Introduction New Member

[Guest guest]

Hullo Peggy. And Welcome. Sorry to hear that you are having to take care of a vaccine damaged granddaughter, If we knew then what we know now...................... And also someone just mentioned about the guilt of parenting, and I want to add that some or most of that is probably due to some level of vaccine injury in the children. Not our lack of parental knack or care. All kids are different, but some of these wilder kids just cant help it. They have been hurt by these vaccines in so many known and unknown ways. And that fact can make ya livid too. Dont give yours kids any of their mind altering drugs, if they have autism or not, or just some personality problem the doctors or schools wants to medicate them with. I was shocked to hear most foster kids are on 7 or more kinds. OMG OMG And keep ALL NEEDLES and oral crap vacs far far away from them. Glad Day ~ Karla in

IL

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hullo Peggy. And Welcome. Sorry to hear that you are having to take care of a vaccine damaged granddaughter, If we knew then what we know now...................... And also someone just mentioned about the guilt of parenting, and I want to add that some or most of that is probably due to some level of vaccine injury in the children. Not our lack of parental knack or care. All kids are different, but some of these wilder kids just cant help it. They have been hurt by these vaccines in so many known and unknown ways. And that fact can make ya livid too. Dont give yours kids any of their mind altering drugs, if they have autism or not, or just some personality problem the doctors or schools wants to medicate them with. I was shocked to hear most foster kids are on 7 or more kinds. OMG OMG And keep ALL NEEDLES and oral crap vacs far far away from them. Glad Day ~ Karla in

IL

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hi Karla,

My granddaughter is 13years old, aspergers. Her Dad was the one who

had the reaction to DPT back in the 70s. He never quite made it in

life. Alcohol, and drug problems, lots of trouble in school. My sense

is it was in the 70's when they added the MMR to the schedule. This

is when the add/adhd's started showing up. When I rushed hie to the

hospital they tried to tell me he was a near miss SIDS cause he

stopped breathing. I remember I had just turned 18 but I was no

dummy. I told them it was the vaccine, back then I knew nothing other

than my instincts. When i brought him back for his next checkup at 4

mos the Ped wanted to give him another. I said no way are you giving

my kid another shot. After that he started with chronic ear

infections. Never went back to the Ped, always brought him to the ER.

When it came time to start school I changed MD's. He had to do a

catch up schedule. I refused anymore DPT. They gave him 1 MMR and the

inactivated polio cause i refused the live one. They gave me a little

card to bring to the school I forged the shot record and put the MD's

initials on it so He never got the rest. My second son never got a

vaccine until he had to go to school. I would not let them give him

the DPT either. Back them I believe they only got DPT, MMR and polio.

I would love to know how many of each they got back them. I am pretty

sure they only got four DPT not 5, 1 MMR, and I'm not sure how many

polio.

When I took custody of my granddaughter I never allowed them to give

her anymore vaccines. She was 2.5 when i got her. She never got the

last DPT, MMR, or Polio. She was just like her dad, constant ear

infections, yeast, lost speech, constipation. She did not start

talking again until she was 4 years old. She also had convulsions

after her DPT.

Its been hell with the school systems, I never would allow

medications, had DDS called on me, and fought them every step of the

way. DSS never got in because I told them to get a warrant. Refusing

to drug my child is not a crime. They never had any formal Dx on her

to justify drugs because I never allowed a school shrink near her. I

had all her testing done privately. I was one step ahead of them

everyway. This world is becoming a very scary place to live in.

Peggy

>

> Hullo Peggy. And Welcome. Sorry to hear that you are having to take

care of a vaccine damaged granddaughter, If we knew then what we

know now......................

> And also someone just mentioned about the guilt of parenting,

and I want to add that some or most of that is probably due to some

level of vaccine injury in the children. Not our lack of parental

knack or care. All kids are different, but some of these wilder kids

just cant help it. They have been hurt by these vaccines in so many

known and unknown ways.

