Re: DAN Doctors, GFCF, Supplements, etc - a new question.

[Guest guest]

Hi Becky,

That's a good question you asked and just to let you know, the Autism biomedical group is currently discussing B-12 shots and most likely can answer all your questions. Actually, you can check the archieves on their site as well and you might be able to find answers without waiting on replies. If you like, I could forward your email to them and they could just send replies to you personally or here is a link to join the Biomedical Online group and check their archieves and resend your email to the group. (They should have a wealth of email archieves on all you asked about: Autism-Biomed-Ohio

Yours Truly,

n

In a message dated 5/4/09 9:52:08 AM, rwulfe@... writes:

Has anyone seen any positive results using a DAN! doctor, B12 shots, etc. if their child never had any real physical ailments (e.g., bloating, diarrhea, etc.)? My son (who is now 9, HFA/hyperlexia) is rarely sick (even when his sister gets sick, he doesn't), never had ear infections, never had bloating, etc. I'm wondering if these treatments would help his reading comprehension, his OCD, etc. He's high-functioning and has always been in a typical classroom. He has a resource teacher who helps him with math and comprehension. He always was "on track" when he was small and we'd go to the well-baby checkups. He didn't have reactions from any vaccines; however, in hindsight, I would definietly have done it all differently. I was the one who had to push my pediatrician because his odd behavior (stimming), early spelling and reading (not the typical words like mom, dad, etc. but logos - e.g., the Corporation of Public Broadcasting, Toyota, MGM, Columbia Pictures, etc.), not interacting appropriately within his playgroup (at 3 he should have been grabbing toys, etc. not being such a "good boy" sitting on the couch reading - you know what I mean). Finally, he thought we should get him assessed (duh!). Anyway ...

We didn't have to deal with the more severe autistic behaviors that sometimes occur (loss of speech, head banging, etc.). He has never needed as much sleep as a NT child and he still wakes up every night and comes into our bed (yes, this is very old - lol).

We are vegetarians (octo/lacto) but I did try eliminating dairy when he was a toddler to help w/sleep (before I realized he had hyperlexia/autism) and it didn't seem to do anything. I was wondering if anyone had a high-functioning kid who didn't have any severe physical ailments as I mentioned above and STILL saw positive results from B12 shots, supplements, etc.? Results such as less stimming, better sleep, less odd behaviors, etc.?

Thanks in advance for any input you have!

Becky

~~~ ~~~ ~~~ ~~~ ~~~

Insurance for Autism - HB 8 amended to HB 1

The ASA-Autism Society of Ohio has created a web pagedevoted exclusively to Autism Insurance Parity. Click here to visit. It contains complete information on Autism Insurance Coverage and HB 8 - HB 1

Please use this link to see the latest on the bill as it progresses.

http://www.autism-society.org/site/R?i=tHIg0YyK51WZxLyzbNRGDQ..

~~~ ~~~ ~~~ ~~~ ~~~

- Northeast Ohio Autism Family Support, Networking and Resource

is a family/parent support and resource group in Northeast Ohio. Parents can join together and discuss issues regarding their children with autism. posts upcoming events, workshops and activities for families in Northeast Ohio. Join us for a good parent discussion or join a chat. If you're not already a member of our group Just click the link on "Join this Group" on the site. ~~~ ~~~ ~~~

Look for news on the previous or upcoming topic for our Monthly Support meeting with the ASGC (Autism Society of Greater Cleveland).

See website:

ASGC website - http://www.asgc.org

[Guest guest]

Just wanted to add my two cents. While others have had great results with

biomed, it hasn't been the case for our guy. Provided, we haven't done

consistent YEARS of biomed, either. GFCF worked for him (he was later dx'd with

celiac) from a nutritional and medical standpoint; it did nothing to reduce or

eliminate any autistic behaviors or tendencies.

We've tried various supplements, B12 shots & cream (on no less than 4 separate

occasions), the GFCF diet, nystatin, diflucan, glutathione, vitamins. We have

not chelated, yet. We are in the midst of a biomed break b/c we are exploring

various medications with him. Once he stabilizes on a med (we are hopefully

there), we will go back to biomed. We have considered & will continue to

consider chelation.

I have met many wonderful people whose children have benefitted from biomed and

others whose children did not. Some parents recognized this and others did not.

I have one friend who was very thorough & consistent in her biomed treatments

(she even chelated), yet her son really made no significant progress or seemed

to become " healthier " . She stopped the biomed and it appears to have made no

difference with her son.

