ASA-ASO DIGEST: December 22, 2008

[Guest guest]

Dear Friend of ASA-ASO:

Happy Holidays from ASA-ASO! The DIGEST will be on "vacation" next week and return January 5, 2009.

Visit ASA-ASO's website www.autismohio.org for an "easy to read" version if this does not come through clean on your listserv. Or sign up to receive your own copy by "registering" on the "login" section of ASA-ASO's homepage.

News From ASA-ASO:

- ODE-OEC to hold Public Hearing on Revised Special Education Forms

- Budget meetings scheduled with ODRMRDD Director around the state

- Ohio Budget Update, Join ASA-ASO Ohio Autism Advocacy Network to help Advocacy efforts

- UPDATE ON GOVERNOR STRICKLAND'S EDUCATION REFORM PROCESS

- Ohio BMV changes policy on Autism Awareness License Plate

- Federal Update

Upcoming Events, Resources, etc:

- ASA-Greater Cleveland January Newsletter

- ASA-Central Ohio Latest Newsletter

- News from the ASA

New Study Shows Families Pessimistic about Future for Children 2009 Call for ASA Board of Directors Nominations Don't Miss ASA's Day on the Hill 2009 Make a CHANGE Today! Share your Story with Pres. Elect Obama "Can Children with Autism Recover? If So, How?" Epilepsy Drug May Increase Risk of Autism in Children 2009 ASA National Conference, July 22-25 in St. , Ill. ICDL Holds Online Edition of 2008 Conference Mother and Son Tell Their Story New Book Takes an Interdisciplinary Look at Autism Research New Series for Speech Development Internship Opportunities for Students with Disabilities Model Me Kids Holiday DVD Giveaway"Solitary Genius" Tells Story of New Speech Pathology Graduate

- Easter Seals - ASA, Living with Autism Study

- Special Issue of ASA Magazine Autism Advocate Focuses on Applied Behavior Analysis

- 2009 Milestones Autism Asperger's Conference, June 15, 2009 seeking Proposals

- Cooking Training on Nintendo

- Article: The spirit of Christmas is alive and well (thanks in part to the ASA-Dayton Chapter and DAFEAT)

- Upcoming Disability Related Conferences, Columbus

- Autism and Alternative Treatments Conference January 30 & 31, 2009South Bend, Indiana- Updates from the Ohio Department of Education - Office for Exceptional Children

- Free Travel Training E-Newsletter

- Understanding Asperger Syndrome: A Professor’s Guide - free downloadable

- Council for Exceptional Children E-Newsletter

- Article: Survey- Parents pessimistic about autism education

- Books from Kingsley Publishers

- Books on Dietary Interventions

- Books by Jed Baker

- Article: Policy Matters group pushes for mentor-program expansion

- New IDEA Regulations Released by US Department of Education

- Children’s Buy-In Program (CBI) from Ohio Dept. of Job and Family Services

ASA-ASO is now posting all research opportunities on our website. For information on available opportunities, visit our webpage www.autismohio.org, click on "Information" along the left side of the home page and then click on "Studies/Surveys".

Have you purchased your Ohio Autism Awareness License Plate yet? To purchase yours, visit www.oplates.com and click on "Specialty Plates" or visit our website at www.autismohio.org for more information.

Sincerely,The Autism Society of America - Autism Society of Ohio Chapter701 S. Main St.Akron, OH 44311( 330) 376-0211fax: (330) 376-1226email: askASO@...web: www.autismohio.org Please note: This is provided for information purposes only. The ASA-ASO does not endorse or recommend any providers, methodologies or services. Providing this information should not be construed as an endorsement by the ASA-ASO, either explicit or implied.

News From ASA-ASO:

ODE-OEC to hold Public Hearing on Revised Special Education Forms

On January 6, 2009, the Ohio Department of Education (ODE), Office for Exceptional Children, will hold a public hearing on the adoption or revision of two forms that school districts must use in administering programs and services for students with disabilities:

Form PR-06: Evaluation Team Report; and Form PR-07: Individualized Education Program (IEP).

The hearing is held pursuant to 34 Code of Federal Regulations (CFR) Sections 300.165 and 300.509.Any party may participate in the public hearing on the adoption or revision of the listed forms. Participants may provide vocal and written testimony, and/or written comments at the hearing.

TIME AND PLACE OF PUBLIC HEARINGThe public hearing will be held from 1:30–3:30 p.m. January 6th at the Dublin Metropolitan Library, 75 N. High St., Dublin, OH 43017.NEED FOR ACCOMMODATIONSTo request an interpreter or other needed services at the hearing, please contact Shirley Crabtree at least 48 hours before the meeting by one of the following means: Letter to Procedural Safeguards, Office for Exceptional Children, Ohio Department of Education, 25 S. Front St., MS 201, Columbus, OH 43215-4183; Phone call to (614) 387-2250; or E-mail to shirley.crabtree@.... COPIES OF LISTED FORMS AND PROCEDURESCopies of the forms listed above are posted on our Guidance Document web site at http://EdResourcesOhio.org. ADDITIONAL OPPORTUNITY TO COMMENT:Parties not attending the hearing may submit written comments, only, directly to the Office for Exceptional Children, Ohio Department of Education. Written comments not submitted at the hearing must be sent to Shirley Crabtree by one of the following means: Mail to Procedural Safeguards, Office for Exceptional Children, Ohio Department of Education, 25 S. Front St., MS 201, Columbus, OH 43215-4183; Fax to (614) 728-1097; or E-mail to shirley.crabtree@.... All written comments must be received by the Office for Exceptional Children by 5 p.m. on January 9th, 2009.

