RE: New member here, with my story.

[Guest guest]

Currently I am taking both Singulair and Nasonex, along with

loratadine(Claritin), without any problems. Everyone is different, and

the side effects of all drugs need to be taken into consideration, as

well as their reaction to other non-prescription medications/vitamins

that you may be taking.

>

> > I¹ve never taken Singulair but my ENT has me on Nasonex which

could be similar

> > and it works really well. Been two years now since my last surgery

and so far

> > so good.

> >

> >

> >

>

>

> --

>

[Guest guest]

I occasionally take Sinex which is

dangerous long term but for a quick short term relief it’s excellent if

you’re blocked up. You’re right though, everyone is different and

what may work well for one may not for another.  I’ve been at my doctor

and ENT for years to be densensitized but they don’t do it.

From:

samters [mailto:samters ] On Behalf Of rpg4444

Sent: Friday, 22 June 2007 7:08 AM

samters

Subject: Re: New member

here, with my story.

Currently I am taking both Singulair and Nasonex,

along with

loratadine(Claritin), without any problems. Everyone is different, and

the side effects of all drugs need to be taken into consideration, as

well as their reaction to other non-prescription medications/vitamins

that you may be taking.

>

> > I¹ve never taken Singulair but my ENT has me on Nasonex which

could be similar

> > and it works really well. Been two years now since my last surgery

and so far

> > so good.

> >

> >

> >

>

>

> --

>

No virus found in this incoming message.

Checked by AVG Free Edition.

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No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date: 20/06/2007 2:18 PM

[Guest guest]

My allergist here in Florida will do the desensitization, but not for

everyone that requests it. Like everything else, it is not for

everyone. You have to weigh the benefits against the risks and only a

qualified doctor, with experience in desensitization, can tell you if

you are a possible candidate.

> >

> > > I¹ve never taken Singulair but my ENT has me on Nasonex which

> could be similar

> > > and it works really well. Been two years now since my last surgery

> and so far

> > > so good.

> > >

> > >

> > >

> >

> >

> > --

> >

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

[Guest guest]

I’m guessing neither of them are

experienced with it and even my allergist didn’t want to do it either.

From: samters

[mailto:samters ] On Behalf Of

rpg4444

Sent: Friday, 22 June 2007 7:37 AM

samters

Subject: Re: New member

here, with my story.

My allergist here in Florida will do the desensitization, but not

for

everyone that requests it. Like everything else, it is not for

everyone. You have to weigh the benefits against the risks and only a

qualified doctor, with experience in desensitization, can tell you if

you are a possible candidate.

> >

> > > I¹ve never taken Singulair but my ENT has me on Nasonex which

> could be similar

> > > and it works really well. Been two years now since my last

surgery

> and so far

> > > so good.

> > >

> > >

> > >

> >

> >

> > --

> >

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date: 20/06/2007 2:18 PM

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date: 20/06/2007 2:18 PM

[Guest guest]

Both my ENT and allergist told me that a lot of doctors do not like to

treat patients with the triad because of so many variables/risks.

Maybe you would feel better if you found a doctor with some past

experience with triad cases.

> > >

> > > > I¹ve never taken Singulair but my ENT has me on Nasonex which

> > could be similar

> > > > and it works really well. Been two years now since my last surgery

> > and so far

> > > > so good.

> > > >

> > > >

> > > >

> > >

> > >

> > > --

> > >

> >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

> >

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

[Guest guest]

Unfortunately easier said than done and as

yet haven’t found one. I’ve phoned other doctors in the area to be

told by the receptionist that they do treat Samters only to find that after

having an appointment with them, they don’t do anything different.

From: samters

[mailto:samters ] On Behalf Of

rpg4444

Sent: Friday, 22 June 2007 8:03 AM

samters

Subject: Re: New member

here, with my story.

Both my ENT and allergist told me that a lot of

doctors do not like to

treat patients with the triad because of so many variables/risks.

Maybe you would feel better if you found a doctor with some past

experience with triad cases.

