Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 I've heard it mentioned several times that it's best to only open a small part of the seal for liquid fish oil. > > > > One reassuring thing we have found is that the set-backs are all > > reversible, at least in ph. > > > > Causes of set-backs/regressions in my experience: > > > > 1. Fish oil gone bad. If old, left out of the fridge, top off the > > liquid or heated (ie left in hot closet...even the pills)...the > fish > > oil oxidizes and is pretty much toxic, depleting your body of > > antioxidants (particularly vit E)...to detoxify it. > > > > Start a fresh bottle. > > > > 2. Illnesses - simple colds and otherwise benign viruses seem to > > induce regression that is temporary. (suspect that like triggering > > asthma...the viral illnesses are triggering enough inflammation to > > effect the apraxia symptoms). > > > > 3. Not getting in or taking the supplements...like when he is sick > or > > with stomach flu...vomiting and not keeping anything down. No > > supplements = regressions in our house. Or if doses were skipped > for > > some reason (ie babysitter forgot etc). > > > > 4. Exposures to allergens - eating the foods he is allergic to. We > > have seen this so many times that I am now 100% sure it is a > trigger > > for neurological symptoms...at least in my boys. In addition to > > gluten and milk, ph has a now documented yeast/mold allergy > (skin > > test positive, confirms his penacillin allergy that we knew about > > from an antibiotic reaction too, but also tested positive to > baker's > > yeast (so no baked goods with yeast or fermented items)...but also > > some supplements like selenium, and vit B complex are made from > > yeast...so if you have a true yeast allergy...you will react. > Lipase > > is made from aspergillus (a mold)...again will induce an allergic > > reaction in those allergic to aspergillus. Yeast ingestion was the > > cause of the regression back in Sept...not only did he have a cold, > > but I started baking bread with the new bread-maker that had a > gluten- > > free cycle. We did not regain the losses until he was started on > > nystatin (an antifungal - started for thrush he had from his > inhaled > > steroid asthma medicines). (But I was continuing to give him bread > > and expose him to yeast). The antifungal was not treating " toxic > > yeast " as much as it was helping decrease the burden of an allergen > > in a truly yeast-allergic child. Unfortunately mold and yeast is > > everywhere. But it can be avoided in foods, and that has make a > huge > > difference. > > > > 5. Starting supplements that are made from molds or yeast : lipase, > > selenium - induced BAD regressions that I only now understand after > > figuring out the yeast allergy, and then investigating the > > manufacturing of every supplement he had an adverse reaction to. > > > > 6. Weaning his asthma medicines caused regressions. So seems that > > the anti-inflammatory effects of Jospeh's asthma medicines were > > helping his apraxia. Makes sense if there is an allergic link to > the > > cascade of inflammation in kids like ph. ph lost > significant > > amount of speech when we took him off his inhaled > steroids...regained > > losses and had a huge surge when we started him on singulaire...a > > different form of asthma med. Fish oil also has anti-inflammatory > > effects. Perhaps this is one way it is helping our kids. Vit E is a > > potent antioxidant. At least in our case...the root of the apraxia > > keeps pointing back to allergic disease and inflammation of the > gut. > > In children with multiple food allergies...would make sense that a > > casein-gluten free diet would help. > > > > Every child is different...but if there is a regression in an > apraxic > > child, there is likely an explanation. Have you changed brands of > > vitamins/fish oil or vit E? Not all are the same, even if the > labels > > look like they should be the same. You need to be a detective to > > figure it out. > > > > - > > > Hello Everyone- > > > > > > My 3 1/2 yr old son has had a huge regression in the last > two > > days. (he > > > woke up Thursday morning with it being physically evident) > > > > > > We already have an SLP who has diagnosed him with Apraxia, > > Oral Motor > > > weakness, etc, but we also know that he has Global Apraxia > > (of Developmental > > > Dyspraxia I guess, depending on where you're located) > > > > > > We really need to find a LOCAL Expert on Apraxia who is > able > > to help us with > > > the MEDICAL issues that he's facing. We have our private > SLP, > > a 2nd SLP, OT > > > and PT that we're dealing with at Valley CCD, in > combination > > with a > > > Physiatrist, and an Orthopedic Md. We've also been to a > > regular neurologist > > > (was NOT > > > impressed with him AT ALL) and a Neurological Developmental > > Pediatrician, but > > > it seems that while they're all experts in what they do, > they > > don't seem to > > > know much about APRAXIA, and how his physical issues will > be > > affected with the > > > neurological sometimes. > > > > > > I have no idea what caused this regression/set-back, but we > > definitely feel > > > that we need to find a local Apraxia Expert that would be > > able to help us out > > > with all of this. Bergen or Passaic Counties are ideal, but > > County is > > > also a possibility if we can't find one in the other > counties. > > > We have an appt on Monday to see the Orthopedic, but I KNOW > > this isn't an > > > Ortho issue, his PT knows this, his OT knows it, the > > Chiropractor knows this, > > > but we just have to find someone that DOES know what they > are > > doing. > > > > > > Anyone know where to send me? > > > > > > Thanks in advance > > > > > > Becky<~ a mom who's at the end of her rope > > > > > > > > > > > > **************************************See AOL's top rated > > recipes > > > (http://food. <http://food.aol.com/top-rated-recipes?> > aol.com/top-rated-recipes? > > NCID=aoltop00030000000004) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 As someone who had intoeing my entire life and at one point had that foot dragging thing (for over a year)I say this: do not mess around! Dairy elimination removed these obstacles for me at the ripe old age of 40. That may or may not be your deal but I definitely think beyond the ortho you really should talk to a neuro. Plus, has a stroke been ruled out? We get so used to our kids having things that sometimes bigger new things can be missed. Lastly, this is part of apraxia is it not...just because it is not speech it is a whole disorder. > > > In a message dated 12/17/2007 12:10:47 P.M. Eastern Standard Time, > claudia.morris@... writes: > > One reassuring thing we have found is that the set-backs are all > reversible, > > > > > But here's the part that's frustrating to me-- I don't think we can call it > a " set-back " or really even a " regression " because both of those really > would mean that he's Stalled out or has taken a few steps backwards from the > progress he's already made. > Asa's been dealing with orthopedic issues on top of the Apraxia, and he's > always had a very severe in-toeing, but when I say he had a regression-- it's > not quite accurate, because he woke up on Thursday WORSE than he's ever > actually been physically speaking. So it's not as though he's made progress and then > had a set-back and things stalled out, but rather, he totally WORSENED > overall. > > I'm not sure if my wording is making sense, but in a nutshell, he's always > had the in-toeing and has had that " clumsy " walk due to that, but now he's not > only walking that way, but WORSE than he ever was, and his foot is literally > dragging and " lazy " . Almost like you would see with a person who has had a > stroke. > > Becky > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 I am not a doctor but I am a long-time sufferer of many ailments with many sets of good physicians looking at the components and nobody ever seeing the whole. Turns out dairy removal, addressing yeast and addressing celiac got rid of a lot. I still have more to do. I will say this...severe leg bowing is something also seen in my family, braces and all and I had the severe intoeing which caused great pain as an adult for my back. Leg bowing, not just per me but my pediatric gastroeneterologist, can be the result of dietary stuff, Rickets I believe, which is the reason milk began getting fortified with A and D in the first place but if malabsorbed can still occur. This kind of bone malformation stuff can also be related to environmental stuff, as in our case, fluoride. GI confirmed that possibility for my bow- legged husband. Not trying to add to your list. Not even trying to pretend I know. One thing I have noticed though, there is an upside and down side to specialties. Specialists tend to know their thing, which is great. Problem is once something is labeled by a specialist nobody else, other specialists or your regular pediatrician is curious so when new stuff pops up it is so easily blamed on the thing labeled by the specialist and true innovation and the search for solutions are gone. Probably the result of my profession (legal) and its influence on medicine which is why I won't do medmal. Also, insurance prevents a lot of medical investigation as well. Just my two cents. Were it me I'd head to a GI to rule in or out the malabsorption component and to a dan to rule in or out the environmental component. The only reason I am bothering to reply is because the orthopedic conditions I had were painful and I can only imagine they are worse for your guy. If there is a way that could be lessened I'd love for that to happen for him. > > > In a message dated 12/17/2007 11:51:51 P.M. Eastern Standard Time, > lizlaw@... writes: > > As someone who had intoeing my entire life and at one point had that > foot dragging thing (for over a year)I say this: do not mess around! > Dairy elimination removed these obstacles for me at the ripe old age > of 40. That may or may not be your deal but I definitely think beyond > the ortho you really should talk to a neuro. Plus, has a stroke been > ruled out? We get so used to our kids having things that sometimes > bigger new things can be missed. > > Lastly, this is part of apraxia is it not...just because it is not > speech it is a whole disorder. > > > > > > > Well, this is where it DOES get confusing for Asa. > He has an ORTHOPEDIC Disease called Blount's Disease, which is a severe > Bowing of the legs > (thighs) which, of course, will point those toes inward. But it's not a > slight in-toeing, but literally TOE OVER TOE when he walks. > That's always been 1 difficulty that is totally UN-related to the Apraxia. > > He had full-leg braces that corrected the bowing, but I believe part of the > problems now is that because he's been walking toe-over-toe for his whole > life, his Neural pathways are trained that way. So even though we've gotten rid > of the **BIGGER** problem orthopedic-wise, there is a slight tibial torsion > resulting, but on TOP of that is the severe in-toeing that I believe is > consequential to the Apraxia and Neural issues. So unfortunately, for *HIM* there's > no " RIGHT " answer at this point. > This is why I'm so frustrated. > > The Apraxia part of it, wouldn't make the actual walking *WORSE* at this > point, unless there's some other issue going on, so we're trying to figure out > what that issue is. Nothing in his diet has changed. Nothing in daily > routine, etc. > When we went into this Apraxia " thing " , I knew it was what it was-- and that > was ok, because we just take it from what it was and it could only get > BETTER from there. But, this time, it's not like that, and it's scaring me a bit > making me wonder what else is out there lurking for him. > > Right now this is who we have working with us: (just for THIS issue with him) > ~2 Physical Therapists > ~Chiropractor > ~Regular Pediatrician > ~Neural Developmental Pediatrician > ~Physiatrist (which is a new one for most people-- she looks at things > Holistically-- Bone and muscle etc together > ~2 Pediatric Orthopedic Speacialists > ~Orthotics Specialist/Designer > > and we have already had a consult with a