Help needed

October 26, 2009

Hi 2

I am calling you Christana2 because we have a long standing member

called and we don't want to get you mixed up. Welcome to our forum

and I hope you get all the help and support you need here. You will soon get

used to how this forum works by using it on a regular basis, and do read

everything that is in our FILES section and anything you don't understand, just

shout and somebody will be along to try to find an answer.

The majority of sufferers of hypothyroidism have antibodies to

their thyroid gland. This is called 'Hashimoto's Disease' and is an autoimmune

disease. For some reason, you make antibodies specific to your thyroid gland,

and they see this gland as public enemy number one, and over the years, set

about its gradual destruction, so at the end of the day, they will nibble your

thyroid away completely. You are kept going on thyroid hormone replacement and

can be just as healthy as those who have their thyroid gland intact. You do

have antibodies to your thyroid, but not in great numbers, though they are

likely to grow.

Your TSH would be better at 1, rather than 2.1. It may rise as

antibodies attack your thyroid, but if you are really feeling dreadful , then

it would be best to write to your GP. Tell him that you are not happy waiting

another three months for another blood test, and that you feel your symptoms,

signs, temperature and other blood tests should be taken into account, rather

than relying on only TSH in considering whether you should be given a trial of

levothyroxine or not. Go to our web site www.tpa-uk.org.uk

and click on 'Hypothyroidism' and on the drop down Menu, click on 'Symptoms and

Signs'. Check yours against those there and write a list of those you are

suffering in your letter. Then list your 'signs' - these are what your doctor

should have seen. Take your basal temperature for 4 or 5 mornings before you

get out of bed. Normal temperature should be 98.6 degrees F. If yours is 97.8

9and it could be much less if you are truly hypothyroid), write these down in

the letter also. Next, list any members of your family who have a thyroid or

autoimmune disease - as this can come down the family line.

Ask in your letter for a FULL thyroid gland function test which

should include TSH, Free T4 and Free T3. Ask at the same time, for the

following blood tests to be done and let the doctor know that you are asking

for these because it is a medical fact that if any of them are low in the

reference range, your thyroid hormone will not be properly absorbed into your

cells. These are ferritin (stored iron), vitamin B12, vitamin D3, magnesium,

zinc, copper and folate and ask your GP if he would let you have the results of

all these tests, together with the reference range for each one. A doctor

cannot withhold such results.

Tell him in the letter that because you feel so bad and cannot

wait for another three months without at least a trial of thyroxine, that you

need a second opinion and ask for him to refer you to a specialist of your

choice. I have sent you a list of 'good' doctors and endocrinologists that you

might want to pick from to be referred to. You can also be referred outside of

your area.

Last, ask for your letter of requests to be placed into your medical

notes.

Hope this helps 2.

Luv - Sheila

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of c_hristina@...

Sent: 25 October 2009 21:55

thyroid treatment

Subject: Help needed

Hi

I was sent here by Jane on the PAS website and to mention Marmite, she said

Sheila will be on the look out for me and might be able to help me.

Sorry if I seem abit dense but struggling abit to work out how this all works.

What does it mean if I have Thyroid Peroxidase Ab (TPO) level of 127.0

TSH levels 3 weeks ago where 2.7 and last week 2.1. Awaiting all the other

thyroid levels, but GP won't do anything at the mo, have to retest TSH in 3

months. Not sure I can cope with feeling so crap for another 3 months tho :-(

Thanks

xx

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.423 / Virus Database: 270.14.31/2457 - Release Date: 10/24/09

