Apraxia

[Guest guest]

Hi Dawn,

Welcome to CHERAB! You are looking for resources for your newly diagnosed

son. I noticed your e-mail address is from the UK. With this I wanted to

give you a link of an organization Dyspraxia

Foundation that is well known in the UK. There you will find answers

and resources to begin your search. Perhaps there are others on this list

that have more known resources for your surrounding area. Unfortunately

I'm out of time tonight, but was hoping this will be a beginning for you.

Best wishes to you on your search.

Sincerely,

Mustafa,

NM

[Guest guest]

Toni,

My son has severe verbal apraxia. He is 34 months old. I was 37 years old

and my blood pressure shot up in the 2nd month of pregancy. I was put on

Normadine to control the blood pressure. I was told it was safe and that I

had no choice. I have always wondered if he was not receiving enough blood

or whatever. Also, I recently asked for copies of his birth report and

found that the cord was wrapped around his neck one time. I never even knew

this!! I did have a scheduled c-section because of the blood pressure issue.

Good Luck with your research, keep us posted.

Doris TuerkWard

>From: " The s " <themillers@...>

>Reply-

>< >

>Subject: [ ] apraxia

>Date: Tue, 6 Mar 2001 08:11:02 -0700

>

>Hi everyone,

>Thanks for your great responses to the gestational diabetes. Did you know

>that 20,000 neurons die with every second of anoxia.It is fascinating . An

>anoxic injury can result from a combination of many things, cord around the

>neck, vasocontriction to the blood supply , a combination of different

>things can cause anoxia.Here is some food for thought.

>Thanks,

>Toni

> age 4 oral apraxia

_________________________________________________________________

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[Guest guest]

i thought if a cord is around a baby's neck the dr. would tell you this when

the child is born, i was wondering about this one myself, and you had no

idea until you received the chart??

----- Original Message -----

From: Doris Tuerk-Ward <dtuerkward@...>

[Guest guest]

It is interesting the messsage from Toni . My grandson was born with

the cord around the neck and believe it may have caused his verbal apraxia.

He is making gains after being in therapy for six months and will be 3 in

July. He is just now starting to put 3 words together.

Dorothy

[Guest guest]

Ann,

I must have been too " out of it. " My husband says he saw the doctor unwrap

the cord, but no one actually said anything to us. It wasn't until I saw

that report that I actually knew it had happened.

>From: " Ann Clancy " <bcause@...>

>Reply-

>< >

>Subject: Re: [ ] apraxia

>Date: Tue, 6 Mar 2001 14:49:34 -0600

>

>i thought if a cord is around a baby's neck the dr. would tell you this

>when

>the child is born, i was wondering about this one myself, and you had no

>idea until you received the chart??

>----- Original Message -----

>From: Doris Tuerk-Ward <dtuerkward@...>

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Hi Toni,

I have wanted to get back to you for days but have been so busy with the

usual stuff fighting insurance companies ,calling Doctors, getting evaluated

by early intervention and going to speech.. My son Bobby was diag. in Jan

with oral motor hypotonia and verbal dyspraxia, he is 2yrs. 8mon. My preg.

was uneventful he was born a week early. I was in labor for 20 hours and

pushed for 2 and a half I needed oxygen while I was pushing. He broke his

right collarbone and had left brachail palsy and injury. Which no one told us

about, I did'nt know when we left the hosp. I brought him to the emergency

room 4 days later for an ex-ray because he was'nt moving his arm. He was 7

lbs. 14 oz. 21 in. long. The doctor at the last minute wanted to use suction

but I said no and gave one last push. I have a 4 and a half yr. old daughter

and she was a section because she was breech. I was concerned about a vag.

delivery with Bobby but my Doc. assured me we would both be ok. Not the case.

After delivery I was very dizzy, almost passed out when I tried to get out of

bed. The nurses made me stay in bed. My iron was very low so thats what they

assumed was wrong. My Doc. covering walked in and out the 1st day. The 2nd

day came in to release me and I tried to tell how I was feeling ,have'nt

walked on my own, still very weak and dizzy. Pretty much told me their was

nothing wrong with me I tried to tell him I could'nt go home this way, did'nt

want to hear it and basically threw me out of the hospital. Lucky my Husband

did'nt kill any one that day. Well to make a long story short after 3 weeks

of feeling lousy going to my obgyn 3 times for severe water retention, bad

headaches and being totally exhausted and each time being told it was all

post-pardum and the fact that I was taking care of a 2 yr old and a newborn

that I would be fine my blood work came back normal and he could'nt put a

finger on what was wrong, I went into congestive heart failure that same

night and almost died. My heart was working at 20%, the emergency Docs said I

would have died in my sleep that night if my daughter had'nt woken me up.