regular Neurologist as well. (I did > NOT find him helpful at all) > > So as you can see-- there's already a lot of people working at this, but I > still can't seem to get any ANSWERS as to what's going on that's newly > developed with him. It's a NEW and WORSENED walk that wasn't like before, so I know > that there's SOMEthing happening, just don't know WHAT. <sigh> > I definitely know it's related to the Global Apraxia, but I also pray that > it's nothing else. > (the thoughts of a tumor hit me today <sigh> not probable thank GOD, but > it's there in the back of my head) > > At the Ortho appt today--of course nothing showed up Orthopedicaly (knew it > wouldn't) > > The normal NDP that we see and the Physiatrist, are both un- reachable til > Wed and the other on Fri, and they are the ones I know should be able to help us > a little with this. > I called the same office and spoke to the other NDP there, who someone here > referred me to, and she was going to try to help see him until she found out > that we were going to the Ortho today. I don't get it-- because she HAS to > know it's a Neural issue, and that the Ortho wouldn't be able to help, and she > also knew that the Ortho that we were going to was NOT covered under our > insurance, so it was going to be $200 CASH out of pocket, but still said to go > to him first. > ARrrrgh > > I later spoke with the regular Ped, and the first thing he said when I > described how Asa woke up (like his feet were asleep) was that I needed a Nuero!! > So if HE knows this, why can't the SPECIALISTS know it? > LOL > anyhoo-- it's not declining from this point, so whatever is going on is > something that will just wait til Wed when we can see the other gal. > > Becky > > > > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 > > Our " regressions " with fish oil that had gone bad, or introduction of a supplement that was made from a fungus or yeast (which triggered an allergic reaction)...were not mild. They were very scary. The first time it happened I thought my son was finally manifesting the symptoms of a neurogenerative disorder or mitochondrial disorder (which can be associated with rapid neurological decline). These were very scary events...and each time we have identified a cause (although sometimes that cause was not identified until a year later when we understood more about this disorder). You need to look for the cause. Something is making him worse. What is new? New food? New supplement? New bottle of a supplement you were using before? You will need to rack your brain. I would never have associated baking bread (ingestion of yeast)...with the regression that ph had in september, until the yeast/mold allergy was identified, and then I realized that his symptoms started around the time we bought the new bread machine. Neuroregression warrants a work-up. There are also infections that can do this. You need to have him seen by his pediatrician, document the changes you are seeing, and try to figure out what triggered it. > In a message dated 12/17/2007 12:10:47 P.M. Eastern Standard Time, > claudia.morris@... writes: > > One reassuring thing we have found is that the set-backs are all > reversible, > > > > > But here's the part that's frustrating to me-- I don't think we can call it > a " set-back " or really even a " regression " because both of those really > would mean that he's Stalled out or has taken a few steps backwards from the > progress he's already made. > Asa's been dealing with orthopedic issues on top of the Apraxia, and he's > always had a very severe in-toeing, but when I say he had a regression-- it's > not quite accurate, because he woke up on Thursday WORSE than he's ever > actually been physically speaking. So it's not as though he's made progress and then > had a set-back and things stalled out, but rather, he totally WORSENED > overall. > > I'm not sure if my wording is making sense, but in a nutshell, he's always > had the in-toeing and has had that " clumsy " walk due to that, but now he's not > only walking that way, but WORSE than he ever was, and his foot is literally > dragging and " lazy " . Almost like you would see with a person who has had a > stroke. > > Becky > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 OK, not that I know anything other than what happened to me but I'll share that much and refer you to 's post. When I had the worst foot dragging thing my ortho was perplexed. I had yeast and bowel stuff and was working with a gastro so a neuro visit was warranted to rule out MS. I did not just have foot dragging either now that I think of it...there was other stuff like carpal tunnel, mostly on the right. It was devastating for sure and got worse for a 2 year period. I forced myself to go to work because I feared I'd just die at home. At least trying to get to work gave me focus. It was the worst time of my life. The MRI showed no tumors and no MS. 's post rings true for me because I have played peekaboo with this since then but it was never so bad as back then. I had new back stuff with my pregnancies but we all see that was a bone thing, likely celiac...this yeast thing seemed like a nerve thing and it was awful. Don't panic and reread 's post. Anything new...new soap, water, food....more of a longstanding food? New school? New house, nw place he goes? Mold is everywhere....something like a new school where he goes all day with a big mold exposure can't be good. I should mention I, like 's ph, have a longstanding (39 years) documented allergy to penicillin but never had the typical allergy stuff as a kid. No one ever mentioned mold, I never had asthma but have had bowel and yeast stuff for years...far too many. Never, ever have I seen all that connected until today. I wish my own docs had put this together and I did not have to read this here. So much could have been avoided. Please focus on 's words first. This is big stuff. Take on the tumor idea after you have done the detective work. You may be surprised at what you find and how empowered you can be to help your sweet boy. I sure hope that is the case and the tumor is not. Best Wishes! Liz > > > In a message dated 12/17/2007 11:51:51 P.M. Eastern Standard Time, > lizlaw@... writes: > > As someone who had intoeing my entire life and at one point had that > foot dragging thing (for over a year)I say this: do not mess around! > Dairy elimination removed these obstacles for me at the ripe old age > of 40. That may or may not be your deal but I definitely think beyond > the ortho you really should talk to a neuro. Plus, has a stroke been > ruled out? We get so used to our kids having things that sometimes > bigger new things can be missed. > > Lastly, this is part of apraxia is it not...just because it is not > speech it is a whole disorder. > > > > > > > Well, this is where it DOES get confusing for Asa. > He has an ORTHOPEDIC Disease called Blount's Disease, which is a severe > Bowing of the legs > (thighs) which, of course, will point those toes inward. But it's not a > slight in-toeing, but literally TOE OVER TOE when he walks. > That's always been 1 difficulty that is totally UN-related to the Apraxia. > > He had full-leg braces that corrected the bowing, but I believe part of the > problems now is that because he's been walking toe-over-toe for his whole > life, his Neural pathways are trained that way. So even though we've gotten rid > of the **BIGGER** problem orthopedic-wise, there is a slight tibial torsion > resulting, but on TOP of that is the severe in-toeing that I believe is > consequential to the Apraxia and Neural issues. So unfortunately, for *HIM* there's > no " RIGHT " answer at this point. > This is why I'm so frustrated. > > The Apraxia part of it, wouldn't make the actual walking *WORSE* at this > point, unless there's some other issue going on, so we're trying to figure out > what that issue is. Nothing in his diet has changed. Nothing in daily > routine, etc. > When we went into this Apraxia " thing " , I knew it was what it was-- and that > was ok, because we just take it from what it was and it could only get > BETTER from there. But, this time, it's not like that, and it's scaring me a bit > making me wonder what else is out there lurking for him. > > Right now this is who we have working with us: (just for THIS issue with him) > ~2 Physical Therapists > ~Chiropractor > ~Regular Pediatrician > ~Neural Developmental Pediatrician > ~Physiatrist (which is a new one for most people-- she looks at things > Holistically-- Bone and muscle etc together > ~2 Pediatric Orthopedic Speacialists > ~Orthotics Specialist/Designer > > and we have already had a consult with a regular Neurologist as well. (I did > NOT find him helpful at all) > > So as you can see-- there's already a lot of people working at this, but I > still can't seem to get any ANSWERS as to what's going on that's newly > developed with him. It's a NEW and WORSENED walk that wasn't like before, so I know > that there's SOMEthing happening, just don't know WHAT. <sigh> > I definitely know it's related to the Global Apraxia, but I also pray that > it's nothing else. > (the thoughts of a tumor hit me today <sigh> not probable thank GOD, but > it's there in the back of my head) > > At the Ortho appt today--of course nothing showed up Orthopedicaly (knew it > wouldn't) > > The normal NDP that we see and the Physiatrist, are both un- reachable til > Wed and the other on Fri, and they are the ones I know should be able to help us > a little with this. > I called the same office and spoke to the other NDP there, who someone here > referred me to, and she was going to try to help see him until she found out > that we were going to the Ortho today. I don't get it-- because she HAS to > know it's a Neural issue, and that the Ortho wouldn't be able to help, and she > also knew that the Ortho that we were going to was NOT covered under our > insurance, so it was going to be $200 CASH out of pocket, but still said to go > to him first. > ARrrrgh > > I later spoke with the regular Ped, and the first thing he said when I > described how Asa woke up (like his feet were asleep) was that I needed a Nuero!! > So if HE knows this, why can't the SPECIALISTS know it? > LOL > anyhoo-- it's not declining from this point, so whatever is going on is > something that will just wait til Wed when we can see the other gal. > > Becky > > > > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 OH MY GOD.......THIS IS MY DAUGHTER! THIS PAST MAY SHE LOST ALL OF HER SKILLS WITHIN A THREE WEEK PERIOD! After three weeks of being sick, my little girl lost all of her skills and was being described by everyone as Autistic. Everyone says her situation is " unusual " , after that they have very little help to offer. , you mention in your e-mail that allergies and infections can cause regressions. What kind of infections should I be looking into? I have been telling everyone that I think we are missing something with my little girl. I strongly believe the three weeks she was sick is the direct link to her regression. Any guidance's is greatly appreciated. My daughter does have food allergies and is on a gluten-casein free diet. Taking supplements under supervision of a dr. Thank you. " claudia.morris " <claudia.morris@...