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You ate not alone!On Jan 18, 2010, at 3:33 PM, "sarahwhitbread@..." <sarahwhitbread@...> wrote:

Hello All,

I'm a 31 year old woman from England and I've been suffering with Samter's Triad for probably 10 years although it was only diagnosed a couple of years ago. I'm new to the forum and eager to find out as much as I can about this condition, I'm sure you all know how I feel - some days it can become unbearable.

I have had two operations to remove polyps, the most recent two years ago, but within six weeks the polyps were returning and I have been congested since. I experience the same sinus pressure, headaches, and restless nights when my nose will contstantly stream. The most frightening experience is that my nose has widened in the last few months, due I'm told by my ENT specialist by the constant pressure. Has anyone else had this? Short bursts of prednisolone give some respite for a week or so, but I am loathe to use them more than twice a year, as I've been told they can affect bone density.

As the years have passed I've felt more allergic, and now count dustmites, cat and dog allergies alongside the sensitivity to aspirin. I experienced wheeziness for years when drinking red wine, before realising the connection with salicylates, I now tend to avoid all alcohol. I am on the salicylate free diet and not feeling the benefits as yet, but I've been told it could take a month to clear my system, after reading some positive posts on here regarding the diet I'm feeling more optimistic about it.

I tried Singulair but thought it caused some tinnitus, has anyone else experienced this? I am now taking Accolate, which was a Godsend for the first month, but slowly the polyps returned, but I will stick with it. Zyflo is not available over here in England. Thankfully, the polyps do not tend to affect my asthma too much, although I have post-nasal drip. I have been using the Seretide inhaler for a few years now and that is amazing, I now hardly ever have to use ventolin, despite the congestion.

I have been referred to Professor Corrigan at Guy's in London, and am hoping for desensitisation, some of your stories have given me renewed optimism.

I have seen menitoned Pulmicort Respules but I can't find enough information on how they could be used to treat the sinuses - can anyone tell me more on this?

It's good not to feel like I'm alone, if anyone has any advice I'd be grateful. Best wishes to all.

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You are not alone. Your story is pretty much identical to everyone else on this

board.

Your reaction to wines is most likely from sulfites, not salicylates.

I still have periods of tinnitus, but not sure if it is from blowing my nose too

hard, higher than usual blood pressure, or what. It's not Singulair as I

haven't taken it in months. I think it could be just the congestion in my

sinuses caused by the polyps putting pressure on my ear canal.

Desensitisation after polyp surgery seems to be the most effective treatment,

but not the cure. I did desensitisation, but thanks to a possible blood clot, I

had to get off of aspirin and am taking other blood thinners for a few more

months as a precaution.

I've also noticed that I've become more sensitive to things I was either

slightly allergic to or never allergic to, so I tend to think whatever the

Sampter's is has to do with damaging my immune system.

Good luck to you. The information folks provide on this board is the best

anywhere.

Almost forget to mention.....the best think you can do is rinse your sinuses

once or twice a day (a mixture of salt and baking soda in warm water). This web

site is one of the companies that sells a product to do just that:

http://www.neilmed.com/usa/index.php

>

> Hello All,

>

> I'm a 31 year old woman from England and I've been suffering with Samter's

Triad for probably 10 years although it was only diagnosed a couple of years

ago. I'm new to the forum and eager to find out as much as I can about this

condition, I'm sure you all know how I feel - some days it can become

unbearable.

>

> I have had two operations to remove polyps, the most recent two years ago, but

within six weeks the polyps were returning and I have been congested since. I

experience the same sinus pressure, headaches, and restless nights when my nose

will contstantly stream. The most frightening experience is that my nose has

widened in the last few months, due I'm told by my ENT specialist by the

constant pressure. Has anyone else had this? Short bursts of prednisolone give

some respite for a week or so, but I am loathe to use them more than twice a

year, as I've been told they can affect bone density.

>

> As the years have passed I've felt more allergic, and now count dustmites, cat

and dog allergies alongside the sensitivity to aspirin. I experienced wheeziness

for years when drinking red wine, before realising the connection with

salicylates, I now tend to avoid all alcohol. I am on the salicylate free diet

and not feeling the benefits as yet, but I've been told it could take a month to

clear my system, after reading some positive posts on here regarding the diet

I'm feeling more optimistic about it.

