Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 > My dd has been on all 3 houstonni enzymes for about 7 wks (she takes > 1.5 AFP capsules/day, 2 NF/day, and 2 ZP/day If you are using the AFP because of papain/bromelain issues, be sure you are using the SCD Zyme Prime. >>She seems easily irritated and mad. She's always > yelling and talking in a loud voice to everyone. Even my mother > picked up on it and asked me about it. She did not do this prior to > enzymes. This can be intolerance to enzymes, intolerance to supplements or doses, or intolerance to foods she still can't have even with enzymes. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 I started my 4 year old daughter on the SCD versions (with no problems, she stayed her sweet self) then tried to switch to the rice version or Pep version and I had a very demanding and naughty child! So I went back to all SCD versions and she's mostly returned to her normal self (I think she carried over a few behaviors that she found worked). I think my daugher has developed a hearing sensory issue (I don't mean this in a bad way) though as she covers her ears once in a while. We had already been working on voice volume so the enzymes didn't affect that. So possibly look at changing enzyme versions and/or hearing sensory could by affected. Best Wishes! Becky > Hi, > > My dd has been on all 3 houstonni enzymes for about 7 wks (she takes > 1.5 AFP capsules/day, 2 NF/day, and 2 ZP/day - I've tried to increase > this dosage, but always get negative reactions to any increase). She > has made great strides in many areas and even gained 5 pounds (she > was FTT, but is finally on the growth charts!). Her behavior has gone > downhill, though. She seems easily irritated and mad. She's always > yelling and talking in a loud voice to everyone. Even my mother > picked up on it and asked me about it. She did not do this prior to > enzymes. > > Any ideas why? > Thanks, Traci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 How old is he? Has he had an MFE? "Problems cannot be solved by the same level of thinking that created them.†Albert Einstein In a message dated 7/29/2009 9:10:09 A.M. Eastern Daylight Time, m.snyder78@... writes: My son is a complicated case. He has bad tantrums and compulsions. He has mild ASP and OCD and PANDAS and tics. Could we qualify for ABA therapy? Could we get an autism scholarship? We live in Stark county. I am so stressed over his behaviors right now. It is hard to take him out because he throws fits. Could anyone lend me some advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 If your son is often on antibiotics for PANDAS, do you think that he might have a yeast build-up? Our daughter's aggressions didn't respond to any therapy, and a stool test indicated an overgrowth of yeast. Once we treated that, her behaviors really improved. In a message dated 7/29/2009 3:00:57 P.M. Central Daylight Time, -Burton@... writes: Hi you could go to a behavior speialist, think there is one in beachwood . or there is a pyschistrist i take my son to at akron children's his name is dr. benore . he is great with suggestions in behaviors From: m.snyder78 Date: Wed, 29 Jul 2009 13:08:54 +0000Subject: [ ] behavior help My son is a complicated case. He has bad tantrums and compulsions. He has mild ASP and OCD and PANDAS and tics. Could we qualify for ABA therapy? Could we get an autism scholarship? We live in Stark county. I am so stressed over his behaviors right now. It is hard to take him out because he throws fits. Could anyone lend me some advice? Windows Live™ Hotmail®: Search, add, and share the web’s latest sports videos. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Hi you could go to a behavior speialist, think there is one in beachwood . or there is a pyschistrist i take my son to at akron children's his name is dr. benore . he is great with suggestions in behaviors From: m.snyder78@...Date: Wed, 29 Jul 2009 13:08:54 +0000Subject: [ ] behavior help My son is a complicated case. He has bad tantrums and compulsions. He has mild ASP and OCD and PANDAS and tics. Could we qualify for ABA therapy? Could we get an autism scholarship? We live in Stark county. I am so stressed over his behaviors right now. It is hard to take him out because he throws fits. Could anyone lend me some advice? Windows Live™ Hotmail®: Search, add, and share the web’s latest sports videos. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 School did a MFE last year. He is very low in motor skills, average in cognitive and speech but above in verbal. He does get OT and a tutor 4 days. They don't seem to get his issues because they are very unique. He is average but struggles in Math and writing and motor skills. The thing is with the tics he holds it in at school and then explodes at home. They don't see it at all. Plus he has OCD and compulsions that make him hard to manage. We were seein Dr. Benore's assistant Asia but she had very few ideas except rewards and 1 2 3 magic. For some reason Dr. Benore never got involved. Maybe his case load was too full. I found a new psychologist Dr. Sweitzer. The meds are such a hard thing to figure out. Do others struggle with if the meds are making things worse? > > How old is he? > Has he had an MFE? > > > " Problems cannot be solved by the same level of thinking that created them. > †Albert Einstein > > > In a message dated 7/29/2009 9:10:09 A.M. Eastern Daylight Time, > m.snyder78@... writes: > > My son is a complicated case. He has bad tantrums and compulsions. He has > mild ASP and OCD and PANDAS and tics. Could we qualify for ABA therapy? > Could we get an autism scholarship? We live in Stark county. I am so stressed > over his behaviors right now. It is hard to take him out because he throws > fits. Could anyone lend me some advice? > > > **************Hot Deals at Dell on Popular Laptops perfect for Back to > School > (http://pr.atwola.com/promoclk/100126575x1223106546x1201717234/aol?redir=http:%2\ F%2Faltfarm.mediaplex.com%2Fad%2Fck%2F12309%2D81939%2D1629%2D8) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 Yes it could be yeast. How did you treat it? We did have biomedical testing at one point that showed yeast overgrowth and heavy metals. He had him on a ton of supplements and Nystatin and probiotics, a GF diet and amino acids. I got so confused about what was working. He wanted to use chelation but I was nervous. How did you treat the yeast. I have used kefir too. Thanks for your concern! I really want to improve the behaviors and will try anything. > > If your son is often on antibiotics for PANDAS, do you think that he might > have a yeast build-up? Our daughter's aggressions didn't respond to any > therapy, and a stool test indicated an overgrowth of yeast. Once we treated > that, her behaviors really improved. > > > In a message dated 7/29/2009 3:00:57 P.M. Central Daylight Time, > -Burton@... writes: > > > > > Hi > > you could go to a behavior speialist, think there is one in beachwood . or > there is a pyschistrist i take my son to at akron children's his name is > dr. benore . he is great with suggestions in behaviors > > > > ____________________________________ > @group T > From: m.snyder78@... > Date: Wed, 29 Jul 2009 13:08:54 +0000 > Subject: [ ] behavior help > > > > My son is a complicated case. He has bad tantrums and compulsions. He has > mild ASP and OCD and PANDAS and tics. Could we qualify for ABA therapy? > Could we get an autism scholarship? We live in Stark county. I am so stressed > over his behaviors right now. It is hard to take him out because he throws > fits. Could anyone lend me some advice? > > > > > > > ____________________________________ > Windows Live™ Hotmail®: Search, add, and share the web’s latest sports > videos. _Check it out._ > (http://www.windowslive.com/Online/Hotmail/Campaign/QuickAdd?ocid=TXT_TAGLM_WL_Q\ A_HM_sports_videos_072009 & cat=sports) > > > > > > **************Hot Deals at Dell on Popular Laptops perfect for Back to > School > (http://pr.atwola.com/promoclk/100126575x1223106546x1201717234/aol?redir=http:%2\ F%2Faltfarm.mediaplex.com%2Fad%2Fck%2F12309%2D81939%2D1629%2D8) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 We haven't gone the route of lots of supplements. We do give our daughter an over the counter vitamin called ZBEC (we order it at Giant Eagle) because it's mostly B vitamins and zinc. She gets a probiotic a couple of times a week at night, and a calcium supplement because she is GFCF. Our family doctor generally gives her a week of Diflucan for yeast after a run of antibiotics, and it helps immensely. We are going to see Dr. DeMio in November for more help. Our daughter is older now, and we spent many years trying different psychiatric medications that, unfortunately, didn't help her. Subsequent tests showed that she has significant small bowel disease, similar to Crohn's, but eosiniphilic in nature. But meds didn't help her because she can't absorb them properly. We ended up on the biomedical road by default, but it has been a really great path. And you're right, when there's so much going on, it's hard to know what's helping and what's not. Try to implement one new intervention/supplement/etc. at a time and keep careful track of responses good or bad. When we started the GFCF diet, we initially saw worsened behaviors, but her stools improved, and some better behaviors followed. We haven't done chelation, my understanding is that to do that, you need to get other issues in the system resolved first. I honestly don't understand either the process or ramifications of chelation completely, but the Thoughtful House website is a great resource. If I can help you find information, please just email me, and I'd be glad to forward what I have. I think that many of us are so busy trying to hold it together just dealing with the daily issues and problems that we don't have much time to research! In a message dated 7/29/2009 8:25:39 P.M. Central Daylight Time, m.snyder78@... writes: Yes it could be yeast. How did you treat it? We did have biomedical testing at one point that showed yeast overgrowth and heavy metals. He had him on a ton of supplements and Nystatin and probiotics, a GF diet and amino acids. I got so confused about what was working. He wanted to use chelation but I was nervous. How did you treat the yeast. I have used kefir too. Thanks for your concern! I really want to improve the behaviors and will try anything. >> If your son is often on antibiotics for PANDAS, do you think that he might > have a yeast build-up? Our daughter's aggressions didn't respond to any > therapy, and a stool test indicated an overgrowth of yeast. Once we treated > that, her behaviors really improved.> > > In a message dated 7/29/2009 3:00:57 P.M. Central Daylight Time, > -Burton@... writes:> > > > > Hi > > you could go to a behavior speialist, think there is one in beachwood . or > there is a pyschistrist i take my son to at akron children's his name is > dr. benore . he is great with suggestions in behaviors > > > > ____________________________________> @group T> From: m.snyder78@...> Date: Wed, 29 Jul 2009 13:08:54 +0000> Subject: [ ] behavior help> > > > My son is a complicated case. He has bad tantrums and compulsions. He has > mild ASP and OCD and PANDAS and tics. Could we qualify for ABA therapy? > Could we get an autism scholarship? We live in Stark county. I am so stressed > over his behaviors right now. It is hard to take him out because he throws > fits. Could anyone lend me some advice? > > > > > > > ____________________________________> Windows Live™ Hotmail®: Search, add, and share the web’s latest sports > videos. _Check it out._ > (http://www.windowslive.com/Online/Hotmail/Campaign/QuickAdd?ocid=TXT_TAGLM_WL_QA_HM_sports_videos_072009 & cat=sports) > > > > > > **************Hot Deals at Dell on Popular Laptops perfect for Back to > School > (http://pr.atwola.com/promoclk/100126575x1223106546x1201717234/aol?redir=http:%2F%2Faltfarm.mediaplex.com%2Fad%2Fck%2F12309%2D81939%2D1629%2D8)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 We found, too, that one without the other didn't work. The biomedical interventions make the behavioral therapies effective. In a message dated 7/30/2009 12:45:25 P.M. Central Daylight Time, ddzlaw@... writes: Although it may be a biomedical issue (i.e., yeast build-up), it probably wouldn't hurt for you to get a behavioral consult. A behaviorist could help you conduct a functional behavior assessment to first determine the cause of the behavior. Once this has been completed, a behavior plan can be written and implemented. You indicated that you live in Stark County. Does your son qualify for services through the County Board of Developmental Disabilities? If so, you could get a behavior consult through them. If not, there are other resources available. Your family doctor should be able to help you locate someone in your area. You can also contact Milestones Organization (216-464-7600). They may able to help you or hook you up with someone who can. I'm not sure how old your son is, but you can apply for the autism scholarship if your son is between the ages of 3 and 22. He must have a diagnosis of autism (which includes PDD-NOS), and he must have an IEP from the school district of residence. You can get more information on the scholarship at http://www.ode.state.oh.us/GD/Templates/Pages/ODE/ODEPrimary.aspx?Page=2 & TopicID=967 & TopicRelationID=972. I hope this helps.Thanks.Debbie Z.>> My son is a complicated case. He has bad tantrums and compulsions. He has mild ASP and OCD and PANDAS and tics. Could we qualify for ABA therapy? Could we get an autism scholarship? We live in Stark county. I am so stressed over his behaviors right now. It is hard to take him out because he throws fits. Could anyone lend me some advice?