> And that fact can make ya livid too. Dont give yours kids any of

their mind altering drugs, if they have autism or not, or just some

personality problem the doctors or schools wants to medicate them

with. I was shocked to hear most foster kids are on 7 or more kinds.

OMG OMG

> And keep ALL NEEDLES and oral crap vacs far far away from them.

> Glad Day ~ Karla in IL

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

[Guest guest]

Hi Karla,

My granddaughter is 13years old, aspergers. Her Dad was the one who

had the reaction to DPT back in the 70s. He never quite made it in

life. Alcohol, and drug problems, lots of trouble in school. My sense

is it was in the 70's when they added the MMR to the schedule. This

is when the add/adhd's started showing up. When I rushed hie to the

hospital they tried to tell me he was a near miss SIDS cause he

stopped breathing. I remember I had just turned 18 but I was no

dummy. I told them it was the vaccine, back then I knew nothing other

than my instincts. When i brought him back for his next checkup at 4

mos the Ped wanted to give him another. I said no way are you giving

my kid another shot. After that he started with chronic ear

infections. Never went back to the Ped, always brought him to the ER.

When it came time to start school I changed MD's. He had to do a

catch up schedule. I refused anymore DPT. They gave him 1 MMR and the

inactivated polio cause i refused the live one. They gave me a little

card to bring to the school I forged the shot record and put the MD's

initials on it so He never got the rest. My second son never got a

vaccine until he had to go to school. I would not let them give him

the DPT either. Back them I believe they only got DPT, MMR and polio.

I would love to know how many of each they got back them. I am pretty

sure they only got four DPT not 5, 1 MMR, and I'm not sure how many

polio.

When I took custody of my granddaughter I never allowed them to give

her anymore vaccines. She was 2.5 when i got her. She never got the

last DPT, MMR, or Polio. She was just like her dad, constant ear

infections, yeast, lost speech, constipation. She did not start

talking again until she was 4 years old. She also had convulsions

after her DPT.

Its been hell with the school systems, I never would allow

medications, had DDS called on me, and fought them every step of the

way. DSS never got in because I told them to get a warrant. Refusing

to drug my child is not a crime. They never had any formal Dx on her

to justify drugs because I never allowed a school shrink near her. I

had all her testing done privately. I was one step ahead of them

everyway. This world is becoming a very scary place to live in.

Peggy

>

> Hullo Peggy. And Welcome. Sorry to hear that you are having to take

care of a vaccine damaged granddaughter, If we knew then what we

know now......................

> And also someone just mentioned about the guilt of parenting,

and I want to add that some or most of that is probably due to some

level of vaccine injury in the children. Not our lack of parental

knack or care. All kids are different, but some of these wilder kids

just cant help it. They have been hurt by these vaccines in so many

known and unknown ways.

> And that fact can make ya livid too. Dont give yours kids any of

their mind altering drugs, if they have autism or not, or just some

personality problem the doctors or schools wants to medicate them

with. I was shocked to hear most foster kids are on 7 or more kinds.

OMG OMG

> And keep ALL NEEDLES and oral crap vacs far far away from them.

> Glad Day ~ Karla in IL

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

[Guest guest]

Hi everybody & Happy Mother's Day to all of you extra-special moms!

My name is Diane and I live in Streetsboro. I have had an in-home daycare business for 24-plus years. I have recently "retired" from this and went into "special needs" tutoring & respite care at the parents home. I work for a wonderful lady and her 2 sons who are autistic. This has been more of a blessing and more rewarding for myself than the 24 yrs. combined of daycare! I am so in love with these boys! I look forward to seeing them every week. I just brought the younger child to my house to see my dogs litter of puppies and when I heard him laugh, an actual child's belly laugh, I almost cried! He loved those puppies so he stayed over for awhile and played with them.

I, myself, have 3 children who are now on their own, and have been married for 29 yrs.