>

> I tried Singulair but thought it caused some tinnitus, has anyone else

experienced this? I am now taking Accolate, which was a Godsend for the first

month, but slowly the polyps returned, but I will stick with it. Zyflo is not

available over here in England. Thankfully, the polyps do not tend to affect my

asthma too much, although I have post-nasal drip. I have been using the Seretide

inhaler for a few years now and that is amazing, I now hardly ever have to use

ventolin, despite the congestion.

>

> I have been referred to Professor Corrigan at Guy's in London, and am hoping

for desensitisation, some of your stories have given me renewed optimism.

>

> I have seen menitoned Pulmicort Respules but I can't find enough information

on how they could be used to treat the sinuses - can anyone tell me more on

this?

>

> It's good not to feel like I'm alone, if anyone has any advice I'd be

grateful. Best wishes to all.

>

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You definately are not alone - your story is very familiar. i too live in England and was desens to aspirin by Dr Nasser and his team in Addenbrokes Cambridge. I'm 39 and have had Samters for 10 years now, exactly. Where do you live? I live near Bath.

Becky

From: "sarahwhitbread@..." <sarahwhitbread@...>samters Sent: Mon, 18 January, 2010 23:33:45Subject: Samter's Triad

Hello All,I'm a 31 year old woman from England and I've been suffering with Samter's Triad for probably 10 years although it was only diagnosed a couple of years ago. I'm new to the forum and eager to find out as much as I can about this condition, I'm sure you all know how I feel - some days it can become unbearable.I have had two operations to remove polyps, the most recent two years ago, but within six weeks the polyps were returning and I have been congested since. I experience the same sinus pressure, headaches, and restless nights when my nose will contstantly stream. The most frightening experience is that my nose has widened in the last few months, due I'm told by my ENT specialist by the constant pressure. Has anyone else had this? Short bursts of prednisolone give some respite for a week or so, but I am loathe to use them more than twice a year, as I've been told they can affect bone density. As the years have passed

I've felt more allergic, and now count dustmites, cat and dog allergies alongside the sensitivity to aspirin. I experienced wheeziness for years when drinking red wine, before realising the connection with salicylates, I now tend to avoid all alcohol. I am on the salicylate free diet and not feeling the benefits as yet, but I've been told it could take a month to clear my system, after reading some positive posts on here regarding the diet I'm feeling more optimistic about it.I tried Singulair but thought it caused some tinnitus, has anyone else experienced this? I am now taking Accolate, which was a Godsend for the first month, but slowly the polyps returned, but I will stick with it. Zyflo is not available over here in England. Thankfully, the polyps do not tend to affect my asthma too much, although I have post-nasal drip. I have been using the Seretide inhaler for a few years now and that is amazing, I now hardly ever have to use ventolin,

despite the congestion. I have been referred to Professor Corrigan at Guy's in London, and am hoping for desensitisation, some of your stories have given me renewed optimism. I have seen menitoned Pulmicort Respules but I can't find enough information on how they could be used to treat the sinuses - can anyone tell me more on this? It's good not to feel like I'm alone, if anyone has any advice I'd be grateful. Best wishes to all.

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Hi Becky,

I'm down in Kent. What was the procedure like? I've chatted to people on various

forums and most seem to be in America, but I think the dosage varies between

countries at least. How are you feeling now?

>

> You definately are not alone - your story is very familiar. i too live in

England and was desens to aspirin by Dr Nasser and his team in Addenbrokes

Cambridge. I'm 39 and have had Samters for 10 years now, exactly. Where do you

live? I live near Bath.

> Becky

>

>

>

>

> ________________________________

> From: " sarahwhitbread@... " <sarahwhitbread@...>

> samters

> Sent: Mon, 18 January, 2010 23:33:45

> Subject: Samter's Triad

>

>  

> Hello All,

>

> I'm a 31 year old woman from England and I've been suffering with Samter's

Triad for probably 10 years although it was only diagnosed a couple of years

ago. I'm new to the forum and eager to find out as much as I can about this

condition, I'm sure you all know how I feel - some days it can become

unbearable.

>

> I have had two operations to remove polyps, the most recent two years ago, but

within six weeks the polyps were returning and I have been congested since. I

experience the same sinus pressure, headaches, and restless nights when my nose

will contstantly stream. The most frightening experience is that my nose has

widened in the last few months, due I'm told by my ENT specialist by the

constant pressure. Has anyone else had this? Short bursts of prednisolone give

some respite for a week or so, but I am loathe to use them more than twice a

year, as I've been told they can affect bone density.

