Autism One Newsletter

July 10, 2005

FYI..in case you didn't receive this.

--- Ed Arranga <earranga@...> wrote:

> Date: Sun, 10 Jul 2005 10:21:21 -0700 (GMT-07:00)

> From: Ed Arranga <earranga@...>

> redhead60707@...

> Subject: Autism One Newsletter

>

---------------------------------

email.html

Sunday, July 10,

2005

Dear Friends and

Colleagues,

Thank you to all

who were involved in the

recent Autism One 2005 conference in Chicago.

To the presenters and

volunteers - You have

our deepest gratitude. To the parents - You

are the future. It is our

privilege to walk

with you.

News Notes

â€¢ The last 3

months has brought more

good news for our community than ever before

from Kirby's

book, Evidence of

Harm to Lyn Redwood's and Kirby's

appearance on the Montel

show to F.

Kennedy Jr's. article, Deadly

Immunity, in the June Issue of Rolling

Stone and Salon.com.

â€¢ The New York

Times hit piece, " On

Autism's Cause, It's Parents vs. Research "

referred to below, was so

tainted it leaves

a foul odor. In response to its numerous errors,

omissions and

distortions of fact Mark Blaxill

wrote an excellent letter

to the Public Editor. Dan Olmsted

of UPI also wrote

a wonderful response.

â€¢ An autism

pediatric dental practice for children

on the spectrum is being organized

in Chicago.

Partners in the practice need input from parents

and professionals to

assess interest in such

a specialized service. We need to know if

folks would be willing to

travel to Chicago

for complete dental care for their child if

previously diagnosed dental

care is not obtainable

in their area. If the child needs extensive

care, treatment would be

provided with the

child sedated or completely asleep in an outpatient

facility by qualified

anesthesia personnel.

Please contact Jeff

Cantor, DDS with any comments, suggestions,

or questions.

â€¢ Dr.

Neubrander has a wonderful medium

called BioChat

to exchange information. BioChat is live

and interactive

Internet chat. Recent guests have

included Dr. Haley, Dr. McCandless and

Dr. Bradstreet.

BioChat is moderated every night

from 9:00 -10:00 pm EST.

Dr. Neubrander is

looking for people on the West

Coast who are interested in being

moderators. Anyone

interested should contact Rick

Neubrander.

â€¢ We would like

to acknowledge Cellini's

great work in spearheading the effort in

Illinois in

getting the Mercury Free Vaccine Act -

HB 511 passed.

The Mercury-Free

Vaccine Act provides that no

person shall be vaccinated with a vaccine

or injected with any

product that contains

as an additive, thimerosal or other mercury-based

product. This bill

requires that beginning

January 1, 2006, no person in Illinois shall

receive a vaccine with

more than 1.25 micrograms

of mercury per dose and commencing in January

1, 2008, no person

shall receive any vaccine

that contains or ever contained mercury even

at trace levels.

Thank you,

â€¢ A message from

our good friends at A-CHAMP.

A-CHAMP (Advocates

for Children's Health Affected

by Mercury Poisoning) Political Action

Committee

Dear Fellow

Parents:

I am pleased to

announce the formation of A-CHAMP

Political Action Committee, the

Advocates for

Children's Health Affected by Mercury

Poisoning Political Action

Committee, a national

organization that aims to be a unified and

strong political voice for

the autism community.

We hope to become known simply as A-CHAMP.

Our goal is to enable

parents as a political

force. Our organization will be strictly

non-partisan and

non-ideological. Our working group represents

the political spectrum. We

hope and expect

that parents of all political views will be

united with us. Our one

unifying political

focus is to get the truth out about what has

happened to our children and

to make sure our

children have a secure future. We will

empower parents to make sure this

happens. We can

succeed because we will, indeed, be

armed with the truth. Our sole focus

will be on our

kids.

The purpose of

A-CHAMP is to provide a hands-on

lobbying and political action

organization for

parents of children with autistic spectrum

disorder. The initial working

group of A-CHAMP

includes parents who have been deeply engaged

in this effort. They

include Liz Birt (Illinois),

Bobbie Manning (Western NY), Rita Shreffler

(MO), Lujene

(MO), Gilmore (NYC)

and Lenny Schafer (CA). Our initial focus

will be on vaccine

injuries, including Thimerosal

and MMR related issues, because these pose

a direct threat to

children, but our attention

will not be limited to those concerns. Almost

all our children,

for example, are denied

basic health insurance coverage yet we pay

the same premiums as

other families -- we

intend to stop this inequity. This is one

illustration of the practical

problems that

confront parents. We expect to address these

and other critical concerns

within our community

by empowering parents. There is no reason

a well organized parents'

movement cannot be

as powerful as the AARP or the NRA or,

to use a more recent historical

example, Moveon.org.

