Re: Started my DIY densenitisation

[Guest guest]

The reaction so soon after the 9:30 dose was probably due more to the

earlier doses than the 9:30 dose itself.

You should not take a repeat dose, or larger does, until all the reaction

from the earlier dose has dissapated. You may be accumulatively ingesting

more than a safe amount.

(Like thinking it's easy to drink 1/2 bottle of gin, and then realizing a

little later that you are going to get very drunk and there is not much you

can do about it.)

From: Stefano Henriko <skunkburner@...>

Reply-samters

Date: Fri, 4 Jan 2008 00:46:58 +0000 (GMT)

samters

Subject: Started my DIY densenitisation

Well I will leave the spreadsheet until the end but this is where I am at

now;

[Guest guest]

OK after the effects have wore off slightly i have taken another 172.8mg and apart from my nose being blocked and snorting like a rhino I feel fine. This is my last so off to bed in a couple of hours if everything is fine. I will commence again in the morning. Started my DIY densenitisation

Well I will leave the spreadsheet until the end but this is where I am at

now;

Sent from - a smarter inbox.

[Guest guest]

Well without delving into details I had quite the turbulent night, extremely fast heart rate, vomiting, head between a vice. I could breathe ok and did not have really any chest problems but it was a rough time. I need to decide today if I want to take a baby aspirin to see what happens as I think if anyone wants to do the test they will need to space the intervals out over a longer period like 7 days.I will keep you guys updated. Started my DIY densenitisation

Well I will leave the spreadsheet until the end but this is where I am at

now;

Sent from - a smarter inbox.

Sent from - a smarter inbox.

[Guest guest]

Actually I meant to add that I was spitting out some really ugly stuff, animal like. Also today my sinuses fell a little clearer than they have been the last couple of weeks. I think around 6.30 i will take a baby aspirin 100mg and take it from there but thats will be it for today. If there's no reaction I will continue tomorrow as last night was pretty gruesome. Started my DIY densenitisation

Well I will leave the spreadsheet until the end but this is where I am at

now;

Sent from - a smarter inbox.

Sent from - a smarter inbox.

Sent from - a smarter inbox.

[Guest guest]

Well, it was suggested to you from the beginning that 2-hour interals

was a little short

samters/message/11549

and that 4 hours would be safer, so when you announced a 1-hour interval,

it's not surprising that you had some trouble.

You need to know you have recovered from any reaction before going on

to the next dose. For me, that is about 4 hours -- 1 hour is

unrealistic -- you will be taking dose 2 when dose 1 has not yet shown

itself. Not only dangerous, but unscientific.

>

> Well without delving into details I had quite the turbulent night,

extremely fast heart rate, vomiting, head between a vice. I could

breathe ok and did not have really any chest problems but it was a

rough time. I need to decide today if I want to take a baby aspirin to

see what happens as I think if anyone wants to do the test they will

need to space the intervals out over a longer period like 7 days.

>

> I will keep you guys updated.

>

> Started my DIY densenitisation

>

>

>

> Well I will leave the spreadsheet until the end but this is where I

am at

>

> now;

[Guest guest]

One way to do it would be to stick with the dose you reacted with and take it IN THE MORNING after breakfast with 10mg predisone to reduce the effects. Do this for a couple of days, then next day reduce the prednisone to 5mg, staying on 1 baby aspirin, then for the next few days just take the 1 baby aspirin after breakfast, and increase the dose when you have completed a whole week on the same dose. I did this and it worked, but I kept reacting to the doses until I broke past 450mg and now I'm on 600mg which is good for me. This is the way our consultant does the desens in England as he sees his patients once a week, on Tuesdays, and it usually takes 3-4 weeks to complete a desens programme and get to the required dose. Becky PS Good luck!Stefano Henriko <skunkburner@...> wrote: Actually I meant to add that I was spitting out some really ugly stuff, animal like. Also today my sinuses fell a little clearer than they have been the last couple of weeks. I think around 6.30 i will take a baby aspirin 100mg and take it from there but thats will be it for today. If there's no reaction I will continue tomorrow as last night was pretty gruesome. ----- Original

Message ----From: Stefano Henriko <skunkburner (DOT) co.uk>samters Sent: Friday, 4 January, 2008 3:23:30 PMSubject: Re: Started my DIY densenitisation Well without delving into details I had quite the turbulent night, extremely fast heart rate, vomiting, head between a vice. I could breathe ok and did not have really any chest problems but it was a rough time. I need to decide today if I want to take a baby aspirin to see what happens as I think if anyone wants to do the test they will need to space the intervals out over a longer period like 7 days.I will keep you guys updated. Started my DIY densenitisationWell I will leave the spreadsheet until the end but this is where I am atnow; Sent from - a smarter inbox. Sent from - a smarter inbox. Sent from - a smarter inbox.

Sent from - a smarter inbox.

