ASO DIGEST: August 10, 2009

[Guest guest]

Dear Friend of the Autism Society of Ohio:

 

Visit ASO's website www.autismohio.org

for an " easy to read " version if this does not come through clean on

your listserv.  Or sign up to receive your own copy by " registering " on

the " login " section of ASO's homepage. 

News From ASO:

- Columbus NBC4 to host third Autism Special, August 12, 7pm, ASO President on Daytime Columbus, August 11

- Autism Society creates two new videos - " The Future of Autism " and " The

Culture of Autism " - Ohio Developmental Disabilities Council Accepting Applications

- Governor Strickland Signs Executive Order Establishing Physical Restraint Policies for State Agencies

- ODMRDD implementing new Provider Certification Rule- Medicaid School Program Rules Proposed Amendment Comment Period

- Local Policy Briefings - Children's Issues

- Ohio DD Council, Ohio SILC and Governor's Council on

People with Disabilities host Open Forum on Developing Successful

Employment Opportunities- Ohio Court: State cannot curtail services for autistic children

- OCALI Conference - Save the Date!

     ASO to Sponsor Parent Corner as Part of Expo, Exhibit Hall     ASO to subsidize Registration Fees for Parents

- Federal Update/Alerts

     

Redesigned Disability.gov Web site      Health Care Reform      Social Security      Health and Human Services Secretary Kathleen G. Sebelius US Signing

of the United Nations Convention on the Rights of Persons with

Disabilities      Request for Information (RFI): Updating the

Interagency Autism Coordinating Committee Strategic Plan for Autism

Spectrum Disorder (ASD) Research

Autism Society Chapter Events:

- Autism Society of Greater Akron     Thursday, August 18, 2009 - Presentation: School, Transition to Adulthood, & OLRS

- Autism Society of Greater Cleveland

     Tuesday, August 11, 2009 - ASGC/N.Central Chapter Monthly Meeting

    

Saturday, August 29, 2009 - Picnic for teens/adults w/ASD    

September 12, 2009 - Part for the Puzzle Tailgate Party at The Ironwood Cafe- Autism Society of Dayton

    Monday, August 10, 2009 - Sensory Bounce Night at Bounce U     Saturday, August 28, 2009 - Poker Run Sponsored by Panera Bread

    Thursday, Sept. 17, 2009 Workshop: Setting Students Up For Success: Brain Compatible Learning

    Friday December 11, 2009 (tentatively set)  8:30 AM - 3:00 PM Presentation with Jed Baker, PhD

- Autism Society of NW Ohio     August 10-17 ASNO Office Closed for Vacation    

Tuesday, August 18, 2009 - Parents of Adults Support Group    

Tuesday, August 18, 2009 - Pathways Through Autism Sponsored by the NWORAAC Erie & Ottawa- Autism Society of SE Ohio     Saturday, August 15, 2009  at 4:00pm - Summer Party

Upcoming Events:

- August 17-21, 2009 Milestones Week-Long Hands-On Teacher/Paraprofessional Training Workshop 

- Tuesday, August 18, 2009 - Sexuality Education 101 – Preparing for Puberty, Cleveland

- Sunday, September 6, 2009 - Autism Benefit Music Festival at Ledges, NE Ohio

- Ohio Self Determination Association 2009 Annual Conference September 15 and 16, 2009, Columbus

- Wednesday, September 16, 2009 Elder author of Look Me In the Eye speaks at Defiance College

- Friday, September 18, 2009 Special Education Workshop with slaw and the Autism Society of Indiana, Indianapolis

- Sunday, September 20, 2009 Poker Ride for Autism, Portsmouth

- October 9th-10th, 2009 - Annual International

Conference on Attention-Deficit/Hyperactivity Disorder for Parents,

Caregivers, Health Care Professionals, Educators, Physicians and Adults

with AD/HD, Cleveland

- Educational Forum, “Understanding Autismâ€, October 28, 2009, Case Medical Center, Cleveland

General News, Articles, Information:

-  Article: Man With Asperger's Expected To Be Standout On British Talent Show

- Disability Scoop: Send Us Your Questions About Violence, Abuse and Neglect- Article: College will offer opportunity to students with autism

- Article: Asperger's syndrome plays a role in three new movies

- Summer newsletter from OLRS now available- Article: Restrictive Diets May Not Be Appropriate for Children With Autism

- Video: Will fear of autism risk affect swine flu vaccinations?

Books, Resources, Products:

- Book: An Introduction To Exercise and Sport for People Who Have Autism

- Three new books on Behavior from AAPC, AAPC offering summer sale

- Resource: Goodwill Easter Seals Miami Valley Assistive Technology Services

- Resource: Free Respite, Chagrin Falls

- Resource: iCommunicate App for the iPhone

- Resource: Toilet Training Children with Special Needs

- Resource: Web site helps nontraditional families with children with disabilities

- Book: " Engaging and Empowering Families in Secondary Transition: A Practitioner's Guide "

- Resource: Downloadable Visual Aids

- Resource: Toledo Children's Hospital Total Rehab offering free training parent education program

   

ASA-ASO is now posting all research opportunities on our website. For information on available opportunities, visit our webpage www.autismohio.org,

click on " Information " along the left side of the home page and then

click on " Studies/Surveys " .  CHECK OUT NEW LISTINGS AND OPPORTUNITIES!

Have you purchased your Ohio Autism Awareness License Plate yet? To purchase yours, visit www.oplates.com and click on " Specialty Plates " or visit our website at www.autismohio.org for more information.

Please

note:  This is provided for information purposes only. The ASA-ASO does

not endorse or recommend any providers, methodologies or services.

Providing this information should not be construed as an endorsement by

the ASA-ASO, either explicit or implied.

 

Sincerely,

 

Autism Society of Ohio1335 Dublin Rd., Suite 205-CColumbus, OH 43215(614) 487-4726

fax: (614) 487-4725general email: askASO@...

web: www.autismohio.org

 

News From ASO:

Columbus NBC4 to host third Autism Special, August 12, 7pm, ASO President on Daytime Columbus, August 11Be sure to tune in at 7pm on Wednesday, August 12 for the third installment of NBC4's autism series, The Autism Puzzle.  The topics to be covered in this special are: Physical Therapy, Insurance status, Helpful tips for parents about financial funding and Adult daycare.  There will again be opportunities to call in and email with NBC4's Call4 and iChat features - manned by members of the Autism Society, and staff from OCALI and OSU's Nisonger Center.  Watch for a new " commercial " on ASO that will be airing during the special.