Budget meetings scheduled with ODRMRDD Director around the state

ODMRDD Director , will host ‘budget conversations’ in five locations throughout the state, during the first two weeks in January 2009. Co-sponsors of the meetings include the Ohio Association of County Boards of MRDD (OACBMRDD); the Ohio Association of Superintendents of County Boards of MRDD (OASCBMRDD), the Ohio Provider Resource Association (OPRA); The Arc of Ohio, and The League (formerly OLMR). Director will listen to any interested participants in the MRDD community -- including stakeholders, service providers, individuals, and families – as we look at ways to maximize available resources while maintaining quality services. As Director has stated previously, You are encouraged to attend at least one of these very important meetings. Schedule of 'Budget Conversations'- All Meetings will be from 7-9 p.m. - January 7, 2009Guernsey County Board of MRDD60770 Southgate RoadByesville, Ohio 43723-9699(740) 439-4451 January 8, 2009The Findlay Inn & Conference Center200 E. Main Cross StreetFindlay, Ohio 45840(419) 422-5682 January 12, 2009 Arboretum & Gardens Metro Park6733 Springboro PikeDayton, Ohio 45449(937) 434-9005 January 13, 2009Holiday Inn Columbus/Worthington7007 N. High StreetWorthington, Ohio 43085(614) 436-0700 January 15, 2009Sheraton Suites Akron/Cuyahoga Falls1989 Front StreetCuyahoga Falls, Ohio 44221(330) 929-3000

Ohio Budget Update

Governor Orders Adjustments to Preserve Balanced Budget As National Economic Deterioration Continues Columbus, Ohio – Governor Ted Strickland today ordered $640 million in budget adjustments to maintain a balanced budget as the accelerated deterioration of the national economy continues to deprive Ohio of revenue. This reduction is in addition to the $1.27 billion in budget adjustments already undertaken this year, for a total of $1.9 billion in budget adjustments over the biennium. This is in line with the Office of Budget and Management’s recession-based scenario, outlined in January 2008, which had forecast a $1.9 billion total budget deficit if the economy fell into recession. Earlier this month, economists agreed that the national economy has been in recession since December 2007. Strickland said the adjustments must be undertaken now to give state agencies ample planning time before January 1, when large subsidy payments to local communities are scheduled.“Ohio’s budget circumstances are substantially worse today than they were just 12 weeks ago,†Strickland said. “I believe that taking this action today is necessary to make sure the state budget remains balanced and agencies have time to plan. And we are making this decision while continuing to protect the college tuition freeze and foundation funding for local schools.â€The budget adjustment plan includes a 5.75 percent across-the-board cut to state agency spending levels while holding harmless key programs. The plan also anticipates a 6 percent increase in the federal share of Medicaid payments early next year. “It appears clear that the federal government will include aid to states in any economic recovery package,†Strickland said. “While we do not yet know what the full scope of that aid will be, we believe it is reasonable to plan for an increase in federal Medicaid funding.†The budget adjustments announced today protect tax reform passed by previous legislatures, the newly-established homestead tax cut, the tuition freeze for state colleges and universities, and increased funding for local school districts in addition to exempting other key programs.Strickland recognized state employees for their hard work and dedication during this difficult time.“I honor and appreciate the hard work every state employee does every day,†Strickland said. “While any budget cuts mean pain and difficulty for state workers, I want you to know that I would not have made this decision if I did not believe it was absolutely necessary and the right thing for the people of Ohio.†Budget reductions announced today will result in $180.5 million less being spent by state agencies through June 30, 2009. The remaining $460 million shortfall will be made up through Medicaid spending adjustments and various cash management strategies.General revenue fund (GRF) Medicaid spending in the Department of Job and Family Services will be adjusted to reflect an anticipated enhanced federal medical assistance percentage (FMAP), additional cost containment and the liquidation of balances in non-GRF funds. Specific line items fully exempted include: Department of Education line items for foundation funding, pupil transportation, gifted pupil program, special education enhancements and career/technical education enhancements; Board of Regents line items for OCOG, OIG, SSI, Academic Scholarships, Central State Supplement, ee State Supplement, and capital component; Ohio Department of Job and Family Services line items for Medicare Part D, TANF and Child Care maintenance of effort, and Disability Financial Assistance; Expositions line item for Junior Fair Subsidy; all GRF line items within the Department of Rehabilitation and Correction; all GRF line items within the Department of Youth Services; Ballot Board advertising reimbursement; all line items within the Department of Veterans’ Services; line items for mandate assistance and ballot advertising costs; debt service line items; line items related to tax relief; several boards and commissions; disability pension and survivor funds administered by the Treasurer of State; and all GRF line items for the legislative and judicial agencies.

