RE: Aspirin desensitisation in the UK

[Guest guest]

Hi

I had a bit of a battle via my GP with the Suffolk Primary Health Care Trust to get a referral to Dr Scadding agreed but got it after about 2 months. Good arguement is that if could save a lot of mony on repeated FESS surgery.

There are few places in UK that will undertake desense. Ther is one other in London linked in to Dr Scaddings programme but I think otherwise one in Cambridge and perhaps another in Cardiff.

It is a whole day in Hospital as an outpatient while the dose is gradually increased under controlled conditions so you have a Dr with you on and off the the whole time. I started at 9:15 and went left at 4:30. Then it is more increases in dose gradually over a 2 week period at home - you have agood idea what you are up against by then...... You feel pretty awful as the dose increases and have the ENT Dr's mobile number in case of any unforeseen event. There is no guarantee it will work for every Samters patient and I think about 80% do get some relief. I was relieve I was an 80% case and not a 20% one!

As I said before it has been life changing for me and so far no nasty side effects from the aspirin as the actual dosage is pretty small. About 100mg each day some of which drains out anyway.

If you want to discuss more send me a note of you tel number direct to my email and I will give you a ring.

Mike

samters From: rdawson5656@...Date: Fri, 20 May 2011 07:04:36 +0000Hi Subject: Aspirin desensitisation in the UK

I have read with interest the comments of posters with regard to the beneficial effects of aspirin desensitisation.Before I discuss this with my GP can I ask the following two points?1. Is this readily available free of charge on the NHS?2. Does it require hospitalisation while the process is carried out and, if so, for about how long?I note Mike Hammond has kindly posted in the past about Dr Scadding at the Royal Free Hospital in London and I wonder if posters are aware of any other consultants who specialise in this area in London or Surrey?Regards,

[Guest guest]

Thanks for that Mike,it is very helpful.

I suppose I will have to see what my GP says and then have an argument if

necessary!

I have noted that other posters here have mentioned that the desensitisation was

done after a polypectomy.Was this done in your case?

Also how is your SOS now after desensitisation?That is my main frustration!

Regards

>

>

> Hi

>

> I had a bit of a battle via my GP with the Suffolk Primary Health Care Trust

to get a referral to Dr Scadding agreed but got it after about 2 months. Good

arguement is that if could save a lot of mony on repeated FESS surgery.

>

> There are few places in UK that will undertake desense. Ther is one other in

London linked in to Dr Scaddings programme but I think otherwise one in

Cambridge and perhaps another in Cardiff.

>

> It is a whole day in Hospital as an outpatient while the dose is gradually

increased under controlled conditions so you have a Dr with you on and off the

the whole time. I started at 9:15 and went left at 4:30. Then it is more

increases in dose gradually over a 2 week period at home - you have agood idea

what you are up against by then...... You feel pretty awful as the dose

increases and have the ENT Dr's mobile number in case of any unforeseen event.

There is no guarantee it will work for every Samters patient and I think about

80% do get some relief. I was relieve I was an 80% case and not a 20% one!

>

> As I said before it has been life changing for me and so far no nasty side

effects from the aspirin as the actual dosage is pretty small. About 100mg each

day some of which drains out anyway.

>

> If you want to discuss more send me a note of you tel number direct to my

email and I will give you a ring.

>

> Mike

>

>

>

> samters

> From: rdawson5656@...

> Date: Fri, 20 May 2011 07:04:36 +0000Hi

> Subject: Aspirin desensitisation in the UK

>

>

>

>

>

>

> I have read with interest the comments of posters with regard to the

beneficial effects of aspirin desensitisation.

>

> Before I discuss this with my GP can I ask the following two points?

>

> 1. Is this readily available free of charge on the NHS?

>

> 2. Does it require hospitalisation while the process is carried out and, if

so, for about how long?

>

> I note Mike Hammond has kindly posted in the past about Dr Scadding at the

Royal Free Hospital in London and I wonder if posters are aware of any other

consultants who specialise in this area in London or Surrey?

>

> Regards,

>

>

>

[Guest guest]

Hi ,

Mike is correct, my husband has been

desensed in Cardiff.

