ASA-ASO DIGEST: June 8, 2009

[Guest guest]

Dear Friend of ASA-ASO:

Visit ASA-ASO's website www.autismohio.org for an "easy to read" version if this does not come through clean on your listserv. Or sign up to receive your own copy by "registering" on the "login" section of ASA-ASO's homepage.

News From ASA-ASO:

- Ohio State Budget Update

- Use your Kroger Plus card and raise funds for ASA-ASO

- ASA-ASO forming Ohio Autism Advocacy Network - Join Now!

- Ohio BMV changes policy on Autism Awareness License Plate

- Federal Update/Alerts

Senator Gillibrand Releases New Plan for Autism

Obama Administration

Health Care Reform

Education/Seclusion and Restraints Education/Bullying U.S. Administration on Aging (AoA) Program Announcement for Lifespan Respite Released Disability Statistics Emergency Preparedness Report

Upcoming Events, Resources, etc:

- News from the ASA:

2009 Autism Society Award Winners Autism Society Announces 2009 Conference Keynotes U.K. Autism Study Finds Prevalence One in 64 Don't Miss the Next Sensory Friendly Film! Colorado Governor Signs Bill Requiring Insurance Coverage for Treatment of Autism Insurance Reform Gets One Step Closer in Wisconsin First Neuroimaging Study Examining Motor Execution in Children with Autism "Learn to Move, Moving Up! Sensorimotor Elementary-School Activity Themes" "Boy Alone: A Brother's Memoir" New Picture Book about Autism and ADHD Sensory Assault Operations Opens Online Store "Amie and the Purple Butterfly" Autism on the Seas- Latest Newsletter from ASA-Dayton Chapter

- ASA-Greater Cleveland (ASGC) will now host two Support Group Meetings - Independence and Avon Lake

- Understanding Autism, a follow up conversation including ASA Tri-County Chapter (Youngstown)

- News from the ASA-NW Ohio Chapter (ASNO)- Press Release from the ASA: U.K. Autism Study Finds Prevalence one in 64

- Resource: Families of Adults Affected by Asperger's Syndrome

- Summer Food Service Program Clickable Map of Ohio Locations

- Article: Student helps teens with autism express themselves onstage

- Article: Asperger's syndrome doesn't slow Connecticut cross-country runner

- Support Group for Parents of Adults with Autism, Shaker Hts

- Article: Drug doesn't help children with autism, study says

- Article: Creating A Behavior Game Plan

- Article: Research looks at gender's role in autism

- Book: Play & Imagination in Children with Autism

- Books address autism, ADHD

- Article: Young Man with Aspergers honored in Liberty Township

- Article: Some wary of advances in scientific understanding of autism

- Events from Project iAm, Toledo

- Latest Newsletter from Milestones, Cleveland

- Midwest Innovations hosting walk-a-thon to support OASIS, Wooster

- Seminar: WHAT’S SO “SPECIAL†ABOUT SPEC=IAL EDUCATION?, Independence

- Self Advocacy Retreat: HELPING OTHERS, HELPING OURSELVES, Cincinnati

- ASA 2009 Book of the Year: Learners on the Autism Spectrum: Preparing Highly Qualified Educators

- Article: Anti-Psychotic Brings Undesirable Consequences

- Summer Newsletter from the OCECD

ASA-ASO is now posting all research opportunities on our website. For information on available opportunities, visit our webpage www.autismohio.org, click on "Information" along the left side of the home page and then click on "Studies/Surveys". CHECK OUT NEW LISTINGS AND OPPORTUNITIES!

Have you purchased your Ohio Autism Awareness License Plate yet? To purchase yours, visit www.oplates.com and click on "Specialty Plates" or visit our website at www.autismohio.org for more information.

Sincerely,The Autism Society of America - Autism Society of Ohio Chapter701 S. Main St.Akron, OH 44311( 330) 376-0211fax: (330) 376-1226email: askASO@...web: www.autismohio.org Please note: This is provided for information purposes only. The ASA-ASO does not endorse or recommend any providers, methodologies or services. Providing this information should not be construed as an endorsement by the ASA-ASO, either explicit or implied.

News From ASA-ASO:

Ohio State Budget Update

The Ohio Senate Finance and Financial Affairs Committee has recommended a revised budget bill to the Full Senate for consideration this week. Overall, the Senate reduced General Revenue Fund spending by $650 million and eliminated 139 project-specific earmarks to the tune of $150 million over the biennium (2 year term of the budget - 2010-2011).

Autism Insurance Coverage

The language requiring coverage for autism services was removed.

Funding for Special Education

The Senate added a per-pupil element and made other significant changes to the overall K-12 funding plan. Finance Chairman Sen. Carey (R-Wellston) said the chamber would incorporate some of the governor’s system proposals related to classroom sizes, testing changes and longer school years.

Funding for Charter Schools

Funding was shifted back to charter schools.

Funding for Help Me Grow and the Autism Early Screening PilotHelp Me Grow was funded at $21,535,000 per year but the language requiring that some of the money be used for the Autism Diagnosis Education Pilot Program was altered from mandatory to permissive. In other words, the Senate changed the language so it now specifies that funds “may†be used for the Autism Diagnosis Education Pilot Program.

What happens next?