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 Although it may be a biomedical issue (i.e., yeast build-up), it probably wouldn't hurt for you to get a behavioral consult. A behaviorist could help you conduct a functional behavior assessment to first determine the cause of the behavior. Once this has been completed, a behavior plan can be written and implemented. You indicated that you live in Stark County. Does your son qualify for services through the County Board of Developmental Disabilities? If so, you could get a behavior consult through them. If not, there are other resources available. Your family doctor should be able to help you locate someone in your area. You can also contact Milestones Organization (216-464-7600). They may able to help you or hook you up with someone who can. I'm not sure how old your son is, but you can apply for the autism scholarship if your son is between the ages of 3 and 22. He must have a diagnosis of autism (which includes PDD-NOS), and he must have an IEP from the school district of residence. You can get more information on the scholarship at http://www.ode.state.oh.us/GD/Templates/Pages/ODE/ODEPrimary.aspx?Page=2 & TopicID\ =967 & TopicRelationID=972. I hope this helps. Thanks. Debbie Z. > > My son is a complicated case. He has bad tantrums and compulsions. He has mild ASP and OCD and PANDAS and tics. Could we qualify for ABA therapy? Could we get an autism scholarship? We live in Stark county. I am so stressed over his behaviors right now. It is hard to take him out because he throws fits. Could anyone lend me some advice? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 Is a behavioral consultant different then a psychologist? Is there one in stark county? > > > > My son is a complicated case. He has bad tantrums and compulsions. He has mild ASP and OCD and PANDAS and tics. Could we qualify for ABA therapy? Could we get an autism scholarship? We live in Stark county. I am so stressed over his behaviors right now. It is hard to take him out because he throws fits. Could anyone lend me some advice? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Typically, yes. A behavioral psychologist can perform testing and come up with behavior plans and make recommendations; however, a behavioral psychologist typically sees the patient in a clinical setting and is more expensive than a behaviorist. A behaviorist usually sees the child in the natural setting (i.e., home, school, etc.). A behaviorist is less expensive than a behavioral psychologist, but insurance doesn't usually cover a behaviorist (most insurance will cover a portion of a behavioral psychologist). Some behaviorists do conduct limited testing with a child and can perform functional behavior assessments. I prefer behaviorists who are board certified (board certified behavior analyst - bcba); however, there are many good behaviorists who are not board certified. I'm sure there are behaviorists in Stark County, or ones that will travel to Stark County. You can check OCALI's database of providers at their website to see what providers are in your area. OCALI's website is www.ocali.org. I hope this answers your question. Thanks. Debbie Z. > > > > > > My son is a complicated case. He has bad tantrums and compulsions. He has mild ASP and OCD and PANDAS and tics. Could we qualify for ABA therapy? Could we get an autism scholarship? We live in Stark county. I am so stressed over his behaviors right now. It is hard to take him out because he throws fits. Could anyone lend me some advice? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 Re: behavior help > Well after 2 years of begging, we finally got our docs to order all the > yeast, bacteria and parasite tests, Our daughter has major yeast issues and > is currently going thru a major yeast detox thru our DAN. The first 4 days > were total bliss, a loving calm polite child we have never seen before, > but the last 5 days are absolutely mind altering. What does the yeast protocol look like? She takes 3 drops of GSE 3 x per day, candidase and Virastop at night with Three Lac probiotics, 1000 mg of biotin daily, and now the last weekand `1/2 have added diflucan liquid, daily and homeopathic drops before breakfast and bed... > I know it is die off, and we are using activated charcoal. Do you give the charcoal 45 minutes after the anti-fungals? YEs >>But she is 6, > and has the biggest mouth right now, absolutely no discipline works, she > is hitting , spitting, and just has horrible back talk. And nothing we do > works. Sometimes this is die off, other times it is intolerance to the anti-fungals, other times it is overgrowth of bad bacteria, and other times it is liver stress. Dana ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 Already in counseling, the local mental ward is literally 2 miles down the road, and I have driving in their parking lot more times than I'd lke to admit, just wanting to walk in the doors beggin them to keep me,( with the kids screaming in the car I might ad) just having to get out of the house and go for a drive. So yes, it is nice to know others ar struggling with it, and I am not the only one that is having trouble handling it at times. Thru all this torture though I must say it truly make you realize fast, what truly is important, all the pettiness that goes on around us, it just doesn't matter---and for that I am thankful... Thanks for your kind words, it truly helps. Jen Re: behavior help > My heart really goes out to you on this. I know what it's like to have a > child who is a tormenter to all. My daughter's would bring friends over > and my son would literally charge them scremaing at the top of his lungs > " get out of my house! " . It took us a very long time to get him to break > that habbit. He still does it when his yeast gets high or he's got some > other symptom going on. He used to have me in tears many times a day every > day. I'm happy to report he only makes me cry about once a week or so > now;) It really will get better. You can make it through this. One day > she'll be better and she'll know how much you love her and how hard you > worked for her. Have you tried a change of scenery for the bad behavior? > The alst thing i wanted to do was leave the hosue when my son is acting > up, but just saying " hey wanna go for a walk " and walking for five minutes > is enough to change the direction of the behavior sometimes. If that > doesn't work, go into the bathroom or somewhere they can't > hear you and cuss a blue streak;) Ignore the erotic behavior unless it's > extremely inapropriate.Then just say 'that's private you need to go in > your room if you're going to do that'. Eventually she'll outgrow that. in > the mean time she could be doing it more than she would if she thinks it's > bothering you. I know what hell you're living in. I know this is the > hardest thing ever, but I promise it will get better. I honestly think I > have PTSD from the worst years with my two. I'm starting counseling soon > to deal with that. Maybe you could try some counseling just to get > yourself some relief from the stress > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 Is your daughter on any type of diet? Re: behavior help Oh hon I am so sorry. We've all been there...i 'm there quite often actually:) Try to remember that the behaviors she's having aren't bad behavior. They are the result of an illness that she can't help. Try to let go of the anger towards her, and let yourself off the hook. It isn't anything you did or didn't do as a parent that has her acting this way. She's sick. When a Doctor finally told me that for some reason it got a lot easier to handle my son. I'm