>

> As the years have passed I've felt more allergic, and now count dustmites, cat

and dog allergies alongside the sensitivity to aspirin. I experienced wheeziness

for years when drinking red wine, before realising the connection with

salicylates, I now tend to avoid all alcohol. I am on the salicylate free diet

and not feeling the benefits as yet, but I've been told it could take a month to

clear my system, after reading some positive posts on here regarding the diet

I'm feeling more optimistic about it.

>

> I tried Singulair but thought it caused some tinnitus, has anyone else

experienced this? I am now taking Accolate, which was a Godsend for the first

month, but slowly the polyps returned, but I will stick with it. Zyflo is not

available over here in England. Thankfully, the polyps do not tend to affect my

asthma too much, although I have post-nasal drip. I have been using the Seretide

inhaler for a few years now and that is amazing, I now hardly ever have to use

ventolin, despite the congestion.

>

> I have been referred to Professor Corrigan at Guy's in London, and am hoping

for desensitisation, some of your stories have given me renewed optimism.

>

> I have seen menitoned Pulmicort Respules but I can't find enough information

on how they could be used to treat the sinuses - can anyone tell me more on

this?

>

> It's good not to feel like I'm alone, if anyone has any advice I'd be

grateful. Best wishes to all.

>

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Yes I think you may be right about the sulfites. I recall last year having

dinner in a pub with a friend and having bottled water - being wary of wine now

- and having angioedema on my lips because of the bottle! Typical.

I have wondered about trying Singulair again, I know I should be having regular

liver tests because of using Accolate, but I don't think this is necessary with

Singulair?

Thanks for your advice on the sinus rinse, I do tend to using a Dr Grossan

machine I bought from the states on Amazon, on days when the stuffiness has

abated enough for it to get through and that is an improvement.

How are you feeling now that you've had to come off the aspirin for a while?

> >

> > Hello All,

> >

> > I'm a 31 year old woman from England and I've been suffering with Samter's

Triad for probably 10 years although it was only diagnosed a couple of years

ago. I'm new to the forum and eager to find out as much as I can about this

condition, I'm sure you all know how I feel - some days it can become

unbearable.

> >

> > I have had two operations to remove polyps, the most recent two years ago,

but within six weeks the polyps were returning and I have been congested since.

I experience the same sinus pressure, headaches, and restless nights when my

nose will contstantly stream. The most frightening experience is that my nose

has widened in the last few months, due I'm told by my ENT specialist by the

constant pressure. Has anyone else had this? Short bursts of prednisolone give

some respite for a week or so, but I am loathe to use them more than twice a

year, as I've been told they can affect bone density.

> >

> > As the years have passed I've felt more allergic, and now count dustmites,

cat and dog allergies alongside the sensitivity to aspirin. I experienced

wheeziness for years when drinking red wine, before realising the connection

with salicylates, I now tend to avoid all alcohol. I am on the salicylate free

diet and not feeling the benefits as yet, but I've been told it could take a

month to clear my system, after reading some positive posts on here regarding

the diet I'm feeling more optimistic about it.

> >

> > I tried Singulair but thought it caused some tinnitus, has anyone else

experienced this? I am now taking Accolate, which was a Godsend for the first

month, but slowly the polyps returned, but I will stick with it. Zyflo is not

available over here in England. Thankfully, the polyps do not tend to affect my

asthma too much, although I have post-nasal drip. I have been using the Seretide

inhaler for a few years now and that is amazing, I now hardly ever have to use

ventolin, despite the congestion.

> >

> > I have been referred to Professor Corrigan at Guy's in London, and am hoping

for desensitisation, some of your stories have given me renewed optimism.

> >

> > I have seen menitoned Pulmicort Respules but I can't find enough information

on how they could be used to treat the sinuses - can anyone tell me more on

this?

> >

> > It's good not to feel like I'm alone, if anyone has any advice I'd be

grateful. Best wishes to all.

> >

>

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I've been off of my aspirin desense for a little over 6 months, and a few days

after I stopped, the symptoms returned. I had to get off because I got a blood

clot in my kidney (doctors don't know if the aspirin caused it or prevented

something worse) and am on blood thinners now. My hematologist wanted to keep

me on them for about 6 months as a precaution, and I go to see him in a couple

of weeks to get off them.