A-CHAMP will not

supplant or disturb not-for-profit

organizations, biomedical support

groups, or any

other work with which many of you have

been involved. To the contrary,

our purpose is to

give the individuals involved in all

those efforts a unified political

voice, one that

will be backed by the power of large

numbers of parents. Our power will

come from our

numbers, if we are organized and unified.

Our adversaries may have 1200

lobbyists in

Washington. We have the potential to have

120,000 or more lobbyists and

with that will

come real power. With real power we can help

our kids. We have already

sought out and obtained

the support of many parents, and we are

continuing this

effort to establish a broad support base.

We have received an

enthusiastic response.

For the sake of

our children, it is imperative

that we succeed in this campaign. Please

join us. Our

children need us to be one strong

voice so that they may be heard! We

invite and

encourage you to participate with us in

a collaborative endeavor. We

believe that the

future of our children depends upon it.

You and every member of your

family can become

A-CHAMP for your children by visiting our

website at www.a-champ.org.

Very truly yours,

Bob Krakow

President ~

A-CHAMP

www.A-CHAMP.org

Advocates for

Children's Health Affected by

Mercury Poisoning

The Third Wave...

Gathering force

the third wave thunders on

the shore. Pharma, bureaucrats, politicians,

pundits, media

outlets, and various organizations

assess the damage. Last week, The New

York Times

reported, " ... in recent

months, these parents have used their numbers,

their passion and

their organizing skills

to become a potent national force. "

The first wave

rises with the publication of Leo

Kanner's theories in 1943. Mothers are

to blame, forced

to admit their guilt. Children

are taken from their homes. Families

destroyed. Your

sister, girlfriend, mother, wife is the

problem. Children need help.

Mothers need

analysis. An industry of blame is born. Therapists

bask in circular

endorsement for their " heroic

efforts. " Mothers do no get better.

Children do not

get better.

Dr. Bernard

Rimland's seminal work, Infantile

Autism, published in 1964 brings a

second wave. The

origins are biological. Moms are

not to blame. Applied behavior analysis

and psychotropic

drugs become " accepted "

treatments. The culture of blame gives way

to semantics as science.

Diagnosis is the

product of new-found earnest enlightenment.

PDD-NOS enters the lexicon;

less pungent; more

politically correct. The destructive

undertow of the first wave

continues. Genetic

research promises answers it can't fulfill.

On the horizon a storm is

brewing.

The rising tide of

children with autism crosses

a threshold in the early 1990s. Parents turn

to the Internet.

Societies, professional organizations,

your family doctor, major medical

universities and

government agencies respond to the problem

with non-answers. Thousands of

web sites are

built, beacons crying out, " I'm here. "

Maps as out of date as any found

five hundred years

ago when mapmakers wrote, " Beyond

this place, there be dragons! " await

parents: the end of

knowledge, the edge of

reason, myth masquerading as science. Parents

find each other: the

third wave.

Collectively

millions of hours are spent finding, researching,

learning. The numbers

continue to rise. More

parents join the search for truth. The wrong

answers are found.

Parents are ignored and

dismissed. The waters will not be calmed.

The problem will not go

away.

The problem

crystallizes around a search for truth

and those who oppose it. In

divided times

relativistic answers are conjured up and offered

as true. But what is

truth?

There is a useful

philosophical tool to better understand

a problem. It comes from a branch

of philosophy

called realism. The idea is to subtract the

thing in question and then

ask " Could the

world without it operate normally? "

The thing in

question is truth. If one subtracts

truth from the world then the world

cannot function

normally. All great works of science

and art would immediately disappear.

They are by

definition searches for truth. Banks

would not need to be truthful.

Business and

commerce would collapse. Minus truth there

could be no facts. The idea of

education would

end. Only basic survival skills would remain.

Those who oppose

the search for truth scorn it without

realizing they cannot subtract it

from the world.

Truth can be hidden, manipulated, stretched

and ridiculed. Truth cannot

cease to exist.

We reject

relativistic truths. We will not

be ignored. We are not afraid. We are

here. Corporations

think in terms of quarterly profits,

politicians in terms of election

cycles, government

bureaucrats in terms of job security. We think

and plan in terms of the

lifetime of our children.

The fourth wave

grows and behind it another and

another and another - Truth. No ground

will be high

enough, no harbor safe enough to shelter

wrong from right.

With the right set

of eyes one can look into the

future and see where the waters crest and

recede. But no eyes

can look deeply enough

to see a parent's pain. Rational and reasonable

our passion and

organizing skills become a

potent national force.

Together, we right

the wrongs. We turn, fall upon our

knees. We turn to hide our faces, our

tears the waves.

" My son, sleep tonight. My

quest is you. The dragons are gone. I will

never leave you.