We need advocates to help advocate for individuals with autism and their families during the budget process!

ASA-ASO forming Ohio Autism Advocacy Network - Join Now!

As you are aware, Autism Insurance Parity, HB170 is currently under consideration by the Ohio House Insurance Committee. The fall elections are coming and immediately following the elections it will be time to address next biennial budget for Ohio. Additionally, issues regularly come before the state legislature that impact individuals with autism, their families and those who work them throughout Ohio. And because of this, the Autism Society of Ohio needs your help.

We are in the process of putting together an autism advocacy network that has constituents in each of the districts of the members of the Ohio General Assembly, both the House and Senate. We are looking for advocates all around the state to help us with this effort.

You can volunteer to participate in two ways:

· Team Leader: Each Ohio district will have an assigned team leader who is responsible for carrying the key ASA-ASO/autism messages when meeting with the legislator (Representatives and Senators), coordinating testimony or letter writing for hearings, and for organizing the team members of their district, etc.

· Team Member: Each Ohio district will have several team members that are available to share their own personal ASA-ASO/autism story, to write letters when needed, and to ask from help from their neighbors/families/friends. Team members may choose specialize on certain topics – ie. autism insurance parity topic, special education funding, etc.

ASA-ASO is also developing a Legislative Advocacy Manual and will provide local training to constituent volunteer advocates.

If you are interested in participating in this effort, please send your Name, address, city,zip+4, phone, email address, House District Number and Senate District number and whether you are interested in being a “Team Leader†or a “Team Member†to askASO@.... Please put AUTISM ADVOCACY NETWORK in the subject line. To find your district numbers, visit www.legislature.state.oh.us and follow the directions under "Locating Legislators".

For more information, visit our website at www.autismohio.org

UPDATE ON GOVERNOR STRICKLAND'S EDUCATION REFORM PROCESSGovernor Strickland held the first of six regional forums on financing public education on Thursday, November 20th. After the forum, the Governor said it's likely his school-funding plan will be included in his two-year state spending plan to be unveiled early next year."We will present a plan; it will be well-thought out; it will be vetted thoroughly", Governor Strickland said. He added, "I am not yet ready to say what all those elements are going to be, but I think some parts of it will be controversial; but people who are trying to second-guess me, I think will be surprised."There will be five more regional forums across the state throughout December, focusing solely on school funding. Attendance at the forums is by invitation only, but all will be broadcast live on the website http://www.conversationoneducation.org Upcoming forum dates and locations are as follows:Cleveland -Thursday, December 11th, from 4:30-6 pmToledo - Friday, December 12th from 4:30-6 pmMansfield -Thursday, December 18th from 4:30-6 pmCincinnati - Friday, December 19th from 4:30-6 pmAthens - Saturday, December 20th from 2:30-4 pmFor more information visit: http://www.conversationoneducation.orgTo read related articles please visit:11/20 The Columbus DispatchGovernor offers no hints on school reform planhttp://www.columbusdispatch.com/live/content/local_news/stories/2008/11/20/tedschool.html?sid=10111/21 NBC4iStrickland Talks School-Funding Formulahttp://www.nbc4i.com/midwest/cmh/politics.apx.-content-articles-CMH-2008-11-21-0014.html 11/20 South Side LeaderGovernor announces next round of 'Conversation on Education' meetingshttp://www.akron.com/akron-ohio-education-news.asp?aID=3969The following articles include predictions about what might be part of Governor Strickland's education reform plan:12/03 The Times GazetteStrickland mulls school fundinghttp://www.timesgazette.com/main.asp?SectionID=1 & SubSectionID=1 & ArticleID=158928 & TM=35714.8111/20 WCPNGovernor Still Searching For Equitable Funding Solution For Ohio Schoolshttp://www.wcpn.org/index.php/WCPN/news/15362/ Akron Beacon Journal11/16 Ohio has ways to pay for schoolshttp://www.ohio.com/news/willard/34538449.html

Ohio BMV changes policy on Autism Awareness License Plate

Because of privacy concerns, the Ohio BMV will no longer be releasing the names and addresses of those who purchase the Ohio Autism Awareness License Plate to the ASA-Autism Society of Ohio. $25 from the purchase of each plate benefits the ASA-ASO and we have been sending thank you notes to all those who have purchased a plate. However, we will no longer be able to do so. The BMV is currently looking into options to add customer consent to the special license plate process so hopefully we will be able to go back to thanking folks formally in the future. But whether we are able to send a formal "thank you" or not, please know that the purchase of an autism awareness license plate makes a big difference and helps us help individuals with autism, their families and those who work with them throughout Ohio.

Federal Update

The 110th Congress ground to a halt after Senate Republicans successfully blocked consideration of a bailout for the auto industry. No further action is anticipated until the new Congress convenes on January 3. There will be several pro forma sessions in the Senate to prevent President Bush from making any recess appointments.