> > >

> > > > I¹ve never taken Singulair but my ENT has me on Nasonex

which

> > could be similar

> > > > and it works really well. Been two years now since my last

surgery

> > and so far

> > > > so good.

> > > >

> > > >

> > > >

> > >

> > >

> > > --

> > >

> >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

> >

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date: 20/06/2007 2:18 PM

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date: 20/06/2007 2:18 PM

[Guest guest]

You may try asking IF they do aspirin desensitization. In this area,

with many many doctors to chose from, only two do desensitization.

> > > >

> > > > > I¹ve never taken Singulair but my ENT has me on Nasonex which

> > > could be similar

> > > > > and it works really well. Been two years now since my last

surgery

> > > and so far

> > > > > so good.

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > > --

> > > >

> > >

> > >

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG Free Edition.

> > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> > 20/06/2007

> > > 2:18 PM

> > >

> > >

> > >

> > > No virus found in this outgoing message.

> > > Checked by AVG Free Edition.

> > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> > 20/06/2007

> > > 2:18 PM

> > >

> >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

> >

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

[Guest guest]

I’ve been told on two occasions the

doctor does when in fact he doesn’t. I’ll be trying the city next

in the hope I can find one there even though it’ll be inconvenient, long

term if it works, it’ll be worth it.

From: samters

[mailto:samters ] On Behalf Of

rpg4444

Sent: Friday, 22 June 2007 8:20 AM

samters

Subject: Re: New member

here, with my story.

You may try asking IF they do aspirin desensitization.

In this area,

with many many doctors to chose from, only two do desensitization.

> > > >

> > > > > I¹ve never taken Singulair but my ENT has me on

Nasonex which

> > > could be similar

> > > > > and it works really well. Been two years now since my

last

surgery

> > > and so far

> > > > > so good.

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > > --

> > > >

> > >

> > >

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG Free Edition.

> > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> > 20/06/2007

> > > 2:18 PM

> > >

> > >

> > >

> > > No virus found in this outgoing message.

> > > Checked by AVG Free Edition.

> > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> > 20/06/2007

> > > 2:18 PM

> > >

> >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

> >

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date: 20/06/2007 2:18 PM

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date: 20/06/2007 2:18 PM

[Guest guest]

I think that if you find a doctor that has desensitization experience,

you will at least have a doctor that has all of the possible

tools/experience needed to find a treatment that suits your individual

needs. That peace of mind alone should go a long way towards your comfort.

> > > > >

> > > > > > I¹ve never taken Singulair but my ENT has me on Nasonex which

> > > > could be similar

> > > > > > and it works really well. Been two years now since my last

> surgery

> > > > and so far

> > > > > > so good.

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > > --

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG Free Edition.

> > > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> > > 20/06/2007

> > > > 2:18 PM

> > > >

> > > >

> > > >

> > > > No virus found in this outgoing message.

> > > > Checked by AVG Free Edition.

> > > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> > > 20/06/2007

> > > > 2:18 PM

> > > >

> > >

> > >

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG Free Edition.

> > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> > 20/06/2007

> > > 2:18 PM

> > >

> > >

> > >

> > > No virus found in this outgoing message.

> > > Checked by AVG Free Edition.

> > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> > 20/06/2007

> > > 2:18 PM

> > >

> >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

> >

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

[Guest guest]

Yeah but do you have your taste and smell? New member here, with my story.

>

> About six years ago I started sneezing whenever I took aspirin. This

> was after using large amounts my whole life. I am 61 years old now. My

> Doc told me to take tylenol.

> About a year later I was having a lot of discharge and trouble

> breathing. I could see some growths in my nostrils so I contacted an

> ear, nose, and throat doctor. He quickly determined that I had nasal

> polyps and scheduled surgery, along with a complete series of allergy

> testing. At that time, it was determined that I had no allergies.

> About two years later, I started having similar symptoms and again

> I was scheduled for my second nasal polyp surgery. 18 months later, my

> third. 11 months after that, I had my fourth polyp surgery. This time,

> the doctor used a new mapping type CAT scan to more closely guide him

> in his surgery. In addition to removing the polyps, he also cut back

> some of my tubulators. He assured me that he would not have to do

> surgery again.

