Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Dear Friend of ASO: News From ASO: - National Forum on Disability Issues in Columbus - Plan on attending! - Autism Early Screening Pilot Program Update - ASO Speaking Around the State - NOW OPEN! – 2008 NATTAP Conference Registration, Columbus - 2008 ASA National Conference - National Health Council's Putting Patients First Update (Candidates forums held in Columbus and Cleveland, OH - ASO participated in this effort) Putting Patients First: Media and Town Hall Meetings Next Stop: Orlando Petition Drive, Website Launch This Summer Take Action: Share Your Story! Upcoming Events, Resources, etc: - Dayton Autism Society invites you to participate in the Moraine Heritage Festival parade - News from the ASA: Helping HANDS for Autism Act Introduced in the House ASA Signs on to Environmental Health Bills Congress Poised to Complete Supplemental Appropriations Bill Americans with Disability Act Amendments Clear House Committees Study Links Social Skills, Brain Connections Product Offers Special Education Data Collection NASDDDS Conference Materials Now Available Online Resources for Children with Special Needs, Inc., Offers Free Training Series Free Autism Documentary: "Children With Autism: One Teacher's Experience" Book Teaches Children with Autism Which Behaviors Are O.K. - Upcoming Events - NE Ohio, Complied by Milestones - Cleveland Area Trainings from Achievement Centers for Children - Seminar:“Community Employment: A Priority of First Considerationâ€, Columbus - New Special Education Operating Standards (effective July 1, 2008) - Adult Care now available under IO Waiver - KidsLink Adventure Camp, Akron - Resource: Autism Games - Recipes need for Autism Benefit Cookbook - Article about web browser for autistic kids - Summit Academy Summer Camp - Cuyahoga County Library Programs - Resource: School Behavior Website - WALL-E Movie Day, Akron - ARTICLE: PERSISTENT FATHERS - Audio Conference: July 15th, 2008 » ADA Update: 18 Years Later - NCLB Recess until Reauthorization Act (H.R. 6239) - Act Now! - Special Needs Summer Reading Club (online) - Resource: Information on Gulten Free Diet - Book: Dannie's Dilemma: Living with aspergers - Using YouTube for Children with ASD - AUTISM PROGRAM FOR PARENTS AND PROFESSIONALS, Medina County - Autism Research Institute e-newsletter for June 2008 If you are interested in participating in research projects, ASO is now posting all research opportunities on our website. For information on available opportunities, visit our webpage www.autismohio.org, click on "Information" along the left side of the home page and then click on "Studies/Surveys". Have you purchased your Ohio Autism Awareness License Plate yet? To purchase yours, visit www.oplates.com and click on "Specialty Plates" or visit our website at www.autismohio.org for more information. Sincerely, The Autism Society of Ohio 701 S. Main St. Akron, OH 44311 (330) 376-0211 fax: (330) 376-1226 email: askASO@... web: www.autismohio.org Please note: This is provided for information purposes only. The ASO does not endorse or recommend any providers, methodologies or services. Providing this information should not be construed as an endorsement by the ASO, either explicit or impiled. News From ASO: National Forum on Disability Issues in Columbus - Plan on attending! National Forum on Disability Issues featuring the 2008 Presidential Candidates (invited) to be held on July 26, 2008, in Columbus, Ohio. The National Forum on Disability Issues, featuring the 2008 Presidential Candidates (invited) is a historic, nonpartisan forum on national disability policy to be held on July 26, 2008 in Columbus, Ohio. We plan to welcome over a thousand Americans with disabilities and their friends and family (registration required) to attend the event and to commemorate the 18th anniversary of our civil rights law, the Americans with Disabilities Act. The forum will feature time slots for the presidential candidates to individually present their visions for the future of disability policy in America followed by questions from the audience, asked by Judy Woodruff, news anchor and journalist ("The News Hour with Jim Lehrer"), who will act as the Moderator. ASO is a recent sponsor of this event. For more information, click here. www.aapd-dc.org. Autism Early Screening Pilot Program Update The focus group meetings in each of the five pilot counties - Belmont, Cuyahoga, lin, Warren and Wood are complete. Project Manager Ohio AAP has been analyzing the data and is developing appropriate pilot program for each for the pilot counties. The pilots should begin in the late fall. The FIVE STEPS FOR SUCCESS: AUTISM DIAGNOSIS EDUCATION PILOT PROJECT are: - Engage primary care health professionals in continuing education that will lead to implementation of enhanced developmental surveillance, and use of standardized developmental screening tools, including tools for autism, following American Academy of Pediatrics guidelines. - Identify, educate, and support community-based primary care practices who will partner with early intervention and early childhood education assessment teams in their communities to offer a standardized, comprehensive diagnostic evaluation for children with concerns in language and social development, including autism. - Develop stand alone educational opportunities specifically for residents i pediatrics and family medicine, but made available to other health professionals as a member benefit. - Work with the Ohio Department of Jobs and Family Services Bureau of Child Care, Healthy Child Care Ohio, the Ohio Child Care Resource and Referral Association, and local providers to identify and develop opportunities for collaboration to promote Step Up to Quality, including implementation of developmental screening in child care settings, while enhancing communication between child care providers and health professionals. In addition, identify strategies to enhance communication regarding developmental screening and concerns between Head Start and other preschool providers, and health professionals. - Develop and disseminate a public