14:31:00

October 27, 2009

Hi , If you have antibodies then it is likely, eventually your TSH will rise over the magic 10 to show your do have thyroid disease, sadly before thnen you will have suffered, maybe for years. I really do not understand why this is allowed to happen. I would suggest that you write to your doc, cc to head of practice, asking for zinc, folate, ferritin, vit D tests as these will cause similar symptoms and, if low, also reduce utilisation of the thyroid hormones that are there. Aslo request a referal to a thyroid endocrinologist ( most specialise in diabetes.) Sheila has a list of some who have proved helpful in the past. > thyroid treatment > From: c_hristina@...> Date: Sun, 25 Oct 2009 21:54:51 +0000> Subject: Help needed> > Hi> I was sent here by Jane on the PAS website and to mention Marmite, she said Sheila will be on the look out for me and might be able to help me.> Sorry if I seem abit dense but struggling abit to work out how this all works.> What does it mean if I have Thyroid Peroxidase Ab (TPO) level of 127.0 > TSH levels 3 weeks ago where 2.7 and last week 2.1. Awaiting all the other thyroid levels, but GP won't do anything at the mo, have to retest TSH in 3 months. Not sure I can cope with feeling so crap for another 3 months tho :-(> Thanks> xx> > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

October 27, 2009

Hi and sheila

I hope I am doing this right

Saw gp this morning to get latest results

FT3 3.75 (3.6-6.5)

FT4 11.4 (9-19.1)

TSH 2.1 (0.35-4.94)

TPO abs 127.0 (<=5.6) Elevated TPO abs suggests autoimmune thyroid disease.

Suggest close monitoring of TFT if not on treatment.

I mentioned how awful I feel, thought I was about to blub but held it in. Along

with being not just cold but an all comsuming feeling of being freezing, that

makes me cry. I wear gloves all the time to try and keep my hands warm and use a

wheatbag. The tingling, aches and pains and feeling I am loosing my marbles.

Cold hands now put down to Raynauld's. I feel I am trying to fight a loosing

battle and should just stay in bed.

Thnks for reading this

xxx

>

> Hi ,

> If you have antibodies then it is likely, eventually your TSH

will rise over the magic 10 to show your do have thyroid disease, sadly before

thnen you will have suffered, maybe for years. I really do not understand why

this is allowed to happen. I would suggest that you write to your doc, cc to

head of practice, asking for zinc, folate, ferritin, vit D tests as these will

cause similar symptoms and, if low, also reduce utilisation of the thyroid

hormones that are there. Aslo request a referal to a thyroid endocrinologist (

most specialise in diabetes.) Sheila has a list of some who have proved helpful

in the past.

>

[Edit Abbrev Mod]

October 27, 2009

Thank you for replying so quick Sheila - I have actually copied it so I can

refer back.

Sorry to be so flipping dense but you mentioned sending me a list of 'good'

doctors - I don't have a mail, just an msn one.

My basal temperature ranges from 36.1 to 36.6 - Started taking it afew weeks

ago.

>

> Hi 2

>

> I am calling you Christana2 because we have a long standing member called

> and we don't want to get you mixed up. Welcome to our forum and I

> hope you get all the help and support you need here. You will soon get used

> to how this forum works by using it on a regular basis, and do read

> everything that is in our FILES section and anything you don't understand,

> just shout and somebody will be along to try to find an answer.

>

> The majority of sufferers of hypothyroidism have antibodies to their thyroid

> gland. This is called 'Hashimoto's Disease' and is an autoimmune disease.

> For some reason, you make antibodies specific to your thyroid gland, and

> they see this gland as public enemy number one, and over the years, set

> about its gradual destruction, so at the end of the day, they will nibble

> your thyroid away completely. You are kept going on thyroid hormone

> replacement and can be just as healthy as those who have their thyroid gland

> intact. You do have antibodies to your thyroid, but not in great numbers,

> though they are likely to grow.

>

> Your TSH would be better at 1, rather than 2.1. It may rise as antibodies

> attack your thyroid, but if you are really feeling dreadful , then it would

> be best to write to your GP. Tell him that you are not happy waiting another

> three months for another blood test, and that you feel your symptoms, signs,

> temperature and other blood tests should be taken into account, rather than

> relying on only TSH in considering whether you should be given a trial of

> levothyroxine or not. Go to our web site www.tpa-uk.org.uk and click on

> 'Hypothyroidism' and on the drop down Menu, click on 'Symptoms and Signs'.

> Check yours against those there and write a list of those you are suffering

> in your letter. Then list your 'signs' - these are what your doctor should

> have seen. Take your basal temperature for 4 or 5 mornings before you get

> out of bed. Normal temperature should be 98.6 degrees F. If yours is 97.8

> 9and it could be much less if you are truly hypothyroid), write these down

> in the letter also. Next, list any members of your family who have a thyroid

> or autoimmune disease - as this can come down the family line.