not saying it always helps... if you're being sworn at, spit at and tortured all day long it's a miracle if you don't get angry. But just try to take a deep breath and let it go. This is die off...it sucks! It won't last much longer honestly. Afterwards you won't believe the child who emerges. She's also at an age where she'll start to behave a little better just because of gaining maturity. My son was a living nightmare from the time he turned 2 until he was 10. He's still a nightmare at times, but we've got about 70% or more peace time. My daughter with ASD is completely different. She was a nightmare from 10 months until she was four. Then she was the sweetest angel until puberty hit high gear two years ago. Her period started a year ago. Now she's an angel until it's time for her cycle. You mentioned that you're the taxi....does this mean you have to drive the kids to a lot of places every day? The car has always been a problem for my son. I spend most of my time single parenting b/c myhusband is a pilot. So when I have to bring my son along for taxi time I try to do things that help calm him in the car. The start of that is preparing him by telling him " we're going to drive to bla bla bla...we'll be in the car for bla bla bla. I know you have a hard time with driving around everywhere, but let's do some things to help you feel better " . Then the trick is finding out what is causing her the problems , and what can comfort her. With my son I think it's just simply too much imput...the sound from the car , the radio, the air conditioner, the light if it's sunny , the different smell when the car's hot or whatever, and the movement of the car. These are all things that I know bug him. For the movement I put a towel or blanket under him. I explained why to him, and it seems to do the trick. If the problem is with holdng still you can get those pilates bands or tension tube bands and show her how to use them.Make a game of it by giving one to another kid and saying " see who can do 10 stretches " or whatever. Or " guys watch how strong 'Daughter' is, she can do so many of these stretches " . For the light, baseball hat and sunglasses. We've got light shades on the windows, but brightness still seeps around the edges and of course through the windsheild. For the noises it depends on the day for us. Sometimes he needs quiet, so we use etymotic ear plugs. You can buy those for cheap at Walmart and Target, they're called Heros and they look like weird rubber gill things. My son uses them in school too..you can here people talking to you, but it cuts out extra noise. For days that he doesn't need quiet he likes to use his ipod shuffle. You can get shuffles for just about the same price as cheap mp3 players now. I recommend the shuffle b/c we went through the mp3 players pretty quickly.They tend to break a lot. We've had the shuffles for three years and two major road trips, and they're still in top shape. A snack can also go a long way in distracting her attention. Ice water in a spillproof sipee cup incase she's a thrower... all my kids know if they want a drink in the car or in their room it's in a sipee cup. Hang in there, this will get better. Have you tried the epsom baths to help with the die off symptoms? They help a lot. Talk to your other kids and explain that your daughter has a special brain that doesn't work the same way as theirs. That she loves them even though she doesn't act like it sometimes, and that she's going to get better. e-mail me anytime. I'm so familiar with this behavior and your feelings about it ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 I thought of you today as I experienced a familiar old scene from the past with my son. He went down to our lake and was looking for a turtle for his sister...he'd already caught one for himself. Anyways, he ended up being way late for dinner. He has to take his sleep meds at 6:30 or he's sleepy the next day. Well 6:45 rolled around and he wasn't back yet. So I drove down (because dinner was ready and I wanted to hurry). My daughter ran downa nd told him to come along. He told her no and told her to tell me to go home. So I was seeing red already:) I walked down there and said, it is time to go right now. He said no again. I told him he'd be grounded and he said " so I don't really care jerk! " ...btw this is our neighborhood lake and there were people everywhere. So I got the lovely " wow what a bad kid, his Mom obviously can't control him " stares. After a few minutes of the same thing he finally started to follow me. I grabbed his bike and was walking it to the car and he's following me cussing up a blue streak. We came home and he trashed his room, got in the shower, came out and apologized and ate his dinner. I was totally miserable while it was happening, then I thought about what we'd been talking about and it helped me gain some perspective and realize it's just his symptoms from having dairy for the past month...it was in a supplement that said it was safe for dairy free diets...NOT!! So anyways, it helped me cope and get over it thinking about all we'd been talking about. This stuff hardly ever happens anymore for us, you'll get there too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 Yes, GF/CS/EF dye free, Re: behavior help > > Oh hon I am so sorry. We've all been there...i 'm there quite often > actually:) Try to remember that the behaviors she's having aren't bad > behavior. They are the result of an illness that she can't help. Try to > let > go of the anger towards her, and let yourself off the hook. It isn't > anything you did or didn't do as a parent that has her acting this way. > She's sick. When a Doctor finally told me that for some reason it got a > lot > easier to handle my son. I'm not saying it always helps... if you're > being > sworn at, spit at and tortured all day long it's a miracle if you don't > get > angry. But just try to take a deep breath and let it go. This is die > off...it sucks! It won't last much longer honestly. Afterwards you won't > believe the child who emerges. She's also at an age where she'll start to > behave a little better just because of gaining maturity. My son was a > living > nightmare from the time he turned 2 until he was 10. He's still a > nightmare > at times, but we've got about 70% or more peace > time. My daughter with ASD is completely different. She was a nightmare > from 10 months until she was four. Then she was the sweetest angel until > puberty hit high gear two years ago. Her period started a year ago. Now > she's an angel until it's time for her cycle. You mentioned that you're > the > taxi....does this mean you have to drive the kids to a lot of places > every > day? The car has always been a problem for my son. I spend most of my > time > single parenting b/c myhusband is a pilot. So when I have to bring my son > along for taxi time I try to do things that help calm him in the car. The > start of that is preparing him by telling him " we're going to drive to > bla > bla bla...we'll be in the car for bla bla bla. I know you have a hard > time > with driving around everywhere, but let's do some things to help