[Guest guest]

Sorry, It's not clear here - I meant to say I kept reacting to the newly increased doses, but that diminished after 450mg. When taking the same dose for a week, I would react a little less each day to that dose as I became desens to it, but was never fully desens intil above 450mg. Every one is different. Also, Ken is absolutely right in saying that 1 hour would not be enough to see a full reaction following a dose, and to be honest, my worst reactions came about 4-6 hours after taking a dose, by which time, you would have had several accumulated doses in your body. Not nice...... Bannister <beckyb256@...> wrote: One way to do it would be to stick with the dose you reacted with and take it IN THE MORNING after breakfast with 10mg predisone to reduce the effects. Do this for a couple of days, then next day reduce the prednisone to 5mg, staying on 1 baby aspirin, then for the next few days just take the 1 baby aspirin after breakfast, and increase the dose when you have completed a whole week on the same dose. I did this and it worked, but I kept reacting to the doses until I broke past 450mg and now I'm on 600mg which is good for me. This is the way our consultant does the desens in England as he sees his patients once a week, on Tuesdays, and it usually takes 3-4 weeks to complete a desens programme and get to the required dose. Becky PS Good luck!Stefano Henriko

<skunkburner (DOT) co.uk> wrote: Actually I meant to add that I was spitting out some really ugly stuff, animal like. Also today my sinuses fell a little clearer than they have been the last couple of weeks. I think around 6.30 i will take a baby aspirin 100mg and take it from there but thats will be it for today. If there's no reaction I will continue tomorrow as last night was pretty gruesome. Started my DIY

densenitisationWell I will leave the spreadsheet until the end but this is where I am atnow; Sent from - a smarter inbox. Sent from - a smarter inbox. Sent from - a smarter inbox. Sent from - a smarter inbox.

Support the World Aids Awareness campaign this month with for Good

[Guest guest]

Yes I agree it's not the best idea to have 1 hour intervals, despite this I broke through and would categorically not recommend anyone else to try anything other than at least 1 day intervals.However the next day yesterday around 6.30pm I took a baby aspirin and the ones I have are 100mg, It gave me a mild sedative feeling and I felt hungry as well, later after 4hours I felt some heat burn or stomach acids so I drank some milk which made me feel better. I think I read somewhere in the posts that if your ingesting aspirin lay off the spicy foods, good idea.Actually one other important reaction I have is sore joints in some fingers and one toe, anyone else get this? Today I will try 150mg and report

back the status.

Started my DIY

densenitisationWell I will leave the spreadsheet until the end but this is where I am atnow; Sent from - a smarter inbox. Sent from - a smarter inbox. Sent from - a smarter inbox. Sent from - a smarter inbox. Support the World Aids Awareness campaign this month with for Good

Sent from - a smarter inbox.

[Guest guest]

Doing a desensitization over a long (30+ days) period is much safer and more comfortable.

Started my DIY densenitisation> > > > Well I will leave the spreadsheet until the end but this is where Iam at> > now;

[Guest guest]

Before I was diagnosed withSamters I had many days when my hands/fingers would ache. I thought it was the first signs of Arthritis(my mom has it). Since I have been desensed that problem has completely cleared up. I do not remember if this was a symptom during the desens process.

Marcus

[Guest guest]

Well as we all have said one hour is way too short an interval.

When doing self-desensitization (which I personally don't like

anyway) it's really best to follow protocols that are known to ahve

worked.

For one thing, I don't think you should just keep going up and up on

the dose. You have to wait for at least 4-6 or maybe 8 hours to see

if you react to a dose. If you do react to that dose, then wait

again that length of time, then take the SAME EXACT DOSE. Then wait

the same length of time and INCREASE, the second time you take the

dose. This is a well-studied approach to desensitization.

The vomiting is a concern. I did have vomiting myself and a lot of

stomach acid during the desensitization at Scripps. But they do

administer things to help with this. That's why if this can be done

in a clinic setting where they help you and you're on an IV it's

really not so unpleasant. And for me much less frightening and

dangerous anyway. My reactions are much too severe to do this on my

own.

Lori

> Actually I meant to add that I was spitting out some

really ugly stuff, animal like. Also today my sinuses fell a little

clearer than they have been the last couple of weeks. I think around

6.30 i will take a baby aspirin 100mg and take it from there but

thats will be it for today. If there's no reaction I will continue

tomorrow as last night was pretty gruesome.

>

> Started my DIY

> densenitisation

>

> Well I will leave the spreadsheet until the end but this is where I

am at

> now;

>

>

>

>

>

>

>

>

> Sent from - a smarter inbox.

>

>

>

>

>

> Sent from - a smarter inbox.

>

>

>

>

>

> Sent from - a smarter inbox.

>

>

>

> Sent from - a smarter inbox.

