am chronically ill and want to get better. i believe in taking iodine, but it seems i am going in the wrong direction and cannot figure it out. barry Quote Link to comment Share on other sites More sharing options...
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