The full Senate will debate the bill and a vote in the Senate is expected sometime this week. This version is obviously significantly different that the House version. The bill will then go to a conference committee made up of legislators from both chambers and parties to resolve the differences between the two bills. As these differences are significant, this should be a challenging process. You should also understand that many compromises will be made as part of this process and language that appears in one version of the bill and not the other may indeed be part of the final bill.

ASA-ASO will keep you posted as to developments with this most important budget bill.

Use your Kroger Plus card and raise funds for ASA-ASO

Help raise funds for ASA-ASO just by using your Kroger Plus Card! You can now earn funds for ASA-ASO just by using your Kroger Plus Card and it will cost you absolutely nothing!

For 125 years, The Kroger Co. has made a strong commitment to support the communities where its associates live and work.

In the Columbus Division (comprising most of Ohio and parts of West Virginia), the Kroger Cares program has helped more than 2,200 organizations raise funds for their own needs since its inception in 1995.

Beginning May 1, 2009, Kroger's is launching the Kroger Community Rewards Program and dedicating $5,000,000 to it! This program will enable them even more organizations, of all sizes - including ASA-ASO!

Remember, all of the funds raised stay right here in Ohio to help individuals with autism and their families throughout Ohio. Visit the ASA-ASO website to see some of the programs and services that ASA-ASO offers.

Please share this information with any friends and family that may be Kroger shoppers!

TO USE THE KROGER COMMUNITY REWARDS PROGRAM:

Register online at krogercommunityrewards.com Be sure to have your Kroger Plus card handy and register your card with ASA-ASO after you sign up. If you do not yet have a Kroger Plus card, they are available at the customer service desk at any Kroger. Click on Sign In/Register If you are a new online customers, you must click on SIGN UP TODAY in the ‘New Customer?’ box. Sign up for a Kroger Rewards Account by entering zip code, clicking on favorite store, entering your email address and creating a password, agreeing to the terms and conditions You will then get a message to check your email inbox and click on the link within the body of the email. Click on My Account and use your email address and password to proceed to the next step. Click on Edit Kroger Community Rewards information and input your Kroger Plus card number. Update or confirm your information. Enter ASA-ASO's organization number - 83893 or name of organization as ASA=AUTISM SOCIETY OF OHIO CHAPTER, select organization from list and click on confirm. To verify you are enrolled correctly, you will see your organization’s name on the right side of your information page. REMEMBER, purchases will not count for ASA-ASO until after you register your Kroger Plus card. Do you use your phone number at the register? Call 877-576-7587 to get your Kroger Plus card number. You must swipe their registered Kroger Plus card or use the phone number that is related to your registered Kroger Plus card when shopping for each purchase to count.

ASA-ASO forming Ohio Autism Advocacy Network - Join Now!

The Ohio Budget is currently under development and autism insurance parity legislation is ready to be re-introduced in the Ohio House. Additionally, issues regularly come before the state legislature that impact individuals with autism, their families and those who work them throughout Ohio. And because of this, the ASA-Autism Society of Ohio needs your help.

We are in the process of putting together an autism advocacy network that has constituents in each of the districts of the members of the Ohio General Assembly, both the House and Senate. We are looking for advocates all around the state to help us with this effort.

You can volunteer to participate in two ways:

· Team Leader: Each Ohio district will have an assigned team leader who is responsible for carrying the key ASA-ASO/autism messages when meeting with the legislator (Representatives and Senators), coordinating testimony or letter writing for hearings, and for organizing the team members of their district, etc.

· Team Member: Each Ohio district will have several team members that are available to share their own personal ASA-ASO/autism story, to write letters when needed, and to ask from help from their neighbors/families/friends. Team members may choose specialize on certain topics – ie. autism insurance parity topic, special education funding, etc.

ASA-ASO is also developing a Legislative Advocacy Manual and will provide local training to constituent volunteer advocates.

If you are interested in participating in this effort, please send your Name, address, city,zip+4, phone, email address, House District Number and Senate District number and whether you are interested in being a “Team Leader†or a “Team Member†to askASO@.... Please put AUTISM ADVOCACY NETWORK in the subject line. To find your district numbers, visit www.legislature.state.oh.us and follow the directions under "Locating Legislators".

For more information, visit our website at www.autismohio.org

Ohio BMV changes policy on Autism Awareness License Plate

Because of privacy concerns, the Ohio BMV will no longer be releasing the names and addresses of those who purchase the Ohio Autism Awareness License Plate to the ASA-Autism Society of Ohio. $25 from the purchase of each plate benefits the ASA-ASO and we have been sending thank you notes to all those who have purchased a plate. However, we will no longer be able to do so. The BMV is currently looking into options to add customer consent to the special license plate process so hopefully we will be able to go back to thanking folks formally in the future. But whether we are able to send a formal "thank you" or not, please know that the purchase of an autism awareness license plate makes a big difference and helps us help individuals with autism, their families and those who work with them throughout Ohio.