> wrote: > > Our " regressions " with fish oil that had gone bad, or introduction of a supplement that was made from a fungus or yeast (which triggered an allergic reaction)...were not mild. They were very scary. The first time it happened I thought my son was finally manifesting the symptoms of a neurogenerative disorder or mitochondrial disorder (which can be associated with rapid neurological decline). These were very scary events...and each time we have identified a cause (although sometimes that cause was not identified until a year later when we understood more about this disorder). You need to look for the cause. Something is making him worse. What is new? New food? New supplement? New bottle of a supplement you were using before? You will need to rack your brain. I would never have associated baking bread (ingestion of yeast)...with the regression that ph had in september, until the yeast/mold allergy was identified, and then I realized that his symptoms started around the time we bought the new bread machine. Neuroregression warrants a work-up. There are also infections that can do this. You need to have him seen by his pediatrician, document the changes you are seeing, and try to figure out what triggered it. > In a message dated 12/17/2007 12:10:47 P.M. Eastern Standard Time, > claudia.morris@... writes: > > One reassuring thing we have found is that the set-backs are all > reversible, > > > > > But here's the part that's frustrating to me-- I don't think we can call it > a " set-back " or really even a " regression " because both of those really > would mean that he's Stalled out or has taken a few steps backwards from the > progress he's already made. > Asa's been dealing with orthopedic issues on top of the Apraxia, and he's > always had a very severe in-toeing, but when I say he had a regression-- it's > not quite accurate, because he woke up on Thursday WORSE than he's ever > actually been physically speaking. So it's not as though he's made progress and then > had a set-back and things stalled out, but rather, he totally WORSENED > overall. > > I'm not sure if my wording is making sense, but in a nutshell, he's always > had the in-toeing and has had that " clumsy " walk due to that, but now he's not > only walking that way, but WORSE than he ever was, and his foot is literally > dragging and " lazy " . Almost like you would see with a person who has had a > stroke. > > Becky > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2007 Report Share Posted December 19, 2007 Just wanted to thank you for this post. The yeast connection is fascinating. I posted earlier about our daughter's regression and am still looking for info on dosages for Omega 3 and E and any others suggested, but this yeast thing as me thinking. How do you test for yeast allergy? Is it IgG or IgE or waht? (confusing!) > > > > > Our " regressions " with fish oil that had gone bad, or introduction of > a supplement that was made from a fungus or yeast (which triggered an > allergic reaction)...were not mild. They were very scary. The first > time it happened I thought my son was finally manifesting the > symptoms of a neurogenerative disorder or mitochondrial disorder > (which can be associated with rapid neurological decline). These were > very scary events...and each time we have identified a cause > (although sometimes that cause was not identified until a year later > when we understood more about this disorder). You need to look for > the cause. Something is making him worse. What is new? New food? New > supplement? New bottle of a supplement you were using before? You > will need to rack your brain. I would never have associated baking > bread (ingestion of yeast)...with the regression that ph had in > september, until the yeast/mold allergy was identified, and then I > realized that his symptoms started around the time we bought the new > bread machine. > > Neuroregression warrants a work-up. There are also infections that > can do this. You need to have him seen by his pediatrician, document > the changes you are seeing, and try to figure out what triggered it. > > > In a message dated 12/17/2007 12:10:47 P.M. Eastern Standard Time, > > claudia.morris@ writes: > > > > One reassuring thing we have found is that the set-backs are all > > reversible, > > > > > > > > > > But here's the part that's frustrating to me-- I don't think we > can call it > > a " set-back " or really even a " regression " because both of those > really > > would mean that he's Stalled out or has taken a few steps backwards > from the > > progress he's already made. > > Asa's been dealing with orthopedic issues on top of the Apraxia, > and he's > > always had a very severe in-toeing, but when I say he had a > regression-- it's > > not quite accurate, because he woke up on Thursday WORSE than he's > ever > > actually been physically speaking. So it's not as though he's made > progress and then > > had a set-back and things stalled out, but rather, he totally > WORSENED > > overall. > > > > I'm not sure if my wording is making sense, but in a nutshell, he's > always > > had the in-toeing and has had that " clumsy " walk due to that, but > now he's not > > only walking that way, but WORSE than he ever was, and his foot is > literally > > dragging and " lazy " . Almost like you would see with a person who > has had a > > stroke. > > > > Becky > > > > > > > > **************************************See AOL's top rated recipes > > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2007 Report Share Posted December 19, 2007 > > > > > > > > Our " regressions " with fish oil that had gone bad, or introduction > of > > a supplement that was made from a fungus or yeast (which triggered > an > > allergic reaction)...were not mild. They were very scary. The first > > time it happened I thought my son was finally manifesting the > > symptoms of a neurogenerative disorder or mitochondrial disorder > > (which can be associated with rapid neurological decline). These > were > > very scary events...and each time we have identified a cause > > (although sometimes that cause was not identified until a year > later > > when we understood more about this disorder). You need to look for > > the cause. Something is making him worse. What is new? New food? > New > > supplement? New bottle of a supplement you were using before? You > > will need to rack your brain. I would never have associated baking > > bread (ingestion of yeast)...with the regression that ph had in > > september, until the yeast/mold allergy was identified, and then I > > realized that his symptoms started around the time we bought the > new > > bread machine. > > > > Neuroregression warrants a work-up. There are also infections that > > can do this. You need to have him seen by his pediatrician, > document > > the changes you are seeing, and try to figure out what triggered it. > > > > > In a message dated 12/17/2007 12:10:47 P.M. Eastern Standard > Time, > > > claudia.morris@ writes: > > > > > > One reassuring thing we have found is that the set-backs are all > > > reversible, > > > > > > > > > > > > > > > But here's the part that's frustrating to me-- I don't think we > > can call it > > > a " set-back " or really even a " regression " because both of those > > really > > > would mean that he's Stalled out or has taken a few steps > backwards > > from the > > > progress he's already made. > > > Asa's been dealing with orthopedic issues on top of the Apraxia, > > and he's > > > always had a very severe in-toeing, but when I say he had a > > regression-- it's > > > not quite accurate, because he woke up on Thursday WORSE than > he's > > ever > > > actually been physically speaking. So it's not as though he's > made > > progress and then > > > had a set-back and things stalled out, but rather, he totally > > WORSENED > > > overall. > > > > > > I'm not sure if my wording is making sense, but in a nutshell, > he's > > always > > > had the in-toeing and has had that " clumsy " walk due to that, but > > now he's not > > > only walking that way, but WORSE than he ever was, and his foot > is > > literally > > > dragging and " lazy " . Almost like you would see with a person who > > has had a > > > stroke. > > > > > > Becky > > > > > > > > > > > > **************************************See AOL's top rated recipes > > > (http://food.aol.com/top-rated-recipes? NCID=aoltop00030000000004) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 OMG i don't know what this is all about but my 9yr old has been the same, eating his food very loudly disgusting to everyone else trying to eat, he constantly says hes bored and ready for snack right after leaving the dinner table, he never watches where he is going even when riding a bike he is so busy watching everything around him he scares me to death some times. so sorry to butt in to something i didn't know about but had to telll you my son's the same way.Sherry in Pa First of all let me ask if your kid has a balance problem or is just being clumsy? Is this an Asperger thing? He is standing there talking & backs into something or walks right at a person without going around them almost touching that person & he crashes into things. Yesterday when talking to me he backed up crashing into the microwave & it almost fell off it's stand. Also he never ever blows his nose & he is so stuffed up. I had to fight with him to do so this morning & he finally did blow & almost threw up from gagging. He is so impulsive anymore. He grabs food or touches other's food on their plates,grabs & touches things he wants. When he eats it's like a whole herd of cattle at the table. He chomps & food is flying out of his mouth, he has his head bac & his eyes are almost closed.He is in heaven. Once he is done with a meal he is ready for dessert. I say not yet wait awhile & he starts to argue. He is always "Bored." He has a new Wii with lots of new games plus other video systeeems to play with. He has been really getting on my last nerve lately. I don't know maybe it was because school was out 2 days cause of the snow.He goes to dad's this weekend...Ya Hooooooo.Betty Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 OMG i don't know what this is all about but my 9yr old has been the same, eating his food very loudly disgusting to everyone else trying to eat, he constantly says hes bored and ready for snack right after leaving the dinner table, he never watches where he is going even when riding a bike he is so busy watching everything around him he scares me to death some times. so sorry to butt in to something i didn't know about but had to telll you my son's the same way.Sherry in Pa First of all let me ask if your kid has a balance problem or is just being clumsy? Is this an Asperger thing? He is standing there talking & backs into something or walks right at a person without going around them almost touching that person & he crashes into things. Yesterday when talking to me he backed up crashing into the microwave & it almost fell off it's stand. Also he never ever blows his nose & he is so stuffed up. I had to fight with him to do so this morning & he finally did blow & almost threw up from gagging. He is so impulsive anymore. He grabs food or touches other's food on their plates,grabs & touches things he wants. When he eats it's like a whole herd of cattle at the table. He chomps & food is flying out of his mouth, he has his head bac & his eyes are almost closed.He is in heaven. Once he is done with a meal he is ready for dessert. I say not yet wait awhile & he starts to argue. He is always "Bored." He has a new Wii with lots of new games plus other video systeeems to play with. He has been really getting on my last nerve lately. I don't know maybe it was because school was out 2 days cause of the snow.He goes to dad's this weekend...Ya Hooooooo.Betty Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Hey Betty, Sounds like you need a break! Yes, that clumsy thing is part of autism. OT's call it "proprioceptive" (sp) but basically it means knowing where your body is in relation to your surroundings. My older ds had it worse and used to walk into the sides of doorways often as he misjudged the spacing. Both boys are hard to take shopping because they don't know to move over and let people pass, they are oblivious to when they are in the way or need to move. My older ds has gotten much better over the years at manuevering himself around but I don't think it's been until these past few years that I noticed an improvement for him. Anyway, usually OT's work on this problem. We've never had one work with our kids on it so I don't know how well therapy helps. As for the food/meal issues, my 11 yo ds sometimes eats like he is in heaven too. lol. We don't have the open mouth problem though. Just keep working on it. See if you can get the OT to help with some of these things. These are all life skills that they should help him with. RoxannaAutism Happens ( ) Issues First of all let me ask if your kid has a balance problem or is just being clumsy? Is this an Asperger thing? He is standing there talking & backs into something or walks right at a person without going around them almost touching that person & he crashes into things. Yesterday when talking to me he backed up crashing into the microwave & it almost fell off it's stand. Also he never ever blows his nose & he is so stuffed up. I had to fight with him to do so this morning & he finally did blow & almost threw up from gagging. He is so impulsive anymore. He grabs food or touches other's food on their plates,grabs & touches things he wants. When he eats it's like a whole herd of cattle at the table. He chomps & food is flying out of his mouth, he has his head bac & his eyes are almost closed.He is in heaven. Once he is done with a meal he is ready for dessert. I say not yet wait awhile & he starts to argue. He is always "Bored." He has a new Wii with lots of new games plus other video systeeems to play with. He has been really getting on my last nerve lately. I don't know maybe it was because school was out 2 days cause of the snow.He goes to dad's this weekend...Ya Hooooooo.Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Betty I agree with Sherry and Roxanna. I wondered for years whether these things were just "boy stuff" or AS. We still have to cue our 16 yo about eating with his mouth closed and about being aware of things/people around him. After years of repetition, I feel safe saying it is definitely an AS issue with him and not just a boy thing. Physically, he tends to be clumsy. Has difficulty with body awareness, recognizing the personal space of others, etc.. We cue him on these issues. It's really hard to not sound like a nag at times though. Plus, like all kids, they do tend to tune you out. I've found that if the info comes from another adult, such as a teacher or therapist, it means so much more to the child than it does coming from the parent! Good news is that we have definitely seen marked improvement. So, there is light at the end of the tunnel! My son loves to eat. At times he'll still tend to eat with his mouth open or make "yum" sounds. We try to lightly tease with him that he's making a "religious experience" out of his meals. As he's gotten older, it's been a little easier to teach him. I tell him that I don't mean to nag, but I'm just trying to teach him so that he isn't embarassed when he's with his peers or others outside the family. Often job interviews may call for him to meet over a meal and employers will notice his table manners. Sometimes giving third person examples like this help as opposed to me constantly telling him to stop. It's not easy. Just try to find the patience for yourself. Enjoy your weekend! Mimstruegrittle <truegrittle@...> wrote: First of all let me ask if your kid has a balance problem or is just being clumsy? Is this an Asperger thing? He is standing there talking & backs into something or walks right at a person without going around them almost touching that person & he crashes into things. Yesterday when talking to me he backed up crashing into the microwave & it almost fell off it's stand. Also he never ever blows his nose & he is so stuffed up. I had to fight with him to do so this morning & he finally did blow & almost threw up from gagging. He is so impulsive anymore. He grabs food or touches other's food on their plates,grabs & touches things he wants. When he eats it's like a whole herd of cattle at the table. He chomps & food is flying out of his mouth, he has his head bac & his eyes are almost closed.He is in heaven. Once he is done with a meal he is ready for dessert. I say not yet wait awhile & he starts to argue. He is always "Bored." He has a new Wii with lots of new games plus other video systeeems to play with. He has been really getting on my last nerve lately. I don't know maybe it was because school was out 2 days cause of the snow.He goes to dad's this weekend...Ya Hooooooo.Betty Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 -YEESSSS! at last a name for why he sits there or stands there without moving when someone is trying to get by or go around him! He likes to help out in the kitchen but I am constantly moving him over out of the way and get so frustrated, I usually kick him out, or over to the other side of work area within a few minutes. Has NO SENSE whatsoever that somebody is trying to get by. I have seen no improvement unfortunately, he's 23! Thanks for the info. SUe in TN -- In , " Roxanna " <madideas@...> wrote: > > Hey Betty, > Sounds like you need a break! > Yes, that clumsy thing is part of autism. OT's call it " proprioceptive " (sp) but basically it means knowing where your body is in relation to your surroundings. My older ds had it worse and used to walk into the sides of doorways often as he misjudged the spacing. Both boys are hard to take shopping because they don't know to move over and let people pass, they are oblivious to when they are in the way or need to move. My older ds has gotten much better over the years at manuevering himself around but I don't think it's been until these past few years that I noticed an improvement for him. Anyway, usually OT's work on this problem. We've never had one work with our kids on it so I don't know how well therapy helps. > > As for the food/meal issues, my 11 yo ds sometimes eats like he is in heaven too. lol. We don't have the open mouth problem though. Just keep working on it. See if you can get the OT to help with some of these things. These are all life skills that they should help him with. > > Roxanna > Autism Happens > ( ) Issues > > > First of all let me ask if your kid has a balance problem or is > just being clumsy? Is this an Asperger thing? He is standing > there talking & backs into something or walks right at a person > without going around them almost touching that person & he crashes > into things. Yesterday when talking to me he backed up crashing into > the microwave & it almost fell off it's stand. Also he never ever > blows his nose & he is so stuffed up. I had to fight with him to do so > this morning & he finally did blow & almost threw up from gagging. He > is so impulsive anymore. He grabs food or touches other's food on > their plates,grabs & touches things he wants. When he eats it's like a > whole herd of cattle at the table. He chomps & food is flying out of > his mouth, he has his head bac & his eyes are almost closed.He is in > heaven. Once he is done with a meal he is ready for dessert. I say not > yet wait awhile & he starts to argue. He is always " Bored. " He has a > new Wii with lots of new games plus other video systeeems to play > with. He has been really getting on my last nerve lately. I don't know > maybe it was because school was out 2 days cause of the snow. > He goes to dad's this weekend...Ya Hooooooo. > Betty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Sue, did you see this site? Identifying and understanding this disorder is HUGE! Please understand the "Five Caveats" that Carol Stock Kranowitz points out in her book, "The Out-Of-Sync Child" (1995), about using a checklist such as this. She writes: 1. "The child with sensory dysfunction does not necessarily exhibit every characteristic. Thus, the child with vestibular dysfunction may have poor balance but good muscle tone." 2. "Sometimes the child will show characteristics of a dysfunction one day but not the next. For instance, the child with proprioceptive problems may trip over every bump in the pavement on Friday yet score every soccer goal on Saturday. INCONSISTENCY IS A HALLMARK OF EVERY NEUROLOGICAL DYSFUNCTION." 3. "The child may exhibit characteristics of a particular dysfunction yet not have that dysfunction. For example, the child who typically withdraws from being touched may seem to be hypersensitive to tactile stimulation but may, instead, have an emotional problem." 4. "The child may be both hypersensitive and hyposensitive. For instance, the child may be extremely sensitive to light touch, jerking away from a soft pat on the shoulder, while being rather indifferent to the deep pain of an inoculation." 5. "Everyone has some sensory integration problems now and then, because no one is well regulated all the time. All kinds of stimuli can temporarily disrupt normal functioning of the brain, either by overloading it with, or by depriving it of, sensory stimulation." TACTILE SENSE: input from the skin receptors about touch, pressure, temperature, pain, and movement of the hairs on the skin. SIGNS OF TACTILE DYSFUNCTION: 1. HYPERSENSITIVITY TO TOUCH (tactile defensiveness): __ becomes fearful, anxious or aggressive with light or unexpected touch __ as an infant, did/does not like to be held or cuddled; may arch back, cry, and pull away __ distressed when diaper is being, or needs to be, changed __ appears fearful of, or avoids standing in close proximity to other people or peers (especially in lines) __ becomes frightened when touched from behind or by someone/something they can not see (such as under a blanket) __ complains about having hair brushed; may be very picky about using a particular brush __ bothered by rough bed sheets (i.e., if old and "bumpy") __ avoids group situations for fear of the unexpected touch __ resists friendly or affectionate touch from anyone besides parents or siblings (and sometimes them too!) __ dislikes kisses, will "wipe off" place where kissed __ prefers hugs __ a raindrop, water from the shower, or wind blowing on the skin may feel like torture and produce adverse and avoidance reactions __ may overreact to minor cuts, scrapes, and or bug bites __ avoids touching certain textures of material (blankets, rugs, stuffed animals) __ refuses to wear new or stiff clothes, clothes with rough textures, turtlenecks, jeans, hats, or belts, etc. __ avoids using hands for play __ avoids/dislikes/aversive to "messy play", i.e., sand, mud, water, glue, glitter, playdoh, slime, shaving cream/funny foam etc. __ will be distressed by dirty hands and want to wipe or wash them frequently __ excessively ticklish __ distressed by seams in socks and may refuse to wear them __ distressed by clothes rubbing on skin; may want to wear shorts and short sleeves year round, toddlers may prefer to be naked and pull diapers and clothes off constantly __ or, may want to wear long sleeve shirts and long pants year round to avoid having skin exposed __ distressed about having face washed __ distressed about having hair, toenails, or fingernails cut __ resists brushing teeth and is extremely fearful of the dentist __ is a picky eater, only eating certain tastes and textures; mixed textures tend to be avoided as well as hot or cold foods; resists trying new foods __ may refuse to walk barefoot on grass or sand __ may walk on toes only 2. HYPOSENSITIVITY TO TOUCH (under-responsive): __ may crave touch, needs to touch everything and everyone __ is not aware of being touched/bumped unless done with extreme force or intensity __ is not bothered by injuries,like cuts and bruises, and shows no distress with shots (may even say they love getting shots!) __ may not be aware that hands or face are dirty or feel his/her nose running __ may be self-abusive; pinching, biting, or banging his own head __ mouths objects excessively __ frequently hurts other children or pets while playing __ repeatedly touches surfaces or objects that are soothing (i.e., blanket) __ seeks out surfaces and textures that provide strong tactile feedback __ thoroughly enjoys and seeks out messy play __ craves vibrating or strong sensory input __ has a preference and craving for excessively spicy, sweet, sour, or salty foods 3. POOR TACTILE PERCEPTION AND DISCRIMINATION: __ has difficulty with fine motor tasks such as buttoning, zipping, and fastening clothes __ may not be able to identify which part of their body was touched if they were not looking __ may be afraid of the dark __ may be a messy dresser; looks disheveled, does not notice pants are twisted, shirt is half untucked, shoes are untied, one pant leg is up and one is down, etc. __ has difficulty using scissors, crayons, or silverware __ continues to mouth objects to explore them even after age two __ has difficulty figuring out physical characteristics of objects; shape, size, texture, temperature, weight, etc. __ may not be able to identify objects by feel, uses vision to help; such as, reaching into backpack or