awareness campaign to promote the importance of addressing developmental concerns early and the value of early and repeated developmental screening, including for autism. ASO will keep you updated as to the progress of the pilot program. The Autism Early Screening project was made possible though the joint efforts of Rep. Bacon and the Autism Society of Ohio. ASO Speaking Around the State ASO Co-President Barb Yavorcik and Sawan Caruso have been busy presenting around the state on autism related issues. Maybe you were able to catch one of these presentations - if not, check out some of the upcoming speaking dates. Additionally, other board members have been making presentations around the state as well. Here is a list of recent and upcoming presentations - visit our website for an up-to-date lising: April 17, 2008, Springfield, Parents Meeting: "What's Happening in Ohio" - Barb Yavorcik April 18, 2008, Springfield, Rocking Horse Center Autism Conference: "Statewide Networks" - Barb Yavorcik June 7, 2008, Bowling Green, What Happening in Autism BGSU Conference: "Statewide Issues Update" - Barb Yavorcik June 7, 2008, Bowling Green, What Happening in Autism BGSU Conference: "Teacher Feature on Autism" - Andie Ryley June 13, 2008, Bowling Green, Autism Teacher Certificat Program: "Statewide Autism Issues and Resources" - Barb Yavorcik June 16, 2008, Cleveland, Milestones Autism Conference: "Statewide Issues Update" - Barb Yavorcik July 2, 2008 Sylvania, Lourdes College: Guest Lecture on Autism - Andie Ryley July 11, 2008, Orlando, FL, ASA National Autism Conference: "Sensory and Communication Based Strategies" - Sawan Caruso, M.A. and Ball, Ed.D. July 11, 2008, Orlando, Fl, ASA National Autism Converence: "State Advocacy Panel" - Barb Yavorcik July 18, 2008, Ashtabula, Taking Effective Strategies Home: Working with Parents of Children with ASD - Sawan Caruso and Amy Bixler Coffin October 11, 2008, Clevelan, OH, Autism Today International Autism Summit: "Statewide Autism Issues and Resources" - Barb Yavorcik November 21, 2008, Columbus, NATTAP Conference: "Political Advocacy - How to Successfully Advocate for Change" - Barb Yavorcik, Rep. Bacon NOW OPEN! – 2008 NATTAP Conference Registration The Autism Society of America (ASA) and Ohio Center for Autism and Low Incidence (OCALI) present the 2nd annual international conference on autism training and technical assistance. The objectives of the conference are to review current systems models for addressing the needs of individuals with autism spectrum disorders (ASD), promote use of best practice in research and intervention and provide methods for capacity building – all of which contribute to the ultimate goal of improving outcomes for individuals ages 3-21. Join the estimated 1,500-2,000 attendees from across the national and around the globe. NEW for 2008! Pre-Conference Sessions - November 18, 2008 Pre-Conference sessions are provided by leaders and recognized experts in the field and provide attendees with a valuable opportunity for in-depth discussion and learning. What: 2008 NATTAP Conference When: November 19-21, 2008 Where: Greater Columbus Convention Center | Columbus, OH Early Bird Rate: $185 Parent/Family Member Rate: $100 Pre-Conference Session Rate: $100 Conference registration and information available at: http://www.nattapconference.org The Autism Society of Ohio has provided a grant to OCALI reducing the registration rate for parents from last year's $185 to $100 for all three days of the conference! Register NOW! 2008 ASA National Conference July 9-12, 2008 Gaylord Palms Resort & Convention Center Orlando, Florida 2008 Keynoters: Temple Grandin, Ph.D., Bob Hendren, D.O., & Ball, Ph.D., BCBA The Autism Society of America recognizes that families and individuals living with an autism spectrum disorder have a range of issues and needs. The National Conference of the Autism Society of America is the only conference that addresses the range of issues, including early intervention, education, employment, behavior, communication, social skills, biomedical interventions and others, across the entire lifespan. Bringing together the expertise and experiences of family members, professionals and individuals on the spectrum, attendees are able to learn how to more effectively advocate and obtain supports for the individual with ASD. The ultimate goal is to empower family members, individuals on the spectrum and professionals to make informed decisions. Registration & Conference Schedule Go to www.autism-society.org/conference for the detailed 2008 ASA National Conference schedule. All session descriptions and speakers are now listed online, with over 200 speakers and 150 sessions. Be sure to register for the conference online by May 1, 2008, to take advantage of Early Bird Registration prices (Individuals on the Spectrum: $150 & Full Conference Attendees: $220). Exhibitors Don't miss your opportunity to exhibit at the largest autism conference in the U.S. this year. Network with professionals, families, service providers and more. For more information, contact Meg Ellacott, 2008 ASA National Conference Exhibit Director, at ellacott@... or 302.260.9487. Be sure to secure your spot now. Respite Child Care Bring your entire family. Orlando is a great family vacation location. ASA is partnering with Quest, Inc., to provide respite care onsite. For more information, contact ASA at conference@.... Continuing Education Credits BCBA, ASHA and CME credits are available. For session information, contact Autism Society of America at conference@.... The Autism Research Institute presents the Defeat Autism Now (DAN!) Clinician Seminar for professionals on Wednesday, July 9, 2008. For information about the conference, contact Autism Society America Conference Department at conference@... or call 301.657.0881, ext. 10. National Health Council's Putting Patients First Update Putting Patients First: Media and Town Hall Meetings Thanks to your support, the Putting Patients First campaign has generated significant media coverage in 2008. Newspaper, radio, television and internet reporters have featured patients sharing