Needless to say I had my angels watching over me that night and I believe

they worked through my daughter to wake me. I was in intensive care for 4

days and in the hosp. for 2 weeks.They called my condition post-pardum

cardiomyopathy.Could'nt explain the cause thought maybe I caught a viril

infection that attacked my heart while I was pregnant.While they were running

all their tests they also found a defect in my heart called anomalous

pulmonary veinus return thought I was going to need open heart to correct it

but have decided to wait. Happy to say after 1 yr of meds my heart almost

fully recovered and I am off all meds.Could' nt take care of my son the first

3 months of his life and always thought that this was part of the reason he

was a so called late talker. Not to fond of any Doctor right now after the

mis diag. of myself and my son. I know they are only human but there were so

many RED flags in both cases that should not have been overlooked. That is

why I tell every one I know always listen to your own body and go with your

gut instinct and push for answers.I don't dwell on the past for if I thought

about how sick I was and that I almost died I would go crazy .I am fully

focused on my son and getting him the help he needs. Hope this helps with

your research if you need more specific info. let me know I have a file the

thickness of a phone book on my heart.

Good luck,

[Guest guest]

[ ] apraxia

>My name is Lori and I have a son who will be 3 years old in May. He was

just

>diagnosed with apraxia.I need to speak to other mom's who are going through

>the same thing.

>Thanks

>Loribar@...

Dear Lori: My son was diagnosed with apraxia at 3 years of age after five

days of therapy at home was without success. THe first thing I would do if

you haven't already done so is confirm the diagnosis with a pediatric

nuerologist. If you have to go out of pocket, go out of state but just do

it. THe one thing about nuerologists is that they will tell you that these

kids with alot of work get better and 90 % will be effective oral

communicators. Something the therapists never seem to say.

The second thing I did was put my baby at 3 years and six months on a bus to

the best special ed school I could find. He travels 10 miles each way. He

is out at 7:30 Am and back at 3PM each afternoon. In September he said five

words all beginning with M./ At Christmas he was using alot of words and

putting two words together. Now he is speaking in four and five word

sentences. His articulation is primitive but understandable. THe change is

a miracle. He gets speech every day and OT for sensory integration. THough

he has no motor issues the OT has helped him with his language development.

He is cognitively intact and I think much brighter than a very articulate

older sibling. THe school setting is imperative. He received six months

of therapy at home for 3 and four times a week for six months with

practically no results. It will take time and w ork and patience but my

child is and will continue to speak effectively. So will yours . Good Luck

[Guest guest]

Dear Loribar:

My son was pretty the much the same way. At the age of three I put him on a

bus to an early childhood center 12 miles away. He said three rudimentary

words. That was in September 2000. By Christmas he was saying two and

three word phrases. Now in March he is verbalizing all his needs and he

attempts social conversation. His articulation is primitive but the

difference is miraculous. He just turned four. I would make sure your child

is evaluated by a pediatric nuerologist as soon as possible. Waiting is

ridiculous. Go out of pocket, go out of state, get this kid seen. Then

bite the bullet and put him in a full day program with daily speech therpay

and a bit of occupational therapy. My son was receiving therapy five days a

week at home with different therapists and one was certified in prompt

(supposedly the best for apraxia). THe results were dismal after one year.

Putting him in with other children in a full day setting managed to do the

trick. My son is also cognitively intact and I think smarter than his very

articulate older brother.

[ ] apraxia

>Hi

>thank you so much for answering my email. I feel totally lost in this

>situation. My son has been in early intervention since 13 months. EI

>has been giving him s/t once a week for an hour. As of december 2000 we

added

>OT once a week for an hour also. He also goes to a normal preschool one day

a

>week for two hours. He'll be 3 years old in May so we are in the middle of

>the transistion stage. I live in Denville NJ and the town offers a

preschool

>handicapped program. How do I know that this is the BEST plan for .

> understands most everything. He identifies letters, numbers,

pictures.

>He follows 2 step commands and he is " with it " . He has no behavior problems

>either. He's a joy to be around, always similing, laughing and very

>affectionate. He just CANT TALK. He tries and tries but his mouth just

>trembles as if he was freezing. He does say mama (at age 2) and DETT for

our

>dog named Jett. uhhhhhhh is up and AT is hat. that's IT as far as

vocabulary

>goes. He does make some sounds for animals though.

>What is the BEST possible plan. MY ST with EI say's to " go with the school

>district " . I hate the thought of leaving him everyday for 3 hours.........

>how do I know they are giving him the attention and the help he needs. I

love

>the EI, they come to my home and i see for myself.

>Besides the proper therapy,,,,,,,,,, what about supplements, i hear so much

>about Proefa.......... should I try it? is it safe?....... ugh, too many

>decisions!

>In the mean time I have an appointment with Dr. J Holahan in St. phs

>Hosp. that appoointment isnt till August!!! Get this, I made the appoinment

>in December!! wow, what a busy doc....... just goes to show, there are many

>kids in need of a good neurologist.

>Oh, this too.......... jesse has been in therapy since 13 months but never

>had an actual diagnosis. the ST didnt want to call it anything cause jesse

>just wasnt talking and she didnt see signs of apraxia. during this whole

time

>it could have been a delay. Now that he started with the jaw shaking she

>finally diagnosed it APRAXIA.

>very stressful and heartbreaking. Im open to any ideas....... please email

me

>Loribar@...

