ASO DIGEST: January 21, 2008

[Guest guest]

Dear Friend of ASO:

News from ASO:

MRDD Futures Committee Work Continues

The MRDD Futures Committee has been meeting regularly, working on recommendations on improving the MRDD system in Ohio to meet the needs of individuals with MRDD including autism. ASO President Barb Yavorcik is chair of the Serving Populations with Specialized Needs Subcommittee. Other subcommitees include Finance, Accessing Services, and Delivering Quality Services. Subcommittees are to have their recommendations into the full Committee by January 31. The full Committee will then consolidate and augment those recommendations as necessary. The final report is due March 31, 2008. For complete information on the futures process, visit http://odmrdd.state.oh.us/futures/odmrdd.htm.

First Autism Caucus held in Ohio Senate

The first meeting of the Ohio Senate Autism Caucus was held on January 15, 2008. Over twenty (of the thirty three) Senators or their aides attending the meeting. The Caucus is designed to help Senators understand autism and the issues facing individuals with autism and their families in Ohio. The brainchild of autism advocate Doug Krinsky, the ASO worked with Doug to make the Caucus a reality in both the Senate and the House (the Ohio House held its first meeting in November). Future meetings of both caucuses will be held as needed to address issues or provide information. Many thanks to Senate Caucus Chair and Sen. Steve Stivers for sponsoring the Senate Autism Caucus and Reps. Bacon and Ted Celeste for sponsoring the House Autism Caucus.

ASO Board Member, Volunteer Recognized

Andie Ryley , Autism Society of Ohio Board member and Dr. Murray, Autism Society of Ohio volunteer will be awarded the " Community Partnership Award " at the annual Lucas County Board of Mental Retardation and Developmental Disabilites board meeting on January 22, 2008. Ms. Ryley and Dr. Murray along with Dr. Ellen developed a model program to teach parent and profesional collaboration and family empowerment. Their efforts culminated in parents and professionals collaborating to give three community workshops for parents who have children with autism and the professionals who serve them.

ODE-OEC Director Resigns

Greg Maloney, Director of the Ohio Department of Education, Office of Exceptional Children has resigned, effective February 29, 2008. No word on where he is going or the time line for finding his replacement. ASO will keep you posted on future developments.

April Autism Awareness Rally at Statehouse Scheduled

Save the date! April Autism Awareness Rally at the Statehouse has been scheduled for Wednesday, April 2, 2008. Details to follow!

Autism Early Screening Pilot Grant Awarded

From Dr. Alvin , Director, Ohio Department of Health: It is my pleasure to announce that the Notice of Award for the Autism Diagnosis Education Pilot Program was recently posted for the Ohio Chapter of the American Academy of Pediatrics. The Academy plans to utilize funds to develop a model of education and training for physicians and other providers to promote early identification of autism using standardized screening methods and timely diagnosis; and to facilitate regional coordination of services and supports for families with children with autism spectrum disorder. The Program funding period is January 1, 2008 through June 30, 2009. Funding for the pilot program was included in the state budget under the Help Me Grow budget line. More information on autism and this project will be forthcoming from the Ohio Chapter of the American Academy of Pediatrics. The Autism Society of Ohio was instrumental in getting this appropriation and ASO President Barbara Yavorcik will serve on the Advisory Board for this project. Detail to follow.

Upcoming events, resources, etc.

FYI - Please share.

- Valentines Dance / St. s Day Dance, Akron

- FREE AUTISM WORKSHOP - An Introduction to Autism for Parents and Professionals, Toledo

- Autism 101 for Administrators, Archibold (NW Ohio)

- Save the Date - ASA Greater Cleveland Chili Cookoff in April

- Living with Autism Spectrum Disorder at home, at school and in the Community, Cincinnati

- February MRDD Family Advisory Council Meeting

- Save the Date - ARC of Ohio Day at Cedar Point

- Friday Night Fun, Akron

- New Book: Changing the Course of Autism A Scientific Approach to Medical Treatment

- OCALI SURVEY ON AUTISM SPECTRUM DISORDERS AND TRANSITION TO COMMUNITY

- Getting Kids in Sync Workshop, various locations

- Webcast: Gastrointestinal Issues and Autism – What You Need to Know

- Support Group Meeting, Brecksville

- The Role of Allergies and Their Treatment for ASD and Other Disorders, Brecksville

- National ADA Symposium

- “Walking the Path†Through the Transition Years for All Youth with ASD and Related Disabilities, presented by Central Ohio ASA, Columbus

- News from the ASA

Registration Opens for Day on the Hill and 39th National Conference ASA will host its 2008 Day on Capitol Hill

Autism Hits the Stage and Screen Support Financial Security Accounts for Individuals with Disabilities Researchers Investigate Causes of Autism Mozart and the Whale Now Available in Paperback

Looking at the "Other Side of Autism"- HB 406 – a bill to ban corporal punishment in public schools in Ohio

- “Come Together for Change†ARC Ohio Legislative Event, Columbus

- SAFE Weighted Vests, Blankets and Lap Pads

- AAPC Book Specials

- Dayton Autism Society-Walk forAutism 5K-2008

- National Autism Association – Northeast Ohio (NAA-NEO) providing grants to Families

- Northeast Ohio Autism Group Wine Tasting Event

- CMS Requesting Input Proposed Rule

- ASA's Autism Source hits 25,000 listingsNOTE: If you are interested in participating in research projects, ASO is now posting all research opportunities on our website. For information on available opportunities, visit our webpage www.autismohio.org, click on "Information" along the left side of the home page and then click on "Studies/Surveys".Have you purchased your Ohio Autism Awareness License Plate yet? To purchase yours, visit www.oplates.com and click on "Specialty Plates" or visit our website at www.autismohio.org for more information.

