Lori

April 23, 1999

Oh yes, I plan on cornering them at the hearing next week!!! I also plan

on cornering Dr. Myers of BioPort. Will keep you posted on what

they have to say.

Lori

----------

| From: Rob and Traci York <robertyork@...>

| onelist

| Subject: Lori

| Date: Friday, April 23, 1999 12:22 PM

|

| From: Rob and Traci York <robertyork@...>

|

| Lori,

|

| Will you be contacting the FDA about your son?

|

| Traci....

|

November 8, 2000

lori,i am not a member and i got there,

1. go to main page, click on " links "

2. then click on " post the school district complience violations " , it will

show how many per state and then you can click on and read all of them....

just in the few five clicks i saw tons of florida, texas, and california,

andvirginia of course.....heheh hope this helps, leah

November 8, 2000

at least in texas i can say the healthcare for military was decent at least

for us.... and iknow lots of kids with leukemia whose parents are military

and chose san antonio because of services.... good luck and may the best

state win....leah

November 8, 2000

lmao lori,

ashton has her dorothy costume from last year and her red shiny shoes if you

would like to borrow them....lmao

November 8, 2000

Do you have to be a member to get to the complaints part? I didn't see it

listed.

Loriann

Wife to Dewight

Mom to , 10 years, DS-ASD, ADHD, ODD

And , 16 months and Strong Willed

November 8, 2000

Thanks. At least Texas is fewer than California and Florida. But I noticed

Hawaii only had one and I know of a family that had to take the school to court

twice just herself. I just found out today that he (the son with autism) is in

private school this time. The first time they had a reporter follow the case.

The principal tried to throw the reporter out of the IEP - when parents can have

anyone in that they want to - and they took them to court. The second time they

had pictures of abuse that showed up on POLOROIDS, so you know how deep the

bruises were. He's non-verbal, only echolalic and about 7 or 8.

So, I take sites like that with a grain of salt.....depends on how vocal parents

are. If we would all submit complaints, I guess it would be more

representative. Just because Texas was less than California, doesn't mean it's

better. I guess I'll just pray for the right decision.

Loriann

Wife to Dewight

Mom to , 10 years, DS-ASD, ADHD, ODD

And , 16 months and Strong Willed

November 8, 2000

Thanks....

We are only considering San Diego because that's the hospital that he would have

gone to had he needed his surgery while here. I guess you just MAKE it work. I

did so hope that I could find a state where I didn't have to fight.....now click

my heels together 3 times....

Loriann

Wife to Dewight

Mom to , 10 years, DS-ASD, ADHD, ODD

And , 16 months and Strong Willed

November 9, 2000

In a message dated 11/8/00 9:55:47 PM Pacific Standard Time,

hsmyangel@... writes:

<< now click my heels together 3 times.... >>

ROFLMBO Loriann! California special Ed departments just got handed I forget

how much in surplus money but lets see the school districts eat it up in ways

that our kids never ever see...I have not heard of one state that made life

easy on us parents, but if anyone out there has, please by all means let all

of us know! I think my husband could transfer there as long as American

Airlines flies there

Jeannie

Mom to Mark and

November 20, 2000

good grief lori, sounds like you have your hands full. are you going to do

all of this before you move and retire????/ poor david, gotta feel for the

kid....take care and tonsof luck///// ps ashtons appetite has slowed at lunch

and dinner, but breakfast she is starving....

November 20, 2000

Well, he's doing marvelously, appetite is down, so the weight gain is curbed for

a bit. Our problem is that now the doc thinks he's celiac disease (allergic to

gluten - wheat, oats, barley and rye) and not autistic at all. I may ask the

Psychiatrist if we can wean him off all drugs and see how he is after we get him

back on the gf diet. Have to be back on gluten for 3 months to do a biopsy of

his intestine to prove he's celiac.

As the diagnoses turn.

Loriann

Wife to Dewight

Mom to , 10 years, DS-ASD, ADHD, ODD, possibly to lose all but DS and gain

Celiac

And , 17 months and Strong Willed

November 20, 2000

Hopefully every thing will be done by then. We have to put gluten powder in his

food for 3 months, then his intestines will be " damaged " again and we can do a

biopsy to prove he's celiac. AFTER we get the celiac diagnosis, we'll go to a

well known Autistic doctor here for a full re-assessment, compliments of the

state of Hawaii. I don't look forward to 3 months of spaced out kid, though.

Loriann

Wife to Dewight

Mom to , 10 years, DS-ASD, ADHD, ODD, possibly to lose all but DS and gain

Celiac

And , 17 months and Strong Willed

July 6, 2001

In a message dated 7/6/01 2:52:06 AM Pacific Daylight Time,

writes:

> , great news at the neuro, mine wouldn't even talk to me about meds,

> since Tommy really isn't having seizure activity.

>

Lori, the neuro. guy says since 's EEG was normal back in March, he is

against having an MRI/CAT scan done on , since it requires anesthesia,

and he seriously doubts 's got any seizure prob's......funny, how the

antiseizure med's were the only effective ones for (for a little while

anyway!).

Boy, I'm really posting a lot lately......hope I don't bore youse guys too

much with my ramblings!!

P.S. by the way, someone asked if 's still on Risperal....a resounding

" NO " ....we discontinued that months ago when went bonkers on it.....got

worse, instead of better.

July 6, 2001

In a message dated 7/6/2001 3:24:04 PM EST, Ltb3105@... writes:

<< by the way, someone asked if 's still on Risperal....a resounding

" NO " ....we discontinued that months ago when went bonkers on it.....got

worse, instead of better.