>

[Guest guest]

Diane I need to say this my 10 years old is in a special ed class

cause of the same thing you have discribed your daughter is experiecing. I

am happy with the child study team and the teachers. Don't shy away from the

special ed classes I myself had my oldest classified in kindergarten and

like any parent cried my eyes out cause I felt my child was imperfect, but

today he is a 10th grader all regular classes and honor roll. I never regret

that I allowed him the extra help. is recieving extra help in his

special ed classes too. I find I couldn't make him struggle.

Diane

Mommy to ny 16, 14, 12

10, 9

Auntie Nanny to Kayleigh 1 month old

Big sister to Dorothy 17 (mommy to Kayleigh)

[ ] aPRAXIA

> hI,

> I HAVE A 7 YR OLD WHO WAS DIANOISE AS HAVEING APRAXIA WHEN 4 YRS. OLD AS

SHE DID NOT SPEAK ANY WORDS AT ALL WE HAVE HAD HER IN THERPHY AND EARLY

INTERVENTION AND PROJECT CONNECT...AT 5 yrs she began to say words she can

talk now but has alot of trouble with sounds of letters and even tho they

put her in a regular 1st grade class she is now haveing a very difficult

time learning to read she is way below her class which we had expected it

alsohas affected her writing and trying to make senteces our question is has

anyone have a child in a reg. class or did they have to be put into a

special education class I ve heatd alt of stories that tend to shy away from

the specal ed classes and to keep them in a reg. group..any help wuld be

appreciated... diane

>

[Guest guest]

Hi,

I just brought my son to Dr. Holahan a few months ago. I had gotten a Dyspraxia

diagnosis from a pediatric neurologist and a speech therapist, but wanted Dr.

Holahan to confirm it and let us

know if we were on the right track with his therapies and school placement. The

reason I am responding to your email is because I thought the visit with Dr.

Holahan was well worth the wait (I

think the time between my call for the appointment and the actual date was 8 or

9 months as well!).

My advice is to bring him a copy of any written evaluations you have received.

He will review these and do a thorough exam of your child. He then gave us

recommendations on what type of

program our son should be in for school as well as giving us recommended reading

materials. I asked him about the LCP Solution and other supplements for

Dyspraxia/Apraxia but he did not

recommend them. But definately ask him about your specific supplement (Proefa).

My son started in a preschool disabled program at 3 1/2. It was very hard to

put someone that little on a school bus and say goodbye for 6 hours. But having

the OT/PT and ST all working

together and being about to discuss your child was very valuable. But if you

are feeling ambivalent about it, go visit the school and see how the school day

is run. Dr. Holahan may even know

about your program.

Good Luck.

Liz Dunn/ Ridgewood, NJ

loribar@... wrote:

> Hi

> thank you so much for answering my email. I feel totally lost in this

> situation. My son has been in early intervention since 13 months. EI

> has been giving him s/t once a week for an hour. As of december 2000 we added

> OT once a week for an hour also. He also goes to a normal preschool one day a

> week for two hours. He'll be 3 years old in May so we are in the middle of

> the transistion stage. I live in Denville NJ and the town offers a preschool

> handicapped program. How do I know that this is the BEST plan for .

> understands most everything. He identifies letters, numbers, pictures.

> He follows 2 step commands and he is " with it " . He has no behavior problems

> either. He's a joy to be around, always similing, laughing and very

> affectionate. He just CANT TALK. He tries and tries but his mouth just

> trembles as if he was freezing. He does say mama (at age 2) and DETT for our

> dog named Jett. uhhhhhhh is up and AT is hat. that's IT as far as vocabulary

> goes. He does make some sounds for animals though.

> What is the BEST possible plan. MY ST with EI say's to " go with the school

> district " . I hate the thought of leaving him everyday for 3 hours.........

> how do I know they are giving him the attention and the help he needs. I love

> the EI, they come to my home and i see for myself.

> Besides the proper therapy,,,,,,,,,, what about supplements, i hear so much

> about Proefa.......... should I try it? is it safe?....... ugh, too many

> decisions!

> In the mean time I have an appointment with Dr. J Holahan in St. phs

> Hosp. that appoointment isnt till August!!! Get this, I made the appoinment

> in December!! wow, what a busy doc....... just goes to show, there are many

> kids in need of a good neurologist.

> Oh, this too.......... jesse has been in therapy since 13 months but never

> had an actual diagnosis. the ST didnt want to call it anything cause jesse

> just wasnt talking and she didnt see signs of apraxia. during this whole time

> it could have been a delay. Now that he started with the jaw shaking she

> finally diagnosed it APRAXIA.

> very stressful and heartbreaking. Im open to any ideas....... please email me

> Loribar@...

>

>

[Guest guest]

Hello -

I just wanted everyone to know I was in the doc. office yesterday and

ofcourse it took 2 hours to see him so I was reading EVERYTHING in the

newspaper I had with me and I was thrilled to see a want-ad looking for a

speech therapist who know ABA. And one looking for speech therapist to help

with Apraxia. I was sooooo thrilled that the word Apraxia is out there

and people are starting to recognize it and looking for someone to help treat

children with Apraxia....JUST had to share that with everyone.

JOYA

[Guest guest]

Hi Marla!