It appears that they have had several people

through since pushed for it a couple of years ago.

We have not been on the samters site much

since then as has been so well. Back now though due to return

of polyps following a bad infection in the new year.

They use oral aspirin in cardiff like the

Scripps protocol rather than nasal which it sounds like Mike had. Desense

carried out as soon as practical following surgery.

SOS completely missing since surgery some

years ago and unfortunately not returned after desense.

I think it depends whether loss is a result

of swelling or damage during surgery. Hopefully yours will return

once you have the polyps under control.

Good luck, mail me if you need more details.

Mandy

[Guest guest]

Hi

Like Mike, I am doing the nasal desens. I have been doing it for 2 weeks now.

I started with 3 pipet drops in each nostril and increased it by one daily to a

maximum of 9. However, I had very bad stomach pains last week and have been

advised to reduce to 4 drops each until further notice. I am now taking

medication to help my stomach as it is believed that the aspirin is most

probably causing it.

It may be a very silly question, but whenever I have put medication up my nose I

have always assumed the position of laying on my back with my head over the end

of the bed. This is the way I was doing it with the aspirin but I wondered if

this method is more likely for the aspirin to go into my stomach. What methods

do other use?

Thankyou

>

> Hi ,

>

> Mike is correct, my husband has been desensed in Cardiff.

> It appears that they have had several people through since pushed for

> it a couple of years ago.

>

> We have not been on the samters site much since then as has been so

> well. Back now though due to return of polyps following a bad infection

> in the new year.

>

> They use oral aspirin in cardiff like the Scripps protocol rather than

> nasal which it sounds like Mike had. Desense carried out as soon as

> practical following surgery.

>

> SOS completely missing since surgery some years ago and unfortunately not

> returned after desense.

> I think it depends whether loss is a result of swelling or damage during

> surgery. Hopefully yours will return once you have the polyps under

> control.

>

> Good luck, mail me if you need more details.

>

> Mandy

>

[Guest guest]

Thanks for all the info Mike,I will let you know if I can get referred to Dr

Scadding .

Regards

> >

> >

> > Hi

> >

> > I had a bit of a battle via my GP with the Suffolk Primary Health Care Trust

to get a referral to Dr Scadding agreed but got it after about 2 months. Good

arguement is that if could save a lot of mony on repeated FESS surgery.

> >

> > There are few places in UK that will undertake desense. Ther is one other in

London linked in to Dr Scaddings programme but I think otherwise one in

Cambridge and perhaps another in Cardiff.

> >

> > It is a whole day in Hospital as an outpatient while the dose is gradually

increased under controlled conditions so you have a Dr with you on and off the

the whole time. I started at 9:15 and went left at 4:30. Then it is more

increases in dose gradually over a 2 week period at home - you have agood idea

what you are up against by then...... You feel pretty awful as the dose

increases and have the ENT Dr's mobile number in case of any unforeseen event.

There is no guarantee it will work for every Samters patient and I think about

80% do get some relief. I was relieve I was an 80% case and not a 20% one!

> >

> > As I said before it has been life changing for me and so far no nasty side

effects from the aspirin as the actual dosage is pretty small. About 100mg each

day some of which drains out anyway.

> >

> > If you want to discuss more send me a note of you tel number direct to my

email and I will give you a ring.

> >

> > Mike

> >

> >

> >

> > samters

> > From: rdawson5656@

> > Date: Fri, 20 May 2011 07:04:36 +0000Hi

> > Subject: Aspirin desensitisation in the UK

> >

> >

> >

> >

> >

> >

> > I have read with interest the comments of posters with regard to the

beneficial effects of aspirin desensitisation.

> >

> > Before I discuss this with my GP can I ask the following two points?

> >

> > 1. Is this readily available free of charge on the NHS?

> >

> > 2. Does it require hospitalisation while the process is carried out and, if

so, for about how long?

> >

> > I note Mike Hammond has kindly posted in the past about Dr Scadding at the

Royal Free Hospital in London and I wonder if posters are aware of any other

consultants who specialise in this area in London or Surrey?

> >

> > Regards,

> >

> >

> >

>