Need advice!

[Guest guest]

how does Dr Amy's protocol differ from the DAN protocol? are you

supplementing while chelating? my son is 43 lbs and we give him 25DMSA/12.5

ALA. any higher on ALA and he gets diarhea.

karen

[Guest guest]

Betty, Hi, I think when the mercury is detoxing into the gut

(eliminating from his system) this throws off the balance of the gut

and can promote bad bacteria and yeast. I give my child a large

amount of probiotics everyday (1cultrell, 1probiogold, and 1tsp

perfect stool formula, 2x day) I think this adds up to over 100

billion cells. I also give him 1/2 tsp colostrum gold from

kirkmans. Maybe this is overkill but I don't care and I am sure

this can't hurt my son. He has already been through die off

reactions. I did not start with this amount. We also give the

antioxidents Andy recommends. My child gets 20mg each of DMSA and

ALA every 3 hours, 3days on, 4 off. Kirkmans also has a new product

for yeast bhoulari or some similar name , I haven't tried it yet.

Good luck! Maddie

> My 6yr. old son has just finished his 6th round of

> chelation (3 on,11 off), this last time we added ALA

> 25mg to the DMSA 25mg (he weighs approx 46-47 lbs),

> both were given every 4 hrs. I had been torn between

> continuing on DMSA alone which was giving us good

> results and adding the ALA because Andy recommends

> this early in treatment. So we tried the combo, but

> behavior was horrible: screaming, irritable, increase

> stims, really " out there " , complained of a tummy ache,

> by evening his cheeks were red and seemed very tired.

> The bad part, things have not improved much after one

> week, it looks like the " bad bugs " are back in his

> gut, so now we are attacking that problem. Maybe this

> behavior is the result of the gut issue, as I have

> seen this before with my son. I am now unsure whether

> to continue next round on DMSA/ALA or go back to DMSA

> alone, maybe lowering the lipoic to 12.5mg. Any

> advice? Have others seen these problems with their

> child, what did you do? My doctor wants to use the DAN

> protocol (too high a dose, my opinion), and I want to

> use either Dr.Amy's/Andy as our guides. Wish everyone

> would get on the same page!

> Thanks,

> Bet

>

>

>

> __________________________________________________

>

[Guest guest]

Do you have a plasma cysteine level on this kid?

What supplements were you giving him?

> My 6yr. old son has just finished his 6th round of

> chelation (3 on,11 off), this last time we added ALA

> 25mg to the DMSA 25mg (he weighs approx 46-47 lbs),

> both were given every 4 hrs. I had been torn between

> continuing on DMSA alone which was giving us good

> results and adding the ALA because Andy recommends

> this early in treatment. So we tried the combo, but

> behavior was horrible: screaming, irritable, increase

> stims, really " out there " , complained of a tummy ache,

> by evening his cheeks were red and seemed very tired.

> The bad part, things have not improved much after one

> week, it looks like the " bad bugs " are back in his

> gut, so now we are attacking that problem. Maybe this

> behavior is the result of the gut issue, as I have

> seen this before with my son. I am now unsure whether

> to continue next round on DMSA/ALA or go back to DMSA

> alone, maybe lowering the lipoic to 12.5mg. Any

> advice? Have others seen these problems with their

> child, what did you do? My doctor wants to use the DAN

> protocol (too high a dose, my opinion), and I want to

> use either Dr.Amy's/Andy as our guides. Wish everyone

> would get on the same page!

> Thanks,

> Bet

[Guest guest]

Happy New Year!!!!!!

Hey, I would be scared too! I would like to suggest you let us know

where you are located and perhaps an AP ( antibiotic protocol)

doctor, can be located for you. Injections?>?>??Surgery??????Not yet

in my book!

Love, Barb

[Guest guest]

Hello Mae Folk,

> Hello Yall,

> My Dr. told me to go to another Dr. in another town, as he is not

> really

> sure what I have, just Arthritis, but he doesn't seem to know which.