Thank YOU for your wonderful and inspiring story. I'm sure you are going to

make so many anxious parents breathe a bit easier. You have some things in

common with a mom in our group named . Her son grew up with oral and

verbal as well as what they call now " global " apraxia in that it affected his

limbs, and when he was younger some people outside the family did not see his

potential. Oh wait-you saw Inside Edition-Khalid is the " true success story "

When did you see Inside Edition-and did they show the http://www.apraxia.cc

website address at the end or another very long web address of ours? (For our

first segment Deborah Norville even says when she shows our website " it's a

little long " ) Just curious because I know there are now 2 separate Inside

Edition shows about us and apraxia airing all over the country and one was from

last year-one is from this year.

Does Zack push himself to be a star-or at this point does it come easily? I

know that even though Khalid also is a star student and athlete -he pushes

himself and compensates which is why he is so amazing. Sounds like Zach is a

real winner too, and is fortunate to have a mom like you ...and that Zack and

Khalid also have a bit in common!

Talk to you soon!

[Guest guest]

Dear ,

I see at least 2 possibilities that you could use if you decide to make the

transition from short-chain omega-3s in plants (flax seed oil containing

alpha-linolenic acid or ALA, C18:2n-3) to the long-chain mixture of

EPA (C20:5n-3) and DHA (C22:6n-3). These are DHA Jr. (30 mg DHA

and 20 mg EPA in a serving unit) and Coromega (350 mg EPA and

230 mg DHA). Both of these have been anecdotally successful in the past.

Coromega can be divided in two and taken one half in the morning the

other in the evening. If you choose this mode you will provide your son

with the equivalent EPA+DHA of 2 ProEFA capsules per day without

the GLA.

However, I would like to strongly advise you to consult your physician

about supplementing your child with EFAs. While CHERAB provides

only suggestions and all resposibilities for supplementation are yours,

we would be pleased to work with your physician and would encourage

you to follow this path.

Take care,

Katz, Ph.D.

CHERAB Foundation

In a message dated 10/26/01 9:06:01 AM Eastern Daylight Time,

.Kurutz@... writes:

<< DR.KATZ,

I WAS WONDERING WHAT THE DIFFERENCE IN PROEFA AND COROMEGA IS?MY SON

HAD 3 SEIZURES 11/2 YRS AGO FROM A FEVER/VIRAL ILLNESS(THEREFOR,WE DONT

CONSIDER THIS A SEIZURE DISORDER) BUT I HAD SEEN WHERE THE GLA'S IN PROEFA

MIGHT TRIGGER THESE IN KIDS W/DISORDERS (SEIZURES) WOULD COROMEGA BE

BETTER?HE IS CURRENTLY ON FLAXSEED OIL,SO IF IT DOESNT WORK,WE WANT TO TRY

SOMETHING ELSE.I KNOW YOU HAVE 10000 E-MAILS TO RESPOND TO,I WOULD GREATLY

APPRECIATE YOUR RESPONSE.

THANK YOU,

BRIAN

>>

[Guest guest]

Check out www.apraxia-kids.org. Lot of great apraxia info, and a super

listserve to join, too.

Becky

apraxia

> Hi,

> I have a 4 1/2 yr.old son.

> His speech is like ---he says mabagana altogether. I tell him to say shirt

> ,he'll point to it,but speech wise he'll say---banna or mamda..We went to

a

> speech therapist and still go there twice a week.Now he does not imitate

> speech,but is capable of saying kind of a lot of consonants at a string

> whenever he wants to express anything----do you think its apraxia or do

you

> think he is not upto the point of speech imitation ?

> Any info would be so much appreciated.

> Thanks---Jayita

> _______________________________________________________________

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

[Guest guest]

Does anyone know of any resources, and or SLP's who specialize in

nothing but Apraxia.

We currently have a great Speech Language Pathologist, but I wonder if

there is an Apraxia expert somewhere in the area that can make our son

just break through.

Thanks!

[Guest guest]

Hi - I e-mailed my daughter's preschool teacher from last year. She has a daughter with apraxia and is very familiar with it. I pasted her answer below. Hope it helps!

Becky

Hi Becky!!!!

That's a tough question. I dont know a specific SLP who is good with apraxia. Madison is 13 now and she still can have a difficult time formulating sentences that make sense. She will mix the words or omit words or sometimes mix the sounds in words. Her articulation is fine, but her language is still testing at like .1% which is as low as she can score. I would definitely ask a therapist what their experience and training has involved in working with apraxia and I would ask what methods or strategies he/she would use.

Some things I have found which have helped Madie now that she is older include I repeat her sentence exactly as she says it to me and I ask if that is what she meant to say. I restart her sentence up to her error/s and then she completes it...usually correctly. (talk her back to the error) Another thing with Madison is if she is having trouble mentally and motor planning her sentence her "wait time" can be painfully long. I tell her to take her time and then I am quiet until she tells me what she wanted to say. That has always been true about her, she needs a really long wait time, and if people continue the conversation around her or "bug" her to continue talking she usually will just say "never mind or I forget".