Sincerely,Autism Society of Ohio701 S. Main St.Akron, OH 44311(330) 376-0211fax: (330) 376-1226email: askASO@...home: byavorcik@...web: www.autismohio.org Please note: This is provided for information purposes only. The ASO does not endorse or recommend any providers, methodologies or services. Providing this information should not be construed as an endorsement by the ASO, either explicit or impiled.

Valentine’s Dance/ St. s Day Dance Friday, February 17 – 9 p.m.(Doors open at 6:45)

Reservations preferred. Contact or at 330-379-3337 before Friday, January 25.

Friday, March 147 – 9 p.m.(Doors open at 6:45)Please make plans to join us! Reservations preferred. Contact or at 330-379-3337 before Friday, March 7. SociAbilities1275 Sweitzer Ave., Akron(Entrance/Parking off Curtis Ave.) Please have transportation arranged to prevent early arrival or late departures. Thank you

Join us for a night of dancing, door prizes, refreshments and fun! Admission is only $5 and there is no charge for staff assisting dancers. Attendees must be 18 years or older.

Visit us on the web at: www.udsakron.org

This event is sponsored by SociAbilities After Hours, a program of United Disabilities Services

FREE AUTISM WORKSHOP - An Introduction to Autism for Parents and Professionals Project ACTION “Autism Community Training In Our Neighborhoods†Developed by Bowling Green State UniversitySchool of Intervention Services Funded by a Family Empowerment Grant throughLucas County Board of MRDDIn cooperation with: Northwest Ohio Regional Autism Advisory Council andThe Friendly Center DATE: February 21, 2008TIME: 3:30 p.m. – 5:30 p.m. LOCATION: The Friendly CenterADDRESS: 1324 N. Superior Street, Toledo, OH 43604 419-243-1289

OR

DATE: February 28, 2008

TIME: 6:00 p.m. – 8:00 p.m.

LOCATION: Crossroads Community Resource Center

ADDRESS: 4543 Road, Toledo, OH 43613 419-475-1289

This workshop will focus an introduction to Autism Spectrum Disorders and recommended strategies for working with individuals with Autism Spectrum Disorders at home and in the community. (We are grateful for the in-kind support from the University of Toledo Department of Psychiatry – Public and Community Psychiatry.) For further information please feel free to email the following individuals:Dr. Ellen ewillia@... Dr. Murray mmurray@... Ms. Andie Ryley aryley@...

The NW Ohio Educational Service Center’s “Art of Administration†series presents:

Autism 101 for Administrators

Wednesday, January 23, 20088:30 - 11:30 a.m.

Northwest State Community College, Room C200

22600 State Rte. 34Archbold, OH 43502(419) 267-5511This presentation will provide strategies for administrators tosupport professionals working with students with AutismSpectrum Disorder and their families. The strategies will includeunderstanding the disorder, tips for legal compliance, positivebehaviors supports and the impact of Autism characteristicson school, home and community. The presenters are Dr. Ellen, Dr. Murray and Dr. Pat Pauken of the NorthwestOhio Regional Autism Advisory Council.

Register online by clicking on the Professional Development links atthe NwOESC website at: www.nwoesc.k12.oh.us

For more information, contact Kathy Link at nwoesc_kl@...

Save the Date - ASA Greater Cleveland Chili Cookoff in April

April 8, 2008- The third annual Greater Cleveland Chili Cook-Off for Autism, again to be held at the Terrace Club of Progressive Field! This will be the first major event at the Terrace Club after the Indians take the field under its new name. Visit www.asgc.org for upcoming details!

Living with Autism Spectrum Disorder at home, at school and in the Community

PRESENTED BY FAMILIES CONNECTED OF CLERMONT COUNTY, INC FACILITATED TRAINING BY: Henry, OCALI Executive DirectorDonna Owens, Family Services Administrator OCALI, located in Columbus, serves as a statewide clearing house for information about Autism spectrumdisorders and low incidence disabilities. OCALI monitors information on resources, trends, policies,service and current education interventions and provides technical assistance training to increase thecapacity of community service agencies to provide appropriate and evidence-based supports.They maintain a robust website with information and a range of resources including a service providerdatabase and an extensive library of resources for distribution to Ohioans at no cost. OCALI is funded bythe Ohio Department of Education, Office for Exceptional Children (ODE-OEC). Visit online atwww.ocali.org Saturday, February 23, 2008Location: Mt Carmel Christian Church4183 Mt Carmel-Tobasco RoadCincinnati, Ohio 45255Time: 9:00am- 3pm…..registrations 800-9:00 am Cost: No Cost to any participant AGENDA FOR THE DAY:Guidelines for success at homeAddressing the dreaded behavioral issuesTeaching the hidden curriculumWhat parents need to know about ASD and the IEPPreparing for Adulthood and Community Life REGISTRATION for the OCALI training can be completed by calling Families Connected @ 513-732-5034 ore-mail @ fconnect@... …lunch and refreshments will be provided at no cost….for Directions: searchMap quest …or call Families Connected….

****Our special thanks to the Clermont County Mental Health and Recovery Board for choosing this project as a recipient of the recent mini-grants to increase awareness and help safeguard the mental health of families and children. Other contributors and collaborators include: Clermont County MRDD, and Families with ASD, as well as, many local agencies that will be providing resources and sharing information withparticipants.

February MRDD Family Advisory Council Meeting

February 5, 200810:00-3:00 Columbus Developmental Center Training Room 10:00-10:15 Welcome: Peggy Updates 10:15-12:00 Non-Waiver Supported Employment: Adult Day Waiver Services and Settlement I.O. Waivers: McAvoy 12:00-12:30 Lunch provided by the County Board Association 12:30-2:00 NW Ohio Evaluation and Treatment Center (program for individuals that need structured services): Brent Baer, NODC Program Director 2:00-3:00 “Director Chats†Director Please rsvp to Michele Kanode at michele.kanode@... or by phone at 614-644-0265.