>

> Ask in your letter for a FULL thyroid gland function test which should

> include TSH, Free T4 and Free T3. Ask at the same time, for the following

> blood tests to be done and let the doctor know that you are asking for these

> because it is a medical fact that if any of them are low in the reference

> range, your thyroid hormone will not be properly absorbed into your cells.

> These are ferritin (stored iron), vitamin B12, vitamin D3, magnesium, zinc,

> copper and folate and ask your GP if he would let you have the results of

> all these tests, together with the reference range for each one. A doctor

> cannot withhold such results.

>

> Tell him in the letter that because you feel so bad and cannot wait for

> another three months without at least a trial of thyroxine, that you need a

> second opinion and ask for him to refer you to a specialist of your choice.

> I have sent you a list of 'good' doctors and endocrinologists that you might

> want to pick from to be referred to. You can also be referred outside of

> your area.

>

> Last, ask for your letter of requests to be placed into your medical notes.

>

> Hope this helps 2.

>

> Luv - Sheila

>

> From: thyroid treatment

> [mailto:thyroid treatment ] On Behalf Of

> c_hristina@...

> Sent: 25 October 2009 21:55

> thyroid treatment

> Subject: Help needed

>

> Hi

> I was sent here by Jane on the PAS website and to mention Marmite, she said

> Sheila will be on the look out for me and might be able to help me.

> Sorry if I seem abit dense but struggling abit to work out how this all

> works.

> What does it mean if I have Thyroid Peroxidase Ab (TPO) level of 127.0

> TSH levels 3 weeks ago where 2.7 and last week 2.1. Awaiting all the other

> thyroid levels, but GP won't do anything at the mo, have to retest TSH in 3

> months. Not sure I can cope with feeling so crap for another 3 months tho

> :-(

> Thanks

> xx

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.423 / Virus Database: 270.14.31/2457 - Release Date: 10/24/09

> 14:31:00

>

October 27, 2009

>> Saw gp this morning to get latest results> FT3 3.75 (3.6-6.5)> FT4 11.4 (9-19.1)> TSH 2.1 (0.35-4.94)> TPO abs 127.0 (<=5.6) Elevated TPO abs suggests autoimmune thyroid disease. Suggest close monitoring of TFT if not on treatment. > I mentioned how awful I feel, thought I was about to blub but held it in. Along with being not just cold but an all comsuming feeling of being freezing, that makes me cry. I wear gloves all the time to try and keep my hands warm and use a wheatbag. The tingling, aches and pains and feeling I am loosing my marbles. Cold hands now put down to Raynauld's. I feel I am trying to fight a loosing battle and should just stay in bed.

Hello 2 and welcome

Your above results show that there is not an awful lot of thyroid hormone - and in particular the all important T3 - to go round. Your TPO (thyroid autoantibodies) shows that you suffer from Hashimoto's disease, and the only thing holding your GP back from treating you is presumably the TSH not having gone above the upper ref range.

Still, if in your shoes, I would go back to the GP, ask for the mentioned additional lab results to be run, and plead with your GP to not let you suffer for another 3 months before giving you treatment. Ask for a trial run of Levothyroxine for 3 months. It is often persistance that will get you there. With a bit of luck your GP might give in when he sees how desperate you are.

Fingers crossed and best of luck,

from 1

January 21, 2011

I think I am in an adrenal crash. I seem to have lost all direction as to what to do to help myself. I can barely get about daily now since early Jan. when there were some very stressful events in my life. I either sleep 10-12 hr.s or not at all, so short of breath I can hardly move, constant hypoglycemia, very frequent feelings of hunger but not hungry, gaining weight like mad, trouble with mental focus.

I am hypothyroid, was taking Erfa 1 grain, tested very low on annual exam for T4 & TSH which is all the Dr. tests for. He increased the Erfa to 1.5 grains for one month then will retest, not sure I will still be around by then! I tested thru' ZRT 2 yr.s ago & was high cortisol, took PS100 & seemed to correct now however it is very different than I was then. I simply cannot get up & go. I am re reading Dr. 's book looking to find what I missed........

