Re: Help with Behavior/OCD Issues?

[Guest guest]

Hello my name is Tracey my son is 8yrs old and has autism, and I do not know much about ABA Thearapy, I have been having some OBC with my son & just alot of behavioral issues, they just came out of no where, the past three months have been very difficult, my husbands work schedule changed alot, and it seems like that was the starting point with the behavoir issues when my husbands schedule changed, can that have a big impact on behavior with my son? Would you have any suggestions? My son tends to listen & respond better to my husband when he is melting down or having some OBC, but is very different with me & my son gives me a very hard time. I think all shildren in general have always tended to listen to Dad better!

Thanks for any advice -

Tracey

We paid our tutors based on their EXPERIENCE-- so not all tutors made the same amount. Some tutors have a starting rate....We gave dollar raises after a specified time period if they were doing an exceptional job.The easiest way for us was to pay all tutors EVERY Friday (or if they didn't come on Friday, the last day of the week that they came)...We kept a cash box stashed at home and a ledger to keep track of all payments.lr************ **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/ 100126575x122258 5043x1201462775/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072 & hmpgID=62 & bcd=Junestepsfooter NO62)

[Guest guest]

Hi Tracey,

Sudden onset of OCD behaviors can sometimes linked to exposure or infection with

any strain of the streptococcus (strep) virus. Medically therefore I would ask

your neurologist or family doctor to do a throat culture and blood work for

strep or PANDAS (I think they would need to check a number of things like ASO,

AntiDNASe, and maybe others). If your son is positive, he could be treated

with antibiotics and his OCD should decrease. This is not going to happen in

all cases but you would definitely want to rule strep out as much as you can!

Step can cause severe neurological impairment in the form of PANDAS and needs be

treated as best you can. Just google PANDAS for more info. Seeing your

neurologist would be probably most helpful for this bloodwork.

Sometimes blood and throat culture both can be negative but stool test maybe

positive for it. In my son's case, everything was negative except a specialized

stool test called Comprehensive Stool Analysis which is a test done by Great

Plains Laboratory (they take selected insurances but not all). This is different

from a regular hospital stool test (which is not sensitive enough in many

cases). It is a special test that did pick up a strain of strep for us.

I was shocked to find it, I will tell you! I never knew my son had strep

although it is sometimes enough to develop OCD symptoms through only exposure to

it and without developing the infection (i.e. your child may just be a carrier).

The sudden onset of symptoms would definitely warrant most thorough lab testing.

We are supposed to start treating with antibiotics soon. I am hoping that would

be sufficient but at times it is not. It is standard though to put kids on them

who have strep.

Hope this helped.

Behaviorally, I would probably just join your child in his passion if doable and

safe. My son's big thing is piling up pillows (and other objects)- I just

restrict the number of the pillows and do not allow hard toys in the pile, but I

allow hi to do the piling as a break and I do join in by getting in his pile (he

wants to burry me under the pillows). We do a lot of requesting as he is asking

for more pillows and me, woking on verblizations and signs.

Others with more of an ABA approach will however tell you to interrupt him I am

sure! I have been there, done that but so did not work for us!!

Best of luck, Tracey...let us know how it goes.

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> We paid our tutors based on their EXPERIENCE-- so not all tutors made the same

amount. Some tutors have a starting rate....We gave dollar raises after a

specified time period if they were doing an exceptional job.

>

> The easiest way for us was to pay all tutors EVERY Friday (or if they didn't

come on Friday, the last day of the week that they came)...We kept a cash box

stashed at home and a ledger to keep track of all payments.

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> lr

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> ************ **

> A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

(http://pr.atwola.com/promoclk/ 100126575x122258 5043x1201462775/ aol?redir=

http://www. freecreditreport .com/pm/default.

aspx?sc=668072 & hmpgID=62 & bcd=Junestepsfooter NO62)

>

[Guest guest]

Correction: strep is a bacteria. Sorry. This is why it can respond well to

antibitics.