Tomorrow we will play in

a bright new wonderful world. "

As always, if you

have any questions, comments,

ideas, or suggestions please don't hesitate

to contact me.

Thank you.

My Best,

Edmund Arranga

714.680.0792

http://AutismOne.org

earranga@...

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Sell on Auctions – no fees. Bid on great items.

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December 16, 2007

Autism One Newsletter

If you received this email by error, click REPLY, add REMOVE and you will no

longer receive Unlocking Autism posts.

AUTISM ONE 2008

The Care, Treatment and Recovery of Children with Autism

Conference dates: Wednesday, May 21 -

Sunday, May 25

Proud Member of the Autism

Collaboration<http://autism.org/>

Sunday, December 16, 2007

Dear Friends and Colleagues-

AUTISM IN THE NEWS

Flu Shots for Children Grow Near in New Jersey

TRENTON, Dec. 10 Despite opposition from numerous parents and children?fs

rights advocates, a public health advisory panel voted on Monday to require

all children in New

Jersey<http://topics.nytimes.com/top/news/national/usstatesterritoriesandpossess\

ions/newjersey/index.html?inline=nyt-geo>

who attend preschool or are in day care to get annual

flu<http://health.nytimes.com/health/guides/disease/the-flu/overview.html?inline\

=nyt-classifier>

vaccinations<http://health.nytimes.com/health/guides/specialtopic/immunizations-\

general-overview/overview.html?inline=nyt-classifier>.

Before the vote, some parents who believe in a link between vaccinations and

autism<http://health.nytimes.com/health/guides/disease/autism/overview.html?inli\

ne=nyt-classifier>

spoke against the proposal, but state officials said they did not believe

there was such a connection.

A recent federal study showed that New Jersey leads the nation in its rate

of autism, a neurodevelopmental condition the cause of which is still a

mystery. Continue reading Flu Shots Grown Near in New Jersey

><http://www.nytimes.com/2007/12/11/nyregion/11vaccine.html?ref=health>

Keep talking, Imus

DON IMUS returned to the airwaves on Dec. 3, marking the end to a

hypocritical media morality play and bringing a needed voice back to the

radio.

So while Americans have been " protected " from Imus these past six months,

what else happened in the media world? Mostly, it's been a continued

sideshow of hypocrisy in action. Continue reading Keep talking, Imus

><http://www.boston.com/ae/tv/articles/2007/11/27/keep_talking_imus/>

Family Wins Case In Autism Coverage Lawsuit

Anthem Ordered To Cover Costs Of Autism Therapy

BOULDER, Colo. -- Abby Tappert was diagnosed with autism two years ago. At

the time, her mother, Jill, said Abby couldn't talk or socialize like other

kids.

Like most mothers, Jill Tappert searched for treatment plans -- anything

that would help her daughter live as normal a life as possible. Continue

reading Family Wins

Case?c><http://www.thedenverchannel.com/health/14735922/detail.html>

Autism: To Vaccinate Or Not to Vaccinate

MIAMI (CBS4) Aradical move in the world of medicine is advisingpediatricians

across the country to screen every child at age 18 months and 2 years old

for signs of autism.

The greatest of medical detectives, the most loving of parents and the most

genius of scientists can't seem to unravel the world of autism and the

mystery of what may cause it. Now growing numbers of parents and doctors are

declaring war to help find answers for the millions not yet touched by it.

Continue reading Autism: To Vaccinate Or Not to Vaccinate

><http://cbs4.com/iteam/vaccine.autism.kids.2.598341.html>

Watch the CBS video Autism: To Vaccinate Or Not to Vaccinate

><http://wfor.cbslocal.com/services/popoff.aspx?categoryId=8 & videoId=44134wfor (DOT) \

dayport.com & videoPlayStatus=false & videoStoryIds=44134wfor (DOT) dayport.com & videoTime\

=1.053 & >

Compounds in digestive system 'linked to autistic-type behaviour'

UWO researchers investigated the " gut-brain " connection after many parents

of autistic children reported significant improvements in the behaviour of

their autistic children when they modified their diet, eliminating dairy and

wheat products, Dr Derrick MacFabe, the director of a research group at UWO

in London, Ontario, told CBC News.

Researchers were particularly interested in one dietary characteristic the

autistic children seemed to exhibit, he said.

" Certainly, a lot of these children had peculiar cravings for

high-carbohydrate foods that caused their behaviours, " said Dr MacFabe.

" We were interested in finding a link between certain compounds that are

produced by bacteria in the digestive system particularly those occurring

with early childhood infections. "

The bacteria produce propionic acid, a short chain fatty acid, which in

addition to existing in the gut, is commonly found in bread and dairy

products, Dr MacFabe said.