their personal stories at events we've organized in Columbia, SC; Cleveland and Columbus, OH; Nashua, NH; and Pittsburgh, PA. For a sample of the media we've generated, please visit http://youtube.com/watch?v=Vw6ChZLutRs. More than 250 patients attended these meetings and pledged to help ensure that all Americans have high-quality, affordable health coverage. Over the coming months, the Putting Patients First campaign will build upon this success and create a long-term movement that educates candidates, policymakers and the media about the challenges people with a chronic conditions face. Next Stop: Orlando Mark your calendars for July 10, 2008. That's when the Putting Patients First campaign, in conjunction with the Autism Society of America, will host a mega town hall meeting and news conference. The goal, like similar previous events, is to educate the presidential candidates and news media about the need for quality, affordable care for all. The event is open to the public and 500-1000 people are expected to participate. Both candidates and their representatives have been invited to attend. Please forward information about this event to your friends and colleagues in the Orlando, Florida area. To participate, or for more information, please contact ph LaMountain at jlamountain@... Petition Drive, Website Launch This Summer The National Health Council, as part of its efforts to build a nationwide patients movement, will soon launch a Putting Patients First petition drive to demonstrate the broad support for quality, affordable care for all. The online petition drive will begin with the launch of a new Putting Patients First website later this summer. Our goal will be to persuade as many people as possible to visit the site and electronically "sign" the petition. Visitors will be able to invite friends to sign, register for campaign updates, communicate with elected officials and post personal stories. We hope to collect more than 10,000 electronic signatures in support of this effort. Please stay tuned for more details and updates on this exciting new resource. Take Action: Share Your Story! Personal stories are the most powerful tools patients have in their effort to educate policymakers and the media about health care. Yet very few of the 100 million Americans affected by chronic disease have had the opportunity to share their story. We want to change that! That's why the National Health Council is creating a story bank of personal stories that can be shared with elected officials and the media. Will you take action and share your personal story with us? While we are particularly interested in receiving video segments; written documents are also needed. Personal stories should be 2-3 minutes or 500-750 words in length. They should focus on your medical condition and the difficulties you and your family has faced in obtaining coverage. For examples of the types of stories we seek, please visit or http://youtube.com/watch?v=hjHhSkK5mew. Please submit stories to ph LaMountain at jlamountain@.... You may also contact him at 202.288.5124 with questions or comments about this effort. Upcoming Events, Resources, etc: Dayton Autism Society invites you to participate in the Moraine Heritage Festival parade You and your family are cordially invited to join the Dayton Autism Society in the Moraine Heritage Festival parade! The parade will be held: Saturday, June 28, 2008. Line-up begins at 8:30 AM and the parade begins at 10:00 AM. The parade will line up at the City of Moraine Municipal Building, 4200 Dryden Rd., Moraine (not far from Splash Moraine). There will be a LIVE telecast of the parade. The parade will follow Main St. on the 75 overpass and enter Wax Park, 3800 Main Street, Moraine, OH 45439, where the 5K walk was held in April. The theme for the parade is: Music, Music, Music...throughout the years! Participants are being encouraged to incorporate the theme into their group. I thought it easiest for our kids to play a musical instrument as they walk or ride, but you are free to use your own creativity. Please bring your own musical instruments with you! A kazoo, tambourine, maraca, jingle bell, or just two sticks to whack together! Whatever you have. There will be prizes/awards for participants whom best incorporate the theme. You are encouraged to bring wagons and strollers. We have been assured a quiet spot in line, away from any fire trucks or marching bands, to limit the sensory overload. We will be holding our Thank You banner from the 5K walk as the lead and we're hoping for a great turn-out! Please bring the family, grandparents, aunts, uncles, therapists, everyone out to the parade! After the parade is through, plan to stay at the park and enjoy the festivities! There will be food, crafts, games, rides, and entertainment! Check out the details here: http://www.ci.moraine.oh.us/index.php?option=content & task=view & id=26 & Itemid=55 It's guaranteed to be a great family fun day for everyone! Be sure to stop by the Dayton Autism Society booth and say hi to us! We will be selling autism awareness items and distributing information to the public. If you are interested in the Heritage Festival 5K Run, Walk, Strut please click here: http://www.ci.moraine.oh.us/images/stories/hf_08/5K%20run-walk-strut.pdf We won't be participating in the walk/run/strut as a group but you are welcome to participate on your own! If you have any questions about the parade or festival, please feel free to contact us at info@... News from the Autism Society of America Helping HANDS for Autism Act Introduced in the House Members of the U.S. House of Representatives introduced a companion to the Helping HANDS for Autism Act this week. The Helping HANDS for Autism Act (HR 6282) is a three-part legislative package designed to support families dealing with autism spectrum disorders, increase awareness among first responders and public safety officials and provide housing options and services for adults with autism. Read more: http://www.autism-society.org/site/R?i=nO7mrzAKrunkzMVbQq_0Dg.. ASA Signs on to Environmental Health Bills To protect Americans, especially children, from