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Hi Folks,

One of our own needs our help. I couldn't believe this was possible in the

USA, but now I do.

Please take 5 minutes of your time and call/email/write your Congressman and

the FDA. Whether or not you believe in the Burzynski Treatment, I hope you

believe that a brain tumor patient should have the freedom to seek the

medical treatment of his or her own choice.

Visit http://www.citizens.org/ They have a simple step-by-step procedure

that allows you to write an email or print out a letter to your Congressman.

Help support the parent's right to choose the medical treatment that they

feel is in the best interests of their son.

Thank you in advance for the Navarro family,

Kurt, father of 11

dx 8/99 - diffuse intrinsic pontine glioma

10/19/99 - finished 3D conformal radiation,5400 rads

11/10/99 - started Burzynski treatment

A10: 300 cc's (6 doses every 24 hours)

AS2-1: 40 cc's (6 doses every 24 hours)

4 mg Dexamethasone daily and decreasing

West Lafayette,IN (Home of '99 Purdue Women's B-Ball National Champs!)

======================================================================

From: " Walter " <pwalter@...>

" nne Means " <means@...>, " Manchester Union Leader "

<theul@...>, " Mainstreet " <mainstreet@...>, " Maine Public TV \ " Media

Watch\ " " <greenman@...>, " Los Angeles Times, CA "

<letter@...>, " LKBJ Radio, Austin, TX " <Klbjdudman@...>,

" Liturgical Publ " <lpi@...>, " ListBot Verifier "

<v-3B6174A837B2CC8F@...>, " Lincoln Journal Star " <oped@...>,

" Lexington Herald-Leader " <hlnews@...>, " Lay Catholic Broadcasting

Network " <lcbnrace@...>, " Late Edition, Sam Feist " <sam.feist@...>,

" L. Brent Bozell III " <bbozell@...>, " KZSU, Palo Alto, CA "

<releases@...>, " Eccleston " <KEcclest@...>, " KWTX-FM,

Waco, TX " <M3994@...>, " KUSP-FM, Santa Clara, CA "

<kusp@...>, " Kurt Fiech " <kfiech@...>

Subject: Press Release

Date: Fri, 25 Feb 2000 16:41:11 -0500

4-Year-Old Navarro is being ignored by HHS Head Donna Shalala and

the National Media in his 5-Month Fight for Life

Congressman Dan Burton Joins in This Little Boy's Fight for Medical Freedom

for All Cancer Patients

February 25, 2000. Houston, Texas- Navarro is awaiting a response from

the Head of Health and Human Services, Donna Shalala. Ms. Shalala, whose

agency oversees the FDA, has never even bothered to respond to a letter

signed by all the Republican candidates for President, and other letters,

asking that be allowed to be treated either as a special exception or

under a newly created protocol for medulloblastoma.

's parents, Jim and Donna Navarro, refuse to subject to a

life-threatening, permanently debilitating regimen of concurrent

chemotherapy and irradiation to the little boy's brain. The Navarros have

done their homework and do not believe it is in 's best interests to

accept the medical consequences of this toxic regimen. The side effects, as

revealed in the cutting-edge medical literature include hearing loss, mental

retardation, profound physical deficits, and more-even death. The Navarros

searched for and found a nontoxic treatment, which has none of these side

effects. But the FDA refuses to allow to be treated with a nontoxic

therapy and insists on giving him toxic chemotherapy and irradiation.

The FDA has dug its heels in now for 5 months. Their stand is set in

concrete: We don't care what the parents want. However, will die

without treatment. As a US citizen, he can have only the treatment the FDA

wants him to have. What makes less sense is that the therapy the Navarros

want to have is being tested in FDA-approved clinical trials. Also,

forms of this therapy are being tested in over 20 clinical trials in over 20

major cancer centers across the United States, all of which are NCI-funded.