> From

> talking to a couple other people that have been to this Dr. One had a

> big

> shot in back, and the other had a disc removed. Now I have an

> appointment

> with him on the 10th of January,and I am really scared. I am sure the

> shots

> they are talking about are Predisone and I really don't want any back

> surgery, what should I do? He is not a Rheumy, I understand he does

> brain

> surgery and back surgery. I really don't know for sure what to do. If

> any of

> you have any suggestions please reply, as I am really scared and

> nervous.

I guess my only comment is that there is only person who decides what

will happen to your body and that is you.

You do not have to follow the advice of doctors if you don't want to.

You have the right to say 'no' to any procedure that you do not want.

So listen to what they have to say and then decide if you want it done.

If not, just say 'no'.

Chris.

[Guest guest]

Hello all!

So sorry I haven't posted in ummmm ages? It's been a wacky 2007

and we are so glad to be entering 2008.. I hope you all had a

wonderful holiday season and a very happy and blessed new year!

Ok...so my dilemma..

Kiernan is growing by leaps and bounds and his progress is just

remarkable.. he's doing so good.. talking.. interacting.. listening..

usually... but within the last few weeks we have been confronted

with " the attitude " as we call it... our normally very sweet and

loving boy has now picked up on some sort of attitude somewhere...

the go away. i don't wanna listen.. i wanna do what i want and you

can't make me do what you say type of thing.... our typical

daughter went thru this phase at about the same age.. however with

her time outs and punishments/restrictions seemed to work.. our

problem.. no matter what we do.. it doesn't seem to phase Kiernan

whatsoever! we have tried the reward system.. he just doesn't seem

to get that.. cognitavely that's not in his realm of processing just

yet.. we've tried time outs.. we've tried taking away the things

he loves (do you know how hard it is to box up and hide a huge thomas

the tank engine set? LOL thank goodness for leftover moving boxes)

we've tried unplugging tv's and denying him access to what it is he's

fighting us for.. we've tried positive reinforcement and

redirecting... it seems everything that has worked in the past.. has

just gone out the window.. we've tried to look at what it is

that's causing it.. or what is going on just before the " attitude "

strikes.. but it can be something as simple as letting him know it's

time to get ready for bed which is a routine that doesn't change..

I keep telling myself.. well christmas break.. no school.. schedules

are off.. dad's been on vacation (which he tends to get away with

more when Dad is around) and then all the visiting and running from

this place to that place.. it's thrown him off.. so this is his way

of acting out.. but i have found myself at a place going.. ok.. this

has to stop.. but how?

anyone else facing this or have gone thru this? we want our sweet

little boy back! not this pre-teen trapped in a 5 yr old's body!

LOL..

Again.. wishing you all the best for the new year.. and any advice

you may have is appreciated!

Just a note.. we do not do any biomed treatments.. more because of

lack of funds than anything else.. we go the med route (currently

abilify).. so for those that are going to mention supplements to

try.. thank you, however clueless and broke mom here is unable to

give those a try..

Brook Park

[Guest guest]

Welcome-

Does he have flat spots on both sides of his head? It seems that way

in the photos, but I could be seeing things wrong. His head shape

reminds me of one of our other member's daughter (Marcy/Greta):

http://health.ph./group/Plagiocephaly/photos/view/8cd

a?b=48

She can chime in on what she thinks, but it looks similar to me. She

had her daughter evaluated for craniosynostis (premature fusing of

the skull sutures) and it turned out not to be. But I think it would

be worth getting checked out. Just based on what you said, that he

looks to his left a lot, I'd be confused why there is also a flat

spot on his right side. Unless my eyes are totally playing tricks on

me. (I just woke up!) Anyway, I'm sure Marcy will respond and give

her opinion on that.

As far as his preference to look one way, has be been evaluated by a

physical therapist yet and/or officially diagnosed with torticollis?

