Re: Feeling panicky!

[Guest guest]

,How about checking with thermography??? I haven't had this type. But I have had 4 suspicious breast lumps. Thermography and ultrasound gave me great peace of mind. Then I when I knew it wasn't spreading anywhere, I would be more comfortable and confidant at continuing a natural path.

 You may also consider having a Rife Beam Ray light. I have had friend with a massive melanoma skin cancer who had 90 minute treatment that made it turn black and fall off.It is said to work on 50% of cancers and even some surgeons and hospitals have used them effectively. I have had eye infections and sinus infections and ear infections clear with just the light. It also was 5 years ahead of me and my doctors on figuring out I had FM. I have a B-3000 which was about a thousand on Craig's List. Pam

On Tue, Jan 18, 2011 at 9:48 AM, Kuziw <akuziw@...> wrote:

 

Hi all

 

here - you may have seen me post before and I have papillary thyroid cancer in the left side and have been working on healing as naturally as possible without having to resort to surgery and RAI

 

Here's what I am feeling at the moment - scared to death!  I have been taking the lugols iodine (20 drops am and 18 drops pm) - with lots of other of the recommended supplementation, have cut down massively on the gluten & dairy and have had a discussion with my alternative doctor today who says I have done very well with my nutrition regime etc etc and maybe I should now consider they TT now that I am stronger - I feel gutted with this.  Is there really no alternative after all?   and all of you in this group - I have read many times you would have done something different had you been given the options - am I just delaying the inevitable after all or should I still keep going on the path I have chosen?  I really don't want to take more unecessary risks if in the end I have to have the surgery anyway.

BTW, there was no evidence of any growth at my second ultrasound scan 6 months after the first -

 

I need some help - my brain is mush at the moment - any suggestions anyone?

 

Thanks

 

A

 

[Guest guest]

For what it's worth, detox can increase your feeling of anxiety (not to mention how much the C word does!)Do bear in mind that while doctors act as though mainstream cancer treatment is your only hope & always successful, in truth, it is neither. My ex-wife-in-law was declared cancer-free by her doctor -- shortly before the cancer came roaring back & killed her. They act more certain than they are. And they also act as though you will drop dead any minute if you don't obey them -- which is also not true.Natural approaches tend to be more gradual -- which is not necessarily a bad thing. I have read that you can die from killing a cancer too fast, as your liver gets overwhelmed trying to get rid of the dead tissue. (Mainstream docs tend to think that fast results are best.)Since the lump is on your thyroid (isn't "lump" a much friendlier word?), & since my nodule seems to prefer topical application, I would suggest that you rub Lugol's on your neck at bedtime, in addition to the internal drops.As to whether you are doing the right thing -- well, how do you feel? And how would you feel if you go the other way? This is a really personal decision, that nobody (including a doctor) should make for you. But if you are feeling stronger, isn't that a message from your body?Good luck making your decision. By all means, take some time.AnneOn Jan 18, 2011, at 9:48 AM, Kuziw wrote: Hi all here - you may have seen me post before and I have papillary thyroid cancer in the left side and have been working on healing as naturally as possible without having to resort to surgery and RAI Here's what I am feeling at the moment - scared to death! I have been taking the lugols iodine (20 drops am and 18 drops pm) - with lots of other of the recommended supplementation, have cut down massively on the gluten & dairy and have had a discussion with my alternative doctor today who says I have done very well with my nutrition regime etc etc and maybe I should now consider they TT now that I am stronger - I feel gutted with this. Is there really no alternative after all? and all of you in this group - I have read many times you would have done something different had you been given the options - am I just delaying the inevitable after all or should I still keep going on the path I have chosen? I really don't want to take more unecessary risks if in the end I have to have the surgery anyway. BTW, there was no evidence of any growth at my second ultrasound scan 6 months after the first - I need some help - my brain is mush at the moment - any suggestions anyone? Thanks A

[Guest guest]

-

Healing is a process and you will not get instant results. Mental attitude effects your healing as well so try not to stress too much. As you get better and better and feel well trust that your body is healing. I know that underlying feeling of wondering "what if" is horrible. I live with it daily. Even removing and radiating does not solve the problem. There are many that have healed of life threatening cancers naturally. Doctors only know cut, poison, burn so his suggestion to remove your thyroid is rooted in the only option he understands - rip it out! That fixes it all. Well it doesn't.

Are you paying attention to eating a whole foods diet rich in nutrients. Are you making a conscious effort to detox your body? I did a detox program from Metagenics that was called Ultra Clear Plus and required 28 days and a food elimination protocol. I believe in detoxing for healing. Do you have amalgam fillings? I made faster progress when removing my amalgams and chelating.

No one can tell you what to do or even how to do it. Listen to your body and it will tell you what you need. Thyroid cancer can come on for up to 10 years prior so it may take some time to eliminate it.

I give you credit for going against the grain. It takes courage.