I received the saliva test kit from ZRT today to test cortisol 4x's day so I can at least know what is going on with the adrenals so I can get on appropriate supplements. Have been taking 37.5 Iodoral for the past two yr.s. Should I stop taking that for the test? If so for how long before I test?Can I just stop or do I need to wean off? Should I stop taking the Erfa before I do the saliva test?

Apologies for the rambling I simply cannot seem to get it together.

So much appreciate any direction.

Jeanie T.

January 21, 2011

Jeanette,

I am so sorry to hear what you are going through and to see no one has answered

you but this is an iodine related group and so I have a gentle suggestion, go

to the natural thyroid hormone adrenals group to find out about all this. Just

type in adrenal in the search engine that is below " start a group " You will

definitely get some straight answers there. You must not give up! This can be

fixed and is not permanent.

Hugs

>

> I think I am in an adrenal crash. I seem to have lost all direction as to what

to do to help myself. I can barely get about daily now since early Jan. when

there were some very stressful events in my life. I either sleep 10-12 hr.s or

not at all, so short of breath I can hardly move, constant hypoglycemia, very

frequent feelings of hunger but not hungry, gaining weight like mad, trouble

with mental focus.

>

> I am hypothyroid, was taking Erfa 1 grain, tested very low on annual exam for

T4 & TSH which is all the Dr. tests for. He increased the Erfa to 1.5 grains

for one month then will retest, not sure I will still be around by then! I

tested thru' ZRT 2 yr.s ago & was high cortisol, took PS100 & seemed to correct

now however it is very different than I was then. I simply cannot get up & go. I

am re reading Dr. 's book looking to find what I missed........

>

> I received the saliva test kit from ZRT today to test cortisol 4x's day so I

can at least know what is going on with the adrenals so I can get on appropriate

supplements. Have been taking 37.5 Iodoral for the past two yr.s. Should I stop

taking that for the test? If so for how long before I test?Can I just stop or do

I need to wean off? Should I stop taking the Erfa before I do the saliva test?

>

> Apologies for the rambling I simply cannot seem to get it together.

> So much appreciate any direction.

>

> Jeanie T.

>

September 26, 2011

Hi Reha!I have many clients who benefit quite a bit from chewing gum. The issue is where the pressure/stimulation and attention are for the chewing items. It is best to get the molars engaged, activates less aggressive, more calming structure/nervous system, sends off different neurotransmitter information . Frontal gum chewing will be as intensifying as the chewy tubes....take a look at the adults/snappers who engage the front portions of their mouths.

It might be worth a go...All best,JanetOn Sun, Sep 25, 2011 at 8:40 AM, Reha <dr_reha_us@...> wrote:

Hi everyone,

I have a 6 year old son who has a lot of sensory issues and is on autism spectrum. We just started Masgutova therapy and i have been been reading posts in the forum for sometime. My son needs a lot of oral stimulation and always wants to chew on something. We used to give him chewy tubes but after I read somewhere in the forum that Dr Masgutova does not recommend it and it may develop tics in children i stopped it as i made the connection between my son starting this tic using his neck over the few years. I wanted to ask if there is some other way we can help and if its ok for him to eat a gum for oral sensory issues or a gum is equally harmful as the chewy tube.

I look forward to hearing from you. Thank you for taking out time to read and respond.

Reha

-- Janet Olney Mc, M.Ed., LMT, CH Neurodevelopmental Therapist & Instructor Licensed Massage Therapist (MA#64436) Brain Gym Consultant / Instructor

Reflexes Integration Specialist / Instructor Jin Shin Jyutsu Self-help Instructor Quantum Wave Laser Consultant www.JanetOWellnessAndLearning.com

September 26, 2011

Janet and Reha, glad to hear about this since I had the same issues with my boys. I thought by giving them those teeth chewers it would help, but with your explanation Janet it all makes more sense to me. I know give them gum and they actually ask me for it for stimulation, and it has helped to prevent cavities. The only two things I would like to let you know is that my dentist did tell me to make sure they don't chew the gum for too long because with time you can use your mandibular bones too much. What is your imput on this Janet? Also we use a special gum without aspartame, which can affect children with sensory issues, and uses xylitol instead of sugar. It is called spry. I order a big container of 600 through amazon and you save a lot especially if you subscribe to subscribe and save through amazon prime.