Not sure if I'm going to desense again (I did the desense myself, and was down

to an aspirin a day, 320 mg, taking a quarter of it 4 times a day). Initially

my asthma got much better, and I had a partial sense of smell back for a few

days, but thanks to other things I was allergic to and taking in daily, I was

constantly congested. Once I got off the aspirin, things got worse and I had to

start up on Advair and other drugs each day.

My goal is not to take anything, to include the aspirin desense. So I'm going

to try other things, like avoiding the carrageenans I'm badly allergic to, and

avoiding other triggers, trying to eat much better, and get on the track I was

on over the holidays where I was able to wean myself off Advair. Like others

here, I'm overly sensitive to all sorts of things, so any " healing " is going to

take some time.

> > >

> > > Hello All,

> > >

> > > I'm a 31 year old woman from England and I've been suffering with Samter's

Triad for probably 10 years although it was only diagnosed a couple of years

ago. I'm new to the forum and eager to find out as much as I can about this

condition, I'm sure you all know how I feel - some days it can become

unbearable.

> > >

> > > I have had two operations to remove polyps, the most recent two years ago,

but within six weeks the polyps were returning and I have been congested since.

I experience the same sinus pressure, headaches, and restless nights when my

nose will contstantly stream. The most frightening experience is that my nose

has widened in the last few months, due I'm told by my ENT specialist by the

constant pressure. Has anyone else had this? Short bursts of prednisolone give

some respite for a week or so, but I am loathe to use them more than twice a

year, as I've been told they can affect bone density.

> > >

> > > As the years have passed I've felt more allergic, and now count dustmites,

cat and dog allergies alongside the sensitivity to aspirin. I experienced

wheeziness for years when drinking red wine, before realising the connection

with salicylates, I now tend to avoid all alcohol. I am on the salicylate free

diet and not feeling the benefits as yet, but I've been told it could take a

month to clear my system, after reading some positive posts on here regarding

the diet I'm feeling more optimistic about it.

> > >

> > > I tried Singulair but thought it caused some tinnitus, has anyone else

experienced this? I am now taking Accolate, which was a Godsend for the first

month, but slowly the polyps returned, but I will stick with it. Zyflo is not

available over here in England. Thankfully, the polyps do not tend to affect my

asthma too much, although I have post-nasal drip. I have been using the Seretide

inhaler for a few years now and that is amazing, I now hardly ever have to use

ventolin, despite the congestion.

> > >

> > > I have been referred to Professor Corrigan at Guy's in London, and am

hoping for desensitisation, some of your stories have given me renewed optimism.

> > >

> > > I have seen menitoned Pulmicort Respules but I can't find enough

information on how they could be used to treat the sinuses - can anyone tell me

more on this?

> > >

> > > It's good not to feel like I'm alone, if anyone has any advice I'd be

grateful. Best wishes to all.

> > >

> >

>

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Hello ,Cases of bone deviation due to polyp pressure have been reported in the literature, so yes, it does happen, and it clearly means that the polyps are overdue for surgery, otherwise more polyp growth will result in more deviation, which may become permanent with time. The consequences of bone deviation depend on where the polyps are and which bone(s) move, but as a matter of principle, it is really better to avoid letting it continue.There are some drugs that may work well on polyps : steroids, leukotriene inhibitors such as those you mentioned, topical furosemide, fish oils, antihistamines, etc. but, in general, there is no magical drug that quickly shrinks the polyps in everyone regardless of their particular situation.This is not to mean that quick shrinking of polyps is something that never happens ; on the contrary, it does happen in specific cases, for instance I believe we have reports even here of sufferers who are allergic to gluten, lactose, etc and suddenly realized it and stopped eating the allergen in question, and saw their polyps shrink fast.So, quick shrinking of polyps is generally observed in patients who either are very good responders to some drugs, or have specific and powerful triggers, identify them, and manage to get rid of them. In your case, if a couple of months of salicylate-free diet yields no improvement, then there is probably no point in continuing - though significant quantities (which may mean small doses, depending on every individual) of salicylates are to be avoided permanently.Remember that there may several elements that can trigger polyp growth, either individually or in combination, e.g. :- exposure to COX-inhibitors such as aspirin, salicylates, etc,- food allergies or intolerances,- environmental allergies or toxics,- sinus infections,- etc.so even if you get rid of one, there may be others involved that will perpetuate the congestion.If your sinuses are permanently congested, you are also likely to experience several sinusitis every year, and in turn this consolidates the polyp growth. So, there is some sort of vicious circle between all of these causes. Depending on your scans and symptoms, it is likely that Dr. Corrigan would envision the possibility of endoscopic sinus surgery (FESS) to clean everything out and start on fresh grounds.Do note that irrigation (preferably with lukewarm saline) has been of help to many members of this group, but blocking polyps prevent proper irrigation, so here again clearing out the polyps is a prerequisite.Good luck, and don't hesitate to let everyone here know how things evolve.-----------Eur Arch Otorhinolaryngol. 2006 Aug;263(8):767-71. Epub 2006 May 10.Topical furosemide versus oral steroid in preoperative management of nasal polyposis.Kroflic