> When I went in for my four month exam, I was already starting to

> experience the all too familiar symptoms. The doc confirmed that the

> polyps were starting to regrow and that I would probably need surgery

> by the end of the year.

> Ever since the first surgery, I had been on a Nasonex regime.

> After the second surgery I was able to get back some of my sense of

> smell by using prednisone, but the doc only tried that a few times. By

> the time I had my third surgery, I had lost most of my sense of smell

> and I doubt if it will return.

> My last surgery was last October and my exam was in February. In

> March, after having some shoulder pain, I took one 325mg aspirin to

> see if it would help. This was the first aspirin that I had taken in

> almost six years. In 1 1/2 hours I was in the emergency room hooked up

> to oxygen and being given an IV with Benedryl and Pepcid. I left there

> several hours later with a prescription for 60mg prednisone daily for

> four days, and two Epipens(epinephrine ) in case I have another

attack.

> I contacted my doctor and he scheduled me to see an allergy

> specialist. He did the asthma testing and it was determined that my

> peak flow capacity had been reduced to 66%.

> I am currently using Asmanex and Nasonex every morning, along with

> one loratidine pill, and two Singular pills every day. In addition, I

> am using 1200 mg of Calcium and 400 mg of vitamin D daily. After

> having been on this regime for the past month, I am doing about the

> best that I have done in the past several years. I still don't have

> much sense of smell, but I am not getting much discharge and can

> usually get a good nights sleep.

> I'm OK with having polyp surgery whenever it is needed and after

> so many years, I have gotten used to my lack of smell. What I am

> concerned about is whether or not my asthma will worsen as quickly as

> my polyp growth has. It is obvious that I have Samters but my doctor

> is being very vague about my long term prognosis. He has scheduled

> another complete series of allergy tests next month, but judging from

> those around me, I still don't have a problem with allergies.

> Have any of you experienced worsening asthma symptoms?

>

>

>

>

>

[Guest guest]

I’d have around 50% of my sense of

taste if that and no sense of smell. If I go on prednisone I’ll get it

all back. Sometimes I think it’s worth it just to get the sense of smell

and taste fully back.

From: samters [mailto:samters ] On Behalf Of Stefano Henriko

Sent: Tuesday, 3 July 2007 10:25

AM

samters

Subject: Re: New member

here, with my story.

Yeah but do you have your

taste and smell?

New member here, with my story.

>

> About six years ago I started sneezing whenever I took aspirin. This

> was after using large amounts my whole life. I am 61 years old now. My

> Doc told me to take tylenol.

> About a year later I was having a lot of discharge and trouble

> breathing. I could see some growths in my nostrils so I contacted an

> ear, nose, and throat doctor. He quickly determined that I had nasal

> polyps and scheduled surgery, along with a complete series of allergy

> testing. At that time, it was determined that I had no allergies.

> About two years later, I started having similar symptoms and again

> I was scheduled for my second nasal polyp surgery. 18 months later, my

> third. 11 months after that, I had my fourth polyp surgery. This time,

> the doctor used a new mapping type CAT scan to more closely guide him

> in his surgery. In addition to removing the polyps, he also cut back

> some of my tubulators. He assured me that he would not have to do

> surgery again.

> When I went in for my four month exam, I was already starting to

> experience the all too familiar symptoms. The doc confirmed that the

> polyps were starting to regrow and that I would probably need surgery

> by the end of the year.

> Ever since the first surgery, I had been on a Nasonex regime.

> After the second surgery I was able to get back some of my sense of

> smell by using prednisone, but the doc only tried that a few times. By

> the time I had my third surgery, I had lost most of my sense of smell

> and I doubt if it will return.

> My last surgery was last October and my exam was in February. In

> March, after having some shoulder pain, I took one 325mg aspirin to

> see if it would help. This was the first aspirin that I had taken in

> almost six years. In 1 1/2 hours I was in the emergency room hooked up

> to oxygen and being given an IV with Benedryl and Pepcid. I left there

> several hours later with a prescription for 60mg prednisone daily for

> four days, and two Epipens(epinephrine ) in case I have another attack.