President-Elect Barack Obama announced his nominees to head two Cabinet agencies of primary importance to disability policy. Former Senate Majority Leader Daschle (D-SD) has been nominated to head the U.S. Department of Health and Human Services (HHS) and oversee a new White House Office of Health Reform. As HHS Secretary and Director of the new White House office, Senator Daschle will be the Obama Administration’s point person on health care. Jeanne Lambrew, who worked on health care issues in the Clinton Administration will serve as Deputy Director of the White House office. Shaun Donovan was nominated to be the secretary of the U.S. Department of Housing and Urban Development (HUD). Mr. Donovan, who currently is the housing commissioner for New York City, served as Acting Federal Housing Commissioner and as Deputy Assistant Secretary for Multifamily Housing at HUD during the Clinton Administration.

Upcoming Events, Resources, etc.:

ASA-Greater Cleveland January Newsletter

Dear Friends of ASGC:

Please click on the following linkhttp://www.admail.net/file/5712/9f09/ to view our January, 2009, Newsletter. We hope you and your family have a wonderful Holiday Season and a very Happy New Year.

Eileen Hawkinswww.asgc.orge-mail: support@...(216) 556-4937

ASA-Central Ohio Latest Newsletter

http://www.autism-centralohio.com/pdf/ASANewsletterNov2008modified.pdf

News from the ASA

New Study Shows Families Pessimistic about Future for Children Parents of children with autism are struggling with a host of worriesthat impact every aspect of their lives, and are particularly fearfulthat their family will lack the life-long supports needed to addressthe significant challenges of autism, according to a new studyreleased this week by Easter Seals. Read more: http://www.autism-society.org/site/R?i=kw-5WFdTAu99BChTcIdLjQ.. 2009 Call for ASA Board of Directors NominationsThe Autism Society of America will hold elections in 2009 for tworegional Board positions (Midwest and Southeast regions) and oneAt-Large position. Please submit your nominations by Monday, March 2,2009. For information about qualifications and expectations,nomination requirements, submission requirements and campaignguidelines, visit ASA's Board of Directors page: http://www.autism-society.org/site/R?i=d9Bp9oCELDetAuJ9jFGxrg.. Don't Miss ASA's Day on the Hill 2009Make your voice heard in Washington and register today for ASA'sDay on Capitol Hill 2009, February 25-26! To ensure that familiesaffected by autism are heard in Washington and beyond, Day on the Hill2009 will help increase awareness and understanding of autism issuesamong federal policymakers and build support for ASA'slegislative priorities. Read more:http://www.autism-society.org/site/R?i=SR9aZ-rg6jhyQq575r-cqw.. Make a CHANGE Today!It is time for aggressive action from the grassroots level.President-Elect Obama and the Transition team need to hear from ASAand our community in a VERY BIG way! Please visit the Change.govHealth Care page and advance the agenda to support individuals withautism and their families. Look for the button where you can submityour ideas for change. The more people write in to tell the newadministration their autism concerns, the better chance we have ofimproving the lives of all affected by autism. Read more:http://www.autism-society.org/site/R?i=rrsYpPYZgOjN89hFSeYMxw.. "Can Children with Autism Recover? If So, How?"A new study entitled "Can Children with Autism Recover? If So,How?" was published in the December 2008 issue of"Neuropsychology Review." The authors reviewed evidence that 3-25percent of children reportedly lose their ASD diagnosis. Read more:http://www.autism-society.org/site/R?i=mf_ma7_FiqydkcmUTtQyCg.. Epilepsy Drug May Increase Risk of Autism in ChildrenA new study shows that women who take the epilepsy drug valproatewhile pregnant may significantly increase their child's risk ofdeveloping autism. The preliminary research is published in theDecember 2, 2008, print issue of "Neurology," the medical journal of theAmerican Academy of Neurology. Read more:http://www.autism-society.org/site/R?i=1DQvSv7QdZT32HIQmes1UQ..