Federal Update

Updates provided by the Autism Society of America

Senator Gillibrand Releases New Plan for AutismAutism Society commends effort to make treatment more affordable The Autism Society applauds Senator Kirsten Gillibrand (D-NY) for her new three-point plan to make necessary treatments for autism affordable for the families that need them. The three point plan would mandate that private insurers cover autism treatments through the Autism Treatment Acceleration Act (ATAA). It also calls for the introduction of the Uniformed Service with Autism (USA) Heroes Act, which would be a companion to HR 1600 and would mandate that TRICARE, the health care provider for uniformed service members, retirees and their families, provide quality coverage for autism treatments to our military families. Lastly, the plan supports autism research by dedicating a portion of the $10 billion already given to the National Institute of Health (NIH) under the recent recovery plan. Senator Gillibrand and Senator (R-ME) will introduce the USA Heroes Act on June 3. They will be joined by co-sponsors include Senators Sam Brownback (R-KS), Cardin (D-MD), Bernie (I-VT), and Arlen Specter (D-PA). By co-sponsoring this bill, these senators are demonstrating their commitm=ent to families affected by autism, and specifically to our military families. Unfortunately, current TRICARE policy does not recognize autism as a treatable condition and segregates many proven treatments into the TRICARE ECHO program, which is restricted to dependents of active duty service members only. This policy creates barriers to care, restricts access to medically prescribed services, and leaves approximately 8,800 children with autism of military retirees without access to medically necessary care. “It is unconscionable that military children be denied this critical service. TRICARE does not isolate or restrict access to medically necessary care for children with cancer, diabetes, or other childhood illnesses; autism should be no different. These families have made tremendous sacrifices for our country, and it is our obligation to provide the quality of care equal to their heroic service,†said Autism Society Vice President of Advocacy & Public Policy Jeff Sell. By co-sponsoring the Autism Treatment Acceleration Act (ATAA), Senator Gillibrand is further supporting families affected by autism. The bill, which was introduced by Senator Durbin as S. 819 and is a companion to HR 2413, includes a requirement that health insurers cover the diagnosis and treatment of autism spectrum disorders, including Applied Behavior Analysis therapy, assistive communication devices and other effective treatments. Beyond insurance coverage, this crucial legislation includes support services for adults on the autism spectrum. Currently, the federal government provides for educational services until age 21; however, autism is a lifelong disorder, and when the school bus stops coming, individuals and families are often left to fend for themselves. A recent Easter Seals/Mass Mutual study found that 77% of parents of children with ASD are concerned about their child's future quality of life, and 79% are also concerned about their child's future independence. ATAA addresses this fear with a demonstration project to provide an array of services to adults with autism spectrum disorders, including: postsecondary education; vocational and self-advocacy skills; employment; residential services, supports and housing; nutrition, health and wellness; recreational and social activities; and transportation and personal safety. Obama AdministrationPresident Obama announced that federal appeals court judge Sotomayor is his nominee to succeed Justice Souter on the Supreme Court. Judge Sotomayor's favorable rulings in two prominent disability cases suggest that she understands disability issues. If the Senate confirms her nomination she would become the first Hispanic to serve on the Supreme Court. U.S. Department of Health and Human Services Secretary Kathleen Sebelius announced the appointment of Mann to serve as the Director of Medicaid and State Operations (CMSO) at the Centers for Medicare & Medicaid Services (CMS). Most recently Ms. Mann served as a research professor and the Director of the Center for Children and Families at town University's Health Policy Institute. During the Clinton Administration she was Director of the Family and Children's Health Programs at CMSO. CongressHealth Care ReformCongressional deliberations on health care reform legislation kicked into high gear this week, and if Congressional plans hold firm, plan will move quickly throughout June. First, Senator Kennedy (D-MA), Chairman of the Health, Education, Labor, and Pensions (HELP) Committee, will conduct a walk-thru of his proposed legislation with Democratic and then bi-partisan members of the Committee this week. Hearings are expected to follow with a mark-up in mid-June. The Finance Committee, chaired by Sen. Max Baucus (D-MT), has already conducted three bi-partisan walk-thrus of its concept proposals and will hold mark-up sessions in early to mid-June. Following mark-ups of their bills, both Committees will meld their legislation together before sending it to the Senate floor for consideration in July. In the House, the Committees on Energy and Commerce, chaired by Rep. Henry Waxman (D-CA), Ways & Means, chaired by Rep. Rangel (D-NY), and Education and Labor, chaired by Rep. (D-CA), will reportedly release their joint draft bill during the week of June 15. Hearings will be held in each Committee, possibly at the Subcommittee level, during the week of June 22. Full committee hearings will commence the week of July 6 and mark-ups in each committee will reportedly be held during the week of July 13. The goal is to bring the legislation to the House floor during the week of July 27. Education/Seclusion and RestraintsOn May 26, Tom Webb, a ph P. Kennedy Fellow with the DPC, and other members of the disability community met with several officials from the White House, Department of Education, and a variety of national school association and professional groups regarding abusive seclusion and restraint practices in our schools. This meeting was organized by the White House and served as a follow-up discussion related to the House Committee on Education's May 19, 2009 hearing on the issue. Concerns regarding the dangerous use of seclusion and restraints on children with disabilities were discussed at length. The White House agreed that the Administration must take a larger role in addressing the harmful impact of seclusion and restraint, address alternative approaches such as Positive Behavior Supports (PBS), examine funding around the issue, and provide better federal guidance. See the Education and Labor Committee's Hearing:http://edlabor.house.gov/newsroom/2009/05/gao-report-finds-hundreds-of-a.shtml Education/BullyingH.R. 1589, "Bullying and Gang Reduction for Improved Education Act" was introduced by Representative (D-CA). The bill seeks to amend the "Safe and Drug-Free Schools and Communities Act" and includes language that addresses bullying and gang reduction. Currently there is limited language in the bill addressing bullying of students with disabilities. The American Psychological Association (APA) is examining research on this topic and will work with Education and Labor Committee staff to include additional language where needed. The DPC will work with the APA and monitor this bill closely. See:http://www.thomas.gov/cgi-bin/query/z?c111:H.R.1589:/ =nbsp; U.S. Administration on Aging (AoA) Program Announcement for Lifespan Respite Released AoA released the program announcement today for Lifespan Respite grants. 10-15 state grants will be awarded with funding awards up to $200,000 for 36 months. Program announcement and instructions can be found at http://www.grants.gov. Applicants to this Program Announcement are encouraged to read the text of the Lifespan Respite Care Act of 2006 in its entirety, including the committee report which accompanies the legislation. Full text of the legislation may be found at: http://thomas.loc.gov/cgi-bin/cpquery/T? & report=hr716 & dbname=109 & Key Dates: · Letters of Intent due: June 19, 2009 · Open Information Teleconference for Applicants: June 10, 2009 , 2:00 PM Eastern Time. Telephone Number: 1-888-831-8978 (Toll Free) Participant Pass Code: 52871 · Application deadline: The deadline date for submission of applications is 11:59 p.m. , Eastern Time, on July 29, 2009 · Projected Start Date: September 30, 2009 Disability StatisticsThe Census Bureau released information about people with disabilities in advance of the anniversary of the signing of the Americans with Disabilities Act. The release includes select data gathered from various Census Bureau sources. See: http://www.census.gov/Press-Release/www/releases/archives/facts_for_features_special_editions/013739.html Emergency Preparedness ReportOn May 21st the American National Standards Institute (ANSI) Homeland Security Standards Panel (HSSP) published a workshop report on "Emergency Preparedness for Persons with Disabilities and Special Needs." This report provides strategies to address the barriers associated with emergency preparedness for those with physical and sensory disabilities. See: http://www.ansi.org/news_publications/news_story.aspx?menuid=7 & articleid=2200