toxic chemicals in everyday consumer products, a bill called the Kid Safe Chemical Act of 2008 has been introduced. ASA has signed on as a supporter. Also, the Collaborative on Health and the Environment's Learning and Developmental Disabilities Initiative has published a Scientific Consensus Statement on Environmental Agents Associated with Neurodevelopmental Disorders, signed by more than 50 scientists and health professionals, including ASA. Read more: http://www.autism-society.org/site/R?i=7smvtrQp5DTs2F8DIiwvVg.. Congress Poised to Complete Supplemental Appropriations Bill The House is scheduled to vote on the Supplemental Appropriations bill today, bringing the bill one step closer to the President's desk. While the legislation primarily focuses on providing funding for the wars in Afghanistan and Iraq, it also includes several domestic provisions. Specifically, the legislation contains moratoria on six of seven regulations issued earlier this year that could hurt the Medicaid program. Read more: http://www.autism-society.org/site/R?i=ol9ekA7hjVCnR-yM7-1QuQ.. Americans with Disability Act Amendments Clear House Committees Two House Committees passed amendments to the Americans with Disabilities Act Restoration Act (ADARA) this week, following months of intense negotiation with the business community. Although the Americans with Disabilities Act has been law since 1990, court decisions have eroded many of its protections and have led to situations where employers can deem a person is "too disabled" to do the job but "not disabled enough" to be protected by the law. Read more: http://www.autism-society.org/site/R?i=lMEupxGgD291bEjpI1niLA.. Study Links Social Skills, Brain Connections A new study from the University of Washington Autism Center found a relationship between social skills and brain connectivity in individuals with autism. According to a "Science Daily" story, "The most severely socially impaired subjects in the study exhibited the most abnormal pattern of connectivity among a network of brain regions involved in face processing." Read more: http://www.autism-society.org/site/R?i=V8TTN0XLYk0G_I0eP9Z60g.. Product Offers Special Education Data Collection A Denver, Colo., firm is offering a new product that can allow special education practitioners, parents and medical practitioners to collect instructional, social and behavior therapy data in a manner that allows them to monitor student progress, and may help them improve productivity or decision making based on this hard data. Read more: http://www.autism-society.org/site/R?i=PpnjtxRFFDPlh-SR9IEGyg.. NASDDDS Conference Materials Now Available Online The National Association of State Directors of Developmental Disabilities Services focused on autism at its mid-year meeting last month. Presentations from "Beyond the Spectrum: New Knowledge, Perspectives, and Strategies to Support People with Autism and other Complex Needs" are now available on the NASDDDS Web site. Read more: http://www.autism-society.org/site/R?i=_O063SN-qOH4pm7RuxpBYg.. Resources for Children with Special Needs, Inc., Offers Free Training Series Resources for Children with Special Needs presents its 2008-2009 free training series on "What's Out There and How to Get It." These sessions are geared towards families and professionals needing programs and services for children with disabilities in the New York City area. Read more: http://www.autism-society.org/site/R?i=9gmXiVymQ1gWMWucreEIWA.. Free Autism Documentary: "Children With Autism: One Teacher's Experience" Model Me Kids presents "Children With Autism: One Teacher's Experience," a documentary about a classroom of children with autism at the Kennedy Krieger Institute's Lower/Middle School in Baltimore, Md. Read more: http://www.autism-society.org/site/R?i=I-fa1d9CwTo60D2SvfARkg.. Book Teaches Children with Autism Which Behaviors Are O.K. Best-selling author Kari Dunn Buron has a wealth of experience in working with teens and young adults living with autism. In her book "A 5 Is Against the Law! Social Boundaries: Straight Up! An Honest Guide for Teens and Young Adults," she explains in simple, direct terms why certain behaviors could land teens and young adults on the spectrum in trouble with friends, or even the law. Read more: http://www.autism-society.org/site/R?i=95XTqzhwpXpsl0KHhKYeDA.. Upcoming Events - NE Ohio, Complied by Milestones June June 25, PECS for Teachers (Achievement Centers for Children), 9:00 am-3:00 pm. Achievement Centers for Children, 4255 Northfield Rd, Highland Hills. PECS for Teachers is designed to teach teachers, therapists, and any other professionals who work with students that have communication difficulties, the Picture Exchange Communication System (PECS). Each participant will receive a training binder as well as a PECS book. For more information, please contact Helen Mack at Helen.Mack@... or 216-292-9700 x 248 June 23- 27, How to Use Behavioral Interventions Effectively in the Public School Setting (Milestones Organization), 8:00 am- 4:00 pm. A Week-Long Hands-on Teacher Training Workshop. Graduate Credits and Professional Development will be available Teacher Training 2008 InformationJune 26- 27, Topics in Child Development: Effective Use of Behavioral Interventions for Individuals With Autism Spectrum Disorders (Kent State University) Individuals with autism spectrum disorders (ASD) present with a wide variety of strengths and needs. Within the context of a behavioral approach to intervention, parents, educators, and other professionals can develop and enhance positive academic and behavioral skills while simultaneously addressing disruptive behaviors. For information on the 2008 conference, please contact Kathy Brown at 330.672.0537 or kbrown5@... June 28, Family Child Learning Center Fundraising Dinner (Akron Children's Hospital) 6:30 pm - 10:30 pm. Sleepy Hollow Golf Course 9445 Brecksville Road , Brecksville, OH. Family Child Learning Center's Integrated Preschool for Children with Autism is a research and intervention program for children with a diagnosis of Autism Spectrum Disorder. The "Summer Fun" fundraiser supports