Steph

Feeling panicky!

Hi all

here - you may have seen me post before and I have papillary thyroid cancer in the left side and have been working on healing as naturally as possible without having to resort to surgery and RAI

Here's what I am feeling at the moment - scared to death! I have been taking the lugols iodine (20 drops am and 18 drops pm) - with lots of other of the recommended supplementation, have cut down massively on the gluten & dairy and have had a discussion with my alternative doctor today who says I have done very well with my nutrition regime etc etc and maybe I should now consider they TT now that I am stronger - I feel gutted with this. Is there really no alternative after all? and all of you in this group - I have read many times you would have done something different had you been given the options - am I just delaying the inevitable after all or should I still keep going on the path I have chosen? I really don't want to take more unecessary risks if in the end I have to have the surgery anyway.

BTW, there was no evidence of any growth at my second ultrasound scan 6 months after the first -

I need some help - my brain is mush at the moment - any suggestions anyone?

Thanks

A

[Guest guest]

-- This is good advice from Anne and others. If there has been no

progression in 6 months, that means it's been arrested. Don't you think

that is very positive? Dealing with it nutritionally will take more time

but in the end you will be stronger. If you get the surgery you will be

weaker, and as Steph has tried to convey to people, weaker for the rest of

one's life. That's why she tries so hard to support people in making the

choice for giving the iodine protocol a real opportunity to work.

As Anne said, doctors have it instilled in them in med school that the

Western cut and burn and poison approach is the only true treatment for

cancer. So even MDs who have educated themselves about the alternatives

still often react this way with cancer. And, they are incredibly pressured

to force their patients through the standard mill. Doctors can lose their

license because they aren't prescribing Western drugs frequently

enough. That's how bad it is. So, forgive your doctor for pressuring you,

but take this information to heart about his motivations.

As I see it, arrested development is a requirement of turning it around and

shrinking it. So you're in good shape. Since you're stronger and having

the urge to do more, why not consider pushing your iodine up

higher? Definitely rub it on the outside of your throat. A number of

people have reported shrinkage of both thyroid nodules and cystic breasts

by adding external application of Lugol's.

Also, someone mentioned thermography. I too was spared having to accept

breast surgery because I had thermography done. Thermography can monitor

your progress very sensitively and it's completely noninvasive/poison free,

so you're not increasing your toxic burden by getting it done. (Unlike

radiation techniques)

In any case, the fact that it's been arrested, is not getting any larger in

6 months, should give you confidence. You expressed worry that you might

go through all this and then still have to have the surgery. Even if that

proved to be the case, by giving your body the time and nutritional support

to repair itself, you're building strength on a cellular level that really

would increase your long-term well being, even with the surgery. In terms

of the day to day living right now, have confidence and live your life

fully. You know it's been arrested, so now you can view this as a project

for long-term well being and move on with other aspects of your life, not

living entirely within the cancer diagnosis.

my thoughts.

--

>For what it's worth, detox can increase your feeling of anxiety (not to

>mention how much the C word does!)

>

>Do bear in mind that while doctors act as though mainstream cancer

>treatment is your only hope & always successful, in truth, it is neither.

>My ex-wife-in-law was declared cancer-free by her doctor -- shortly before

>the cancer came roaring back & killed her. They act more certain than they

>are. And they also act as though you will drop dead any minute if you

>don't obey them -- which is also not true.

>

>Natural approaches tend to be more gradual -- which is not necessarily a

>bad thing. I have read that you can die from killing a cancer too fast, as

>your liver gets overwhelmed trying to get rid of the dead tissue.

>(Mainstream docs tend to think that fast results are best.)

>

>Since the lump is on your thyroid (isn't " lump " a much friendlier word?),

> & since my nodule seems to prefer topical application, I would suggest

>that you rub Lugol's on your neck at bedtime, in addition to the internal

>drops.

>

>As to whether you are doing the right thing -- well, how do you feel? And

>how would you feel if you go the other way? This is a really personal

>decision, that nobody (including a doctor) should make for you. But if you

>are feeling stronger, isn't that a message from your body?

>

>Good luck making your decision. By all means, take some time.

>

>Anne

>

>

>On Jan 18, 2011, at 9:48 AM, Kuziw wrote:

>

>>

>>

>>Hi all

>>

>> here - you may have seen me post before and I have papillary thyroid

>>cancer in the left side and have been working on healing as naturally as

>>possible without having to resort to surgery and RAI

>>

>>Here's what I am feeling at the moment - scared to death! I have been

>>taking the lugols iodine (20 drops am and 18 drops pm) - with lots of

>>other of the recommended supplementation, have cut down massively on the

>>gluten & dairy and have had a discussion with my alternative doctor today

>>who says I have done very well with my nutrition regime etc etc and maybe

>>I should now consider they TT now that I am stronger - I feel gutted with

>>this. Is there really no alternative after all? and all of

>>you in this group - I have read many times you would have done something

>>different had you been given the options - am I just delaying the

>>inevitable after all or should I still keep going on the path I have

>>chosen? I really don't want to take more unecessary risks if in the end

>>I have to have the surgery anyway.

