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My son, who is fourteen, is running into the problem of being

misunderstood. He's high functioning, with an IQ of 120. With the

exception of his extreme speech impediment, it is easy to forget that

he is autistic. But lately, we have been having issues with

him " melting

down " , which has me baffled. This is not a behavior that he has not

exhibited

before, but usually happens when he is overstimulated or very upset

about something. He also lacks obvious emotions, hardly ever smiles,

and does not communicate the way the average child would. Lately he

breaks down and starts bawling. He has never been the crying type, even

as a baby he was insanely quiet. He is also very easily confused by

things that are really not that confusing (to me). The long and short

of

it is this. His diagnosis is only about a year old, although I've known

since he was an infant that something was wrong. I am desperately

needing to know what to do next. We have a diagnosis, but now what?

Since he is intelligent, it is sooo hard to get him the help that he

needs in the areas that he is lacking. Trying to get the teachers at

his school to understand his disability is very frustrating to me. His

tutor sees him as lazy, yet I know this to be untrue. They see his

autistic behavior as beligerent and rebellious. But he is not that kind

of kid, good as gold, always has been.

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Hello,

I am a pediatric occupational therapist working in schools and

outpatient. I would recommend looking into some sensory activities

for self-regulation to be used as a proactive measure(sensory diet) to

keep him regulated rather than a reactive measure when he is already

disregulated. The ALERT program is one protocol that teaches how to

identify your " engine " as well as develop strategies to change your

engine level. Can be found by searching ALERT in google. Also, Tools

for Teens is a nice booklet by Henry that gives teenagers some

worksheets to target situations that can get him disregulated as well

as ideas for school and home based ideas for self-regulation. There

is also a Tools for Teachers that discusses methods teachers can use

in the classroom to keep all of their kids regulated and attending

throughout the day.

Hope this helps!!! If you have any other questions you can email me

privately.

- Reichman-Merinar

>

> My son, who is fourteen, is running into the problem of being

> misunderstood. He's high functioning, with an IQ of 120. With the

> exception of his extreme speech impediment, it is easy to forget that

> he is autistic. But lately, we have been having issues with

> him " melting

> down " , which has me baffled. This is not a behavior that he has not

> exhibited

> before, but usually happens when he is overstimulated or very upset

> about something. He also lacks obvious emotions, hardly ever smiles,

> and does not communicate the way the average child would. Lately he

> breaks down and starts bawling. He has never been the crying type, even

> as a baby he was insanely quiet. He is also very easily confused by

> things that are really not that confusing (to me). The long and short

> of

> it is this. His diagnosis is only about a year old, although I've known

> since he was an infant that something was wrong. I am desperately

> needing to know what to do next. We have a diagnosis, but now what?

> Since he is intelligent, it is sooo hard to get him the help that he

> needs in the areas that he is lacking. Trying to get the teachers at

> his school to understand his disability is very frustrating to me. His

> tutor sees him as lazy, yet I know this to be untrue. They see his

> autistic behavior as beligerent and rebellious. But he is not that kind

> of kid, good as gold, always has been.

>

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  • 2 years later...

I'd recommend the Igenex Western Blot Lyme's tests.

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Kathy Dillon

Sent: Wednesday, November 03, 2010 9:49 AM

rheumatic

Subject: rheumatic teenager

I have ReA (RA) my teen daughter has chronic tenoditis that the Drs dont

seem to be able to help with. I am afraid she may have RA or somethinglike I

have (myco plasma) anyway, at this point my daughter is willing to have

testunbg done. Our local DRs dont know anything about jmycoplasma.. Im

asking this group for which tests should i go in and TELL the Drs to run onh

her? I do plan to test for thyroid, What else? Kathy

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