Additionally, ASO President, Sawan Caruso, will be a guest on NBC4's Daytime Columbus, hosted by Gail Hogan at 11am on Tuesday August 11.  Be sure to tune in!Links to both programs and ASO's new spot will be provided in next week's DIGEST.

Many thanks to all the folks at NBC4 for their support of autism issues.------------------------------------------------------------------------------Autism Society creates two new videos - " The Future of Autism " and " The

Culture of Autism " At the Autism Society national conference, during two of the keynote

sessions, National debuted two new videos that can be used by chapters

to promote our organization.  These have been posted to the newly

created Autism Society Youtube channel at http://www.youtube.com/user/TheAutismSociety

" The Future of Autism " video opened the Autism Society's 40th National Conference on Autism Spectrum Disorders on July 23, 2009. Exploring the history of the Autism Society and looking toward what the future holds for autism, it features interviews with the Autism Societys first elected president, Ruth Christ Sullivan; Sondra Cunningham, founder and current president of the Autism Society's DC Chapter; Shore, an Autism Society board member and person on the spectrum; Paradiz, Panel of People on the Spectrum of Autism Co-Chair; and Martha Herbert, Autism Society director of treatment-guided research. " The

Culture of Autism " video was created for the Autism Society's 40th

National Conference on Autism Spectrum Disorders, July 22-25, 2009.

Narrated by Dr. Paradiz, a member of the Autism Society's Panel

of People on the Spectrum of Autism Advisors, it explores the cultural

aspects of ASD.  This video highlights individuals with autism and

the part in society.If

you look closely at the opening of the " Culture of Autism " you may

recognize the family of ASO Executive Director Barb Yavorcik!  Additionally, the drummer in the video is Barb's son

.-------------------------------------------------------------------------------------Ohio Developmental Disabilities Council Accepting ApplicationsThe DD Council is accepting applications for new membership in the following category:

“Parent or guardian of a person with a developmental disability who resides in or who has resided in an institution, OR an Individual with a developmental disability who resides in or who has resided in an institution.â€Â  The application and additional details can be found at:  http://ddc.ohio.gov/new%20membership.htm

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Governor Strickland Signs Executive Order Establishing Physical Restraint Policies for State AgenciesFrom the ODMRDD E-newsletter Pipeline:On August 3, 2009, Governor Ted Strickland signed an executive order that bans prone restraint across all state systems and sets specific policies for other types of physical restraints.

According to the news release of the same day from the Governor’s Office, he stated, “Some state employees’ job duties require them to handle situations that may pose potential injury to themselves or others, and may require their intervention through use of a physical restraint.  It is critical that we protect the safety, dignity and respect of both the state employee and those in the care of the state.â€Â  He continued, “This executive order establishes minimum acceptable standards to make sure restraint is used properly, by a trained individual, and only when absolutely necessary to ensure safety and prevent harm.â€

This policy is the result of a seven-agency work group that studied the use of physical restraint at the respective agencies when providing services.  ODMRDD was the lead on the work group efforts and had banned the ‘prone restraint’ position in November 2008, due to the belief that it posed an unacceptable risk to health and safety.  Prone restraint involves the restraint of an individual in a face-down position for an extended period of time. The November 2008 ban applies to all providers of services to individuals with disabilities who receive funds directly or indirectly from the ODMRDD to provide a service or support to an individual eligible for County Board of Mental Retardation and Developmental Disabilities services. The Department’s Information Notice is at http://mrdd.ohio.gov/publications/Infonotices/08-11-03.pdf .

-----------------------------------------------------------------------------------------ODMRDD implementing new Provider Certification RuleFrom the ODMRDD E-newsletter Pipeline:

The ODMRDD is making preparations for implementation of the new Provider Certification rule (5123:2-2-01).  The rule will implement, for the first time, the Department’s existing statutory authority to time-limit provider certification and collect application fees for providers of Supported Living and Home and Community-Based Services waiver services.

The rule is responsive to several MRDD Futures Committee recommendations and represents a shared commitment throughout Ohio’s developmental disabilities community to create a better service delivery system.  A copy of the rule is available at the Department's website (http://mrdd.ohio.gov/rules/development.htm).

The rule streamlines and simplifies rules by replacing three existing rules regarding provider certification (5123:2-9-09, 5123:2-12-02, and 5123:2-12-06) with one rule.Details regarding implementation of the rule are forthcoming and will be broadly disseminated.  For more info, Contact:  Becky at becky.phillips@...

----------------------------------------------------------------------------------------------Medicaid School Program Rules Proposed Amendment Comment Period Proposed Amendment of Medicaid School Program Rules is available on the Internet for your review and comment. The comment deadline is 8/7/09.  

Click the link below to review and comment:  http://www.odjfs.state.oh.us/clearances/public/index.aspxBy clicking in the Comment button on the right of the Clearance title you will bring up a comment form.  Each box on this form must be completed to submit it.

Office of Legal ServicesOhio Department of Job and Family ServicesPhone: 614-466-4605Fax:   614-752-8298----------------------------------------------------------------------------Local Policy Briefings - Children's Issues

Voices for Ohio’s Children, in conjunction with the Ohio Chapter of the American Academy of Pediatrics, will facilitate Regional Briefings across Ohio during August 2009 to inform local advocates on State and Federal Children’s Issues.  The objectives of these sessions are to:

■ Inform participants of updates on State and Federal children’s policy issues.■ Provide participants with state economic overview and fiscal projections.■ Provide participant an opportunity to share input on the impact of state budget cuts to local communities.

■ Participants will provide feedback on Voices for Ohio's Children multi-issue state and federal policy agenda.■ Participants will have an opportunity to network with local advocates and local policy makers.■ Participants will learn of upcoming opportunities for advocate on behalf of Ohio’s children.