>>BTW, there was no evidence of any growth at my second ultrasound scan 6

>>

>>

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

:

I have multifocal papillary cancer, on both lobes, largest nodules biopsied are

1.3cm and 9mm respectively. I was diagnosed six months ago. It came as a total

shock and was discovered incidentally.

At first I was DETERMINED to beat it solely with iodine protocol, with organic,

sugar/dairy free diet, with water filters and all- natural cleaners and soaps,

with drinking Reliv cancer-killer shakes(strong anecdotal evidence)and taking

LDN, turmeric,adrenal glandulars and more. I was killing myself with pills and

potions. But it was worth it cause I was gonna beat it.

Then I learned that there was more to it, that there was even disagreement among

iodine docs about leaving the thyroid in--many recommended getting it out--and

NOBODY could give me ANY idea of how long it would take to cure it. I mean it,

nobody. They always hedged when I asked that question. So then I started

seriously considering surgery--I consulted with THREE surgeons here in Rochester

AND the Cleveland Clinic! I was under unbelievable pressure from my entire

family, and I was extremely emotional anyway, terrified of dying, and of the

iodine protocol not working.

But my FEAR of surgery and FEAR of the consequences of the surgery and of life

without a thyroid was what ultimately kept me off the table. I just couldn't go

through with it, even if not doing it meant the cancer would win! Plus, I knew

that there were protocols,iodine and others, which could help me.

After several ultrasounds, a thermography, and even a lymph-node biopsy(I

insisted, even though they couldn't even find any abnormal- size nodes) I

FINALLY settled down. This thing grows SO slowly that I now realize I can live

with it like this for awhile.

It has not changed in 6 mos. This means that I have time to try numerous

alternative cancer treatments in addition to keeping up my iodine protocol. It

also means that even while doing the protocol imperfectly, my cancer didn't

grow.(for example, I couldn't eliminate gluten or sugar entirely or immediatley,

haven't been able to get amalgams out yet, took awhile to get rid of flouride

and chlorine,etc.)

I also have time to be a little gentler with my pace. Therefore, I am now down

to 125mgs iodine, building up much more slowly to higher amounts. I started to

get too sick on 200-300 mgs. I am fine now. I am finding a sane way to do the

iodine protocol and change my lifestyle.( I was vegetarian and a runner, how did

I get sick??)

There is precedent for waiting on surgery, much of it in Japanese literature,

but also in a Dartmouth study published in NY Times a number of years ago. Of

35,000 papillary cancer patients--cancer which at time of diagnostic ultrasound

had not spread outside of thyroid--2%(about 700)opted for doing NOTHING. 20

years later, the percentage of success(meaning had not died from their

cancer)was 95% of the 700 and 97% of the rest. The upshot? " Cancer patients can

be confident in taking a wait and see approach for a year or more "

Meanwhile, those of us who are armed with an iodine protocol have a much better

chance of keeping this arrested even longer than a year, perhaps forever. I am

now even coming to accept that even if I ONLY keep this thing from growing, as

opposed to eliminating it as I had hoped, it might still be enough for me to

stay out of surgery indefinitely. I cannot say for sure. But I would have had

enough time and consulation with Naturopaths to feel secure in that decision. My

plan is NEVER to have RAI. My hope, honestly, is to rid myself of it, but it

might take 5-7 years. Steph got rid of hers after four years, but then again she

had lots of RAI damage hindering her.

It is, as they say, an indolent cancer, which means it is not aggressive and

does not in and of itself mess with thyroid and other functions.In fact, the

theory here is that conditions in the body(such as lack of iodine)cause the

cancer, as opposed to the thyroid cancer causing conditions of the body.All my

labs are good--thyroid, renal, liver, antibodies,cortisol, etc--and now if they

come back with bad numbers, I have learned to just research it and figure out

how to fix it.

I say keep tuned-in to the boards and just keep taking iodine(and protocol) in

the largest amounts you feel comfortable with. I wouldn't rush to surgery. Even

one of my surgeons told me I should feel more confident about surgery before I

have it, and that this was not life-threatening now.

The longer you go on with your life without the surgery, the more clearly you

will think about it and the more time you will give your body to use the iodine

protocol to get healthy.

Trust me, I was a mess. Absolutely grief-stricken. I no longer feel that way

about it. I am more glad every day that I did not have a TT. I pray for total

healing of my thyroid.

My apologies to all for the long-windedness. Anyone want to volunteer to be my

editor before I post next time?

