Guest guest Posted February 25, 2000 Report Share Posted February 25, 2000 Hi Folks, One of our own needs our help. I couldn't believe this was possible in the USA, but now I do. Please take 5 minutes of your time and call/email/write your Congressman and the FDA. Whether or not you believe in the Burzynski Treatment, I hope you believe that a brain tumor patient should have the freedom to seek the medical treatment of his or her own choice. Visit http://www.citizens.org/ They have a simple step-by-step procedure that allows you to write an email or print out a letter to your Congressman. Help support the parent's right to choose the medical treatment that they feel is in the best interests of their son. Thank you in advance for the Navarro family, Kurt, father of 11 dx 8/99 - diffuse intrinsic pontine glioma 10/19/99 - finished 3D conformal radiation,5400 rads 11/10/99 - started Burzynski treatment A10: 300 cc's (6 doses every 24 hours) AS2-1: 40 cc's (6 doses every 24 hours) 4 mg Dexamethasone daily and decreasing West Lafayette,IN (Home of '99 Purdue Women's B-Ball National Champs!) ====================================================================== From: " Walter " <pwalter@...> " nne Means " <means@...>, " Manchester Union Leader " <theul@...>, " Mainstreet " <mainstreet@...>, " Maine Public TV \ " Media Watch\ " " <greenman@...>, " Los Angeles Times, CA " <letter@...>, " LKBJ Radio, Austin, TX " <Klbjdudman@...>, " Liturgical Publ " <lpi@...>, " ListBot Verifier " <v-3B6174A837B2CC8F@...>, " Lincoln Journal Star " <oped@...>, " Lexington Herald-Leader " <hlnews@...>, " Lay Catholic Broadcasting Network " <lcbnrace@...>, " Late Edition, Sam Feist " <sam.feist@...>, " L. Brent Bozell III " <bbozell@...>, " KZSU, Palo Alto, CA " <releases@...>, " Eccleston " <KEcclest@...>, " KWTX-FM, Waco, TX " <M3994@...>, " KUSP-FM, Santa Clara, CA " <kusp@...>, " Kurt Fiech " <kfiech@...> Subject: Press Release Date: Fri, 25 Feb 2000 16:41:11 -0500 4-Year-Old Navarro is being ignored by HHS Head Donna Shalala and the National Media in his 5-Month Fight for Life Congressman Dan Burton Joins in This Little Boy's Fight for Medical Freedom for All Cancer Patients February 25, 2000. Houston, Texas- Navarro is awaiting a response from the Head of Health and Human Services, Donna Shalala. Ms. Shalala, whose agency oversees the FDA, has never even bothered to respond to a letter signed by all the Republican candidates for President, and other letters, asking that be allowed to be treated either as a special exception or under a newly created protocol for medulloblastoma. 's parents, Jim and Donna Navarro, refuse to subject to a life-threatening, permanently debilitating regimen of concurrent chemotherapy and irradiation to the little boy's brain. The Navarros have done their homework and do not believe it is in 's best interests to accept the medical consequences of this toxic regimen. The side effects, as revealed in the cutting-edge medical literature include hearing loss, mental retardation, profound physical deficits, and more-even death. The Navarros searched for and found a nontoxic treatment, which has none of these side effects. But the FDA refuses to allow to be treated with a nontoxic therapy and insists on giving him toxic chemotherapy and irradiation. The FDA has dug its heels in now for 5 months. Their stand is set in concrete: We don't care what the parents want. However, will die without treatment. As a US citizen, he can have only the treatment the FDA wants him to have. What makes less sense is that the therapy the Navarros want to have is being tested in FDA-approved clinical trials. Also, forms of this therapy are being tested in over 20 clinical trials in over 20 major cancer centers across the United States, all of which are NCI-funded. Despite pressure from extremely powerful politicians, the FDA will not relent. As a result, Representative Dan Burton, Chairman of the House Oversight Committee on Government Reform, has very recently submitted the " Navarro FDA Patient Rights Act. " This is emergency legislation, because doesn't have the years it would take for a normal bill to run the gauntlet of the Congress. But the mainstream press seems to be ignoring this powerful story that has implications for every single American. This story needs national exposure to help get this bill passed, and immediately. This bill will provide expanded access to clinical trials for all patients with cancer, and other diseases. No longer will these patients be forced to be subjected to chemotherapy, irradiation, or even a bone marrow transplant before they can seek treatment for cancer in a clinical trial. It is obvious the national media believes that a little Cuban boy with two homes who is healthy is more newsworthy than . Elian is more important than saving 's life. Elian also seems to be more important than medical freedom for all Americans. However, the American public may disagree. One of two men and one of three women will get cancer. Medical freedom of choice for cancer patients touches everyone's life. This is what Americans care about and want open discussions about, especially during an election year. The candidates and the media have been ignoring a topic that the American public is more interested in than any of the issues being discussed. See 's website: www.cancerbusters.com See stories on : www.citizens.org; www.naturalhealthline.com Contacts: pwalter@... and ritarow@... ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2000 Report Share Posted February 26, 2000 Dear Kurt, I would like to help and write but when I went to the website I found no such step by step instructions. Please tell us what you want us to do. JA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2000 Report Share Posted February 26, 2000 Dear Kurt, Sorry excuse last email I found the correct site, it helps to type it in perfectly. JA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2000 Report Share Posted February 27, 2000 > Sorry excuse last email I found the correct site, it helps to type it in > perfectly. Never ever *type* a URL into email copy/paste instead Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2001 Report Share Posted February 21, 2001 FYI, Lyn Redwood > > > > ++++++++++++ > > Autism Research Institute > > 4182 Avenue > > San Diego, California 92116 > > > > BERNARD RIMLAND, Ph.D., Director > > (619) 281-7165 > > > > February 12, 2001 > > > > PRESS RELEASE > > > > The Autism Explosion, the Vaccine Connection, and the > > Autism Research Institute’s Mercury Detoxification Consensus Conference > > February 9-11, 2001, Dallas, Texas > > > > An enormous and alarming unexplained increase in the prevalence of autism > is > > being reported, on an almost daily basis, in the U.S., the U.K., and > > elsewhere. > > > > California maintains what is probably the world’s best and most systematic > > database on autism and other developmental disabilities, which includes > > children who are formally diagnosed by strict criteria for acceptance into > a > > comprehensive entitlement program. California reports an increase in the > > prevalence of autism of over 1,000% (in autism, not mental retardation, > > epilepsy nor cerebral palsy) over a 20-year period. Similar enormous > > increases have been reported in New Jersey, and in several places in the > > U.K., in the Middle East, and in Asia. The increase is certainly not the > > result of greater awareness nor better diagnosis. > > > > While the reality of the increase is beyond reasonable doubt, there is > > great controversy over the cause. The most plausible cause relates to > > changes in the vaccination programs over the past two decades. These > > include: > > > > 1. The extraordinary increase in the number of vaccines given to children > > from birth to age two, which has risen from 8 in 1980 to 22 in 2000. > > > > 2. The amount of extremely toxic mercury (used as a preservative) in many > > vaccines. Some infants have received in one day as much as 100 times the > > amount of mercury the Environmental Protection Agency says is the maximum > > allowable daily exposure for an adult. Mercury is not only neurotoxic by > > itself, it also damages the immune system so the child becomes unable to > > protect itself against damage from the viruses in vaccines. > > > > 3. The combination of three vaccines, Measles, Mumps, Rubella, previously > > given singly, into one, the MMR. The prevalence increase started in the > > U.S. in the early 1980s, shortly after the triple-vaccine MMR shot was > > introduced, while the increase in the U.K. started 10 years later, soon > > after the triple MMR was introduced there. > > > > Much attention has been focused on the MMR shot itself, whereas in all > > probability it is a combination of the three factors listed above: the > > increasing number of vaccines, the large amount of > > mercury, and the inherent danger of the triple vaccine. (In a January, > 2001 > > article in the Journal of Adverse Drug Reactions, several British experts > > who were involved in the safety evaluation of the MMR vaccine stated that > > the vaccine safety testing had not been adequate and that the vaccine > should > > not have been licensed). > > > > The MMR vaccine is also especially suspect because laboratories in > England, > > Ireland, and Japan have found evidence of MMR vaccine viruses in the > > intestinal tracts of autistic children, but not in control group, > > non-autistic children. > > > > The role of mercury has come to light only in the past 18 months, after it > > was realized that the amount of mercury preservative in many vaccines > > (although not the MMR vaccine) is grossly in excess of the permissible > > standards. > > > > During the past year, a number of physicians from throughout the United > > States who have been working with autistic children have reported > extremely > > good results in improving the health and behavior of autistic children > when > > the mercury in the children’s bodies were removed by a systematic process > of > > detoxification. Some of these physicians, who have specialized in the > > treatment of autistic children for a number of years, and who have treated > > many hundreds of autistic children, report that no other treatment has > > brought about the remarkable improvement that they have seen in many cases > > of mercury detoxification. Detoxification is not simple, and there are > many > > competing detoxification protocols. > > > > In response to this situation, the Autism Research Institute convened a > > Consensus Conference on the Detoxification of Autistic Children in Dallas, > > Texas, February 9th through 11th, 2001. The attendees were 25 carefully > > selected physicians and scientists knowledgeable about mercury and mercury > > detoxification. The 15 physicians present included 7 who were parents of > > autistic children and who had detoxified their