Re: I am aspirin desensitized!!

[Guest guest]

Congrats! I'm glad that worked out for you, finally! I am aspirin desensitized!!

Hello,

Well, as I have been explaining for months, I was unable to find anyone

to handle my aspirin desens. Until, I found the Parkes Clinic in

Rochester NY. The doc had me come back several weeks as he gave me

increasing doses of baby aspirin. Three weeks later, I can tolerate

650mg of aspirin twice daily. He looked up my nose and noticed that my

poyps were GONE!. I am now wheening off the prednisone. I am already

off the singulair. Everything is going well.

Do the aspirin challenge if you have Samter's. It is worth it. I

started out with one 81mg tablet twice a day for a week. Then two

tablets 2x for a week........ ... and so on until 8-81 mg. 2x daily

without a reaction.

Still don't have any smell but am hopefull it will return shortly. My

other symtoms such as stuffy nose, inflammed sinuses, constant headache-

------ are all getting better.

Good luck to all,

Dan

[Guest guest]

This is good news. Some months ago a person had posted that they had

previously gone through the desens process but their polyps still remained.

Your experience will make me reconsider the desens process.

I am aspirin desensitized!!

Hello,

Well, as I have been explaining for months, I was unable to find anyone

to handle my aspirin desens. Until, I found the Parkes Clinic in

Rochester NY. The doc had me come back several weeks as he gave me

increasing doses of baby aspirin. Three weeks later, I can tolerate

650mg of aspirin twice daily. He looked up my nose and noticed that my

poyps were GONE!. I am now wheening off the prednisone. I am already

off the singulair. Everything is going well.

Do the aspirin challenge if you have Samter's. It is worth it. I

started out with one 81mg tablet twice a day for a week. Then two

tablets 2x for a week........... and so on until 8-81 mg. 2x daily

without a reaction.

Still don't have any smell but am hopefull it will return shortly. My

other symtoms such as stuffy nose, inflammed sinuses, constant headache-

------ are all getting better.

Good luck to all,

Dan

------------------------------------

[Guest guest]

That's great. I have a consult w/ a doctor on Thursday to find out if I am a candidate. Question though...why wouldn't you attribute your polyps being gone to the prednisone? When I take prednisone my polyps shrink up. Did you still have them on prednisone?

thanks, Stacey in MA

-------------- Original message -------------- From: "dm.teal1" <dm.teal1@...>

Hello,Well, as I have been explaining for months, I was unable to find anyone to handle my aspirin desens. Until, I found the Parkes Clinic in Rochester NY. The doc had me come back several weeks as he gave me increasing doses of baby aspirin. Three weeks later, I can tolerate 650mg of aspirin twice daily. He looked up my nose and noticed that my poyps were GONE!. I am now wheening off the prednisone. I am already off the singulair. Everything is going well. Do the aspirin challenge if you have Samter's. It is worth it. I started out with one 81mg tablet twice a day for a week. Then two tablets 2x for a week........... and so on until 8-81 mg. 2x daily without a reaction.Still don't have any smell but am hopefull it will return shortly. My other symtoms such as stuffy nose, inflammed sinuses, constant headache------- are all getting better.Good luck to all,Dan

[Guest guest]

> From: " dm.teal1 " <dm.teal1@...>

>

> The doc had me come back several weeks as he gave me

> increasing doses of baby aspirin. Three weeks later, I can tolerate

> 650mg of aspirin twice daily. He looked up my nose and noticed that my

> poyps were GONE!. I am now wheening off the prednisone. I am already

> off the singulair. Everything is going well.

Being on Prednisone alleviates many Samters symptoms. It is not

necessarily a surpise that the polyps have disappeared if you were taking

Prednisone.

> Do the aspirin challenge if you have Samter's. It is worth it.

Absolutely.

> I started out with one 81mg tablet twice a day for a week. Then two

> tablets 2x for a week........... and so on until 8-81 mg. 2x daily

> without a reaction.

Being on Prednisone increases the tolerance to aspirin.

That is probably why you were able to take 81mg at the start.

Most people here would not have started at that relatively high level.

It will be interesting to see how your symptoms respond once you are weaned

from Prednisone.

> Still don't have any smell but am hopefull it will return shortly. My

> other symtoms such as stuffy nose, inflammed sinuses, constant headache-

> ------ are all getting better.

Most reports of success with desensitization (by itself) do not include

long-term return of sense of smell.