Upcoming Events, Resources, etc.:

News from the ASA

2009 Autism Society Award WinnersThe Autism Society is pleased to congratulate the 2009 National Awardwinners, who will be honored at the 2009 Conference, July 22-25, in St. , Ill. Read more: http://www.autism-society.org/site/R?i=1pWSCuN9qA54OWNhAyT5EQ..Autism Society Announces 2009 Conference KeynotesThis year's conference in St. , Ill., July 22-25, will includethree exciting keynote panels on the Future of Autism, Public PolicyAdvances for Autism in America, and the Culture of Autism. Panelparticipants include some of the top minds in the autism community:Dr. R. Insel, Director of the National Institute of MentalHealth; Pennsylvania State Representative Dennis O'Brien; Dr. Mark Friedlander of Aetna; and author, advocate and individual on theautism spectrum Sondra , among others. For 2009 we are alsooffering CEUs for BCBA and ASHA, as well as educators and a full-dayCME track. Read more: http://www.autism-society.org/site/R?i=ufjFOyi5KvOfcJvCVPAwKw..U.K. Autism Study Finds Prevalence One in 64A new study by researchers in the United Kingdom finds that theprevalence of autism in that country is much higher than previouslythought. The current estimate of autism in the U.K. is one in 100. Butthe new study, led by Professor Simon Baron-Cohen of the AutismResearch Centre at Cambridge University, found that for every threediagnosed cases of autism, there are two that are not diagnosed -meaning the true prevalence in the U.K. could be as high as one in 64.Read more: http://www.autism-society.org/site/R?i=Gee0VoUifvP9j2b0L5M_hA..Don't Miss the Next Sensory Friendly Film!The next Sensory Friendly Film will be the new Pixar film "Up" on June 13 at 10 a.m. local time. Be sure to check out our new locations in Buffalo, N.Y.; Milwaukee, Wis.; Newark, N.J.; and ville, Fla. Find a theatre near you at www.autism-society.org/sensoryfilms.Colorado Governor Signs Bill Requiring Insurance Coverage for Treatment of AutismA landmark, bi-partisan bill expanding the treatment of autism inColorado was signed into law on June 2. Senate Bill 244, sponsored bySenate Majority Leader Shaffer (D-Longmont) and StateRepresentative Dianne Primavera (D-Broomfield), will require healthinsurance providers to cover assessment, diagnosis and treatment ofautism, including Applied Behavior Analysis (ABA), a substantiallyresearched and favored behavioral treatment for autism spectrumdisorders. This bill will require health insurance plans to includeautism as a covered benefit. Read more: http://www.autism-society.org/site/R?i=SjhqDgtqvNCLaNptwM0vjQ..Insurance Reform Gets One Step Closer in WisconsinThe Wisconsin state budget now includes a proposal that could mandatecertain insurance plans to cover autism treatment for Wisconsinchildren. The Assembly could take up the entire budget proposal thisweek. For more information about Wisconsin insurance legislation,visit http://www.autism-society.org/site/R?i=nJgw1oUdbm_uSCGlaYxtKg.. .First Neuroimaging Study Examining Motor Execution in Children with AutismIn the first neuroimaging study to examine motor execution in childrenwith autism, researchers at the Kennedy Krieger Institute haveuncovered important new insight into the neurological basis of autism.Read more: http://www.autism-society.org/site/R?i=2pwfd9cU0tpeJBCwG8J_gw.."Learn to Move, Moving Up! Sensorimotor Elementary-School Activity Themes" Brack's latest book, "Learn to Move, Moving Up! Sensorimotor Elementary-School Activity Themes," is filled with structured sensorimotor activities, ranging from baseball to outer space experiments, designed to support children's sensory needs. The themed lesson plans also include literacy and curriculum suggestions, making it easy for educators and other professionals to implement and fit them into otherwise busy schedules. Read more: http://www.autism-society.org/site/R?i=rDpPjRHuvaOVnv6CCETwGw.."Boy Alone: A Brother's Memoir"Karl Taro Greenfeld knew from an early age that his little brother,Noah, was not like other children. He couldn't crawl, and he hadtrouble making eye contact or interacting with his family. As Noahgrew older, his differences became even more pronounced--he wasunable to communicate verbally, use the toilet or tie his shoes, anddespite his angelic demeanor, he often had violent outbursts. Read more: http://www.autism-society.org/site/R?i=REIdbWEeh_4saCfo2ViQLQ..New Picture Book about Autism and ADHD"Move, Move, Move: 's Story," by Terri Swavely, is about thedaily struggles of the author's grandson with Asperger'sSyndrome and ADHD. Read more: http://www.autism-society.org/site/R?i=YJf7RA5vGPupJ8mK_yj_7Q..Sensory Assault Operations Opens Online Storory Assault Operations has gone live on the World Wide Web with"Gear for Kids on a Sensory Mission." Parents with kids who have sensory needs alone, or in addition to autism, ADD or ADHD, will findproducts created by a fellow parent. Featured are their two new products: the Sensory Assault Pack and the Propaganda Pad. Read more: http://www.autism-society.org/site/R?i=FvKyMw5Mnj0tAgoLEMyJEw.."Amie and the Purple Butterfly"When Cheryl Pillsbury's daughter was diagnosed with autism in1995, she found herself being a crusader for autism. She recentlycreated a children's series, "Amie," about a 5-year-old girl withautism. Readers discover the world by seeing it through her eyes. Readmore: http://www.autism-society.org/site/R?i=PKG-S7CCsjYJx0uTARgVUQ..Autism on the SeasAutism on the Seas is dedicated to servicing the cruising travel needsof families and individuals faced with autism and Asperger Syndrome,and all cognitive, intellectual and developmental disabilities. Readmore: http://www.autism-society.org/site/R?i=IFyhY6x8smg_SlsuMz1_2w