Marcy

> >

> >>

> >>

> >>Hi all

> >>

> >> here - you may have seen me post before and I have papillary thyroid

> >>cancer in the left side and have been working on healing as naturally as

> >>possible without having to resort to surgery and RAI

> >>

> >>Here's what I am feeling at the moment - scared to death! I have been

> >>taking the lugols iodine (20 drops am and 18 drops pm) - with lots of

> >>other of the recommended supplementation, have cut down massively on the

> >>gluten & dairy and have had a discussion with my alternative doctor today

> >>who says I have done very well with my nutrition regime etc etc and maybe

> >>I should now consider they TT now that I am stronger - I feel gutted with

> >>this. Is there really no alternative after all? and all of

> >>you in this group - I have read many times you would have done something

> >>different had you been given the options - am I just delaying the

> >>inevitable after all or should I still keep going on the path I have

> >>chosen? I really don't want to take more unecessary risks if in the end

> >>I have to have the surgery anyway.

> >>BTW, there was no evidence of any growth at my second ultrasound scan 6

> >>

> >>

>

>

> ~~~ There is no way to peace; peace is the way ~~~~

> --A.J. Muste

>

[Guest guest]

Marcy,

It is wonderful to read your post. I can see you have really done your research and I can tell you are empowered by your choices. This is a very good thing. I know just what you have been going through and I admire your resolve. Thank you for sharing this with us. Kathleen

Re: Feeling panicky!

:I have multifocal papillary cancer, on both lobes, largest nodules biopsied are 1.3cm and 9mm respectively. I was diagnosed six months ago. It came as a total shock and was discovered incidentally.At first I was DETERMINED to beat it solely with iodine protocol, with organic, sugar/dairy free diet, with water filters and all- natural cleaners and soaps, with drinking Reliv cancer-killer shakes(strong anecdotal evidence)and taking LDN, turmeric,adrenal glandulars and more. I was killing myself with pills and potions. But it was worth it cause I was gonna beat it.Then I learned that there was more to it, that there was even disagreement among iodine docs about leaving the thyroid in--many recommended getting it out--and NOBODY could give me ANY idea of how long it would take to cure it. I mean it, nobody. They always hedged when I asked that question. So then I started seriously considering surgery--I consulted with THREE surgeons here in Rochester AND the Cleveland Clinic! I was under unbelievable pressure from my entire family, and I was extremely emotional anyway, terrified of dying, and of the iodine protocol not working.But my FEAR of surgery and FEAR of the consequences of the surgery and of life without a thyroid was what ultimately kept me off the table. I just couldn't go through with it, even if not doing it meant the cancer would win! Plus, I knew that there were protocols,iodine and others, which could help me.After several ultrasounds, a thermography, and even a lymph-node biopsy(I insisted, even though they couldn't even find any abnormal- size nodes) I FINALLY settled down. This thing grows SO slowly that I now realize I can live with it like this for awhile. It has not changed in 6 mos. This means that I have time to try numerous alternative cancer treatments in addition to keeping up my iodine protocol. It also means that even while doing the protocol imperfectly, my cancer didn't grow.(for example, I couldn't eliminate gluten or sugar entirely or immediatley, haven't been able to get amalgams out yet, took awhile to get rid of flouride and chlorine,etc.)I also have time to be a little gentler with my pace. Therefore, I am now down to 125mgs iodine, building up much more slowly to higher amounts. I started to get too sick on 200-300 mgs. I am fine now. I am finding a sane way to do the iodine protocol and change my lifestyle.( I was vegetarian and a runner, how did I get sick??)There is precedent for waiting on surgery, much of it in Japanese literature, but also in a Dartmouth study published in NY Times a number of years ago. Of 35,000 papillary cancer patients--cancer which at time of diagnostic ultrasound had not spread outside of thyroid--2%(about 700)opted for doing NOTHING. 20 years later, the percentage of success(meaning had not died from their cancer)was 95% of the 700 and 97% of the rest. The upshot? "Cancer patients can be confident in taking a wait and see approach for a year or more"Meanwhile, those of us who are armed with an iodine protocol have a much better chance of keeping this arrested even longer than a year, perhaps forever. I am now even coming to accept that even if I ONLY keep this thing from growing, as opposed to eliminating it as I had hoped, it might still be enough for me to stay out of surgery indefinitely. I cannot say for sure. But I would have had enough time and consulation with Naturopaths to feel secure in that decision. My plan is NEVER to have RAI. My hope, honestly, is to rid myself of it, but it might take 5-7 years. Steph got rid of hers after four years, but then again she had lots of RAI damage hindering her.It is, as they say, an indolent cancer, which means it is not aggressive and does not in and of itself mess with thyroid and other functions.In fact, the theory here is that conditions in the body(such as lack of iodine)cause the cancer, as opposed to the thyroid cancer causing conditions of the body.All my labs are good--thyroid, renal, liver, antibodies,cortisol, etc--and now if they come back with bad numbers, I have learned to just research it and figure out how to fix it.I say keep tuned-in to the boards and just keep taking iodine(and protocol) in the largest amounts you feel comfortable with. I wouldn't rush to surgery. Even one of my surgeons told me I should feel more confident about surgery before I have it, and that this was not life-threatening now. The longer you go on with your life without the surgery, the more clearly you will think about it and the more time you will give your body to use the iodine protocol to get healthy.Trust me, I was a mess. Absolutely grief-stricken. I no longer feel that way about it. I am more glad every day that I did not have a TT. I pray for total healing of my thyroid.My apologies to all for the long-windedness. Anyone want to volunteer to be my editor before I post next time?Marcy> >> >>> >>> >>Hi all> >>> >> here - you may have seen me post before and I have papillary thyroid > >>cancer in the left side and have been working on healing as naturally as > >>possible without having to resort to surgery and RAI> >>> >>Here's what I am feeling at the moment - scared to death! I have been > >>taking the lugols iodine (20 drops am and 18 drops pm) - with lots of > >>other of the recommended supplementation, have cut down massively on the > >>gluten & dairy and have had a discussion with my alternative doctor today > >>who says I have done very well with my nutrition regime etc etc and maybe > >>I should now consider they TT now that I am stronger - I feel gutted with > >>this. Is there really no alternative after all? and all of > >>you in this group - I have read many times you would have done something > >>different had you been given the options - am I just delaying the > >>inevitable after all or should I still keep going on the path I have > >>chosen? I really don't want to take more unecessary risks if in the end > >>I have to have the surgery anyway.> >>BTW, there was no evidence of any growth at my second ultrasound scan 6> >>> >>> > > ~~~ There is no way to peace; peace is the way ~~~~> --A.J. Muste>

