Thyroid question

[Guest guest]

,

I personally have hypo and my endo will only give the

brand name as the generic did not have any effect on

it but I did get a racing heart beat and sweats.

Go back if it was what what was working.

b

--- CINDY MATTERN <cindymattern@...> wrote:

> A few hours after Ben takes his thyroid (they

> switched him to Levothyroxin and was on brand name)

> his blood pressure goes up, he gets chest pain,

> throws up and sweats. This happens if he exerts

> himself. I'm thinking either give it to him at

> bedtime when he is at rest and then on Monday call

> the Dr. and demand brand name because the generic

> isn't absorbing properly.

> Any thoughts? Thanks for any input.

> M.

>

> [Non-text portions of this message have been

> removed]

>

>

> ------------------------------------

>

> Click reply to all for messages to go to the list.

> Just hit reply for messages to go to the sender of

> the message.

[Guest guest]

,

Just remember it is supposed to be given on an empty stomach with plenty of

water...or at least that is what we have been told.

Kym

> On Sat, May 17, 2008 at 5:38 PM, CINDY MATTERN <cindymattern@...>

> wrote:

>

>> A few hours after Ben takes his thyroid (they switched him to

>> Levothyroxin and was on brand name) his blood pressure goes up, he gets

>> chest pain, throws up and sweats. This happens if he exerts himself. I'm

>> thinking either give it to him at bedtime when he is at rest and then on

>> Monday call the Dr. and demand brand name because the generic isn't

>> absorbing properly.

>> Any thoughts? Thanks for any input.

>> M.

[Guest guest]

My mom, , and Maverick are all on the same thyroid med.

My mom takes hers an hour before she eats...

takes his right AFTER he eats.

Mav takes his about 1/2 hour before he eats.

I asked the pharmacist what the correct time is. HE said.. morning is a must,

but at the most important thing is that they do it the same way all the time.

So we do. I have not seen any difference in if he misses a med or not..

but when Mav needs a higher dose we see it by his behavior.. he is more

lethargic and more easily irritated. When that happens consistently, we call

the Dr. and they do a blood test and readjust the meds.

[Guest guest]

Jessie and everyone,

Good morning.

was on synthroid for many years and then we were told it was dangerous

and to take him off of it. So he went on unithroid, which I have actually

learned is just another name for the other drug. His Calif. doctor had him on

the one that starts with an L for awhile but it did not agree with him and he is

back on unithroid.

He has hypothyroidism. He often gets too hot or too cold. I do not know if

it is from the medicine or from the disorder itself.

I do know that thyroid problems, like so many other disorders, are becoming

more and more prevalent in society. Seems like everyone I talk to anymore has

something wrong with their thyroid or knows someone who does (and the same goes

for celiac disorder, diabetes, and panic/anxiety disorder). We are living

longer but are afflicted with more and more things. And getting diagnosed at a

young age, so many kids now days--both Down syndrome and non-Down syndrome being

diagnosed with stuff we once did not worry about until middle age)

Dad to , Kristi, (all three of whom have Down syndrome) and

(who has Cri du chat syndrome)

Husband to C.

Uncle Daddy to and in Calif. (both of whom have Down syndrome)

BIL to S.

JB66111@... wrote:

has been on Synthroid for over a year now and I really can't

see any difference. But he likes the way it makes him feel. But the

instruction say to give it to him 2 hours before he eats anything in the

morning.

Actually the instructions af first confused me, but I do give it to him when he

has been up a little while and then wait awhile for breakfast. He's fine with

this. He hasn't been on any generic or any other thyroid med so there is

nothing to compare it to.

I do have one suggestion, if you have a good pharmacist, ask him or

her for advice. They often know more about these things than doctors do.

Jessie, mom of , 43 with DS.

**************

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[Guest guest]

In a message dated 5/17/2008 6:35:46 PM Eastern Daylight Time,

cindymattern@... writes:

his blood pressure goes up, he gets chest pain, throws up and sweats. This

happens if he exerts himself.