She really likes this one game we have called "Silly Sentences". Each word is an individual picture card and we make up sentences and then she reads them. I believe it helps her because it breaks the communication into 2 steps; plan what to say and then say it. The cards fit together like a puzzle so she knows if she is missing something because the cards dont fit. I make sentences too and then she tells me if the make sense. She likes it and we play it together with her little brother who is learning to read.

I believe that articulation is completely different that apraxia and if the speech session focus on "drill work" they are not working on the process of formulating the language. They say that most children outgrow apraxia by age 8, but Madison did not fit that category. She did and still does continue to make progress. I have had one battle to keep her in speech therapy but I dont think they want to "play with me", ha ha, and the principal agreed with me and she still receives speech therapy. Children with apraxia typically understand everything you are saying but there is a "short circuit" (for lack of a better word) and they cant formulate and motor plan their words/verbal responses. It is neurological. She also writes like she talks so her written expression is also sometimes out of order or missing words.

I would also want a therapist who was calm and pleasant, who encouraged communications and allowed that "wait" time with positive responses, that was/is the biggest thing for Madie now. Talking her back to her errors has worked for years and continues to work. When she was younger I would just rephrase her sentences correctly so she could hear them because I typically knew what she said, but as she got older I had her start saying it correctly...NOT every single time, because I didnt want to frustrate her or embarass her. There is an apraxia support group online that I used to belong to but the listserv was really active and I could not keep up with all the emails because I wasnt checking it often enough.

One other thing, she can sing her words better than she can say them. When she sings a song she knows every word and every sentence is correct. I believe it's the whole right brain/left brain battle but I dont know that that is a research based fact, but I totally believe it with her.

With the kiddo's I have had in preschool that trust factor has been key, because the kiddo's usually know they are hard to understand. We do a lot of stories and sequencing, singing songs to everything not nailed down (ha ha), and we play a lot of open ended games like boardmaker lotto games (and some store bought games) and I have the kiddo's make up sentences/stories. The "talking back to the error" has always worked with every child. I also always speak quietly and 1:1 with the child with lots of praise. I NEVER call on these kiddo's in large group unless they raise their hand....that is too hard for them. Sometimes i will prep a child before the activity so that they can prepare their answer so that they will share in the bigger group, that works too.

Sorry, I am probably not being too helpful. Bottom line is find out the SLP's experience and make sure the child is comfortable with them. I do believe you have to work on it all the time at home too.

----- Original Message -----

From:

Sent: 6/16/2008 9:58:50 AM

Subject: [ ] Apraxia

Does anyone know of any resources, and or SLP's who specialize in nothing but Apraxia.We currently have a great Speech Language Pathologist, but I wonder if there is an Apraxia expert somewhere in the area that can make our son just break through.Thanks!

[Guest guest]

How did you get your child to imitate sounds? Sounds like us, except he doesn't

immitate. :-(. Getting ready to go to a therapist/clinic with experience working

with children with autism. Even though I hate the term, we need consistent

communication so were open at this point. My son is almost 7 and still

nonverbal. On protocal for 3 years

Sent from my iPhone

On Mar 26, 2010, at 3:36 PM, Mr A <eric_2525@...> wrote:

Does anyone have advice on speech therapy for apraxia? Our 6-year old son has

been in speech therapy for almost four years since he lost his words at about 2

years old, but has not really progressed much and can still only imitate a very

limited amount of sounds right now. Dr. G mentioned asking the therapist to

focus on oral apraxia and approach it on that basis, which I believe should help

once we get our new speech therapy clinic on board. Any one have luck with this

approach or have other other advice?

Thanks,

[Guest guest]

When my son wanted something highly preferred, we would hold it out and if he

made any sound at all, we went wild and gave it to him. We worked at this until

the sounds became more like the sound of the object, then the word itself. We

used Pivotal Response Training from UCSD as our guide.

Kristy Nardini

TazziniTM Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

P Please consider the environment before printing this email.

From: [mailto: ] On Behalf Of

Sent: Saturday, March 27, 2010 10:25 AM

Subject: Re: Apraxia

How did you get your child to imitate sounds? Sounds like us, except he doesn't

immitate. :-(. Getting ready to go to a therapist/clinic with experience working

with children with autism. Even though I hate the term, we need consistent

communication so were open at this point. My son is almost 7 and still

nonverbal. On protocal for 3 years

Sent from my iPhone

On Mar 26, 2010, at 3:36 PM, Mr A <eric_2525@...

<mailto:eric_2525%40> > wrote:

Does anyone have advice on speech therapy for apraxia? Our 6-year old son has

been in speech therapy for almost four years since he lost his words at about 2

years old, but has not really progressed much and can still only imitate a very

limited amount of sounds right now. Dr. G mentioned asking the therapist to

focus on oral apraxia and approach it on that basis, which I believe should help

once we get our new speech therapy clinic on board. Any one have luck with this

approach or have other other advice?

Thanks,

[Guest guest]

Yes, my son has made a lot of progress in the last year in speech. Due to

protocol, but also private-pay speech that is focusing on apraxia and

also, for him, auditory processing. His eating is improving, too, as he is

eating some new foods he could not eat previously.

Kristy Nardini

TazziniTM Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

P Please consider the environment before printing this email.