Good luck and let me know if anyone else has suggestions or observations on this matter.

Cecilia Palacios-Chuang

New Light / ACPI Certified Parenting Coach

On Sep 26, 2011 8:57 AM, " Janet Mc " <janetomcdonald@...> wrote:> Hi Reha!> I have many clients who benefit quite a bit from chewing gum.

> The issue is where the pressure/stimulation and attention are for the> chewing items. It is best to get the molars engaged, activates less> aggressive, more calming structure/nervous system, sends off different

> neurotransmitter information . Frontal gum chewing will be as intensifying> as the chewy tubes....take a look at the adults/snappers who engage the> front portions of their mouths.> It might be worth a go...

> All best,> Janet> > On Sun, Sep 25, 2011 at 8:40 AM, Reha <dr_reha_us@...> wrote:> >> **>>>>>> Hi everyone,

>> I have a 6 year old son who has a lot of sensory issues and is on autism>> spectrum. We just started Masgutova therapy and i have been been reading>> posts in the forum for sometime. My son needs a lot of oral stimulation and

>> always wants to chew on something. We used to give him chewy tubes but after>> I read somewhere in the forum that Dr Masgutova does not recommend it and it>> may develop tics in children i stopped it as i made the connection between

>> my son starting this tic using his neck over the few years. I wanted to ask>> if there is some other way we can help and if its ok for him to eat a gum>> for oral sensory issues or a gum is equally harmful as the chewy tube.

>> I look forward to hearing from you. Thank you for taking out time to read>> and respond.>> Reha>>>> >>> > > > -- > Janet Olney Mc, M.Ed., LMT, CH

> Neurodevelopmental Therapist & Instructor> Licensed Massage Therapist (MA#64436)> Brain Gym Consultant / Instructor> Reflexes Integration Specialist / Instructor> Jin Shin Jyutsu Self-help Instructor

> Quantum Wave Laser Consultant> www.JanetOWellnessAndLearning.com

September 26, 2011

thanks for this idea Janet... will try!On Mon, Sep 26, 2011 at 7:06 PM, Janet Mc <janetomcdonald@...> wrote:

My grandmother used to chew a small piece of beeswax(natural - local may be possible) all day long. You might be able to mix/fold in stevia or lemon to start off with to satisfy the 'flavor' issue. I remember loving this as a kid, since gum was always too sweet, then too nasty. It did not tire the jaw the way that gum can either.

All best,JanetOn Mon, Sep 26, 2011 at 4:47 PM, Kipper <sandrakipper13@...> wrote:

I will chime in about xylitol---I know dentists like it because some research indicates that it may prevent cavities. However, when it first came on the market you could find articles about the negative health impacts of xylitol--on kidneys, joints. and other body systems. This info is much harder to find now, I don't know why. Just to share this other point of view---I personally dislike any sweeteners that are heavily processed. I would suggest noticing for your own child if they seem to react well or not to this food product. Perhaps gum with sugar (also hard to find!) is not that bad a tradeoff. Most gum formulas have been changed, and it is difficult to even find gum with sugar vs corn syrup etc. Beemans is available online if you look for it---on old brand that they still make with the old recipe.

SandyOn Sep 26, 2011, at 8:48 AM, Cecilia Palacios-Chuang wrote:

Janet and Reha, glad to hear about this since I had the same issues with my boys. I thought by giving them those teeth chewers it would help, but with your explanation Janet it all makes more sense to me. I know give them gum and they actually ask me for it for stimulation, and it has helped to prevent cavities. The only two things I would like to let you know is that my dentist did tell me to make sure they don't chew the gum for too long because with time you can use your mandibular bones too much. What is your imput on this Janet? Also we use a special gum without aspartame, which can affect children with sensory issues, and uses xylitol instead of sugar. It is called spry. I order a big container of 600 through amazon and you save a lot especially if you subscribe to subscribe and save through amazon prime.