>

>

>

>

>

>

>

>

> Support the World Aids Awareness campaign this month with

for Good

>

>

>

>

>

>

>

>

>

>

>

>

> <!--

>

> #ygrp-mkp{

> border:1px solid #d8d8d8;font-family:Arial;margin:14px

0px;padding:0px 14px;}

> #ygrp-mkp hr{

> border:1px solid #d8d8d8;}

> #ygrp-mkp #hd{

> color:#628c2a;font-size:85%;font-weight:bold;line-

height:122%;margin:10px 0px;}

> #ygrp-mkp #ads{

> margin-bottom:10px;}

> #ygrp-mkp .ad{

> padding:0 0;}

> #ygrp-mkp .ad a{

> color:#0000ff;text-decoration:none;}

> -->

>

>

>

> <!--

>

> #ygrp-sponsor #ygrp-lc{

> font-family:Arial;}

> #ygrp-sponsor #ygrp-lc #hd{

> margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;}

> #ygrp-sponsor #ygrp-lc .ad{

> margin-bottom:10px;padding:0 0;}

> -->

>

>

>

> <!--

>

> #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,

sans-serif;}

> #ygrp-mlmsg table {font-size:inherit;font:100%;}

> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,

clean, sans-serif;}

> #ygrp-mlmsg pre, code {font:115% monospace;}

> #ygrp-mlmsg * {line-height:1.22em;}

> #ygrp-text{

> font-family:Georgia;

> }

> #ygrp-text p{

> margin:0 0 1em 0;}

> #ygrp-tpmsgs{

> font-family:Arial;

> clear:both;}

> #ygrp-vitnav{

> padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

> #ygrp-vitnav a{

> padding:0 1px;}

> #ygrp-actbar{

> clear:both;margin:25px 0;white-space:nowrap;color:#666;text-

align:right;}

> #ygrp-actbar .left{

> float:left;white-space:nowrap;}

> .bld{font-weight:bold;}

> #ygrp-grft{

> font-family:Verdana;font-size:77%;padding:15px 0;}

> #ygrp-ft{

> font-family:verdana;font-size:77%;border-top:1px solid #666;

> padding:5px 0;

> }

> #ygrp-mlmsg #logo{

> padding-bottom:10px;}

>

> #ygrp-vital{

> background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}

> #ygrp-vital #vithd{

> font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-

transform:uppercase;}

> #ygrp-vital ul{

> padding:0;margin:2px 0;}

> #ygrp-vital ul li{

> list-style-type:none;clear:both;border:1px solid #e0ecee;

> }

> #ygrp-vital ul li .ct{

> font-weight:bold;color:#ff7900;float:right;width:2em;text-

align:right;padding-right:.5em;}

> #ygrp-vital ul li .cat{

> font-weight:bold;}

> #ygrp-vital a{

> text-decoration:none;}

>

> #ygrp-vital a:hover{

> text-decoration:underline;}

>

> #ygrp-sponsor #hd{

> color:#999;font-size:77%;}

> #ygrp-sponsor #ov{

> padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> #ygrp-sponsor #ov ul{

> padding:0 0 0 8px;margin:0;}

> #ygrp-sponsor #ov li{

> list-style-type:square;padding:6px 0;font-size:77%;}

> #ygrp-sponsor #ov li a{

> text-decoration:none;font-size:130%;}

> #ygrp-sponsor #nc{

> background-color:#eee;margin-bottom:20px;padding:0 8px;}

> #ygrp-sponsor .ad{

> padding:8px 0;}

> #ygrp-sponsor .ad #hd1{

> font-family:Arial;font-weight:bold;color:#628c2a;font-

size:100%;line-height:122%;}

> #ygrp-sponsor .ad a{

> text-decoration:none;}

> #ygrp-sponsor .ad a:hover{

> text-decoration:underline;}

> #ygrp-sponsor .ad p{

> margin:0;}

> o{font-size:0;}

> .MsoNormal{

> margin:0 0 0 0;}

> #ygrp-text tt{

> font-size:120%;}

> blockquote{margin:0 0 0 4px;}

> .replbq{margin:4;}

> -->

>

>

>

>

>

>

>

>

> __________________________________________________________

> Sent from - a smarter inbox http://uk.mail.

>

[Guest guest]

No argument there.

The first record of this technique, as far as I know,

samters/message/774 ,

was posted in 2002, and so it was referenced in

samters/files/Desensitization-v3.html

within

samters/links/Desensitization_001098407

845/

found in

samters/links

which is referenced by the member introductory note:

samters/files/0%20%20Welcome.html

> From: " Carl Ondry " <ondry@...>

> Date: Sat, 5 Jan 2008 20:28:50 -0800

> Subject: Re: Re: Started my DIY densenitisation

>

> Doing a desensitization over a long (30+ days) period is much safer and more

> comfortable.

>

>> Re: Started my DIY densenitisation

>>

>> Well, it was suggested to you from the beginning that 2-hour interals

>> was a little short