Latest Newsletter from ASA-Dayton Chapter

http://campaign.constantcontact.com/render?v=001-VYj-myPVdviW35zTAVm7MtDyp7CHhMnHyNXar6YSY5-vrb1HFT8Of3Tl7XrRErqU4idE_aZ3Z_k7DBgkkKC-Y9RjLU00BFEBN5Ropd6vSY%3D

ASA-Greater Cleveland (ASGC) will now host two Support Group Meetings - Independence and Avon Lake

Independence, OH Location:1st Monday of every Month 6:30-8:30 PMAvon Lake, OH Location:2nd Tuesday of every Month 7:00-9:00 PMThe ASGC is pleased to announce the addition of a 2nd Support Group meeting in the Avon Lake, OH area as a result of our meger with ASA North Central Chapter. We will now be able to offer our members two meetings per month. The locations are as follows:The 1st Monday of every month atThe City of Independence Civic Center6363 Selig DriveIndependence, OH 441316:30 - 8:30 PM & The 2nd Tuesday of every month atThe Avon Lake Public Library32649 Electric Blvd.Avon Lake, OH 440127:00 - 9:00 PMThe next meeting in Independence is scheduled for July 6, 2009. The next meeting in Avon Lake is scheduled for July 14, 2009. Speakers will be announced shortly. Please note, the Independence location offers free child care during the meeting. The Avon Lake location does not offer child care at this time. We hope that you find this addition helpful. We look forward to seeing you at one of our meetings. Please feel free to contact us at (216) 556-4937 or at support@... with any questions or concerns.Eileen HawkinsThe Autism Society of Greater ClevelandP.O. Box 41066Brecksville, OH 44141(216) 556-4937

Understanding Autism, a follow up conversation including ASA Tri-County Chapter (Youngstown) Trumbull County Family and Children First Council offers a follow-up to last fall’s panel discussion on autism. This year’s format will include breakout sessions with the panelists. Panel will include:· A parent of a child with autism· Dr. Vinci Khoury· Dr. Chiarella· Potential Development· The Rich Center· Trumbull County Educational Service Center· ASA Tri- County Autism Chapter of Ohio June 18, 20096:00 – 8:00 pmWarren YWCA375 North Park AvenueWarren, Ohio Child care will not be provided. A light meal will be served, but you must RSVP to Margie at 330.399.3412. If no answer, please leave a message.