desk to retrieve an item VESTIBULAR SENSE: input from the inner ear about equilibrium, gravitational changes, movement experiences, and position in space. SIGNS OF VESTIBULAR DYSFUNCTION: 1. HYPERSENSITIVITY TO MOVEMENT (over-responsive): __ avoids/dislikes playground equipment; i.e., swings, ladders, slides, or merry-go-rounds __ prefers sedentary tasks, moves slowly and cautiously, avoids taking risks, and may appear "wimpy" __ avoids/dislikes elevators and escalators; may prefer sitting while they are on them or, actually get motion sickness from them __ may physically cling to an adult they trust __ may appear terrified of falling even when there is no real risk of it __ afraid of heights, even the height of a curb or step __ fearful of feet leaving the ground __ fearful of going up or down stairs or walking on uneven surfaces __ afraid of being tipped upside down, sideways or backwards; will strongly resist getting hair washed over the sink __ startles if someone else moves them; i.e., pushing his/her chair closer to the table __ as an infant, may never have liked baby swings or jumpers __ may be fearful of, and have difficulty riding a bike, jumping, hopping, or balancing on one foot (especially if eyes are closed) __ may have disliked being placed on stomach as an infant __ loses balance easily and may appear clumsy __ fearful of activities which require good balance __ avoids rapid or rotating movements 2. HYPOSENSITIVITY TO MOVEMENT (under-responsive): __ in constant motion, can't seem to sit still __ craves fast, spinning, and/or intense movement experiences __ loves being tossed in the air __ could spin for hours and never appear to be dizzy __ loves the fast, intense, and/or scary rides at amusement parks __ always jumping on furniture, trampolines, spinning in a swivel chair, or getting into upside down positions __ loves to swing as high as possible and for long periods of time __ is a "thrill-seeker"; dangerous at times __ always running, jumping, hopping etc. instead of walking __ rocks body, shakes leg, or head while sitting __ likes sudden or quick movements, such as, going over a big bump in the car or on a bike 3. POOR MUSCLE TONE AND/OR COORDINATION: __ has a limp, "floppy" body __ frequently slumps, lies down, and/or leans head on hand or arm while working at his/her desk __ difficulty simultaneously lifting head, arms, and legs off the floor while lying on stomach ("superman" position) __ often sits in a "W sit" position on the floor to stabilize body __ fatigues easily! __ compensates for "looseness" by grasping objects tightly __ difficulty turning doorknobs, handles, opening and closing items __ difficulty catching him/her self if falling __ difficulty getting dressed and doing fasteners, zippers, and buttons __ may have never crawled as an baby __ has poor body awareness; bumps into things, knocks things over, trips, and/or appears clumsy __ poor gross motor skills; jumping, catching a ball, jumping jacks, climbing a ladder etc. __ poor fine motor skills; difficulty using "tools", such as pencils, silverware, combs, scissors etc. __ may appear ambidextrous, frequently switching hands for coloring, cutting, writing etc.; does not have an established hand preference/dominance by 4 or 5 years old __ has difficulty licking an ice cream cone __ seems to be unsure about how to move body during movement, for example, stepping over something __ difficulty learning exercise or dance steps PROPRIOCEPTIVE SENSE: input from the muscles and joints about body position, weight, pressure, stretch, movement, and changes in position in space. SIGNS OF PROPRIOCEPTIVE DYSFUNCTION: 1. SENSORY SEEKING BEHAVIORS: __ seeks out jumping, bumping, and crashing activities __ stomps feet when walking __ kicks his/her feet on floor or chair while sitting at desk/table __ bites or sucks on fingers and/or frequently cracks his/her knuckles __ loves to be tightly wrapped in many or weighted blankets, especially at bedtime __ prefers clothes (and belts, hoods, shoelaces) to be as tight as possible __ loves/seeks out "squishing" activities __ enjoys bear hugs __ excessive banging on/with toys and objects __ loves "roughhousing" and tackling/wrestling games __ frequently falls on floor intentionally __ would jump on a trampoline for hours on end __ grinds his/her teeth throughout the day __ loves pushing/pulling/dragging objects __ loves jumping off furniture or from high places __ frequently hits, bumps or pushes other children __ chews on pens, straws, shirt sleeves etc. 2. DIFFICULTY WITH "GRADING OF MOVEMENT": __ misjudges how much to flex and extend muscles during tasks/activities (i.e., putting arms into sleeves or climbing) __ difficulty regulating pressure when writing/drawing; may be too light to see or so hard the tip of writing utensil breaks __ written work is messy and he/she often rips the paper when erasing __ always seems to be breaking objects and toys __ misjudges the weight of an object, such as a glass of juice, picking it up with too much force sending it flying or spilling, or with too little force and complaining about objects being too heavy __ may not understand the idea of "heavy" or "light"; would not be able to hold two objects and tell you which weighs more __ seems to do everything with too much force; i.e., walking, slamming doors, pressing things too hard, slamming objects down __ plays with animals with too much force, often hurting them SIGNS OF AUDITORY DYSFUNCTION: (no diagnosed hearing problem) 1. HYPERSENSITIVITY TO SOUNDS (auditory defensiveness): __ distracted by sounds not normally noticed by others; i.e., humming of lights or refrigerators, fans, heaters, or clocks ticking __ fearful of the sound of a flushing toilet (especially in public bathrooms), vacuum, hairdryer, squeaky shoes, or a dog barking __ started with or distracted by loud or unexpected sounds __ bothered/distracted by background environmental sounds; i.e., lawn mowing or outside construction __ frequently asks people to be quiet; i.e., stop making noise, talking, or singing __ runs away, cries, and/or covers ears with loud or unexpected sounds __ may refuse to go to movie theaters, parades, skating rinks, musical concerts etc. __ may decide whether they like certain people by the sound of their voice 2. HYPOSENSITIVITY TO SOUNDS (under-registers): __ often does not respond to verbal cues or to name being called __ appears to "make noise for noise's sake" __ loves excessively loud music or TV __ seems to have difficulty understanding or remembering what was said __ appears oblivious to certain sounds __ appears confused about where a sound is coming from __ talks self through a task, often out loud __ had little or no vocalizing or babbling as an infant __ needs directions repeated often, or will say, "What?" frequently SIGNS OF ORAL INPUT DYSFUNCTION: 1. HYPERSENSITIVITY TO ORAL INPUT (oral defensiveness): __ picky eater, often with extreme food preferences; i.e., limited repertoire of foods, picky about brands, resistive to trying new foods or restaurants, and may not eat at other people's houses) __ may only eat "soft" or pureed foods past 24 months of age __ may gag with textured foods __ has difficulty with sucking, chewing, and swallowing; may choke or have a fear of choking __ resists/refuses/extremely fearful of going to the dentist or having dental work done __ may only eat hot or cold foods __ refuses to lick envelopes, stamps, or stickers because of their taste __ dislikes or complains about toothpaste and mouthwash __ avoids seasoned, spicy, sweet, sour or salty foods; prefers bland foods 2. HYPOSENSITIVITY TO ORAL INPUT (under-registers) __ may lick, taste, or chew on inedible objects __ prefers foods with intense flavor; i.e., excessively spicy, sweet, sour, or salty __ excessive drooling past the teething stage __ frequently chews on hair, shirt, or fingers __ constantly putting objects in mouth past the toddler years __ acts as if all foods taste the same __ can never get enough condiments or seasonings on his/her food __ loves vibrating toothbrushes and even trips to the dentist SIGNS OF OLFACTORY DYSFUNCTION (smells): 1. HYPERSENSITIVITY TO SMELLS (over-responsive): __ reacts negatively to, or dislikes smells which do not usually bother, or get noticed, by other people __ tells other people (or talks about) how bad or funny they smell __ refuses to eat certain foods because of their smell __ offended and/or nauseated by bathroom odors or personal hygiene smells __ bothered/irritated by smell of perfume or cologne __ bothered by household or cooking smells __ may refuse to play at someone's house because of the way it smells __ decides whether he/she likes someone or some place by the way it smells 2. HYPOSENSITIVITY TO SMELLS (under-responsive): __ has difficulty discriminating unpleasant odors __ may drink or eat things that are poisonous because they do not notice the noxious smell __ unable to identify smells from scratch 'n sniff stickers __ does not notice odors that others usually complain about __ fails to notice or ignores unpleasant odors __ makes excessive use of smelling when introduced to objects, people, or places __ uses smell to interact with objects SIGNS OF VISUAL INPUT DYSFUNCTION (no diagnosed visual deficit): 1. HYPERSENSITIVITY TO VISUAL INPUT (over-responsiveness) __ sensitive to bright lights; will squint, cover eyes, cry and/or get headaches from the light __ has difficulty keeping eyes focused on task/activity he/she is working on for an appropriate amount of time __ easily distracted by other visual stimuli in the room; i.e., movement, decorations, toys, windows, doorways etc. __ has difficulty in bright colorful rooms or a dimly lit room __ rubs his/her eyes, has watery eyes or gets headaches after reading or watching TV __ avoids eye contact __ enjoys playing in the dark 2. HYPOSENSITIVITY TO VISUAL INPUT (under-responsive or difficulty with tracking, discrimination, or perception): __ has difficulty telling the difference between similar printed letters or figures; i.e., p & q, b & d, + and x, or square and rectangle __ has a hard time seeing the "big picture"; i.e., focuses on the details or patterns within the picture __ has difficulty locating items among other items; i.e., papers on a desk, clothes in a drawer, items on a grocery shelf, or toys in a bin/toy box __ often loses place when copying from a book or the chalkboard __ difficulty controlling eye movement to track and follow moving objects __ has difficulty telling the difference between different colors, shapes, and sizes __ often loses his/her place while reading or doing math problems __ makes reversals in words or letters when copying, or reads words backwards; i.e., "was" for "saw" and "no" for "on" after first grade __ complains about "seeing double" __ difficulty finding differences in pictures, words, symbols, or objects __ difficulty with consistent spacing and size of letters during writing and/or lining up numbers in math problems __ difficulty with jigsaw puzzles, copying shapes, and/or cutting/tracing along a line __ tends to write at a slant (up or down hill) on a page __ confuses left and right __ fatigues easily with schoolwork __ difficulty judging spatial relationships in the environment; i.e., bumps into objects/people or missteps on curbs and stairs AUDITORY-LANGUAGE PROCESSING DYSFUNCTION: __ unable to locate the source of a sound __ difficulty identifying people's voices __ difficulty discriminating between sounds/words; i.e., "dare" and "dear" __ difficulty filtering out other sounds while trying to pay attention to one person talking __ bothered by loud, sudden, metallic, or high-pitched sounds __ difficulty attending to, understanding, and remembering what is said or read; often asks for directions to be repeated and may only be able to understand or follow two sequential directions at a time __ looks at others to/for reassurance before answering __ difficulty putting ideas into words (written or verbal) __ often talks out of turn or "off topic" __ if not understood, has difficulty re-phrasing; may get frustrated, angry, and give up __ difficulty reading, especially out loud (may also be dyslexic) __ difficulty articulating