From: [mailto: ] On Behalf Of Mr

A

Sent: Friday, March 26, 2010 1:36 PM

Subject: Apraxia

Does anyone have advice on speech therapy for apraxia? Our 6-year old son

has been in speech therapy for almost four years since he lost his words at

about 2 years old, but has not really progressed much and can still only

imitate a very limited amount of sounds right now. Dr. G mentioned asking

the therapist to focus on oral apraxia and approach it on that basis, which

I believe should help once we get our new speech therapy clinic on board.

Any one have luck with this approach or have other other advice?

Thanks,

[Guest guest]

My daughter has apraxia (global apraxia - head to toe unfortunately). She has

been making lots of sounds and is trying to imitate them. She is now 3 1/2 and

is still non-verbal but is on her way. She continues to make progress each

week.

The speech therapies we have found to be effective have been PROMPT and oral

motor therapy with a Beckman certified therapist. We also just started the

interactive metronome too. We aren't anymore but felt that protocol helped.

The other thing that helped with her apraxia is the use of fish oils and vitamin

E. We currently use a product called Speak by NourishLife. Ever since we

started using that her motor planning and attempts at speech have been much

better. She still has a long way to go, but that was the thing that made the

biggest difference. When we started her gains were noticeable across the board.

>

> Yes, my son has made a lot of progress in the last year in speech. Due to

> protocol, but also private-pay speech that is focusing on apraxia and

> also, for him, auditory processing. His eating is improving, too, as he is

> eating some new foods he could not eat previously.

>

> Kristy Nardini

> TazziniTM Stainless Steel Bottles

> www.tazzini.com

> kristy@...

> Phone: 858.243.1929

> Fax: 858.724.1418

>

>

> P Please consider the environment before printing this email.

>

> From: [mailto: ] On Behalf Of Mr

> A

> Sent: Friday, March 26, 2010 1:36 PM

>

> Subject: Apraxia

>

>

>

>

> Does anyone have advice on speech therapy for apraxia? Our 6-year old son

> has been in speech therapy for almost four years since he lost his words at

> about 2 years old, but has not really progressed much and can still only

> imitate a very limited amount of sounds right now. Dr. G mentioned asking

> the therapist to focus on oral apraxia and approach it on that basis, which

> I believe should help once we get our new speech therapy clinic on board.

> Any one have luck with this approach or have other other advice?

>

> Thanks,

>

>

>

>

>

[Guest guest]

Hello pslofton and Kristy,

I'm going to look into that Speak by Nourish Life, too. My son and daughter take

strawberry flavored Nordic Naturals cod liver oil and I believe this helps as

well (however, it has soy in it so if your children are allergic it's not an

option.)

With my son's fine motor difficulties, I've learned that a slant board and the

proper grips put on the pen/pencils have helped him tremendously when it comes

to writing. (He'll be six in June.)

Kristy - what methods are your speech therapist using to address the auditory

processing issues? I've heard of something called earobics - is that a method

he/she uses?

I got trained in Therapeutic Listening, which has helped my son with spatial and

depth perception issues. He also stopped constantly putting his shoes on the

wrong feet and can speak somewhat about past events now. 

However, he can only answer a question about one small sentence spoken to him at

a time. If you try to ask him a qu. about a two part sentence - he can not

answer. We have a long way to go with auditory processing.

Bridget

From: It's just me... <pslofton@...>

Subject: Re: Apraxia

Date: Saturday, March 27, 2010, 6:07 PM

 

My daughter has apraxia (global apraxia - head to toe unfortunately) . She has

been making lots of sounds and is trying to imitate them. She is now 3 1/2 and

is still non-verbal but is on her way. She continues to make progress each week.

The speech therapies we have found to be effective have been PROMPT and oral

motor therapy with a Beckman certified therapist. We also just started the

interactive metronome too. We aren't anymore but felt that protocol helped.

The other thing that helped with her apraxia is the use of fish oils and vitamin

E. We currently use a product called Speak by NourishLife. Ever since we started

using that her motor planning and attempts at speech have been much better. She

still has a long way to go, but that was the thing that made the biggest

difference. When we started her gains were noticeable across the board.

>

> Yes, my son has made a lot of progress in the last year in speech. Due to

> protocol, but also private-pay speech that is focusing on apraxia and

> also, for him, auditory processing. His eating is improving, too, as he is

> eating some new foods he could not eat previously.

>

> Kristy Nardini

> TazziniTM Stainless Steel Bottles

> www.tazzini. com

> kristy@...

> Phone: 858.243.1929

> Fax: 858.724.1418

>

>

> P Please consider the environment before printing this email.

>

> From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of Mr

> A

> Sent: Friday, March 26, 2010 1:36 PM

> groups (DOT) com

> Subject: Apraxia

>

>

>

>

> Does anyone have advice on speech therapy for apraxia? Our 6-year old son

> has been in speech therapy for almost four years since he lost his words at

> about 2 years old, but has not really progressed much and can still only

> imitate a very limited amount of sounds right now. Dr. G mentioned asking

> the therapist to focus on oral apraxia and approach it on that basis, which

> I believe should help once we get our new speech therapy clinic on board.