[Guest guest]

I've been " desensed " twice to no effect. My doctor therefore assumes I

don't have " classic " samters but something else. A recent mucus

culture (he sucked mucus out my nose and grew bacteria in it) showed

high levels of klebsiella so he put me on a 1-month supply of

levaquin. I'm also on Zyflo, Omnaris (new nasal spray by Sepracor) and

Mucinex as well as daily nasal irrigation (2x/day) of alkalol followed

by genamycin though I'm told alkalol is bad for some people so far no

problems.

as a wise person on this board once said: irrigate, irrigate, irrigate!

>

> That's great. I have a consult w/ a doctor on Thursday to find out

if I am a candidate. Question though...why wouldn't you attribute

your polyps being gone to the prednisone? When I take prednisone my

polyps shrink up. Did you still have them on prednisone?

>

> thanks, Stacey in MA

>

> -------------- Original message --------------

> From: " dm.teal1 " <dm.teal1@...>

> Hello,

> Well, as I have been explaining for months, I was unable to find anyone

> to handle my aspirin desens. Until, I found the Parkes Clinic in

> Rochester NY. The doc had me come back several weeks as he gave me

> increasing doses of baby aspirin. Three weeks later, I can tolerate

> 650mg of aspirin twice daily. He looked up my nose and noticed that my

> poyps were GONE!. I am now wheening off the prednisone. I am already

> off the singulair. Everything is going well.

> Do the aspirin challenge if you have Samter's. It is worth it. I

> started out with one 81mg tablet twice a day for a week. Then two

> tablets 2x for a week........... and so on until 8-81 mg. 2x daily

> without a reaction.

> Still don't have any smell but am hopefull it will return shortly. My

> other symtoms such as stuffy nose, inflammed sinuses, constant headache-

> ------ are all getting better.

> Good luck to all,

> Dan

>

[Guest guest]

Looking up one's nose does not give a guarantee that the polyps are

gone, because no one can see into all of the sinuses by looking up

the nose. However, aspirin desensitization will hopefully shrink the

polyps to a much smaller size, and more importantly, slow down the

growth of polyps. That is what can be hoped for with aspirin

desensitization.

Lori

>

> This is good news. Some months ago a person had posted that they had

> previously gone through the desens process but their polyps still

remained.

> Your experience will make me reconsider the desens process.

>

>

>

> I am aspirin desensitized!!

>

>

> Hello,

> Well, as I have been explaining for months, I was unable to find

anyone

> to handle my aspirin desens. Until, I found the Parkes Clinic

in

> Rochester NY. The doc had me come back several weeks as he gave me

> increasing doses of baby aspirin. Three weeks later, I can tolerate

> 650mg of aspirin twice daily. He looked up my nose and noticed

that my

> poyps were GONE!. I am now wheening off the prednisone. I am

already

> off the singulair. Everything is going well.

> Do the aspirin challenge if you have Samter's. It is worth it. I

> started out with one 81mg tablet twice a day for a week. Then two

> tablets 2x for a week........... and so on until 8-81 mg. 2x daily

> without a reaction.

> Still don't have any smell but am hopefull it will return shortly.

My

> other symtoms such as stuffy nose, inflammed sinuses, constant

headache-

> ------ are all getting better.

> Good luck to all,

> Dan

>

>

> ------------------------------------

>

>

[Guest guest]

Hi,

Well, that's what I thought. I have been on pred. for months and grew new polyps after my first surgery. So, after my second surgery, the doc was not supprised to see more polyps growing---------- even though it was only two months since surgery -------- and on 15mg of pred. all the time!

The aspirin desens is going great. Can smell, taste, and Breath!. I am spraying sinuses in the morning with Afrin and following it up with a dose of Qvar up the nose. The Qvar allow continued daily use of the Afrin without side effects.

Good luck,

Dan

Re: I am aspirin desensitized!!

That's great. I have a consult w/ a doctor on Thursday to find out if I am a candidate. Question though...why wouldn't you attribute your polyps being gone to the prednisone? When I take prednisone my polyps shrink up. Did you still have them on prednisone?

thanks, Stacey in MA

------------ -- Original message ------------ -- From: "dm.teal1" <dm.teal1 (DOT) com>

Hello,Well, as I have been explaining for months, I was unable to find anyone to handle my aspirin desens. Until, I found the Parkes Clinic in Rochester NY. The doc had me come back several weeks as he gave me increasing doses of baby aspirin. Three weeks later, I can tolerate 650mg of aspirin twice daily. He looked up my nose and noticed that my poyps were GONE!. I am now wheening off the prednisone. I am already off the singulair. Everything is going well. Do the aspirin challenge if you have Samter's. It is worth it. I started out with one 81mg tablet twice a day for a week. Then two tablets 2x for a week........ ... and so on until 8-81 mg. 2x daily without a reaction.Still don't have any smell but am hopefull it will return shortly. My other symtoms such as stuffy nose, inflammed sinuses, constant headache------- are all getting better.Good luck to all,Dan

[Guest guest]

Dan,

What is Qvar? I also spray daily with Afrin and have for years. I know this is one of the worst things you can do, but I rather like breathing. I think breathing is really underated! Anyway, my doc is forever telling me that the daily Afrin spraying is harmful, but I am addicted and just can not stop. Even when I have suffered through Afrin withdrawal, I just can not breath effectively without the Afrin.