I am offering my respite care to other families that may be interested in my services. If you need to get out for shoppping trips, coffee with the girls, dinner with your significant other, or anything else, or just would like me to work with your child, ( flashcards, books, music, walks, etc.), just e-mail me and I would love to talk with you! I would also be available to accompany you to your child's doctor's visits or therapy.

I am not here to "sell" my services. I want to learn as much as I can about Autism. I just want to be of help to any family out there, I see the needs of the parents and I am available to be of service to you.

Feel free to e-mail me and I will gladly give you my phone no.

It's wonderful to be a part of your group and I am looking forward to getting to know you better and gain more knowledge.

Happy Mother's Day once again to all of you!

Diane

dlyzen@...

[Guest guest]

Welcome to the group! Feel free to join in whenever you like. Haircutting was an especially stressful event at our house. I have two boys with HFA and both of them had issues with getting their hair cut. I had my older dd hold my oldest ds down when he was a toddler just so we could cut his hair. It was so bad. My younger ds can have it cut but he complains the whole time and is pretty miserable. My friend has a ds with more severe autism and they end up shaving his head because trying to cut it is impossible. You might want to talk to an OT sometime about ways to desensitize her. It might help.

Roxanna

Autism Happens

( ) Introduction new member

Hello, I have a 4 year old daughter. We have not had a dignosis as of yet of Asberger's,but she has many symptoms of the disorder. We are in the process of getting an appointment for, the assessment.

I have so many concerns,and fears with this. As a parent you always hope and pray your child will be born normal and healthy. Then later; you begin to see signs that don't seem right,and then it's like a bomb is dropped and you are left grasping every piece of material you can find to help your child to be productive,and later independent.

My daughter is 4 as I said she isn't potty triained yet, and has no interest. There are times she won't wear the panties,she can't stand certain materials,she will only wear cotton. Sometimes even cotton material is hard to keep on her. We have had numerous dentist treatment because she can't stand for the tooth brush to touch her gums,I have to keep her hair cut short she doesn't like her hair brushed,it's like it really bothers her,and I am not rough in brushing her hair,I have to use detangler her hair is very fine,and tangles easy anyway.

One thing I have read is that most children with Asbergers have one focus she has many. She loves horses,cats,dogs,butterflies,and many other things. She would rather chase butterflies than play at the play ground with other children. She isn't social with others. She is very

attached to me,she doesn't do well with strangers. I worry so much about when she starts school how this will all unfold for her. She does very well with her brother and sister,(brother is 10 and sister is 15)She knows their friends by name,she seems to do well with adults but other children she is not interested. She plays by herself most of the time. It breaks my heart to watch other children play,and for her to sit to herself.

I took her to a play place,I try to do this at least a couple times a week,she made a friend there,She talked to this little

girl,and everything seemed to go so well,I watched her closely then all of a sudden I watched this broad smile turn to a frown,she turned her back toward the little girl,I thought for a brief moment we are doing

better but I don't know what happened it was so sudden. (I'm crying as I type this) She seems to know things she seems to young to know,she remembers things from a year ago,it is amazing to me,as it is hard for me to remember from day to day. I wanted to give you some idea of what I am dealing with I am sorry if I have rambled. I appreicate the oppertunity to be apart of this group. I welcome any comments,or advice anyone has.

Thank you,

T. Green

Wanna slim down for summer? Go to America Takes it Off to learn how.

[Guest guest]

Thank you, Roxanna! I am thankful for this group. I haven't been a memeber long but so far the concerns of other parents and their children I see I am really not alone. It feels good to know that I have a place to talk,ask questions and vent. Without someone making me feel less of a person. (sadly there are many out there that do this) Thank you,again for this group its such a help,and a blessing to my life!

From: Roxanna <MadIdeas@...>Subject: Re: ( ) Introduction new member Date: Wednesday, June 3, 2009, 8:26 AM

Welcome to the group! Feel free to join in whenever you like. Haircutting was an especially stressful event at our house. I have two boys with HFA and both of them had issues with getting their hair cut. I had my older dd hold my oldest ds down when he was a toddler just so we could cut his hair. It was so bad. My younger ds can have it cut but he complains the whole time and is pretty miserable. My friend has a ds with more severe autism and they end up shaving his head because trying to cut it is impossible. You might want to talk to an OT sometime about ways to desensitize her. It might help.