Save the Date - ARC of Ohio Day at Cedar Point

The Arc of Ohio proudly presents:The Arc of Ohio Family Day at Cedar Point 2008!Save Wednesday, May 21st, 2008 for this great day of fun, friends & family! Additional details to come!

Visit www.thearcofohio.org for continuing updates.

Friday Night Fun

Presented by KidsLink Neurobehavioral Center 4th Fridays of each Month from 7:00 – 9:00 pm

Upcoming DatesFebruary 22 May 23March 28 June 27April 25 July 25

Friday Night Fun is designed for teens age 12 and up with Asperger Disorder. Come join us for some fun activities while making new friends in a safe and supportive group! Sample activities include bowling, game night, rock climbing, and more!

$30 per outing – includes all event costs

To be notified about event details, please call 330-963-8600 or click on “Schedule Appointment†at www.kidslinkohio.com.

New Book: Changing the Course of Autism A Scientific Approach to Medical Treatment

Changing the Course of AutismA Scientific Approach to Medical Treatmentby Jepson, M.D. with Jane

We're in the midst of a long-overdue shift in our understanding of Autism. What was once seen as a mysterious, incurable mental illness is now being recognized as a medically treatable, whole-body disorder.Unfortunately, far too many pediatricians are still tied to the misconceptions of the past. It's extremely difficult for parents who wish to treat their children's medical issues to find a physician who understands the complex health problems that our children with autism face."Changing the Course of Autism" was written with physicians in mind. It contains over 50 pages of references to published scientific studies supporting the information and treatment options provided by Dr. Jepson. The book can be purchased for $12.89 on Amazon.com at http://www.amazon.com/Changing-Course-Autism-Scientific-Physicians/dp/1591810612/ref=pd_bbs_sr_1?ie=UTF8 & s=books & qid=1200586696 & sr=1-1 or here http://tinyurl.com/27n6xd.Here's what doctors are saying about "Changing the Course of Autism":"I just finished reading this book by Jepson MD and Jane , and it is brilliant. Thank you both for writing this intelligent, well-referenced, informative book!"Sincerely,Nina Tomei, M.D."To date, I have purchased 15 copies of "Changing the Course of Autism". Two copies will be going to my daughter's pediatricians at her two month visit. One copy has already gone to the mother of an autistic patient (with chronic diarrhea and "failure to thrive") I saw last week. The rest of the copies will be going to the dozen or so co-workers of mine who are new parents. I plan on making more bulk purchases in the future to distribute to fellow physicians, local libraries, etc.Thank you for your time. Your book is already changing minds and attitudes. Keep up the good work." S. Swinney, MD FAAEM, Nixa, MOFrom a parent who gave a copy to her doctor:Hello all,I am bursting with excitement so I am going to try to slow down and have this all make sense. The most wonderful thing has happened!I contacted Charlie's pediatrician about a week and a half ago to ask if he would read this book if I brought him a copy and if he would be willing to work with and share info on Charlie with Dr. Jepson once we got started. He said that he would read it and he would help with anything that would help Charlie.Okay, fast forward a week and a half - the doctor walked into the room and immediately began talking about this book. He thanked me for bringing it to him and said that it was fascinating. He contacted Dr Wakefield. They had a conversation and our pediatrician says that he is a convert! He just last night was writing up a protocol for all the children that he sees who have autism.

OCALI SURVEY ON AUTISM SPECTRUM DISORDERS AND TRANSITION TO COMMUNITYThis Transition Survey is intended to be completed by the following target group: · Family Members with individuals on the autism spectrum (ages 14 and older), · Individuals with Autism Spectrum Disorder (ages 14 and older), and · Professionals that support individuals with autism spectrum disorderTransition to Community encompasses transition to employment, postsecondary education/training, and to community participation, including residential options, health care and financial management. Transition as defined by IDEA is a results-oriented process, focusing on improving academic and functional achievement and facilitating a student’s movement from school to life after school. Results of this survey will provide information about the experiences of students with ASD in school, their activities after leaving school, and their needs for supports and services in their communities. These results will be used to inform the Governor’s Office, the Ohio Department of Education, the Ohio Department of Mental Retardation Developmental Disabilities and the Ohio Rehabilitation Services Commission, the State Autism Network and other disability-related agencies and organizations about the transition experiences and needs of individuals with ASD.The survey will take approximately 20 minutes to complete. We appreciate your time and thoughtful responses. The final results of the survey will be posted on the OCALI web site. To Participate in the survey, visit: http://www.autisminternetmodules.com/dws/index.php?sid=WLUI1LPe18

