Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Wow, it's been a while for me to be on this group. I've still a Samter's sufferer!!! Briefly, on a scale of 1-10 of Samter's I'm up there as a 9 or 10 (being the worse!!). I know some others here are up there with me and probably past me! My doctor put me on IVIG to try to alieve some of my symptoms, and it seems to have helped. I'm probably a 5-6 now. I haven't been hospitalized since Nov. But then I got to studying why my case is so bad. And I came across a disease called Mastocytosis. I emailed my doctor and he said, " let's give you a blood test for it. " So tomorrow I go in for a test to see if it is possible that I have this. It's rare, but so is my case of Samter's. My doctor won't try desensitize me anymore because I have such severe reactions with such little doses. Perhaps in an ICU I could do it, but I really am not thrilled with that idea. I also am very sensitive to additives, colorings and salicilates. Anyway, even if I don't have mastocytosis, maybe this is something others with a bad case of this might have. It's an idea worth putting out there. I will let you know what my test results are. Quote Link to comment Share on other sites More sharing options...
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