RoxannaAutism Happens

( ) Introduction new member

Hello, I have a 4 year old daughter. We have not had a dignosis as of yet of Asberger's,but she has many symptoms of the disorder. We are in the process of getting an appointment for, the assessment.I have so many concerns,and fears with this. As a parent you always hope and pray your child will be born normal and healthy. Then later; you begin to see signs that don't seem right,and then it's like a bomb is dropped and you are left grasping every piece of material you can find to help your child to be productive,and later independent. My daughter is 4 as I said she isn't potty triained yet, and has no interest. There are times she won't wear the panties,she can't stand certain materials,she will only wear cotton. Sometimes even cotton material is hard to keep on her. We have had numerous dentist treatment because she can't stand for the tooth brush to touch her gums,I have to keep her hair cut short she doesn't like her hair

brushed,it's like it really bothers her,and I am not rough in brushing her hair,I have to use detangler her hair is very fine,and tangles easy anyway..One thing I have read is that most children with Asbergers have one focus she has many. She loves horses,cats, dogs,butterflies ,and many other things. She would rather chase butterflies than play at the play ground with other children. She isn't social with others. She is very attached to me,she doesn't do well with strangers. I worry so much about when she starts school how this will all unfold for her. She does very well with her brother and sister,(brother is 10 and sister is 15)She knows their friends by name,she seems to do well with adults but other children she is not interested. She plays by herself most of the time. It breaks my heart to watch other children play,and for her to sit to herself. I took her to a play place,I try to do this at least a couple times a week,she made a

friend there,She talked to this littlegirl,and everything seemed to go so well,I watched her closely then all of a sudden I watched this broad smile turn to a frown,she turned her back toward the little girl,I thought for a brief moment we are doingbetter but I don't know what happened it was so sudden. (I'm crying as I type this) She seems to know things she seems to young to know,she remembers things from a year ago,it is amazing to me,as it is hard for me to remember from day to day. I wanted to give you some idea of what I am dealing with I am sorry if I have rambled. I appreicate the oppertunity to be apart of this group. I welcome any comments,or advice anyone has. Thank you,T. Green

Wanna slim down for summer? Go to America Takes it Off to learn how.

[Guest guest]

Haircuts with Mack can be a nightmare. Currently he is into the skateboarder look - long bangs, hair in his eyes! But what has become more of a problem is shaving. At 16, he needs to shave everyday, but that won't happen!! He has a full beard most of the time! He cannot shave himself even with an electric razor. He us afraid, so his dad has to shave him. I don't know what they are doing at his mom's house. The next time we see him he will probably have oily hair down his back, covering his face, etc. ;)Sent from my iPhoneBlessings, DonnaOn Jun 3, 2009, at 7:26 AM, Roxanna <MadIdeas@...> wrote:

Welcome to the group! Feel free to join in whenever you like. Haircutting was an especially stressful event at our house. I have two boys with HFA and both of them had issues with getting their hair cut. I had my older dd hold my oldest ds down when he was a toddler just so we could cut his hair. It was so bad. My younger ds can have it cut but he complains the whole time and is pretty miserable. My friend has a ds with more severe autism and they end up shaving his head because trying to cut it is impossible. You might want to talk to an OT sometime about ways to desensitize her. It might help.

Roxanna

Autism Happens

( ) Introduction new member

Hello, I have a 4 year old daughter. We have not had a dignosis as of yet of Asberger's,but she has many symptoms of the disorder. We are in the process of getting an appointment for, the assessment.

I have so many concerns,and fears with this. As a parent you always hope and pray your child will be born normal and healthy. Then later; you begin to see signs that don't seem right,and then it's like a bomb is dropped and you are left grasping every piece of material you can find to help your child to be productive,and later independent.