Getting Kids in Sync WorkshopA sensory processing approach to challenges associated with Autism, ADHD, Learning and Behavioral DisordersPresented by International Australian SpeakerGenevieve Jereb OTROccupational Therapist / Author and Singer of the muchloved children’s albums ‘Say G’day!’, “No Worries’, ‘Jumpin’ Jellybeans’ and ‘Cool Bananas’Madison, WI, 25th April, 2008Bloomington, MN, 28th April, 2008Grand Rapids, MI, 5th May, 2008Raleigh, NC, 9th May, 2008Louisville, KY, 12th May, 2008Workshop description:This presentation is designed for therapists, teachers, parents, caregivers and other professionals who are interested in understanding the fundamentals of sensory processing and its impact on attention, behavior, social engagement, creative thinking, purpose driven play and learning. Genevieve offers practical and powerful tools to help support children “learn and thrive from the inside outâ€. Participants will be able to add beneficial experiences to the sensory diets of the children they care for. Respiration and its effects on behavior, learning and attention will be presented along with practical tools to support the breath at home, in the classroom or in the social environment. Participants will be exposed to a multitude of activities involving rhythm and movement to implement immediately when leaving the workshop with the children they care for. A relationship based approach to interacting with your children to support problem solving, motor planning, creative thinking, building bridges between ideas and social connectiveness will also be presented in specific detail. The speaker will address how sensory processing difficulties affect many children, both with and without the diagnoses of Autism Spectrum Disorders, Asperger’s Syndrome, ADHD, ADD, learning challenges and other developmental and neurological challenges. The speaker will describe how, both recognized and undetected, sensory processing difficulties in children can significantly impact social and emotional relationships, behavior, attention and learning in the classroom, home and clinic. GENEVIEVE JEREB OTR is an Australian-born pediatric occupational therapist who presents on sensory processing disorders world wide. She has worked with leading USA clinicians and lecturers, collaborating with the well known international lecturers, Carol Stock Kranowitz, and Wilbarger, Sheila Frick and Colleen Hacker. During her ten years in the USA Genevieve was co-owner of the cutting edge treatment facility, Therapeutic Associates and co-taught the course ’Treatment Perspectives for Sensory Modulation Disorders’.

Early Bird Rate Registration RateCost:$169 (Professional)$139(Parent)Seating for this workshop is limitedCONTACT:Sensory ToolsPO Box 44219Madison, WI, 53744-4219Phone/Fax: 608 819 0540Email: salessensorytools (DOT) netREGISTER ONLINE at www.sensorytools.net

Webcast: Gastrointestinal Issues and Autism – What You Need to KnowPresented by Kurt Woeller, DO(Biomedical Specialist using the Defeat Autism Now! approach)Wednesday, FEBRUARY 6, 20086:00 pm (Pacific Standard Time)6:00pm Los Angeles/Vancouver (PST) 7:00pm Denver/Calgary (MST)8:00pm Chicago/Dallas (CST) 9:00pm New York/Toronto (EST)These FREE web conferences will offer an invaluable resource for professionals and parents all over the country who want to find out more about the biomedical treatments for autism, developmental disorders and chronic neurological disorders. ! Dr. Woeller’s live web conference will be held on a monthly basis at 6pm (Pacific Standard Time).After a 60 minute slide presentation by Dr. Woeller, you will have a chance to ask questions on the presentation topic or related topics for 30 minutes.Helping individuals Reach their Maximum Potential For more information and to register go:http://www.greatplainslaboratory.com/online-conference/online-conference.html

Support Group Meeting, Brecksville

Hello!I'd like to invite you to join parents of children with ASD and other disabilities at a support group meeting to be held at the Brecksville Community Center at 1 Community Drive, Brecksville, OH. The following dates and times have been reserved:January 29, 2008 7:30 to 9 pmMeet other parents from the Cleveland area who have been implementing a variety of biomedical therapies with their loved ones with ASD! We will have two special guests, also parents from Columbus attend this meeting and share their experiences with both biomed and the support group they have been running there very successfully. One of the guests will be Shoemaker, Physician-to-Parent Liaison at both offices of Dr. DeMio (www.drdemio.com). She is working with Dr. DeMio in the biomedical treatment of the children and patients of all ages. Her role is to work directly with patients in any and all aspects of their medical care. also founded the Columbus support group and is a mother to a child who has recovered from ASD through biomedical interventions. Terry Schwallie is another mom from Columbus who has been involved with the support group in Columbus and is pursuing biomedical interventions with her children. Please RSVP to Pattison with NAA-NEO at (216) 544-1231, by January 27, 2008.

The Role of Allergies and Their Treatment for ASD and Other DisordersFebruary 25, 2008 7 pm - 9 pmLecture by Dr. Cheryl Leuthaeuser titled The Role of Allergies and Their Treatment for ASD and Other Disorders. Dr. Cheryl Leuthaeuser is a graduate of the Ohio University College of Osteopathic Medicine (OUCOM). She is board certified in both Family Medicine and Neuromusculoskeletal Medicine/Osteopathic Manipulative Medicine. She completed award winning original clinical research during her residency that revealed cranial osteopathy helps those suffering from sinus infections faster than antibiotics alone. She is also a teacher and she trains medical students as a OUCOM Clinical Associate Professor of Family Medicine. She enjoys spreading the word about her success by doing lectures at Cleveland Clinic affiliate hospitals, Autism conferences and local parent organizations. Her most prized accomplishment is being the mother of two healthy boys that have benefited from the same treatments she offers her patients. For more information about her specialy and practice, please visit www.integrativewellcare.com .The lecture will be followed by an informal discussion where any and all questions will be answered by her. Please RSVP to Pattison with NAA-NEO at (216) 544-1231, by February 20, 2008.If you any questions, you can email apattison@... or call (216) 544-1231.

National ADA SymposiumMay 12-14, 2008America's Center, St. Louis, MOFor more info re the Symposium, please go to web site www.adasymposium.org Don't miss the most comprehensive conference available on the Americans with Disabilities Act!The DBTAC-ADA Centers are proud to announce that Symposium attendees will have the opportunity to participate in a U.S. Access Board town meeting. The Access Board holds bi-annual town meetings in cities throughout the United States to receive feedback and recommendations on accessibility issues. This year, the Access Board will hold its town meeting in conjunction with the National ADA Symposium. The focus of the meeting will be airport access. Representatives from the U.S. Dept. of Justice, U.S. Access Board, Equal Employment Opportunity Commission, U.S. Business Leadership Network, Job Accommodation Network, DBTAC-Great Plains ADA Centers as well as other nationally recognized presenters will be conducting sessions at the ADA Symposium.The National ADA Symposium will also feature an expanded EXPO and AT Fair.Please visit the ADA Symposium website for more information, session schedule and descriptions and on-line registration.