[Guest guest]

Marcy,Thank you for such a clear sharing of your journey. I am going to keep this e-mail for future reference. I don’t think you need an editor, you expressed it well! How encouraging! Donna in IL :I have multifocal papillary cancer, on both lobes, largest nodules biopsied are 1.3cm and 9mm respectively. I was diagnosed six months ago. It came as a total shock and was discovered incidentally.At first I was DETERMINED to beat it solely with iodine protocol, with organic, sugar/dairy free diet, with water filters and all- natural cleaners and soaps, with drinking Reliv cancer-killer shakes(strong anecdotal evidence)and taking LDN, turmeric,adrenal glandulars and more. I was killing myself with pills and potions. But it was worth it cause I was gonna beat it.Then I learned that there was more to it, that there was even disagreement among iodine docs about leaving the thyroid in--many recommended getting it out--and NOBODY could give me ANY idea of how long it would take to cure it. I mean it, nobody. They always hedged when I asked that question. So then I started seriously considering surgery--I consulted with THREE surgeons here in Rochester AND the Cleveland Clinic! I was under unbelievable pressure from my entire family, and I was extremely emotional anyway, terrified of dying, and of the iodine protocol not working.But my FEAR of surgery and FEAR of the consequences of the surgery and of life without a thyroid was what ultimately kept me off the table. I just couldn't go through with it, even if not doing it meant the cancer would win! Plus, I knew that there were protocols,iodine and others, which could help me.After several ultrasounds, a thermography, and even a lymph-node biopsy(I insisted, even though they couldn't even find any abnormal- size nodes) I FINALLY settled down. This thing grows SO slowly that I now realize I can live with it like this for awhile. It has not changed in 6 mos. This means that I have time to try numerous alternative cancer treatments in addition to keeping up my iodine protocol. It also means that even while doing the protocol imperfectly, my cancer didn't grow.(for example, I couldn't eliminate gluten or sugar entirely or immediatley, haven't been able to get amalgams out yet, took awhile to get rid of flouride and chlorine,etc.)I also have time to be a little gentler with my pace. Therefore, I am now down to 125mgs iodine, building up much more slowly to higher amounts. I started to get too sick on 200-300 mgs. I am fine now. I am finding a sane way to do the iodine protocol and change my lifestyle.( I was vegetarian and a runner, how did I get sick??)There is precedent for waiting on surgery, much of it in Japanese literature, but also in a Dartmouth study published in NY Times a number of years ago. Of 35,000 papillary cancer patients--cancer which at time of diagnostic ultrasound had not spread outside of thyroid--2%(about 700)opted for doing NOTHING. 20 years later, the percentage of success(meaning had not died from their cancer)was 95% of the 700 and 97% of the rest. The upshot? " Cancer patients can be confident in taking a wait and see approach for a year or more " Meanwhile, those of us who are armed with an iodine protocol have a much better chance of keeping this arrested even longer than a year, perhaps forever. I am now even coming to accept that even if I ONLY keep this thing from growing, as opposed to eliminating it as I had hoped, it might still be enough for me to stay out of surgery indefinitely. I cannot say for sure. But I would have had enough time and consulation with Naturopaths to feel secure in that decision. My plan is NEVER to have RAI. My hope, honestly, is to rid myself of it, but it might take 5-7 years. Steph got rid of hers after four years, but then again she had lots of RAI damage hindering her.It is, as they say, an indolent cancer, which means it is not aggressive and does not in and of itself mess with thyroid and other functions.In fact, the theory here is that conditions in the body(such as lack of iodine)cause the cancer, as opposed to the thyroid cancer causing conditions of the body.All my labs are good--thyroid, renal, liver, antibodies,cortisol, etc--and now if they come back with bad numbers, I have learned to just research it and figure out how to fix it.I say keep tuned-in to the boards and just keep taking iodine(and protocol) in the largest amounts you feel comfortable with. I wouldn't rush to surgery. Even one of my surgeons told me I should feel more confident about surgery before I have it, and that this was not life-threatening now. The longer you go on with your life without the surgery, the more clearly you will think about it and the more time you will give your body to use the iodine protocol to get healthy.Trust me, I was a mess. Absolutely grief-stricken. I no longer feel that way about it. I am more glad every day that I did not have a TT. I pray for total healing of my thyroid.My apologies to all for the long-windedness. Anyone want to volunteer to be my editor before I post next time?Marcy> >> >>> >>> >>Hi all> >>> >> here - you may have seen me post before and I have papillary thyroid > >>cancer in the left side and have been working on healing as naturally as > >>possible without having to resort to surgery and RAI> >>> >>Here's what I am feeling at the moment - scared to death! I have been > >>taking the lugols iodine (20 drops am and 18 drops pm) - with lots of > >>other of the recommended supplementation, have cut down massively on the > >>gluten & dairy and have had a discussion with my alternative doctor today > >>who says I have done very well with my nutrition regime etc etc and maybe > >>I should now consider they TT now that I am stronger - I feel gutted with > >>this. Is there really no alternative after all? and all of > >>you in this group - I have read many times you would have done something > >>different had you been given the options - am I just delaying the > >>inevitable after all or should I still keep going on the path I have > >>chosen? I really don't want to take more unecessary risks if in the end > >>I have to have the surgery anyway.> >>BTW, there was no evidence of any growth at my second ultrasound scan 6> >>> >>> > > ~~~ There is no way to peace; peace is the way ~~~~> --A.J. Muste>