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> > We paid our tutors based on their EXPERIENCE-- so not all tutors made the

same amount. Some tutors have a starting rate....We gave dollar raises after a

specified time period if they were doing an exceptional job.

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> > The easiest way for us was to pay all tutors EVERY Friday (or if they didn't

come on Friday, the last day of the week that they came)...We kept a cash box

stashed at home and a ledger to keep track of all payments.

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> > lr

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> > ************ **

> > A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

(http://pr.atwola.com/promoclk/ 100126575x122258 5043x1201462775/ aol?redir=

http://www. freecreditreport .com/pm/default.

aspx?sc=668072 & hmpgID=62 & bcd=Junestepsfooter NO62)

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[Guest guest]

Thanks - For your response, any help is greatly appreciated, I never new something as common as strep can bring on OCD in children with autism and if diagnosed with a type of strep, once treated with antibiotics the OCD should subside, great imformation, I will look into having my son checked for that! Tracey

From: egerpatt <egerpatt@...>Subject: [ ] Re: Help with Behavior/OCD Issues? Date: Monday, June 8, 2009, 11:47 AM

Correction: strep is a bacteria. Sorry. This is why it can respond well to antibitics. > > > > > > From: mjnatran@ <mjnatran@>> > Subject: Re: Re: [ ] ABA therapy and tax deductions> > @group s.com> > Date: Monday, June 8, 2009, 8:59 AM> > > > > > > > > > > > > > > > > > Thanks lr! But did you deduct or claim the following year? That is what we are wrestling with.> > > > > > Jun 8, 2009 07:17:59 AM, @group s.com

wrote:> > > > > > > > > > > > > > > > We paid our tutors based on their EXPERIENCE-- so not all tutors made the same amount. Some tutors have a starting rate....We gave dollar raises after a specified time period if they were doing an exceptional job.> > > > The easiest way for us was to pay all tutors EVERY Friday (or if they didn't come on Friday, the last day of the week that they came)...We kept a cash box stashed at home and a ledger to keep track of all payments.> > > > > > > > lr> > > > > > ************ **> > A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola. com/promoclk/ 100126575x122258 5043x1201462775/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072 & hmpgID=62 & bcd=Junestepsfoo ter NO62)> >>

[Guest guest]

My son is 7 and has the PANDAS OCD. He has had it for awhile and is now becoming

more Aspergers in his behaviors the longer he has the strep PANDAS. I can't seem

to get rid of the antibodies that are launching the attack on his brain. Since

this is an OH forum maybe someone here could help with finding Dr's. This has

been a nightmare because none of them seem to know what to do since the research

is so limited and contradicting. He is on daily antibiotics and goes to OT and

takes fish oils and probiotics. But the longer this goes the harder it is to

calm him. He gets so worked up about what he wants and tantrums and won't let

things go. Any suggestions. We tried therapy but it is hard to get a kid at 7 to

understand he has to wait for things he wants instantly. We did 123 magic and

behavior charts with rewards. It seems the rewards just feed into his

fascination with buying things. He looks for things and talks about them

constantly until he gets them and then moves to something else he wants just as

bad. Socially he has a hard time playing and going along with others ways since

he wants things his way. He argues alot. I was wondering who I could take him

to? We have seen psychiatrists, psycholoist, neurologists and immunologist,

family Dr's. I am not sure where to turn next. I guess we will have to go out of

state since OH Dr's don't seem to want to treat PANDAS OCD.

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> > > We paid our tutors based on their EXPERIENCE-- so not all tutors made the

same amount. Some tutors have a starting rate....We gave dollar raises after a

specified time period if they were doing an exceptional job.

> > >

> > > The easiest way for us was to pay all tutors EVERY Friday (or if they

didn't come on Friday, the last day of the week that they came)...We kept a cash

box stashed at home and a ledger to keep track of all payments.

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> > > lr

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> > > ************ **

> > > A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

(http://pr.atwola. com/promoclk/ 100126575x122258 5043x1201462775/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072 & hmpgID=62 &

bcd=Junestepsfoo ter NO62)

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[Guest guest]

hi,

We see Dr. (neurologist) in Twinsburg - contact available at

www.kidslinkohio.com. That's one way to go.