What kind of neck exercises are you doing? Are they helping with his

range of motion? I don't know why, but I get a little leary when

pediatricians start giving advice on stretching techniques. I would

feel much more comfortable with a pediatric PT that is specially

trained. My son was in PT for 2.5 months and did great. Of course,

his flat spot never improved, but at least his neck did.

Good luck!

Jake-18m (tort resolved/rt plagio/DocBand 2/11/08)

Jordan-4

>

> Hi Everyone,

> I suspect my 6 months old son has plagiocephaly. He

> likes to sleep on his left side, and always turn to

> his left side when he is not sleeping. I have talked

> to our pediatrician since he was born, but she thinks

> he is fine. We have tried neck exercises & rotating

> his sleeping position according to the doctor's

> advice. Now that he is 6 months old, and I still

> don't see any improvement.

>

> I have uploaded his pictures, would appreciate if any

> of you can give me some advice. By the way, I live in

> San , if you can recommend a good doctor, that

> would be great! Thanks so much!

>

> Plagiocephaly/spnew/view/e3ac?

i=4622

>

> Plagiocephaly/spnew/view/e3ac?

i=4625

>

> Plagiocephaly/spnew/view/e3ac?

i=4626

>

> Plagiocephaly/spnew/view/e3ac?

i=4624

>

>

> Sue

>

[Guest guest]

Hi,

He's cute, but I think he would benefit from a helmet. we were in

Redwood City and went to CIRS in Palo Alto. They are a Starband

provider, and have several orthos with good experience. Cranial Tech

is also very good, but not local (LA area). We had Kaiser insurance

and saw Dr Menard like Molly did. Good luck with everything.

-christine

sydney 2 yrs starband grad

>

> Hi Everyone,

> I suspect my 6 months old son has plagiocephaly. He

> likes to sleep on his left side, and always turn to

> his left side when he is not sleeping. I have talked

> to our pediatrician since he was born, but she thinks

> he is fine. We have tried neck exercises & rotating

> his sleeping position according to the doctor's

> advice. Now that he is 6 months old, and I still

> don't see any improvement.

>

> I have uploaded his pictures, would appreciate if any

> of you can give me some advice. By the way, I live in

> San , if you can recommend a good doctor, that

> would be great! Thanks so much!

>

>

Plagiocephaly/spnew/view/e3ac?i=4622

>

>

Plagiocephaly/spnew/view/e3ac?i=4625

>

>

Plagiocephaly/spnew/view/e3ac?i=4626

>

>

Plagiocephaly/spnew/view/e3ac?i=4624

>

>

> Sue

>

[Guest guest]

with both sides being flat it could just be that the repo position is

flattening one side. Of course it always helps to see a specialist,

but I don't want you too worry too much about cranio. Cranio is rare,

but important to rule out if it is suspected.

-christine

sydney 2 yrs starband grad

> > >

> > > Hi Everyone,

> > > I suspect my 6 months old son has plagiocephaly. He

> > > likes to sleep on his left side, and always turn to

> > > his left side when he is not sleeping. I have talked

> > > to our pediatrician since he was born, but she thinks

> > > he is fine. We have tried neck exercises & rotating

> > > his sleeping position according to the doctor's

> > > advice. Now that he is 6 months old, and I still

> > > don't see any improvement.

> > >

> > > I have uploaded his pictures, would appreciate if any

> > > of you can give me some advice. By the way, I live in

> > > San , if you can recommend a good doctor, that

> > > would be great! Thanks so much!

> > >

> > >

> Plagiocephaly/spnew/view/e3ac?

> > i=4622

> > >

> > >

> Plagiocephaly/spnew/view/e3ac?

> > i=4625

> > >

> > >

> Plagiocephaly/spnew/view/e3ac?

> > i=4626

> > >

> > >

> Plagiocephaly/spnew/view/e3ac?

> > i=4624

> > >

> > >

> > > Sue

> > >

> >

>