Good luck and let me know if anyone else has suggestions or observations on this matter.Cecilia Palacios-Chuang

New Light / ACPI Certified Parenting Coach

On Sep 26, 2011 8:57 AM, " Janet Mc " <janetomcdonald@...> wrote:> Hi Reha!> I have many clients who benefit quite a bit from chewing gum.

> The issue is where the pressure/stimulation and attention are for the> chewing items. It is best to get the molars engaged, activates less> aggressive, more calming structure/nervous system, sends off different

> neurotransmitter information . Frontal gum chewing will be as intensifying> as the chewy tubes....take a look at the adults/snappers who engage the> front portions of their mouths.> It might be worth a go...

> All best,> Janet> > On Sun, Sep 25, 2011 at 8:40 AM, Reha <dr_reha_us@...> wrote:> >> **>>>>

>> Hi everyone,

>> I have a 6 year old son who has a lot of sensory issues and is on autism>> spectrum. We just started Masgutova therapy and i have been been reading>> posts in the forum for sometime. My son needs a lot of oral stimulation and

>> always wants to chew on something. We used to give him chewy tubes but after>> I read somewhere in the forum that Dr Masgutova does not recommend it and it>> may develop tics in children i stopped it as i made the connection between

>> my son starting this tic using his neck over the few years. I wanted to ask>> if there is some other way we can help and if its ok for him to eat a gum>> for oral sensory issues or a gum is equally harmful as the chewy tube.

>> I look forward to hearing from you. Thank you for taking out time to read>> and respond.>> Reha>>>> >>> > > > -- > Janet Olney Mc, M.Ed., LMT, CH

> Neurodevelopmental Therapist & Instructor> Licensed Massage Therapist (MA#64436)> Brain Gym Consultant / Instructor> Reflexes Integration Specialist / Instructor> Jin Shin Jyutsu Self-help Instructor

> Quantum Wave Laser Consultant> www.JanetOWellnessAndLearning.com

-- Janet Olney Mc, M.Ed., LMT, CH Neurodevelopmental Therapist & Instructor Licensed Massage Therapist (MA#64436) Brain Gym Consultant / Instructor

Reflexes Integration Specialist / Instructor Jin Shin Jyutsu Self-help Instructor Quantum Wave Laser Consultant www.JanetOWellnessAndLearning.com

-- Cecilia Palacios-ChuangNew Light / ACPI Certified Parenting Coachfacebook.com/newlightcoaching

September 26, 2011

Swimming is one of the best therapies for sensory seekers. I also have experienced this with my son. Regarding TV I almost eliminated it out of his daily activities. Now here and then he will ask me if he can see it for a little and I allow it for only 30 min. max accepting that he needs to do some exercises afterwards, like jumping, running, spinning, a little of everything. It seems to work!

On Mon, Sep 26, 2011 at 4:53 PM, Charmaine N Li <ngaiwli@...> wrote:

Thank you guys bring out this topic. This is really become a headache after I put my son on Dairy and Wheat diet. Might be recently we are doing Neruofeedback makes it worse too. Anyone has experience linking sensory seeking or tics with Diet and Neruofeedback?

For my son, I found that, 1. TV and Video Game make his sensory seeking worse.

2. The

stress makes it worse.3. He was much calmer and almost stopped his sensory seeking after I increased his swimming class 3 times/week last session.

Charmaine

From: Cecilia Palacios-Chuang <cpnewlight@...>

Sent: Monday, September 26, 2011 8:48 AMSubject: Re: help needed

Janet and Reha, glad to hear about this since I had the same issues with my boys. I thought by giving them those teeth chewers it would help, but with your explanation Janet it all makes more sense to me. I know give them gum and they actually ask me for it for stimulation, and it has helped to prevent cavities. The only two things I would like to let you know is that my dentist did tell me to make sure they don't chew the gum for too long because with time you can use your mandibular bones too much. What is your imput on this Janet? Also we use a special gum without aspartame, which can affect children with sensory issues, and uses xylitol instead of sugar. It is called spry. I order a big container of 600 through amazon and you save a lot especially if you subscribe to subscribe and save through amazon prime.