> I contacted my doctor and he scheduled me to see an allergy

> specialist. He did the asthma testing and it was determined that my

> peak flow capacity had been reduced to 66%.

> I am currently using Asmanex and Nasonex every morning, along with

> one loratidine pill, and two Singular pills every day. In addition, I

> am using 1200 mg of Calcium and 400 mg of vitamin D daily. After

> having been on this regime for the past month, I am doing about the

> best that I have done in the past several years. I still don't have

> much sense of smell, but I am not getting much discharge and can

> usually get a good nights sleep.

> I'm OK with having polyp surgery whenever it is needed and after

> so many years, I have gotten used to my lack of smell. What I am

> concerned about is whether or not my asthma will worsen as quickly as

> my polyp growth has. It is obvious that I have Samters but my doctor

> is being very vague about my long term prognosis. He has scheduled

> another complete series of allergy tests next month, but judging from

> those around me, I still don't have a problem with allergies.

> Have any of you experienced worsening asthma symptoms?

>

>

>

>

>

[Guest guest]

Over the past 7 years only Betnesol drops and on an other occasion, a corticoid injection brought both taste and smell back but only for a couple of weeks. I moved country 8 months ago and have a complete new system to contend with and new doctors. They don't know what Betnesol drops are and they will not give me another corticoid injection because it's systemic (effects the whole body). Anyway I am down for my 2nd operation although they frighting me big time, any medical stuff.For the last month I have been off all dairy products, well except a little butter every few days. Also last two weeks went on the saliclyte diet but unfortunately I have had a chest infection or something similar for the last couple of weeks so dont

know if it's been helping as I feel bad, worse anyway.Think I'll try the honey and vinegar thingy but I remember some vinegars I maybe allergic too.Cheers, and update soon. New member here, with my story.

>

> About six years ago I started sneezing whenever I took aspirin. This

> was after using large amounts my whole life. I am 61 years old now. My

> Doc told me to take tylenol.

> About a year later I was having a lot of discharge and trouble

> breathing. I could see some growths in my nostrils so I contacted an

> ear, nose, and throat doctor. He quickly determined that I had nasal

> polyps and scheduled surgery, along with a complete series of allergy

> testing. At that time, it was determined that I had no allergies.

> About two years later, I started having similar symptoms and again

> I was scheduled for my second nasal polyp surgery. 18 months later, my

> third. 11 months after that, I had my fourth polyp surgery. This time,

> the doctor used a new mapping type CAT scan to more closely guide him

> in his surgery. In addition to removing the polyps, he also cut back

> some of my tubulators. He assured me that he would not have to do

> surgery again.

> When I went in for my four month exam, I was already starting to

> experience the all too familiar symptoms. The doc confirmed that the

> polyps were starting to regrow and that I would probably need surgery

> by the end of the year.

> Ever since the first surgery, I had been on a Nasonex regime.

> After the second surgery I was able to get back some of my sense of

> smell by using prednisone, but the doc only tried that a few times. By

> the time I had my third surgery, I had lost most of my sense of smell

> and I doubt if it will return.

> My last surgery was last October and my exam was in February. In

> March, after having some shoulder pain, I took one 325mg aspirin to

> see if it would help. This was the first aspirin that I had taken in

> almost six years. In 1 1/2 hours I was in the emergency room hooked up

> to oxygen and being given an IV with Benedryl and Pepcid. I left there

> several hours later with a prescription for 60mg prednisone daily for

> four days, and two Epipens(epinephrine ) in case I have another attack.

> I contacted my doctor and he scheduled me to see an allergy

> specialist. He did the asthma testing and it was determined that my

> peak flow capacity had been reduced to 66%.