To test their hypothesis that diet plays a part in generating autistic

behaviour, UWO scientists administered the compound to rats' brains. " They

immediately engaged in bouts of repetitive behaviour, hyperactivity and

impaired social behaviours which had close similarity to what parents are

seeing with autism, " Dr MacFabe said. Continue reading Compounds in

digestive system 'linked to autistic-type behaviour'

><http://www.autismconnect.org/news.asp?section=00010001 & itemtype=news & id=6333>

Watch Dr. Martha

Herbert?fs<http://www.cbc.ca/clips/mov/autism-gut-brain-070927.mov>,

assistant professor in neurology at Harvard Medical School, commentary on

the ?gCompounds in the digestive system?h study.

As always Dan Olmsted at The Age of Autism<http://www.ageofautism.com/>

continues to research, develop, and report stories of significance.

Lenny Schafer?fs Autism Report<http://www.sarnet.org/> excellently summaries

and reports news from around the world.

LEND YOUR SUPPORT

Please consider taking a moment to fill out the Autism Research

Institute<http://www.autism.com/>?fs ?gParent Ratings of Behavioral Effects

of Biomedical Interventions?h here

>><http://autism.com/treatable/form34qr.htm> .

The Autism Research Institute has been collecting and tabulating parent

ratings on the usefulness of treatments for 30 years. More than 25,000

parents have helped make this survey the premier information exchange of

what works and what doesn?ft.

Results are posted online to help guide you and is instrumental in

developing research initiatives.

MERRY CHRISTMAS AND HAPPY HOLIDAYS

Meet Rowley<http://www.elfyourself.com/?id=1215257237> our volunteer

coordinator and the rest of the Rocking Rowley Renegade Elves. Grab a glass

of eggnog and enjoy.

AUTISM ONE RADIO

New Broadcast in Spanish

Autism One welcomes Lalama as liaison to South America!Join on

her new program on Autism One Radio each 3rd and 4th Tuesday of the month.

Debut: Tuesday, December 18, 3:00 pm ET - Deshaciendo El Autismo - Capitulo

Uno

El programa deshaciendo autismo proveer?E fuentes de informaci?En para

tratar de ayudar a los padres de ni?Eos diagnosticados con autismo,

gui?Endolos a escoger el mejor tratamiento posible para sus hijos. El

programa hablara de medicina integral y de c?Emo usted podr?E utilizar estos

conocimientos para hacer que los ni?Eos sufran menos y que los tratamientos

bioqu?Emicas sean m?Es efectivos. A medida que el programa avance tocara

temas de c?Emo hacer terapias naturales que podr?En ser realizadas por

familias de escasos recursos o por encontrarse en pa?Eses donde no se pueden

conseguir los productos convencionalmente usados en las terapias

bioqu?Emicas. El programa se transmitir?E en Espa?Eol el 3ro Martes de cada

mes y en Ingles el 4to Martes de cada mes. El programa tambien tendr?E

entrevistas de profesionales, expertos y otros padres que me ayudaron

contribuyendo con informaci?En valiosa, que ayudo a mi hijo a recuperarse.

Reversing Autism Chapter ONE

Reversing Autism provides information and resources to help you, the parent,

guide the best possible treatment plan for your child. The program will give

information about Integrative Medicine tools and how these can be used to

enhance your child?fs current biomedical treatments. As the program evolves,

it will have installments about more specific economical and natural

treatments that can help parents in developing countries where it is not

possible to follow the conventional biomedical treatments due to limited

access, geography or economic status. The program will be recorded in

English and Spanish and air twice a month. There will be interviews with

very useful information from experts, professionals and parents who have

helped recover her children.

Update on Lead Blanket Alert

Autism One Radio is continuing the investigation with regard to the

lead-containing blanket sold to parent, Lois , as suggested by a

representative at the parent company, Shielding International of Madras,

Oregon, and ordered through a distributor in Michigan. It has been related

to Autism One Radio that a representative at the parent company also let the

Coordinator of the Childhood Lead Poisoning Prevention Program, Michigan

Department of Community Health, know that a child?fs security blanket could

be sent in to be filled. Autism One Radio has been in contact with the

Section Manager, Environmental Toxicology, Public Health Division, in

Portland, Oregon, and has been told that Shielding International has agreed

to send a notice to distributors and put a notice in its catalog, however,

this does not address the issue of notifying parents who have purchased this

product or having the product recalled. Additionally, Autism One Radio was

told that the CEO of Shielding International has said that they do not sell

directly to the public and they do not know why (for what use) a distributor

is ordering an item. Oregon will get the word out around the state to groups

that work with children. Autism One Radio will air a program covering this

situation when this investigation is farther along. Documentation related to

the testing on the blanket shipped to Lois can be seen

here<http://autismone.org/radio/?radio=leadblanket>.

