Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 I guess I can leave group since I don't have the asthma portion, it sounded wi much like me w/o the asthma. Unable to get appt with ENT, because how the appts fill for this department, I am forced to figure out on my own. Thank-you all regardless, I have learned a lot about the Samter's condition I never heard of prior to finding this group online. Now I'm off starting from scratch again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 My Samters was diagnosed early -- I had surgery to remove polyps and was desensitized shortly after. I only developed asthma after desens and for a brief period of time. If you have trouble with aspirin and salicylates I'd get desensitized, whether you want to call it Samters or not. The asthmatic component varies, as do all other symptoms.And post desens I now don't have polyps, asthma or problems w salicylates. I do have other issues (infection). MSent from my iPhoneOn Sep 10, 2011, at 5:38 AM, Milakaa Terry <milakaatopia@...> wrote: I guess I can leave group since I don't have the asthma portion, it sounded wi much like me w/o the asthma. Unable to get appt with ENT, because how the appts fill for this department, I am forced to figure out on my own. Thank-you all regardless, I have learned a lot about the Samter's condition I never heard of prior to finding this group online. Now I'm off starting from scratch again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 A small proportion of patients do not have visible lower airways symptoms (ie, asthma), but are still at potential risk of developing them. The term " Samter's Triad " was coined because the vast majority of patients exhibit the three symptoms - aspirin sensitivity, nasal polyps and asthma. Then, as it was progressively recognized that the real focus was aspirin sensitivity translating into airways problems, the new name " AERD " was introduced, which means Aspirin-Exacerbated Respiratory Diseases. So, if you spontaneously have " only " aspirin sensitivity translating into upper airways problems, as well as nasal polyps, but no asthma, you still fall into the AERD category, which is the subject of this group. Note that even under the old " Samter's Triad " denomination, it was already known that one could develop the symptoms in any order, with asthma not necessarily coming at the same time as the other two. > > I guess I can leave group since I don't have the asthma portion, it sounded > wi much like me w/o the asthma. Unable to get appt with ENT, because how the > appts fill for this department, I am forced to figure out on my own. > Thank-you all regardless, I have learned a lot about the Samter's condition > I never heard of prior to finding this group online. Now I'm off starting > from scratch again! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Ok so time to schedule/ask to be desensitized. Niece me Joan, I'd rather have a name and know what I have, thank you very much now I know what next step. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Thank you so much for breaking that down. So do I take an aspirin to see what happens? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Have you ever reacted to aspirin or NSAIDS before ? If yes, and if the reaction more or less involved the airways, it is likely that you fit the AERD mold, by definition. If not, taking an aspirin is not recommended unless you actually need it (ie for pain control) and have someone on hand to bring you to the ER just in case you reacted. Note that many members have taken aspirin/NSAIDS and have not reacted for a few times, and then took the pill that overflowed the vase and ended up reacting strongly. There are also many others who reacted very strongly to the FIRST aspirin/NSAID they ever took. This is meant to illustrate the fact that even if you did not react, it would not necessarily rule out AERD. > > Thank you so much for breaking that down. So do I take an aspirin to see > what happens? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2011 Report Share Posted September 11, 2011 I fall into that category. I took aspirin all along in my younger years. I didn't notice any issue until I moved to Texas. And with all the ragweed, I was taking an over the counter anti-histamine that included aspirin. One day the anti-histamine started making me feel really tight chested so I stopped taking it. About 2 months later I took an aspirin for a mile headache and had one of the worst attacks of my life. Ended up in ER. Crusher From: asfy <asfyso@...>samters Sent: Saturday, September 10, 2011 6:17 PMSubject: Re: Aspirin Desensitization Have you ever reacted to aspirin or NSAIDS before ?If yes, and if the reaction more or less involved the airways, it is likely that you fit the AERD mold, by definition.If not, taking an aspirin is not recommended unless you actually need it (ie for pain control) and have someone on hand to bring you to the ER just in case you reacted. Note that many members have taken aspirin/NSAIDS and have not reacted for a few times, and then took the pill that overflowed the vase and ended up reacting strongly.There are also many others who reacted very strongly to the FIRST aspirin/NSAID they ever took.This is meant to illustrate the fact that even if you did not react, it would not necessarily rule out AERD.>> Thank you so much for breaking that down. So do I take an aspirin to see> what happens?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2011 Report Share Posted September 11, 2011 Watch for common food allergies Main culprits are wheat, dairy, nuts, soy and chocolate. Many people react to high oxalate foods along with high salicylate food. Keep a food diary and note how you feel each day. Many times you can find correlations with what you eat and how you feel. Good luck Lesley Freeman West Pacific Medical Laboratory Cell Phone: 949-246-6619 From: Milakaa Terry <milakaatopia@...>samters Sent: Saturday, September 10, 2011 4:38 AMSubject: Re: Aspirin Desensitization I guess I can leave group since I don't have the asthma portion, it sounded wi much like me w/o the asthma. Unable to get appt with ENT, because how the appts fill for this department, I am forced to figure out on my own. Thank-you all regardless, I have learned a lot about the Samter's condition I never heard of prior to finding this group online. Now I'm off starting from scratch again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2011 Report Share Posted September 11, 2011 Ugh the good stuff, ok will try to note. I know pepper is one that makes polyps swell. Quote Link to comment Share on other sites More sharing options...
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