> I am currently using Asmanex and Nasonex every morning, along with

> one loratidine pill, and two Singular pills every day. In addition, I

> am using 1200 mg of Calcium and 400 mg of vitamin D daily. After

> having been on this regime for the past month, I am doing about the

> best that I have done in the past several years. I still don't have

> much sense of smell, but I am not getting much discharge and can

> usually get a good nights sleep.

> I'm OK with having polyp surgery whenever it is needed and after

> so many years, I have gotten used to my lack of smell. What I am

> concerned about is whether or not my asthma will worsen as quickly as

> my polyp growth has. It is obvious that I have Samters but my doctor

> is being very vague about my long term prognosis. He has scheduled

> another complete series of allergy tests next month, but judging from

> those around me, I still don't have a problem with allergies.

> Have any of you experienced worsening asthma symptoms?

>

>

>

>

>

[Guest guest]

Sensitivity to vinegar may indicate an amine sensitivity.

Sheila

--------- New member here, with my story.> > About six years ago I started sneezing whenever I took aspirin. This> was after using large amounts my whole life. I am 61 years old now. My> Doc told me to take tylenol.> About a year later I was having a lot of discharge and trouble> brea

thing. I could see some growths in my nostrils so I contacted an> ear, nose, and throat doctor. He quickly determined that I had nasal> polyps and scheduled surgery, along with a complete series of allergy> testing. At that time, it was determined that I had no allergies.> About two years later, I started having similar symptoms and again> I was scheduled for my second nasal polyp surgery. 18 months later, my> third. 11 months after that, I had my fourth polyp surgery. This time,> the doctor used a new mapping type CAT scan to more closely guide him> in his surgery. In addition to removing the polyps, he also cut back> some of my tubulators. He assured me that he would not have to do> surgery again. > When I went in for my four month exam, I was already starting to> experience the all too familiar symptoms. The doc confirmed that the> polyps were starting to regrow and that I would probably n

eed surgery> by the end of the year.> Ever since the first surgery, I had been on a Nasonex regime.> After the second surgery I was able to get back some of my sense of> smell by using prednisone, but the doc only tried that a few times. By> the time I had my third surgery, I had lost most of my sense of smell> and I doubt if it will return.> My last surgery was last October and my exam was in February. In> March, after having some shoulder pain, I took one 325mg aspirin to> see if it would help. This was the first aspirin that I had taken in> almost six years. In 1 1/2 hours I was in the emergency room hooked up> to oxygen and being given an IV with Benedryl and Pepcid. I left there> several hours later with a prescription for 60mg prednisone daily for> four days, and two Epipens(epinephrine ) in case I have another attack.> I contacted my doctor and he scheduled me to see an allergy

BR>> specialist. He did the asthma testing and it was determined that my> peak flow capacity had been reduced to 66%.> I am currently using Asmanex and Nasonex every morning, along with> one loratidine pill, and two Singular pills every day. In addition, I> am using 1200 mg of Calcium and 400 mg of vitamin D daily. After> having been on this regime for the past month, I am doing about the> best that I have done in the past several years. I still don't have> much sense of smell, but I am not getting much discharge and can> usually get a good nights sleep.> I'm OK with having polyp surgery whenever it is needed and after> so many years, I have gotten used to my lack of smell. What I am> concerned about is whether or not my asthma will worsen as quickly as> my polyp growth has. It is obvious that I have Samters but my doctor> is being very vague about my long term prognosis. He has scheduled

BR>> another complete series of allergy tests next month, but judging from> those around me, I still don't have a problem with allergies.> Have any of you experienced worsening asthma symptoms?> > > > >

[Guest guest]

I would suspect sulphites. They are certainly present in wine vinegar. Maybe that is why they suggest Apple Cider Vinegar. I am going to the health food store to find some.

Pam

On 7/2/07 9:14 PM, " sheilafitzpg@... " <sheilafitzpg@...> wrote:

Sensitivity to vinegar may indicate an amine sensitivity.

Sheila <mailto:Sheila@...>

--------- RE: New member here, with my story.

Iâ€â„¢d have around 50% of my sense of taste if that and no sense of smell. If I go on prednisone Iâ€â„¢ll get it all back. Sometimes I think itâ€â„¢s worth it just to get the sense of smell and taste fully back.