“Walking the Path†Through the Transition Years for All Youth with ASD and Related Disabilities

Presented by: Central Ohio Chapter of the Autism Society of America

January 29, 2008 7-9 p.m.New Location: Arc of Ohio1335 Dublin Road, Suite 205CColumbus, OH 43215

(Directions: While facing the building, to the left is Building A. There are very distinct mirrored doors and are marked “Aâ€. Park near this area and enter through the mirrored doors. Take the elevator up to the 2nd floor. The conference room is immediately to the left, outside the elevator doors. We will also will have signs posted for Central Ohio Chapter, Autism Society of America. Please look for these.

RSVP not required, but appreciated to mcrawford@... (Marie Crawford, Parent Advocate, The Arc of Ohio). Jackie M. Marquette Ph.D. Today there are few positive examples of young adults either high functioning or severe levels of ASD transitioning into life with purpose and increased independence. Many are living in isolation, cut off from society. No one with a disability just happens to make effective life transitions, nor do they reach goals by accident. It is imperative that youth with disabilities receive an optimistic sense of what their lives as adults can become. They can be shown how to envision a good life through actions of exploring and identifying their best strengths. The solution is to apply broad supports and put in place creative options. How do we--the individual with ASD, parents, and professionals--begin putting all the pieces together? Are you concerned how someone you know with ASD will live and learn in the adolescent or young adult years? Do you want to learn more about how youth with ASD can have employment ideal to personal strengths, find leisure that is enjoyable with associations or friendships, and have a life with a sense of well-being? Learn How Teens and Young Adults with ASD Can Transcend their Disability and Shape their Own Lives Youth see in themselves what we see in them. Understand how to positively support individuals with ASD in all areas of living. Hear about the true lives of individuals who overcame challenges living a life they value. Recognize how to identify and then apply a gift or strength into a tangible form, thus increasing capability and independent levels in youth regardless of disability or severity. Learn how youth with ASD can develop personal responsibility, experience individual growth, and function at h/her highest capability level. New thinking and new actions are critical in how we support people with all disabilities so that current ineffective results will change into positive life outcomes. “Having a life of one’s own implies having a life that one wants.†- Dr. Jackie New Tools to Guide Teenagers into AdulthoodWhat is the Walking the Path Model (WP)©? Becoming Remarkably Able published by Autism Aspergers Publishing Co. illustrates the Walking the Path Model©. It is a system of ongoing assessment and action steps that promote the individual’s involvement, emotional support, and growth. WP is about identifying talents and strengths, then transferring them into tangible forms. It’s all about finding and pursuing that hobby, that activity, that job, or that subject of study which makes the heart sing. How can this be done when some (persons) have significant needs? When traditional and innovative broad supports were in place and matched to the person’s unique needs, youth have shown enormous capacities, even those who have more severe disabilities. The planning process involves three role groups in collaboration: family, professional personnel/providers, and the individual with a disability. What is the Capability and Independence Scale (CAIS) ©? The CAIS© is a new assessment and planning tool to evaluate a person’s capability. It is a strengths based assessment that measures a person’s capability within a set of quality of life indicators. It has five unique features that set it apart from other popular scales. 1) Emphasizes a person’s capability or strengths, not deficits or limitations.2) Evaluates the individual’s capability levels within the contexts of “traditional and innovative broad supports†and “independently†within 7 domains of living and 3) Examines an individual’s emotional area.4) Encourages collaboration, draws upon family and professional involvement.5) Becomes useful as an assessment and a planning tool. About JackieJackie Marquette, Ph.D., has over 20 years of experience as a special educator and school consultant, and has published in books, journals, and monthly newsletters. Jackie earned her doctorate at the University of Louisville, where her research explored how families guide young adults with autism spectrum disorders to live independently. Most importantly, Jackie has a son with autism who is living independently with supports. Trent is employed at Meijer department stores, has his own art business, Trent’s Studio LLC, and has lived independently for 6 years with “creative supports.†He has also been designated a Kentucky Juried Artist by the Kentucky Arts Council.

For more information: http://www.asperger.net/aapc_authors_jackie_marquette_letter.htm Contact Info:Jackie M. Marquette Ph.D.7514 Warrenton Hill Ct.Louisville, KY 40291 502.742-8756 502.417.6063 jackie@... www.themarquettegroup.com

News from the ASA:

Registration Opens for Day on the Hill and 39th National ConferenceOnline Registration for the 2008 ASA National Conference, July 9-12 at the Gaylord Palms Resort & Convention Center in Orlando, Fla. is now open at www.autism-society.org/conference.ASA will host its 2008 Day on Capitol Hill

ASA will host its 2008 Day on Capitol Hill March 12-13 to increaseawareness and understanding of autism issues among federalpolicymakers and to build support for ASA's legislativepriorities. This action-packed event will include one day of extensivetraining on key legislative priorities, workshops to improve youradvocacy skills, sessions on autism and the upcoming elections, andother exciting topics. Read more: http://www.autism-society.org/site/R?i=I8CWNAgTFEJ3o3LUiNzjDQ..Autism Hits the Stage and Screen"Autism: The Musical" is a new documentary that followsfive Los Angeles children over the course of six months, as ElaineHall - director and mother to one of the children - helps them maketheir musical stage debut. In New Jersey, the rock opera "Dayafter Day" is up for a second run. , a youngwriter in Plano, Texas, brings back an updated version of her play"B at the Beginning" to Collin College, February 7-10.Read more: http://www.autism-society.org/site/R?i=HgxGsYWGc3JsLKSwKTJHyg..

Support Financial Security Accounts for Individuals with DisabilitiesThe Financial Security Accounts for Individuals with Disabilities Act,if passed, would allow families to create a tax-deferred savings planfor their loved one with a disability. The bill would allowflexibility in establishing an account and transferring funds,portability on a state-to-state level and some measure of financialsecurity. Read more: http://www.autism-society.org/site/R?i=YJtnYr8fpOs92CverQomzA..