[Guest guest]

Marcy-- Thank you so much for every word you said! It's not too long, at

all. The best support comes from someone else in the same boat. I'm

saving your post for reference.

Congratulations on your process and for making strong choices! I hadn't

seen that research you quoted about survival rates. Very interesting. And

you're absolutely correct-- it's a lack of iodine that creates thyroid cancer.

Again, thank you so much for this beautiful and informative post.

--

At 10:18 PM 1/19/2011, you wrote:

>:

>I have multifocal papillary cancer, on both lobes, largest nodules

>biopsied are 1.3cm and 9mm respectively. I was diagnosed six months ago.

>It came as a total shock and was discovered incidentally.

>

>At first I was DETERMINED to beat it solely with iodine protocol, with

>organic, sugar/dairy free diet, with water filters and all- natural

>cleaners and soaps, with drinking Reliv cancer-killer shakes(strong

>anecdotal evidence)and taking LDN, turmeric,adrenal glandulars and more. I

>was killing myself with pills and potions. But it was worth it cause I was

>gonna beat it.

>

>Then I learned that there was more to it, that there was even disagreement

>among iodine docs about leaving the thyroid in--many recommended getting

>it out--and NOBODY could give me ANY idea of how long it would take to

>cure it. I mean it, nobody. They always hedged when I asked that

>question. So then I started seriously considering surgery--I consulted

>with THREE surgeons here in Rochester AND the Cleveland Clinic! I was

>under unbelievable pressure from my entire family, and I was extremely

>emotional anyway, terrified of dying, and of the iodine protocol not working.

>

>But my FEAR of surgery and FEAR of the consequences of the surgery and of

>life without a thyroid was what ultimately kept me off the table. I just

>couldn't go through with it, even if not doing it meant the cancer would

>win! Plus, I knew that there were protocols,iodine and others, which could

>help me.

>

>After several ultrasounds, a thermography, and even a lymph-node biopsy(I

>insisted, even though they couldn't even find any abnormal- size nodes) I

>FINALLY settled down. This thing grows SO slowly that I now realize I can

>live with it like this for awhile.

>

>It has not changed in 6 mos. This means that I have time to try numerous

>alternative cancer treatments in addition to keeping up my iodine

>protocol. It also means that even while doing the protocol imperfectly, my

>cancer didn't grow.(for example, I couldn't eliminate gluten or sugar

>entirely or immediatley, haven't been able to get amalgams out yet, took

>awhile to get rid of flouride and chlorine,etc.)