and speaking clearly __ ability to speak often improves after intense movement SOCIAL, EMOTIONAL, PLAY, AND SELF-REGULATION DYSFUNCTION: SOCIAL: __ difficulty getting along with peers __ prefers playing by self with objects or toys rather than with people __ does not interact reciprocally with peers or adults; hard to have a "meaningful" two-way conversation __ self-abusive or abusive to others __ others have a hard time interpreting child's cues, needs, or emotions __ does not seek out connections with familiar people EMOTIONAL: __ difficulty accepting changes in routine (to the point of tantrums) __ gets easily frustrated __ often impulsive __ functions best in small group or individually __ variable and quickly changing moods; prone to outbursts and tantrums __ prefers to play on the outside, away from groups, or just be an observer __ avoids eye contact __ difficulty appropriately making needs known PLAY: __ difficulty with imitative play (over 10 months) __ wanders aimlessly without purposeful play or exploration (over 15 months) __ needs adult guidance to play, difficulty playing independently (over 18 months) __ participates in repetitive play for hours; i.e., lining up toys cars, blocks, watching one movie over and over etc. SELF-REGULATION: __ excessive irritability, fussiness or colic as an infant __ can't calm or soothe self through pacifier, comfort object, or caregiver __ can't go from sleeping to awake without distress __ requires excessive help from caregiver to fall asleep; i.e., rubbing back or head, rocking, long walks, or car rides INTERNAL REGULATION (The Interoceptive Sense): __ becoming too hot or too cold sooner than others in the same environments; may not appear to ever get cold/hot, may not be able to maintain body temperature effectively __ difficulty in extreme temperatures or going from one extreme to another (i.e., winter, summer, going from air conditioning to outside heat, a heated house to the cold outside) __ respiration that is too fast, too slow, or cannot switch from one to the other easily as the body demands an appropriate respiratory response __ heart rate that speeds up or slows down too fast or too slow based on the demands imposed on it __ respiration and heart rate that takes longer than what is expected to slow down during or after exertion or fear __ severe/several mood swings throughout the day (angry to happy in short periods of time, perhaps without visible cause) __ unpredictable state of arousal or inability to control arousal level (hyper to lethargic, quickly, vascillating between the two; overstimulated to understimulated, within hours or days, depending on activity and setting, etc.) __ frequent constipation or diarrhea, or mixed during the same day or over a few days __ difficulty with potty training; does not seem to know when he/she has to go (i.e., cannot feel the necessary sensation that bowel or bladder are full __ unable to regulate thirst; always thirsty, never thirsty, or oscillates back and forth __ unable to regulate hunger; eats all the time, won't eat at all, unable to feel full/hungry __ unable to regulate appetite; has little to no appetite and/or will be "starving" one minute then full two bites later, then back to hungry again (prone to eating disorders and/or failure to thrive) Copyright © www.sensory-processing-disorder.com carolynsuelowerychattanooga <sue@...> wrote: -YEESSSS! at last a name for why he sits there or stands there without moving when someone is trying to get by or go around him! He likes to help out in the kitchen but I am constantly moving him over out of the way and get so frustrated, I usually kick him out, or over to the other side of work area within a few minutes.Has NO SENSE whatsoever that somebody is trying to get by. I have seen no improvement unfortunately, he's 23! Thanks for the info.SUe in TN-- In , "Roxanna" <madideas@...> wrote:>> Hey Betty,> Sounds like you need a break! > Yes, that clumsy thing is part of autism. OT's call it "proprioceptive" (sp) but basically it means knowing where your body is in relation to your surroundings. My older ds had it worse and used to walk into the sides of doorways often as he misjudged the spacing. Both boys are hard to take shopping because they don't know to move over and let people pass, they are oblivious to when they are in the way or need to move. My older ds has gotten much better over the years at manuevering himself around but I don't think it's been until these past few years that I noticed an improvement for him. Anyway, usually OT's work on this problem. We've never had one work with our kids on it so I don't know how well therapy helps.> > As for the food/meal issues, my 11 yo ds sometimes eats like he is in heaven too. lol. We don't have the open mouth problem though. Just keep working on it. See if you can get the OT to help with some of these things. These are all life skills that they should help him with.> > Roxanna> Autism Happens> ( ) Issues> > > First of all let me ask if your kid has a balance problem or is > just being clumsy? Is this an Asperger thing? He is standing > there talking & backs into something or walks right at a person > without going around them almost touching that person & he crashes > into things. Yesterday when talking to me he backed up crashing into > the microwave & it almost fell off it's stand. Also he never ever > blows his nose & he is so stuffed up. I had to fight with him to do so > this morning & he finally did blow & almost threw up from gagging. He > is so impulsive anymore. He grabs food or touches other's food on > their plates,grabs & touches things he wants. When he eats it's like a > whole herd of cattle at the table. He chomps & food is flying out of > his mouth, he has his head bac & his eyes are almost closed.He is in > heaven. Once he is done with a meal he is ready for dessert. I say not > yet wait awhile & he starts to argue. He is always "Bored." He has a > new Wii with lots of new games plus other video systeeems to play > with. He has been really getting on my last nerve lately. I don't know > maybe it was because school was out 2 days cause of the snow.> He goes to dad's this weekend...Ya Hooooooo.> Betty> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Yup! ran out of checkmarks, almost all of them fit. He had some sensory integration when younger and I guess it helped some. He did tandem jump out of an airplane this summer (his idea for birthday) and we were very proud. He was terrified, and actually that's when I was hit like a ton of bricks that he might be austistic. The parachute guys film the whole adventure for you and he NEVER would look at the camera while filming him! Even though they were constantly telling him, " Look up here! " It was just so odd seeing it on tape, so began researching and it was like " Duh " how did I miss this for 23 years! Sue > > > > Hey Betty, > > Sounds like you need a break! > > Yes, that clumsy thing is part of autism. OT's call > it " proprioceptive " (sp) but basically it means knowing where your > body is in relation to your surroundings. My older ds had it worse > and used to walk into the sides of doorways often as he misjudged > the spacing. Both boys are hard to take shopping because they don't > know to move over and let people pass, they are oblivious to when > they are in the way or need to move. My older ds has gotten much > better over the years at manuevering himself around but I don't > think it's been until these past few years that I noticed an > improvement for him. Anyway, usually OT's work on this problem. > We've never had one work with our kids on it so I don't know how > well therapy helps. > > > > As for the food/meal issues, my 11 yo ds sometimes eats like he is > in heaven too. lol. We don't have the open mouth problem though. > Just keep working on it. See if you can get the OT to help with > some of these things. These are all life skills that they should > help him with. > > > > Roxanna > > Autism Happens > > ( ) Issues > > > > > > First of all let me ask if your kid has a balance problem or is > > just being clumsy? Is this an Asperger thing? He is > standing > > there talking & backs into something or walks right at a person > > without going around them almost touching that person & he > crashes > > into things. Yesterday when talking to me he backed up crashing > into > > the microwave & it almost fell off it's stand. Also he never > ever > > blows his nose & he is so stuffed up. I had to fight with him to > do so > > this morning & he finally did blow & almost threw up from > gagging. He > > is so impulsive anymore. He grabs food or touches other's food > on > > their plates,grabs & touches things he wants. When he eats it's > like a > > whole herd of cattle at the table. He chomps & food is flying > out of > > his mouth, he has his head bac & his eyes are almost closed.He > is in > > heaven. Once he is done with a meal he is ready for dessert. I > say not > > yet wait awhile & he starts to argue. He is always " Bored. " He > has a > > new Wii with lots of new games plus other video systeeems to > play > > with. He has been really getting on my last nerve lately. I > don't know > > maybe it was because school was out 2 days cause of the snow. > > He goes to dad's this weekend...Ya Hooooooo. > > Betty > > > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Carolyn, I've noticed lots that related to my son. But, the school won't help out with these concerns because they said it doesn't interfere with his school work or academics. said, He's doing well in school and that's a concern for home issues. Hummmm. then they come up with , we don't see it here. and I'm not there to catch it - to show them. (and they know this) !. Rosecarolynsuelowerychattanooga <sue@...> wrote: Yup! ran out of checkmarks, almost all of them fit. He had some sensory integration when younger and I guess it helped some. He did tandem jump out of an airplane this summer (his idea for birthday) and we were very proud. He was terrified, and actually that's when I was hit like a ton of bricks that he might be austistic. The parachute guys film the whole adventure for you and he NEVER would look at the camera while filming him! Even though they were constantly telling him, "Look up here!" It was just so odd seeing it on tape, so began researching and it was like "Duh" how did I miss this for 23 years!Sue> >> > Hey Betty,> > Sounds like you need a break! > > Yes, that clumsy thing is part of autism. OT's call > it "proprioceptive" (sp) but basically it means knowing where your > body is in relation to your surroundings. My older ds had it worse > and used to walk into the sides of doorways often as he misjudged > the spacing. Both boys are hard to take shopping because they don't > know to move over and let people pass, they are oblivious to when > they are in the way or need to move. My older ds has gotten much > better over the years at manuevering himself around but I don't > think it's been until these past few years that I noticed an > improvement for him. Anyway, usually OT's work on this problem. > We've never had one work with our kids on it so I don't know how > well therapy helps.> > > > As for the food/meal issues, my 11 yo ds sometimes eats like he is > in heaven too. lol. We don't have the open mouth problem though. > Just keep working on it. See if you can get the OT to help with > some of these things. These are all life skills that they should > help him with.> > > > Roxanna> > Autism Happens> > ( ) Issues> > > > > > First of all let me ask if your kid has a balance problem or is > > just being clumsy? Is this an Asperger thing? He is > standing > > there talking & backs into something or walks right at a person > > without going around them almost touching that person & he > crashes > > into things. Yesterday when talking to me he backed up crashing > into > > the microwave & it almost fell off it's stand. Also he never > ever > > blows his nose & he is so stuffed up. I had to fight with him to > do so > > this morning & he finally did blow & almost threw up from > gagging. He > > is so impulsive anymore. He grabs food or touches other's food > on > > their plates,grabs & touches things he wants. When he eats it's > like a > > whole herd of cattle at the table. He chomps & food is flying > out of > > his mouth, he has his head bac & his eyes are almost closed.He > is in > > heaven. Once he is done with a meal he is ready for dessert. I > say not > > yet wait awhile & he starts to argue. He is always "Bored." He > has a > > new Wii with lots of new games plus other video systeeems to > play > > with. He has been really getting on my last nerve lately. I > don't know > > maybe it was because school was out 2 days cause of the snow.