What is Qvar?

Jane

From: Dan Teal <dm.teal1@...>Subject: Re: I am aspirin desensitized!!samters Date: Saturday, May 31, 2008, 10:25 AM

Hi,

Well, that's what I thought. I have been on pred. for months and grew new polyps after my first surgery. So, after my second surgery, the doc was not supprised to see more polyps growing----- ----- even though it was only two months since surgery -------- and on 15mg of pred. all the time!

The aspirin desens is going great. Can smell, taste, and Breath!. I am spraying sinuses in the morning with Afrin and following it up with a dose of Qvar up the nose. The Qvar allow continued daily use of the Afrin without side effects.

Good luck,

Dan

Re: I am aspirin desensitized! !

That's great. I have a consult w/ a doctor on Thursday to find out if I am a candidate. Question though...why wouldn't you attribute your polyps being gone to the prednisone? When I take prednisone my polyps shrink up. Did you still have them on prednisone?

thanks, Stacey in MA

------------ -- Original message ------------ -- From: "dm.teal1" <dm.teal1 (DOT) com>

Hello,Well, as I have been explaining for months, I was unable to find anyone to handle my aspirin desens. Until, I found the Parkes Clinic in Rochester NY. The doc had me come back several weeks as he gave me increasing doses of baby aspirin. Three weeks later, I can tolerate 650mg of aspirin twice daily. He looked up my nose and noticed that my poyps were GONE!. I am now wheening off the prednisone. I am already off the singulair. Everything is going well. Do the aspirin challenge if you have Samter's. It is worth it. I started out with one 81mg tablet twice a day for a week. Then two tablets 2x for a week........ ... and so on until 8-81 mg. 2x daily without a reaction.Still don't have any smell but am hopefull it will return shortly. My other symtoms such as stuffy nose, inflammed sinuses, constant headache------- are all getting better.Good luck to all,Dan

[Guest guest]

QVAR® is a pressurized metered-dose inhaler that is indicated for the maintenance treatment of asthma.1

QVAR® contains HFA beclomethasone dipropionate in a solution rather than suspension, which in combination with improved inhaler technology, produces an extrafine aerosol with a mass median aerodynamic diameter of 1.1 μm.2

Qvar

Re: I am aspirin desensitized!!

samters

Date: Saturday, May 31, 2008, 10:25 AM

Hi,

Well, that's what I thought. I have been on pred. for months and grew new polyps after my first surgery. So, after my second surgery, the doc was not supprised to see more polyps growing----- ----- even though it was only two months since surgery -------- and on 15mg of pred. all the time!

The aspirin desens is going great. Can smell, taste, and Breath!. I am spraying sinuses in the morning with Afrin and following it up with a dose of Qvar up the nose. The Qvar allow continued daily use of the Afrin without side effects.

Good luck,

Dan

Re: I am aspirin desensitized! !

That's great. I have a consult w/ a doctor on Thursday to find out if I am a candidate. Question though...why wouldn't you attribute your polyps being gone to the prednisone? When I take prednisone my polyps shrink up. Did you still have them on prednisone?

thanks, Stacey in MA

------------ -- Original message ------------ --

From: "dm.teal1" <dm.teal1 (DOT) com>

Hello,

Well, as I have been explaining for months, I was unable to find anyone

to handle my aspirin desens. Until, I found the Parkes Clinic in

Rochester NY. The doc had me come back several weeks as he gave me

increasing doses of baby aspirin. Three weeks later, I can tolerate

650mg of aspirin twice daily. He looked up my nose and noticed that my

poyps were GONE!. I am now wheening off the prednisone. I am already

off the singulair. Everything is going well.

Do the aspirin challenge if you have Samter's. It is worth it. I

started out with one 81mg tablet twice a day for a week. Then two

tablets 2x for a week........ ... and so on until 8-81 mg. 2x daily

without a reaction.

Still don't have any smell but am hopefull it will return shortly. My

other symtoms such as stuffy nose, inflammed sinuses, constant headache-

------ are all getting better.

Good luck to all,

Dan

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[Guest guest]

If I want an instant sinus infection, I use Afrin! Get off that stuff! When you stop using it, your symptoms will get really bad for about 2 days, but then you will breathe again, with less infections. Just speaking from a little experience, that's all.