Our son is like yours--except he sleeps great. No outward medical symptoms,

even with celiac he showed no medical signs (he severely self-limited to gluten

& casein foods, but didn't have diarrhea or constipation or bloating).

So I guess the answer is....it depends. Feel free to contact me offline if

you'd like to chat more about it.

Amy

> From: DMHelmick7@... <DMHelmick7@...>

> Subject: Re: [ ] DAN Doctors, GFCF, Supplements, etc - a new question.

> , rwulfe@...

> Date: Monday, May 4, 2009, 12:39 PM

> Hi Becky,

>

> That's a good question you asked and just to let you

> know, the Autism

> biomedical group is currently discussing B-12 shots and

> most likely can answer

> all your questions. Actually, you can check the archieves

> on their site as

> well and you might be able to find answers without waiting

> on replies. If you

> like, I could forward your email to them and they could

> just send replies

> to you personally or here is a link to join the Biomedical

> Online group and

> check their archieves and resend your email to the group.

> (They should have

> a wealth of email archieves on all you asked about: <A

> HREF= " Autism-Biomed-Ohio " >

> Autism-Biomed-Ohio</A>

>

>

> Yours Truly,

>

> n

>

>

> In a message dated 5/4/09 9:52:08 AM, rwulfe@...

> writes:

>

> > Has anyone seen any positive results using a DAN!

> doctor, B12 shots, etc.

> > if their child never had any real physical ailments

> (e.g., bloating,

> > diarrhea, etc.)? My son (who is now 9, HFA/hyperlexia)

> is rarely sick (even when

> > his sister gets sick, he doesn't), never had ear

> infections, never had

> > bloating, etc. I'm wondering if these treatments

> would help his reading

> > comprehension, his OCD, etc. He's high-functioning

> and has always been in a

> > typical classroom. He has a resource teacher who helps

> him with math and

> > comprehension.

> >

> > He always was " on track " when he was small

> and we'd go to the well-baby

> > checkups. He didn't have reactions from any

> vaccines; however, in hindsight,

> > I would definietly have done it all differently. I was

> the one who had to

> > push my pediatrician because his odd behavior

> (stimming), early spelling and

> > reading (not the typical words like mom, dad, etc. but

> logos - e.g., the

> > Corporation of Public Broadcasting, Toyota, MGM,

> Columbia Pictures, etc.),

> > not interacting appropriately within his playgroup (at

> 3 he should have been

> > grabbing toys, etc. not being such a " good

> boy " sitting on the couch

> > reading - you know what I mean). Finally, he thought

> we should get him assessed

> > (duh!). Anyway ...

> >

> > We didn't have to deal with the more severe

> autistic behaviors that

> > sometimes occur (loss of speech, head banging, etc.).

> He has never needed as much

> > sleep as a NT child and he still wakes up every night

> and comes into our

> > bed (yes, this is very old - lol).

> >

> > We are vegetarians (octo/lacto) but I did try

> eliminating dairy when he

> > was a toddler to help w/sleep (before I realized he

> had hyperlexia/autism)

> > and it didn't seem to do anything. I was

> wondering if anyone had a

> > high-functioning kid who didn't have any severe

> physical ailments as I mentioned

> > above and STILL saw positive results from B12 shots,

> supplements, etc.?

> > Results such as less stimming, better sleep, less odd

> behaviors, etc.?

> >

> > Thanks in advance for any input you have!

> >

> > Becky

> >

>

>

> ~~~ ~~~ ~~~ ~~~ ~~~

> Insurance for Autism - HB 8 amended to HB 1

>

> The ASA-Autism Society of Ohio has created a web

> pagedevoted exclusively to

> Autism Insurance Parity. Click here to visit. It contains

> complete

> information on Autism Insurance Coverage and HB 8 - HB 1

>

> Please use this link to see the latest on the bill as it

> progresses.

>

> <A

>

HREF= " http://www.autism-society.org/site/R?i=tHIg0YyK51WZxLyzbNRGDQ.. " >http://ww\

w.autism-society.org/site/R?i=tHIg0YyK51WZxLyzbNRGDQ..</A>

> ~~~ ~~~ ~~~ ~~~ ~~~

> <A

> HREF= " " >

> - Northeast Ohio Autism Family </A><A

> HREF= " " >Support,</A><A

> HREF= " " >

> Networking and Resource </A>

> is a family/parent support and resource group in

> Northeast Ohio.

> Parents can join together and discuss issues regarding

> their children with

> autism. posts upcoming events, workshops and

> activities for

> families in Northeast Ohio. Join us for a good parent

> discussion or join a chat.

