Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 Conference dates: Wednesday, May 20 - Sunday, May 24 Proud Member of the Autism Collaboration Sunday July 12, 2009 Dear Friends and Colleagues - SET TO LAUNCH We are pleased to announce our new site (new.autismone.org) is about to go live. Integrating the AutismOne conference and other videos, conference presentations, and AutismOne Radio, and incorporating blogs, groups, articles, forums, a store, and dating we believe provides a better way to educate, inform, and – most importantly – add your voice to the conversation. If you have not done so already, please visit our new site, become a member, and start blogging, start a group, post a comment, or volunteer. Many of our presenters and radio hosts will soon be joining us to create a virtual year-round AutismOne conference. Plus, we will be unveiling new presenters providing you the opportunity to get to know them better in a more informal " get together. " If you have a piece of advice, an insight, a funny story, an idea, or just want to say “hi,” we want to hear from you. ON THE VOICEAMERICA HEALTH AND WELLNESS CHANNEL www.health.voiceamerica.com Tuesday, July 14, 12:00 noon ET Autism One: A Conversation of Hope Host: Teri Arranga Guest: Barbara Loe Fisher, Co-Founder and President of the National Vaccine Information Center Topic: Flu vaccines: what you must know, with Barbara Loe Fisher This past spring, the World Health Organization and Centers for Disease Control declared a " public health emergency " after a new human-pig-bird hybrid influenza virus was identified in Mexico near a pig farm. The new swine flu virus is causing mostly mild symptoms similar to the regular flu, but CDC officials say the virus could mutate and become more serious. Congress has given drug companies several billion dollars to develop experimental swine flu vaccines that will contain genetically engineered flu viruses and novel oil-based adjuvants that have never been licensed in the U.S. These experimental flu vaccines are being fast- tracked with limited testing for public release and use this fall. CDC officials have announced that children ages 5 to 11 will be targeted first using school-based vaccination programs. There are many questions about the safety and effectiveness of these experimental swine flu vaccines and whether new state public health laws, which have been enacted since 9-11, will force vaccination and quarantine of Americans without informed consent. Please look to the National Vaccine Information Center at www.NVIC.org for more information about what you should know and what you can do. NVIC's 4th International Public Conference on Vaccination October 2-4, 2009, Reston, VA http://www.nvic.org/Events/overview.aspx SEIZURES SURVEY In January 2009 ARI held a think tank on seizures, and in May 2009 Autism One held a complementary think tank. As a follow-up to two those think tanks, Dr. Frye is working with the attendees on a " Consensus Paper on Seizures in Autism and How to Treat Them. " If your son or daughter (or you) suffers from seizures, we would like to ask you to fill out a survey created by Dr. Frye with the help of Prof. , Science Coordinator of ARI/Defeat Autism Now! We think that this very detailed survey will provide a much richer understanding of the efficacy and possible side-effects of current treatments for seizures. Please help us by filling out the survey if it applies to you, and by forwarding information about this survey to other autism groups. You can access the survey at http://www.surveymethods.com/EndUser.aspx?E8CCA0BDEFA3B9B8 Thank you very much for helping us find answers to seizures in autism. Sincerely, E. Frye, M.D., Ph.D., F.A.A.P. Assistant Professor of Pediatrics and Neurology University of Texas-Houston B. , Ph.D. Professor, Arizona State University http://autism.asu.edu Science Coordinator, Autism Research Institute/Defeat Autism Now! Defeat Autism Now! Fall 2009 Conference October 8-12, Dallas, Texas Please visit www.defeatautismnow.com ACTION ALERT from the National Autism Association Please visit http://www.nationalautismassociation.org/abuse.php - 19 states have zero regulations protecting our disabled children in schools. - States that do have regulations or guidelines are not being followed by many school districts. - Our federal lawmakers say they have not heard from us on harmful restraint and seclusion. According to a May 2009 government report on restraint and seclusion practices, an overwhelming amount of abuse, neglect, and emotional abuse is happening in schools throughout the country. The report found no federal laws in place that regulate restraint & seclusion. The report revealed that state regulations are “widely divergent” and that 19 states have nothing that regulates restraint & seclusion in schools. The report revealed ten case studies where children with varying disabilities died as a result of restraint and seclusion, were seriously harmed, or emotionally traumatized. Because there are no laws, many of the people responsible for this abuse still work within the school systems. Take these two steps immediately to raise your voice and help our children's safety! STEP 1: Send a letter to federal lawmakers & call: every member on the Education and Labor Committee needs to hear from us IMMEDIATELY. CLICK HERE for