Who should attend?Policy makers, the media, non-profit leaders, health care providers, caseworkers,  Help Me Grow and home visitation providers, physicians and medical office staff, parents, faith-based leaders, advocates and child caring service providers.

Each forum will be held from 9 a.m. to Noon except for the last one at Marrietta which will be held from 1-4 p.m.Agenda:WelcomeOverview of State and Federal Children’s Policy IssuesOpen Forum and Discussion of State Budget

Impact to Local Communities/ProgramsOverview of State Fiscal ClimateVoices for Ohio's Children 2 Year PolicyAgenda Principals/DiscussionWhat’s Next to Raise Your VoicesClosing and wrap upNO COST TO ATTEND BUT REGISTRATION IS REQUIRED.

Online Registration at www.vfc-oh.org SCHEDULECleveland – August 18Cleveland Foodbank, Inc.15500 South Waterloo RdCleveland, OH 44110

Youngstown – August 20

Jewish Community Center505 Gypsy LaneYoungstown, Ohio 44504Canton – August 21YWCA Canton231 6th St NE, Canton, OH 44702-1035Columbus – August 24United Way of Central Ohio360 S. Third Street

Columbus, OH 43215Dayton – August 27United Way of the Greater Dayton Area184 Salem AvenueDayton, OH 45406Cincinnati – August 28Health Foundation of Greater CincinnatiRookwood Tower

3805 Rd., Ste. 500

Cincinnatti, OH 45206Toledo – August 31United Way of Greater ToledoOne Stranahan Sq, Ste 114*Toledo, OH 43604*When searching directions online,enter 400 St.Marietta – August 19

Washington State Community CollegeCenter for Business and Technology710 Colegate DriveMarietta, OH 45750Local Children’s Policy Briefingswww.vfc-oh.org

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Ohio

DD Council, Ohio SILC and Governor's Council on People with

Disabilities host Open Forum on Developing Successful Employment

Opportunities

Tuesday, August 18, 200910 am – 4 pmHyatt Regency Hotel350 N. High StreetColumbus OH 43215 Hosted by:Ohio Developmental Disabilities Council Ohio Statewide Independent Living Council

Ohio Governor’s Council on People with Disabilities In

April 2009, the U.S. Department of Labor listed people with

disabilities in the labor force at only 22.8% as compared to 70.9% for

people without disabilities. Surveys have shown over and over again

that individuals with disabilities want to work. However, the current

opportunities and services to support people with disabilities in

gaining employment are not working.

Now is the time to hear from people with disabilities themselves about how to make positive change.This

forum will provide an opportunity to inform policymakers about personal

work experiences. People with disabilities, their families, friends and

people who serve them are encouraged to attend this open forum and

share their employment experiences, successes, barriers, frustrations

and suggestions.

Register today! Come and give your personal testimony. Make your voice heard.Free

and open to the public. Come prepared to provide oral (not more than

five minutes) or written testimony, or to support those who are

presenting at the hearing.

All testimony will be recorded and a summary will be prepared. The

final report will include recommendations to improve gainful employment

for people with all types of disabilities. It will be shared with

people who can make a difference—service providers, legislators,

government officials, employers and others.

Registration is required for people planning to attend in person. A

limited amount of financial assistance is available for people to

attend. To register and/or request assistance, visit http://www.rsc.state.oh.us/RSCDocuments/Employ%20Opport.pdf .  Questions?  Please Contact:   AXIS Center, 614-263-8076, axiscenter@....

If you would like to tell your employment story but are unable to

attend, please fill out a Registration Form and send it along with your

story. You may email, fax or mail your story by August 24 to:        AXIS Center                               Fax: 614-262-8124

        249 E. Cooke Rd.                          Email:  axiscenter@...        Columbus OH 43214Parking is available in lots around the Hyatt or in the underground garage. Rates range from $12-15 a day.

Questions?  Contact:   AXIS Center, 614-263-8076, axiscenter@...AGENDA9-10  Registration10:00   Welcome        Introduction of Special Guests:

        - Governor’s Employment & Disability Group

        - Directors of State Agencies10:10   Opening Message:        - Amy McGee, Executive Assistant for Health & Human Services, Governor Strickland’s Office   10:30   Keynote Presentation by the new Administrator of the Ohio Rehabilitation Services Commission

        - Rench11:00   Open Forum (begins)12:00   Lunch        Medicaid Buy-In Presentation 1:15  Open Forum (continues)3:30  Wrap-up & ClosingTestimony tips:If

you will be telling your employment story in person, make some notes to

bring with you, or practice with a friend or family member ahead of

time. Keep your story short. Talk about the most important things. You

will have only five minutes to speak. Don’t be nervous. You’ll be

talking to people who want to listen to you.

If you are submitting your story in writing, type it or write it

clearly on a blank sheet of paper. Put your name at the top of the page

and send a completed Registration Form with your story.Complete a form for each person registering. For a registration form, visit: http://www.rsc.state.oh.us/RSCDocuments/Employ%20Opport.pdf .  Questions?  Please Contact:   AXIS Center, 614-263-8076, axiscenter@...

---------------------------------------------------------------------------------------Ohio Court: State cannot curtail services for autistic childrenMonday,  August 3, 2009 11:36 AM

By Alan The Columbus DispatchThe 6th U.S. Circuit Court of Appeals has upheld a ruling that the state cannot eliminate or drastically curtail Medicaid services for autistic children.The appeals court, in a ruling reached late last week, said U.S. District Judge L. Graham did not exceed his authority in granting a temporary restraining order that prevented new state Medicaid rules from taking effect on July 1, 2008.

The state has continued paying for the services pending appeal.The Parents League for Effective Autism Services, a group of families of autistic children served by Step By Step Academy in Westerville and represented by Ohio Legal Rights Service, sued the Ohio Department of Mental Health and the Department of Job and Family Services over the proposed changes.

State officials said the changes are necessary to keep Ohio in compliance with federal Medicaid regulations. Parents countered that the rules violated their rights to service under Medicaid.The appeals court did not rule on the heart of the lawsuit which the court said focuses on " an ambiguous federal Medicaid provision. "

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OCALI Conference - Save the Date!