> Any one have luck with this approach or have other other advice?

>

> Thanks,

>

>

>

>

>

[Guest guest]

We have done handle therapy , which helps with neuordevelpoment, going over

things that were missed.  I believe speech issues are also involved in the

program, and caregivers do the exercises at home themselves after

consultation.  One can go on the website and find a provider close to you and

ask some questions on this.  It has helped my son alot over the past few years,

and know many that have spoken highly of the program as well.  Web site is

www.handle.org, there is also a book written by the woman who developed the

program who was autistic called 'The fabric of autism'.  We were stuck a while

ago at age 5-6 and provided another angle on therapy with good results,

including speech. 

Agnie 

________________________________

From: Mr A <eric_2525@...>

Sent: Fri, March 26, 2010 3:36:06 PM

Subject: Apraxia

 

Does anyone have advice on speech therapy for apraxia?  Our 6-year old son has

been in speech therapy for almost four years since he lost his words at about 2

years old, but has not really progressed much and can still only imitate a

very limited amount of sounds right now. Dr. G mentioned asking the therapist

to focus on oral apraxia and approach it on that basis, which I believe should

help once we get our new speech therapy clinic on board. Any one have luck with

this approach or have other other advice?

Thanks,

[Guest guest]

You Have to try Nutriiveda from prusuitof research it is having amazing

results with children with apraxia,one young woman 25 has started to speak

and lots of kids are seeing results withi days,we are using it with our non

verbal 6 year old while we have not seen the wows of speech as yet,he is so

content social and developing a wicked sence of humour on it,i would advise

everyone to try it,fter 4 years of bio med and all the numerous treatments i

can honestly say it is the one thing that i def see changes with

On Sun, Mar 28, 2010 at 2:59 AM, Briffa SeventySeven <briffa77@...>wrote:

>

>

> Hello pslofton and Kristy,

> I'm going to look into that Speak by Nourish Life, too. My son and daughter

> take strawberry flavored Nordic Naturals cod liver oil and I believe this

> helps as well (however, it has soy in it so if your children are allergic

> it's not an option.)

> With my son's fine motor difficulties, I've learned that a slant board and

> the proper grips put on the pen/pencils have helped him tremendously when it

> comes to writing. (He'll be six in June.)

> Kristy - what methods are your speech therapist using to address the

> auditory processing issues? I've heard of something called earobics - is

> that a method he/she uses?

> I got trained in Therapeutic Listening, which has helped my son with

> spatial and depth perception issues. He also stopped constantly putting his

> shoes on the wrong feet and can speak somewhat about past events now.

> However, he can only answer a question about one small sentence spoken to

> him at a time. If you try to ask him a qu. about a two part sentence - he

> can not answer. We have a long way to go with auditory processing.

> Bridget

>

>

> From: It's just me... <pslofton@... <pslofton%40gmail.com>>

> Subject: Re: Apraxia

> <%40>

> Date: Saturday, March 27, 2010, 6:07 PM

>

>

>

>

> My daughter has apraxia (global apraxia - head to toe unfortunately) . She

> has been making lots of sounds and is trying to imitate them. She is now 3

> 1/2 and is still non-verbal but is on her way. She continues to make

> progress each week.

>

> The speech therapies we have found to be effective have been PROMPT and

> oral motor therapy with a Beckman certified therapist. We also just started

> the interactive metronome too. We aren't anymore but felt that protocol

> helped.

>

> The other thing that helped with her apraxia is the use of fish oils and

> vitamin E. We currently use a product called Speak by NourishLife. Ever

> since we started using that her motor planning and attempts at speech have

> been much better. She still has a long way to go, but that was the thing

> that made the biggest difference. When we started her gains were noticeable

> across the board.

>

>

> >

> > Yes, my son has made a lot of progress in the last year in speech. Due to

> > protocol, but also private-pay speech that is focusing on apraxia

> and

> > also, for him, auditory processing. His eating is improving, too, as he

> is

> > eating some new foods he could not eat previously.

> >

> > Kristy Nardini

> > TazziniTM Stainless Steel Bottles

> > www.tazzini. com

> > kristy@...

> > Phone: 858.243.1929

> > Fax: 858.724.1418

> >

> >

> > P Please consider the environment before printing this email.

> >

> > From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of

> Mr

> > A

> > Sent: Friday, March 26, 2010 1:36 PM

> > groups (DOT) com

> > Subject: Apraxia

> >

> >

> >

> >

> > Does anyone have advice on speech therapy for apraxia? Our 6-year old son

> > has been in speech therapy for almost four years since he lost his words

> at

> > about 2 years old, but has not really progressed much and can still only

> > imitate a very limited amount of sounds right now. Dr. G mentioned asking

> > the therapist to focus on oral apraxia and approach it on that basis,

> which

> > I believe should help once we get our new speech therapy clinic on board.

> > Any one have luck with this approach or have other other advice?

> >

> > Thanks,

> >

> >

> >

> >

> >

[Guest guest]

________________________________

From: Lori <lbharris@...>

Sent: Sun, March 28, 2010 5:26:43 PM

Subject: RE: Re: Apraxia

 

Hi Kristy,

Does Dr. G approve of this supplement? I have never heard of it and would

be surprised to his agreeing to it???