a sample letter and list of committee members. We need to show them how big our voices are! STEP 2: Send a letter to state lawmakers & call: if you are in the following states, you have NO state regulations: Wisconsin, Wyoming, Vermont, South Carolina, South Dakota, North Dakota, Oklahoma, New Jersey, Nebraska, Mississippi, Missouri, Kansas, Kentucky, Louisiana, Indiana, Idaho, Florida, Georgia, Arizona. CLICK HERE for a sample letter and a link to find your state reps. For people in the other states, most of your laws aren't being consistently followed. Please send letters to both committee members and state lawmakers and a copy to kutzg@.... Signed, The National Autism Association Autism Research Institute Talk About Curing Autism Unlocking Autism Autism One The Autism Human Rights and Discrimination Initiative The Autism Trust Autism Action Network Schafer Autism Report Parents in Action, PIA, Inc. Concerned Parents in Florida of Children with ASD Families Against Restraint and Seclusion Autism Salutes What you can also do right now to help protect your child: Visit WWW.NATIONALAUTISM.ORG or WWW.APRAIS.TASH.ORG to DOWNLOAD A SAMPLE “NO CONSENT” LETTER to provide your child's teachers, principal and have it placed into your child's IEP. For more information, visit: http://familiesagainstrestraintandseclusion.blogspot.com/ http://aprais.tash.org National Autism Association's National Autism Conference The annual NAA National Autism Conference will be held November 12-15, 2009. Please visit http://www.nationalautismconference.org/index.htm COMMUNITY MOURNS PASSING OF DR. TED CARR Pioneer Psychologist Transformed Understanding and Treatment of Autism Behaviors The autism community lost a great leader, Dr. Carr, who was killed by a drunk driver the afternoon of June 20, 2009. Dr. Carr, the Leading Professor in the Department of Psychology at the State University of New York at Stony Brook, was a top advisor to the Autism Society of America. We are deeply saddened by the loss of our friend and colleague and his wife, Ilene Wasserman, who was also killed in the crash, and we send our thoughts and prayers to their family. Dr. Carr was recognized internationally for his research on new treatments for autism and related disabilities. He co-developed Functional Behavioral Assessment and Positive Behavior Support, a strategy for dealing with learning and behavior issues endorsed by the Individuals with Disabilities Education Act (IDEA). Dr. Carr wrote numerous articles on autism treatment and authored the best-selling book, Communication-Based Intervention for Problem Behavior ( H. s, 1994). He received numerous awards, including the Applied Research Award in Behavior Analysis (American Psychological Association, 2001) and the Distinguished Research Award for Career Achievement (ARC, 1999). Dr. Carr was a strong supporter, valued contributor and beloved colleague at the Autism Society of America. As a member of the Autism Society’s Panel of Professional Advisors, he was a frequent contributor to the Autism Advocate, most recently co-editing an issue on ABA therapy, which was one of his many areas of expertise. With Drs. Martha Herbert and -Myles, Dr. Carr developed the Autism Society’s Treatment Guided Research Initiative and was the main inspiration for the " Quality of Life " objectives the Society uses to develop and evaluate its programs. A frequent presenter at the Autism Society National Conference, Dr. Carr was scheduled to moderate this year’s keynote panel on “The Future of Autism” on July 23. The panel will continue to be held in his honor. “Ted was passionately committed to improving the quality of life for people with autism and their families,” said Lee Grossman, President and CEO of the Autism Society. “Those of us who were privileged to work closely with him will miss his insights, his humor, his deep compassion and advocacy for people affected by autism. We will miss him greatly but we will ensure his legacy lives on.” “Dr. Ted Carr was a pioneer in the field of positive behavior supports and autism spectrum disorders. His focus on enhancing quality of life and understanding of the systemic issues surrounding behaviors forced practitioners to think more broadly when designing interventions,” said Dr. Pratt, Chair of the Autism Society Board of Directors. “He was a gentle man and quiet innovator with a quick wit and amusing perspective. His work will truly live on and serve as an inspiration for generations to come.” Autism: Changing the Course in Canada Autism Canada, Autism One, and the Dalla Lana School of Public Health at the University of Toronto are planning a conference in Toronto this fall. Over 500 people will gather for Toronto's inaugural bi-annual conference titled Autism: Changing the Course in Canada. This collaborative conference will take place Saturday, October 31 and Sunday November 1, 2009 at the University of Toronto Medical Sciences Building. A separate off-site clinician workshop will take place on Friday, October 30, 2009. As always please let us know if you have any questions, comments, suggestions, or ideas. Thank you. Our best, Ed & Teri To be removed from this list please reply with " Remove " in the subject line. Quote Link to comment Share on other sites More sharing options...
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