Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Hi , I'd definitely be getting excited too and keep us informed of how you go. Good luck with it all. upcoming desen Hi all I've been keeping up with the posts, but havent posted lately... i'm going in for desen on monday/tuesday with dr bosso. I'm vascilating between nervousness (about potential reaction) and excitement. My sinuses are in good shape due to prednisone (5mg) - hopefully i can taper off soon and start to loose this pregancy/steriod weight! i'm smelling all the time now and so hope that it remains once i'm on aspirin, off prednisone. wish me luck! jennifer (ny) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Good luck, . I found the desens experience to be downright fascinating. Hope it works as well for you as it has for me. Remember that it may take several months to really show an effect. In the meantime, don't be shy about asking for antibiotic and prednisone if you start getting signs of infection. It took me a while to get rid of periodic infections before the aspirin could keep them away (by shrinking the polyps). Keep us posted on your experience. Jim (Tx) > > Hi all > > I've been keeping up with the posts, but havent posted lately... i'm > going in for desen on monday/tuesday with dr bosso. I'm vascilating > between nervousness (about potential reaction) and excitement. My > sinuses are in good shape due to prednisone (5mg) - hopefully i can > taper off soon and start to loose this pregancy/steriod weight! i'm > smelling all the time now and so hope that it remains once i'm on > aspirin, off prednisone. > > wish me luck! > > jennifer (ny) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 > From: " jbca623 " <jbca623@...> > Subject: upcoming desen > > Hi all > > I've been keeping up with the posts, but havent posted lately... i'm > going in for desen on monday/tuesday with dr bosso. I'm vascilating > between nervousness (about potential reaction) and excitement. The reaction isn't really " potential " , it's almost certain -- I believe it's a *necessary* part of the desensitization phenomenon. You may as well enjoy it! -- Ken West Check the library . . . samters/links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 > The reaction isn't really " potential " , it's almost certain -- I believe it's > a *necessary* part of the desensitization phenomenon. You may as well enjoy > it! > > -- > Ken West > Check the library . . . > samters/links I just went through desensitization a month ago. I didn't have any noticable reaction-except my peak flow went down a little. I probably wouldn't have noticeed that except the nurses had me check it every 15 minutes. No nasal stuffiness, or anything like that. However, the Dr. did had me take 10 mg. of Singuliar before starting the desensitization that morning, so maybe that had someting to do with it. Elaine (NY) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 To all of you who have done the aspirin desensitization, can I ask if your insurance covered it? I was all geared up to do it after my surgery but my doctor wants to do it in the hospital and my insurance company won't pay for it because it is " investigational " I am very frustrated but am still considering the procedure but would have to pay for it myself. Re: upcoming desen >> >>> The reaction isn't really " potential " , it's almost certain -- I believe >>> it's >>> a *necessary* part of the desensitization phenomenon. You may as well >>> enjoy >>> it! >>> >>> -- Ken West >> >> I just went through desensitization a month ago. I didn't have any >> noticable reaction-except my peak flow went down a little. I probably >> wouldn't have noticeed that except the nurses had me check it every 15 >> minutes. No nasal stuffiness, or anything like that. However, the Dr. >> did had me take 10 mg. of Singuliar before starting the >> desensitization that morning, so maybe that had someting to do with it. >> Elaine (NY) > > Another good reason to do the desens with a qualified professional, as > opposed to the DIY that some of us have done. It's good news that the > process can be made more comfortable with proper preparation -- readers > here > should take this as encouragement to look into desensitization as an > approach. It has worked for many, including me. I decided not to > continue > due to being unsure about the side effects of 1300mg ASA per day, but > there > is no question that it can be advantageous for Samterites. > > -- > Ken West > Check the library . . . > samters/links > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 On 1/23/06 7:02 AM, " anmcarter " <anmcarter@...> wrote: > To all of you who have done the aspirin desensitization, can I ask if your > insurance covered it? I was all geared up to do it after my surgery but my > doctor wants to do it in the hospital and my insurance company won't pay for > it because it is " investigational " I am very frustrated but am still > considering the procedure but would have to pay for it myself. > My insurance did not pay for it. It cost me $281.00 which I thought was cheap. Perhaps you can ask for an office procedure. We did it that way. The office was across the parking lot from the hospital. My reaction was not bad but I spent all day there. Bring a book. Pam -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 On 1/23/06 7:15 PM, " Pamela " <pam@...> wrote: > On 1/23/06 7:02 AM, " anmcarter " <anmcarter@...> wrote: > >> To all of you who have done the aspirin desensitization, can I ask if your >> insurance covered it? I was all geared up to do it after my surgery but my >> doctor wants to do it in the hospital and my insurance company won't pay for >> it because it is " investigational " I am very frustrated but am still >> considering the procedure but would have to pay for it myself. >> > My insurance did not pay for it. It cost me $281.00 which I thought was > cheap. Perhaps you can ask for an office procedure. We did it that way. > The office was across the parking lot from the hospital. My reaction was > not bad but I spent all day there. Bring a book. > > Pam I'm sorry, I just remembered, you're in NM and had surgery at SWENT, right? My desense doctor was Dr. Sussman. He had offices in Los Alamos and Santa Fe. I found him to be a godsend and have not been able to replace him yet. Pam -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi, I took 1300 milligrams a day in two separate doses of Ascriptin ALWAYS with a FULL meal. Some use Ecotrin. Do not use plain aspirin, it will eat away at your stomach. I was desensitized at Scripps so when I left I was on the daily dose already. Some people can get by with symptom improvement on 650 milligrams a day. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Hi , I had to fight with my insurance company some. They wanted it done in the office, and the Dr. wanted to do it in the hospital. Try enlisting the aid of your dr. in talking to the ins. company. The Dr.'s arguement is that it is too dangerous to do in the office and that it is necessary to do the desen where their is equipment. Elaine > > To all of you who have done the aspirin desensitization, can I ask if your > insurance covered it? I was all geared up to do it after my surgery but my > doctor wants to do it in the hospital and my insurance company won't pay for > it because it is " investigational " I am very frustrated but am still > considering the procedure but would have to pay for it myself. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Elaine, did you have an overnight stay? I had assumed it was that sort of thing, but I'm wondering if it can also be done on an outpatient basis, safely, if there's a certain cutoff time when they don't keep giving you aspirin. On 1/24/06, cheapskate100 <cheapskate100@...> wrote: Hi ,I had to fight with my insurance company some. They wanted it done inthe office, and the Dr. wanted to do it in the hospital. Tryenlisting the aid of your dr. in talking to the ins. company. The Dr.'s arguement is that it is too dangerous to do in the office andthat it is necessary to do the desen where their is equipment.Elaine>> To all of you who have done the aspirin desensitization, can I askif your> insurance covered it? I was all geared up to do it after my surgery but my> doctor wants to do it in the hospital and my insurance company won'tpay for> it because it is " investigational " I am very frustrated but am still> considering the procedure but would have to pay for it myself. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 what equipment? has anyone done the desens without needing this equipment? in other words could they have done it at home. and what is the starting dose? > > > > To all of you who have done the aspirin desensitization, can I ask > if your > > insurance covered it? I was all geared up to do it after my surgery > but my > > doctor wants to do it in the hospital and my insurance company won't > pay for > > it because it is " investigational " I am very frustrated but am still > > considering the procedure but would have to pay for it myself. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 I think Elaine means life-saving equipment, in the event of a surprisingly bad reaction. Not sure exactly what they'd use, but I'd imagine there's a steam tube filled with albuterol, epinephrine shots, etc. That's why it's normally done at a hospital: it's a bit dangerous. I'm not sure what they start at at scripps, but when I've done it (myself, don't-try-this-at-home, etc.), I start at a quarter of a baby aspirin and add a quarter every few hours. Usually I get a reaction at about 3/4 of a baby aspirin. That's 60mg. I'm amazed that people do it as quickly as they do. I was a complete snot-bag for a good three or four days. So I could see the plusses of doing it in a medical environment. On 1/24/06, tex22_us <tex22_us@...> wrote: what equipment? has anyone done the desens without needing thisequipment? in other words could they have done it at home. and whatis the starting dose?> >> > To all of you who have done the aspirin desensitization, can I ask > if your> > insurance covered it? I was all geared up to do it after mysurgery> but my> > doctor wants to do it in the hospital and my insurance companywon't> pay for> > it because it is " investigational " I am very frustrated but am still> > considering the procedure but would have to pay for it myself.> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Hi , I didn't have to stay overnight. At National Jewish they start you at 7:30 am and you are done at 5 pm for two consecutive days. National Jewish isn't a hospital, but the desens was done in triage, where they have nebulizers, adrenaline, EKG, o2, oximeters, IV Benedryl etc. and well trained staff to handle things. The person in the next room to me when I was having it done experienced a bad reaction to Rush Allergy Desensitization and have to have the adrenaline, IV Benedryl and other stuff. At 5 pm on the first day, they stop and send you home (actually a hotel room for us) with a list of bad reactions to look for. I didn't have any. The next morning, they started me out on the next higher dose than they left off on the night before. They do things differently there. If you have a reaction to a certain dose, they treat it and keep going. They don't keep repeating the dose until there is no reaction like other doctors do. When I asked about the cash price at Different medical Facilities/Clinics, etc. around the country, the cost ranged from about $3000 to $8000 without insurance for aspirin desens. I think the cost at NJ was a little over $500 per hour! Elaine ,-- In samters , Condouris <condour@g...> wrote: > > Elaine, did you have an overnight stay? I had assumed it was that sort of > thing, but I'm wondering if it can also be done on an outpatient basis, > safely, if there's a certain cutoff time when they don't keep giving you > aspirin. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Yes, I meant equipment that people wouldn't normally have laying around, like nebulizers, adrenaline, EKG, o2, oximeters, IV Benedryl etc. If a reaction is really bad, I think there is the possibility of intubation. I'm frugal and would like to be able to have done it myself, but the thought of things going wrong and not having anyone or medical equipment around to help was just too scarey for me. Elaine > > what equipment? has anyone done the desens without needing this > equipment? in other words could they have done it at home. and what > is the starting dose? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 I know they do desensitization in Dr. Bosso's office which is in Rockland County, NY, and there is no overnight stay. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 when I had desenstization done I had an IV hep lock in my arm. That way as soon as I had the reaction they administered medication through the IV. I don't know what the starting dose is. If you are suggesting doing this at home yourself, there are people here who have done it at home. I myself am in strong opposition to self-desensitization. I think it is extremely dangerous. Aspirin reactions can be unpredictable and at worst can kill you. If you DO decide to do it at home, you are putting yourself at risk -- make sure you have a doctor who knows what you are doing and an ER close by. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 lori - as far as i know, he only does it at nyack hospital, which is around 10 minutes away from his office. it is a 2 day outpatient procedure, so if you live far away you need to stay in a hotel overnight. jennifer (ny) > > I know they do desensitization in Dr. Bosso's office which is in > Rockland County, NY, and there is no overnight stay. > > Lori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hmm, when I went there he had said in his office, but maybe he has changed it since then. Anyway I live 15 minutes away, but I'm not thinking about getting desensitized again any time soon. Lori > > > > I know they do desensitization in Dr. Bosso's office which is in > > Rockland County, NY, and there is no overnight stay. > > > > Lori > > > Quote Link to comment Share on other sites More sharing options...
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