Despite pressure from extremely powerful politicians, the FDA will not

relent. As a result, Representative Dan Burton, Chairman of the House

Oversight Committee on Government Reform, has very recently submitted the

" Navarro FDA Patient Rights Act. " This is emergency legislation,

because doesn't have the years it would take for a normal bill to run

the gauntlet of the Congress.

But the mainstream press seems to be ignoring this powerful story that has

implications for every single American. This story needs national exposure

to help get this bill passed, and immediately. This bill will provide

expanded access to clinical trials for all patients with cancer, and other

diseases. No longer will these patients be forced to be subjected to

chemotherapy, irradiation, or even a bone marrow transplant before they can

seek treatment for cancer in a clinical trial.

It is obvious the national media believes that a little Cuban boy with two

homes who is healthy is more newsworthy than . Elian is more important

than saving 's life. Elian also seems to be more important than

medical freedom for all Americans.

However, the American public may disagree. One of two men and one of three

women will get cancer. Medical freedom of choice for cancer patients touches

everyone's life. This is what Americans care about and want open discussions

about, especially during an election year. The candidates and the media have

been ignoring a topic that the American public is more interested in than

any of the issues being discussed.

See 's website: www.cancerbusters.com

See stories on : www.citizens.org; www.naturalhealthline.com

Contacts: pwalter@... and ritarow@...

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

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  • 11 months later...

FYI,

Lyn Redwood

> >

> > ++++++++++++

> > Autism Research Institute

> > 4182 Avenue

> > San Diego, California 92116

> >

> > BERNARD RIMLAND, Ph.D., Director

> > (619) 281-7165

> >

> > February 12, 2001

> >

> > PRESS RELEASE

> >

> > The Autism Explosion, the Vaccine Connection, and the

> > Autism Research Institute’s Mercury Detoxification Consensus Conference

> > February 9-11, 2001, Dallas, Texas

> >

> > An enormous and alarming unexplained increase in the prevalence of

autism

> is

> > being reported, on an almost daily basis, in the U.S., the U.K., and

> > elsewhere.

> >

> > California maintains what is probably the world’s best and most

systematic

> > database on autism and other developmental disabilities, which includes

> > children who are formally diagnosed by strict criteria for acceptance

into

> a

> > comprehensive entitlement program. California reports an increase in

the

> > prevalence of autism of over 1,000% (in autism, not mental retardation,

> > epilepsy nor cerebral palsy) over a 20-year period. Similar enormous

> > increases have been reported in New Jersey, and in several places in the

> > U.K., in the Middle East, and in Asia. The increase is certainly not

the

> > result of greater awareness nor better diagnosis.

> >

> > While the reality of the increase is beyond reasonable doubt, there is

> > great controversy over the cause. The most plausible cause relates to

> > changes in the vaccination programs over the past two decades. These

> > include:

> >

> > 1. The extraordinary increase in the number of vaccines given to

children

> > from birth to age two, which has risen from 8 in 1980 to 22 in 2000.

> >

> > 2. The amount of extremely toxic mercury (used as a preservative) in

many

> > vaccines. Some infants have received in one day as much as 100 times

the

> > amount of mercury the Environmental Protection Agency says is the

maximum

> > allowable daily exposure for an adult. Mercury is not only neurotoxic

by

> > itself, it also damages the immune system so the child becomes unable to

> > protect itself against damage from the viruses in vaccines.

> >

> > 3. The combination of three vaccines, Measles, Mumps, Rubella,

previously

> > given singly, into one, the MMR. The prevalence increase started in

the

> > U.S. in the early 1980s, shortly after the triple-vaccine MMR shot was

> > introduced, while the increase in the U.K. started 10 years later, soon

> > after the triple MMR was introduced there.

> >

> > Much attention has been focused on the MMR shot itself, whereas in all

> > probability it is a combination of the three factors listed above: the

> > increasing number of vaccines, the large amount of

> > mercury, and the inherent danger of the triple vaccine. (In a January,

> 2001

> > article in the Journal of Adverse Drug Reactions, several British

experts

> > who were involved in the safety evaluation of the MMR vaccine stated

that

> > the vaccine safety testing had not been adequate and that the vaccine

> should

> > not have been licensed).