> > He goes to dad's this weekend...Ya Hooooooo.> > Betty> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Oh boy, do we have the loud eating issues. Drives us all nuts, especially his teenage sisters. He had trouble with place in space but we took him to physical/occupational therapy for years and the pool therapy really helped. Also he participated in a special Tae Kwon Do class and that helped too. Just be careful - Blue Cross gave us a hell of a time covering the PT although the therapy place did a lot of good work with insurance - some are part of the problem and some part of the solution. My son is now 18. Jean The year's hottest artists on the red carpet at the Grammy Awards. AOL Music takes you there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Thanks Mims, He's had years of TSS & us teaching him table manners,Social Stories about how to eat & why but he says it's not comfortable. His dad just called & said he was sick...so was I last week but I still had kids here to take care of. So I guess he isn't going to his dad's house this weekend. He only gets to be with him twice a month. Anyway I see that alot of Asperger kids are alike with Balance & such so it isn't just . I hope someday he will be able to eat properly or at least closing his mouth when he does eat. He says he can not breath with his mouth closed. I told him because he never blows his nose. Take care,BettyMims Batts <mimsnj@...> wrote: Betty I agree with Sherry and Roxanna. I wondered for years whether these things were just "boy stuff" or AS. We still have to cue our 16 yo about eating with his mouth closed and about being aware of things/people around him. After years of repetition, I feel safe saying it is definitely an AS issue with him and not just a boy thing. Physically, he tends to be clumsy. Has difficulty with body awareness, recognizing the personal space of others, etc.. We cue him on these issues. It's really hard to not sound like a nag at times though. Plus, like all kids, they do tend to tune you out. I've found that if the info comes from another adult, such as a teacher or therapist, it means so much more to the child than it does coming from the parent! Good news is that we have definitely seen marked improvement. So, there is light at the end of the tunnel! My son loves to eat. At times he'll still tend to eat with his mouth open or make "yum" sounds. We try to lightly tease with him that he's making a "religious experience" out of his meals. As he's gotten older, it's been a little easier to teach him. I tell him that I don't mean to nag, but I'm just trying to teach him so that he isn't embarassed when he's with his peers or others outside the family. Often job interviews may call for him to meet over a meal and employers will notice his table manners. Sometimes giving third person examples like this help as opposed to me constantly telling him to stop. It's not easy. Just try to find the patience for yourself. Enjoy your weekend! Mimstruegrittle <truegrittle > wrote: First of all let me ask if your kid has a balance problem or is just being clumsy? Is this an Asperger thing? He is standing there talking & backs into something or walks right at a person without going around them almost touching that person & he crashes into things. Yesterday when talking to me he backed up crashing into the microwave & it almost fell off it's stand. Also he never ever blows his nose & he is so stuffed up. I had to fight with him to do so this morning & he finally did blow & almost threw up from gagging. He is so impulsive anymore. He grabs food or touches other's food on their plates,grabs & touches things he wants. When he eats it's like a whole herd of cattle at the table. He chomps & food is flying out of his mouth, he has his head bac & his eyes are almost closed.He is in heaven. Once he is done with a meal he is ready for dessert. I say not yet wait awhile & he starts to argue. He is always "Bored." He has a new Wii with lots of new games plus other video systeeems to play with. He has been really getting on my last nerve lately. I don't know maybe it was because school was out 2 days cause of the snow.He goes to dad's this weekend...Ya Hooooooo.Betty Be a better friend, newshound, and know-it-all with Mobile. Try it now. Take care, Betty Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Since the Mom & Dad finally have been somewhat consistent with their weekends after years of not getting him, is used to this routine & we like our weekends by ourselves to regroup but now I don't know if the dad will be picking up after 4 for his weekend or not. Dad called this morning to say he was sick & wasn't getting out of bed. Wish I could have done that last week when I was sick. will be so upset if dad doesn't get him. He gets upset if dad says he'll be here at 4 & comes at 4:15. As for balance,Jon has always brushed up against people while walking towards them & I am left apologizeing because he doesn't think any thing of it. As for his eating we have stopped going to nice restaurants now it's Mcs. He doesnt seem to mind. As long as he eats he's good to go. He wants to go to a big buffet for his Birthday next month. The boy loves to eat. Take care,Betty Roxanna <madideas@...> wrote: Hey Betty, Sounds like you need a break! Yes, that clumsy thing is part of autism. OT's call it "proprioceptive" (sp) but basically it means knowing where your body is in relation to your surroundings. My older ds had it worse and used to walk into the sides of doorways often as he misjudged the spacing. Both boys are hard to take shopping because they don't know to move over and let people pass, they are oblivious to when they are in the way or need to move. My older ds has gotten much better over the years at manuevering himself around but I don't think it's been until these past few years that I noticed an improvement for him. Anyway, usually OT's work on this problem. We've never had one work with our kids on it so I don't know how well therapy helps. As for the food/meal issues, my 11 yo ds sometimes eats like he is in heaven too. lol. We don't have the open mouth problem though. Just keep working on it. See if you can get the OT to help with some of these things. These are all life skills that they should help him with. RoxannaAutism Happens ( ) Issues First of all let me ask if your kid has a balance problem or is just being clumsy? Is this an Asperger thing? He is standing there talking & backs into something or walks right at a person without going around them almost touching that person & he crashes into things. Yesterday when talking to me he backed up crashing into the microwave & it almost fell off it's stand. Also he never ever blows his nose & he is so stuffed up. I had to fight with him to do so this morning & he finally did blow & almost threw up from gagging. He is so impulsive anymore. He grabs food or touches other's food on their plates,grabs & touches things he wants. When he eats it's like a whole herd of cattle at the table. He chomps & food is flying out of his mouth, he has his head bac & his eyes are almost closed.He is in heaven. Once he is done with a meal he is ready for dessert. I say not yet wait awhile & he starts to argue. He is always "Bored." He has a new Wii with lots of new games plus other video systeeems to play with. He has been really getting on my last nerve lately. I don't know maybe it was because school was out 2 days cause of the snow.He goes to dad's this weekend...Ya Hooooooo.Betty Take care, Betty Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Sherry we are in PA. also. You didn't butt in ..it's an open discussion. At almost 16yrs old I thought he would be doing a lot better about the things we have taught him over & over but it's like it never penetrated or something. Take care,Betty sherry burford <superchick0770@...> wrote: OMG i don't know what this is all about but my 9yr old has been the same, eating his food very loudly disgusting to everyone else trying to eat, he constantly says hes bored and ready for snack right after leaving the dinner table, he never watches where he is going even when riding a bike he is so busy watching everything around him he scares me to death some times. so sorry to butt in to something i didn't know about but had to telll you my son's the same way.Sherry in Pa First of all let me ask if your kid has a balance problem or is just being clumsy? Is this an Asperger thing? He is standing there talking & backs into something or walks right at a person without going around them almost touching that person & he crashes into things. Yesterday when talking to me he backed up crashing into the microwave & it almost fell off it's stand. Also he never ever blows his nose & he is so stuffed up. I had to fight with him to do so this morning & he finally did blow & almost threw up from gagging. He is so impulsive anymore. He grabs food or touches other's food on their plates,grabs & touches things he wants. When he eats it's like a whole herd of cattle at the table. He chomps & food is flying out of his mouth, he has his head bac & his eyes are almost closed.He is in heaven. Once he is done with a meal he is ready for dessert. I say not yet wait awhile & he starts to argue. He is always "Bored." He has a new Wii with lots of new games plus other video systeeems to play with. He has been really getting on my last nerve lately. I don't know maybe it was because school was out 2 days cause of the snow.He goes to dad's this weekend...Ya Hooooooo.Betty Looking for last minute shopping deals? Find them fast with Search. Take care, Betty Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Yes, i know the feeling even though he is only 9 it is like you tell him over and over and over, and the things you think they should just know or learn on their own he doesn't and hasn't. Sherry Jewel <truegrittle@...> wrote: Sherry we are in PA. also. You didn't butt in ..it's an open discussion. At almost 16yrs old I thought he would be doing a lot better about the things we have taught him over & over but it's like it never penetrated or something. Take care,Betty sherry burford <superchick0770 > wrote: OMG i don't know what this is all about but my 9yr old has been the same, eating his food very loudly disgusting to everyone else trying to eat, he constantly says hes bored and ready for snack right after leaving the dinner table, he never watches where he is going even when riding a bike he is so busy watching everything around him he scares me to death some times. so sorry to butt in to something i didn't know about but had to telll you my son's the same way.Sherry in Pa First of all let me ask if your kid has a balance problem or is just being clumsy? Is this an Asperger thing? He is standing there talking & backs into something or walks right at a person without going around them almost touching that person & he crashes into things. Yesterday when talking to me he backed up crashing into the microwave & it almost fell off it's stand. Also he never ever blows his nose & he is so stuffed up. I had to fight with him to do so this morning & he finally did blow & almost threw up from gagging. He is so impulsive anymore. He grabs food or touches other's food on their plates,grabs & touches things he wants. When he eats it's like a whole herd of cattle at the table. He chomps & food is flying out of his mouth, he has his head bac & his eyes are almost closed.He is in heaven. Once he is done with a meal he is ready for dessert. I say not yet wait awhile & he starts to argue. He is always "Bored." He has a new Wii with lots of new games plus other video systeeems to play with. He has been really getting on my last nerve lately. I don't know maybe it was because school was out 2 days cause of the snow.He goes to dad's this weekend...Ya Hooooooo.Betty Looking for last minute shopping deals? Find them fast with Search. Take care, Betty Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Thank you Jean. Betty jmckim4184@... wrote: Oh boy, do we have the loud eating issues. Drives us all nuts, especially his teenage sisters. He had trouble with place in space but we took him to physical/occupational therapy for years and the pool therapy really helped. Also he participated in a special Tae Kwon Do class and that helped too. Just be careful - Blue Cross gave us a hell of a time covering the PT although the therapy place did a lot of good work with insurance - some are part of the problem and some part of the solution. My son is now 18. The year's hottest artists on the red carpet at the Grammy Awards. AOL Music takes you there. Take care, Betty Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Betty..... If I had a dime for every time I've begged my son to blow his nose, I'd be a very rich woman and would treat all the list members here to a day at the spa! Sorry to hear there's no respite for you this weekend. Funny how when the Mom's sick, life still goes on and we have to handle everything as usual. Hang in there. Treat yourself to something nice this weekend. Maybe a cheesey LIfetime Movie or a box of Valentine chocolates! Mims Jewel <truegrittle@...