B, Coer

A, Baudoin

T, Kalogjera

L.Otorhinolaryngology/Head and Neck Surgery Department, General Hospital, Celje, Slovenia.The efficacy of topical nasal furosemide treatment has been shown in the protection of nasal polyp recurrence. The aim of the study was to compare the effect of oral steroid, as standard preoperative treatment, and inhaled furosemide, as alternative treatment, for 7 days preoperatively in terms of subjective improvement of nasal symptoms, polyp size reduction, inflammation in the polyp tissue, and intraoperative blood loss. A group of 40 patients with nasal

polyposis entered the study and they were randomly allocated to 7-day preoperative treatment with either oral methylprednisolon (1 mg/kg/day) or topical furosemide by inhalation (6.6 mmol/l solution). Subjective scores of rhinosinusitis symptoms, polyp scores at endoscopy, and biopsy

of the most superficial polyp were taken at inclusion. All procedures were repeated on day 7. Intraoperative blood loss was estimated (scores 0-10) by the surgeon at the operation. Eosinophils, mastocytes, and oedema were quantified by histomorphometry. Subjective symptoms and endoscopy scores did not differ significantly between the groups after the treatment although improvement of olfaction was insignificantly better in the steroid group. Steroid treatment significantly reduced eosinophil count, with no effect on mastocytes and oedema. Furosemide treatment did not affect inflammatory cells count significantly, but it has significantly reduced oedema in previously unoperated patients. No difference in intraoperative bleeding was observed between the groups.Arch Otolaryngol Head Neck Surg. 2003 Jun;129(6):656-9.Treatment of recurrent chronic hyperplastic sinusitis with nasal polyposis.Passàli

D, Bernstein

JM, Passali

FM, Damiani

V, Passàli

GC, Bellussi

L.ENT Department, University of Siena Medical School, Siena, Italy. Passali@...OBJECTIVE:

To demonstrate the long-term efficacy of intranasal furosemide, an inhibitor of the sodium chloride cotransporter channel at the basolateral surface of the respiratory epithelial cell, vs no therapeutic intervention vs intranasal mometasone furoate, a corticosteroid, in preventing relapses of chronic hyperplastic sinusitis

with nasal polyposis. DESIGN: Randomized prospective controlled study. Patients were examined every 6 months during follow-up (range, 1-9 years). PATIENTS: One hundred seventy patients with bilateral obstructive or minimally obstructive chronic hyperplastic sinusitis with

nasal polyposis. INTERVENTION: All patients were surgically treated in the ENT Department, University of Siena Medical School. One month after surgery, group 1 patients (n = 97) started treatment with intranasal furosemide, group 2 (n = 40) received no therapeutic treatment, and group 3 (n = 33) were treated with mometasone. MAIN OUTCOME MEASURES: Clinical and instrumental evaluation of postoperative outcomes. RESULTS:

Seventeen (17.5%) of 97 patients in group 1, 12 (30.0%) of 40 patients in group 2, and 8 (24.2%) of 33 patients in group 3 experienced nasal polyposis relapses. We noted a prevalence of early-stage relapse in patients treated with furosemide or mometasone, whereas patients who did

not receive any treatment experienced more severe grades of chronic hyperplastic sinusitis with nasal polyposis (P<.005). CONCLUSION: Use