> >

> > The MMR vaccine is also especially suspect because laboratories in

> England,

> > Ireland, and Japan have found evidence of MMR vaccine viruses in the

> > intestinal tracts of autistic children, but not in control group,

> > non-autistic children.

> >

> > The role of mercury has come to light only in the past 18 months, after

it

> > was realized that the amount of mercury preservative in many vaccines

> > (although not the MMR vaccine) is grossly in excess of the permissible

> > standards.

> >

> > During the past year, a number of physicians from throughout the United

> > States who have been working with autistic children have reported

> extremely

> > good results in improving the health and behavior of autistic children

> when

> > the mercury in the children’s bodies were removed by a systematic

process

> of

> > detoxification. Some of these physicians, who have specialized in the

> > treatment of autistic children for a number of years, and who have

treated

> > many hundreds of autistic children, report that no other treatment has

> > brought about the remarkable improvement that they have seen in many

cases

> > of mercury detoxification. Detoxification is not simple, and there are

> many

> > competing detoxification protocols.

> >

> > In response to this situation, the Autism Research Institute convened a

> > Consensus Conference on the Detoxification of Autistic Children in

Dallas,

> > Texas, February 9th through 11th, 2001. The attendees were 25 carefully

> > selected physicians and scientists knowledgeable about mercury and

mercury

> > detoxification. The 15 physicians present included 7 who were parents

of

> > autistic children and who had detoxified their own children with

excellent

> > results. The physician attendees present had treated well over 3,000

> > patients for heavy metal poisoning, about 1,500 of them being autistic

> > children. The chemists, toxicologists, and other scientists present had

a

> > combined total of almost 90 years of experience in studying the

toxicology

> > of mercury.

> >

> > The purpose of the meeting was to arrive at a consensus document which

> > would delineate the safest and most effective methods of detoxifying

> > autistic children. Nine candidate detoxification protocols, including

> five

> > submitted by non-attendees, were considered in detail by the conferees.

> >

> > The meeting was an outstanding success. Despite some initial concern

that

> > the various areas of disagreement would prove divisive, the participants

> > resolved the controversial issues harmoniously and arrived at the

> consensus

> > position that was hoped for.

> >

> > The Autism Research Institute will issue its consensus report on the

> > detoxification of autistic children at the earliest possible date--most

> > likely in mid-March--after the participants have had an opportunity to

> > review and approve the document.

> >

> >

> >

>

>

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  • 1 year later...
Guest guest

" Any claim for compensation relating to a vaccine covered by the

Program-Diphtheria, tetanus, pertussis [DTP, DtaP, DT, TT, Td]

measles, mumps, rubella [MMR or any component], polio [OPV or IPV],

hepatitis B, Haemophilus influenza type B [HiB], rotovirus and

varicella-must be filed in the Program. Program claims must be filed

within 3 years of the date of the onset of symptoms or, in death

cases, within 2 years from the date of death or 4 years of the date

of the injury, whichever comes first. "

I don't see Prevnar on here.

> GALVESTON FEDERAL JUDGE RULES THAT PARENTS CANNOT FILE SUIT AGAINST

> VACCINE<?xml:namespace prefix = o ns =

> " urn:schemas-microsoft-com:office:office " />

>

> MANUFACTURERS WITHOUT FIRST BRINGING CHILD'S CLAIM TO VACCINE COURT

>

>

>

>

>

> A federal judge in Galveston, Texas has ruled against

the

> parental claims of a vaccine-injured child, dismissing those claims

filed in

> federal district court. The claim was brought on behalf of the

parents for

> " loss of consortium " due to an injury, specifically, autism, caused

by

> vaccines. The parents' derivative claim for loss of consortium is

based on

> their inability to enjoy the relationship they expected to have

with their

> child.

