Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 My daughter had the same issues we seen a GI specialist who put her on Miralax for a long time it helped. She finally quit having "accidents" went off for many years but the Dr has recently placed her back on the Miralax because x-ray showed she needed it again they are hoping it helps with the bedwetting issues. Sent from my BlackBerry Smartphone provided by AlltelFrom: "egerpatt" Date: Fri, 07 Aug 2009 17:23:28 -0000< >Subject: [ ] Re: ASP and BM issues I highly recommend a full GI workup for your son. I heard some good things about Dr. Taxman in Cleveland Heights but not all positives. My son does similar things and I have no doubt in my mind that he has difficulty passing stool, and this is absolutely not a behavior, thus nothing to punish. I see my son posture, press his belly into hard surfaces, etc. b/c he needs pressure to be able to go and I see him tantrum and seize at times b/c of the pain of the BMs. My decision was to take him to the best of the best - Dr. Arthur Krigsman at the Thoughtful House. We are still not all set to go, still many tests must be completed prior to the visit but I think we will get to him before the end of the year, and scoped and all. Here's more info: www.thoughtfulhouse.com If you wonder about funding, I ythink most of it will be covered by our health insurance plan (we do have out of network benefits) , but for whatever wont be covered, I am taking out a loan from this organization: lend4health.org. I have a very good video about this, I am willing to show it again though I can not loan it at this time. I am working on obtaining extra copies and then I could loan it out. Its about exactly these issues that you are describing. HTH > > My son is seven and has been having bowel issues for awhile now. He is ASP but also PANDAS OCD and tics. I think this has become a compulsion. He used to soil his underpants but now he tries to go and says it is stuck and uses his fingers to get it out. Then he rubs his bottom on the carpet and over the register. We have such a mess to clean up. He has made his bottom bleed. I am not sure how to punish him. I put him in his room for time out. I took away his things and his computer time. He already has anger issues and a short fuse. He is throwing things at the walls and breaking his things in his room while in time-out. I am at a loss. He is mean verbally and screams at me and won't give up. He insists on a shower after the BM everytime. What can I do with him when nothing seems to help? I have been to Dr's many times and I just can't get this resolved. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 Not sure what area you are in but Dr. Deitz at Metro has been wonderful for us always returns my calls within a day! I have had more answers since seeing her in the last year than my daughter's last 12 years with all the specialists. Feel free to call me or email me off list if you have any questions. 216-210-7521bennett@...Sent from my BlackBerry Smartphone provided by AlltelFrom: "m.snyder78" Date: Fri, 07 Aug 2009 21:33:23 -0000< >Subject: [ ] Re: ASP and BM issues Here is the thing. I took him to Dr. Cunningham a psychologist specializing in encopresis. She had me make a poop chart and record stool diary. Okay that helped with the encopresis at first then this started up again with the smearing on the carpet. We did have this happen before with him rubbing his bottom over the register. Yesterday I found BM in the register. Plus smeared BM on the carpet for the third time in a day. My family is saying this is behavioral and he is doing this for attention. My family says he wants to irritate me and is pushing all my buttons that he wouldn't have put BM in the registers if it was an accident. That at age seven he is manipulating me. Today he has pooped 6 times small soft amounts in the toilet and in his underwear twice. He has showered 6 times. This is out of control and I am going to have a nervous breakdown very soon. Dr's don't return my calls or emails. What the heck should I do? If the meds are irritating his stomach and making his behaviors worse I want him off of them. What is the best Dr. to go to because I am sick of Dr's. We have seen over fourteen Dr's since this kid became sick at age 13 months. Why can't I find one that sticks by us and wants to help us figure this all out? > > > > My son is seven and has been having bowel issues for awhile now. He is ASP but also PANDAS OCD and tics. I think this has become a compulsion. He used to soil his underpants but now he tries to go and says it is stuck and uses his fingers to get it out. Then he rubs his bottom on the carpet and over the register. We have such a mess to clean up. He has made his bottom bleed. I am not sure how to punish him. I put him in his room for time out. I took away his things and his computer time. He already has anger issues and a short fuse. He is throwing things at the walls and breaking his things in his room while in time-out. I am at a loss. He is mean verbally and screams at me and won't give up. He insists on a shower after the BM everytime. What can I do with him when nothing seems to help? I have been to Dr's many times and I just can't get this resolved. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 Because of our daughter's bowel disease, we still have problems, and she's 20. We also went through many years being told that our daughter's issues were all behavioral, by more than a few doctors and therapists, and many in our family. (We tried 53 different meds over 10 years to that end.) When we feel like we can't take it anymore, we all remember that we are the only true advocates that our kids have, and we keep trying:) Understanding what's really going on inside of them is the first step to dealing effectively with both the medical issues and the behaviors. Good luck, and please feel free to contact me. Maybe something that we've been through can help you. While we haven't learned all of the answers yet, it has gotten better and it will for you, too. In a message dated 8/7/2009 4:34:18 P.M. Central Daylight Time, m.snyder78@... writes: Here is the thing. I took him to Dr. Cunningham a psychologist specializing in encopresis. She had me make a poop chart and record stool diary. Okay that helped with the encopresis at first then this started up again with the smearing on the carpet. We did have this happen before with him rubbing his bottom over the register. Yesterday I found BM in the register. Plus smeared BM on the carpet for the third time in a day. My family is saying this is behavioral and he is doing this for attention. My family says he wants to irritate me and is pushing all my buttons that he wouldn't have put BM in the registers if it was an accident. That at age seven he is manipulating me. Today he has pooped 6 times small soft amounts in the toilet and in his underwear twice. He has showered 6 times. This is out of control and I am going to have a nervous breakdown very soon. Dr's don't return my calls or emails. What the heck should I do? If the meds are irritating his stomach and making his behaviors worse I want him off of them. What is the best Dr. to go to because I am sick of Dr's. We have seen over fourteen Dr's since this kid became sick at age 13 months. Why can't I find one that sticks by us and wants to help us figure this all out? > >> > My son is seven and has been having bowel issues for awhile now. He is ASP but also PANDAS OCD and tics. I think this has become a compulsion. He used to soil his underpants but now he tries to go and says it is stuck and uses his fingers to get it out. Then he rubs his bottom on the carpet and over the register. We have such a mess to clean up. He has made his bottom bleed. I am not sure how to punish him. I put him in his room for time out. I took away his things and his computer time. He already has anger issues and a short fuse. He is throwing things at the walls and breaking his things in his room while in time-out. I am at a loss. He is mean verbally and screams at me and won't give up. He insists on a shower after the BM everytime. What can I do with him when nothing seems to help? I have been to Dr's many times and I just can't get this resolved.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 My son has had various bowel issues over the years and I have tried many different remedies: diet, supplements, etc. He had a colonoscopy by Dr. Taxman about 5 years ago, with no real explanation nor remedy for the problems. It has been a long frustrating road and I was so sick of the trial and error method with supplements. It totally stressed me out! We have been to many doctors also, many have been mentioned here.What I have found this past year and has made a BIG difference is working with a Natural Health Practitioner. She has an extensive background in nutrition and herbs and uses muscle testing which helps to determine the specific supplements that you need. No more experimenting, trial and error and wasting hundreds of dollars on things that may or may not work. My son is doing very well. His OCD has been greatly helped and the yeast is gone. His verbal skills have greatly improved and I am able to really have a conversation with him and reason with him on behavior issues. I am very pleased!!! She lives in Twinsburg and I would be happy to give you her information if you are interested. She is very reasonably priced also.Good luck,Laurie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.