> wrote: Thanks Mims, He's had years of TSS & us teaching him table manners,Social Stories about how to eat & why but he says it's not comfortable. His dad just called & said he was sick...so was I last week but I still had kids here to take care of. So I guess he isn't going to his dad's house this weekend. He only gets to be with him twice a month. Anyway I see that alot of Asperger kids are alike with Balance & such so it isn't just . I hope someday he will be able to eat properly or at least closing his mouth when he does eat. He says he can not breath with his mouth closed. I told him because he never blows his nose. Take care,BettyMims Batts <mimsnj > wrote: Betty I agree with Sherry and Roxanna. I wondered for years whether these things were just "boy stuff" or AS. We still have to cue our 16 yo about eating with his mouth closed and about being aware of things/people around him. After years of repetition, I feel safe saying it is definitely an AS issue with him and not just a boy thing. Physically, he tends to be clumsy. Has difficulty with body awareness, recognizing the personal space of others, etc.. We cue him on these issues. It's really hard to not sound like a nag at times though. Plus, like all kids, they do tend to tune you out. I've found that if the info comes from another adult, such as a teacher or therapist, it means so much more to the child than it does coming from the parent! Good news is that we have definitely seen marked improvement. So, there is light at the end of the tunnel! My son loves to eat. At times he'll still tend to eat with his mouth open or make "yum" sounds. We try to lightly tease with him that he's making a "religious experience" out of his meals. As he's gotten older, it's been a little easier to teach him. I tell him that I don't mean to nag, but I'm just trying to teach him so that he isn't embarassed when he's with his peers or others outside the family. Often job interviews may call for him to meet over a meal and employers will notice his table manners. Sometimes giving third person examples like this help as opposed to me constantly telling him to stop. It's not easy. Just try to find the patience for yourself. Enjoy your weekend! Mimstruegrittle <truegrittle > wrote: First of all let me ask if your kid has a balance problem or is just being clumsy? Is this an Asperger thing? He is standing there talking & backs into something or walks right at a person without going around them almost touching that person & he crashes into things. Yesterday when talking to me he backed up crashing into the microwave & it almost fell off it's stand. Also he never ever blows his nose & he is so stuffed up. I had to fight with him to do so this morning & he finally did blow & almost threw up from gagging. He is so impulsive anymore. He grabs food or touches other's food on their plates,grabs & touches things he wants. When he eats it's like a whole herd of cattle at the table. He chomps & food is flying out of his mouth, he has his head bac & his eyes are almost closed.He is in heaven. Once he is done with a meal he is ready for dessert. I say not yet wait awhile & he starts to argue. He is always "Bored." He has a new Wii with lots of new games plus other video systeeems to play with. He has been really getting on my last nerve lately. I don't know maybe it was because school was out 2 days cause of the snow.He goes to dad's this weekend...Ya Hooooooo.Betty Be a better friend, newshound, and know-it-all with Mobile. Try it now. Take care, Betty Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Visit the school or have someone else visit and take data. You will probably see a lot of the same problems. Most of the time, they don't consider it a problem if it isn't bothering them. It doesn't mean it isn't happening or isn't a problem. It just isn't interfering with their day. One other thing to consider is to look up the purpose for special education which says in part: " §300.1 Purposes. The purposes of this part are-- (a) To ensure that all children with disabilities have available to them a free appropriate public education that emphasizes special education and related services designed to meet their unique needs and prepare them for further education, employment, and independent living; " So the purpose of sped is not to make sure they can sit in a classroom all day and if so, they don't see a problem and don't have to provide services. The purpose is to prepare him for further education, employment and independent living. So many of the problems you see at home are very relevant and should be addressed within the IEP and at school. Also, you can relate so many things to school if you work a little. For instance, they might say his inability to have a conversation is not their problem. But you could argue it directly affects how well he can participate in class, how well he can work in teams with other students - all of these things will directly affect his education. RoxannaAutism Happens ( ) Issues> > > > > > First of all let me ask if your kid has a balance problem or is > > just being clumsy? Is this an Asperger thing? He is > standing > > there talking & backs into something or walks right at a person > > without going around them almost touching that person & he > crashes > > into things. Yesterday when talking to me he backed up crashing > into > > the microwave & it almost fell off it's stand. Also he never > ever > > blows his nose & he is so stuffed up. I had to fight with him to > do so > > this morning & he finally did blow & almost threw up from > gagging. He > > is so impulsive anymore. He grabs food or touches other's food > on > > their plates,grabs & touches things he wants. When he eats it's > like a > > whole herd of cattle at the table. He chomps & food is flying > out of > > his mouth, he has his head bac & his eyes are almost closed.He > is in > > heaven. Once he is done with a meal he is ready for dessert. I > say not > > yet wait awhile & he starts to argue. He is always "Bored." He > has a > > new Wii with lots of new games plus other video systeeems to > play > > with. He has been really getting on my last nerve lately. I > don't know > > maybe it was because school was out 2 days cause of the snow.> > He goes to dad's this weekend...Ya Hooooooo.> > Betty> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 DITTO ON THAT MINE TOO, AND MY SAYING WHEN I AM SICK LIKE THAT IS THERE IS NO REST FOR THE WEARY, THE KIDS ALWAYS ASK ME WHAT THAT MEANS I SAY THAT MOM IS STILL MOM WHEN SHE SICK AND JUST DOESN'T FEEL LIKE BEING MOM, BUT I DON'T THINK THEY COMPLETELY UNDERSTAND. SHERRYMims Batts <mimsnj@...> wrote: Betty..... If I had a dime for every time I've begged my son to blow his nose, I'd be a very rich woman and would treat all the list members here to a day at the spa! Sorry to hear there's no respite for you this weekend. Funny how when the Mom's sick, life still goes on and we have to handle everything as usual. Hang in there. Treat yourself to something nice this weekend. Maybe a cheesey LIfetime Movie or a box of Valentine chocolates! Mims Jewel <truegrittle > wrote: Thanks Mims, He's had years of TSS & us teaching him table manners,Social Stories about how to eat & why but he says it's not comfortable. His dad just called & said he was sick...so was I last week but I still had kids here to take care of. So I guess he isn't going to his dad's house this weekend. He only gets to be with him twice a month. Anyway I see that alot of Asperger kids are alike with Balance & such so it isn't just . I hope someday he will be able to eat properly or at least closing his mouth when he does eat. He says he can not breath with his mouth closed. I told him because he never blows his nose. Take care,BettyMims Batts <mimsnj > wrote: Betty I agree with Sherry and Roxanna. I wondered for years whether these things were just "boy stuff" or AS. We still have to cue our 16 yo about eating with his mouth closed and about being aware of things/people around him. After years of repetition, I feel safe saying it is definitely an AS issue with him and not just a boy thing. Physically, he tends to be clumsy. Has difficulty with body awareness, recognizing the personal space of others, etc.. We cue him on these issues. It's really hard to not sound like a nag at times though. Plus, like all kids, they do tend to tune you out. I've found that if the info comes from another adult, such as a teacher or therapist, it means so much more to the child than it does coming from the parent! Good news is that we have definitely seen marked improvement. So, there is light at the end of the tunnel! My son loves to eat. At times he'll still tend to eat with his mouth open or make "yum" sounds. We try to lightly tease with him that he's making a "religious experience" out of his meals. As he's gotten older, it's been a little easier to teach him. I tell him that I don't mean to nag, but I'm just trying to teach him so that he isn't embarassed when he's with his peers or others outside the family. Often job interviews may call for him to meet over a meal and employers will notice his table manners. Sometimes giving third person examples like this help as opposed to me constantly telling him to stop. It's not easy. Just try to find the patience for yourself. Enjoy your weekend! Mimstruegrittle <truegrittle > wrote: First of all let me ask if your kid has a balance problem or is just being clumsy? Is this an Asperger thing? He is standing there talking & backs into something or walks right at a person without going around them almost touching that person & he crashes into things. Yesterday when talking to me he backed up crashing into the microwave & it almost fell off it's stand. Also he never ever blows his nose & he is so stuffed up. I had to fight with him to do so this morning & he finally did blow & almost threw up from gagging. He is so impulsive anymore. He grabs food or touches other's food on their plates,grabs & touches things he wants. When he eats it's like a whole herd of cattle at the table. He chomps & food is flying out of his mouth, he has his head bac & his eyes are almost closed.He is in heaven. Once he is done with a meal he is ready for dessert. I say not yet wait awhile & he starts to argue. He is always "Bored." He has a new Wii with lots of new games plus other video systeeems to play with. He has been really getting on my last nerve lately. I don't know maybe it was because school was out 2 days cause of the snow.He goes to dad's this weekend...Ya Hooooooo.Betty Be a better friend, newshound, and know-it-all with Mobile. Try it now. Take care, Betty Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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