this critical effort and will not only help change the lives and future of our children, but the next generation of children and families to come. For more information, contact Betsy Gunselman at 440-838-5300. Family June 28, Special Adapted Showing of " Wall-E." (Monarch School at Bellefaire JCB)10:00 am. Chagrin Cinemas, Chagrin Falls. For families who have children with autism spectrum disorder. Children are encouraged to bring personal sensory support items and special snacks (the theater's concession stand will be open, as well). In addition to the special light and sound adaptations, a designated sensory area outside of the theater will be available for anyone who needs to take a break during the screening of the film. The area will be staffed by Monarch School staff. Sensory Stories Available. Tickets are $5 each. Cash only! For more information contact Karin Hess at 216-320-8658. Download Info Cleveland Area Trainings from Achievement Centers for Children July 21-25, 2008, 8:30 a.m.-4:00 p.m. “Planning a Comprehensive, Blended Method Classroom Program for Students on the Autism Spectrum†For teachers, occupational and speech therapists and other professionals who work with students with autism Pre-K through Grade 6. This 5-day training is designed to provide foundational training for classroom teachers and school district teams in the development of a blended method program for students with autism spectrum disorder. The cost is $750 per registrant. September 25-26, October 3, 2008, 8:30 a.m.-3:00 p.m. “Paraprofessional Training: Working with Pre-K & K-5 Students with Autism†This 3-day training for Paraprofessionals in Public School Districts will address autism and the developmental challenges associated with the disorder. The role and responsibilities of the paraprofessional working with individual children within the context of the classroom and school environment will be overviewed with an emphasis on effective strategies that will enhance children’s developmental skills in the areas of social interaction, language/communication and cognitive processing/problem solving. The cost is $450 per registrant. All trainings will be held at: Achievement Centers for Children 4255 Northfield Road Highland Hills, OH 44128 For more information, contact Helen Mack, 216/292-9700 x 248 or Helen.mack@... “Community Employment: A Priority of First Consideration†Presented by the ARC of Ohio September 11 & 12, 2008 Holiday Inn 7007 N. High St. Worthington, OH 43085 Presented By The Arc of Ohio, Inc. in partnership with Ohio APSE – The Ohio Network on Employment, Ohio Association of Adult Services (OAAS), Ohio Legal Rights Service (OLRS) Keynote: “Full Employment: What Does It Take?†Mank, Ph.D., Director of the Indiana Institute on Disability and Community at Indiana University For complete details, visit: www.thearcofohio.org New Special Education Operating Standards (effective July 1, 2008) With the exception of Rule 3301-51-11, the updated special education rules were adopted by the State Board of Education at the board’s March 2008 meeting. The rules were filed with the Joint Committee on Agency Rule Review (JCARR), Legislative Service Commission, and Secretary of State on March 14, 2008, and will be effective on July 1, 2008. At the May board meeting, the State Board adopted a Resolution to Refile Rule 3301-51-11, and this rule is scheduled for adoption in June. New Operating Standards (PDF) (effective July 1, 2008) Rescinded Operating Standards (PDF) Click here for a list of state-imposed rules, regulations, and policies not required by the Individuals with Disabilities Education Act of 2004 (IDEA) or Federal Regulations. Adult Care now available under IO Waiver From the Ohio Department of MRDD: On October 1, 2007, the Ohio Department of Mental Retardation and Developmental Disabilities adopted rule 5123:2-13-06 of the Administrative Code, which establishes Adult Care (AFC) as a service under the Individual Options Waiver. We are issuing these interpretive guidelines to help individuals and their families, county MRDD boards, and providers better understand the new Adult Care rule. These guidelines are intended to aid in determining whether the services an individual is receiving meet the definition of Adult Care and to explain how the prior authorization process applies to persons receiving Adult Care. For more information, Click here Free Resources from the Council on Quality and Leadership The following documents are PDF files and require Adobe Acrobat to open them. Click here to download the Acrobat Reader For a complete listing, click here Dining Out with Autism Awareness Toolkit Importance/Satisfaction Map Practice Guidance for Delivering Outcomes in Service Coordination Quality in Practice Series Advocacy Data System Guardianship Human Rights Committees Leadership Quality Enhancement Rights and Responsibilities Safety Social Roles Staff Hiring Speaking Out About Quality Series Parents of Children with Disabilities People with Brain Injury People with Physical Disabilities Self-Advocates Speak Out Teens with Disabilities Pathfinders for Autism and Council on Quality and Leadership Collaborate to offer Dining Out with Autism Awareness Night Toolkits The Toolkit is free and available at http://www.pathfindersforautism.org/upload/packet-for-Pathfinders.pdf Taking Your Autism Spectrum Disorder Child to Walt Disney World Complete resource website - http://allears.net/pl/dis_aut.htm KidsLink Adventure Camp, Akron Based on feedback from our families, we have revamped this camp to be on a pay as you go basis. Our activities will be held on Fridays from noon to 3:00 PM with the exception of July 18th. Following is the schedule of events: June 27th Cleveland Zoo July 11th Sieberling Naurerealm July 18th Aero's Game (Game starts at 7:00 PM) July 25th National History Museum Aug 1st Swimming Aug 8th Skating - Kent Ice Rink Aug. 15th Hale Farm & Village For: Preteens and Teens with Asperger Disorder Ages: 11 – 15 Beth Lattime who is a teacher and recreational therapist will facilitate each event. In addition, we will have consistent aides available and the