>>

Ray had a negative effect on Risperdal too. It caused constant

movement, weight gain and more violence than we have had before or after

using it. He did sleep better on it than anything else. Peggy

July 6, 2001

haha your not rambling. I hope everyone had a good

4th, mine was fine could have been better. Hope

everyone has a good weekend. Hopefully I'll manage to

babysitt for 7 hours tomorrow- hopefully it'll go by

fast.

--- Ltb3105@... wrote:

> In a message dated 7/6/01 2:52:06 AM Pacific

> Daylight Time,

> writes:

>

> > , great news at the neuro, mine wouldn't

> even talk to me about meds,

> > since Tommy really isn't having seizure activity.

> >

>

> Lori, the neuro. guy says since 's EEG was

> normal back in March, he is

> against having an MRI/CAT scan done on , since

> it requires anesthesia,

> and he seriously doubts 's got any seizure

> prob's......funny, how the

> antiseizure med's were the only effective ones for

> (for a little while

> anyway!).

>

> Boy, I'm really posting a lot lately......hope I

> don't bore youse guys too

> much with my ramblings!!

>

> P.S. by the way, someone asked if 's still on

> Risperal....a resounding

> " NO " ....we discontinued that months ago when

> went bonkers on it.....got

> worse, instead of better.

>

> [Non-text portions of this message have been

> removed]

>

> --------------------------------------------------

> Checkout our homepage for information,

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> --------------------------------------------

>

April 6, 2003

Very nice site, Lori. I can't believe you've only been doing this for

a short time. You should be very proud.

Re: swaps ??

> Not too often yet, but if ever you want to initiate one... just

shoute!

> What kinds of soaps do you do?? How long? What else do you do?

Sorry the

> questions, just trying to get to know you better

>

> Shaye

Check out my (new) website for the soaps I do ( www.aromanorth.com )-

mostly nongelled - also do lotions ,bath treatmnets ...been soaping

about 1 & 1/2 years ( not that long I know ...but have learned so much

so fast cuz I luv it sooo !!) ...put my website up around holiday

time - thanks for asking !

Lori

October 3, 2003

Lori......Forget waiting for your doctor to call back. Go to the E.R.

immediately. Maybe the loss of blood is just a warning of what is about to

happen.

I don't want to scare you but at the same time, I do. I feel that this is

nothing to wait upon. Get your tush out the door now!

xxoo,

Carmen

January 20, 2004

You're welcome Jessa, I hope it's helpful in some way and I stand by

my pledge to help you if I am able. Take it one day at a time if you

can (easy to say, much harder to do!!! don't I know it)

Lori

> Lori,

>

> I really appreciated everything you said. As soon as I get my act

> together, I'll e-mail. Philly, to answer your question. Center

> City, to be more specific. Hopefully, somewhere else by summer.

>

> Thanks for everything.

>

> -Jessa

January 31, 2004

Lori,

i dont think I have spoken to her...maybe she could get in touch with me, or join the group?

any input would be appreciated

I hope we here something soon from Madelines mom

heather

March 17, 2005

Lori...I am not a " suer " by nature. I did ask an attorney if I had

any recourse because my family was pushing it...they were mad! He

said allergic reactions per se are not malpractice because you

survive them with no residual damamge. He also said if I went 180

(his words) my family would be rich. The hospital billed me for the

extra three hours, anesthesiologist, and respiratory care. I called

them and told them I would pay the bill up to the point they tried

to kill me...they agreed! Trudy.

>

> Trudy, thanks for answering my question, I understand more now

what I

> wanted to know. I feel for you with everything that has happened

to

> you in your life because of illness. That's an awful story about

the

> Toradol. Geez. Could you have sued them? (Sigh) I'm not a big

> proponent of malpractice suits but in that case, wow.

>

> Well, sending you some strength. I'm glad you have found this

group.

>

> Lori

September 22, 2005

Hi Joy and All,

We are fine at the moment. Our initial plan was to leave but there are

no hotel rooms in Dallas, Austin, or San (I checked). Then we

thought we'd just start driving west but until an hour ago traffic was

pretty much not moving (cars are running out of gas and

over-heating....100 deg. here yesterday, 98 today) and I didn't like the

idea of driving with no place to go. So, this morning I thought I'd try

to find a hotel room here in Houston so as least if our house floods we

could be higher than ground floor. After several trys, I found a forth

floor room very nearby. The hotel just called and asked if there was

any way that I could cancel my reservation due to the storm. I, of

course, said no and that I need to get above ground level. He said all

other new reservations were being canceled and I said I would have to

ask for an exception. He said " ok, bye " so I am taking that as my

reservation is still good and we will be there at check-in time

tomorrow. The guests already there are staying so they aren't

completely closing down. We may have an argument to deal with but we

will be staying there.

I'll let y'all know how we do. Thanks for checking on us!

Lori

Joy wrote:

>

> Hey Lori,

>

> I just saw on the news that Houston people might need to evacuate

> because of the storm... are you guys ok?

>

> Anyone else on the list in Texas?

>

> Yikes!

>

> __________________________________________________

>

September 22, 2005

Lori -

Hope everything works out fine! I heard Rita was downgraded to a 4, and

that it might loose even more power by landfall. Not that any hurricane

is good.

Jenn

September 22, 2005

Thank you. Will update after the storm.

L

Jenn Malatesta wrote:

> Lori -

>

> Hope everything works out fine! I heard Rita was downgraded to a 4, and

> that it might loose even more power by landfall. Not that any hurricane

> is good.

>

> Jenn

September 22, 2005

sounds grim lori

though i am sure you will deal with it very capably

will be thinking of you and watching the international news

linda

Re: Lori