The OCALI Statewide Ohio Conference is

going to be held in Columbus November 17-19, 2009!  ASO will again

be subsidizing registrations for parents and will be sponsoring a

" parents corner " as part of the exposition.  The Parent's Corner will

be a place where parents can go to meet and network with other

parents.  In addition, there will be informal sessions on a variety of

topics including the autism scholarship, early intervention,

transition, adult services, etc.  For complete information on the

conference, visit http://conference.ocali.org/-------------------------------------------------------------------------------------------------

Federal Update

Redesigned Disability.gov Web siteThe U.S. Department of Labor this week launched Disability.gov, a redesigned federal Web site that connects the more than 50 million Americans with disabilities to thousands of trusted resources on disability-related issues, programs and services. Formerly known as DisabilityInfo.gov, the site has been completely redesigned and updated with new social media tools, such as a blog and a Twitter feed, to encourage feedback and interaction among visitors. Disability.gov is not just for Americans with disabilities, but also for parents of children with disabilities, employers, workforce and human resource professionals, veterans, educators, caregivers and many others. Disability.gov features comprehensive information from 22 federal agencies, as well as educational institutions, non-profit organizations and state and local governments. Topics covered on the site include: benefits; civil rights; community life; education; emergency preparedness; employment; health; housing; technology; and transportation.

The following info provided by the Disability Policy CoalitionHealth Care ReformHouse Energy and Commerce Committee Chairman Henry Waxman (D-CA) reached an agreement, after extensive negotiations with fiscally conservative Blue Dog Democrats on the Committee's health reform bill.  Changes were made to lower costs and to modify the bill's employer mandate. Many of the changes angered liberal Democratic members.  After a marathon mark-up session where scores of amendments were considered, the Committee passed the bill by a vote of 31-28.  Five Democrats joined all Committee Republicans in voting against the legislation. Staff of the Energy and Commerce, Ways and Means, and Education and Labor Committees will spend August reconciling their respective bills in preparation for a House vote in September. Senate Finance Committee Chairman Max Baucus (D-MT) announced that his bi-partisan negotiating team would not reach an agreement before the Senate leaves for its August recess.  Sens. Max Baucus, Jeff Bingaman (D-NM) and Kent Conrad (D-ND) are negotiating with Ranking Member Chuck Grassley (R-IA) and Sens. Mike Enzi (R-WY) and Olympia Snowe (R-ME).

Social SecurityOn July 28, the House of Representatives passed the WIPA and PABSS Reauthorization Act of 2009, H.R. 3325, which was introduced by House Ways and Means Social Security Subcommittee Chairman Tanner (D-TN) and Income Security Subcommittee Chairman Jim McDermott (D-WA).  The bill amends the Social Security Act to extend through Fiscal Year 2010 the authorization of appropriations for the Work Incentives Planning and Assistance (WIPA) and the Protection and Advocacy for Beneficiaries of Social Security (PABSS) programs.  The WIPA and PABSS programs were established by the Ticket to Work and Work Incentives Improvement Act to assist Supplemental Security Income (SSI) and Social Security disability program beneficiaries with information about existing work incentives, benefits planning, and decisions about work and providing advocacy that beneficiaries may need to secure, regain, or maintain gainful employment.

Health and Human Services Secretary Kathleen G. Sebelius US Signing of the United Nations Convention on the Rights of Persons with DisabilitiesJuly 30, 2009, the United States joins 141other nations who have signed the United Nations Convention on the Rights of Persons with Disabilities.   The signing of the UN Convention sends an important message that this country is committed to equal rights for people with disabilities, in the United States and around the world. 

Another important example of our commitment is the President’s launch of the Year of Community Living in June.   The Department of Health and Human Services has already begun to carry out the Community Living initiative by establishing an HHS Coordinating Council, led by the Office on Disability.

The Administration on Aging, the Centers for Medicare & Medicaid Services, the Office for Civil Rights, the Office of the Assistant Secretary for Planning and Evaluation, the Substance Abuse and Mental Health Services Administration, and—most recently—the Health Resources and Services Administration, the Administration for Children and Families, and the Office of Public Health and Science have joined the Coordinating Council.  I am pleased that we have assembled such considerable expertise to ensure that living independently with a disability is a real choice.

HHS is proud to support the Convention on the Rights of Persons with Disabilities, the first new UN human rights convention of the 21st century.  We look forward to advancing dignity, autonomy, full inclusion, and equality of opportunity for Americans, and for people with disabilities around the world.

 Request for Information (RFI): Updating the Interagency Autism Coordinating Committee Strategic Plan for Autism Spectrum Disorder (ASD) Research

On behalf of the Interagency Autism Coordinating Committee (IACC), the Nation Institute of Mental Health is seeking comments to inform the annual update of the IACC Strategic Plan for Autism Spectrum Disorder (ASD) Research - http://www.iacc.hhs.gov/reports/2009/iacc-strategic-plan-for-autism-spectrum-disorder-research-jan26.shtml as required by the Combating Autism Act of 2006 (P.L. 109-416).

The purpose of this RFI is to solicit input from ASD stakeholders to inform the next update of the Strategic Plan.   In the RFI form, there will be an opportunity to provide input on each section of the IACC Strategic Plan.  Please include suggestions regarding missing or underrepresented knowledge areas, new opportunities needed for advancing research and knowledge about ASD, and suggestions for prioritizing research objectives.

The RFI will close on August 21, 2009. Responses must be submitted electronically via the web-based form. http://www.acclaroresearch.com/oarc/rfi/

Background:

The IACC was established as a result of The Combating Autism Act.  The act requires that the IACC develop a strategic plan for autism research and update the strategic plan annually. The IACC is composed of both Federal and public members.  The first IACC Strategic Plan for ASD Research was developed through an extensive process engaging a wide range of Federal agencies and public stakeholders.  The Strategic Plan is organized around six questions that are important for people with ASD and their families:

I.      When should I be concerned?II.     How can I understand what is happening?III.    What caused this to happen and can this be prevented?IV.     Which treatments and interventions will help?V.      Where can I turn for services?