ratio to child will be 1:3 or 1:2. Cost for the Asperger's Adventure Camp is $75.00. We will need a minimum of 3 participants to hold each event. If you are interested in this camp, please let me know. Or if you have questions, do not hesitate to contact me. Sue Corp Office Manager 330.963.8600 Resource: Autism Games This site is about simple games a.. Games that will engage young children with Autism Spectrum Disorders (ASD) in play. b.. Video models of games and activities that parents can learn from and young children can watch and imitate. c.. Tips or strategies for making games and play more fun and more educational. Why games: An Overview For an overview of why games are good for your child and good for you too, you may want to read this post from my blog called, Why Games? But in a nutshell, joyful social play supports your child's development in a multitude of different ways. This site has lots of reasons, but it is primarily here to help you and your child have fun together! http://autismgames.googlepages.com/gamesindex Autism Games: Games Pages Recipes need for Autism Benefit Cookbook I have watched frustrated families try to get their children to specialist with the high cost of fuel. My friend and I are going to put together a cookbook called "Real Men Eat Blueberries" and will be using 100% of the profits for a variety people "in need" (but my main focus is gas cards for people with special needs children! If this works we could go beyond gas cards and help with $$, tutoring, special therapy and so on). Christani has met me, and I gave her references for confidence I am serious about this project. I am the grandmother of two special needs children (one with Aspergers; the other with medical issues and learning disabilities) . I have been employed at YSU for 24 years; the VP of the Youngstown Charter Chapter of American Business Womens Association, and Chair of the ABWA Council made up of several chapters in the tri-county area. I am also the Chair of the Missions Committee at my church. Right now I need recipes from people! Please do not send recipes from other cookbooks (unless adapted). Please email or mail me your personal recipes with your name (clearly type or print) and contact information in case I have a question. I have a graphic designer putting this cookbook together for free (my 22 year old son). Once we get copies I will be contacting you for anyone who might like to purchase one - but all this will take time. Please forward this to anyone you think would be interested. I am also looking for companies to donate and defray the cost of printing these books so we can keep the price below "market". I am inspired by "one person can make a difference". I will be retiring in 6 years and hope this builds for me to continue a line of fund-raising efforts during my retirement. Thanks, Lou Pokrivnak Administrative Assistant 2 YSU Graduation & Transcripts 330 941-1584 crpokrivnak@ ysu.edu home information: cpokrivnak@... 330-518-9544 262 E Western Reserve Road Poland Oh 44514 Article about web browser for autistic kids http://news./s/ap/20080603/ap_on_hi_te/business_of_life;_ylt=As.DEMZoLVVHXyzpoiRfs9Jj24cA http://www.zacbrowser.com/ Summit Academy Summer Camp ......a fun camp experience designed to meet the particular needs of students from age 5-14 and who have Asperger Syndrome, PDD-NOS, ADHD and related non-verbal learning disorders. SUMMIT ACADEMY camp provides a structured, yet fun learning environment which focuses on pragmatic language and social skills development, core academics, and therapeutic martial arts. Thematic lessons incorporate the use of science and technology, cooperative problem solving and role play. Students can also enjoy music, conservation lessons, exercise, exotic animals and much more! Enrichment activities, field trips and special guests further round out our educational camp experience which includes many hands-on learning opportunities. This year’s camp themes include Language and Cultures of the World, Vacations Around the World, and Sports & Fitness...featuring Therapeutic Martial Arts and Tennis. SIGN UP TODAY! Week I: July 14 - 18 Week II: July 21 - 25 HOURS: 9:00 am - 2:00 pm No lunches provided. Students may bring a brown-bag lunch. Open to students between the ages of 5 - 14. FEES: $150 per week per child. (Sibling discounts available, ask School Director for details) SUMMIT ACADEMY SCHOOL / Akron 88 Kent Street - Akron, Ohio 44305 Call: (330) 253-7441 for info www.summitacademies.com 24 Hr. Toll free info line: 1-800-442-5753 Cuyahoga County Library Programs The Cuyahoga County Library system has a series of teen summer programs that might be of interest (and they are free!). They include Anime Club, Sci-Fi Movie Marathon, Computer Explorers: Building Arcade Games and Probe/Robots, a film project, graffiti art program, Fantasy Football event and Shipwreck Camps. Check the Teen Program Flyers through: www.cuyahogalibrary.org Look at TeenSpace and then Summer Programs. Resource: School Behavior Website http://www.schoolbehavior.com/conditions_edf.htm WALL-E Movie Day, Akron ASPIES Greater Akron Support Group for parents of children w/Asperger Syndrome, high functioning Autism, & PDD/NOS In conjunction with Rolling Acres Cinema showing a special presentation of WALL-E Saturday, July 12th - Doors open at 10:30 a.m. Movie will start promptly at 11:00 a.m. (with no advertisements, etc.) Sound & Lighting will be adjusted accordingly for kids with sensory issues. Special deal - $4.50 per person includes small drink & popcorn** Outside refreshments allowed (for those with special diets only, please!) **We will work with management & have substitutions for the above as well. PLEASE HELP US MAKE THIS A SUCCESS, SO AS TO INSURE FUTURE SPECIAL PRESENTATIONS! For further information, contact Joy Spencer 330-745-5115 Rreindeer@... ARTICLE: PERSISTENT FATHERS By Coulter I recently watched a public television documentary about the life of President Harry Truman. What struck me the most was his persistence. As a teenager, he had to work to help support his mother and sister after his father’s economic failures. In