2009 ASA National Conference, July 22-25 in St. , Ill.The 2009 ASA National Conference will be held in St. , Ill., atthe Pheasant Run Resort July 22-25. We will be opening registration inmid-January. Please visit the Frequently Asked Questions on theconference Web site: www.autism-society.org/conference We anticipate 2,000 attendees this year and more than 150 exhibitors,plus speakers from around the globe. In 2008, we were able to expandour professional credit offerings and create a comprehensive programthat drew a record number of attendees.Over 60 booths have already sold for next year's event. Toparticipate as an exhibitor, program guide advertiser or sponsor,please contact Meg Ellacott at ellacott@... or302-260-9487. Visit www.autism-society.org/conference and click onexhibit information to learn more. If you have any questions, don't hesitate to contact us atconference@.... ICDL Holds Online Edition of 2008 ConferenceThe Interdisciplinary Council on Development and Learning Disorders(ICDL) will hold an online edition of their 2008 annual conferencefrom January 8-19, 2009, and January 29-February 16, 2009. This onlineedition is based on the morning plenary panels at their 12th AnnualConference last November, "Redefining the Potential forEmotional and Social Functioning in Children with Autism and SpecialNeeds." Read more:http://www.autism-society.org/site/R?i=xieu_q_J0S48oWh4aqTM1g.. Mother and Son Tell Their Story"Life at the Edge: Living with ADHD and Asperger's Syndrome" isthe true story of one boy and his family's life - with labelsattached. Jan Greenman paints the world of her family and theirjourney with Luke, who has autism, with humor, love and honesty. Readmore:http://www.autism-society.org/site/R?i=rF4j3kvE7PcnPlbchpfRrA.. New Book Takes an Interdisciplinary Look at Autism ResearchResearch on autism has flourished in the last 20 years; as a result ofthis growth, the research has become more specialized within theneurocognitive, clinical and interventionist fields. In an effort toshow an integrated view of these specialties, a new collection ofresearch on autism spectrum disorders investigates a range of currentthinking - from functional Magnetic Resonance Imaging studies tonaturalistic intervention. Read more:http://www.autism-society.org/site/R?i=A-kBFg6alS3hcEe09ca6FQ.. New Series for Speech DevelopmentSpeak with Me Books aims to empower children with sounds, words andphrases they can feel confident and comfortable using in order tobuild their confidence and help in the learning process while enjoyingmany wonderful and new sounds. Read more:http://www.autism-society.org/site/R?i=YpkkrzC67xgz0YvjsjqjCg.. Internship Opportunities for Students with DisabilitiesThe American Association of People with Disabilities is looking forcollege students with disabilities to apply for 2009 SummerInternships for Students with Disabilities in Washington, D.C. Readmore:http://www.autism-society.org/site/R?i=svI2yUAdi-R4fxKEPrg6iQ.. Model Me Kids Holiday DVD GiveawayModel Me Kids is offering a 3-set of their videos for your favoriteteacher of your child with autism. Read more:http://www.autism-society.org/site/R?i=gn1DvT46vtzhM4CumQP-PA.. "Solitary Genius" Tells Story of New Speech Pathology GraduateFresh out of college, with a degree in Speech Pathology, MaureenMarshall landed her first real job as a teacher to a special-needspopulation of students. She was asked to participate in arevolutionary early intervention educational program for kids withsevere communication problems. Little did she know that thisextraordinary year would entirely transform her and her understandingof the world. Read more:http://www.autism-society.org/site/R?i=A6O11u47Yf9wMP1F0pooPQ..

Easter Seals - ASA, Living with Autism Study

What do families need to put their minds at ease in living with autism?

That's what Easter Seals wanted to find out. So this summer, thanks to the generous support of MassMutual Financial Group, we worked in cooperation with the Autism Society of America to conduct the Easter Seals Living with Autism Study. Autism now affects more than 1.5 million Americans and their families -- yet services and support for people living with autism are few and far between.

Easter Seals surveyed over 2,500 parents of children who have autism and parents of typically developing children about daily life, relationships, independence, education, housing, employment, finances and healthcare.

The study results paint a startling picture of the life-long fears, anxieties and critical supports needed to raise a child with autism. Many parents of children with autism worry that their child won’t fit into society:

Nearly 80% are extremely or very concerned about their child’s independence as an adult. Only 14% feel that their child will be able to make life decisions.

Only 17% think their child will make friends. They report that they’re “financially drowning,†with concerns for their child’s financial future surpassing the worries of parents with typically developing children.

Easter Seals will use these findings to raise awareness of and advocate for the life-long services families living with autism desperately need.

Download the Living with Autism Study and findings today!

Sincerely, , Ph.D., MPHNational Director of Autism Services, Easter Seals Headquarters

Special Issue of ASA Magazine Autism Advocate Focuses on Applied Behavior Analysis

ASA’s quarterly magazine, the Autism Advocate, will spotlight ABA in its upcoming December issue, entitled “Applied Behavior Analysis: A Powerful Tool for Improving the Lives of People with ASD.†Read more

2009 Milestones Autism Asperger's Conference, June 15, 2009 seeking Proposals

The Annual Milestones Conference features research based approaches fostering lifelong strategies for success from early childhood to adulthood. The conference is an opportunity for parents, professionals and adults with autism to network, hear about local resources and continue learning best practices for school, home, community and work.The 2009 Milestones Autism / Asperger's Conference seeks proposals for: o Concurrent Sessionso Poster Displayso Panel Discussions

Deadline: January 16, 2009

For more information, contact Kiersten at 216-371-4765 or milestonesorg@.... You can also download the proposal guidelines and requirements at www.milestones.org-- Program and Outreach CoordinatorMilestones Autism Organization3246 Desota Ave.Cleveland, OH 44118216-371-4765www.milestones.orgMilestones Autism Organization provides Access, Education, Training and Collaboration for the autism community

Cooking Training on Nintendo

http://www.personaltrainercooking.com/this is a Nintendo DS 'game' that provides step by step cooking instruction. This may be of use in teaching cooking skills to people with mild disabilities or people who have difficulty with short term memory by using more than one modality for teaching (image, sound).

Article: The spirit of Christmas is alive and well (in Dayton)

http://www.daytondailynews.com/o/content/oh/story/opinions/columns/2008/12/17/ddn121708mary.htmlBy McCartyStaff WriterWednesday, December 17, 2008

Tina Coccia thought her co-workers from Miami Valley Hospital had dropped by with a few Christmas gifts for her family. The town woman and her husband, knew how concerned they were since their 9-year-old autistic son, Ethan, had been diagnosed with a brain tumor last month. The devastating diagnosis put into perspective the family's other recent misfortune: is losing his job as an aircraft mechanic at the DHL plant in Wilmington.