you feel > better " . Then the trick is finding out what is causing her the problems , > and what can comfort her. With my son I think it's just simply too much > imput...the sound from the car , the > radio, the air conditioner, the light if it's sunny , the different smell > when the car's hot or whatever, and the movement of the car. These are > all > things that I know bug him. For the movement I put a towel or blanket > under > him. I explained why to him, and it seems to do the trick. If the problem > is > with holdng still you can get those pilates bands or tension tube bands > and > show her how to use them.Make a game of it by giving one to another kid > and > saying " see who can do 10 stretches " or whatever. Or " guys watch how > strong > 'Daughter' is, she can do so many of these stretches " . For the light, > baseball hat and sunglasses. We've got light shades on the windows, but > brightness still seeps around the edges and of course through the > windsheild. For the noises it depends on the day for us. Sometimes he > needs > quiet, so we use etymotic ear plugs. You can buy those for cheap at > Walmart > and Target, they're called Heros and they look like weird rubber gill > things. My son uses them in school > too..you can here people talking to you, but it cuts out extra noise. For > days that he doesn't need quiet he likes to use his ipod shuffle. You can > get shuffles for just about the same price as cheap mp3 players now. I > recommend the shuffle b/c we went through the mp3 players pretty > quickly.They tend to break a lot. We've had the shuffles for three years > and > two major road trips, and they're still in top shape. A snack can also go > a > long way in distracting her attention. Ice water in a spillproof sipee > cup > incase she's a thrower... all my kids know if they want a drink in the > car > or in their room it's in a sipee cup. Hang in there, this will get > better. > Have you tried the epsom baths to help with the die off symptoms? They > help > a lot. Talk to your other kids and explain that your daughter has a > special > brain that doesn't work the same way as theirs. That she loves them even > though she doesn't act like it sometimes, and that she's going to get > better. e-mail me anytime. I'm so > familiar with this behavior and your feelings about it > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 Amazing though isn't it.....Yes, it sounds familiar.. Jen Re: behavior help >I thought of you today as I experienced a familiar old scene from the past >with my son. He went down to our lake and was looking for a turtle for his >sister...he'd already caught one for himself. Anyways, he ended up being >way late for dinner. He has to take his sleep meds at 6:30 or he's sleepy >the next day. Well 6:45 rolled around and he wasn't back yet. So I drove >down (because dinner was ready and I wanted to hurry). My daughter ran >downa nd told him to come along. He told her no and told her to tell me to >go home. So I was seeing red already:) I walked down there and said, it is >time to go right now. He said no again. I told him he'd be grounded and he >said " so I don't really care jerk! " ...btw this is our neighborhood lake and >there were people everywhere. So I got the lovely " wow what a bad kid, his >Mom obviously can't control him " stares. After a few minutes of the same >thing he finally started to follow me. I grabbed his bike and was walking >it to the car and he's following > me cussing up a blue streak. We came home and he trashed his room, got in > the shower, came out and apologized and ate his dinner. I was totally > miserable while it was happening, then I thought about what we'd been > talking about and it helped me gain some perspective and realize it's just > his symptoms from having dairy for the past month...it was in a supplement > that said it was safe for dairy free diets...NOT!! So anyways, it helped > me cope and get over it thinking about all we'd been talking about. This > stuff hardly ever happens anymore for us, you'll get there too. > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 Diet? Look into Fiengold. Supplements you are taking? Probiotics? Yeast doesn't go away with a 2-3 week course. A yeast protocol needs to be in place at all times. Allergy testing? Go green on cleaning products, laundry detergent no perfume. Chelation! Join the autism treatment site and get started. Sounds so hard, sorry. Read, read, read. I'd also do an organic oats test from Great Plains. There are viral protocols, bacteria to treat, PANDAS, so much. Tammy Re: behavior help Oh hon I am so sorry. We've all been there...i 'm there quite often actually:) Try to remember that the behaviors she's having aren't bad behavior. They are the result of an illness that she can't help. Try to let go of the anger towards her, and let yourself off the hook. It isn't anything you did or didn't do as a parent that has her acting this way. She's sick. When a Doctor finally told me that for some reason it got a lot easier to handle my son. I'm not saying it always helps... if you're being sworn at, spit at and tortured all day long it's a miracle if you don't get angry. But just try to take a deep breath and let it go. This is die off...it sucks! It won't last much longer honestly. Afterwards you won't believe the child who emerges. She's also at an age where she'll start to behave a little better just because of gaining maturity. My son was a living nightmare from the time he turned 2 until he was 10. He's still a nightmare at times, but we've got about 70% or more peace time. My daughter with ASD is completely different. She was a nightmare from 10 months until she was four. Then she was the sweetest angel until puberty hit high gear two years ago. Her period started a year ago. Now she's an angel until it's time for her cycle. You mentioned that you're the taxi....does this mean you have to drive the kids to a lot of places every day? The car has always been a problem for my son. I spend most of my time single parenting b/c myhusband is a pilot. So when I have to bring my son along for taxi time I try to do things that help calm him in the car. The start of that is preparing him by telling him " we're going to drive to bla bla bla...we'll be in the car for bla bla bla. I know you have a hard time with driving around everywhere, but let's do some things to help you feel better " . Then the trick is finding out what is causing her the problems , and what can comfort her. With my son I think it's just simply too much imput...the sound from the car , the radio, the air conditioner, the light if it's sunny , the different smell when the car's hot or whatever, and the movement of the car. These are all things that I know bug him. For the movement I put a towel or blanket under him. I explained why to him, and it seems to do the trick. If the problem is with holdng still you can get those pilates bands or tension tube bands and show her how to use them.Make a game of it by giving one to another kid and saying " see who can do 10 stretches " or whatever. Or " guys watch how strong 'Daughter' is, she can do so many of these stretches " . For the light, baseball hat and sunglasses. We've got light shades on the windows, but brightness still seeps around the edges and of course through the windsheild. For the noises it depends on the day for us. Sometimes he needs quiet, so we use etymotic ear plugs. You can buy those for cheap at Walmart and Target, they're called Heros and they look like weird rubber gill things. My son uses them in school too..you can here people talking to you, but it cuts out extra noise. For days that he doesn't need quiet he likes to use his ipod shuffle. You can get shuffles for just about the same price as cheap mp3 players now. I recommend the shuffle b/c we went through the mp3 players pretty quickly.They tend to break a lot. We've had the shuffles for three years and two major road trips, and they're still in top shape. A snack can also go a long way in distracting her attention. Ice water in a spillproof sipee cup incase she's a thrower... all my kids know if they want a drink in the car or in their room it's in a sipee cup. Hang in there, this will get better. Have you tried the epsom baths to help with the die off symptoms? They help a lot. Talk to your other kids and explain that your daughter has a special brain that doesn't work the same way as theirs. That she loves them even though she doesn't act like it sometimes, and that she's going to get better. e-mail me anytime. I'm so familiar with this behavior and your feelings about it ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 HI TAmmy, already doing all listed, ahve been on special diet GF/CF/EF dye and artificial free for over 2 years already as well as yeast protocol over 1 year. Belong to generation rescue and autism- mercury as well.. And we got our results from our OATS test 2 weeks ago, that is why we are doing major yeast detox (anti-fungals, & homeopathic)on top of what we are already doing.... So we have been around this awhile... doing all the supplements, probiotics, GSE, biotin, Houston enzymes, magnesium, candidase and virastop. And have had 2nd opinions from 2 separate DANS-----and they both say we are on the right track.. So I was asking for some behavioral ideas, or am I just passing time hoping and praying for better days ahead. And that seems to be the answers I am getting from most of you already going thru the big major yeast detox. It sounds like we just have to wait it out and stay home, and take a deep breath and deal with it.....But I appreciate your willingness to share. thanks, Jen Re: behavior help > > Oh hon I am so sorry. We've all been there...i 'm there quite often > actually:) Try to remember that the behaviors she's having aren't bad > behavior. They are the result of an illness that she can't help. Try to > let > go of the anger towards her, and let yourself off the hook. It isn't > anything you did or didn't do as a parent that has her acting this way. > She's sick. When a Doctor finally told me that for some reason it got a > lot > easier to handle my son. I'm not saying it always helps... if you're > being > sworn at, spit at and tortured all day long it's a miracle if you don't > get > angry. But just try to take a deep breath and let it go. This is die > off...it sucks! It won't last much longer honestly. Afterwards you won't > believe the child who emerges. She's also at an age where she'll start to > behave a little better just because of gaining maturity. My son was a > living > nightmare from the time he turned 2 until he was 10. He's still a > nightmare > at times, but we've got about 70% or more peace > time. My daughter with ASD is completely different. She was a nightmare > from 10 months until she was four. Then she was the sweetest angel until > puberty hit high gear two years ago. Her period started a year ago. Now > she's an angel until it's time for her cycle. You mentioned that you're > the > taxi....does this mean you have to drive the kids to a lot of places > every > day? The car has always been a problem for my son. I spend most of my > time > single parenting b/c myhusband is a pilot. So when I have to bring my son > along for taxi time I try to do things that help calm him in the car. The > start of that is preparing him by telling him " we're going to drive to > bla > bla bla...we'll be in the car for bla bla bla. I know you have a hard > time > with driving around everywhere, but let's do some things to help you feel > better " . Then the trick is finding out what is causing her the problems , > and what can comfort her. With my son I think it's just simply too much > imput...the sound from the car , the > radio, the air conditioner, the light if it's sunny , the different smell > when the car's hot or whatever, and the movement of the car. These are > all > things that I know bug him. For the movement I put a towel or blanket > under > him. I explained why to him, and it seems to do the trick. If the problem > is > with holdng still you can get those pilates bands or tension tube bands > and > show her how to use them.Make a game of it by giving one to another kid > and > saying " see who can do 10 stretches " or whatever. Or " guys watch how > strong > 'Daughter' is, she can do so many of these stretches " . For the light, > baseball hat and sunglasses. We've got light shades on the windows, but > brightness still seeps around the edges and of course through the > windsheild. For the noises it depends on the day for us. Sometimes he > needs > quiet, so we use etymotic ear plugs. You can buy those for cheap at > Walmart > and Target, they're called Heros and they look like weird rubber gill > things. My son uses them in school > too..you can here people talking to you, but it cuts out extra noise. For > days that he doesn't need quiet he likes to use his ipod shuffle. You can > get shuffles for just about the same price as cheap mp3 players now. I > recommend the shuffle b/c we went through the mp3 players pretty > quickly.They tend to break a lot. We've had the shuffles for three years > and > two major road trips, and they're still in top shape. A snack can also go > a > long way in distracting her attention. Ice water in a spillproof sipee > cup > incase she's a thrower... all my kids know if they want a drink in the > car > or in their room it's in a sipee cup. Hang in there, this will get > better. > Have you tried the epsom baths to help with the die off symptoms? They > help > a lot. Talk to your other kids and explain that your daughter has a > special > brain that doesn't work the same way as theirs. That she loves them even > though she doesn't act like it sometimes, and that she's going to get > better. e-mail me anytime. I'm so > familiar with this behavior and your feelings about it > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 Chelation would be the next step. Stay on a yeast protocol. Please look into the Andy Cutler chelation protocol. Safe, slow and when the body in balance, yeast will be less of an issue. Tammy Re: behavior help > > Oh hon I am so sorry. We've all been there...i 'm there quite often > actually:) Try to remember that the behaviors she's having aren't bad > behavior. They are the result of an