VI.     What does the future hold?Please Note: The responses that you provide will become part of the public record.  You have the option of posting your responses anonymously or you may choose to have your name associated with your response. In your responses, please do not include personally identifiable information that you do not wish to make public.

For more information about the IACC, please visit www.iacc.hhs.gov.Now follow the IACC on Twitter (www.twitter.com/IACC_Autism).

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Autism Society Chapter Events:

Autism Society of Greater AkronThursday, August 18, 2009 - Presentation: School, Transition to Adulthood, & OLRS

ASPIES Greater Akron Support Group for parents of children w/Asperger Syndrome, High Functioning Autism, & PDD-NOS partnering with the Autism Society of Greater Akron presents " School, Transition to Adulthood, & OLRS " with Virginia Ohio Legal Rights Service (OLRS) - protection and advocacy for people with disabilities Thursday, August 18th - 6:30-8:30 pm

(Childcare not provided.)NOTE ROOM CHANGE!!!!Children's Hospital Cafeteria Conference Room1 Perkins Sq., Akron OH 44308For further info, contact Joy Spencer330-745-5115 or Rreindeer@...

--------------------------------------------------------------------------The Autism Society of Greater Cleveland

P.O. Box 41066

Brecksville, OH  44141

(216) 556-493www.asgc.org

Tuesday, August 11, 2009 at 7:00 PM - ASGC/N.Central Chapter Monthly MeetingPlease join us at the Avon Lake Library, 32649 Electric Blvd., Avon Lake, OH to network with other parents, caregivers, professionals and those individuals on the spectrum.  This site does not offer child care.  Admission is free and all are welcome.

Saturday, August 29, 2009 from Noon - 3:00 PM - Picnic for teens/adults w/ASDAll teens/adults with ASD and their families are invited to join us for a picnic at The City of Independence Kiwanis Pavilion.  We look forward to an afternoon of games and fun.  Admission is FREE.  The ASGC and Autism Speaks will provide pop/water/hot dogs.  Please bring a dish to share.  Any individual requiring assistance or supervision must have a caregiver with them at the picnic at all times.  RSVP is required by August 24, 2009 at (216) 556-4937 or support@....

September 12, 2009 - Part for the Puzzle Tailgate Party at The Ironwood CafePlease join the ASGC at The Ironwood Cafe, 6888 Dover Center Rd., Westlake, OH 44145 for a Tailgate Party " OSU Vs. USC " 8:00 PM ESPN Game.  From 4:00 PM till 7:00 PM all you can eat/drink, chinese raffle and more.  Tickets are $40.00 per person and are available by calling (216) 556-4937 or Eisenmann at (440) 241-8833 or support@....  All proceeds benefit the ASGC.

------------------------------------------------------------Autism Society of DaytonP.O. Box 1013

Miamisburg, OH 45343206-984-5760www.autismsociety-dayton.org

Monday, August 10, 2009 - Sensory Bounce Night at Bounce UJoin the Autism Society of Dayton Monday 8/10/09

for a PRIVATE SENSORY BOUNCE!WHEN:  The second Monday of each    month  from 5:30 pm - 7:00 pm WHO:  For kids with sensory issues and their friends and family (you do not have to be affiliated with ASA or have autism to attend).  Socks required  

COST: $8/child Parents play for free!  Bring a friend or neighbor.  If we don't have enough participants, Sensory Bounce might go away! RSVP:  Reservations are not required-just drop in!  Bounce U2109 Lyons Rd.

Miamisburg, OH 45342(937) 610-0500

Saturday, August 28, 2009 - Poker Run Sponsored by Panera Bread

Mark your calendar for Saturday, Aug. 29 and get ready to ride and enjoy free food and prizes along the way.  Riders will pick up poker cards and food samples at 6 local Panera Bread bakery-cafes (Sugarcreek, The Greene, Beavercreek, Springfield, Troy, and Brown St.) followed by lunch and prizes at the end - and at the end of the ride, the top three hands wins!  Details are still being finalized but tentative cost will be $20/driver, $5/passenger; plus $3/person if you wish to receive a ride t-shirt/bandana.  More details and registration information to follow.  All proceeds benefit the Autism Society of America - Dayton Chapter.  http://campaign.constantcontact.com/render?v=001rY34efU3OTcHKnlYe9YI48V0E02QuHtS1fyCRE51l1RowsOUCRVEXuBOqVaNj9cbdG9YqOnzE_TXhNKVseZ-K_8eNtGT67dL5wHq8H2fE5KLm57kJj2xfQ%3D%3D

Thursday, Sept. 17, 2009 Workshop: Setting Students Up For Success: Brain Compatible LearningWe are pleased to bring you a workshop focusing on brain development, nutrition, and learning styles presented by Ann Anzalone  

Setting Students Up For Success: Brain Compatible Learning  Description:  How do your children learn?  Give your children an edge effect.  Teach them the way that they learn and they will be more successful in the learning process.  Learn how to identify and teach to your own child's learning styles. 

Thursday, Sept. 17, 2009, 6:30 PM All workshops will be held at the Miami Valley Regional Center, 4801 Springfield Street, Riverside, OH 45431 Workshops are free and open to the public.  Refreshments will be served.  Sorry, we cannot accommodate children.

Please RSVP to: info@...

Friday December 11, 2009 (tentatively set)  8:30 AM - 3:00 PM Presentation with Jed Baker, PhD

Children's Medical Center, Dayton

SAVE THE DATE!

In collaboration with DAFEAT, the Autism Society of  Dayton is pleased to bring the following workshop to Dayton:

No More Meltdowns: Handling Challenging Behaviors & Teaching Social Skills with Jed Baker,  PhD.

More information to follow.For more events and information, visit: http://campaign.constantcontact.com/render?v=001-VYj-myPVdviW35zTAVm7BTVsKr-GKTJPSQVsxCCl7DUz_E-LZ-XuV47oOPK_CJ3wpsci-1Q0j2f3Mvd-CEG88pqdFsCjS8-fwxeQSMkeDM%3D

-----------------------------------------------------------------------------------------------Autism Society of NW Ohio4848 Dorr Street Suite 1

Toledo, OH 43615

phone: 419-578-2766 (419-578-ASNO)

fax: 419-536-5038

e-mail: asno.orgbex (DOT) net

website: www.asno.org

August 10-17 ASNO Office Closed for Vacation

Tuesday, August 18, 2009 - Parents of Adults Support Group

This is a reminder that our Asperger Family support group will meet

Tuesday, August 18 from 11:30 am to 1:30 pm here at the office, 4848

Dorr Street. We are in the house with the red door. Ann Muder will

facilitate.