of intranasal furosemide represents a valid therapeutic treatment in the prevention of chronic hyperplastic sinusitis with nasal polyposis.>> Hello All,> > I'm a 31 year old woman from England and I've been suffering with Samter's Triad for probably 10 years although it was only diagnosed a couple of years ago. I'm new to the forum and eager to find out as much as I can about this condition, I'm sure you all know how I feel - some days it can become unbearable.> > I have had two operations to remove polyps, the most recent two years ago, but within six weeks the polyps were returning and I have been congested since. I experience the same sinus pressure, headaches, and restless nights when my nose will contstantly stream. The most frightening experience is that my nose has widened in the last few months, due I'm told by my ENT specialist by the constant pressure. Has anyone else had this? Short bursts of prednisolone give some respite for a week or so, but I am loathe to use them more than twice a year, as I've been told they can affect bone density. > > As the years have passed I've felt more allergic, and now count dustmites, cat and dog allergies alongside the sensitivity to aspirin. I experienced wheeziness for years when drinking red wine, before realising the connection with salicylates, I now tend to avoid all alcohol. I am on the salicylate free diet and not feeling the benefits as yet, but I've been told it could take a month to clear my system, after reading some positive posts on here regarding the diet I'm feeling more optimistic about it.> > I tried Singulair but thought it caused some tinnitus, has anyone else experienced this? I am now taking Accolate, which was a Godsend for the first month, but slowly the polyps returned, but I will stick with it. Zyflo is not available over here in England. Thankfully, the polyps do not tend to affect my asthma too much, although I have post-nasal drip. I have been using the Seretide inhaler for a few years now and that is amazing, I now hardly ever have to use ventolin, despite the congestion. > > I have been referred to Professor Corrigan at Guy's in London, and am hoping for desensitisation, some of your stories have given me renewed optimism. > > I have seen menitoned Pulmicort Respules but I can't find enough information on how they could be used to treat the sinuses - can anyone tell me more on this? > > It's good not to feel like I'm alone, if anyone has any advice I'd be grateful. Best wishes to all.>

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Hi Mike,

Glad to know you got rid of your MRSA!

>

>

> Hi & Becky

> Mike here from Suffolk.

> I am seeing Dr Scadding on 27th Jan - she is based at the Royal Free

in London - I have had a previous referral to her soon after I had my

first FESS surgery in Ipswich where I was diagnosed with Samters. I've

had a half decent 18 months since the surgery but the polyps are back

and I have had a pretty rough time with infection over the past 6 to 8

weeks. However I have seen my GP today and for the first time in 2

years I have some clear of MRSA swabs in my hooter. the past 6 weeks of

antibiotics have done something!

> I'll have to see what Dr Scadding says next week but if I need another

FESS I will certainly be pushing for desense as a follow up. I

understand Dr Scadding uses a liquid aspirin desense treatment putting

the drops directly into the nose rather than ingesting aspirin.

> I'll let you know how I get on.

> I think there are about 6 or 7 of us Samterians here in the UK now on

this site. Not a club I wanted to be a member of but the shared

knowledge and experiences is a great comfort to an otherwise

misunderstood and undiagnosed community.

> Best wishes

> Mike

>

> samters

> From: beckyb256@...

> Date: Wed, 20 Jan 2010 08:25:21 +0000

> Subject: Re: Re: Samter's Triad

>

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> hi ,

> GP's just don't understand aspirin desensitisation...and even ENT's

too. But for those who have ahd it done, and for the specialists who do

it, significant improvements can be seen. I am so lucky that my own

father is an Immunologist, and 2 of his colleagues (Dr Nasser in

addenbrokes and Dr Scadding in London) for years told him they would be

very happy to desens me..but it literally took me 7 years of courage

before i went ahead with it...and 7 years of realising this illness was

here to stay! I do wish i had done it sooner, but my fear of all medical

intervention held me off.

> It's definately worth a try though.

> Let us know how you get on with it all, and the name of your

Consultant Immunologist too. I think you may have Dr Glenys Scadding.

> Becky

>

>

>

>

>

> From: Whitbread sarahwhitbread@...

> samters

> Sent: Tue, 19 January, 2010 22:29:42

> Subject: Re: Re: Samter's Triad

>

>

>

>

>

>

> Hello Becky,

>

>

> I'm only just being referred by my doctor to Guys and I'm told by an

allergy specialist that they desensitise there, so I'm hoping. The

doctor initially dismissed the idea, saying that it has little weight

and doesn't think it will work, but I've pushed for it. So it'll be a

few months yet at least, I have no idea how long the waiting list might

be. You sound as if you've improved, I think perhaps so much of recovery

is about listening to your own body and doing what you feel is right.

>

>

> ng

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