illness that she can't help. Try to > let > go of the anger towards her, and let yourself off the hook. It isn't > anything you did or didn't do as a parent that has her acting this way. > She's sick. When a Doctor finally told me that for some reason it got a > lot > easier to handle my son. I'm not saying it always helps... if you're > being > sworn at, spit at and tortured all day long it's a miracle if you don't > get > angry. But just try to take a deep breath and let it go. This is die > off...it sucks! It won't last much longer honestly. Afterwards you won't > believe the child who emerges. She's also at an age where she'll start to > behave a little better just because of gaining maturity. My son was a > living > nightmare from the time he turned 2 until he was 10. He's still a > nightmare > at times, but we've got about 70% or more peace > time. My daughter with ASD is completely different. She was a nightmare > from 10 months until she was four. Then she was the sweetest angel until > puberty hit high gear two years ago. Her period started a year ago. Now > she's an angel until it's time for her cycle. You mentioned that you're > the > taxi....does this mean you have to drive the kids to a lot of places > every > day? The car has always been a problem for my son. I spend most of my > time > single parenting b/c myhusband is a pilot. So when I have to bring my son > along for taxi time I try to do things that help calm him in the car. The > start of that is preparing him by telling him " we're going to drive to > bla > bla bla...we'll be in the car for bla bla bla. I know you have a hard > time > with driving around everywhere, but let's do some things to help you feel > better " . Then the trick is finding out what is causing her the problems , > and what can comfort her. With my son I think it's just simply too much > imput...the sound from the car , the > radio, the air conditioner, the light if it's sunny , the different smell > when the car's hot or whatever, and the movement of the car. These are > all > things that I know bug him. For the movement I put a towel or blanket > under > him. I explained why to him, and it seems to do the trick. If the problem > is > with holdng still you can get those pilates bands or tension tube bands > and > show her how to use them.Make a game of it by giving one to another kid > and > saying " see who can do 10 stretches " or whatever. Or " guys watch how > strong > 'Daughter' is, she can do so many of these stretches " . For the light, > baseball hat and sunglasses. We've got light shades on the windows, but > brightness still seeps around the edges and of course through the > windsheild. For the noises it depends on the day for us. Sometimes he > needs > quiet, so we use etymotic ear plugs. You can buy those for cheap at > Walmart > and Target, they're called Heros and they look like weird rubber gill > things. My son uses them in school > too..you can here people talking to you, but it cuts out extra noise. For > days that he doesn't need quiet he likes to use his ipod shuffle. You can > get shuffles for just about the same price as cheap mp3 players now. I > recommend the shuffle b/c we went through the mp3 players pretty > quickly.They tend to break a lot. We've had the shuffles for three years > and > two major road trips, and they're still in top shape. A snack can also go > a > long way in distracting her attention. Ice water in a spillproof sipee > cup > incase she's a thrower... all my kids know if they want a drink in the > car > or in their room it's in a sipee cup. Hang in there, this will get > better. > Have you tried the epsom baths to help with the die off symptoms? They > help > a lot. Talk to your other kids and explain that your daughter has a > special > brain that doesn't work the same way as theirs. That she loves them even > though she doesn't act like it sometimes, and that she's going to get > better. e-mail me anytime. I'm so > familiar with this behavior and your feelings about it > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Do you have a link, or does he have a website? I have heard about it before,, just not sure if he has his own link. When I do a search I get a lot of different websites, and didn't know if he had is own specific one... Re: Re: behavior help Chelation would be the next step. Stay on a yeast protocol. Please look into the Andy Cutler chelation protocol. Safe, slow and when the body in balance, yeast will be less of an issue. Tammy Re: behavior help > > Oh hon I am so sorry. We've all been there...i 'm there quite often > actually:) Try to remember that the behaviors she's having aren't bad > behavior. They are the result of an illness that she can't help. Try to > let > go of the anger towards her, and let yourself off the hook. It isn't > anything you did or didn't do as a parent that has her acting this way. > She's sick. When a Doctor finally told me that for some reason it got a > lot > easier to handle my son. I'm not saying it always helps... if you're > being > sworn at, spit at and tortured all day long it's a miracle if you don't > get > angry. But just try to take a deep breath and let it go. This is die > off...it sucks! It won't last much longer honestly. Afterwards you won't > believe the child who emerges. She's also at an age where she'll start to > behave a little better just because of gaining maturity. My son was a > living > nightmare from the time he turned 2 until he was 10. He's still a > nightmare > at times, but we've got about 70% or more peace > time. My daughter with ASD is completely different. She was a nightmare > from 10 months until she was four. Then she was the sweetest angel until > puberty hit high gear two years ago. Her period started a year ago. Now > she's an angel until it's time for her cycle. You mentioned that you're > the > taxi....does this mean you have to drive the kids to a lot of places > every > day? The car has always been a problem for my son. I spend most of my > time > single parenting b/c myhusband is a pilot. So when I have to bring my son > along for taxi time I try to do things that help calm him in the car. The > start of that is preparing him by telling him " we're going to drive to > bla > bla bla...we'll be in the car for bla bla bla. I know you have a hard > time > with driving around everywhere, but let's do some things to help you feel > better " . Then the trick is finding out what is causing her the problems , > and what can comfort her. With my son I think it's just simply too much > imput...the sound from the car , the > radio, the air conditioner, the light if it's sunny , the different smell > when the car's hot or whatever, and the movement of the car. These are > all > things that I know bug him. For the movement I put a towel or blanket > under > him. I explained why to him, and it seems to do the trick. If the problem > is > with holdng still you can get those pilates bands or tension tube bands > and > show her how to use them.Make a game of it by giving one to another kid > and > saying " see who can do 10 stretches " or whatever. Or " guys watch how > strong > 'Daughter' is, she