Seeing an immunologist is another. Let me know if you need a name.

DAN! docs will treat it, Dr. DeMio is one of the good ones in the area

www.drdemio.com

Dr Cheryl is another one www.integrativewellcare.com

there is a biomedical group in ohio discussing pandas and other biomedical

issues and how they relate to behaviors, etc, just do a search on

for biomedical-intervention-group.

let me know if you need more help.

andrea

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> > > > We paid our tutors based on their EXPERIENCE-- so not all tutors made

the same amount. Some tutors have a starting rate....We gave dollar raises after

a specified time period if they were doing an exceptional job.

> > > >

> > > > The easiest way for us was to pay all tutors EVERY Friday (or if they

didn't come on Friday, the last day of the week that they came)...We kept a cash

box stashed at home and a ledger to keep track of all payments.

> > > >

> > > >

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> > > > lr

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> > > > ************ **

> > > > A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

(http://pr.atwola. com/promoclk/ 100126575x122258 5043x1201462775/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072 & hmpgID=62 &

bcd=Junestepsfoo ter NO62)

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[Guest guest]

We have Anthem Blue it is a PPO. Dr, doesn't take insurance so I think they

will pay nothing for out of network. I hear she is good for PANDAS. I have been

through Abdulah, Enlow, Congeni, Erenberg, , Berger, Berchin, , and

Witznitzer. I have phone consults with Gilbert and Leckman, and Dr. Kovosovic,

visited in Florida and saw Demio and did the GF, CF for six months and

supplements and amino acids. None of them have any knowledge or desie to treat

PANDAS. I had to bring all the articles and beg for the antibiotis which they

were not willing to try. Only our ped would do the Omnicef longterm. Dr. k say

to try steroid burst and then IVIG but I can't find anyone local to do it. Demio

does not take insurance because he may do it if I beg. Others with PANDAS say

Azith works best but I have not goten anyone yet to try it. Enlow would do Pen

VK only. Berger gave us Omnicef first then left the hopital. i have been turned

down by at least four Dr's noy wanting to take PANDAS.Dr, Latimer and Kovosovick

seem to be the only ones willing to stick ut their necks and help these

kids.They are both out of state. Have you seen anyone locally for this? What

help did they give? Why is OH so afraid to treat with IVIG?

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> > > > > We paid our tutors based on their EXPERIENCE-- so not all tutors made

the same amount. Some tutors have a starting rate....We gave dollar raises after

a specified time period if they were doing an exceptional job.

> > > > >

> > > > > The easiest way for us was to pay all tutors EVERY Friday (or if they

didn't come on Friday, the last day of the week that they came)...We kept a cash

box stashed at home and a ledger to keep track of all payments.

> > > > >

> > > > >

> > > > >

> > > > > lr

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> > > > > ************ **

> > > > > A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

(http://pr.atwola. com/promoclk/ 100126575x122258 5043x1201462775/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072 & hmpgID=62 &

bcd=Junestepsfoo ter NO62)

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[Guest guest]

Yes I ned more help in OH finding resouces. I need to have local back up. Dr.'s

here don't want to admit PANDAS is real and treat it neurologically. they want

to treat it with psychiatrics.

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> > > > > We paid our tutors based on their EXPERIENCE-- so not all tutors made

the same amount. Some tutors have a starting rate....We gave dollar raises after

a specified time period if they were doing an exceptional job.

> > > > >

> > > > > The easiest way for us was to pay all tutors EVERY Friday (or if they

didn't come on Friday, the last day of the week that they came)...We kept a cash

box stashed at home and a ledger to keep track of all payments.

> > > > >

> > > > >

> > > > >

> > > > > lr

> > > > >

> > > > >

> > > > > ************ **

> > > > > A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

(http://pr.atwola. com/promoclk/ 100126575x122258 5043x1201462775/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072 & hmpgID=62 &

bcd=Junestepsfoo ter NO62)

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