Tuesday, August 18, 2009 - Pathways Through Autism Sponsored by the NWORAAC Erie & Ottawa

Counties Autism Focus Team

When: Tuesday, August 18, 2009

10:00 am - 12:00 pm

Where: Ottawa County Department of Job & Family Services

8043 W. State Route 163

Oak Harbor, OH 43449

Please call or email to ensure adequate space! For more information

& to RSVP: 419-898-3688 ext. 211  or fausne@...

This is an opportunity to hear from agencies available in your hometown

to help you and your family navigate the road of autism spectrum

disorder. Hear from a panel of speakers from Northern Ohio

Psychological Services, Firelands Regional Medical Center, The Ability

Center, Ohio Legal Rights Service, and parents. Visit information

tables from a variety of agencies: Ottawa County MRDD, Family and

Children First Council, WSOS, Family Information Network, AND

MORE; See the Ottawa County page of our website for more

details.

-----------------------------------------------------------------------Autism Society of SE Ohioc/o HAVAR, Inc227 Columbus Road

PO Box 460Athens, OH 45701740-205-6810   info@...www.autismseohio.org

Saturday, August 15, 2009  at 4:00pm - Summer Party

" This party is for EVERYONE who cares about people with autism and other develpmental disabilities.  Let's enjoy the pool and food! " .Event: Summer Party - Autism Society of America SE Ohio Chapter

      " Free pool pass and food! " What: BarbecueHost: Autism Society of America Southeastern Ohio ChapterStart Time: Saturday, August 15 at 4:00pmEnd Time: Saturday, August 15 at 8:00pmWhere: East State Street Shelter/Athens City Pool

email info@... for more information-------------------------------------------------------------

Upcoming Events, Conferences:August 17-21, 2009 Milestones Week-Long Hands-On Teacher/Paraprofessional Training Workshop

How to Use Behavioral Interventions Effectively in the Public School Setting

August 17-21, 2009Week-Long

Hands-On Teacher/Paraprofessional ABA Training (Milestones) Beachwood,

Ohio. 8:00am- 4:00pm. Includes hands-on training in small groups with

BCBA trained instructors, school observation, and follow up workshop

with fellow team member. Limited to 25. PDC (30) included in price,

Graduate Credit (2), additional fee. For more information call

216.464.7600 or email info@... .-------------------------------------------------------------------------------

Tuesday, August 18, 2009 - Sexuality Education 101 – Preparing for Puberty 7:00pm Lydia Troha, Human Sexuality Educator for the CCBDD, will guide parents of 9 to 12 year olds through the physical and emotional changes experienced at the onset of puberty. Topics will include preparing your child for body changes, public/private behaviors, the importance of boundaries, and other issues relevant to the transition from childhood to adolescence. See the attachment for more information on Lydia Troha.

Cleveland Clinic Community Room - Independence5001 Rockside Road Independence, Ohio 44131 please rsvp@...--------------------------------------------------------------------------------

Sunday, September 6, 2009 - Autism Benefit Music Festival at Ledges, NE OhioEvent: Autism Benefit Music Festival at Ledges September 6

      " An All Day Family Event Labor Day Weekend - Sunday " What: ConcertHost: National Autism Association - Northeast OhioStart Time: Sunday, September 6 at 12:00pmEnd Time: Monday, September 7 at 12:00am

Where: Ledges Quarry Parkhttp://www.autismnortheastohio.org/special_events.php----------------------------------------------------------------------------------------------------------

Ohio Self Determination Association 2009 Annual Conference September 15 and 16, 2009, ColumbusUniversity Plaza Hotel, Columbus

" Life without Limits " Ohio Self Determination Association705-D Lakeview Plaza Blvd.Worthington, OH 43085www.ohiosda.org, osda@...

http://www.ohiosda.org/Conference/2009ConferenceInfo.pdf-------------------------------------------------------------------------

Wednesday,September 16, 2009 Elder author of Look Me In the Eye speaks at Defiance College Elder , http://www.johnrobison.com/ an individual on the autism spectrum  and author of the book " Look Me In the Eye " will speak at Defiance College at 2 p.m. in Schaumburg Auditorium to the incoming first year class about his book, “Look Me in the Eye.â€Â  Then at 3:30 p.m. he will address a community audience about his life with Aspergers. These presentations at Defiance College are free and open to the public. For more information, contact:

Fred W. Coulter, Ph.D., CFLEParent Partnership CoordinatorHench Autism Studies ProgramDefiance College701 N. Clinton St.Defiance, OH 43512(419) 783-2416autism@...

------------------------------------------------------------------------------

Friday, September 18, 2009 Special Education Workshop with slaw and the Autism Society of Indiana

IDEA & NCLB:  What You Dont Know CAN Hurt You!    Junior Achievement of Central Indiana in IndianapolisSeptember 18, 2009http://www.disabilitygoto.com/slawIndianapolis.html

----------------------------------------------------------------------------------------------Sunday, September 20, 2009 Poker Ride for Autism, PortsmouthPortsmouth Motorcycle Club/Portsmouth Fire Dept

Date:     Sunday, September 20, 2009Time:     11:00am - 5:00pmLocation:     ParkCity/Town:     Portsmouth, OHFor more information, call Potts at 740-259-0055 or Email at winnie2go@...