Parent Power Committee Members: ParentsTrumbull Community Action Program Children Services BoardWarren YWCAHelp Me GrowSolace CenterOSU ExtensionBelmont PinesResource MothersHUGS support group

SincerelyTerry L. Chapin President ASA-Tri County Chapter of Ohio Tel: [1] 330-373-2917Cell: [1] 330-219-3593Fax: [1] 866-435-9008terry.chapindelphi

News from the ASA-NW Ohio Chapter (ASNO)

Flag City Music Festival to benefit Special Kids Therapy (SKT).Special Kids Therapy has already provided funding to kids with specialneeds in 15 counties in Ohio.Friday, September 4th, 2009For Artists & Tickets please visit Fat Bottom Productionshttp://www.fatbottomproductions.com/ Adult Sibling's input wantedDon Meyer of the Sibling Support Project a national effort dedicated tothe life-long concerns of brothers and sisters of people who havespecial health, developmental, or mental health concerns, has beenasked by staff at the Institute on Community Integration at thehttp://www.siblingsupport.org/University of Minnesota to write an article about sibs of agingindividuals with intellectual and developmental disabilities. Thisarticle will appear in the Fall 2009 issue of Impact, a quarterlynewsletter containing articles on research, strategies, philosophies,trends, and success stories in specific focus areas related to personswith developmental disabilities. Impact is sent to over 5000 people andisavailable on ICI & rsquo;s website. The article he is writing will befor a feature issue of Impact devoted to aging and developmentaldisabilities.http://ici.umn.edu/products/newsletters.html#variousHe is looking for adult brothers and sisters (born in the late 1950s orearlier) who wouldbe willing to share with readers what it means for them that theirsibling is growing older. If this is something that interests you,please let Don know by dropping him aline at donmeyer@.... He will then contact you and askyou to respond, in writing, to a few questions. Please know that shouldyou wish, you may share your thoughts with readers anonymously.Theprimary audiences for this special issue will be disability serviceproviders, aging service providers,families, individuals withdisabilities, and advocacy organizations.Don MeyerDirector, Sibling Support ProjectA Kindering Center program6512 23rd Ave NW, #213Seattle, WA 98117 USA206-297-6368 Fax: 206-297-1473donmeyer@...Cordially,LinellLinell Weinberg, MSWExecutive DirectorAutism Society of Northwest Ohio4848 Dorr Street Suite 1Toledo, OH 43615phone: 419-578-2766 (419-578-ASNO)fax: 419-536-5038e-mail: asno.org@...website: www.asno.orghttp://www.asno.org/

Press Release from the ASA: U.K. Autism Study Finds Prevalence one in 64Autism Society Welcomes New Study and Calls for Continued Focus on Supporting People with Autism in America BETHESDA, MD (June 1, 2009) -- A new study by researchers in the United Kingdom finds that the prevalence of autism in that country is much higher than previously thought. The current estimate of autism in the U.K. is one in 100. But the new study, led by Professor Simon Baron-Cohen of the Autism Research Centre at Cambridge University, found that for every three diagnosed cases of autism, there are two that are not diagnosed – meaning the true prevalence in the U.K. could be as high as one in 64. The Autism Society applauds this research and hopes to see similar studies done in the United States to help address the comprehensive need for services to support individuals with autism across the spectrum. “The data from this British study reflects what we are also seeing here on the ground in America,†said Autism Society President and CEO Lee Grossman. “We believe the incidence rates here are approaching those in the United Kingdom. In the U.S. educational system, states are reporting higher prevalence even with coding differences among states. There has been an unanswered and urgent need for services and supports for people with autism for decades, and we need to act now to serve.†Mr. Grossman is also a public member of the Interagency Autism Coordinating Committee of the U.S. government. In the United States, where current estimates place the prevalence of autism at one in 150, the Autism Society hears from many families whose children still have difficulty getting a diagnosis and adults who have never been identified. Reports from the state of Indiana indicate the current rate of identification in students in that state is now one in 101, and does not include children who are home-schooled or educated in private institutions, according to the Indiana Resource Center for Autism. The U.S. Centers for Disease Control and Prevention are expected to release updated estimated prevalence rates this year. “Perhaps the most important issue raised by the Cambridge study is not simply the higher prevalence rate of autism but, rather, the tremendous heterogeneity in its expression,†said Dr. Carr, Leading Professor, Department of Psychology, State University of New York at Stony Brook and a member of the Autism Society’s Applied Research team. “That means that more and varied resources will be required to do full justice to the wide range of support needs across the spectrum from severe, incapacitating disability to subtle yet challenging forms of the condition.†The study was school-based, with researchers sending diagnostic surveys to the parents of 11,700 children ages 5-9 in participating schools. Based on the scores, children were brought in for further assessment, with researchers finding a number of undiagnosed cases. “This research, conducted by prestigious and ethical researchers, should generate a call to action across schools, universities, community agencies and others who will be tremendously impacted by the rising numbers of individuals with autism spectrum disorders (ASD),†said Dr. -Myles, Autism Society Chief Program Officer, a member of the Society's Applied Research team and one of the world’s most-published applied autism researchers. “Today, the best options to ensure optimal outcomes for individuals with ASD are education and multi-faceted supports for home, community, and employment success. All who teach and support individuals with ASD and their families must understand the complex nature of the disorder and be educated on how to provide multi-faceted, comprehensive services that will serve their long-term needs.†“These numbers are very concerning. It is hard to believe that this many people with autism have always been among us,†said Dr. Martha Herbert, Research Director of the Autism Society's Treatment Guided Research program, Assistant Professor of Neurology at Harvard Medical School and pediatric neurologist at Massachusetts General Hospital. “It is both prudent and pressing to look for environmental reasons for these dramatic figures. Perhaps there is something we could be doing differently that could help prevent some of the suffering that comes with this level of need.†There are several bills currently active in U.S. Congress that could help address these needs, most notably the Autism Treatment Acceleration Act, a comprehensive bill that would provide for adult services, care centers, national teacher training and health insurance. Learn more about this legislation and others at www.autism-society.org/research_advo_action.