If I were you I would call th pharmacist and make sure it is safe to

continue to give him the meds. I know Ii had a reaction like this to an

antibiiotic and called drugstore (weekend) and he said not to take another one

that it was a very serious reaction. Just a thought.

Loree

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[Guest guest]

Noah has always taken his at night. He eats as soon as he gets up in the

morning, so the nighttime is the only time he hasn't eaten in a couple of

hours...even then sometimes he is snacking up until bedtime! We have never

had any of the problems y'all have mentioned. The Dr. said she is most

concerned with consistency...taking it at the same time every day.

One thing I would be very cautious about is the advice to stop taking the

drug altogether. That can be very risky with a variety of meds.

Karla in Texas-Yep...Summer's here!

> My mom, , and Maverick are all on the same thyroid med.

> My mom takes hers an hour before she eats...

> takes his right AFTER he eats.

> Mav takes his about 1/2 hour before he eats.

> I asked the pharmacist what the correct time is. HE said.. morning is a

> must, but at the most important thing is that they do it the same way all

> the time.

[Guest guest]

I agree with Loree's advice. I mentioned this before but I would

like to stress it. I've seen several cases where a pharmacist is very helpful.

Some years ago a friend of ours was working in a soap plant, actually

Colgate and there was a large spill of laundry detergent. He worked in it for

several hours and when he got home his skin burned and his eyes were really

hurting. I happened to call as his wife was going to go to a drugstore to

look for

something for his eyes and I told her to ask the pharmacist. So she did and

he told her to get him to the ER immediately. They took it very seriously

and told them it was very lucky she took him there. He could have been blind.

She is one of the few people who ever takes my advice. I often ask

our pharmacist about things, once I was having a strange allergic reaction to a

drug. Some pharmacists can't be bothered to talk to you, I've run into that a

couple times but I never go back there. Jessie

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[Guest guest]

Jessie is right.

Pharmacists can tell you a lot of things that doctors don't know. Doctors

prescribe the medicine but pharmacists ACTUALLY KNOW about the medicine, side

effects, interactions, etc. I have experienced this time and time again with a

doctor prescribing something (s)he should have known me or or the kids

could not take or should not take. Our main pharmacist used to be a singer and

was Miss Missouri 1990 but she really knows her medicine and will go out of the

way to answer a question for you or call you back.

JB66111@... wrote:

I agree with Loree's advice. I mentioned this before but I would

like to stress it. I've seen several cases where a pharmacist is very helpful.

Some years ago a friend of ours was working in a soap plant, actually

Colgate and there was a large spill of laundry detergent. He worked in it for

several hours and when he got home his skin burned and his eyes were really

hurting. I happened to call as his wife was going to go to a drugstore to look

for

something for his eyes and I told her to ask the pharmacist. So she did and

he told her to get him to the ER immediately. They took it very seriously

and told them it was very lucky she took him there. He could have been blind.

She is one of the few people who ever takes my advice. I often ask

our pharmacist about things, once I was having a strange allergic reaction to a

drug. Some pharmacists can't be bothered to talk to you, I've run into that a

couple times but I never go back there. Jessie

**************

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[Guest guest]

Hi Folks

I see the doc tomorrow so I figured I should get a little more background before

I go.

My recent cortisol test came back high (out of range) am and evening and

high-ish at noon and night. I started Rhodiola and am at 450mg/day. My temps

seem to have stabilized at 97.6-97.7.

My last thyroid labs (I can give numbers if you want) had my TSH over range

(5.something). FT3 and FT4 were in range but not high.

I have lots of hypoT symptoms.

I have been taking Lugol's (and nutrients) since December and am up to over

100mg/day. I plan to stay up here for a while until I'm sure we're saturated

then taper a bit. I have had little to no notable detox symptoms, but I have

gained weight...

My thyroid gland has always been 'prominent'. I notice now (and can't say for

sure how long this has been) that the right lobe is actually a bit larger than

the left.

I want to ask doc for a T3 supplement. Do you think I've given Lugol's long

enough to 'fix' my thyroid, or should I wait longer before I start T3 (if I even

get the Rx!)?

Thanks

Jaye