Researchers Investigate Causes of AutismThe number of autism diagnoses continued to grow even after themercury-containing preservative thimerosal was removed from childhoodvaccines, researchers from the California Department of Public Healthfound in a study published in the January 2008 issue of the Archivesof General Psychiatry. On the other side of the country, a group ofresearchers from the Autism Consortium in Boston uncovered a geneticflaw that may account for 1 percent of autism cases. Read more: http://www.autism-society.org/site/R?i=JxAgYogcvzRzQiAxi931Yg

Mozart and the Whale Now Available in PaperbackWhen Jerry and Newport first met, the connection was instant. Onething the couple shared was truly unique - both had been diagnosedwith Asperger's syndrome. In Mozart and the Whale: AnAsperger's Love Story, the couple candidly recounts thehardships they faced with Asperger's as children and adults.Read more: http://www.autism-society.org/site/R?i=EdCseZY-Bvw1DAY_j4q5iQ.. Looking at the "Other Side of Autism"With autism spectrum disorders disproportionally affecting boys, howis living with ASD different for a woman? Lori Ernsperger and leWendel, an education professional and a mother of a young woman on the spectrum, respectively, take a look at this issue with their new bookGirls Under the Umbrella of Autism Spectrum Disorders: PracticalSolutions for Everyday Challenges. Read more: http://www.autism-society.org/site/R?i=xj6mRorIhWn_4fEaRmMMog..

HB 406 – a bill to ban corporal punishment in public schools in OhioUpdate:Yesterday, January 15, sponsor testimony on HB 406 was presented by Representatives Jon and . It is rare to have joint co-sponsors, one from each party, for a bill. Their presentation was magnificent. They called corporal punishment morally repugnant and presented a litany of reasons why it should be banned in Ohio. Mr. also laid to rest some of the possible objections to the bill (l) local control – answer: Ohio needs to protect children in school environments and has already done so through laws like the bullying law, (2) there is more violence against teachers and taking paddling out of schools contributes to that – answer: violence is down in schools and so is paddling (research on our website), (3) what can schools do instead? Answer: - the state has provided money for positive discipline programs and there are many options available to districts. There were many questions which the representatives answered very well and their presentation seemed to be favorably received by the majority. Next:Education Committee will meet next Tuesday, January 22 (usually at 3:00 pm) and that there will be proponent testimony on HB 406. If you are planning to testify, could you let me know so that I can keep the joint co-sponsors updated? Does your organization have plans to meet with legislators about this bill and will you be sending letters of support? Do you need help with contact information? If you need help with testimony, please feel free to call me at (614) 221-8829. Mr. graciously endorsed our website http://www.stophitting.com/disatschool/ as a great source of information.

Nadine Block, Executive Director of the Center for Effective Discipline155 W. Main Street #1603, Columbus, OH 43215 (614) 221-8829 nblock@... www.stophitting.org corporal punishment laws and regulations, status of use, effects, and alternatives

“Come Together for Change†ARC Ohio Legislative Event

presented by the ARC OF OHIO

Advocating for the Rights of Citizens with Developmental Disabilities

March 12 – 13, 2008 PRELIMINARY PROGRAM Wednesday, March 12, 2008The Columbus Renaissance Hotel50 N. Third St.Columbus, OH 43215 8:00 – 10:00 a.m. Registration (includes Continental Breakfast)10:00 a.m. – Noon Opening Session: Community Participation Begins Early“A Dialogue on Early Intervention in Ohioâ€Employment First“The Transition from School to Real Jobsâ€Noon – 1:30 p.m. Awards Luncheon 1:45 – 4:45 p.m. Breakout Sessions:l The Future of MR/DD Services l Medicaid Buy-In – Will it Really Happen?l Supported Employment l Using Technology to Live in the Communityl Money Following the Person Initiatives l Changes in Adult Day Servicesl Accessing Medicaid and Its Benefits l How to Make an Impact on Legislatorsl Direct Support Professional Training l Autism – Who’s Taking the Lead? 5:00 – 6:30 p.m. Cocktail Reception for Legislators, Staff & the Administration Wednesday, March 13, 2007Ohio Statehouse – (location to be announced later)Join with hundreds of individuals with disabilities, family members, advocates, providers, county staff and support personnel to present a united voice. Call your state legislator now and make an appointment to visit them and express your views directly. 9:00 a.m. – 11:00 a.m. Coffee/Refreshments available at the Statehouse.All Day Scheduled Individual Legislative Appointments Return the registration form early and make your hotel reservations now. Space is limited.Continuing Education Units for ODMR/DD and Social Work are pending. 2008 Come Together for Change The Columbus, A Renaissance HotelRegistration Form March 12 & 13, 2008 Name Badge and Mailing Information (use a separate form for each person) Name ________________________________________ Badge Name ________________________________________ (this name will appear on your name badge)Title ________________________________________Organization ________________________________________Mailing Address ________________________________________County________________________City _________________________ State ____________________ Zip Code __________Work Phone ____________________ Fax ____________________ E-mail ______________________ Conference Registration Registration Fees: I am a person with a developmental disability FREEI am a family member FREE Professionals/Other $89.00 Amount Enclosed $ __________Purchase Order# (please send me an invoice) __________

I need ODMRDD Continuing Education Units I need Social Work Continuing Education Units I need help scheduling an appointment with my state legislator Days I will attend:Wednesday- - includes continental breakfast, lunch and session materialsWednesday- - cocktail reception Thursday Event at the Statehouse (continental breakfast) Ways to register:l Register & pay online at www.thearcofohio.orgl Fax this form to 614-487-4725l Mail this form to The Arc of Ohio/1335 Dublin Road, Suite 205-C/Columbus, OH 43215 *Please call 1-800-875-2723 with any questions* Hotel rooms are available at the The Columbus, A Renaissance Hotel. The overnight fee is $129 (single, double, triple or quadruple occupancy) Please call 1-800-417-1057 to make your reservation by Monday, February 18, 2008.Be sure to mention The Arc of Ohio to receive the group rate. Special Requirements:Dietary __________________ Other __________________ Return to: The Arc of Ohio 1335 Dublin Road, Suite 205-C Columbus, Ohio 43215 (614) 487-4720 Fax (614) 487-4725

SPACE IS LIMITED! REGISTER EARLY!