JENNY MCCARTHY TO DELIVER THE KEYNOTE ADDRESS AT AUTISM ONE 2008

Wednesday, May 21 Sunday, May 25, Westin O?fHare Hotel, Chicago, ILL

We are very pleased to announce McCarthy as our Keynote Speaker,

Friday, May 23rd.

?fs passionate journey recounting the recovery of her

son<http://www.amazon.com/Louder-Than-Words-Mothers-Journey/dp/0525950117/ref=sr\

_1_1/104-6459016-9394355?ie=UTF8 & s=books & qid=1189179017 & sr=8-1>

touched a deep emotional need to openly begin the conversation of recovery.

Like a back on a 99-yard touchdown dash, broke through the mainstream

media?fs ?gr-word?h defense and within a three-day period spiked the ball on

Oprah, Larry King Live! and The View. Finally, Recovery was out in the open.

Some of the hosts challenged , but her knowledge would not be denied.

Suddenly and without censure America heard the truth: hope and healing are

real. It had been a long time in coming.

From the first documented case of recovery to national media outlets

covering ?fs story a long and dark decade passed. Not a word. The

mighty journalistic institutions with their armies of investigative

reporters we have come to depend on (with the exception of Dan

Olmsted<http://www.ageofautism.com/>/UPI) passed on the most important story

of our time. It took a mother. A mother with a forum and a deep conviction

to do what needed to be done.

Autism is the story of mothers. Mothers who redefined themselves to become

teachers, writers, researchers, advocates, doctors, lawyers, programmers; no

job was too difficult, no burden too heavy?cmothers took up the crucible and

inch by inch carried on against every imaginable force and hardship. From

every plain and town mothers left careers, and friends and family members

who could not understand their conviction behind. Called ?gdesperate,?h and

?gfrantic?h and given no chance of success mothers met every smirk with

greater resolve.

In the normal course of events the call for true courage may only be heard

once or twice in a life and never heeded. In the turbulent course for

mothers with children on the spectrum the call is clarion and constant.

heeded the call choosing the courageous path, instantly creating

powerful enemies, but immediately bonded with the thousands of other mothers

who had put motherhood before all other considerations. carries a

greater truth than any one she knew before. She carries the courageous

conviction of each determined mother who sacrificed untold indignities so

that could save her son.

REGISTRATION IS NOW OPEN<http://www.autismone.org/leftside.cfm?page=14>.

Refrigerator Moms 2.0

Language strikes a deep chord in each of us. The English language is a

wonderful tool, but, like a gun, it can be used as a weapon. ?gSodbuster?h

and ?gbureaucrat?h are but two simple examples of language as a weapon, with

new ones being coined all the time. Aimed at specific groups the

emotionally-laden labels are meant to attach blame, separate ?gthem?h from

?gus?h and by design tell one-half the story: the side the antagonist wants

you to believe. ?gSodbuster?h was a term of derision aimed at farmers by

ranchers, ?gbureaucrat?h a term of contempt wielded by those who wish to

highlight the many shortcomings of an organization or individual.

The word-weapon of choice in the latest autism assault is ?ggenetics?h and

it?fs loaded and aimed at your head. Autism is no stranger to the

vulgarities of language. Indeed, the entire history of autism could fairly

be described ?gas words as instruments of blame.?h

Kanner and Bettelheim, the one-two punch condemning mothers to perdition,

defined autism and its legacy of blame which parasitically burrows into the

host of the day -- psychiatry in the 20th Century, genetics in the 21st --

to lay its eggs of guilt and shame. Complementary theories of fault

(drinking

moms<http://www.medicinenet.com/script/main/art.asp?articlekey=31375>, older

moms<http://pnnonline.org/article.php?sid=7365>) vie for attention while

fanning a mother?fs deepest fears the fear of unwittingly harming their

child.

The ?ggenetic?h theory of autism is so full of holes it defies

straightforward analysis, which is in keeping with the ?gRefrigerator Mom?h

theory of the 20th Century. Welcome to the ?grabbit hole.?h Central to both

theories, ?gAdmit the blame is yours then we might be able to help you.?h

?gRefrigerator Moms?h were required to admit their poor parenting skills

before their ?ghealing?h psychoanalysis sessions could begin. Resistance to

admission of ?gguilt?h was regarded as denial and grounds for removal of the

child from their home.

?gGenetic Moms?h begins with the same premise: ?gThe blame is yours, we know

it, you know it, admit it. Donate a tissue sample and we might be able to

find out what?fs wrong with you,?h with the implicit message: ?gDeny the

genetic juggernaut and you put other children at risk.?h

The foundational flaws in favor of a genetic cure are of such gibberish it

all but paralyzes the brain from higher-order thought, freezing the

esophagus in a state of disbelief. It reminds me of the old

joke<http://cumberlandbooks.com/blog/?p=1092> where a drunk is explaining to

a passerby he is looking for his keys under the streetlamp although he lost

them up the road because he can see better in the light.