[Guest guest]

For me absoloutly, sulphites are a problem like in some red wines, especially white wine, balsamic vinegars and sometimes if I dip my hand in the pickled onion jar too often. And off course dried apricots. I take it there's a strong like between sulphites and salcalytes? I mean having samters we should avoid both. I went to the allergist the other week but was only giving the usual 12 prick test thingy and the guy says there no point going any further. He said it was clear i was allergic to dust and mold fairly heavly. He also prepared some bottle of formula which I started, 1 drop, then 2 then 3 etc etc now on five and got two weeks left to go. What makes things extra difficult is I am from the UK now living in Argentina so I

am combating the Spanish, culture and all the new medical tacts at the same time.Any answers on the sulphites - salcalytes question would be appreciated. RE: New member here, with my story.

I’d have around 50% of my sense of taste if that and no sense of smell. If I go on prednisone I’ll get it all back. Sometimes I think it’s worth it just to get the sense of smell and taste fully back.

Answers - Get better answers from someone who knows. Try

it now.

[Guest guest]

http://www.users.bigpond.com/mywebhome/sindex.html#Anchor-Ke-46368

Sheila

--mail to: sheilafitzpg@...

--------- RE: New member here, with my story.I’d have around 50% of my sense of taste if that and no sense of smell. If I go on prednisone I’ll get it all back. Sometimes I think it’s worth it just to get the sense of smell and taste fully back.

Answers - Get better answers from someone who knows. Try it now.

[Guest guest]

That’s

an interesting list.  I must admit I eat a lot of the foods listed as high or

very high in salicylates with no apparent problems yet aspirin triggers my

asthma.  Maybe I am sensitive to the form in aspirin and not the other forms or

something like that?  And at one point I did totally cut out my biggest

contributor, coffee and sodas, for several months and I did not notice a change

in my sinuses during that time.  I wonder if it has to do with how or where

these chemicals are absorbed in the digestive system?

Re: New member

here, with my story.

http://www.users.bigpond.com/mywebhome/sindex.html#Anchor-Ke-46368

Sheila

--

mail to: sheilafitzpgcomcast (DOT) net

--------- RE: New member here, with my story.

I’d have around 50% of my sense of

taste if that and no sense of smell. If I go on prednisone I’ll get it all

back. Sometimes I think it’s worth it just to get the sense of smell and

taste fully back.

Answers - Get better answers from someone who

knows. Try

it now.

[Guest guest]

, I’m like you, I eat a lot from that

list with no side affects at all.  Aspirin is about the only thing at the

moment that seems to trigger my asthma, aside from cigarette smoke.

My ENT put me on a diet to eliminate all

the higher foods/drinks from that list for nine weeks and it made no difference

at all.

From: samters [mailto:samters ] On Behalf Of Keefer

Sent: Wednesday, 4 July 2007 9:12

AM

samters

Subject: RE: New member

here, with my story.

That’s an interesting list. I must admit I eat a lot of the

foods listed as high or very high in salicylates with no apparent problems yet

aspirin triggers my asthma. Maybe I am sensitive to the form in aspirin

and not the other forms or something like that? And at one point I did

totally cut out my biggest contributor, coffee and sodas, for several months

and I did not notice a change in my sinuses during that time. I wonder if

it has to do with how or where these chemicals are absorbed in the digestive

system?

-----Original

Message-----

From: samters

[mailto:samters ]

On Behalf Of sheilafitzpgcomcast (DOT) net

Sent: Tuesday, July 03, 2007 10:07

AM

samters

Subject: Re: New member here,

with my story.

http://www.users.bigpond.com/mywebhome/sindex.html#Anchor-Ke-46368

Sheila

--

mail to: sheilafitzpgcomcast (DOT) net

--------------

Original message --------------

From: Stefano Henriko <skunkburner (DOT) co.uk>

For me absoloutly,

sulphites are a problem like in some red wines, especially white wine, balsamic

vinegars and sometimes if I dip my hand in the pickled onion jar too often. And

off course dried apricots.