SAFE Weighted Vests, Blankets and Lap PadsThere has been a lot of press surrounding weighted therapy items in recent days. Unfortunately, some companies have chosen to recommend lead weighted items for use with individuals with autism. As a parent, caregiver, or professional, I am sure you are aware of the danger this poses. Unlocking Autism is proud to offer a line of lead free weighted vests, blankets, and lap pads that are individually made for you. Weighted Vests The vests can be made from almost any cotton or cotton blend fabric. When ordering, you give a suggestion of what your child likes, such as Scooby Doo, Sea World, or Camoflage. From there, you will be sent pictures of fabric for your approval. We do our best to find a fabric your child will like so they will be less resistant to utilizing the vest. The vests have 4 pockets on the inside for weights. Weights are not included. Some suggestions for weights include flattened, non-toxic, non-hardening modeling clay in ziplock bags or bean bags filled with rice, beans, or poly-pellets. Because you are creating the weights, you can vary it based on your child's needs. Also, because the weights are removable, you can let your child wear the vest unweighted if needed and washing is easy. Weighted Lap Pads and BlanketsAgain, we go to great lengths to make sure the fabric is one your child will love and use. Usually, we try to stick with a flannel material for its softness. Lap pads and blankets come with weight tubes that are filled by you. Suggested fillers include flax seed, dried corn, rice, or beans, or poly-pellets. The natural fillers are nice because they are inexpensive and can be heated or frozen for added comfort. Also, because the weight tubes have velcro closures, you can replace the filler if needed. This is especially important for those who may have potty accidents. This allows the blanket to be machine washable. Tubes are put into the blanket velcro end first to make it difficult for the child to remove the tubes and get to the filler. In any case, if your child is allergic to rice, use beans, etc. Please visit our store at www.unlockingautismstore.org and feel free to email us with any questions you may have about these therapeutic tools. mindy@...

AAPC Book Specials

Here's an offer you can't refuse! To make room for exciting new titles coming out soon, we are offering fantastic savings on several select books. If you enjoy doing your shopping after the holidays-and even if you don't-click on the link below to see current books at 50% off. In addition, check out the special 60% discount on foreign language titles. Feel free to shop around. Also, keep an eye out for any of our future sales. http://www.asperger.net/specials.htm

Best wishes for a Happy New Year.

Dayton Autism Society-Walk forAutism 5K-2008

*Snow on the ground? Chill in the air? Think Spring!!!It's time to register for our first annual Dayton Autism Society-Walk forAutism 5K-2008!Please visit our website at:www.daytonautismsociety.org

* and visit the events page.There, you can register four different ways to take part in our walk!The walk will take place on Saturday, April 19th, 2008 at the PayneRecreation Center in Moraine, OH.All the details are on our website.We have many exciting activities in the works for walk day and are planningfor everyone to have a great time!*TO DO:1. Please register early! Each registration gets you a FREE walk t-shirt!2. Forward this email to friends and family and encourage them to register,too.3. Get a team together where you work, or with your friends. It's more funto walk with your friends!4. Check with your employer to see if they'd like to be a sponsor andgarner some great advertising for a great cause!5. Set a donation goal. Aim high! Remember that 100% of your donationsstay right here in Dayton to help local families. To get you started, meetyour first $20 goal and get a FREE Dayton Autism Society water bottle! (oneper person please)6. Start collecting donations. For every $100 donated on walk day, you'llreceive an additonal FREE t-shirt!*See you on April 19th!Note: If you're a vendor of merchandise or services directly related toAutism, please sign up for a booth as soon as possible. They will go veryfast. We're expecting a great turnout!

National Autism Association – Northeast Ohio (NAA-NEO) providing grants to Families

Local Autism Group – the National Autism Association – Northeast Ohio (NAA-NEO) providing grants to over 40 families and their children diagnosed with autism (ASD) in the Northeast Ohio area CLEVELAND, Ohio, January 15, 2008 – The National Autism Association – Northeast Ohio Chapter (NAA-NEO) is pleased to announce that 43 grants have been awarded to families raising a child/children or dependent(s) with an autism spectrum disorder (ASD) through its Helping Hand Program in the counties surrounding Cleveland and Akron. Grants have been given out in the amount of up to $1,000 to help pay for autism related treatments and therapies such as speech, music, behavioral and occupational therapies, summer camps, tuition assistance, biomedical treatments as well as respite care. The Helping Hand grant program has been funded by corporate donations and NAA-NEO’s first fundraiser concert, raising $23,000. “We have been flooded by applicationsâ€, said Don Pattison, president of NAA-NEO. “The need for financial assistance by these folks has been truly overwhelming. A father to a child with autism himself, Pattison and his group understand what it takes to support a child with the challenges that autism poses on the individual. With the promise held by early and intensive intervention, parents face the pressure of trying to provide therapies that are only covered to a limited degree by insurance companies or third parties, or are flatly refused. With intensive supports and therapies young and older children with autism can improve in all areas of their development. “The problem is that the financial supports to provide these treatments to our children are very limited and the stress on families is enormousâ€, added Pattison, whose background is in banking, urban studies, non-profit management and fundraising.