There cannot be a genetic

epidemic<http://www.gene-watch.org/genewatch/articles/16-2herbert_silverman.html\

>,

leaving environmental factors as the only possible culprit. If the cause of

lead poisoning is lead, if the cause of cancer is asbestos, if the cause of

burns is fire remove the dangers. Don?ft ask which children are genetically

susceptible to lead, asbestos, and fire. Genetic apologists?f next step will

be to call for bio-engineering flame-retardant kids.

Belief in genetics as the Holy Grail is a dangerous extension of

?gRefrigerator Moms?h gussied up in 21st Century ?gscientific?h finery. In

an outstanding critical analysis of genetics Dr. Herbert is doing to the

?gGenetic Mom?h theory what Dr. Rimland did to the ?gRefrigerator Mom?h

theory 50 years ago: discredit its foundation, premises, and false promises.

In ?gMore than code: From genetic reductionism to complex biological

systems<http://autismone.org/documents/More%20than%20code.pdf>?h Dr. Herbert

says, ?gThe reduction of the physicality of DNA to notions of ?egene?f and

?einformation?f is biologically naive. Yet it pervades not only public

relations but also regulatory policies and even many scientific research

programmes.?h

?gNotions of ?eone gene, one disease (or one trait)?f are also being

undermined. Gene researchers have sought to unearth the ?egenes for?f

physical and neuropsychiatric disease states, as well as for behavioural and

social features ranging from intelligence and physical prowess to violence.

Hitherto there has been no direct mapping from DNA to protein to such

observable human behavioural traits or disorders, and even the notion of

such simple mapping is inappropriate (Newman 1988b; Hubbard and Wald 1999;

Paterson et al. 1999). It would indeed be peculiar if hundreds of millions

of years of evolution led in a direct line to a chemical code that

?edetermined?f human and animal behaviour in a manner unambiguously

reflective of the hierarchical structures of capitalist industrial society.

Notions of direct mapping from gene to behaviour are also dubious from the

vantage point of cognitive neuroscience, since between genes, proteins and

behaviour lie many mediating levels and processes, including not only social

influences but also variations in brain and body biology that are not fully

determined by genes. There will be no straight path from gene to behaviour

through this web of intersecting influences.?h

Autism is genetics?f halting

problem<http://en.wikipedia.org/wiki/Halting_problem>. Autism is genetically

unsolvable. But don?ft expect the impossibility of the endeavor to slow the

genetic movement or their breathless headlines of ?gGenetic Mice with Autism

Created,?h ?g56 New Genes Identified?h and ?g$200 Million Raised for Genetic

Research.?h As Dr. Herbert states, ?gAlthough scientists and biotechnology

corporations have fallen far short of fulfilling initial ambitions, their

enormous investment of financial and intellectual capital dictates the

ongoing pursuit of the genetic ?erevolution?f.?h

In the land of flibbertigibbets and fantastics, ?ggenetics?h is the

philosopher?fs stone, alchemy and astrology rolled into one pejorative

solution to the autism problem; promise everything, answer nothing. Create

?gscientific?h barriers to entry, support the machinations of profit and

profiling and above all else use ?ggenetic?h as the newest instrument to

blame moms.

Lost in a hubris of genetic blame is our children are beautiful beyond

words, precious beyond description. The blessed interplay of creativity,

intelligence, humor, and the thousand other gifts we see shaping their

solitary right to existence are not reducible to genetic claims of

redemption. Their tender lives are ordained by healing - your touch, your

voice, your love, your care - the salvation. If we don?ft get a chance to

connect again before the holidays have a joyous Christmas and a wonderful

New Year.

As always, please let us know if you have any questions, comments,

suggestions, or ideas. Thank you.

Our Best,

Ed and Teri Arranga

714.680.0792

http://AutismOne.org<http://autismone.org/>

earranga@...<mailto:earranga@...>

**************************************

See AOL's top rated recipes

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December 17, 2007

I don’t get it----these are OUR children.. so since the “gov’t” thinks

there is no connection, that makes it so and thousands of parents just

must be crazy and seeing things?!

I agree with Ron paul. The gov’t DOESN”T have the right to put their

nose into *my* healthcare! Look at what a mess they are and I’m

supposed to believe them when it comes to these things?! Oh I don’t

think so.

Nita, Mom to: 14, Jon 13, 10, 8, 6, Christian

(7/16/03 to 8/22/04), 2 and Baby Boy due Feb. 08

Learn from the mistakes of others. Trust me... you can't live long

enough to make them all yourself.