>

>

>

> Judge B. Kent explains in his ruling: " Simply

put,

> individuals who qualify as Program claimants must file petitions in

the

> Vaccine Court in order to pursue any vaccine-related claims at

all. " (cite)

> The message that Judge Kent is sending is clear: if parents hope to

bring a

> claim that is based on an injury caused by a vaccine, they must

bring a

> claim for their child in the Vaccine Court as directed by federal

statute

> within the time period defined by that statute. Parents must be

vigilant in

> pursuing their claims, and bring those claims on behalf of their

children to

> preserve any related claims they may have.

>

>

>

> The National Vaccine Injury Compensation Program

(NVICP) was

> established by Congress to compensate those persons who may be

injured by

> routine vaccinations. It requires any claim for compensation

relating to a

> vaccine covered by the NVICP to be filed in the Program. The NVICP

created

> the Vaccine Program Courts in Washington, D.C., which specialize in

vaccine

> injuries and, by law, are required to be the " first line " in

determining

> whether a vaccine-related claim is valid. Vaccine-related claims

may be

> brought in civil court after Program claims are decided, but only

if a claim

> is first brought in the Vaccine Program Court within 36 months of

the onset

> of the first symptoms of injury, or, in death cases, within 24

months from

> the date of death or 48 months of the date of injury, whichever

comes first.

>

>

>

> " Families should be aware of the NVICP's time

limitations, and

> make sure they consult with an attorney in time to preserve their

claims, "

> advises , lead attorney with The Vaccine Injury

Alliance.

> According to , " Attorneys who specialize in vaccine injury

are

> available to make sure that claims are brought in the proper court

at the

> proper time, but parents must seek out an attorney as soon as they

suspect a

> vaccine injury has occurred. "

>

>

>

> The Vaccine Injury Alliance (VIA) is an alliance of law

firms

> and legal professionals who are committed to helping families in

obtaining

> compensation for the devastating effects of vaccine-related

injuries under

> the National Vaccine Injury Compensation Program and in traditional

Civil

> Litigation. The VIA has extensive experience and considerable

success in

> both arenas and collectively has helped thousands of injured

individuals in

> all types of litigation. Currently the VIA represents hundreds of

adults

> and children from across the country who are seeking compensation

for a wide

> variety of vaccine related injuries.

>

>

>

> The VIA consists of the Law Firm,

L.L.P. of

> Houston, Texas; Shoemaker & Associates of Vienna, Virginia; Conway,

Homer &

> Chin-Caplan of Boston, Massachusetts; and Hitt * * Sell of

> Houston, Texas. Each firm brings unique experience to the group in

the

> field of Vaccine Injury Law. The alliance is headed by

, one

> of Texas' leading plaintiff's personal injury firm. They have

recovered

> hundreds of millions of dollars for their clients. The firms

Shoemaker &

> Associates and Conway, Homer & Chin-Caplan have both been involved

in

> Vaccine Litigation even before the inception of the NVICP in the

mid-1980's.

> Collectively, they have over 50 years of extensive experience

handling cases

> involving vaccine-related injuries. Jeff Sell, an attorney with the

> alliance, is also the father of twin boys with autism and is

involved with

> several autism organizations.

>

>

>

> For more information on the Vaccine Injury Alliance,

the NVICP,

> and to view a copy of Judge Kent's order, please visit the VIA

website at

> <http://www.vaccineinjury.org/> www.vaccineinjury.org or call

> 1-888-709-6674.

>

>

>

>

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Guest guest

> I though that autism is not considered, by mainstream, a condition

that can be caused by vaccines; So parents of ASD kids do not even

meet the criteria to claim thought vaccine court. Just a thought.

Yes, nice kangaroo court system isn't it?

Turn kid autistic, can't make claim.

Try to sue, can't sue because you didn't make claim.

Andy . . . . . . . . .

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Guest guest

I though that autism is not considered, by mainstream, a condition that can be

caused by vaccines; So parents of ASD kids do not even meet the criteria to

claim thought vaccine court. Just a thought.