The above circumstances have driven Pattison and his wife to start their non-profit endeavor in 2006 with a group of fine professionals and other parents of children on the autism spectrum. In December 2006, they formed the National Autism Association – Northeast Ohio (NAA-NEO), a local chapter to the already well established national organization called the National Autism Association (NAA), and created the necessary infrastructure to operate. To date, this platform has enabled the group to not only raise funds but also to provide financial education workshops and link families with existing community resources, primarily through their website at www.autismnortheastohio.org.

NAA-NEO is inviting the community to join them in their mission to support area families and their children with autism. Two benefit concerts will be held in February 2008 in Akron and Cleveland to raise funds so that the organization can respond to the overwhelming need from the community and award more grants to families for autism treatment. Attending one or both of the upcoming benefit shows is a simple way to lend a hand to the autism community at affordable prices. Critically acclaimed musicians will perform at these concerts such as Todd Snider in Cleveland at the Beachland Ballroom, who won 2006 Top Album honors by Rolling Stone and NPR. Besides Todd Snider, Akron native and brilliant musician and song writer Tim Easton will also perform at the Beachland on February 29. Tim Easton has garnered Four Star album reviews by Rolling Stone. Charlie Saber, host of Alt. Country on WRUW-FM 91.1, will be spinning great tunes between sets. On February 28, Tim Easton will be playing a second benefit concert for autism with local favorite and great talent Zach at the Musica in Akron. The Summit 91.3 has been promoting both these events for NAA-NEO as the organization’s main media partner in raising autism awareness as well as funds, and in promoting quality musicians. Tickets are available at www.autismnortheastohio.org/special_events at only $30.00 for the Cleveland concert on February 29, 2008 at 7 pm and $20.00 for the Akron Show on February 28, 2008 at 7 pm.

NAA-NEO is also seeking corporate sponsorships at this time and is looking forward to partner on this endeavor with the community at large. Interested parties should contact Don Pattison, President, at (216)280-4544 with any proposals or questions. About Autism Autism Spectrum Disorder (ASD) is a neurological disorder which affects as many as 1 in every 150 children born in the United States. This disorder affects boys more often than girls and it causes significant problems with social skills, behavior, and communication. Autism can affect any child, in any family, and it knows no racial, ethnic, or social boundaries. Parents of children with autism can experience significant stressors due to the physical, psychological and financial demands of raising a child with autism. In the Cleveland area, parents are challenged to fund necessary interventions which can cost as much as $70,000 per year for one child. Insurance companies often do not pay for these interventions and some children are unable to access needed services due to a lack of financial resources. About National Autism Association –Northeast OhioThe National Autism Association of Northeast Ohio (NAA-NEO), a non-profit organization, was created with the mission of helping individuals diagnosed with an autism spectrum disorder (ASD) and their families. Our unique organization makes available financial assistance to parents of autistic children to more counties in the Northeast Ohio area than any other non-profit or non-governmental entity. Our mission is three-fold. First, NAA-NEO assists families by offering financial assistance to help defray the cost of treatments. Second, we educate people about autism and connect families to the available resources so that they have access to necessary treatments and interventions. Third, we link families with community resources, autism organizations and relevant information that is available through our website primarily at www.autismnortheastohio.org. Inquiries and tax-deductible donations can be placed online or may be sent to the National Autism Association of Northeast Ohio (NAA-NEO) at PO Box 221195, Beachwood, Ohio 44122.

Northeast Ohio Autism Group Wine Tasting Event

Saturday, February 9

6:30 - 9:00 pm

Colonial Beverage, 8389 Mayfield Road, Chesterland

Please join us for a private wine tasting to support your local autism community. Enjoy hors d'oeuvres and a large selection of tastings, including wine for autism from Grand River Cellars. Various auction items throughout the evening.

Tickets are $30 each ($15 tax deductible). Contact 440-488-3473 for tickets. All proceeds to benefit Northeast Ohio Autism Group (NEOAG).

NEOAG is an approved 501©(3) non-profit charity. Their mission is to provide resources for support, education, research, awareness and other related services and programs for individuals affected by autism in the Northeast Ohio area. For more information on NEOAG, please visit www.northeastohioautismgroup.org.

CMS Requesting Input Proposed Rule

The Centers for Medicare & Medicaid Services (CMS) is requesting publiccomment on how states could allow Medicaid beneficiaries who need help withactivities of daily living to hire, direct, train or fire their own personalcare workers. Beneficiaries could even hire qualified family members who mayalready be familiar with the individual's needs to perform personalassistance (not medical) services. The proposed rule may be downoaded byclicking here. This information has recently been updated, and can be accessed by visitingthis link: http://www.disabili<http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=143.> tyinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=143.

ASA's Autism Source hits 25,000 listings

Online database continues to grow -- please join us in getting the best information to people with autism and their families!Autism Sourceâ„¢, the Autism Society of America's online referral database of autism-related services and supports, recently added its 25,000th listing. "Our goal is to be the source that people turn to," said Repella, ASA's director of information and referral. "We want Autism Source to contain many different resources for people, but more important than the number of listings, those resources must be reliable. That's why we will continue to partner with chapters and other autism organizations that are on the front lines - local people who know details about the services and supports that are offered in their area." The database has grown by leaps and bounds since its launch in 2004, and its listings include everything from ASA chapters to legal services to training. Autism Source is free, searchable by location (including zip code) or service type and provides resource listings throughout the United States."ASA has the national presence coupled with the local connections to offer this type of comprehensive database that individuals on the autism spectrum, families, friends and professionals can trust," Repella said.To search Autism Source or to add a valuable local resource, visit http://www.autismsource.org/. You can also access Autism Source from the ASO website www.autismohio.org.Start the year off right. Easy ways to stay in shape in the new year.