Resource: Families of Adults Affected by Asperger's Syndrome

Our mission is to offer support to the family members of adult individuals affected with Asperger's Syndrome. Our goal is to educate the public to the existence of Asperger's Syndrome in the ADULT population and to bring awareness of this neurological disorder and its ramifications on the "whole" family to the medical communities who are directly or indirectly involved.

http://www.faaas.org/

Summer Food Service Program Clickable Map of Ohio Locations Below is the link for the Summer Food Service Program clickable map. Ohio residents can use this map to find participating Summer Food Service Programs in their area. Just click on the appropriate county or enter a zip code and a list of names, addresses and contact information for current Summer Food Service Programs in the selected area will be generated. All children ages 1 through 18 are eligible to receive free meals during the summer months at participating program sites. Individuals ages 19 through 21 who have been identified as having mental or physical disabilities and are following Indivdiualized Education Programs (IEPs) through their current enrollment in educational programs also are eligible for free summer meals. The USDA is an equal opportunity provider and employer. Here is the link to access the map of Summer Food Service Programs in Ohio.https://oh.cnpcares.com/summer/SfspFoodServByCnty.asp

Article: Student helps teens with autism express themselves onstageAfter volunteering with children with autism, high-school student Kaellner directed and produced a stage show focusing on the lives of teens with autism. "With what he has done, the support he has given, the confidence he has given the kids, he has made a big difference," said Jane Grimes, founder of an Indianapolis-area autism-support group.http://www.indystar.com/article/20090530/LOCAL/905300463/1013/news04

Article: Asperger's syndrome doesn't slow Connecticut cross-country runnerGreg Sugar, who has Asperger's syndrome, has broken school records and enhanced his social skills through cross-country running. Sugar, 18, says running has given him more self-confidence, and he says he can even joke around with his teammates. http://www.courant.com/sports/highschool/hc-hsfeat0531.artmay31,0,7924400.story

Support Group for Parents of Adults with Autism, Shaker Hts.

I have agreed to facilitate a group for PARENTS ONLY of young adults 18 and up with Autism. We will meet once a month in Shaker Heights, OH. The purpose of these meetings is to address problems and resolve issues..The dates are June 22, 2009, July 27, 2009, August 10, 2009, Sept. 14, 2009TIME: 7-9 PMADDRESS: Tubbs Building, (formerly Shaker Community Building_ 3450 Lee Road, Shaker Heights, OH 44120Please rsvp to Judi Greenspan, jgreenspan@... or call 216-932-1989.

Article: Drug doesn't help children with autism, study saysCelexa, an antidepressant, has no more effect than a placebo in reducing repetitive behaviors in children with autism-spectrum disorders, according to a study. Children prescribed the drug do, however, experience troublesome side effects that include hyperactivity, researchers found. http://online.wsj.com/article/SB124388930925673687.html?mod=dist_smartbrief

Article: Creating A Behavior Game PlanTackling behavior is no easy task. So when we brought you Scoop Essentials: Behavior, Taming The 800-Pound Gorilla - http://www.disabilityscoop.com/2009/03/02/behavior-800-pound-gorilla/2374/, you inundated us with questions. Now, behavior specialist Deborah Lipsky, who has autism herself, is back with answers to more of your questions. She tells you what’s going on in the mind of a frustrated individual and lets you in on the secrets to developing a behavior plan that will really work.http://www.disabilityscoop.com/2009/05/19/behavior-game/3304/

Article: Research looks at gender's role in autismA recently discovered gene could help unravel why boys are more often affected by autism, according to a report in Molecular Psychiatry - http://www.nature.com/mp/journal/vaop/ncurrent/abs/mp200941a.html. "We are going to have a much better understanding of the causes of autism over the next five to 10 years," said a scientist involved in collecting data for the research. "We're in a period of great discovery."http://www.time.com/time/health/article/0,8599,1899756,00.html

Book: Play & Imagination in Children with Autismby Pamela J. Wolfberg

$23.95 Based on award-winning research, this volume offers new hope for children with autism by shedding light on both theory and practice. It goes beyond the usual autism literature by including what is known about play with typical populations."This book is a 'must' for anyone who wants to bring about genuine social reciprocity and imagination in children with autistic spectrum disorders. Pamela Wolfberg takes us on a journey through previously uncharted territory, documenting in rich qualitative detail how to scaffold entry into the culture of peer play." -- L. Schuler, San Francisco State University

http://www.asperger.net/bookstore_P103.htm

Books address autism, ADHDJust-published books about disabilities will soon arrive at booksellers nationwide. The offerings include activity books for children who have disabilities, guides to help children who have special needs and parent memoirs.http://www.publishersweekly.com/article/CA6661548.html