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July 12, 2009

See what I highlighted, SEIZURES SURVEY.

Conference dates: Wednesday, May 20 - Sunday, May 24

Proud Member of the Autism Collaboration

Sunday July 12, 2009

Dear Friends and Colleagues -

SET TO LAUNCH

We are pleased to announce our new site (new.autismone.org) is about to go live. Integrating the AutismOne conference and other videos, conference presentations, and AutismOne Radio, and incorporating blogs, groups, articles, forums, a store, and dating we believe provides a better way to educate, inform, and – most importantly – add your voice to the conversation.

If you have not done so already, please visit our new site, become a member, and start blogging, start a group, post a comment, or volunteer. Many of our presenters and radio hosts will soon be joining us to create a virtual year-round AutismOne conference. Plus, we will be unveiling new presenters providing you the opportunity to get to know them better in a more informal " get together. " If you have a piece of advice, an insight, a funny story, an idea, or just want to say “hi,” we want to hear from you.

ON THE VOICEAMERICA HEALTH AND WELLNESS CHANNEL

www.health.voiceamerica.com

Tuesday, July 14, 12:00 noon ET

Autism One: A Conversation of Hope

Host: Teri Arranga

Guest: Barbara Loe Fisher, Co-Founder and President of the National Vaccine Information Center

Topic: Flu vaccines: what you must know, with Barbara Loe Fisher

This past spring, the World Health Organization and Centers for Disease Control declared a " public health emergency " after a new human-pig-bird hybrid influenza virus was identified in Mexico near a pig farm. The new swine flu virus is causing mostly mild symptoms similar to the regular flu, but CDC officials say the virus could mutate and become more serious. Congress has given drug companies several billion dollars to develop experimental swine flu vaccines that will contain genetically engineered flu viruses and novel oil-based adjuvants that have never been licensed in the U.S. These experimental flu vaccines are being fast- tracked with limited testing for public release and use this fall. CDC officials have announced that children ages 5 to 11 will be targeted first using school-based vaccination programs. There are many questions about the safety and effectiveness of these experimental swine flu vaccines and whether new state public health laws, which have been enacted since 9-11, will force vaccination and quarantine of Americans without informed consent. Please look to the National Vaccine Information Center at www.NVIC.org for more information about what you should know and what you can do.

NVIC's 4th International Public Conference on Vaccination

October 2-4, 2009, Reston, VA

http://www.nvic.org/Events/overview.aspx

SEIZURES SURVEY

In January 2009 ARI held a think tank on seizures, and in May 2009 Autism One held a complementary think tank. As a follow-up to two those think tanks, Dr. Frye is working with the attendees on a " Consensus Paper on Seizures in Autism and How to Treat Them. "

If your son or daughter (or you) suffers from seizures, we would like to ask you to fill out a survey created by Dr. Frye with the help of Prof. , Science Coordinator of ARI/Defeat Autism Now! We think that this very detailed survey will provide a much richer understanding of the efficacy and possible side-effects of current treatments for seizures.

Please help us by filling out the survey if it applies to you, and by forwarding information about this survey to other autism groups.

You can access the survey at http://www.surveymethods.com/EndUser.aspx?E8CCA0BDEFA3B9B8

Thank you very much for helping us find answers to seizures in autism.

Sincerely,

E. Frye, M.D., Ph.D., F.A.A.P.

Assistant Professor of Pediatrics and Neurology

University of Texas-Houston

B. , Ph.D.

Professor, Arizona State University

http://autism.asu.edu

Science Coordinator, Autism Research Institute/Defeat Autism Now!

Defeat Autism Now! Fall 2009 Conference

October 8-12, Dallas, Texas

Please visit www.defeatautismnow.com

ACTION ALERT from the National Autism Association

Please visit http://www.nationalautismassociation.org/abuse.php

- 19 states have zero regulations protecting our disabled children in schools.

- States that do have regulations or guidelines are not being followed by many school districts.

- Our federal lawmakers say they have not heard from us on harmful restraint and seclusion.

According to a May 2009 government report on restraint and seclusion practices, an overwhelming amount of abuse, neglect, and emotional abuse is happening in schools throughout the country.

The report found no federal laws in place that regulate restraint & seclusion.

The report revealed that state regulations are “widely divergent” and that 19 states have nothing that regulates restraint & seclusion in schools.

The report revealed ten case studies where children with varying disabilities died as a result of restraint and seclusion, were seriously harmed, or emotionally traumatized.

Because there are no laws, many of the people responsible for this abuse still work within the school systems.

Take these two steps immediately to raise your voice and help our children's safety!

STEP 1: Send a letter to federal lawmakers & call: every member on the Education and Labor Committee needs to hear from us IMMEDIATELY.