My daughter is 4 as I said she isn't potty triained yet, and has no interest. There are times she won't wear the panties,she can't stand certain materials,she will only wear cotton. Sometimes even cotton material is hard to keep on her. We have had numerous dentist treatment because she can't stand for the tooth brush to touch her gums,I have to keep her hair cut short she doesn't like her hair brushed,it's like it really bothers her,and I am not rough in brushing her hair,I have to use detangler her hair is very fine,and tangles easy anyway.

One thing I have read is that most children with Asbergers have one focus she has many. She loves horses,cats,dogs,butterflies,and many other things. She would rather chase butterflies than play at the play ground with other children. She isn't social with others. She is very

attached to me,she doesn't do well with strangers. I worry so much about when she starts school how this will all unfold for her. She does very well with her brother and sister,(brother is 10 and sister is 15)She knows their friends by name,she seems to do well with adults but other children she is not interested. She plays by herself most of the time. It breaks my heart to watch other children play,and for her to sit to herself.

I took her to a play place,I try to do this at least a couple times a week,she made a friend there,She talked to this little

girl,and everything seemed to go so well,I watched her closely then all of a sudden I watched this broad smile turn to a frown,she turned her back toward the little girl,I thought for a brief moment we are doing

better but I don't know what happened it was so sudden. (I'm crying as I type this) She seems to know things she seems to young to know,she remembers things from a year ago,it is amazing to me,as it is hard for me to remember from day to day. I wanted to give you some idea of what I am dealing with I am sorry if I have rambled. I appreicate the oppertunity to be apart of this group. I welcome any comments,or advice anyone has.

Thank you,

T. Green

Wanna slim down for summer? Go to America Takes it Off to learn how.

[Guest guest]

Your daughter sounds wonderful and sweet and kind. I have a daughter too. Look

at her a naturalist. She loves nature and quiet. And is very sensitive to the

world around her.

It is like looking for a needle in a haystack to find a school or summer camp

experience that won't overwhelm her but they are

out there.

You will have to talk to so many people to find the sensitive

souls in the world.

My daughter is 11 and she will go to a summer camp at the arboretum 2 mornings a

week and work on planting gardens. Also she plans

to take a music class.

Let me tell you a story her public school teacher criticized my daughter for

memorizing music to the clarinent instead of being able to process the

information faster and read the notes as she plays.

Criticism ....hmmm Then I found a teacher some how privately that said oh how

gifted and wonderful that she can memorize like that I do that too ...and she

taught her how to block off the music in measures and learn to read music. Wow

right so much more respectful of my

daughters differences.

You need to look at things this way. There is a judgement in a DX

take these kids as they come.

All the sensory issues are very typical and worse under stress.

They get better and also I get more tolerate. Less judgemental

if she is dress fashionable and more concerned that she has good health. Nothing

can be rushed. Life is at a calmer pace.

How wonderful your daughter loves animals. Mine too. I finally

embraced her interests and I too take an interest even though I

never cared for animals much.

My daughter and I are taking a mother daughter dog training class this summer.

To set up playdates do it at home, 1:1 and pick kids that

you could have over weekly. Some parents work and wouldn't

mind a playdate that you do all the work. It should be the same

child. Strive to have a few playdates a week. If you don't don't

stress out even just being around other kids is good.

Four years old is very young. Have the playdate structured, have a snack so they

sit together and some very easy craft or playdoh that they do together and then

have unstructured play time and you

have to work on helping her stay engaged. Pick things to play with that you know

your daughter likes.

Oh I have so many ideas. We all can help.

Pam

[Guest guest]

Pam,

Thank you so much for your suggestions! They mean so much to me.. I have to admit my daughter was not planned. When I was pregnant I was sure she was a boy,I was sure she would have red hair as the other two children. I have to say that through all the things I was so sure about she surprised us all around. She was a beautiful girl,with coal black hair.