> If you're not already a member of our group Just click

> the link on " Join

> this Group " on the <A

> HREF= " " > </A>

> site.

> ~~~ ~~~ ~~~

> Look for news on the previous or upcoming topic for our

> Monthly Support

> meeting with the ASGC (Autism Society of Greater

> Cleveland).

> See website:

>

> ASGC website - <A

> HREF= " http://www.asgc.org/ " >http://www.asgc.org</A>

[Guest guest]

Thanks Ellen, , Amy, and n (hope I didn't forget anyone). I think I'm going to try to investigate this further. I remember when I first got the dx of autism (over six years ago) for my son I looked into this and what little I tried didn't seem to do anything and, since we didn't have any real physical issues, I thought we were one of the ones where it wouldn't work. But, I never went to a specialist and maybe I should. Thanks again for all the input!!

Becky

Hi Becky,

It's best to find a specialist who is either DAN doctor or one who knows all about biomedical issues in autism. Alot of specialists out there don't know about the effects of autism onset by the order of disorders, whichever they may be as it seems alot of children have variable reasons for the symptoms. Let me know if you need help locating a good specialist.

Best wishes,

n

~~~ ~~~ ~~~ ~~~ ~~~

Insurance for Autism - HB 8 amended to HB 1

The ASA-Autism Society of Ohio has created a web pagedevoted exclusively to Autism Insurance Parity. Click here to visit. It contains complete information on Autism Insurance Coverage and HB 8 - HB 1

Please use this link to see the latest on the bill as it progresses.

http://www.autism-society.org/site/R?i=tHIg0YyK51WZxLyzbNRGDQ..

~~~ ~~~ ~~~ ~~~ ~~~

- Northeast Ohio Autism Family Support, Networking and Resource

is a family/parent support and resource group in Northeast Ohio. Parents can join together and discuss issues regarding their children with autism. posts upcoming events, workshops and activities for families in Northeast Ohio. Join us for a good parent discussion or join a chat. If you're not already a member of our group Just click the link on "Join this Group" on the site. ~~~ ~~~ ~~~

Look for news on the previous or upcoming topic for our Monthly Support meeting with the ASGC (Autism Society of Greater Cleveland).

See website:

ASGC website - http://www.asgc.org

[Guest guest]

Hi n - I wouldlove some recommendations for a place to start. Please send my way! Thanks! You can send to my home e-mail or to the list.

Home: rwulfe@...

Thanks again!

----- Original Message -----

From:

Sent: 5/5/2009 8:57:33 AM

Subject: Re: [ ] DAN Doctors, GFCF, Supplements, etc - a new question.

Thanks Ellen, , Amy, and n (hope I didn't forget anyone). I think I'm going to try to investigate this further. I remember when I first got the dx of autism (over six years ago) for my son I looked into this and what little I tried didn't seem to do anything and, since we didn't have any real physical issues, I thought we were one of the ones where it wouldn't work. But, I never went to a specialist and maybe I should. Thanks again for all the input!! Becky Hi Becky, It's best to find a specialist who is either DAN doctor or one who knows all about biomedical issues in autism. Alot of specialists out there don't know about the effects of autism onset by the order of disorders, whichever they may be as it seems alot of children have variable reasons for the symptoms. Let me know if you need help locating a good specialist. Best wishes, n ~~~ ~~~ ~~~ ~~~ ~~~ Insurance for Autism - HB 8 amended to HB 1 The ASA-Autism Society of Ohio has created a web pagedevoted exclusively to Autism Insurance Parity. Click here to visit. It contains complete information on Autism Insurance Coverage and HB 8 - HB 1 Please use this link to see the latest on the bill as it progresses. http://www.autism-society.org/site/R?i=tHIg0YyK51WZxLyzbNRGDQ.. ~~~ ~~~ ~~~ ~~~ ~~~ - Northeast Ohio Autism Family Support, Networking and Resource is a family/parent support and resource group in Northeast Ohio. Parents can join together and discuss issues regarding their children with autism. posts upcoming events, workshops and activities for families in Northeast Ohio. Join us for a good parent discussion or join a chat. If you're not already a member of our group Just click the link on "Join this Group" on the site. ~~~ ~~~ ~~~ Look for news on the previous or upcoming topic for our Monthly Support meeting with the ASGC (Autism Society of Greater Cleveland). See website: ASGC website - http://www.asgc.org

[Guest guest]

In a message dated 5/5/09 9:20:02 AM Eastern Daylight Time, rwulfe@... writes:

Hi n - I would love some recommendations for a place to start. Please send my way! Thanks! You can send to my home e-mail or to the list.