Just curious.

Lori

_____

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of Kristy

Nardini

Sent: March-28-10 11:34 AM

groups (DOT) com

Subject: RE: Re: Apraxia

I always forget about DHA. My son (and daughter) have been taking DHA-EPA

from Metagenics. It's super high quality, about $42/month. He gets two

caps/day and she gets 1. We ran out last fall and we were in a cash flow

crunch (thank you, IRS) and I didn't buy it for a few weeks. My son stopped

talking! He started again within a few days after re-starting the DHA.

Last summer he did 60 hours of LiFT, listening fitness training through the

place where I take him for ST and OT. http://www.listenin

<http://www.listenin gfitness. com/> gfitness.com/ AMAZING difference. When he

got back to school in the fall, everyone commented that he was (is) like a

different kid. It helped so much with auditory processing, processing time,

fine motor, gross motor, regulation, which in turn has really improved his

ability to relate and it has helped so much socially. AMAZING (worth

repeating). He did a 10 hour " boost " in January, but I think he's done with

it. If they suggest he needs more, I will find the money and do it again. It

was pricey, ~$5000 total. He goes to www.it4k.com and they got the exclusive

rights to LiFT for North America and they say they are going to really try

to bring down the cost and make it more accessible. I sure hope so.

Kristy Nardini

TazziniTM Stainless Steel Bottles

www.tazzini. com

kristytazzini (DOT) <mailto:kristy% 40tazzini. com> com

Phone: 858.243.1929

Fax: 858.724.1418

P Please consider the environment before printing this email.

From: groups (DOT) <mailto:% 40groups. com> com

[mailto:@ groups. <mailto:% 40groups. com> com] On Behalf Of

Briffa SeventySeven

Sent: Saturday, March 27, 2010 6:59 PM

groups (DOT) <mailto:% 40groups. com> com

Subject: Re: Re: Apraxia

Hello pslofton and Kristy,

I'm going to look into that Speak by Nourish Life, too. My son and daughter

take strawberry flavored Nordic Naturals cod liver oil and I believe this

helps as well (however, it has soy in it so if your children are allergic

it's not an option.)

With my son's fine motor difficulties, I've learned that a slant board and

the proper grips put on the pen/pencils have helped him tremendously when it

comes to writing. (He'll be six in June.)

Kristy - what methods are your speech therapist using to address the

auditory processing issues? I've heard of something called earobics - is

that a method he/she uses?

I got trained in Therapeutic Listening, which has helped my son with spatial

and depth perception issues. He also stopped constantly putting his shoes on

the wrong feet and can speak somewhat about past events now.

However, he can only answer a question about one small sentence spoken to

him at a time. If you try to ask him a qu. about a two part sentence - he

can not answer. We have a long way to go with auditory processing.

Bridget

From: It's just me... <psloftongmail (DOT) <mailto:pslofton% 40gmail.com> com

<mailto:pslofton% 40gmail.com> >

Subject: Re: Apraxia

groups (DOT) <mailto:% 40groups. com> com

<mailto:% 40groups. com>

Date: Saturday, March 27, 2010, 6:07 PM

My daughter has apraxia (global apraxia - head to toe unfortunately) . She

has been making lots of sounds and is trying to imitate them. She is now 3

1/2 and is still non-verbal but is on her way. She continues to make

progress each week.

The speech therapies we have found to be effective have been PROMPT and oral

motor therapy with a Beckman certified therapist. We also just started the

interactive metronome too. We aren't anymore but felt that protocol

helped.

The other thing that helped with her apraxia is the use of fish oils and

vitamin E. We currently use a product called Speak by NourishLife. Ever

since we started using that her motor planning and attempts at speech have

been much better. She still has a long way to go, but that was the thing

that made the biggest difference. When we started her gains were noticeable

across the board.

>

> Yes, my son has made a lot of progress in the last year in speech. Due to

> protocol, but also private-pay speech that is focusing on apraxia and

> also, for him, auditory processing. His eating is improving, too, as he is

> eating some new foods he could not eat previously.

>

> Kristy Nardini

> TazziniTM Stainless Steel Bottles

> www.tazzini. com

> kristy@...

> Phone: 858.243.1929

> Fax: 858.724.1418

>

>

> P Please consider the environment before printing this email.

>

> From: groups (DOT) com [mailto:] On Behalf Of Mr

> A

> Sent: Friday, March 26, 2010 1:36 PM

> groups (DOT) com

> Subject: Apraxia

>

>

>

>

> Does anyone have advice on speech therapy for apraxia? Our 6-year old son

> has been in speech therapy for almost four years since he lost his words

at

> about 2 years old, but has not really progressed much and can still only

> imitate a very limited amount of sounds right now. Dr. G mentioned asking

> the therapist to focus on oral apraxia and approach it on that basis,

which

> I believe should help once we get our new speech therapy clinic on board.

> Any one have luck with this approach or have other other advice?

>

> Thanks,

>

>

>

>

>