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  • 2 years later...

Tami,

This is a great letter!! I will be forwarding this out.. a lot!

Donna

>

> Hi! All of us at Mercury Ban would like to thank you in advance

> for the inclusion of our Press Release announcement in your

> getting the word out endeavors. Appreciate any forwarding

> or sharing of this and wish you a blessed day!!

>

> Light and Love, Tami

>

>

> For Immediate Release: January 14, 2005

>

> CONTACT:

> Tami Freedman, Director

> MERCURY BAN

> (423) 704-2466, TamiFreedman@a...

>

>

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---

What is the Bill called Weldon-????? HR?????

Thanks, Holly

In , " Donna " <donna.arnold@g...> wrote:

>

> Tami,

>

> This is a great letter!! I will be forwarding this out.. a lot!

>

>

> Donna

>

>

>

>

> >

> > Hi! All of us at Mercury Ban would like to thank you in advance

> > for the inclusion of our Press Release announcement in your

> > getting the word out endeavors. Appreciate any forwarding

> > or sharing of this and wish you a blessed day!!

> >

> > Light and Love, Tami

> >

> >

> > For Immediate Release: January 14, 2005

> >

> > CONTACT:

> > Tami Freedman, Director

> > MERCURY BAN

> > (423) 704-2466, TamiFreedman@a...

> >

> >

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  • 4 years later...

Proud Member of the Autism Collaboration

Friday, February 6, 2009

FOR IMMEDIATE RELEASE:

Contact: Carol Stott, PhD

drcarolstott@...

MAJOR PAPER RELEASED ADDRESSING THE IMMUNIZATION ACTION COALITION AND THE DR. ARI BROWN ARTICLE " CLEAR ANSWERS AND SMART ADVICE ABOUT YOUR BABY'S SHOTS "

Last week the General Medical Council's Fitness to Practice Panel heard the last of the evidence in defense of three doctors who dared to investigate bowel disease in children with autism. Within days, Dr. Wakefield returns to the public arena with a gem – and the gloves are off.

Major autism organizations worldwide have endorsed the detailed " Response to Dr. Ari Brown and the Immunization Action Coalition. " The response was prompted by an ill-prepared and factually inaccurate document produced by Dr. Ari Brown, a US pediatrician, titled “Clear Answers and Smart Advice About Your Baby’s Shots.”

The Wakefield et al. response provides fully referenced coverage of the real facts behind the issues that concern parents, doctors and scientists for whom repetitious government propaganda and intellectual cowardice is no longer good enough. The response points to the current position of the US Institute of Medicine on the possible causes of autism ( " vaccines are on the table " ) and alludes to the notorious Simpsonwood meeting in which data were manipulated to remove an apparent effect of vaccine exposure on autism onset. Readers are invited to ponder on the reasoning behind mass vaccination of very young babies against sexually transmitted disease ( " …because we can " ). How is vaccine safety evaluated….and what is the real position on mercury toxicity? Are all of our vaccines mercury-free…and what about aluminium? And that Japanese study? Did it prove that MMR is safe?

Point-by-point, this reasoned, well-referenced and important response by Dr. Wakefield and his colleagues and collaborators at Thoughtful House addresses these issues and many more. It concludes by stating that parents looking for sound advice on vaccine issues, frankly, deserve better.

You may link to the downloadable pdf,

" Response to Dr. Ari Brown and the Immunization Action Coalition " by

J Wakefield, MB, BS, FRCS, FRCPath; Mark Blaxill, MBA; Boyd Haley, PhD;

Anissa Ryland; Hollenbeck, BS; Jane ; Moody, JD; Carol Stott, PhD

at http://www.thoughtfulhouse.org/pr/dr-ari-brown-response.htm

Please print and share the document. Sample cover letters to attach and take to your physician or legislative health staffer will be posted to the Autism One website soon.

To be removed from this list please reply with " Remove " in the subject line.

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