Article: Young Man with Aspergers honored in Liberty Township

http://www.thisweeknews.com/live/content/olentangy/stories/2009/04/29/0430poautism_ln.html?sid=104

Article: Some wary of advances in scientific understanding of autismAri Ne'eman, 21, doesn't want his Asperger's syndrome to be cured and fears that the development of a prenatal test might lead to selective abortion. Ne'eman, who founded the Autistic Self-Advocacy Network, sees the syndrome as a difference that should be valued rather than as a disability. Newsweek (5/25) http://www.newsweek.com/id/197813/page/1

Events from Project iAm, Toledo

Red, White, and Kaboom! (July 3 & 4)Project iAm is proud to join with the Komen foundation to be the charities chosen for this year’s Fourth of July celebration being presented by Taste Toledo! We will be providing the volunteers for both July 3 and 4, 2009. Enjoy music with the Battle of the Bands semi finalists and Majestic, a Journey Tribute Band on July 3. Lucas County Rib Off (August 6-9)Project iAm has been asked back to be a charity for this year’s Lucas County Rib Off at the Fairgrounds! Enjoy music by Foreigner, Lawrence, and Motown favorites. ANYONE INTERESTED IN VOLUNTEERING FOR ANY OF THESE EVENTS, PLEASE RESPOND TO THIS EMAIL!!Project iAm is so happy with the success and recognition we have gotten over the last year. We have been able to give out several scholarships to children in the area in order to help them continue on with their therapy and treatment for their specific needs. Thank you so much for all of the support you have shown us and we hope to be able to work with you again in the coming months!Thank you again for everything, KhouryExecutive Director, Project iAm

http://aboutprojectiam.com/

Latest Newsletter from Milestones, Cleveland

http://www.milestones.org/documents/June_Newsletter_2009.pdf

Midwest Innovations hosting walk-a-thon to support OASIS, Wooster

http://www.oasisautism.org/

Seminar: WHAT’S SO “SPECIAL†ABOUT SPECIAL EDUCATION?, Independence

SANDEE WINKELMAN TEAMS UP WITH LOCAL ADVOCATESTO PRESENT:WHAT’S SO “SPECIAL†ABOUT SPECIAL EDUCATION?A UNIQUE SPECIAL EDUCATION TRAINING CLINICFOR PARENTS AND ADVOCATESWHEN: SATURDAY JULY 11, 2009 AND SUNDAY JULY 12, 20099:00AM TO 5:00PM BOTH DATESWHERE: COMFORT INN; 6191 Quarry Lane, Independence, OHParents: Want to learn more about the parent’s role in special education?Advocates: Want to gain knowledge about the special education process?This clinic will provide a UNIQUE opportunity for everyone to learn more about the special education process from experienced advocates.Anticipated Topics Include:ï¶ An Overview of the Special Education Processï¶ How to keep education issues from becoming legal issuesï¶ Evaluations – What They Tell Us and How To Use This Infoï¶ IEPsï¶ 504 plansï¶ Discipline Issuesï¶ Navigating the Complaint Processï¶ Q & A with the advocates*Saturday Clinic: $75.00. Includes Breakfast and Lunch*Sunday Clinic: $75.00. Includes Breakfast and Lunch** Please note: There will be an option to select half days for those who cannot attend a full day clinic.Example: Saturday morning session and Sunday afternoon session.There are only a limited number of spaces.so please call 440-570-9171 or email Sandee Winkelman at: jswinky@... to RSVP!These clinics are not conducted by a licensed attorney and are for informational/educational purposes only. These clinics are not intended to provide legal advice. You will need to consult with an attorney for legal advice.

Self Advocacy Retreat: HELPING OTHERS, HELPING OURSELVESA RETREAT FOR OHIO’S ADVOCACY GROUPS XAVIER UNIVERSITYCINCINNATI, OHIOJULY 10, 11 & 12, 2009 Sponsored by EmpoweredPeople Reaching Out & Leadersin ActionRegistration begins at 4:00 pmon July 10th.Buenger Residence Hall atXavier University, 3800 VictoryParkway, Cincinnati, OH 45207Cost for three days, includingshared dorm room and allmeals: 200.00For more information, pleasecontact Romer at 559-6720, or Banner at 867-5932.

For more informationabout the retreat, checkout:www.butlerepro.com

ASA 2009 Book of the Year: Learners on the Autism Spectrum: Preparing Highly Qualified EducatorsEditors:Kari Dunn Buron and Pamela Wolfberg Ph.D.$59.00May 2008This text responds to the escalating need to prepare highly qualified educators with essential knowledge and practical skills to support diverse learners on the autism spectrum. Covering a range of critical topics and themes, this edited volume brings together leading experts representing diverse disciplines and perspectives (i.e., researchers, therapists, educators, parents, and adults on the autism spectrum) for a comprehensive look at the core issues related to individuals with autism spectrum disorders.Learners on the Autism Spectrum is a rare and unique collection of chapters written by leading experts in the field of ASD today ... http://www.asperger.net/bookstore_9504.htm

Article: Anti-Psychotic Brings Undesirable ConsequencesMay 26, 2009The drug Risperdal is commonly prescribed to kids with autism and ADD to help with behavior problems. But there is a little known side effect for some boys: development of breasts.http://www.disabilityscoop.com/2009/05/26/risperdal/3391/

Summer Newsletter from the OCECD

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