can do so many of these stretches " . For the light, > baseball hat and sunglasses. We've got light shades on the windows, but > brightness still seeps around the edges and of course through the > windsheild. For the noises it depends on the day for us. Sometimes he > needs > quiet, so we use etymotic ear plugs. You can buy those for cheap at > Walmart > and Target, they're called Heros and they look like weird rubber gill > things. My son uses them in school > too..you can here people talking to you, but it cuts out extra noise. For > days that he doesn't need quiet he likes to use his ipod shuffle. You can > get shuffles for just about the same price as cheap mp3 players now. I > recommend the shuffle b/c we went through the mp3 players pretty > quickly.They tend to break a lot. We've had the shuffles for three years > and > two major road trips, and they're still in top shape. A snack can also go > a > long way in distracting her attention. Ice water in a spillproof sipee > cup > incase she's a thrower... all my kids know if they want a drink in the > car > or in their room it's in a sipee cup. Hang in there, this will get > better. > Have you tried the epsom baths to help with the die off symptoms? They > help > a lot. Talk to your other kids and explain that your daughter has a > special > brain that doesn't work the same way as theirs. That she loves them even > though she doesn't act like it sometimes, and that she's going to get > better. e-mail me anytime. I'm so > familiar with this behavior and your feelings about it > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Here it is, hope it works ok. In , you'll have to sign up. This is the email address. Something like 8,800 members, large group. Tons of great info. Many are on both these sites. Tammy < > Re: behavior help > > Oh hon I am so sorry. We've all been there...i 'm there quite often > actually:) Try to remember that the behaviors she's having aren't bad > behavior. They are the result of an illness that she can't help. Try to > let > go of the anger towards her, and let yourself off the hook. It isn't > anything you did or didn't do as a parent that has her acting this way. > She's sick. When a Doctor finally told me that for some reason it got a > lot > easier to handle my son. I'm not saying it always helps... if you're > being > sworn at, spit at and tortured all day long it's a miracle if you don't > get > angry. But just try to take a deep breath and let it go. This is die > off...it sucks! It won't last much longer honestly. Afterwards you won't > believe the child who emerges. She's also at an age where she'll start to > behave a little better just because of gaining maturity. My son was a > living > nightmare from the time he turned 2 until he was 10. He's still a > nightmare > at times, but we've got about 70% or more peace > time. My daughter with ASD is completely different. She was a nightmare > from 10 months until she was four. Then she was the sweetest angel until > puberty hit high gear two years ago. Her period started a year ago. Now > she's an angel until it's time for her cycle. You mentioned that you're > the > taxi....does this mean you have to drive the kids to a lot of places > every > day? The car has always been a problem for my son. I spend most of my > time > single parenting b/c myhusband is a pilot. So when I have to bring my son > along for taxi time I try to do things that help calm him in the car. The > start of that is preparing him by telling him " we're going to drive to > bla > bla bla...we'll be in the car for bla bla bla. I know you have a hard > time > with driving around everywhere, but let's do some things to help you feel > better " . Then the trick is finding out what is causing her the problems , > and what can comfort her. With my son I think it's just simply too much > imput...the sound from the car , the > radio, the air conditioner, the light if it's sunny , the different smell > when the car's hot or whatever, and the movement of the car. These are > all > things that I know bug him. For the movement I put a towel or blanket > under > him. I explained why to him, and it seems to do the trick. If the problem > is > with holdng still you can get those pilates bands or tension tube bands > and > show her how to use them.Make a game of it by giving one to another kid > and > saying " see who can do 10 stretches " or whatever. Or " guys watch how > strong > 'Daughter' is, she can do so many of these stretches " . For the light, > baseball hat and sunglasses. We've got light shades on the windows, but > brightness still seeps around the edges and of course through the > windsheild. For the noises it depends on the day for us. Sometimes he > needs > quiet, so we use etymotic ear plugs. You can buy those for cheap at > Walmart > and Target, they're called Heros and they look like weird rubber gill > things. My son uses them in school > too..you can here people talking to you, but it cuts out extra noise. For > days that he doesn't need quiet he likes to use his ipod shuffle. You can > get shuffles for just about the same price as cheap mp3 players now. I > recommend the shuffle b/c we went through the mp3 players pretty > quickly.They tend to break a lot. We've had the shuffles for three years > and > two major road trips, and they're still in top shape. A snack can also go > a > long way in distracting her attention. Ice water in a spillproof sipee > cup > incase she's a thrower... all my kids know if they want a drink in the > car > or in their room it's in a sipee cup. Hang in there, this will get > better. > Have you tried the epsom baths to help with the die off symptoms? They > help > a lot. Talk to your other kids and explain that your daughter has a > special > brain that doesn't work the same way as theirs. That she loves them even > though she doesn't act like it sometimes, and that she's going to get > better. e-mail me anytime. I'm so > familiar with this behavior and your feelings about it > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 > What does the yeast protocol look like? She takes 3 drops of GSE 3 x per > day, candidase and Virastop at night Virastop will tend to *increase* yeast if she has latent viruses. >>with Three Lac probiotics, I believe these contain strep strains, which can be a problem for certain kids. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 > See Below, I did also forget to mention that she ALWAYS had a huge > Ethiopian belly, that is starting to go away, so again that screams yeast > for me..... Huge belly meant yeast or intolerance here. For example, eating fats without mito cocktail caused huge belly here. But then, so did yeast. > Sometimes this is die off, other times it is intolerance to the > anti-fungals, other times it is overgrowth of bad bacteria, and other times > it is liver stress. *******AND HOW DO WE FIGURE THIS OUT? If adding the Diflucan helps the yeast issue, keep with it and see if it makes this behavior issue go away, or no change, or it increases. Dana Quote Link to comment Share on other sites More sharing options...
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