CLICK HERE for a sample letter and list of committee members. We need to show them how big our voices are!

STEP 2: Send a letter to state lawmakers & call: if you are in the following states, you have NO state regulations: Wisconsin, Wyoming, Vermont, South Carolina, South Dakota, North Dakota, Oklahoma, New Jersey, Nebraska, Mississippi, Missouri, Kansas, Kentucky, Louisiana, Indiana, Idaho, Florida, Georgia, Arizona.

CLICK HERE for a sample letter and a link to find your state reps. For people in the other states, most of your laws aren't being consistently followed.

Please send letters to both committee members and state lawmakers and a copy to kutzg@....

Signed,

The National Autism Association

Autism Research Institute

Talk About Curing Autism

Unlocking Autism

Autism One

The Autism Human Rights and Discrimination Initiative

The Autism Trust

Autism Action Network

Schafer Autism Report

Parents in Action, PIA, Inc.

Concerned Parents in Florida of Children with ASD

Families Against Restraint and Seclusion

Autism Salutes

What you can also do right now to help protect your child: Visit WWW.NATIONALAUTISM.ORG or WWW.APRAIS.TASH.ORG to DOWNLOAD A SAMPLE “NO CONSENT” LETTER to provide your child's teachers, principal and have it placed into your child's IEP.

For more information, visit:

http://familiesagainstrestraintandseclusion.blogspot.com/

http://aprais.tash.org

National Autism Association's National Autism Conference

The annual NAA National Autism Conference will be held November 12-15, 2009.

Please visit http://www.nationalautismconference.org/index.htm

COMMUNITY MOURNS PASSING OF DR. TED CARR

Pioneer Psychologist Transformed Understanding and Treatment of Autism Behaviors

The autism community lost a great leader, Dr. Carr, who was killed by a drunk driver the afternoon of June 20, 2009. Dr. Carr, the Leading Professor in the Department of Psychology at the State University of New York at Stony Brook, was a top advisor to the Autism Society of America. We are deeply saddened by the loss of our friend and colleague and his wife, Ilene Wasserman, who was also killed in the crash, and we send our thoughts and prayers to their family.

Dr. Carr was recognized internationally for his research on new treatments for autism and related disabilities. He co-developed Functional Behavioral Assessment and Positive Behavior Support, a strategy for dealing with learning and behavior issues endorsed by the Individuals with Disabilities Education Act (IDEA). Dr. Carr wrote numerous articles on autism treatment and authored the best-selling book, Communication-Based Intervention for Problem Behavior ( H. s, 1994). He received numerous awards, including the Applied Research Award in Behavior Analysis (American Psychological Association, 2001) and the Distinguished Research Award for Career Achievement (ARC, 1999).

Dr. Carr was a strong supporter, valued contributor and beloved colleague at the Autism Society of America. As a member of the Autism Society’s Panel of Professional Advisors, he was a frequent contributor to the Autism Advocate, most recently co-editing an issue on ABA therapy, which was one of his many areas of expertise. With Drs. Martha Herbert and -Myles, Dr. Carr developed the Autism Society’s Treatment Guided Research Initiative and was the main inspiration for the " Quality of Life " objectives the Society uses to develop and evaluate its programs. A frequent presenter at the Autism Society National Conference, Dr. Carr was scheduled to moderate this year’s keynote panel on “The Future of Autism” on July 23. The panel will continue to be held in his honor.

“Ted was passionately committed to improving the quality of life for people with autism and their families,” said Lee Grossman, President and CEO of the Autism Society. “Those of us who were privileged to work closely with him will miss his insights, his humor, his deep compassion and advocacy for people affected by autism. We will miss him greatly but we will ensure his legacy lives on.”

“Dr. Ted Carr was a pioneer in the field of positive behavior supports and autism spectrum disorders. His focus on enhancing quality of life and understanding of the systemic issues surrounding behaviors forced practitioners to think more broadly when designing interventions,” said Dr. Pratt, Chair of the Autism Society Board of Directors. “He was a gentle man and quiet innovator with a quick wit and amusing perspective. His work will truly live on and serve as an inspiration for generations to come.”

Autism: Changing the Course in Canada

Autism Canada, Autism One, and the Dalla Lana School of Public Health at the University of Toronto are planning a conference in Toronto this fall. Over 500 people will gather for Toronto's inaugural bi-annual conference titled Autism: Changing the Course in Canada. This collaborative conference will take place Saturday, October 31 and Sunday November 1, 2009 at the University of Toronto Medical Sciences Building. A separate off-site clinician workshop will take place on Friday, October 30, 2009.

As always please let us know if you have any questions, comments, suggestions, or ideas. Thank you.

Our best,

Ed & Teri

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July 12, 2009