his twenties, he failed as an investor in a mine and an oil well, and then returned home to toil for years on his father’s farm. In spite of setback after setback, he kept working and studying on his own, because college was out of the question. Harry waited for years for Bess, his childhood sweetheart, to accept him as a suitor and then to finally marry him. All his life, Harry Truman kept searching for solutions, kept trying and kept hoping. These were the secrets to success that enabled Harry Truman to become President of the United States. As the mother of a son who has Asperger Syndrome, I really appreciate seeing that same persistence in fathers of children who struggle daily to overcome the challenges of living with Autism Spectrum Disorders and similar conditions. I admire those fathers who also keep searching, trying, and hoping. Mothers appreciate the fathers who work hard to understand their children’s special needs and keep looking for ways to help their children learn. Many times, these fathers have to learn new ways to relate to their children who, in turn, show their fathers new ways to see the world. Like Harry Truman, these fathers may see their efforts fail, and they have to pick themselves up and try a new approach. These fathers understand that working today to help their children may not bring results today. But they keep trying to help their children learn new skills which will result in growth months and years down the road. To all persistent and hopeful fathers, thank you, and Happy Father’s Day! ABOUT THE AUTHOR: Coulter and her husband, Dan, produce videos that support people with Asperger Syndrome and autism. You can find more articles on their website at: www.coultervideo.com . Copyright 2008 Coulter Used by Permission. All Rights Reserved. Audio Conference: July 15th, 2008 » ADA Update: 18 Years Later Please note: Registration is required so that adequate space for participants can be arranged. Please do not just show up for this session. If you live outside Columbus, OH, anywhere in the U.S., please see the last paragraph of this message for information on how to access the following ADA audio conference series session within your area of the country. The session will be held on Tuesday, July 15, 2008, 2-3:30 P.M., ET, (earlier time of day, depending on time zone) and will be presented by the DBTAC - Great Lakes ADA Center in Chicago, IL, via speaker phone. July 15th, 2008 » ADA Update: 18 Years Later Mark the 18th anniversary of the ADA by joining this audio conference as we listen to representatives of the Federal Agencies present an update on their litigation, technical assistance and enforcement efforts over the past year. Participants will have an opportunity to pose questions to the presenters regarding issues in their own workplace or community. Speakers: L. Wodatch, Chief, Civil Rights Division, U.S. Department of Justice Jeanne Goldberg, Senior Attorney Advisor, Office of Legal Counsel, EEOC Time: 2:00-3:30PM EDT, earlier for those in other time zones The cost for the session is $25 for nonprofits and $40 for other entities for each location, regardless of the number of participants at each location (multiple people can attend at one location for the same flat fee). There is no charge to participants who come to the following locations in Ohio: Ohio Rehabilitation Services Commission in Columbus, OH; Ability Center in Toledo, OH; Linking Employment, Ability & Potential (LEAP) in Cleveland, OH; and Southeastern Ohio Center for Independent Living (SOCIL) in Lancaster, OH. There may be other free locations in the US - please contact Great Lakes at adagreatlakes.org for those locations. Sessions are 90 minutes in length and delivered via audio conference. Participants are in a "listen-only" mode until the question and answer period. The sessions are offered real-time captioned on the Internet, and a transcript is developed and posted to the Internet following the session. In addition, a digital recording of the session is archived on the DBTAC - Great Lakes ADA Center web site at adagreatlakes.org. If you wish to come for no charge to RSC in Columbus, OH, please let us know by July 8 by sending an email to adaohio@... Registration is required to attend the session. Please provide your name, organization, address, email address, and telephone number. Please do not send a check to ADA-OHIO. If you wish to come for no charge to The Ability Center of Greater Toledo, OH, please call 419-885-5733. If you wish to come for no charge to LEAP in Cleveland, OH, please call 216-696-2716, ext. 129, for more information. If you wish to come for no charge to SOCIL in Lancaster, OH, please call 740-689-1494 for more information. If you wish to attend elsewhere, please go to web site ada-audio.org to register. NCLB Recess until Reauthorization Act (H.R. 6239) - Act Now! from: National Center for Learning Disabilities The NCLB Recess until Reauthorization Act (H.R. 6239) calls for the suspension of the accountability provisions of the No Child Left Behind Act for the 2008-2009 school year or until Congress reauthorize's the Elementary and Secondary Education Act of 1965. Congress is developing legislation to revise the Elementary and Secondary Education Act. Any changes to NCLB's accountability system should be made in the context of a comprehensive reauthorization by the appropriate Congressional committees. Putting a stop to current accountability requirements will have negative consequences for students with disabilities because these requirements make it impossible for schools to overlook the academic progress for all students — especially those with special needs. While the timing of the reauthorization is unclear, we cannot take the chance of losing any of the gains we have made for students with disabilities that is why you need to help us fight this bill. I ask you to take a few minutes of your time today to let your representative in Washington hear your opinion on this bill. Visit our Legislative Action Center to learn more about this important issue, then TAKE ACTION by sending a message to your U.S. Representative today. Thank