I take it there's a strong like between sulphites and salcalytes? I mean having

samters we should avoid both. I went to the allergist the other week but was

only giving the usual 12 prick test thingy and the guy says there no point

going any further. He said it was clear i was allergic to dust and mold fairly

heavly. He also prepared some bottle of formula which I started, 1 drop, then 2

then 3 etc etc now on five and got two weeks left to go. What makes things

extra difficult is I am from the UK

now living in Argentina

so I am combating the Spanish, culture and all the new medical tacts at the

same time.

Any answers on the sulphites - salcalytes question would be appreciated.

----- Original

Message ----

From: Pamela <pam@...>

samters

Sent: Monday, 2 July, 2007 11:09:47 PM

Subject: Re: New member here, with my story.

I

would suspect sulphites. They are certainly present in wine vinegar.

Maybe that is why they suggest Apple Cider Vinegar. I am going to

the health food store to find some.

Pam

On 7/2/07 9:14 PM, " sheilafitzpg@ comcast.net " <sheilafitzpg@

comcast.net> wrote:

Sensitivity

to vinegar may indicate an amine sensitivity.

Sheila <mailto:Sheila@ comcast.net>

------------

-- Original message ------------ --

From: Stefano Henriko <skunkburner@ .co. uk>

Over the past 7 years only Betnesol drops and on an other occasion, a corticoid

injection brought both taste and smell back but only for a couple of weeks. I

moved country 8 months ago and have a complete new system to contend with and

new doctors. They don't know what Betnesol drops are and they will not give me

another corticoid injection because it's systemic (effects the whole body).

Anyway I am down for my 2nd operation although they frighting me big time, any

medical stuff.

For the last month I have been off all dairy products, well except a little

butter every few days. Also last two weeks went on the saliclyte diet but

unfortunately I have had a chest infection or something similar for the last

couple of weeks so dont know if it's been helping as I feel bad, worse anyway.

Think I'll try the honey and vinegar thingy but I remember some vinegars I

maybe allergic too.

Cheers, a nd update soon.

RE: New member here, with my story.

I’d have around 50% of my sense of

taste if that and no sense of smell. If I go on prednisone I’ll get it all

back. Sometimes I think it’s worth it just to get the sense of smell and

taste fully back.

Answers -

Get better answers from someone who knows. Try

it now.

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.476 / Virus Database: 269.10.4/897 - Release Date: 11/07/2007 9:57 PM

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Checked by AVG Free Edition.

Version: 7.5.476 / Virus Database: 269.10.4/897 - Release Date: 11/07/2007 9:57 PM

[Guest guest]

Hello all,

I'm new to this group; I just wanted to share my experience with

Samters. I'm 24 yrs. Old now, I can't really pinpoint when it

actually began, but I knew as April 2005 I had Nasal polyps and

asthma. So I saw an ENT who treated the polyps with prednisone and

Nasacort. Which worked for a little while, but then symptoms

reoccurred one day after I took an aspirin, this is when I realized

I was allergic to aspirin. Went back to the ENT and did the same

treatment. It worked for a month or so, but triad symptoms

reappeared even when I avoided aspirin. So I went to see another

ENT and he suggested surgery, and immediately following the surgery

with aspirin desensitizing program right after. It's been a year

since the desensitization procedures and the results have been

good. As long as I take singulair and zyrtec (not everyone has to

take zyrtec) along with my daily doses of Aspirin everyday, in order

to keep my tolerance towards aspirin, symptoms haven't reappeared.

Although I do want to mention I do feel more susceptible to heart

burn, I think it maybe result of the apirin intake, so I have

included Prilosec into my system.

For those you interested in desensitizing program, I would recommend

contacting the Scripps Institute, the doctor who desensitized me

studied there, it is possible they could have a directory of Doctors

who are authorized and experienced in desensitization. I'm from

suburban New York, My doctor's name is Bosso he has been doing

desensitization for many years now, he is well qualified and

knowledgeable.