-------------------------------------------------------------October 9th-10th, 2009 - Annual International Conference on Attention-Deficit/Hyperactivity Disorder for Parents, Caregivers, Health Care Professionals, Educators, Physicians and Adults with AD/HD, Cleveland

General Conference October 9th-10th, 2009 • Pre-Conference institutes (Optional) October 7th and/or 8th, 2009For more info see:  http://www.chadd.org/Content/CHADD/Conferences_Training/Annual_Conference/default.htm

-------------------------------------------------------------------------------------------------------------------------------------------------------------------------Educational Forum, “Understanding Autismâ€, October 28, 2009, Case Medical Center, Cleveland

The

Discovery and Wellness Center for Children (DWCC) at University

Hospitals Case Medical Center would like to extend to you an invitation

to our educational forum, “Understanding Autism.â€Â  The goal of the

forum is to educate attendees on the complexity of autism through

explaining autism spectrum disorders from a neurological, behavioral,

and social perspective and highlighting symptoms, diagnosis,

treatments, and community resources for families and/or professionals

that work or have children diagnosed with autism. 

This educational forum will be held on Wednesday, October 28th at the

W.O. Building’s Auditorium 10524 Euclid Ave, Cleveland, 44106,

from 3:30 p.m. to 6:00 p.m. and is open to mental health professionals,

teachers, parents, and anyone interested in expanding their knowledge

of autism. Parking is free in Lot #36, located across from the W.O.

Building next to National City Bank on Stokes Blvd.

Please join the DWCC, Max Wiznitzer, M.D., Short, Ph.D., and

Rory McLean for a discussion on this important topic. Seating is

limited. Please RSVP by October 21st by calling 216.844.3922 (DWCC). If

you prefer to RSVP via email, please complete the cells below. To RSVP

for multiple attendees, please send the requested information (Name,

Occupation, Business Name, Phone Number, Email Address, Parent or

Professional) in one email. .King@...

Continuing Education Units (CEUs) may be available for $18 and a

certificate of attendance will be issued at the conclusion of the

forum. Please be sure to contact your institution's official for

further details on how to qualify for CEUs.

-------------------------------------------------------------------------------------------------------------------------General News, Articles, Information:

Article: Man With Asperger's Expected To Be Standout On British Talent Show is so shy that he didn’t leave his house for seven years, but he will be one of 50 contestants on the British show X Factor, which is similar to American Idol.  http://www.disabilityscoop.com/2009/08/05/x-factor/4476/

-----------------------------------------------------------------------------------------Disability Scoop: Send Us Your Questions About Violence, Abuse and NeglectRecently we brought you Scoop Essentials: Preventing Violence, Abuse and Neglect, http://www.disabilityscoop.com/2009/07/07/preventing-abuse/4004/ a conversation about abuse prevention with Fitzsimons, an associate professor of social work at Minnesota State University, Mankato. She is responding to reader questions. Click here http://www.disabilityscoop.com/questions-for-nancy-fitzsimons/ to submit your own questions to her and check back soon to read her responses.

----------------------------------------------------------------------------------------------Article: College will offer opportunity to students with autismStates and communities must address the need for higher education for students with autism, writes Bernick, chairman of the advisory board for an autism center at California State University, East Bay. In a column in the San Francisco Chronicle, Bernick outlines how the center plans to open an educational community for people with autism that will require the involvement of parents and the university as well as the students' ability to rely on each other.

http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2009/08/03/EDPN193F67.DTL-----------------------------------------------------------------------------------------

Article: Asperger's syndrome plays a role in three new moviesTwo movies now in theaters and one set to open next year feature Asperger's syndrome. The syndrome is linked to autism and typically mixes high intelligence and verbal skills with social awkwardness. " The more I learned about Asperger's, the better metaphor it felt like for the condition of all of us in terms of a desire for connection to other people, " said Max Mayer, writer-director of the romance " Adam. "

http://www.nytimes.com/2009/08/04/health/04aspe.html?_r=1

---------------------------------------------------------------------------------------------

Summer newsletter from OLRS now availableWelcome to the Summer edition of the DD Quarterly! Read the newsletter online to learn about issues important to Ohioans with disabilities. This issue highlights an upcoming Employment Forum, hosted by ODDC, that will be held in August. See below for a complete list of articles.

 The DD Quarterly is produced for the Ohio Developmental Disabilities Council by the Ohio Legal Rights Service. Text version: http://olrs.ohio.gov/ddq/DDQSummer09.htm

PDF version: http://olrs.ohio.gov/ddq/DDQSummer09.pdf In this issue: 1. ODDC Hosts Employment Forum2. ODDC Announces Grant Opportunities

3. ODDC Supports Sibling Conference

4. ODDC Seeks Members5. DD Quarterly Wants to Hear from You6. Hold the Date: ODDC's Annual Conference If you have questions or comments about the DD Quarterly newsletter, contact: Tom Hemmert

Ohio Legal Rights Service50 W. Broad St., Suite 1400Columbus, OH 43215Voice: 614-466-7264 or 800-282-9181TTY: 614-728-2553 or 800-858-3542Email: newsletter@...

-------------------------------------------------------------------------------Article: Restrictive Diets May Not Be Appropriate for Children With Autism http://www.nytimes.com/2009/07/28/health/28autism.html?_r=1

--------------------------------------------------------------------------------------------------------------------------Video: Will fear of autism risk affect swine flu vaccinations?

A mercury-containing preservative called thimerosal that many groups have maintained is a cause of autism may be in some doses of the new H1N1 vaccine. The Centers for Disease Control and Prevention is urging Americans to be vaccinated. But even though research has repeatedly found thimerosal to be safe, some worry about fears keeping undercutting the campaign. " Public perception plays a very important role in how vaccination campaigns succeed, " said one doctor.

http://abcnews.go.com/Health/SwineFluNews/Story?id=8206167 & page=1Books, Resources, Products:

Book: An Introduction To Exercise and Sport for People Who Have AutismAn Introduction To Exercise and Sport for People Who Have Autism by Durrant will be available from September 1st 2009

This book contains helpful guidelines for providers which could encourage individuals with Autism who would normally find it very difficult to interact in a sports setting in a focused way.The book contains 31 photographs/diagrams, which includes a number of visual sequence aids.

http://www.amazon.com/Introduction-Exercise-Sport-People-Autism/dp/0956272908/ref=sr_1_1?ie=UTF8 & s=books & qid=1249498241 & sr=8-1

------------------------------------------------------------------------------------------------Three new books on Behavior from AAPC