Home: rwulfe@...

Thanks again!

Hi Becky,

I have 2 listings that I have experience with. I don't know or I can't remember what area you live in but here's the two I have.

There's also a Dr. Cheryl L. who specializes in allergies and in biomedical for autism. I'll have to get her info. Check which ones I have and let me know if you want to know about Dr. Cheryl.

DAN Doctors:

(*DAN Doctors specialize in treating Autistic individuals.)

DeMio, Philip M.D.(Works with all ages and is good for pediatrics as well).

320 Orchardview Ave. Suite Two

Seven Hills, Ohio 44131

216-901-0441

Lonsdale, Derrick M.D. (Dr. Lonsdale may be retired, ask for new physician recommended by Dr. Londsdale for treating autism).

Preventive Medicine Group

24700 Center Ridge Rd. Suite 317

Westlake, OH 44145

Tel: 440-835-0104

Fax: 440-871-1404

~~~ ~~~ ~~~ ~~~ ~~~

Insurance for Autism - HB 8 amended to HB 1

The ASA-Autism Society of Ohio has created a web pagedevoted exclusively to Autism Insurance Parity. Click here to visit. It contains complete information on Autism Insurance Coverage and HB 8 - HB 1

Please use this link to see the latest on the bill as it progresses.

http://www.autism-society.org/site/R?i=tHIg0YyK51WZxLyzbNRGDQ..

~~~ ~~~ ~~~ ~~~ ~~~

- Northeast Ohio Autism Family Support, Networking and Resource

is a family/parent support and resource group in Northeast Ohio. Parents can join together and discuss issues regarding their children with autism. posts upcoming events, workshops and activities for families in Northeast Ohio. Join us for a good parent discussion or join a chat. If you're not already a member of our group Just click the link on "Join this Group" on the site. ~~~ ~~~ ~~~

Look for news on the previous or upcoming topic for our Monthly Support meeting with the ASGC (Autism Society of Greater Cleveland).

See website:

ASGC website - http://www.asgc.org

[Guest guest]

I use Dr. Cheryl and she is really great! I can provide information and advice on her as well.

Debbie Ford

----- Original Message -----

From: DMHelmick7@...

Sent: Wednesday, May 06, 2009 12:31 PM

Subject: Re: [ ] DAN Doctors, GFCF, Supplements, etc - a new question.

In a message dated 5/5/09 9:20:02 AM Eastern Daylight Time, rwulfeearthlink (DOT) net writes:

Hi n - I would love some recommendations for a place to start. Please send my way! Thanks! You can send to my home e-mail or to the list. Home: rwulfeearthlink (DOT) net Thanks again! Hi Becky, I have 2 listings that I have experience with. I don't know or I can't remember what area you live in but here's the two I have. There's also a Dr. Cheryl L. who specializes in allergies and in biomedical for autism. I'll have to get her info. Check which ones I have and let me know if you want to know about Dr. Cheryl. DAN Doctors: (*DAN Doctors specialize in treating Autistic individuals.) DeMio, Philip M.D.(Works with all ages and is good for pediatrics as well). 320 Orchardview Ave. Suite Two Seven Hills, Ohio 44131 216-901-0441 Lonsdale, Derrick M.D. (Dr. Lonsdale may be retired, ask for new physician recommended by Dr. Londsdale for treating autism). Preventive Medicine Group 24700 Center Ridge Rd. Suite 317 Westlake, OH 44145 Tel: 440-835-0104 Fax: 440-871-1404 ~~~ ~~~ ~~~ ~~~ ~~~ Insurance for Autism - HB 8 amended to HB 1 The ASA-Autism Society of Ohio has created a web pagedevoted exclusively to Autism Insurance Parity. Click here to visit. It contains complete information on Autism Insurance Coverage and HB 8 - HB 1 Please use this link to see the latest on the bill as it progresses. http://www.autism-society.org/site/R?i=tHIg0YyK51WZxLyzbNRGDQ.. ~~~ ~~~ ~~~ ~~~ ~~~ - Northeast Ohio Autism Family Support, Networking and Resource is a family/parent support and resource group in Northeast Ohio. Parents can join together and discuss issues regarding their children with autism. posts upcoming events, workshops and activities for families in Northeast Ohio. Join us for a good parent discussion or join a chat. If you're not already a member of our group Just click the link on "Join this Group" on the site. ~~~ ~~~ ~~~ Look for news on the previous or upcoming topic for our Monthly Support meeting with the ASGC (Autism Society of Greater Cleveland). See website: ASGC website - http://www.asgc.org