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In a message dated 5/31/2004 5:16:36 AM US Mountain Standard Time,

thrill@... writes:

> no one else wanted to take turns with the

> planning, finding places to have our event, make phone calls, send out

> flyers, ... it can be a lot of work and it gets discouraging when no one

> else wants to help. I had suggested groups of 2-3 families get-together and

> each plan an activitiy.

This is what I am hoping will happen. I figure if other families see the

need, then they can pitch in and help. Often, it just takes one person to get

the ball rolling. If not, I'll just do what I can. I am just going to give it

a try and see what happens.

M.

 ¸...¸     ___/ /\ \___        ¸...¸     

,·´º o`·, /__/ _/\_ \__\     ,·´º o`·,

```)¨(´´´  |  |  |  |  |  |  |  |  |  ```)¨(´´´

¸,.-·²°´      ¸,.-·~·~·-.,¸      `°²·-.¸

 

......for a tree is recognized by its fruit.

3:33

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Good for you for starting this. I agree, after elementary the social

opportunities for kids/young adults/adults with disabilities are usually

very limited. They are here. About six years ago, before I had either of

my kids, I brought this up to our local Arc and they were very willing to

help fund some social activities. I got the ball rolling and we had

activities every other month for about a year. We did a dance/karoke party,

bowling and Mcs, cook-out at a park, rode the ferry to Kelley's Island

and spent a few hours there... We called them Family Fun Days as the whole

family was invited because I also felt parents needed more opportunities to

connect. I also utilized the kids from my Project Support group at

school--they helped plan the event and activities we would do, most

importantly they were there to interact with the kids with disabilities, get

them invovled in dancing/singing, assist them with whatever they needed and

help to give the parents time to enjoy not just worry about their kids (we

did have some pretty involved kids). Most of our activities brought

together about 15-20 people with disabilities, plus family and Project

Support members so sometimes we had close to 75 people, a few we only had

about 20-25. The last few the response was low (less than 20) and the

problem, for me, was that no one else wanted to take turns with the

planning, finding places to have our event, make phone calls, send out

flyers, ... it can be a lot of work and it gets discouraging when no one

else wants to help. I had suggested groups of 2-3 families get-together and

each plan an activitiy...it would be like one a year (if that) if we

continued to do it every other month (but NO ONE volunteered to help out).

Eventually we just dropped it and I had hoped someone would call and ask why

we weren't having anymore and no one did. I was really disappointed. I see

myself having to do something similar when my kids are older. Good luck!!!

Jill

Re: Arlene and ...pete too..hahahahha

I just decided that we needed stuff for older kids to do together AND that

parents of older kids need to be able to get together some also. I did it

alot

when Mav was younger...then got away from it. NOW I talk to other parents

as

we pass at baseball but not enough. SO I just thought I'd try this. We

are

sending the announcement out to the older kids we know from soccer, baseball

and whatever. A flyer will go out with the DS newsletter and an announcment

was sent to all the DDD workers to tell their clients. We'll see what

happens.

Our first get together is going to be pizza and swimming at my sisters. I

plan on having a short questionaire to get an idea of what they are

interested

in doing and how often. I am thinking one formal event a month and then

hopefully little friendships will shoot of from this and they can do more on

their

own with those they have interests with.

If anyone has any suggestions...I welcome them!!

M.

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

......for a tree is recognized by its fruit.

3:33

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I work for the Arc in the Seattle area and am also the parent of a 13 year

old with DS and a 16 year old without. Last January I started a list serv for

parents of teenagers with developmental disabilities in our county. We talk

online about issues with our kids and then once a month a different family plans

an acitivity. It really doesn't take very much planning.

The person just needs to pick a date and time, contact the facility (if

needed) and find out the details, email the group with the details, take rsvps

as

they come in.

The events we've done so far are: swimming at a city pool, bowling and pizza,

amusement park, open gym at the gymnastics center, and this month we are

meeting to see Shrek 2 and have dinner.

We are also including the parents and any teen siblings. We want it to be

inclusive and so there are also teens without disabilities attending. Many of

the

teens have never met each other, so it is interesting to watch that dynamic.

One of the challanges for our group is for the parents to stay in the

background a bit and let the teens get to know each other. We are so used to be

our

kids " facilitators " .

It's been really fun and good for my son,

Jodi

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Guest guest

Our local communities here have a wide variety of activities and social

events that are planned for people with disabilities. We have no ARC but our

parks

and recs in several cities help plan and hold events like dances and rec

programs.

Our local DS support group has social activities for different age groups.

Parent volunteers chair each committee for each age group. They are given a

budget and plan the activities throughout the year as they see fit. There are

several activities different age groups do together (teens and young adults

have combined dances). The kids that come get to know each other, as do the

families, so friendships can blossom outside of the activities.

Sadly, for as many families as we have in the area, there seems to be just a

small amount of families that participate on a regular basis. Many of the

kids and young adults I see with DS are not taken to the social opportunities

made available. Even with families offering carpooling, it seems many do not

attend because their families will not give the time or transportation needed

for

the person with DS to attend. Never mind helping plan or chaperone an event.

Cheryl in VA

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We have so little family involvement in activities around here. I realize

parents are busy, but shouldn't your kids come in the equation somewhere?? I

work full time but there is no way I'm missing important events in or

's lives. We are trying to figure out what to do if we have to move this

fall since 's baby is due the first week of December. Just hope they

keep the deployment date back to Iraq in January as scheduled. She is terrified

that she will be alone during this time and I definitely don't want her to be.

Elaine

Re: Social opportunities

In a message dated 5/31/2004 5:16:36 AM US Mountain Standard Time,

thrill@... writes:

> no one else wanted to take turns with the

> planning, finding places to have our event, make phone calls, send out

> flyers, ... it can be a lot of work and it gets discouraging when no one

> else wants to help. I had suggested groups of 2-3 families get-together and

> each plan an activitiy.

This is what I am hoping will happen. I figure if other families see the

need, then they can pitch in and help. Often, it just takes one person to get

the ball rolling. If not, I'll just do what I can. I am just going to give

it

a try and see what happens.

M.

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

.....for a tree is recognized by its fruit.

3:33

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  • 3 years later...

Hi all!Friday Night Fun is back at KidsLink! We will be having events every 4th Friday night - see attached flyer. Please call or email if you are interested and we will update you on details of the upcoming events/locations.Also, Dr. DePolo's SUCCESS (social skills and self esteem focused treatment group) club will be starting soon. One opening is left in the 10-13 year old group!Info on our parent series is coming soon....Thanks for all your support!Nevada

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