It may not be for everyone and I understand your reservation of

taking aspirin everyday, but I know exactly how frustrating this

disease can be so I would suggest that everyone at least look into

it.

> > > >

> > > > > I¹ve never taken Singulair but my ENT has me on Nasonex

which

> > > could be similar

> > > > > and it works really well. Been two years now since my last

surgery

> > > and so far

> > > > > so good.

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > > --

> > > >

> > >

> > >

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG Free Edition.

> > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> > 20/06/2007

> > > 2:18 PM

> > >

> > >

> > >

> > > No virus found in this outgoing message.

> > > Checked by AVG Free Edition.

> > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> > 20/06/2007

> > > 2:18 PM

> > >

> >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

> >

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

> 20/06/2007

> > 2:18 PM

> >

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:

20/06/2007

> 2:18 PM

>

[Guest guest]

Welcome to the the group. I have been diagnosed for some years now and recently I had to go on a Medro pack after dusting some furniture. While on the pack, I stopped in Wal-Mart to try something with guafenasine(sp) and the rest is history. I got my sense of smell back and it has been almost three week now. I have no asthma symptoms anymore and ny sinuses are clear. I blow my nose now out of habit and then it is all clear. My ears are back making wax and they squeak now when I blow my nose. I think it may be the decongestant that was in the Wal-Mart brand of Mucinex but it really worked. I have been on presciption meds for years. My copays are equal to the luxury car payment that I want and something for less than $5 makes me feel

like a new me. What do you think?

Re: New member here, with my story.

Hello all,I'm new to this group; I just wanted to share my experience with Samters. I'm 24 yrs. Old now, I can't really pinpoint when it actually began, but I knew as April 2005 I had Nasal polyps and asthma. So I saw an ENT who treated the polyps with prednisone and Nasacort. Which worked for a little while, but then symptoms reoccurred one day after I took an aspirin, this is when I realized I was allergic to aspirin. Went back to the ENT and did the same treatment. It worked for a month or so, but triad symptoms reappeared even when I avoided aspirin. So I went to see another ENT and he suggested surgery, and immediately following the surgery with aspirin desensitizing program right after. It's been a year since the desensitization procedures and the results have been good. As long as I take singulair and zyrtec (not

everyone has to take zyrtec) along with my daily doses of Aspirin everyday, in order to keep my tolerance towards aspirin, symptoms haven't reappeared. Although I do want to mention I do feel more susceptible to heart burn, I think it maybe result of the apirin intake, so I have included Prilosec into my system.For those you interested in desensitizing program, I would recommend contacting the Scripps Institute, the doctor who desensitized me studied there, it is possible they could have a directory of Doctors who are authorized and experienced in desensitization. I'm from suburban New York, My doctor's name is Bosso he has been doing desensitization for many years now, he is well qualified and knowledgeable. It may not be for everyone and I understand your reservation of taking aspirin everyday, but I know exactly how frustrating this disease can be so I would

suggest that everyone at least look into it.> > > > > > > > > I¹ve never taken Singulair but my ENT has me on Nasonex which> > > could be similar> > > > > and it works really well. Been two years now since my last surgery> > > and so far> > > > > so good.> > > > > > > > > > > > > > > > > > > > > > > > > > >

--> > > >> > > > > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG Free Edition.> > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:> > 20/06/2007> > > 2:18 PM> > > > > > > > > > > > No virus found in this outgoing message.> > > Checked by AVG Free Edition. > > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:> > 20/06/2007> > > 2:18 PM> > >> > > > > > > > > > No virus found in this incoming message.> > Checked by AVG Free Edition.> > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:> 20/06/2007> > 2:18 PM> > > > > > > > No virus

found in this outgoing message.> > Checked by AVG Free Edition. > > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date:> 20/06/2007> > 2:18 PM> >> > > > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date: 20/06/2007> 2:18 PM> > > > No virus found in this outgoing message.> Checked by AVG Free Edition. > Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date: 20/06/2007> 2:18 PM>

[Guest guest]

I think it was the Depomedrol.

Marcus