>

> I also have time to be a little gentler with my pace. Therefore, I am

> now down to 125mgs iodine, building up much more slowly to higher

> amounts. I started to get too sick on 200-300 mgs. I am fine now. I am

> finding a sane way to do the iodine protocol and change my lifestyle.( I

> was vegetarian and a runner, how did I get sick??)

>

>There is precedent for waiting on surgery, much of it in Japanese

>literature, but also in a Dartmouth study published in NY Times a number

>of years ago. Of 35,000 papillary cancer patients--cancer which at time of

>diagnostic ultrasound had not spread outside of thyroid--2%(about

>700)opted for doing NOTHING. 20 years later, the percentage of

>success(meaning had not died from their cancer)was 95% of the 700 and 97%

>of the rest. The upshot? " Cancer patients can be confident in taking a

>wait and see approach for a year or more "

>

>Meanwhile, those of us who are armed with an iodine protocol have a much

>better chance of keeping this arrested even longer than a year, perhaps

>forever. I am now even coming to accept that even if I ONLY keep this

>thing from growing, as opposed to eliminating it as I had hoped, it might

>still be enough for me to stay out of surgery indefinitely. I cannot say

>for sure. But I would have had enough time and consulation with

>Naturopaths to feel secure in that decision. My plan is NEVER to have RAI.

>My hope, honestly, is to rid myself of it, but it might take 5-7 years.

>Steph got rid of hers after four years, but then again she had lots of RAI

>damage hindering her.

>

>It is, as they say, an indolent cancer, which means it is not aggressive

>and does not in and of itself mess with thyroid and other functions.In

>fact, the theory here is that conditions in the body(such as lack of

>iodine)cause the cancer, as opposed to the thyroid cancer causing

>conditions of the body.All my labs are good--thyroid, renal, liver,

>antibodies,cortisol, etc--and now if they come back with bad numbers, I

>have learned to just research it and figure out how to fix it.

>

>I say keep tuned-in to the boards and just keep taking iodine(and

>protocol) in the largest amounts you feel comfortable with. I wouldn't

>rush to surgery. Even one of my surgeons told me I should feel more

>confident about surgery before I have it, and that this was not

>life-threatening now.

>The longer you go on with your life without the surgery, the more clearly

>you will think about it and the more time you will give your body to use

>the iodine protocol to get healthy.

>Trust me, I was a mess. Absolutely grief-stricken. I no longer feel that

>way about it. I am more glad every day that I did not have a TT. I pray

>for total healing of my thyroid.

>

>My apologies to all for the long-windedness. Anyone want to volunteer to

>be my editor before I post next time?

>

>Marcy

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

Do you know Marcy - this has been so helpful as we are currently going through the same thing, with the same worried feelings it seems! and thank you very much to all of you who have replied - I have done a number of things this week to move things forward. I am a great believer in fate and whilst speaking to a homeopathic friend of mine, he mentioned a doctor who has written some books, based in the uk who has specialised in thyroid - he visits the north of england only a few times a year and I contacted his office on the off chance and guess what? He is coming to my area this weekend and I have managed to secrue an appointment with him - he has now given up his medical licence to concentrate solely on the nutritional side I understand, his name is Dr Peatfield - I

will see what he has to say, can't do any harm, I don't think. It feels right that I should meet with him. If nothing else, my intuition has gotten stronger over this last year, so that is what I am relying on!

The two thermographies I have had done show that that there is no indication of any spread elsewhere - the lady who did them says she is happy to scan me again in a months time and we can monitor progress, which is great.

I can totally feel the emotional side with you all as obviously feelings are up and down depending on what's happening all around you and how strong you are feeling at the time. I have chosen only to share my information with my immediate family, so only my husband and children and a few select people at work. My mum, brothers, sister in law, cousins, etc etc don't have a clue. This is sometimes a strain in itself and I do feel for me it's the right thing to do at the moment.

My plan is never to have RAI either whatever else I may choose to do. I agree with you totally in that I too have that same fear of the consequences of the surgery and life without the thyroid more so it seems than the cancer itself. Weird how that is!

On a protocol level, re: upping the lugols, what would the group recommend upping it to? As I mentioned, I take 38 drops of the lugols recommended on this site. (2.2%) and seem ok with this, and if a higher dosage would be more beneficial, of course I will try to up what I take to that as gradually as required.

Thanks again for all your help

From: marcyzram <marcyzram@...>iodine Sent: Thu, 20 January, 2011 4:18:08Subject: Re: Feeling panicky!