Seven co-workers braved the Level I snow emergency Tuesday afternoon to surprise the family with more than a little Christmas cheer. Char son, one of Tina's fellow X-ray technologists, stepped forward with a short, heartfelt speech: "On behalf of the staff in medical imaging at Miami Valley and Miami Valley South, we present you with checks totaling $5,000. The staff also has donated 600 hours of vacation time so that you can spend time with your family."

Tina looked stunned and replied, "You've got to be kidding me."

In an amazing coincidence, an aide from the Dayton Area Families for Effective Autism Treatment stopped by the same afternoon and presented the family with a check for $2,500. "Families affected by autism all come together in times of need," explained the aide, Newkirk. The family also has received emotional and financial support from the Autism Society of Greater Dayton.

Only five weeks ago, Ethan began vomiting and complaining, "My head hurts."

His pediatrician suspected dehydration, then referred Ethan to Children's Medical Center in Dayton when he didn't get better. "We thought they would put him on fluids and he would perk right up," Tina recalled. But Ethan didn't perk up. He suffered a seizure in the hospital, and a series of tests revealed the reason: an inoperable tumor, as big as an egg, embedded in his brain stem. Radiation to shrink the tumor is the only course of treatment, but because of his autism Ethan must be medicated before undergoing the treatment."Eighty-five percent of patients with this condition make it less than two years," Tina said. "But in my mind I'm staying positive."

The family drives more than an hour every weekday to Children's Hospital in Cincinnati for Ethan's treatment. Many nights, when they get home, a home-cooked meal is waiting for them — one of countless thoughtful acts by their neighborhood church, ee Baptist. The Coccias aren't even members. "It's amazing how everyone opens their arms," Tina said.

Chris' co-workers have reached out, too, despite the imminent loss of their jobs at DHL. "I don't want to lose my job right now," admitted, "but that's the way it is. I never ask, 'Why me?' Sometimes I ask, 'Why him?' "

son said she kept the staff informed about Ethan's condition but didn't solicit donations. "The staff just started coming to us and making donations," she said. "Everybody wanted to help out, even people who don't know Tina donated money and gift certificates. This is a true testament to the meaning of Christmas: putting others before you."

It's also a testament to the spirit of a little boy who has fought the odds since being diagnosed with autism at the age of 2.

"Ethan has fought so hard to learn every word he has," Tina said. "He was starting to read simple sentences and doing modified math, getting 100 percent on every spelling test. And now this."

Tina and rarely allow themselves to feel discouraged. "You just have to get through it," said who is planning to study information technology at Sinclair Community College starting in January.

They know their situation could be far worse. Tina's employer, Miami Valley Hospital, will pick up the family's insurance when gets laid off. Otherwise, they would never be able to pay more than $50,000 in medical bills that have accrued in the past month.

"They must love my wife very much," said of Tina's co-workers, choking up in the process.Added Tina: "For this to happen in this economy, with people losing their jobs — well, all I can say is the Christmas spirit is alive and well."

Upcoming Disability Related Conferences

The Disability Network of Ohio is pleased to Announce the 10th Solidarity Conference April 14-16, 2009 If you are a person with a disability, a friend or family member of a person with a disability, an advocate, a volunteer, a teacher, a provider, or other member of the community ... make plans to attend Ohio's leading conference for and about people with disabilities. Become a part of this milestone event and Share experiences and ideas with people from all parts of Ohio Collect helpful information and resources Learn about new programs For program and registration information visit http://www.dnos.org/

Multiple Perspectives on Access, Inclusion, and Disability: Change, Challenge CollaborationApril 28 - 29, 2009Pfahl Executive Education and Conference Center; The Blackwell HotelThe Ohio State University Campus, Columbus, OhioThis year’s theme reflects the critical place in history we occupy. Since last year's conference the United Nations has adopted the Convention on Disability; Congress passed the ADA Amendments Act, a new GI bill with significant support for disabled veterans and the Higher Education Opportunity Act which includes significant provisions on disability; the Access Board is proposing changes in Section 508, and the Department of Justice has submitted a final draft of the first substantive changes the regulations to Titles II and III of the ADA since its passage.For a preview of the program visit: HTTP://ada.osu.edu/conferences/2009Conf/announcement.html The final program and registration will be available in early January.

Autism and Alternative Treatments Conference January 30 & 31, 2009South Bend, IndianaSPECIAL 2 for 1 Parent Registration through 12/31/08A collaborate of organizations, Autism Society of Indiana, AutismSociety of Illinois, Autism Society of Mid-Michigan formally AutismSociety of Lansing, Dayton Ohio Autism Society, NE Illinois AutismSociety and many others, have come together to bring the Midwest anAutism and Alternative Treatments Conference in South Bend, Indianathis January 30th & 31st.Featuring Two Renowned Speakers on Autism: Dr. Jim Ball, Ed.D. BCBA,Co-Chair of the Panel of Professional Advisors for ASA and on the ASABOD will be speaking on "ABA in Real Life.. Misconceptions andStrategies to a Successful Program" and Mr. Bono, Chairman ofthe Board for National Autism Association will be speaking on "OurCommon Interest Within The Disability Community"There is an evening reception in the exhibit hall open to allparticipants, a showing of the documentary "Finding The Words" and 18breakout sessions over the two days. Topics range from specializeddiets, how to recipes, gut issues, to managing behaviors in autism andadvocacy issues.Visit the conference website for more information, including specialrates for registering before December 31st. Financial assistance isavailable for families to attend.http://www.disabilitygoto.com/eventsregistration.htmlFor More Information Call 517-420-3313 or emailassistancedisabilitygoto

Updates from the Ohio Department of Education - Office for Exceptional Children

Please note that ASA-ASO has been working with ODE-OED on the changes in the Autism Scholarship rules and has provided information on how you can provide input on the rule changes in previous issues of the ASA-ASO DIGEST.