you for your continued support on behalf of those with learning disabilities. Your voice always makes a difference! Special Needs Summer Reading Club (online) Join the About Parenting Special Needs Summer Reading Club By Terri Mauro, About.com Having trouble finding a summer reading club in your community that suits your child's special needs? Everybody's welcome in the About.com Parenting Special Needs Summer Reading Club. We'll be making an online "reading quilt" of all the books participants enjoy in June, July and August. In addition to our online "quilt," you can print out the squares from the books your child read and make your own "quilt" at home.Image by Terri Mauro FOR MORE INFORMATION, CHECK OUT: http://specialchildren.about.com/od/learningissues/ht/readingclub.htm?nl=1 Resource: Information on Gulten Free Diet > Clan Celiac Newsletter > Issue #130 June 21, 2008 > > Copyright 2008 by Clan > All rights reserved. Subscribers may print copies of this > newsletter for others to read or send copies to their > friends as long as the ENTIRE publication is printed or > sent along with all copyright notices and attributions. > Sending and/or printing excerpts is not allowed without > written permission. > > Clan LLC does not vouch for the accuracy of > information provided in letters to the editor or in columns > and news stories written by those not employed by Clan > LLC. Neither does Clan endorse any > opinions that may be expressed. Opinions and information > provided in letters to the editor or in columns that appear > in this newsletter belong to the respective letter writers > and columnists. > > To learn more about celiac disease, visit us online at: > <" target=_blankhttp://www.clanthompson.com/>; > > To subscribe to this newsletter: > http://www.clanthompson.com/celiacsite/news_subscribe.html > To unsubscribe: > http://www.ymlp33.com/unsubscribe.php?celiacnews > > **************************** > In this issue: > > 1. News: GLUTEN FREE CAMP OPENS IN MICHIGAN > 2. Where To Find Gluten Free "Stuff" > 3. The Cook's Corner: MAPLE BARBECUED CHICKEN > 4. Announcements: GET A FREE DRUG SMARTLIST > 5. This Month's Mini-List: NON-FOOD ITEMS > 6. Ask Clan : ARE MENTOS MINTS GLUTEN FREE? > 7. Letters From Our Readers: STIRRING THINGS UP WITH THE > NIH For complete newsletter and additional newletters, visit http://www.ymlp.com/pubarchive.php?celiacnews Book: Dannie's Dilemma: Living with aspergers 'Dannie's Dilemmas' is a series of books designed to show the difficulties that children with Aspergers Syndrome face on a daily basis. These books are an interactive way for readers to get involved with 'Dannie's Dilemmas.' The reader has the ability to choose the way the stories end. This makes them unique in their own way. For complete information, visit http://www.amazon.com/Dannies-Dilemma-aspergers-Carol-Haldane/dp/1847476767/ref=sr_1_2?ie=UTF8 & s=books & qid=1213954316 & sr=1-2 Using YouTube for Children with ASD Does anyone else use YouTube videos with their ASD kids? We use YouTube videos with my son both as reinforcers and as a self-guided leisure activity. The actual YouTube website was too difficult for him to use so I made him a little web page with links to his favorite videos. He watches various short Disney and Dr. Seuss videos, etc. It worked so well that I created a little website where anyone could create their own YouTube playlist. I thought it would be useful for the general SPED community (and for anyone else who wants to make their own video playlist). The web site is called http://www.videoplaylist.org You can see my son's playlist here: http://www.videoplaylist.org/pkf The website is very plain and simple for now. I'll probably make it more fancy over time. In addition to building a list of videos, you can do things like create categories, set a background image, etc. if you want to. For now it's all free. I may ask for donations someday, but only if it develops into something very useful for people. Please feel free to try this out and let me know if you like it (or if it doesn't work). It has been a very good tool for us. I showed it to the inclusion facilitator at my son's school and she began to use it for other kids in the school as well, which was neat to see. Best regards, Jeff AUTISM PROGRAM FOR PARENTS AND PROFESSIONALS Society for Handicapped Citizens of Medina County, AUTISM PROGRAM FOR PARENTS AND PROFESSIONALS. The Society for Handicapped Citizens of Medina County, Inc., will be hosting a free educational program on Thursday, July 17, 2008 from 7-9 p.m., at the SSA Building (formerly Paradise Village) located at 4281 Paradise Rd., Seville. Dan Hurd and Patty Tripp will present a program on "Behavior Issues and Children with Autism". The program will provide valuable information for parents, family members, professionals and caregivers on behavior issues within the autism spectrum. This program is free and open to the public. Reservations can be made by calling the office at 330-722-1900, 330-336-2045, or 330-225-4202, no later than July 14, 2008. Dan Hurd has more than 28 years experience working with individuals with developmental disabilities. He is currently director of Residential Services for Ardmore, Inc., and the director of the Ardmore Center for Autism. Patty Tripp has more than 20 years experience working with individuals with developmental disabilities. She is currently the Home Coordinator for two supported living homes serving adults with autism through the Ardmore Center for Autism. For more info about programs and services, call 330-722-1900, 330-336-2045, or 330-225-4202. Autism Research Institute e-newsletter for June 2008 http://autism.com/ari/enewsletter/enewsletter_200806.htm New Adverse Effects of Drugs Index Age of Autism Covers the Green Our Vaccines Rally Autism Slides now in Spanish Join the Million Dollar Puzzle Piece Campaign Defeat Autism Now! at ASA Mark Rimland Inspires Title Track on New Album Wyoming Team Launches Rural Outreach Parent Perspective: In Defense of ABA Get the Moviefone Toolbar. Showtimes, theaters, movie news, more! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.