:I have multifocal papillary cancer, on both lobes, largest nodules biopsied are 1.3cm and 9mm respectively. I was diagnosed six months ago. It came as a total shock and was discovered incidentally.At first I was DETERMINED to beat it solely with iodine protocol, with organic, sugar/dairy free diet, with water filters and all- natural cleaners and soaps, with drinking Reliv cancer-killer shakes(strong anecdotal evidence)and taking LDN, turmeric,adrenal glandulars and more. I was killing myself with pills and potions. But it was worth it cause I was gonna beat it.Then I learned that there was more to it, that there was even disagreement among iodine docs about leaving the thyroid in--many recommended getting it out--and NOBODY could give me ANY idea of how long it would take to cure it. I mean it, nobody. They always hedged when I asked that question. So then I started seriously considering surgery--I consulted with THREE

surgeons here in Rochester AND the Cleveland Clinic! I was under unbelievable pressure from my entire family, and I was extremely emotional anyway, terrified of dying, and of the iodine protocol not working.But my FEAR of surgery and FEAR of the consequences of the surgery and of life without a thyroid was what ultimately kept me off the table. I just couldn't go through with it, even if not doing it meant the cancer would win! Plus, I knew that there were protocols,iodine and others, which could help me.After several ultrasounds, a thermography, and even a lymph-node biopsy(I insisted, even though they couldn't even find any abnormal- size nodes) I FINALLY settled down. This thing grows SO slowly that I now realize I can live with it like this for awhile. It has not changed in 6 mos. This means that I have time to try numerous alternative cancer treatments in addition to keeping up my iodine protocol. It also means that even

while doing the protocol imperfectly, my cancer didn't grow.(for example, I couldn't eliminate gluten or sugar entirely or immediatley, haven't been able to get amalgams out yet, took awhile to get rid of flouride and chlorine,etc.)I also have time to be a little gentler with my pace. Therefore, I am now down to 125mgs iodine, building up much more slowly to higher amounts. I started to get too sick on 200-300 mgs. I am fine now. I am finding a sane way to do the iodine protocol and change my lifestyle.( I was vegetarian and a runner, how did I get sick??)There is precedent for waiting on surgery, much of it in Japanese literature, but also in a Dartmouth study published in NY Times a number of years ago. Of 35,000 papillary cancer patients--cancer which at time of diagnostic ultrasound had not spread outside of thyroid--2%(about 700)opted for doing NOTHING. 20 years later, the percentage of success(meaning had not died from their

cancer)was 95% of the 700 and 97% of the rest. The upshot? "Cancer patients can be confident in taking a wait and see approach for a year or more"Meanwhile, those of us who are armed with an iodine protocol have a much better chance of keeping this arrested even longer than a year, perhaps forever. I am now even coming to accept that even if I ONLY keep this thing from growing, as opposed to eliminating it as I had hoped, it might still be enough for me to stay out of surgery indefinitely. I cannot say for sure. But I would have had enough time and consulation with Naturopaths to feel secure in that decision. My plan is NEVER to have RAI. My hope, honestly, is to rid myself of it, but it might take 5-7 years. Steph got rid of hers after four years, but then again she had lots of RAI damage hindering her.It is, as they say, an indolent cancer, which means it is not aggressive and does not in and of itself mess with thyroid and other

functions.In fact, the theory here is that conditions in the body(such as lack of iodine)cause the cancer, as opposed to the thyroid cancer causing conditions of the body.All my labs are good--thyroid, renal, liver, antibodies,cortisol, etc--and now if they come back with bad numbers, I have learned to just research it and figure out how to fix it.I say keep tuned-in to the boards and just keep taking iodine(and protocol) in the largest amounts you feel comfortable with. I wouldn't rush to surgery. Even one of my surgeons told me I should feel more confident about surgery before I have it, and that this was not life-threatening now. The longer you go on with your life without the surgery, the more clearly you will think about it and the more time you will give your body to use the iodine protocol to get healthy.Trust me, I was a mess. Absolutely grief-stricken. I no longer feel that way about it. I am more glad every day that I did not

have a TT. I pray for total healing of my thyroid.My apologies to all for the long-windedness. Anyone want to volunteer to be my editor before I post next time?Marcy> >> >>> >>> >>Hi all> >>> >> here - you may have seen me post before and I have papillary thyroid > >>cancer in the left side and have been working on healing as naturally as > >>possible without having to resort to surgery and RAI> >>> >>Here's what I am feeling at the moment - scared to death! I have been > >>taking the lugols iodine (20 drops am and 18 drops pm) - with lots of > >>other of the recommended supplementation, have cut down massively on the > >>gluten & dairy and have had a discussion with my

alternative doctor today > >>who says I have done very well with my nutrition regime etc etc and maybe > >>I should now consider they TT now that I am stronger - I feel gutted with > >>this. Is there really no alternative after all? and all of > >>you in this group - I have read many times you would have done something > >>different had you been given the options - am I just delaying the > >>inevitable after all or should I still keep going on the path I have > >>chosen? I really don't want to take more unecessary risks if in the end > >>I have to have the surgery anyway.> >>BTW, there was no evidence of any growth at my second ultrasound scan 6> >>> >>> > > ~~~ There is no way to peace; peace is the way ~~~~> --A.J.

Muste>