District Policies and Procedures

Districts must adopt new Policies and Procedures that are in compliance with IDEA 2004. OEC will be developing a “model†special education policies and procedures consistent with the new Operating Standards that may be adopted by districts. The “model†policies and procedures will be made available to districts by the first of February. A district may also choose to develop its own policies and procedures.

Districts will be required to send OEC assurances that their Board has adopted the “model†Policies and Procedures or send in the district developed procedures for OEC review. District special education policies and procedures must be adopted no later than July 1, 2009.

More information about this will be provided to you regarding this in January 2009.

Medicaid Schools Program

The emergency rules for the Medicaid School Program have been filed are effective for the period of December 1, 2008 through l March 1, 2009

The Ohio Department of Job and Family Services (ODJFS) also has filed final rules for the program and has scheduled a public hearing regarding the rules for December 30 at 10:00 a.m. at the State Office Tower. The rules and the public notice regarding the hearing can be accessed at the Register of Ohio (www.registerofohio.state.oh.us ). The rule numbers are 5101:3-35-01 through 5101:3-35-06. Please note that there is no rule for 5101:3-35-03.

Public school districts, publicly funded community schools and the two state schools can apply to ODJFS for a Medicaid Provider number by accessing the provider application at www.odjfs.state.oh.us/forms/results1.asp?stype=FORM_NUM & searchPar=JFS%2006751, completing it as a paper copy and mailing it back to ODJFS.

After applying for a Medicaid provider number, the school should notify ODE at schoolmedicaid@... and designate a contact person to who notices regarding training and updates can be sent.

Further information will be provided within the near future on the Medicaid School Program.

ASP Rules Update

The full State Board of Education approved a Resolution of Intent to rescind the current ASP rules and to adopt the proposed new ASP rules.

Next steps are below (this schedule is subject to change):

January 2009: Proposed rules are filed with Joint Committee on Agency Rule Review (JCARR), Legislative Service Commission (LSC) and Secretary of State. February 9, 2009: State Board holds a Chapter 119 public hearing. March 9, 2009: JCARR holds a public hearing. March 9-10, 2009: State Board approves a Resolution to adopt the rules. March 12, 2009 or after: Final rules are filed with JCARR, LSC and Secretary of State. July 1, 2009: Rules are effective.

FERPA Regulations

Final FERPA regulations are published in the Federal Register. Here is the link to the Federal Register notice: http://edocket.access.gpo.gov/2008/pdf/E8-28864.pdf.

Highlights in Special Education Newsletter

The Office for Exceptional Children has decide to cease production of the Highlights in Special Education quarterly newsletter as we explore our options for alternative ways to communicate useful and vital information on special education and gifted education to educators and parents.

Free Travel Training E-Newsletter

Subject: Free Travel Training E-NewsletterDate: Tue, 16 Dec 2008 14:38:45 -0500From: Terry Moakley <TMoakley@...>Dear UCEDD Director, We thought that you might be interested in receiving a new free E-Newsletter from the Association of Travel Instruction. Individuals with developmental disabilities who can be trained to use public transportation safely, are being trained in many places throughout the country. If travel training is a service that your institution might be interested in, we are an agency that can help you stay informed about it. We encourage you to visit our website for more information about us, www.travelinstruction.org, and to sign up for our free E-Newsletter. Thank you, Terence J. Moakley, M.A., ATI president

Understanding Asperger Syndrome: A Professor’s Guide - free downloadable

http://www.researchautism.org/resources/AspergerDVDSeries.asp

Council for Exceptional Children E-Newsletter

Click here

Article: Survey- Parents pessimistic about autism education

Survey: Parents pessimistic about autism educationThe parents of children with autism are less than enthusiastic about special education resources as well as their children's health and futures, according to a new survey. Seven in 10 parents of children with autism expressed concern about their child's education, with just 19% saying that school adequately prepared their child for adulthood. Education Week (premium article access compliments of Edweek.org) (12/16)

Great Stuff for Teachers Website

Click here

Books from Kingsley Publishers

A Book About What Autism Can Be Like.Sue .http://www.jkp.com/new/9781843109402All Cats Have Asperger Syndrome.Kathy Hoopmann.http://www.jkp.com/new/9781843104810Different Croaks for Different Folks: All About Children with Special Learning Needs.Midori Ochiai.http://www.jkp.com/new/9781843103929Can I tell you about Asperger Syndrome?: A guide for friends and family.Jude Welton.http://www.jkp.com/new/9781843102069Different Like Me: My Book of Autism Heroes. Elder.http://www.jkp.com/new/9781843108153 Goes to the Dentist.Candace Vittorini and Sara Boyer-Quick.http://www.jkp.com/new/9781843108542Order offline: Kingsley Publishers, 116 Pentonville Road, London, N1 9JB, UKTel: (+44) 020 7833 2307 Fax: (+44) 020 7837 2917 email: post@...Order offline in the US: Kingsley Publishers, Inc. 400 Market Street, Suite 400, Philadelphia, PA 19106, USA Tel: (Toll free ordering) 866-416-1078 Tel:(main office) 215-922-1161 Fax: 215-922-1474 email: orders@...