Asperger Syndrome and Difficult Moments: Practical Solutions for Tantrums, Rage, and Meltdowns (Revised and Expanded Edition)By: Myles, Ph.D and Jack SouthwickCode: 9901bRegular Price: $21.95

Outsmarting Explosive Behavior: A Visual System of Support and Intervention for Individuals with Autism Spectrum DisordersBy: Judy Endow, MSWForeword By: Myles, Ph.DCode: 9035Regular Price: $49.95

    The Incredible 5-Point Scale: Assisting Students with Autism Spectrum Disorders in Understanding Social Interactions and Controlling Their Emotional ResponsesBy: Kari Dunn Buron and Mitzi CurtisCode: 9936

Regular Price: $19.95Order All 3 Books and Receive 20% Off! or Order Titles Individually & Receive 10% Off Each! http://www.asperger.net/bookstore_behavior_special.htm

Summer SaleAAPC is turning up the heat on already reduced prices! Through  August 31, save an additional 20% on select titles!http://www.asperger.net/specials.htm

--------------------------------------------------------------------------------------------Resource: Goodwill Easter Seals Miami Valley Assistive Technology Services

The Goodwill Easter Seals Miami Valley Assistive Technology Services provide assistive technology for people of all ages with autism spectrum, learning disabilities, physical disabilities, visual impairments, and hearing impairments through our Product Lending Library.  We also provide MRDD services, assistive technology through the Individual Option and Level One Waiver programs, and refurbished computers for special-needs classrooms and individuals with disabilities.

 Click here to go to our new web site!  http://assistivetechservices.org  LeonardCoordinatorGoodwill Easter Seals Miami ValleyAssistive Technology Services

937-461-3305 We are located at 1133 S. Edwin C. Moses Blvd, Suite 370, Dayton, OH 45417 (map and directions are on our website).  Please call to make an appointment for your personal tour of our Lending Library today!

-----------------------------------------------------------------------------Resource: Free Respite, Chagrin FallsFellowship Bible Church, in Chagrin Falls, is launching a FREE respite program to support our families with kids with special needs in September.  I have attached a flyer for you to post and pass along, and here are some of the highlights of the program:

·        Monthly “date night†for our parents to take a needed breather!·        FREE!·        No less than a 1:1 ratio of trained, background checked volunteers per child.·        Siblings are welcome!

·        Sensory room and quiet room available.·        Medical team and on site security.·        All dietary needs accommodated.Our goal is to spoil the families!  Please feel free to direct any questions you have back to me (my cell phone is below) or to our program coordinator, Candy Baroni at 216.299.1669 or cbaroni2@....

--------------------------------------------------------------------------------Resource: iCommunicate App for the iPhoneiCommunicate is a versatile app that will help typically developing children as well as children with developmental delays and autism.  Early intervention specialists, teachers, and parents will love this app!  We provide a way to create customized storyboards and visual schedules for your child. Creators are parents of a child with autism. http://grembe.moonfruit.com

-------------------------------------------------------------------------Resource: Toilet Training Children with Special Needshttp://specialchildren.about.com/od/toilettraining/Toilet_Training_Children_with_Special_Needs.htm?nl=1

---------------------------------------------------------------------------------Resource: Web site helps nontraditional families with children with disabilitiesA Georgia man has founded a Web site - http://www.avillagetoraise.com/ - that offers advice and community to nontraditional families raising children with disabilities. All families are welcome, but about 45% of the 300 members are in same-sex relationships, says founder Grant Garris. " Creating this Web site has allowed us to talk with other families who have children with the same challenges, " he says. " We can share our experiences and learn from each other. "

http://www.smartbrief.com/servlet/encodeServlet?issueid=D4A93A2F-D0F7-4553-B3C8-B41468CBDC74 & sid=a035c4ed-48b3-407d-ae5d-4d05d3c683d8

------------------------------------------------------------------------------------Book: " Engaging and Empowering Families in Secondary Transition: A Practitioner's Guide "

The new edition of this CEC best-seller gives schools and agencies the tools and strategies they need to foster family partnerships and promote positive post-school outcomes for youths with disabilities.  http://www.cec.sped.org/ScriptContent/Orders/ProductDetail.cfm?section=CEC_Store & pc=P5943

----------------------------------------------------------------------------------------Resource: Downloadable Visual AidsVisual Aids for Learning has created downloadable visuals to help people learn everyday activities. Where appropriate, the images are gender specific: 

School PackEarly Childhood PackAdolescent PackHome PackToilet Training PackVisit: http://www.visualaidsforlearning.com/index.htm

-------------------------------------------------------------------------------Resource: Toledo Children's Hospital Total Rehab offering free training parent education program

Toledo Children's Hospital Total Rehab is looking for participants for a free training parent education program called It Takes Two to Talk for parents of children with autism ages birth-5.

In 1995 The Hanen Center adopted a program to meet the needs of children with Autism Spectrum Disorder (ASD) and related social communication difficulties. The It Takes Two to Talk Program is a parent education program which empowers parents by giving them tools to facilitate their children & rsquo;s interaction and communication skills. Toledo Children's Hospital is offering this program to interested

families through grant funds awarded by the Give Autism the Boot Campaign. This program will be offered to families with children from birth-5 years.The It Takes Two to Talk Program: -Emphasizes the child's everyday activities as the context for learning to communicate.

-Emphasizes the importance of affect, predictability, structure, and the use of visual supports to   enhance learning in children with ASD.-The program will accommodate eight to twelve families for 12 weeks, and is led by Hanen Certified Speech Language Pathologist, Cecilia Dunn, MA., CCC-SLP.

The program will include:An orientation meeting.A pre-program consultation.Eight group training sessions for parents (about 2 & frac12; hours each).Three individual video feedback sessions for each family, conducted by the Speech Language Pathologist.

A written report by the Speech Language Pathologist.Parent evaluation of the program.This program is not designed to replace other treatments for children with ASD. If you are involved in other treatments, such as Applied Behavior Analysis, you are encouraged to share this information with the Speech Language Pathologist leading the group. If you are interested in participating please contact Cecilia Dunn at 419-349-8336 or by email at cecilia.dunn@... or you may also reach Cassie

Basting at 419-349-8337 or by email at cassie.basting@....