own children with excellent > > results. The physician attendees present had treated well over 3,000 > > patients for heavy metal poisoning, about 1,500 of them being autistic > > children. The chemists, toxicologists, and other scientists present had a > > combined total of almost 90 years of experience in studying the toxicology > > of mercury. > > > > The purpose of the meeting was to arrive at a consensus document which > > would delineate the safest and most effective methods of detoxifying > > autistic children. Nine candidate detoxification protocols, including > five > > submitted by non-attendees, were considered in detail by the conferees. > > > > The meeting was an outstanding success. Despite some initial concern that > > the various areas of disagreement would prove divisive, the participants > > resolved the controversial issues harmoniously and arrived at the > consensus > > position that was hoped for. > > > > The Autism Research Institute will issue its consensus report on the > > detoxification of autistic children at the earliest possible date--most > > likely in mid-March--after the participants have had an opportunity to > > review and approve the document. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2002 Report Share Posted June 28, 2002 " Any claim for compensation relating to a vaccine covered by the Program-Diphtheria, tetanus, pertussis [DTP, DtaP, DT, TT, Td] measles, mumps, rubella [MMR or any component], polio [OPV or IPV], hepatitis B, Haemophilus influenza type B [HiB], rotovirus and varicella-must be filed in the Program. Program claims must be filed within 3 years of the date of the onset of symptoms or, in death cases, within 2 years from the date of death or 4 years of the date of the injury, whichever comes first. " I don't see Prevnar on here. > GALVESTON FEDERAL JUDGE RULES THAT PARENTS CANNOT FILE SUIT AGAINST > VACCINE<?xml:namespace prefix = o ns = > " urn:schemas-microsoft-com:office:office " /> > > MANUFACTURERS WITHOUT FIRST BRINGING CHILD'S CLAIM TO VACCINE COURT > > > > > > A federal judge in Galveston, Texas has ruled against the > parental claims of a vaccine-injured child, dismissing those claims filed in > federal district court. The claim was brought on behalf of the parents for > " loss of consortium " due to an injury, specifically, autism, caused by > vaccines. The parents' derivative claim for loss of consortium is based on > their inability to enjoy the relationship they expected to have with their > child. > > > > Judge B. Kent explains in his ruling: " Simply put, > individuals who qualify as Program claimants must file petitions in the > Vaccine Court in order to pursue any vaccine-related claims at all. " (cite) > The message that Judge Kent is sending is clear: if parents hope to bring a > claim that is based on an injury caused by a vaccine, they must bring a > claim for their child in the Vaccine Court as directed by federal statute > within the time period defined by that statute. Parents must be vigilant in > pursuing their claims, and bring those claims on behalf of their children to > preserve any related claims they may have. > > > > The National Vaccine Injury Compensation Program (NVICP) was > established by Congress to compensate those persons who may be injured by > routine vaccinations. It requires any claim for compensation relating to a > vaccine covered by the NVICP to be filed in the Program. The NVICP created > the Vaccine Program Courts in Washington, D.C., which specialize in vaccine > injuries and, by law, are required to be the " first line " in determining > whether a vaccine-related claim is valid. Vaccine-related claims may be > brought in civil court after Program claims are decided, but only if a claim > is first brought in the Vaccine Program Court within 36 months of the onset > of the first symptoms of injury, or, in death cases, within 24 months from > the date of death or 48 months of the date of injury, whichever comes first. > > > > " Families should be aware of the NVICP's time limitations, and > make sure they consult with an attorney in time to preserve their claims, " > advises , lead attorney with The Vaccine Injury Alliance. > According to , " Attorneys who specialize in vaccine injury are > available to make sure that claims are brought in the proper court at the > proper time, but parents must seek out an attorney as soon as they suspect a > vaccine injury has occurred. " > > > > The Vaccine Injury Alliance (VIA) is an alliance of law firms > and legal professionals who are committed to helping families in obtaining > compensation for the devastating effects of vaccine-related injuries under > the National Vaccine Injury Compensation Program and in traditional Civil > Litigation. The VIA has extensive experience and considerable success in > both arenas and collectively has helped thousands of injured individuals in > all types of litigation. Currently the VIA represents hundreds of adults > and children from across the country who are seeking compensation for a wide > variety of vaccine related injuries. > > > > The VIA consists of the Law Firm, L.L.P. of > Houston, Texas; Shoemaker & Associates of Vienna, Virginia; Conway, Homer & > Chin-Caplan of Boston, Massachusetts; and Hitt * * Sell of > Houston, Texas. Each firm brings unique experience to the group in the > field of Vaccine Injury Law. The alliance is headed by , one > of Texas' leading plaintiff's personal injury firm. They have recovered > hundreds of millions of dollars for their clients. The firms Shoemaker & > Associates and Conway, Homer & Chin-Caplan have both been involved in > Vaccine Litigation even before the inception of the NVICP in the mid-1980's. > Collectively, they have over 50 years of extensive experience handling cases > involving vaccine-related injuries. Jeff Sell, an attorney with the > alliance, is also the father of twin boys with autism and is involved with > several autism organizations. > > > > For more information on the Vaccine Injury Alliance, the NVICP, > and to view a copy of Judge Kent's order, please visit the VIA website at > <http://www.vaccineinjury.org/> www.vaccineinjury.org or call > 1-888-709-6674. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2002 Report Share Posted June 29, 2002 > I though that autism is not considered, by mainstream, a condition that can be caused by vaccines; So parents of ASD kids do not even meet the criteria to claim thought vaccine court. Just a thought. Yes, nice kangaroo court system isn't it? Turn kid autistic, can't make claim. Try to sue, can't sue because you didn't make claim. Andy . . . . . . . . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2002 Report Share Posted June 29, 2002 I though that autism is not considered, by mainstream, a condition that can be caused by vaccines; So parents of ASD kids do not even meet the criteria to claim thought vaccine court. Just a thought. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Tami, This is a great letter!! I will be forwarding this out.. a lot! Donna > > Hi! All of us at Mercury Ban would like to thank you in advance > for the inclusion of our Press Release announcement in your > getting the word out endeavors. Appreciate any forwarding > or sharing of this and wish you a blessed day!! > > Light and Love, Tami > > > For Immediate Release: January 14, 2005 > > CONTACT: > Tami Freedman, Director > MERCURY BAN > (423) 704-2466, TamiFreedman@a... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 --- What is the Bill called Weldon-????? HR????? Thanks, Holly In , " Donna " <donna.arnold@g...> wrote: > > Tami, > > This is a great letter!! I will be forwarding this out.. a lot! > > > Donna > > > > > > > > Hi! All of us at Mercury Ban would like to thank you in advance > > for the inclusion of our Press Release announcement in your > > getting the word out endeavors. Appreciate any forwarding > > or sharing of this and wish you a blessed day!! > > > > Light and Love, Tami > > > > > > For Immediate Release: January 14, 2005 > > > > CONTACT: > > Tami Freedman, Director > > MERCURY BAN > > (423) 704-2466, TamiFreedman@a... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 Proud Member of the Autism Collaboration Friday, February 6, 2009 FOR IMMEDIATE RELEASE: Contact: Carol Stott, PhD drcarolstott@... MAJOR PAPER RELEASED ADDRESSING THE IMMUNIZATION ACTION COALITION AND THE DR. ARI BROWN ARTICLE " CLEAR ANSWERS AND SMART ADVICE ABOUT YOUR BABY'S SHOTS " Last week the General Medical Council's Fitness to Practice Panel heard the last of the evidence in defense of three doctors who dared to investigate bowel disease in children with autism. Within days, Dr. Wakefield returns to the public arena with a gem – and the gloves are off. Major autism organizations worldwide have endorsed the detailed " Response to Dr. Ari Brown and the Immunization Action Coalition. " The response was prompted by an ill-prepared and factually inaccurate document produced by Dr. Ari Brown, a US pediatrician, titled “Clear Answers and Smart Advice About Your Baby’s Shots.” The Wakefield et al. response provides fully referenced coverage of the real facts behind the issues that concern parents, doctors and scientists for whom repetitious government propaganda and intellectual cowardice is no longer good enough. The response points to the current position of the US Institute of Medicine on the possible causes of autism ( " vaccines are on the table " ) and alludes to the notorious Simpsonwood meeting in which data were manipulated to remove an apparent effect of vaccine exposure on autism onset. Readers are invited to ponder on the reasoning behind mass vaccination of very young babies against sexually transmitted disease ( " …because we can " ). How is vaccine safety evaluated….and what is the real position on mercury toxicity? Are all of our vaccines mercury-free…and what about aluminium? And that Japanese study? Did it prove that MMR is safe? Point-by-point, this reasoned, well-referenced and important response by Dr. Wakefield and his colleagues and collaborators at Thoughtful House addresses these issues and many more. It concludes by stating that parents looking for sound advice on vaccine issues, frankly, deserve better. You may link to the downloadable pdf, " Response to Dr. Ari Brown and the Immunization Action Coalition " by J Wakefield, MB, BS, FRCS, FRCPath; Mark Blaxill, MBA; Boyd Haley, PhD; Anissa Ryland; Hollenbeck, BS; Jane ; Moody, JD; Carol Stott, PhD at http://www.thoughtfulhouse.org/pr/dr-ari-brown-response.htm Please print and share the document. Sample cover letters to attach and take to your physician or legislative health staffer will be posted to the Autism One website soon. To be removed from this list please reply with " Remove " in the subject line. Quote Link to comment Share on other sites More sharing options...
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