Books on Dietary Interventions

The Encyclopedia of Dietary Interventionsfor the Treatment of Autism and Related Disordersby and Karyn SeroussiSpecial Diets for Special KidsThe Ultimate Guide to the Gluten-Free, Casein-Free Dietby , Ph.D. Special Diets for Special Kids, TwoThe Ultimate Guide to the Gluten-Free, Casein-Free Dietby , Ph.D. http://www.autismtoday.com/lisa-lewis.html

Books by Jed Baker

No More MeltdownsPositive Strategies for Managing andPreventing Out-Of-Control Behavior

The Social Skills Picture Bookfor High School and Beyond

The Social Skills Picture BookTeaching play, emotion, and communication tochildren with autism Preparing for LifeThe Complete Guide for Transitioning to Adulthood for those with Autism/Asperger's Syndrome

http://www.autismtoday.com/jedbakerbundle.html

Article: Policy Matters group pushes for mentor-program expansion

Policy group pushes for mentor-program expansionAn Ohio group is pressing state leaders to expand a training program that offers struggling teachers the chance for one-on-one training with an effective teacher. However, critics of the program say the real issue is the need for an easier, less costly way to fire ineffective teachers. Education Week (premium article access compliments of Edweek.org)/The Associated Press (12/1)

http://www.edweek.org/ew/articles/2008/11/30/202929ohfiringteachers_ap.html?tmp=210383974

New IDEA Regulations Released by US Department of Education

On December 1, the Department of Education released new regulations for IDEA Part B that will take effect on December 31, 2008. Here's a brief summary of the major changes.

Parental Consent

If your child has been receiving special education services under IDEA and you wish to revoke consent for services:

• the revocation must be in writing, and• the school is not required to amend your child’s education records to remove any reference to previously receiving services. §300.9©(3)

If parents revoke consent for services being provided to their child:

• the revocation must be in writing• the school must provide you with written notice (under § 300.503) about their intentions for your child. This written notice may be one way of establishing just when the services should end.• the school district may not utilize mediation or the due process procedures to challenge your revocation of consent;• the school is not required to convene an IEP Team or develop an IEP; and• the school will not be deemed in noncompliance with the IDEA for failure to provide a FAPE to an otherwise eligible child. §300.300((4)

Representation by Non-Lawyer Advocates

The section on Hearing Rights has been amended to specify that non-lawyer advocates can represent either side (parent or school district) in a due process hearing unless this overrides state law. §300.512(a)(1)

Compliance Issues

A new monitoring and enforcement section is added, establishing a one-year time frame for school districts to fix any IDEA noncompliance issues. Corrective action must be completed one year from the time the problem was discovered. The current regulations have no specific timeline. §300.600(e)

A State now has 120 days, after submitting its annual performance report (APR) to DOE, to provide a report to the public on school performance. This doubles the current allowable time frame. §300.602((1)(i)(A)

Clarifications were also made in the areas of state monitoring, technical assistance, and enforcement; and allocation of funds.

For the complete analysis of comments and changes to the final regulations see the Federal Register for December 1, 2008 at http://www.wrightslaw.com/idea/law/FR.v73.n231.pdf.

Children’s Buy-In Program (CBI) from Ohio Dept. of Job and Family Services

As you may know, the Ohio Dept. of Job and Family Services began the Children’s Buy-In (CBI) program in April. CBI was expected to cover 5,000 kids with special health needs whose working parents were struggling to cover their health care costs. So far, only two children have successfully been enrolled. Part of this is due to the eligibility requirements and the other is simply because families aren’t aware of the program. CBI targets working families with income ABOVE $42,000 per year. To date, 90 percent of those who have applied have actually been under income. Anything you can do to spread the word to eligible families would be greatly appreciated.

Here is the link to the CBI Web site: http://jfs.ohio.gov/OHP/cbi/index.stm. Families can only apply online. Feel free to add this link to your Web site or in any newsletters/mailings you may send to families and providers working with children. Since CareSource will be the providing access to the services, a marketing brochure is available that includes income requirements, covered services and associated costs. If you have any questions or would like to request a presentation for your organization, please contact me using the information below. Thank you!

Toni BigbyConsumer Advocacy DirectorCareSource Management Group65 E. State Street, 8th Floor Columbus, Ohio 43215 (614) 255-4673 (o)(937) 396-3659 (fax)One site keeps you connected to all your email: AOL Mail, Gmail, and Mail. Try it now.