She has been a wonderful surprise! She has brought me so much joy! I enjoy every second with her,she amazes me.

I have been working on the play dates,she has an interest for a brief time and then she is done. But it's a start. We all have to start someplace. As far as the dx,my concern for her is the what if's,that others don't understand. I've never been rude,but when people keep asking me why isn't she potty trained? You haven't potty trained her yet? UGGHH!! That runs right through me! I just say she isnt' ready yet. I don't feel I have to give them anything. But as far as school when she does start,if she hasnt' potty trained by then I don't want her to be pentilized(not spelled right) for that,and I want her to excel in every area possiable. I suppose that is why I want the dignosis to know what exactly we are dealing with and what we can do to help her. My worsed fear is she won't function enough to be independant. That is a huge concern for me,as I won't live forever and I want her to be able to have her own life someday. No big hurry,I

just want to know she will function as normal as possiable to be indpendant.

Thank you so much for your ideas,I welcome them anytime!

I am so glad your daughter has a music teacher that is working with her,there really are people with heart and concern out there. That is also very encouraging. Keep us posted on the dog training classes,that sounds like so much fun! Thank you again very very much!

From: susanonderko <susanonderko@...>Subject: ( ) Re: Introduction new member Date: Wednesday, June 3, 2009, 2:07 PM

Your daughter sounds wonderful and sweet and kind. I have a daughter too. Look at her a naturalist. She loves nature and quiet. And is very sensitive to the world around her.It is like looking for a needle in a haystack to find a school or summer camp experience that won't overwhelm her but they areout there. You will have to talk to so many people to find the sensitive souls in the world. My daughter is 11 and she will go to a summer camp at the arboretum 2 mornings a week and work on planting gardens. Also she plans to take a music class. Let me tell you a story her public school teacher criticized my daughter for memorizing music to the clarinent instead of being able to process the information faster and read the notes as she plays. Criticism ....hmmm Then I found a teacher some how privately that said oh how gifted and wonderful that she can memorize like that I do that too ...and she taught her

how to block off the music in measures and learn to read music. Wow right so much more respectful of my daughters differences. You need to look at things this way. There is a judgement in a DXtake these kids as they come. All the sensory issues are very typical and worse under stress. They get better and also I get more tolerate. Less judgementalif she is dress fashionable and more concerned that she has good health. Nothing can be rushed. Life is at a calmer pace. How wonderful your daughter loves animals. Mine too. I finallyembraced her interests and I too take an interest even though I never cared for animals much. My daughter and I are taking a mother daughter dog training class this summer. To set up playdates do it at home, 1:1 and pick kids that you could have over weekly. Some parents work and wouldn'tmind a playdate that you do all the work. It should be the same child.

Strive to have a few playdates a week. If you don't don'tstress out even just being around other kids is good. Four years old is very young. Have the playdate structured, have a snack so they sit together and some very easy craft or playdoh that they do together and then have unstructured play time and you have to work on helping her stay engaged. Pick things to play with that you know your daughter likes. Oh I have so many ideas. We all can help. Pam

[Guest guest]

Life has two kinds of people the warrior type that find fault in

everyone and the sensitive souls that take people as

they come. When the warrior type says to you not potty trained yet .

....you think warior type there is no reasoning with this

people nothing you say will cahnge them and it was a dig,

they wanted to feel one better at your expense. However

you give what you get so don't play this game. Pretend

you didn't hear them. Or say it is a private matter if they push you.

You want the AS DX for school so you have school support you will

need it. Let's talk about this. You need to see as many specialist

as need be to get a DX that you can get her classifed. School can

be brutal without one. My brother was telling me even deaf kids have to fight

for services. You would think it would be easier.

I am years older and wiser from fighting for every small service

we may finally be getting a change of placement.

As far as fears for your daughter's independence. Well so

many kids live at home late. My sister is a single Mom nearly

40 and never lived away from my mother. They have a mother

daughter house. Lots of people stay close to family. I try to make

choices to keep her connected to extended family too.

Pam