Good luck and let me know if anyone else has suggestions or observations on this matter.

Cecilia Palacios-Chuang

New Light / ACPI Certified Parenting Coach

On Sep 26, 2011 8:57 AM, " Janet Mc " <janetomcdonald@...> wrote:> Hi Reha!

> I have many clients who benefit quite a bit from chewing gum.

> The issue is where the pressure/stimulation and attention are for the> chewing items. It is best to get the molars engaged, activates less> aggressive, more calming structure/nervous system, sends off different

> neurotransmitter information . Frontal gum chewing will be as intensifying> as the chewy tubes....take a look at the adults/snappers who engage the> front portions of their mouths.> It might be worth a go...

> All best,> Janet> > On Sun, Sep 25, 2011 at 8:40 AM, Reha <dr_reha_us@...> wrote:

> >> **>>>>>> Hi everyone,

>> I have a 6 year old son who has a lot of sensory issues and is on autism>> spectrum. We just started Masgutova therapy and i have been been reading>> posts in the forum for sometime. My son needs a lot of oral stimulation and

>> always wants to chew on something. We used to give him chewy tubes but after>> I read somewhere in the forum that Dr Masgutova does not recommend it and it>> may develop tics in children i stopped it as i made the connection between

>> my son starting this tic using his neck over the few years. I wanted to ask>> if there is some other way we can help and if its ok for him to eat a gum>> for oral sensory issues or a gum is equally harmful as the chewy tube.

>> I look forward to hearing from you. Thank you for taking out time to read>> and respond.>> Reha>>>> >>> > > > -- > Janet Olney Mc, M.Ed., LMT, CH

> Neurodevelopmental Therapist & Instructor> Licensed Massage Therapist (MA#64436)> Brain Gym Consultant / Instructor> Reflexes Integration Specialist / Instructor> Jin Shin Jyutsu Self-help Instructor

> Quantum Wave Laser Consultant> www.JanetOWellnessAndLearning.com

-- Cecilia Palacios-ChuangNew Light / ACPI Certified Parenting Coachfacebook.com/newlightcoaching

September 27, 2011

Thank you all for the suggestions, i do agree, finding a gum made of actual sugar is more difficult. I can definitely try the other suggested gums. I do believe aspartame gums have been making him cranky and irritable so i have been trying to avoid them but my son then starts putting everything in his mouth sometimes and so i have no other option then to give him a gum.Well i will definitely look into other suggestions.Thank you so much again.RehaFrom: Charmaine N Li <ngaiwli@...>" " < >Sent: Monday, September 26, 2011 4:53 PMSubject: Re: help needed

Thank you guys bring out this topic. This is really become a headache after I put my son on Dairy and Wheat diet. Might be recently we are doing Neruofeedback makes it worse too. Anyone has experience linking sensory seeking or tics with Diet and Neruofeedback?For my son, I found that, 1. TV and Video Game make his sensory seeking worse. 2. The

stress makes it worse.3. He was much calmer and almost stopped his sensory seeking after I increased his swimming class 3 times/week last session. CharmaineFrom: Cecilia Palacios-Chuang

<cpnewlight@...> Sent: Monday, September 26, 2011 8:48 AMSubject: Re: help needed

Janet and Reha, glad to hear about this since I had the same issues with my boys. I thought by giving them those teeth chewers it would help, but with your explanation Janet it all makes more sense to me. I know give them gum and they actually ask me for it for stimulation, and it has helped to prevent cavities. The only two things I would like to let you know is that my dentist did tell me to make sure they don't chew the gum for too long because with time you can use your mandibular bones too much. What is your imput on this Janet? Also we use a special gum without aspartame, which can affect children with sensory issues, and uses xylitol instead of sugar. It is called spry. I order a big container of 600 through amazon and you save a lot especially if you subscribe to subscribe and save through

amazon prime.

Good luck and let me know if anyone else has suggestions or observations on this matter.

Cecilia Palacios-Chuang

New Light / ACPI Certified Parenting Coach

On Sep 26, 2011 8:57 AM, "Janet Mc" <janetomcdonald@...> wrote:> Hi Reha!> I have many clients who benefit quite a bit from chewing gum.